Get Inspired, Go Inspire. Annual Report 2008

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Get Inspired, Go Inspire. Annual Report 2008 Get inspired, go inspire. Annual Report 2008 Annual Report Founded by Charles R. Wood and Paul Newman in memoriam: Paul Newman (1925-2008) Get Inspired, Go Inspire 2 Double H Ranch Annual Report 2008 He is our co-founder. His presence remains at the Double H Ranch and he is a part of the magic. Paul, you got us inspired... and we will continue to go inspire. — Your family and friends at the Double H Ranch e continues to inspire and motivate us to deliver his extended family, friends and business associates sharing Hdream of a better place for children. Paul Newman’s their stories (and their tears) about Paul. passing has renewed our commitment to preserve So many members of our Double H family had the and expand his legacy. opportunity to personally meet Paul during one of his Paul’s commitment to and impact on the Double H numerous visits to camp, and those of us who did not Ranch children and families is evident by the outpouring have the honor of meeting Paul were taken aback by our of e-mails, letters and calls we received from our feelings of the loss of a close friend. Get Inspired, Go Inspire 3 Double H Ranch Annual Report 2008 Get Inspired, Go Inspire 4 Double H Ranch Annual Report 2008 table of contents Letter from the Board Chairman ...........................................................................pg. 6 Message from the Executive Director..................................................................pg. 7 2008 Annual Report Medical Diagnoses We Serve ............................................................................. pg. 8-9 Summer Residential Camp ...............................................................................pg. 10-11 Adaptive Winter Sports Program ..................................................................pg. 12-13 Spring/Fall Family-Based Programs ........................................................... pg. 14-15 Financial Information .............................................................................................. pg. 16 Donors .....................................................................................................................pg. 17-34 Volunteers & Program Partners ....................................................................pg. 34-37 The Board of Directors & Staff .............................................................................pg. 37 Mission ................................................................................................................Back Cover Double H Ranch 2008 Annual Report Editor: Linda T. Smith Graphic Design: Trampoline Design Illustration: Erin Higgins Photography: Emo Castle, Jim Smith, friends & family Get Inspired, Go Inspire 5 Double H Ranch Annual Report 2008 letter from the board chairman 2008 was an inspiring and fulfilling year. Despite our loyal individuals, foundations, organizations thousands… and although the Board is accountable market upheaval and an uncertain economy, each of and corporations who partner with us to deliver for executing the bylaws, I recognize that our our summer residential campers ‘Got Inspired to Go our mission. success lies with these extraordinary groups of Inspire’ during their Week in the Woods. The Double This year I’ve had the privilege of spending people who come together to create the magic. H winter students and families had an ‘awesome’ time with the multifaceted Double H family. I’m Thank you for a terrific 2008. season on the slopes taking advantage of Charley’s enlightened by interactions with the year-round Chalet, the new ski lodge. The Double H Spring and staffers who wear many hats as they play numerous Fall Family-Based Program participants could not roles and hold in high esteem the record number of say enough about the program staff and volunteers 209 winter volunteer instructors, National Ski Patrol Victor Hershaft, Board Chairman who supported their weekend stays. Because of you and lodge hosts who bring magic to the slopes. I we met our goal of securing a $3.1 million annual have great respect for the incredibly talented and operating budget. committed 125 summer staff members who deliver Our Board remained focused, working alongside an unforgettable week of Adirondack adventure to Max on addressing the organization’s strategic our summer campers, and I am in awe of the 1,500 issues with the goal of enhancing organizational and medical, individual and community volunteers. financial sustainability. We are accountable not only The pages upon pages of names of generous to the over 1,750 children and family members we donors who helped us reach this year’s goal of $3.1 serve annually, but to meeting the expectations of million make me realize that my voice is just one in Get Inspired, Go Inspire 6 Double H Ranch Annual Report 2008 message from the executive director While we are all deeply saddened to lose an As we all know, 2008 was filled with unique We should always reflect on how we have gotten extraordinary man and our co-founder of the Double economic challenges and opportunities for all where we are today and look to the future with H Ranch, we need to celebrate the life and legacy not-for-profit organizations. The Double H Ranch receptive outlooks and creative thinking. Together, of this beloved hero. Paul Newman’s passion and is uniquely challenged with the reality that we will we will achieve financial sustainability to ensure that selfless commitment to the welfare of families and never charge for direct services, but we are also the life-changing gifts of the Double H Ranch will children living with serious medical illnesses have blessed in many ways. always be afforded to our amazing kids and families. inspired people everywhere. Our community has embraced our critical mission Thank you for believing in our mission and potential When Paul partnered with Charley Wood in 1992 since inception in 1992, and I truly believe that our to make positive changes in the lives of others. you could see the enthusiasm and pure joy in the society has renewed their commitment to continue eyes of both of these men as they created the to dedicate their time and resources in helping those second Hole in the Wall Camp, the Double H Ranch. who are less fortunate. When these men interacted with the children you Our product is “changing lives” and with this comes could sense their delight in knowing that they an incredible sense of responsibility and obligation. were making positive and lasting changes in the Childhood illnesses are unfortunately not going to lives of these amazing kids. As a bonus, their lives disappear, so we must constantly evaluate our key Max Yurenda, CEO/Executive Director changed as well and we will continue to fulfill their strategic issues and core initiatives while monitoring vision in providing the highest quality of programs the components that make up our success. and medical services as a tribute to them and their extraordinary legacy. Get Inspired, Go Inspire 7 Double H Ranch Annual Report 2008 medical diagnoses we serve From the medical support Summer 2008 (by number) Winter 2008 (by percentage) staff: ■ Sickle Cell Anemia ■ Neuromuscular Disorders Neuromuscular Disorders Other Diseases “The Body Shop looks the “...though the population of children ■ ■ HIV/Immune Disorder Autism same as it did fifteen years with HIV screening is decreasing, the ■ ■ Hemophilia Cancer spectrum of illnesses that the Double H ■ ■ ago; the difference now is Other Blood Disorders HIV/AIDS serves has increased. The diagnoses of ■ ■ Other Diseases Hemophilia that the medical staff can the children I see at the Double H have ■ ■ Cancer Sickle Cell Disease provide more advanced grown. In the beginning, most of the ■ ■ Leukemia Visual Impairments children suffered from HIV, sickle cell ■ ■ medical treatment. We Rare Diseases 2% disease, leukemias, and solid tumors. ■ 4% can treat a painful sickle Mitochondrial Disease 4% The diagnoses now include children ■ Collagen Vascular Disease cell crisis on-site with with a wide variety of blood disorders, ■ neuromuscular diseases, genetic 20 12 5 3 intravenous narcotics. 21 5% disorders and metabolic diseases. And, 30 The equipment is more 5% the entire medical staff takes care of many 39% sophisticated which more campers and counselors per camp 10% means that kids don’t session than we did fourteen years ago.” 68 249 have to be sent off to the Raymond Walsh MD, aka Dr. Ray, has worked in the Pediatric Care Unit of the Children’s Hospital hospital as frequently.” at Albany Medical Center since 1988, caring for 71 24% children facing acute life-threatening illnesses. Dr. Ray has been volunteering summers at the Double — Dr. Ray H Ranch since 1994. 95 181 Get Inspired, Go Inspire 8 Double H Ranch Annual Report 2008 Hemophilia Collagen Vascular Disease Ventilator Dependent Leukemia Sickle Cell Anemia Mitochondrial Disorders HIV/Immune Disorder Neuromuscular Disorders Muscular Blood Disorders Spina Bifida Dystrophy Cancer Autism Cerebral Palsy HIV/AIDS Get Inspired, Go Inspire 9 Double H Ranch Annual Report 2008 2008 Summer Campers summer residential camp (by state) Int’l NH VT Other “I cannot believe I went out on the lake in a boat, up in the ropes, rode a horse, went to Great Escape – did you know I was so afraid to do all that OH stuff? I can’t wait to tell everyone at home.” —Summer camper PA July 2008 NJ NY Dear Counselors and Staff of Double H Ranch, We are confident that you have heard (and read) this before—what a truly wonderful experience you provide at Double H Ranch! We just wanted
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