CELEBRATING

P R O G R E S S

The Les Turner ALS Foundation Annual Report 2011

®

Advancing scientific research ▪ Providing care and support ▪ Increasing awareness A BRIEF HISTORY

Amyotrophic Lateral Sclerosis Les Turner ALS Foundation (ALS), more commonly known as Les Turner, after being diagnosed with ALS in

Lou Gehrig’s disease for the New 1976, was frustrated by the lack of information and research on ALS. Shortly before his death York Yankees icon, is a progressive, in 1978, Les along with his family and friends, degenerative disease affecting established the Les Turner ALS Foundation so motor neurons. Motor neurons that ALS patients and their families could have carrying impulses from the brain the resources, support and hope for a cure that to the muscles cease function and Les did not have. eventually die, causing muscle For more than three decades, the Foundation has been the only independent, weakness, difficulty speaking and publicly-supported non-profit organization in Chicagoland dedicated solely swallowing, and ultimately total to the treatment and elimination of ALS. The Foundation is a nationally recognized leader in patient services, research and education for ALS and paralysis and death. The disease other motor neuron diseases. is not bound by race, culture or socioeconomic status and, at any The Foundation partnered with Northwestern University Feinberg School of Medicine in 1979 where it supports a large multi-disciplinary clinical program given time, approximately 35,000 and two cutting-edge scientific research laboratories. Our full spectrum of patient people in the U.S. are living with services includes professional in-home consultation services, support groups, ALS. Onset of symptoms typically medical equipment loan programs, respite grants and educational programs. occurs between the ages of 35 and The mission of the Les Turner ALS Foundation is to raise funds to: 65, but ALS can strike at any age. ▪ Advance scientific research into the causes, treatments and prevention of ALS While treatments and interventions ▪ Provide people living with ALS, their families and caregivers exceptional clinical can help alleviate some symptoms, care and support services enhance quality of life and prolong ▪ Increase awareness and education of ALS survival – there is no cure. A M E S S A G E

FROM THE PRESIDENT AND THE EXECUTIVE DIRECTOR

Dear Friends, Most notably, we celebrated one of the most significant research discoveries in decades. Dr. Teepu Siddique and “Hope is an incredibly powerful tool that his colleagues at the Les Turner ALS Research Laboratory we use to keep us going every day…Today for the first time have identified a faulty protein pathway that hope has form. Today that hope has a as a common cause of all forms of ALS. This amazing finish line.” breakthrough brings us closer to a possible treatment and - Steve, ALS patient hopefully the cure that we have been searching for. Now Harvey Gaffen that would be something to celebrate! The past year gave us many President reasons to celebrate! The year 2011 was truly a cause for celebration and would not have been possible without your generous More than 6,000 supporters joined and continuous support! together to celebrate the 10th annual ALS Walk4Life on a sunny But there still is much work to do. As treatment protocols September day along Montrose for our patients improve, the need for our patient and Harbor. The sea of ALS patients, family services grows. And government funding for their loved ones and friends of the Wendy Abrams research continues its steady decline. So it is only with Executive Director Foundation walking in support and your support that we can cross that finish line and truly celebration was a sight to behold! celebrate – with ALS survivors.

Swimming in memory of his father who died of ALS, We hope you will continue this journey with us. Doug McConnell became the 48th person over the age We are so grateful for your support and would not be of 50 to successfully swim across the English Channel where we are today without you. Thank you for giving when he reached a finish line on a French beach after our patients and those who care for them a cause for swimming nearly 30 miles in 14 hours and 18 minutes. celebration…and HOPE. In addition, Doug raised more than $160,000 in support of the Foundation’s Research Initiative. Both amazing reasons to celebrate!

3 CELEBRATE DISCOVERIES

In 2011, scientists in the Les In 1979, the first Les Turner ALS Turner ALS Research Labs Research Laboratory was established identified a second faulty protein, with a staff of four dedicated to finding a cure for ALS. In 2011, we came one sequestosome1, in the same step closer with the discovery of an recycling pathway as ubiquilin2. underlying disease process. This strengthens the belief that this broken system is at the heart of Les Turner ALS Research ALS. Because these two genes are Initiative mutated and not recycling damaged Led by Teepu Siddique, MD, since 1991, the Foundation’s first research lab focuses proteins, those proteins accumulate on the genetic origin, development and treatment of ALS. Dr. Siddique and his abnormally in the motor neurons team maintain an extensive blood, cerebrospinal fluid, and brain and spinal cord in the spinal cord and cortical tissue bank collected from people both with and without ALS for their studies. and hippocampal neurons in the Major achievements include: brain. The protein accumulations ▪ Discovered the underlying disease process for all forms of ALS. The basis resemble twisted skeins of yarn, of the disorder is a broken down protein recycling system (ubiquilin2) in the characteristic of ALS, and cause the motor neurons of the spinal cord and the brain, causing the degeneration of the degeneration of the neurons. neurons. This discovery represents a major breakthrough in ALS research and opens up a new field for finding an effective treatment. The discovery of the underlying ▪ This research discovery was published in Nature, the world’s most cited disease process for all forms of interdisciplinary scientific journal, and theArchives of Neurology. ALS, not only provides an opening Led by P. Hande Ozdinler, PhD, the Foundation’s second lab focuses on to finding treatments for ALS, corticospinal motor neurons (CSMN) – tiny neurons that live in the cortex of but could also pay dividends by the brain and send out messages to the spinal cord. ALS attacks these neurons, showing the way to treatments along with the neurons that live in the spinal cord itself. In 2011, the Ozdinler lab achieved the following major accomplishments: for other, more common neurodegenerative diseases such ▪ Generated the lab’s first transgenic mouse, the UCHL1-GFP mouse. Multiple as Alzheimer’s, dementia and lines were created and, for the first time, motor neurons have been fluorescently Parkinson’s. tagged in a disease model and neuron-specific genetic labeling has been made possible. ▪ Organized the inaugural Les Turner Symposium on ALS, where scientists from inherently different fields come together to present on similar issues, thus contributing to the field of neurodegeneration at large.

4 CELEBRATE QUALITY CARE

The Foundation administers a comprehensive continuum of care that provides critical support to improve a patient’s quality of life. Patient service programs and resources are available to ALS patients and caregivers in the Chicagoland area – at no cost. In 2011, the Foundation:

▪ Conducted 724 patient visits by an ALS Nurse Consultant or Social Worker ▪ Provided financial assistance to 26 families through the Ralph Russo Grant Patient and Family Services Program ▪ Awarded Respite Grants to 17 families ▪ Facilitated support groups for 348 patients and caregivers ▪ Provided transportation to 43 families to the Les Turner/Lois Insolia ALS

The Les Turner/Lois Insolia ALS Center at Northwestern in Chicago is considered one of the nation’s top treatment centers for ALS patients. A multi-disciplinary team approach provides comprehensive treatment and support of people with ALS, their families and caregivers through the Stuart Rosen Transportation Fund. In 2011, there were a total of 585 patient visits to the Center.

Members of the ALS healthcare community from across the nation gathered for the Foundation’s 2011 ALS/MND Nursing Symposium to share ideas and best practices. More than 125 nurses, clinic coordinators and allied health professionals, a record number, were in attendance.

The Foundation honored Dan Weiler and Ana Pagan as our Patients of the Year, Doug McConnell as our Volunteer of the Year, and Nia Orosco as our Junior Volunteer of the Year, at the 2011 Education Forum and Volunteer Reception. Drs. Teepu Siddique and Lisa Wolfe, both of Northwestern Medicine, served as guest speakers.

The Les Turner ALS Foundation’s Home Care and Community Services Team is the only ALS in-home nursing consultation service in Chicagoland, and one of only a limited number throughout the country. The Team serves as an exemplary model for total ALS care and sets an international precedent for the future of

similar programs. The members of the Foundation’s Home Care and Community Services Team have more than 100 combined years of experience caring for ALS patients and their families.

5 CELEBRATE PHILANTHROPY

Most of the Foundation’s supporters are individuals – Run4ALS Program – Avid runners and weekend people like you who give their money, time and effort to warriors alike are fighting Lou Gehrig’s disease one bring hope to patients and families living with ALS. race at a time. In 2011, 524 runners raised more than $75,000! One of the program’s signature events, Hope Through Caring Award Gala – Honors Strike Out ALS 5K, gives participants the rare opportunity those who have shown outstanding commitment to to run and finish on the warning track at U.S. Cellular the fight against ALS. In 2011, the Foundation honored Field. Northwestern University Feinberg School of Medicine and former Dean, Larry Jameson. The event was a great ALS Walk4Life – The Foundation celebrated the 10th success and raised more than $515,000. anniversary of its largest fundraising event in 2011. More than 5,000 walkers, making up 245 teams, raised Tag Days – Each May, these locally organized upwards of $825,000. One team, Sandy’s Soldiers, came fundraising drives can be found at intersections, out in full force with 200 members! And 18 teams shopping malls and train stations in communities across celebrated having participated in every walk since the Chicagoland in celebration of ALS Awareness Month. very beginning. From Union Station to St. Charles, Tag Days Captains organized 22 drives raising $70,000.

Lou Gehrig Days – For 17 years, baseball fans have come out to celebrate the life and legacy of Lou Gehrig with the Chicago Cubs at Wrigley Field and the Chicago White Sox at U.S. Cellular Field. More than 300 supporters joined celebrity spokespersons Lin Brehmer of WXRT, author Jonathan Eig, and Keith van Horne of the 1985 Superbowl Championship Chicago Bears for these annual events.

6 CELEBRATE PHILANTHROPY CELEBRATE COMMUNITY

Each year, families, businesses and community groups join the Foundation in our effort to raise funds and awareness for ALS.

Lew Blond Memorial 5K Run/Walk – 2011 marked the 11th year that staff members, parents and students of School District 30 in Northbrook honored the memory of their beloved teacher, Lew Blond, by hosting this 5K run and walk. More than 850 came out on Saturday, May 21 to show their support and raised $14,500 for the Foundation, with a portion of the proceeds directly supporting the Stuart Rosen Transportation Fund.

A Long Swim – On August 21, Doug McConnell became the 48th person over the age of 50 to successfully swim across the English Channel. Doug swam for more than 14 hours, 7 of them in the darkness of night, all in an effort to raise funds and awareness in memory of his father, David, who lost his battle with ALS in 2006. Thanks, in part, to support from Medtronic and the Gilbert and Jacqueline R Fern Foundation, Doug’s efforts raised more than $160,000.

Every 90 minutes, someone is diagnosed with ALS. Want to learn how you can make an impact? Visit www.LesTurnerALS.org. Every dollar you donate, every minute you volunteer, every mile you run – can make a difference!

7 FINANCIAL REPORT

Fiscal Year 2011 Consolidated Financial Summary for the year ending December 31, 2011. Temporarily Unrestricted Restricted Total Year Statement of Financial Position Total Assets 1,902,951) 98,077) 2,001,028) Liabilities and Net Assets Current Liabilities 1,069,864) 0) 1,069,864) Net Assets 833,087) 98,077) 931,164) Total Liabilities & Net Assets 1,902,951) 98,077) 2,001,028)

Statement of Activities

Public Support & Revenue Fund-Raising Events (net) 1,134,401) 46,344) 1,180,745) Grants 53,750) 84,341) 138,091) Contributions & Bequests 137,868) 38,035) 175,903) Memorials 131,282) 11,121) 142,403) Annual Appeal 143,387) 0) 143,387) Investment Income 14,449) 0) 14,449) Rental Fees 240) 0) 240) Net Assets released from Restrictions 286,910) (286,910) 0)

Total Public Support, Revenue and Reclassifications 1,902,287) (107,069) 1,795,218)

Expenses Program Services Research 550,000) Les Turner/Lois Insolia ALS Center 453,302) Patient & Family Services Expenses 589,825) Education Expenses 111,497) Supporting Services Expenses Financial Development and Campaigns 95,373) Management and General 308,417)

Total Expenses 2,108,414) Increase in Net Assets (206,127) (107,069) (313,196) Net Assets - Beginning of year 1,039,214) 205,146) 1,244,360) Net Assets - End of year 833,087) 98,077) 931,164)

The foregoing condensed financial statements have been derived from the audited financial statements, which are available for public inspection at the offices of the Les Turner ALS Foundation.

Revenue Expense

Memorials Annual Appeal 8% Education Management Investments Les Turner/ 7.9% 5.3% 14.6% .8% Lois Insolia ALS Center Contributions Financial Development 21.5% 9.8% 4.5% Grants Fundraising Events Patient and Family 7.7% 65.8% Research Services 26.1% 28%

8 FINANCIAL REPORT OUR GENEROUS SUPPORTERS

Contributors who make annual gifts of $1,000 and above are Northwestern Memorial Foundation Mrs. Ann G. Drury members of the Friends Making a Difference Giving Society. Mr. and Mrs. Kenneth G. Pigott Mr. and Ms. Jonathan Eig Respironics Ms. Lila Erickson Donors Ms. Sharon Rowlen 8th Annual Erma Krider Golf Outing Sustaining Friends ($50,000 and above) Mrs. Jennifer l. Sanchez Mr. Dave Fafara A Long Swim: English Channel Mr. and Mrs. Ira J. Schulman Mrs. Katherine Felton Gilbert and Jacqueline R Fern Foundation Mr. and Mrs. Loren H. Semler Fidelity Charitable Mrs. Evangeline R. Haarlow Mr. and Mrs. Roger L. Taylor Mr. and Mrs. Irwin B. Fieldman Medtronic Mr. and Mrs. Richard Templer Mr. Rick Fiore The Berner Charitable & Scholarship Foundation First Trust Portfolios L.P. Inspiring Friends ($25,000 - $49,999) The Canning Foundation Mr. J. Robert Fitzgerald 1st Annual Gary Griffith Memorial Golf Outing The Chicago Community Trust Mr. John J. Fogarty Mr. and Mrs. Blair Haarlow The Cooper Foundation Fred O’Kasick Sales, Inc. Mr. and Mrs. William N. Haarlow The Davee Foundation Mr. and Mrs. Marc Frisco Haarlow Family Charitable Foundation The Dennis J. Smith Legacy Foundation Inc. Ms. Katie Garcia Mr. and Mrs. Richard M. Hirsch The Duchossois Family Foundation General Agricultural Services LLC James V. Insolia Family Foundation The Meelia Family Foundation General Fibre Products Corp. Judd A. & Marjorie Weinberg Family Foundation The Northern Trust Company Genesis Electronics Recycling, Inc. Mr. and Mrs. Dennis J. Keller The Siragusa Foundation Mr. Jay Gibble 5th Annual ROAR Ralph Russo ALS Charity Golf Classic Mr. and Mrs. Frederick H. Waddell Mr. Chris Gilmartin Paul A. & Joan S. Rubschlager Foundation Ms. Kathleen R. Whelan Dr. and Mrs. Jeffrey Glassroth Dr. and Mrs. Drew Senyei Mr. Thomas J. Wilson Mr. and Mrs. Lou Gody Stuercke Cubs Rooftop Event Ms. Rachel A. Goerend Willow Springs Foundation Discovering Friends ($1,000 - $4,999) Ms. Mary Anne Goldberg 1970’s Halloween Benefit for ALS Mr. Irwin M. Goldstein Devoted Friends ($10,000 - $24,999) Ms. Wendy M. Abrams Mrs. Ilene A. Gordon Anonymous ABT Electronics, Inc. Mr. and Mrs. Howard Gossage Armin & Esther Hirsch Foundation Mr. David Allen Mrs. Kim Griffith Cardinal Health Foundation Inc. American Chartered Bank Mr. and Mrs. Robert E. Grisemer Mr. and Mrs. Richard M. Carrigan, Jr. An Evening at Ravinia (Flahaven Fundraiser) Mr. and Mrs. Gary C. Grom Charles & M.R. Shapiro Foundation Mr. and Mrs. Gerard V. Anderson Mr. Kenneth A. Halverson, Jr. Computer Discount Warehouse Mr. Gregory G. Andresen Mr. and Mrs. John Hasse Farrell Family Foundation Area Equipment Inc. Hasse Construction Ms. Robin Fern Mrs. Dawn Ashner Mr. William Heffernan Full Circle Foundation Mr. and Mrs. Scott Audette Dr. and Mrs. Scott L. Heller Mr. and Mrs. Harvey Gaffen AVMA PLIT Mr. and Mrs. Steve Heronemus Mr. and Mrs. Joseph B. Glossberg Mr. and Mrs. Jim Obrien Beck Mr. James Hickey Grosvenor Capital Management, L.P. Benchmark Construction Company, Inc. Mrs. Jill T. Hirsh Henry Crown and Company Mr. and Mrs. Armand H. Bendersky Mr. and Mrs. Kenneth A. Hoffman Herbert C. Wenske Foundation Mr. Joseph W. Benyo Mrs. Marie Holdridge Mr. and Mrs. Robert Jones Mr. Steve Berliant Hollister Incorporated 11th Annual Lew Blond Memorial 5K Run/ Walk Mr. and Mrs. Melvin R. Berlin Mr. Rick Holm and Ms. Karen Delveaux Ms. Ann Lurie Bill Bateman’s Mr. David T. Hoppe Matt White Cure ALS Foundation Mr. David Bishop Mr. and Mrs. Mordecai D. Horberg Mr. and Mrs. Richard J. Mills Mr. James I. Black III Mrs. Gayle Howard Mr. and Mrs. W. Scott Nehs Mr. and Mrs. John C. Blink Mr. and Mrs. Jim W. Humay Northwestern University Feinberg School of Medicine Mr. Jonathan Bloom Mr. Greg Immell Reyes Holdings, LLC Blum-Kovler Foundation Mr. and Mrs. Greg Insolia Semler Industries, Inc. Mr. and Mrs. Thomas F. Boleky Mr. and Mrs. Bruce Iversen Mrs. Rhona Bresler Jacobsohn Consulting Associates Supporting Friends ($5,000 - $9,999) Mr. and Mrs. James A. Bruton III Mr. Calverd F. Jacobson John W. Anderson Foundation Mr. James Burke James M. and Louise C. Roche Foundation Arthur J. Gallagher & Co. Mr. Jim Carlisle and Ms. Rosemary Biel Dr. and Mrs. Larry Jameson, Ph.D. Avanir Pharmaceuticals Mr. Jim Casaccio Mr. and Mrs. Richard Jaracz Mr. and Mrs. Peter Barrett Mr. and Mrs. Joseph Centers Mr. and Mrs. Jeffrey A. Jensen Mr. Neil Berg Mrs. Rochelle Chasin JMB Realty Corp. Mr. and Mrs. Jack Bruner Ms. Judith Chudy Jordan Industries, Inc. Candlelight Bowl (Cotter Fundraiser) Mr. and Mrs. Harry Cody Mr. Stephen D. Kant Mr. and Mrs. Richard Clark Mr. and Mrs. Tom Cole Mrs. Sandra K. Katzel Mr. and Mrs. Alfred Contarino Mr. and Mrs. James G. Connelly III Mr. Edward Kelly First Bank of Highland Park Cors, Inc. Mr. and Mrs. David Ketchum Ms. Cindy Fluxgold and Mr. Terry Peigh Mr. and Mrs. Steven J. Crowe Ms. Elizabeth I. Keyser Gavel International Mr. John T. Culliton Mr. and Mrs. Pat and Bill Kiddle Mr. Kurt Gehlbach Mr. Thomas Culliton and Ms. Susan Sambor Kimon Hoegh Golf Outing Get in the Game (Adams Fundraiser) Mr. Brian Culliton and Ms. Amy Pilewski Kirkland & Ellis Mr. and Mrs. Robert F. Hirsch Mr. and Mrs. Patrick Cunningham Mr. Lester B. Knight Hitachi Data Systems Mr. William Cuthbert Ms. Leslie Kompare Illinois Tool Works Foundation Damico Family Foundation Mr. and Mrs. Harry Kraemer, Jr. John W. Anderson Foundation Mr. Andrew Daniels Mr. and Mrs. Derrick J. Kraus Katten Muchin Rosenman LLP Mr. Sean P. Deasy Mr. and Mrs. David A. Kreuzer Mr. and Mrs. Jeffrey R. Kautz Mr. and Mrs. Jason Deatherage Mr. and Mrs. Steve Krider Mr. and Ms. Jim I. McClure Mr. James Detmer Ms. Katherine E. Kurtz Mr. Richard Meelia Mr. William DeWoskin and Ms. Wendy Gross Mr. and Mrs. Bob Lee Mr. Kendall Meisner Mr. and Mrs. Mark D. Dillon Mrs. Marcia M. Lehmann Muscular Dystrophy Association -National Office Mrs. Laverne Dillon Mr. and Mrs. Mike Leissner Mr. and Mrs. James W. Nolan Mr. and Mrs. Patrick D. Dillon Mr. Michael R. Lemick 9 Mr. John Letchinger and Ms. Robin Wolkoff The Scully Estates Limited Partnership Mr. William Fischer and Mrs. Renee Hoff Mr. Michael J. Levitt Touhy Office Plaza, LLC Mr. and Mrs. Steve Fitzgerald Lincolnway Special Recreation Foundation Transco Inc. Charitable Foundation Mr. and Mrs. J. Douglas Flahaven Mr. Del Linderman Mr. Mark Trinka Mr. Scott Fontana Dr. and Mrs. Daniel Linzer Mr. and Mrs. Alan Turner Dr. and Mrs. Robert Fontana Mr. Dave Lobb Mr. Fred L. Turner Food Beverage & Equipment Executives Logan County Title Company United Displaycraft Mr. Christopher Ford Mr. and Mrs. William P. Lyman Mr. and Mrs. Richard A. Voell Mr. Richard Frankel M L A Holding LLC Walmart Foundation Freeborn & Peters LLP M. Ward Manufacturing Co., Inc. Mr. and Mrs. John Walter Mr. and Mrs. Irwin Friedman Ms. Joan Madeja Walter Boughton A.L.S. Research Fund Mr. Ryan Garino Mr. and Mrs. Jay A. Maher Mr. Russ Wasendorf Mr. and Mrs. Joe Gavin Makray MFG. Company Mr. and Mrs. Thomas G. Weiler Mr. Richard Gay Mr. and Mrs. Mark D. Manetti Mr. and Mrs. David B. Weinberg Mr. Scott H. Gendell Mr. Jerry Mangel Mr. and Mrs. Richard Weinberg Mr. Tad Geschickter Mr. and Mrs. Roland Martel Ms. Dorothea H. White Ms. Sally A. Gill Ms. Nicole Marts William and Wilma Dooley Foundation Mr. Phupinder S. Gill Mr. and Mrs. Craig Mataczynski William Blair & Company Foundation Mr. and Mrs. Melvin R. Giovacchini Mr. John F. McCartney Ms. Anne E. Woywod Mr. Michael Golden Mrs. Bonnie M. McConnell Counsel General and Mrs. Fatih Yildiz Ms. H. Lynette Goldstein Mr. and Mrs. Doug P. McConnell Mr. Paul Yovovich Ms. Susan Goray Mr. and Mrs. Joseph B. McGoldrick Zion Benton Township High School Mr. Robert Gordon Mr. and Mrs. Andrew J. McKenna Mr. and Mrs. Stephen Goulding Medinah Country Club/2012 Ryder Cup Friends ($500 - $999) Mr. and Mrs. David Greenberg Mr. and Mrs. Jack F. Merchant Ms. Wanda Abel Mr. Daniel L. Greiwe Mingus Awareness Project V Mr. and Mrs. Robert Abt Mr. Bryan Gutraj MorganStanley SmithBarney Access Mr. Kenneth Guy Mount Carmel Mission Club Mr. and Mrs. Bruno Adams Ms. Cheryl Hagan Multitech Metal Forming Adams Magnetic Products Co. Mr. Michael Halpert Ms. Sheila J. Musolino Mr. James Aldrich Mr. Eric A. Hannay Mr. Richard Nathan Mr. and Mrs. Charles S. Allen Mr. Mark Hanson Mr. Stephen D. Nechtow ALSA Mr. and Mrs. Robert A. Harding Mr. and Mrs. Jon Newsome Mrs. Gail Anderson Mr. Mike Harrell Dr. and Ms. Doug Norman Ms. Lisa Zinn Anderson Mr. Brian Hart North Shore Recycling, Inc. Ms. M. Louise Anderson Mr. Kirk Hartley Northwestern Mutual The McTigue Financial Network Anonymous Health Resource Solutions Mrs. Jane Novak Apria Healthcare Mr. Vincent J. Heaton, Jr Mr. and Mrs. William W. Oelman Mr. and Mrs. Gregory S. Apter Mr. and Mrs. Phil Helfand Mr. and Mrs. David Olseng Astoria Wire Products, Inc. Ms. Gail Heneghan Mr. Michael J. Orscheln Mr. Tremaine Atkinson Mr. and Mrs. Daniel J. Hennessy, Jr. Mr. and Mrs. James J. O’Sullivan Awin Management, Inc. Mr. Jim Hermanson Ozark Family Foundation Ms. Mary Jo Babcock Miss Claire Heronemus P. Hande Ozdinler, Ph.D. Ballert Orthopedic Mr. Jay Hicks P.T. Trading Corp. Bank Bros. & Son Limited Mrs. Alesia N. Hinson Mr. and Mrs. Steve Pangere Mr. Mark Barmak Mr. Larry J. Hochberg Ms. Joan A. Parker Mrs. Ann M. Barry Dr. and Mrs. Ted Homa Mr. Jonathan B. Parker Mr. and Mrs. Blake Bartnick HomeStar Bank & Financial Services Mr. and Mrs. Jim Patti Mr. David Bartnick Horween Leather Company Mr. and Mrs. Richard S. Pepper Mr. James Bartnick Mr. and Mrs. Thomas Horwich Mr. and Mrs. Michael Perlow Mr. Ronald Barton and Ms. Cheryl McGary Huen Electric, Inc. Ms. Olga Pierce Mr. and Mrs. Brian D. Basler Mr. and Mrs. Jeffrey J. Huff Polk Brothers Foundation Batavia High School #30 Mr. Patrick A. Hulne Ms. Holly Pratt Mrs. Millicent S. Bates Mr. and Mrs. Patrick M. Hurless Mrs. Julie A. Puccini Mr. and Mrs. Dorian L. Bezanis Ideal Box & Graphics Mr. and Mrs. John K. Putty Mrs. Judith Blumberg IHC Group Foundation Mr. and Mrs. Robert K. Quinn Mr. and Mrs. Charles K. Bobrinskoy Invacare Corporation Mrs. Barbara Rasinski Mrs. Beverly M. Booker Janis Plastics, Inc. Ms. Karen Reckamp Borderbend Arts Collective Mr. and Mrs. Tracy G. Jones Ms. Lucy J. Reinheimer Mr. Ronald Borok Mr. Jack M. Jones Reliable Container, Inc. Mrs. Michelle Bratton Dr. Jodi Jonson Shields Mr. and Mrs. Dan Repetowski Mr. and Mrs. Robert B. Bresloff Mr. and Mrs. Kenny Julian Richard and Dorothy Pandorf Foundation BrightStar Healthcare - Chicagoland Region Mrs. Kimberly Kae-Riney Mr. Michael Richardson and Dr. Susan Richardson Mr. and Mrs. Matthew S. Brown Mr. Ronald Kapolnek Mr. Edward Riley Mr. and Mrs. Edward M. Burnes Mr. and Mrs. Thomas Kapper Rio Grande Pacific Corporation Mr. Michael Cabay Mr. and Mrs. Abraham Katz Mr. and Mrs. James C. Roche Mrs. Barbara B. Cabay Mr. Barry N. Kaufman Mr. and Mrs. Ira Rosen Mr. Jim Caldrone Mr. and Mrs. James J. Kelchak Ms. Jenn May Rosen Mr. Jack Callahan Mr. and Mrs. Joseph Kelley Ms. Diane B. Rosenberg Capgemini Mr. James Kenney Mr. and Mrs. Burton X. Rosenberg Mr. and Mrs. James R. Carlson Mr. and Mrs. Morton S. Kessel Mr. and Mrs. Edward B. Rouse Mr. Brian Carrigan Dr. John Kessler and Dr. Marilyn Kessler Mr. and Mrs. Terry M. Rozdolsky Mr. and Mrs. John Carrigan Mr. Rajeev Khanna Mr. and Mrs. Berton Rubin Mr. and Mrs. Kevin Carrigan Mrs. Lara Kiddle Dr. and Mrs. Scott A. Rubinstein Mr. and Mrs. Richard Carrigan Mr. Richard J. Kinsley Dr. and Mrs. Ed Ruda Mrs. Cassi Carrigan Mr. and Mrs. Joe C. Koron Mrs. Laurel A. Russo Mr. Andy Casten Mr. and Mrs. John Kuenstler Mr. and Mrs. Bob Russo Mr. Richard Castro Mr. and Mrs. Mark Kujawski Mrs. Darleen J. Salomon CB Richard Ellis Ms. Margaret Kulas Mr. Steve Sarovich Century Kitchens & Bath Mr. Robert Kulchawik Mr. Joel A. Schechter and Ms. Bambi Jacoby Mr. and Mrs. Nicholas D. Chabraja Mr. Ken Kummer Schmidt Chartiable Foundation Mr. and Mrs. Jay R. Chamernik La Chapelle Family Foundation Mr. and Mrs. James W. Schmitt Mr. and Mrs. Dan Chetkovich Mr. and Mrs. Mark H. Landon Mr. and Mrs. Rich Schnirring Chicago Trailer Pool Corporation Dr. Lewis Landsberg, M.D. Mr. Milton W. Schueler Mr. James Chow and Ms. Kate Heinemann Mr. and Mrs. Brian Lane Mr. and Mrs. Perry Schwartz Chubb Custom Market, Inc. Lanham Family Foundation Score of Citrus County Mr. Steve Clingan Ms. Suzanne M. Law Mr. David Scully Mr. Dick Cochran Mrs. April Lemick Ms. Kirsten Scully Mr. Richard B. Cogswell Mr. Steven Leone Mrs. Olivia Scully Coker Service Inc. Ms. Nancy Lischer Mr. and Mrs. Gregg A. Searle Mr. and Mrs. Pat Corrigan Mr. and Mrs. Craig Little Ms. Lenore J. Sexton Mr. Jim Cosgrove Ms. Margaret Lockwood Seymour A. Cohen Family Foundation Ms. Rebecca J. Creen Lodestar Investment Counsel Mr. Jeffrey Sharfstein Crescent Healthcare, Inc. Mr. Raymond Lollini Mr. Thomas Sheahen Mr. John Crone Mr. Clyde C. Lowstuter Mr. George V. Sherman Jr. Mr. Marv Crook Ms. Connie M. Luecke Mr. and Mrs. Jonathan M. Short D & W Mfg. Co., Inc. Mr. and Mr. Henry Maday Mr. and Mrs. Dan Slattery Mr. and Mrs. Bob Dahl Mr. Andy Madden Dr. Steven Smith Mr. Edwin L. De Vilbiss Mr. and Mrs. Bruce Madurzak Mrs. Jacqueline Spillman Mr. Nicola DeAcetis Ms. Susan Maeder Mr. Gary J. Stanko, Jr. Mr. and Mrs. Steve Deli Mr. and Mrs. Thaddeus J. Malik Mr. and Mrs. James A. Steinback Mr. and Mrs. Jim Derleth March Madness Bracket Fundraiser Mr. and Mrs. Sheldon Stillman Mr. and Mrs. Jim Doiron Mr. and Mrs. Joseph N. Marconi The Strauch Family Mr. Steve Donato Mr. Michael E. Martin Mr. and Mrs. James Stuercke Mr. Jerome Dreyfuss Mrs. Diane Martinka Mr. and Mrs. John Svoboda Mr. and Mrs. Ross Drobny Maryland Precision Spring Division Dr. and Mrs. Frank S. Szatkowski Ms. Evelyn Duff MathWorks Mrs. Bobette Takiff DynaVox Mayer-Johnson Ms. Patti R. Matson TCF Bank Earth Friendly Products Mr. and Mrs. Myron R. May The Chamberlain Group Mr. and Mrs. Eric O. English Mr. Jordan McClure The Coughlin Family Thanksgiving Fund Mr. and Ms. Mike Hurley Mrs. Mary H. McConnell The Edgewater Funds Ernsteen Family Foundation Mr. and Mrs. Bernard McDonald The McWethy Foundation Mr. Tom Falk Mrs. Ruth McDonald The Private Bank Mrs. Noreen Faulkner Mrs. Lori McDonald The RDI Group Mr. and Mrs. Larry H. Fern Mr. and Mrs. Herb McDowell The Robert Thomas Bobins Foundation FirstGiving Mr. Michael B. McGill 10 Mr. and Mrs. Jack L. McGinley Synapse Biomedical, Inc. Blick Art Materials Mr. and Mrs. Verne McKay Dr. and Mrs. Adam Szatkowski Bloomingdale’s Mrs. Peggy McKay Mrs. Debra M. Szott Mr. Lin Brehmer Mr. and Mrs. Bruce McLagan Taubensee Steel & Wire Brighton Dale Golf Course Mr. Daniel McLaughlin Mr. and Mrs. Andreas D. Taylor Brookfield Zoo Mrs. Elizabeth I. McLean Mr. and Mrs. Robert J. Terry Cafe Central Ms. Bee McLeod The Boston Comsulting Group, Inc. Cardinal Health Meadowdale Shopping Center, Inc. Thrivent Financial - Northwest Cook County Chapter Charles Ifergan Salons Mr. Joseph Melchiors Mr. and Mrs. Wayne Tishka Chicago Architecture Foundation Metro Plaza Agency, Inc. Tobii Assistive Technology, Inc. Chicago Bears Football Club Mr. Matt Micetich Mrs. Anne Tschanz Chicago Botanic Garden Midamerica Roofing, Inc. Ms. Bettye H. Turitto Chicago Bulls/White Sox Training Academy Mr. David Minette Mr. Bart Unger Chicago Historical Society Mr. James Mirabile Mr. and Mrs. Jerry D. Upton Chicago Neighborhood Tours Mitre Ten (NZ) Limited Mr. Keith Van Horne Chicago White Sox Moon Island Farms Partnership Mr. Lee Vasilatos Court Theatre Mr. and Mrs. Brian Moorman Mr. David Vaughan Crown Plaza Avenue Chicago Downtown Ms. Connie Morley Dr. Nicholas Volpe and Dr. Francesca Volpe CTI Industries Mr. Jerry Morrow Mr. Mark Von DeBur Ms. Jenna Culliton Motorola Mobility Mr. Mark T. Vranicar Mr. Steve Dahl Mr. and Mrs. Jason Mount Mrs. Kathy Walgreen Mr. and Mrs. Jim Derleth Mount Rainer Climb (Tom Veeder Fundraiser) Mr. and Mrs. Alan Warms Devon Seafood Grill Dr. and Mrs. John E. Murphy, Jr. Mr. and Mrs. Fred Weems Edward Fox Photography Ms. Sandra A. Neas Ms. Judy Weems Mr. and Ms. Jonathan Eig Mr. Gregg S. Neiman Mr. Gerry F. Weiler Ferrari-Carano Vinyards and Winery Ms. Sherri Nelson Mr. H. Ray Welch Fleming’s Steakhouse Mr. William L. Nothman Mr. Wayne Wendling and Ms. Barbara Monroe Four Seasons Chicago Mr. Michael O’Brien Western Utility Contractors, Inc. Fred O’Kasick Sales, Inc. Mr. Jim O’Malley Mr. and Mrs. James R. Weston Glove Me Tender Mr. and Mrs. James M. O’Malley William H. Gardiner Family Foundation Mr. Matt Goebel Mr. Leon Ort Mr. Richard Winter Gold Eagle Co. Mr. and Mrs. Jeffrey S. Osisek Mr. and Mrs. David L. Wolfe Graziano’s Brick Oven Pizza Ms. Deborah Oughton Dr. Lisa Wolfe House of Blues Pacella Trucking Express, Inc. Mr. John Wood Hubba Hubba Ms. Sara Paeth Ms. Susan Woolner Illinois Sports Facilities Authority Palm Resort Mr. and Mrs. George Woywod J. Gordon Designs, Ltd. Miss Amy Panagopoulos Mr. and Mrs. George M. Woywod John G. Shedd Aquarium Mr. Dean Parko Mr. Fred Wszolek Johnny’s Kitchen & Tap Mr. Jeff Pearsall Mr. and Mrs. Jerre Yeager Mr. James W. Johnson PensionSmart Mr. and Mrs. David P. Yeager Katten Muchin Rosenman LLP Mr. and Mrs. Ray Perez Mr. and Mrs. David Yelaska Ker & Downey Mr. Tom Peterson Mr. and Mrs. Theodore Yi Kids Portraits by Picasso Mr. Kevin E. Phillips Mr. Allyn J. Zeman Kraft Foods - Customer Service Department Mr. Jeff Pines and Ms. Mary Samerdyke Mrs. Sheetal N. Zorn Anne and Bob Lee Ms. Patricia Pither Lettuce Entertain You Enterprises, Inc. Mr. Kevin Pittner Matching/Workplace Little Company of Mary Hospital Mr. Mercury Plastics Inc. Abbott Laboratories Employee Giving Campaign Lookingglass Theatre Company Mr. and Mrs. Richard Polony Allstate Giving Campaign Marianjoy Rehabilitation Hospital Mr. and Mrs. Marc Price AON Foundation Marketing Alternatives, Inc. Mr. Marc Price AT&T United Way Employee Giving Campaign Marlowe Mrs. Nancy D. Prill Atomatic Mechanical Services, Inc. Ms. Sarah Martin Mr. Ross Prindle Bank of America- Matching Gifts Program Marytown Retreat and Conference Center Ms. Gayl Pyatt Baxter Employee Giving Campaign Molly’s Cupcakes Mr. Jonathan S. Pyatt Baxter International Foundation Monarch Food Group Mr. William E. Pyatt BlackRock Matching Gift Program moto restaurant Mr. and Mrs. Duane C. Quaini BP Fabric of America Fund NBC 5 Ms. Christina Quinn Cardinal Health Neo-Futurists Mrs. Joan Radovich Cardinal Health Foundation Inc. Oceanique Mrs. Jeanne C. Rappel Carmax Foundation Old Town School of Folk Music Ms. Janet Reali and Mr. Mitchell Cobey CNA Foundation P.F. Chang’s China Bistro Pat Rech Community Health Charities of Illinois Ms. Lynn M. Pearson Dr. James O. Reeder Dell Direct Giving Campaign PepsiCo Mr. and Mrs. Ronald Reif Deutsche Bank Americas Foundation Perkins Coie LLP Mr. and Mrs. Craig A. Reiff Discover Financial Services Porchlight Music Theatre Mr. and Mrs. Richard J. Renkens Mr. Jonathan Eig PRP Wine International, Inc. Residential Home Health IL LLC FactSet Research Systems, Inc. Ravinia Festival Mr. Kenneth Ricci Federated Department Stores, Inc. Razny Jewelers Ms. Lynne Richman and Mr. Biff Behr GE Foundation RedHead Piano Bar Mr. and Mrs. Robert Richman Give with Liberty Rob Roy Golf Course Mr. Erik Richter Hospira Employee Giving Campaign Russian Tea Time Restaurant Ms. Karen M. Rielage HSBC Philanthropic Programs Mrs. Laurel A. Russo Mr. John Rigas IBM Employee Services Center Mr. and Mrs. Ralph A. Russo, Sr. Mr. Steve Risley IBM Retiree Charitable Campaign Mrs. Verna Sadock Mr. and Mrs. Michael Roche Illinois Tool Works Foundation Sax Chicago- A Thompson Hotel Mr. and Mrs. David Roemer Johnson & Johnson Family of Companies Mr. and Mrs. William A. Schmitt Ms. Kathy Romines Kimberly Clark Foundation Seasons 52 Fresh Grill Mr. and Mrs. Morton Rosen McDonald’s Corporation Senator Jeffrey Schoenberg Mr. Mark Rosenbaum McMaster-Carr Supply Company Shen Yun Show Chicago Mr. and Mrs. Larry J. Rothman Merck Partnership for Giving Shoeless Joe’s Sports Bar & Grill Ms. Catherine Rusnak Microsoft Matching Gifts Program Signature Room at the 95th Mr. and Mrs. Mark Safranski Morgan Stanley Six Flags Great America Mr. John Sampson Motorola Solutions Foundation Spare Time Incorporated Sanofi-Aventis Network for Good Sprinkles Mr. and Mrs. Norton Sarnoff Northwestern Mutual The McTigue Financial Network Strategic Hotels & Resorts Ms. Marie L. Sauder PepsiCo Susan McConnell Photography Ms. Carolyn E. Saul Pfizer Foundation Matching Gifts Program Sweet Grass Rods Mr. and Mrs. Scott Saxe Rexnord Foundation Inc. Teddie Kossof Salon and Spa Mr. and Mrs. William E. Saxelby Salesforce Foundation Tribune Products Company Mrs. Janet B. Scarpelli Starcom MediaVest The Denim Lounge Mr. and Mrs. Michael A. Schachter Truist The French Pastry School Mr. and Mrs. Dan Schleiter UBS Matching Gift Program The Helping Hand Mr. Mark Schulte United Way of Lake County The Professional Golfers’ Association of America Mr. and Mrs. Gary Schwartz United Way of Metropolitan Chicago The Victoria Resort Bed and Breakfast Ms. Denise Selz United Way of Southeastern Pennsylvania Tod’s Mr. and Mrs. Jerry Senser UnitedHealth Group Employee Giving Campaign United Airlines Mrs. Vibha Sharma Verizon Foundation Urban Oasis Ms. Rose L. Shure W.K. Kellogg Foundation Mr. Keith Van Horne Ms. Deb Silberstein W.W. Grainger, Inc. Matching Charitable Gifts Program Visographic Silverfleet Capital Inc. Wells Fargo Community Support Campaign Mr. William Walker Mr. Robert J. Simonds Jr. WERV-95.9 The River Ms. Kathryn J. Simonds Gifts in Kind Wines for Humanity Mr. and Mrs. Edward T. Simonds 10 Pin Zigfield Troy Golf Ms. Emma K. Simonds 101.9fm THE MIX Dr. John R. Sladek 104.3 K-Hits FM/WJMK-FM Vehicle Ms. Kristen C. Smith abc7 Chicago Ms. Terese M. Sara Mrs. Jill A. Smith ABT Electronics, Inc. Ms. Robin Lestina-Cilanek Mr. Michael Smith Adler Planetarium Mr. Phil Lam Mr. Claude Snodgrass Mr. and Mrs. Howard Alper Mr. and Mrs. Raymond Kolves Mr. Jeff Snow Arlington Park St. Linus School - Class of 2011 Avanti Skin Centers of Chicago Every effort has been made to include all donors of $500 or more. We apologize Mr. David Stein babydreams if we have made errors or omissions. Please contact us so we may correctly Mr. and Mrs. David J. Stetler Siddesh Bale acknowledge your support in the future. The Foundation is appreciative of every Stillman Family Foundation Beijo donation, regardless of the amount. Unfortunately, we are unable to recognize all Mr. and Mrs. Howard L. Stone Mr. and Mrs. Armand H. Bendersky donors in this Annual Report. Sun Solutions Ms. Ellen M. Blakeman 11 LEADERSHIP Board of Directors W. Scott Nehs* Administrative Staff Harvey Gaffen* - President Vice Prsident, Deputy General Counsel, Wendy Abrams CEO, Private Client Group Blue Cross Blue Shield Association Executive Director RSM McGladrey, Inc., Retired Joan A. Parker Jordyn Frick Thomas F. Boleky Consultant, Joan A. Parker Government Affairs Office and Communications Associate Attorney, Beutel Hurst Boleky LLC Mary Lou Pisone Matthew Brown Megan Lenz Northwestern Mutal Financial Network – Communications Manager Partner, Katten Muchin Rosenman LLP McTigue Group, Retired Kenneth M. Crane* - Vice President Joel A. Schechter* - Vice President Deb Marron Partner, Perkins Coie LLP Attorney, Law Office of Joel A. Schechter Office Manager John T. Culliton Deb Silberstein* - Vice President Kim McIver President, Global Solutions President, Silber Screens, Inc. Special Events Manager Managing Director Sourcing Strategies International LLC Cathy L. Welsh Liz Melvin Senior Vice President, Leadership Consulting Special Events Manager Jim Derleth* - Vice President Lee Hecht Harrison President, Sales and National Accounts Excelsior Medical Corporation *Executive Committee Claire Owen, L.P.N. Director of Patient Services Vicki Flahaven Honorary Board Corporate Concierge, Concierge Unlimited Norman Bobins Lacey Wood International Lin Brehmer Family and Community Special Events Mary Ann Childers Associate Robin Fern Dick Clark Non-Profit Management Jay Levine Maria Zeller James W. Nolan Development Manager Cindy Fluxgold Duane C. Quaini Partner, Fluxgold & Baron, PC Independent Auditors Patrons Bonny J. Gaffen BIK & Co., LLP Monte Briner* Palatine, Illinois William N. Haarlow, Ph.D.* - Treasurer James V. Insolia* Director of College-Admission Relations Harold Post* Affiliations and Lecturer, American Studies Program, *Deceased Northwestern University Feinberg School Northwestern University of Medicine Spokespersons Scott L. Heller, M.D. Jonathan Eig Community Health Charities of Illinois Neurologist, Lakeshore Neurology Keith Van Horne International Alliance of ALS/MND Richard Hirsch* - Vice President Health Professional Staff Associations Vice President, Gold Eagle Co. Shari Diamond, R.N., B.S.N. Ken Hoffman* ALS Nurse Consultant Information is current as of the printing of this annual report. Group President, Illinois Tool Works Inc. Laurie B. Fieldman, M.S.W., L.C.S.W. David T. Hoppe Director of Social Services Editorial: Megan Lenz, Maria Zeller President, Cors, Inc. Anne Lidsky, Ph.D. Design/Layout: Lynn Pearson Bob Lee Support Group Facilitator Owner, B. Lee Marketing Ileane Mindel, R.N. Doug McConnell ALS Nurse Consultant Investment Banker, Judy Richman, R.N., B.S.N Halyard Capital Advisors, LLC ALS Nurse Consultant ®

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