WINTER 2016

IMPACT FY2015

TODAY ONE IN THREE SENIORS DIES FROM ALZHEIMER’S OR A RELATED DEMENTIA

2015: Record-setting year for Symposium focuses on Free programs—in person, by Walk to End Alzheimer’s® translating research into care phone and now webinars! Thursday, April 14, 2016

Join us in Springfield to make a difference in the fight against Alzheimer’s! n Your voice and your story matter as we compel our legislators to engage in the fight for a world without Alzheimer’s. n Transportation and meal(s) provided. n All you need is passion — no experience necessary!

To register and for more information, please visit alz.org/illinois and click on “Join Our Action Summit” or contact Andrew Kretschmar at 847.779.6947 or [email protected].

Illinois Action Summit | Thursday, April 14 | Register today!

Illinois Chapter Network

24/7 Helpline 800.272.3900 | alz.org a message from erna

Looking back at FY 2015 ...... 2 In recent years, the political climate in Washington D.C. has shown us that the likelihood of the federal government taking historic action on Walk to End Alzheimer’s Success ...... 5 Erna Colborn any issue is exceptionally rare. Considering that, it is an even greater President and CEO Statewide Survey Results ...... 6 pleasure for me to announce that Congress recently passed a budget for the coming year that will increase federally funded Alzheimer’s disease research Updates ...... 8 by $350 million. Corporate Fundraising ...... 9 This represents a 59.7% increase in funding for National Institutes of Health (NIH)-led Painting the Night Purple ...... 10 efforts to treat and cure Alzheimer’s disease, the largest such expansion in our nation’s history! The bipartisan nature of the vote is a testament both to the unacceptably high Have Fun, Do Good ...... 12-13 prevalence of Alzheimer’s disease, which has personally affected many members of Educational Programs ...... 14-16 Congress, and the hard work, passion and dedication of Alzheimer’s Association advocates, staff and donors. Research Symposium 2015 ...... 18 This victory should be seen as part of a continuum of success advocating for public policies to Legislative Cooperation ...... 20 address the impending Alzheimer’s disease epidemic: In 2010, Association advocates helped pass legislation that created the National Alzheimer’s Plan, an annually updated strategic assessment of federally-funded Alzheimer’s research, care and support programs, with the goal of effectively treating Alzheimer’s by 2025. Our mission Three years later, the Alzheimer’s Accountability Act was signed into law by President To eliminate Alzheimer’s disease through Obama after swift congressional action. This law will allow the NIH to submit budgetary the advancement of research; to provide and enhance care and support for all affected; recommendations directly to Congress beginning in fiscal year 2017, ensuring that lawmakers and to reduce the risk of dementia through have access to the best information available when determining future funding priorities. the promotion of brain health. With the implementation of the FY16 budget, NIH funding for Alzheimer’s disease research Our vision will have more than doubled during the last decade. A world without Alzheimer’s disease While these successes should be celebrated, we must remember that the fight to eliminate Alzheimer’s is far from won. The Association’s work to make Illinois a dementia-capable Impact is published for our donors, volunteers state remains ongoing; we are continuing to build support for the HOPE for Alzheimer’s Act advocates and friends in the Alzheimer community. (S. 857/H.R. 1559), our main federal initiative; and our fight has already begun to increase © 2016 Alzheimer’s Association, Greater Illinois Chapter. All rights reserved. annual NIH funding to the $2 billion level identified by experts as the critical mass necessary No materials may be reproduced in any form without the express to achieve the National Alzheimer’s Plan objectives. written permission of the publisher, the Alzheimer’s Association, Greater Illinois Chapter. Information, organizations and resources Benjamin Franklin once said that ‘Energy and persistence conquer all things.’ As we reflect on mentioned in this publication are for informational purposes only and do not constitute endorsement or recommendation by the publisher and the meaning of this historic achievement, that wisdom seems to describe our work in recent staff. Although much care has been taken to ensure the accuracy of the years perfectly and offer a guide for what we must do in those to come. information, the Alzheimer’s Association, Greater Illinois Chapter and staff are not responsible for any errors that may occur and cannot be If you would like use some of your energy, passion and persistence to bring us closer to A World held responsible for any damages that might arise from the use of this ® material. Readers are urged to consult with the appropriate healthcare without Alzheimer’s , please visit alz.org/illinois to learn about all the ways you can help. provider or other professionals before taking any actions as a result of reading this material.

board of directors staff Janis Tratnik John Anderson Brad Moore Erna Colborn Board Chair Paul Caponigri Robert Noonan President and CEO 8430 West Bryn Mawr Avenue, Suite 800 Mary Wasik Jennifer Convery Kerry Peck Nancy Rainwater Chicago, Illinois 60631 Vice Chair Michael Duffy Scott Perry V.P., Communications Sheri Supena Kaylin Risvold alz.org/illinois | alzil.mobi Karen Greenbaum Victoria Raymont Secretary Joseph Harrington Raj Shah Media Relations Specialist Mathias E. Brown Reagan Hogerty James Werner Lynne Koenigsberger Treasurer Daneen Jachino Graphic Designer Salvador Bayron Director, E-Strategy Bloomington/Normal 207 S. Prospect, Suite 1, Bloomington, Illinois 61704 Phone 309.662.8392 | Carbondale 320 E. Walnut Street, Suite A, Carbondale, Illinois 62901 Phone 618.985.1095 | Chicago 8430 W. Bryn Mawr Avenue, Suite 800, Chicago, Illinois 60631 Phone 847.933.2413 Joliet 850 Essington Road, Suite 200, Joliet, Illinois 60435 Phone 815.744.0804 | Rockford 1111 S. Alpine Road, Suite 307, Rockford, Illinois 61108 Phone 815.484.1300 | Springfield 2309 W. White Oaks Drive, Suite E, Springfield, Illinois 62704 Phone 217.726.5184

IMPACT | WINTER 2016 PAGE 1 IMPACT FY2015

TODAY ONE IN THREE SENIORS DIES FROM ALZHEIMER’S OR A RELATED DEMENTIA

Alzheimer’s is the sixth-leading cause of death and the only one in the top ten causes without a way to treat, slow the progression or cure. Illinois is among the states with the highest estimated number of people with Alzheimer’s disease – currently at 210,000. By the year 2025, it is projected that Illinois will have 260,000 people with Alzheimer’s – up by 24 percent over current numbers.

With your support, the Alzheimer’s Association is working to advance care, support and research. From face-to-face support, education programs, advocacy and promising worldwide research initiatives, your donations make a difference in the lives of the millions of people impacted by Alzheimer’s today and those who will face the disease tomorrow. Thank you for helping us raise awareness and funds that strengthen our efforts and move us closer to our vision of a world without Alzheimer’s disease. Until that day comes, we will be here to help people with Alzheimer’s and other dementias, families, caregivers and the community.

PAGE 2 IMPACT Volunteers These events were held in the latter half of The Alzheimer’s Association’s programs, FY2015, in locations across the Chapter’s services and events would not be possible service area. without the commitment and generous • Two public check presentations to local support of its volunteers. In FY15, more researchers receiving Alzheimer’s than 1,795 people provided more than Association research grants. 17,600 hours of service towards our mission • 5,549 TrialMatch profiles were created which equates to a total of 10 full time staff. during FY15, once again leading the nation Plus, we received national recognition in number of registrations for the fourth of our Chapter Alzheimer’s Association consecutive year. Community Representative (AACR) volunteer program. Public Policy The hard work and dedication of our over 25,000 volunteer advocates in Illinois “Thank you for all the good insights. helped to steadily increase the Association’s I feel more able and prepared for the influence with policymakers as we fight to present and future as a caregiver. You create a dementia-capable state in Illinois have helped me feel I can do what needs and implement the National Alzheimer’s to be done. It makes it better to know Plan on the federal level. Our advocates that you have been and are still there.” played an integral role as we obtained an additional $25 million in federal research – Pat B, Rockford funds and passed the Alzheimer’s Research Accountability Act (AAA). This bipartisan The Alzheimer’s Association is committed piece of legislation requires the scientists to accelerating the global effort to eliminate at the National Institutes of Health (NIH) Alzheimer’s disease through a variety to submit an annual Alzheimer’s research of initiatives, such as the Alzheimer’s budget proposal directly to Congress and “I feel I can make a difference, not only Association International Conference® will specify the resources that scientists through my own individual efforts, but (AAIC), the Alzheimer’s Association need to prevent and effectively treating by influencing others to participate.” Research Roundtable, Alzheimer’s & Alzheimer’s disease by 2025. In Illinois, we – Mary Fus, office volunteer since 2013 Dementia: The Journal of the Alzheimer’s passed Silver Search – a bipartisan bill that and Chicago Walk to End Alzheimer’s Association, TrialMatch® and research creates a comprehensive and coordination committee member funding. Through the International awareness and search program for missing adults believed to have Alzheimer’s disease Programs and Services Research Grants Program, the Alzheimer’s Association made investments totaling or a related dementia. The Alzheimer’s Association, Greater Illinois approximately $29 million in 2014. The Other notable accomplishments include: Chapter annually provides individuals with Alzheimer’s Association currently supports • Expansion of the Ambassadors program, dementia, their care partners, community nearly 350 ongoing research projects in 21 from one dedicated constituent advocate members and health care professionals with countries, totaling over $78 million. Since for every member of the US House and education, support programs and services. 1982, the Association has awarded nearly Senate (17) to more than double, with 38 In fiscal year 2015, participation in these $340 million to almost 2,300 scientific advocates participating statewide. programs was more than 49,000. investigations. • Ambassadors and team members held • 11,128 attended our educational programs The Greater Illinois Chapter offers 83 meetings with members of the Illinois • 4,665 attendees at our support groups engagement activities throughout the year, delegation, helped plan 10 Association including: • 9,218 callers to our 24/7 Helpline events that Congressional members • Ongoing TrialMatch recruitment efforts via • 143 people through our Care Navigation attended and got 18 letters/stories education programs, fundraising events, services regarding our policy priorities published in health fairs, and other public events their local papers throughout the state. • 3,829 enrollees in our Medic Alert®+ • The establishment of a research Alzheimer’s Association Safe Return® • Created the first-ever statewide engagement subcommittee of the program Ambassador Longest Day team with 36 Medical and Scientific Advisory team members, one of the largest in the • 315 referrals from professional healthcare Committee country. Four Representatives attended providers to the Association. More than • Piloting TrialMatch recruitment events, the various events, and more than 450 doubling the number from the prior year. which include a presentation on the residents attended. • 1,173,166 on our website current state of Alzheimer’s research, • Increased attendance at the National an orientation to TrialMatch and the Forum in Washington D.C., making visits opportunity to create a TrialMatch profile WINTER 2016 IMPACT FY2015 to every one of the 20 members of the Illinois delegation on Capitol Hill. • Doubled the number of attendees for our annual Illinois lobby day, resulting in 192 participants throughout the state. • Dramatically increased the number of followers on our Illinois Advocacy Facebook page from 184 to just over 6,000 followers (a 3,160% increase), giving us a new way to effectively communicate year round with advocates of all ages. • An Alzheimer’s Association Ambassador from the Greater Illinois Chapter received the prestigious Advocate of the Year Award during the Alzheimer’s Association Advocacy Forum in Washington, D.C.

Growing Revenue in • We had significant growth in teams and Support of our Mission funds raised in the Chapter territory With your help, we had a strong fundraising through the Association’s new signature ® year, enabling us to expand our support for event, The Longest Day families and simultaneously increase our • Reason to Hope luncheons brought in investments in research. more than $240,000 During the 2015 fiscal year: • A record amount, 27 percent increase, was raised at Walk to End Alzheimer’s®

“With my story and all our stories, we’ve been able to make a difference.” – Cathy Perkowitz Community Engagement During the early part of FY2015, a formal partnership was formed with the Chinese American Service League (CASL) to test a new model of collaboration. Elements of our partnership to date include a kickoff press conference, focus groups and the creation of training programs for their staff, CASL staff engagement in the Illinois Action Summit, creation of a CASL Walk to End Alzheimer’s® team, dissemination of our annual policy survey by CASL, cultural sensitivity training “The Care Navigation service exceeded for GIC staff and more. It has been very our expectations. We are now more successful to date and continues to provide • Our Alz Stars team raised record amounts confident and comfortable with what the us with confidence in our plan moving in the Chicago Marathon – more than future holds. I highly recommend this forward. Both sides are benefiting from $360,000 service to everyone facing a future with the partnership in the execution of their • Memory Rock, a third-party fundraiser, Alzheimer’s disease or any dementia- strategic priorities, and we look to expand raised nearly $80,000 related finding.“ this success with other organizations in new communities. IMPACT FY2015 IMPACT Record year for Walk to End Alzheimer’s® in GIC territory

We are thrilled to share that the We also had a record number of the Thank you to Walk Partners Chicago Walk to End Alzheimer's Walks sailing right past their individual The successes of our Walk to End surpassed the $1 million goal for the goals: Champaign/Urbana, Chicago, Alzheimer’s events would not be first time in 2015 and to date has Decatur/Forsyth, Lake County, possible without participation of both raised more than $1,036,063. Thanks Mattoon/Charleston, McHenry walkers and our Walk partners. to GIC staffers Rachel Hesse and County, Naperville, North Shore, Jessica Munoz for all their hard work, Orland Park, Springfield, This year’s premier sponsors were: the entire GIC staff based in Chicago St. Charles and Wabash Valley. Five • Bankers Life – Regional Premier and an amazing Walk committee as more Walks did not quite hit stretch Premier: well as the thousands of dedicated goals for this year but they did see • Christian Homes – Decatur participants who care passionately increased revenue over last year: • Takeda – Lake County about an end to Alzheimer's disease. Bloomington/Normal, Carbondale, • Gowin Parc – Matoon Joliet, Northwest Suburban and • Fred’s Forget Me Nots – The Greater Illinois Chapter set a Rockford. high goal for itself this year -- a goal Bloomington to raise $2.844 million with 21 walks • Heritage Health – Bloomington in GIC territory combined. We are • St. Charles – Sunrise Senior Living, delighted that, as of today, all Walks Brighton Gardens have brought in more than $2.984 million, representing an increase of more than 30% over last year's total.

WINTER 2016 PAGE 5 Illinois Failing to Address the Needs of the Alzheimer’s Community In 2015, a record number of Illinois residents increased by more than 34 percent over the state programs and services available to people responded to the State of Illinois Alzheimer’s previous year. Geographical representation and families facing Alzheimer’s. This year, that Disease Annual Survey, and their message was also improved: respondents from 72 counties number was nearly 60 percent, the highest clear: state services are not meeting the needs across the state were surveyed, up from 61 in since we began conducting the poll. To address of the more than 210,000 Illinois residents living 2014. The Alzheimer’s Association strives to this deficit, 87.4 percent of residents said they with Alzheimer’s and related dementias. In fact, serve all of our state’s diverse communities, want increased funding for state programs that less than two percent of survey respondents and by understanding the views of a larger provide Alzheimer’s or dementia-related care; believe that current state policies and programs population of people affected by Alzheimer’s, less than .1 percent called for a reduction in are adequate. we will be able to more effectively advocate for spending on these programs. 2015 marked the third consecutive year that the public policies that will make Illinois a dementia- Nearly two-thirds of those surveyed said that Greater Illinois Chapter conducted the survey. capable state. they believe the most important state-level With 1,559 Illinois residents providing insight In each of the past three years, more than half policies for people with Alzheimer’s and their into their views and experiences, participation of those surveyed were unfamiliar with current care providers are affordable programs for

Age of Respondents UNDER 30 4.18% 30-39 7.45% 40-49 12.69% 50-59 31.12% 60-69 31.12% 70+ 13.43% 10% 20% 30% 40%

72 Counties Represented Communities Race/Ethnicity 50% 7.98% Chose not to identify 1.98% Asian 6.58% Black or African American 4.03% Hispanic or Latino 40%

30% 78.93% White

20%

10%

Urban/ Suburban Small Rural/ City 47.35 Town Farm Area .16% American Indian or Alaskan Native Counties where 29.51 15.33 7.79 .33% Native Hawaiian or Pacific Islander respondents live

PAGE 6 IMPACT How familiar are you with services and programs provided by or supported by the State of Illinois that address the needs Q of individuals with Alzheimer’s disease or a related dementia?

A 8.92% 32.46% 32.78% 25.85%

Very Somewhat Not very Not at all familiar familiar familiar familiar The State of Illinois should spend...... MONEY funding programs that provide Alzheimer’s or related dementia Q care services to anyone in need. (Fill in the blank.)

A 87.41% 11.65%

More About the same .094% Less

Thinking about current policies and programs of the State of Illinois to address Alzheimer’s, would you say that Q they are...... to ADDRESS Alzheimer’s and related dementias in Illinois? (Fill in the blank.)

A 66.82% 31.51%

1.67% Doing enough Not doing enough I don’t know

When thinking about Illinois POLICIES to help people with Alzheimer’s and their care partners, which policy is most Q important? (Choose just one.)

A 39.42% 13.17% 27.48% 19.93%

Affordable in-home Support Programs and Improving services for individuals programs services for care quality with Alzheimer’s and services individuals with in residential for all Alzheimer’s who settings like caregivers have limited financial resources nursing homes or assisted living facilities

Are you familiar with what your state representative or state senator are doing to address the needs of individuals with Q Alzheimer’s disease and related dementias?

A 16.72% 83.6%

Yes No those with limited resources. The Alzheimer’s budget negotiations between the governor and necessity,” Erna Colborn, President and CEO Association will continue to advocate for the legislative leaders were still deadlocked). of the Alzheimer’s Association, Greater Illinois passage and implementation of a state budget “The number of Illinoisans living with Chapter, said. “By bringing our voices together to that protects in-home care and other services Alzheimer’s disease is expected to grow by speak for those who can’t, elected officials and that people with Alzheimer’s and their families more than 20 percent in the next decade, so policymakers in Springfield should understand rely upon (At the time this article was written, establishing comprehensive, coordinated how much work remains in our fight to make policy responses to our members’ needs is a Illinois a dementia-capable state.”

For a complete breakdown of the 2015 State of Illinois Alzheimer’s Disease Annual Survey, please visit www.alz.org/Illinois and click on the link on the left column entitled “Advocate.” WINTER 2016 PAGE 7 updates

Congress answers Association call with historic research commitment The Alzheimer’s Association, the leading advocate for federal Alzheimer’s disease research funding and the leading provider of caregiver support, celebrates today’s announcement from House and Senate appropriations leaders that details their intention to pass the largest increase in history for Alzheimer’s research funding – $350 million – in the FY2016 budget.

Results of champagne in rats study are extremely preliminary Recent Facebook activity and media coverage have discussed a 2013 research article about a study in rats of champagne as a possible source of phenolic acids, which may have the potential to protect brain cells, lower neuroinflammation and promote memory and learning. The study’s results are extremely preliminary, and no one should change their habits as a result.

Costs of dementia greater than other conditions in last five years of life Age-adjusted Alzheimer’s disease death rate According to a new study published in the journal Annals of increases 8.1 percent Internal Medicine, dementia places a much larger financial According to a data brief released by the National Center burden on families in the last five years of life than cancer, for Health Statistics (part of the U.S. Centers for Disease heart disease and other conditions, especially among the Control and Prevention) titled Mortality in the United States, social groups least prepared to cope with these costs. 2014, the age-adjusted death rate for Alzheimer’s disease increased 8.1 percent from 2013 to 2014. The increase is significantly larger than previous one-year differences.

GIC launches Care Navigation pilot with Alexian The Greater Illinois Chapter has entered into a formal partnership with the Alexian Neurosciences Institute, Elk Grove Village, to offer care navigation services in their clinic for patients who have been newly diagnosed with Alzheimer’s disease or other, related dementias. This six-month pilot project is funded through a grant from the Alexian Foundation. The intervention will be examined through a number of measures to determine its benefits and effectiveness for patients, families and clinic staff.

PAGE 8 IMPACT Local Company Hopes to Raise $50,000 to #ENDALZ

Chicago-based Everywhere Wireless is partnering with the Alzheimer’s Association, Greater Illinois Chapter to raise money to help end Alzheimer’s. Everywhere Wireless will donate $250 for every new property it connects to its network with the goal of raising $50,000 by year’s end.

Keegan Bonebrake and his late grandparents, who were the inspiration for the #ENDALZ commitment

Everywhere Wireless provides contract- How your company can help workplace giving program, offering your free Internet to multifamily properties of employees an easy way to support the It’s likely that many members of your approximately 30 units or more and to cause corporate community— your employees, businesses such as Cisco, CBS, Nike and customers and key stakeholders—are • Promote gift matching opportunities, if Google, starting at $19/month. already connected to the disease. But are available • Encourage participation in the “Just about everyone knows someone they finding the help they need? Are they Alzheimer’s Association Walk to End whose life has been touched by Alzheimer’s engaged with the Alzheimer’s cause and Alzheimer’s®, the world’s largest or some form of dementia,’’ said Keegan empowered to take action? By partnering event to raise awareness and funds for Bonebrake, executive vice president of with the Alzheimer’s Association, Greater Alzheimer’s care, support and research Everywhere Wireless.”Three of my four Illinois Chapter, your company can stand grandparents were affected by Alzheimer’s with the world’s leading voluntary health • Encourage participation in The Longest ® and this program organization in Day , a growing event to honor the has created a way to It’s likely that many members of your Alzheimer’s care, strength, heart and endurance of those bring faster Internet to corporate community are already support and research facing the disease Chicago, while serving connected to the disease. But are they as we confront a • Promote group and individual volunteer a public good. It’s a win- finding the help they need? crisis that devastates opportunities millions of families win for everyone.’’ n Publicly display your good corporate and a significant portion of our nation’s citizenship and extend brand awareness “We greatly appreciate Everywhere workforce. The Greater Illinois Chapter offers Wireless’ commitment to raising awareness corporate partners in a variety of ways to • Become a corporate sponsor for one or and funds to combat Alzheimer’s disease, engage in meaningful collaboration. more of the following events; the sixth-leading cause of death in the United – Walk to End Alzheimer’s (September/ n States. Our partnership with them is exciting, Educate and empower your employees October), The Longest Day (June and together we’re looking forward to raising on a variety of Alzheimer’s topics. Both 21 Summer Solstice), Research $50,000 to benefit Alzheimer’s research, in-person and web-based education Symposium (October), Reason To Hope care, and support,’’ said Steve Schapiro, available. Register your company for (April) Vice President of Corporate Engagement one of our upcoming webinars http:// • Make a corporate donation www.alzheimersillinois. org/corporate of the Alzheimer’s Association, Greater • Reinforce your brand and drive sales engagement/corp_webinars.asp Illinois Chapter. through a strategic cause marketing n Strengthen your team and drive increased (percentage of sales) promotion For complete details and information, levels of employee engagement: visit the company’s program page or call To learn more about corporate engagement 866.923.0982. • Go Purple during Alzheimer’s & Brain with the Greater Illinois Chapter, visit www. Awareness Month in June alzheimersillinois.org/corporateengagement/ Everywhere Wireless is just one example • Go Casual for a Cause and raise funds to or contact Steve Schapiro, Vice President of a company teaming up to help end this support our mission (aka Jeans Days) Corporate Engagement at [email protected], epidemic. Ask your company to team up with • Include the Alzheimer’s Association, 847.779.6953. the Alzheimer’s Association, Greater Illinois Greater Illinois Chapter in your Chapter today.

WINTER 2016 PAGE 9 JOIN THE GREATER ILLINOIS CHAPTER JUNIOR BOARD AND FELLOW YOUNG PROFESSIONALS FOR AN UNFORGETTABLE EVENING IN CHICAGO

FRIDAY, FEBRUARY 19, 2016 n 8:00 TO 11:00 P.M. THE MONTGOMERY CLUB n 500 W. SUPERIOR ST., CHICAGO, IL 60654

$65 Early Bird Special (through January 8) $75 Pre-Sale (January 9 - February 18) $90 at the Door (February 19) Purchase your ticket at alzillinoisjuniorboard.org Ticket price includes entry, heavy appetizers, desserts and premium open bar

PAGE 10 IMPACT GREATER ILLINOIS CHAPTER | JUNIOR BOARD

Join us for an unforgettable evening you have access to great raffle or silent Can't attend the event but still supporting a great cause! The Junior auction items, please let us know. want to support the Junior Board Board will host its fourth annual winter We welcome your involvement and and its mission? Please visit event, Paint the Night Purple, on appreciate your support. alzillinoisjuniorboard.org and make a February 19, 2016 at The Montgomery general donation to the event. Club. Please purchase your ticket What's new this year? Local florists today at alzillinoisjuniorboard.org. will provide floral arrangements and For sponsorship, raffle, silent auction decor for Paint the Night Purple. To or centerpiece questions, contact our Sponsorship opportunities are purchase a centerpiece in honor or event co-chairs: Elizabeth Entinghe at available. If you, your company or a memory of a family member or friend, [email protected] or Tanya Iovino local business would be interested in please let us know and include their at [email protected]. being one of our event sponsors or if name. You can also purchase the arrangement when buying your event ticket at alzillinoisjuniorboard.org.

For Junior Board information, please contact Bethany Moore, Junior Board Staff Liaison, at 847.779.6952 or [email protected]

WINTER 2016 PAGE 11 How can you support the fight against Alzheimer’s disease?

Plan your own fundraiser to #ENDALZ

Event Ideas n Birthdays and anniversaries -Mark the celebration of someone special with a memorial or tribute donation. n Dinner party - Ask your guests to donate what they would have spent on a meal and drinks at a restaurant. n Golf - Ask your foursome to donate to the Alzheimer’s Association. By giving what they would already spend for a day on the links, they’ll enjoy each other’s company 2014 - 2015 Event hosts thank-you reception – and learn more about how they can become Alzheimer Champions. n Neighborhood block party - Set up games like cornhole, badminton or volleyball. Collect donations to play or entry fees for teams. n Movie night - Charge “admission” or pass around an empty popcorn tub for donations. n Garage sale - Donate half the proceeds – and let your buyers know!

Go purple Use splashes of purple, the Alzheimer’s Association official color, for invitations, party decor, food and drinks, signs, email invitations, anything you can think of.

Be a champion at work (Counter clockwise from Show your support for the cause at work. There are plenty above) of things you can do in the workplace to raise awareness Punk Grandpa, written, directed and performed of Alzheimer’s disease. by Laura Scruggs; Kathy and John Rezney, York n Go casual for a cause – For a small donation (usually $5), Furrier owners; Kevin employees choose a day to dress casually - and display Reome and friends at the their commitment to the Alzheimer’s Association by Reome Awards of Chicago wearing our symbol. at Second City; Kathy Rezney hosts guests at For more information or to get started planning your York Furrier’s Fashionable FUNdraiser; Steve fundraising event please contact Bethany Moore at Monroe (L), Richie Klein [email protected] or 847.779.6952. (R) and friend, enjoying Memory Rock Chicago; Leo Sheridan presenting a donation from The Advanced Group

PAGE 12 IMPACTIMPACT Do you enjoy planning events for family, friends and coworkers? Have fun and do good by turning your next event into a personal fundraiser. The possibilities are endless and you get to create your own unique fundraising experience to support the fight against Alzheimer’s disease. Get started today!

Arlington Heights Art Guild Best Buy Pamela Bland and Blue Cross Blue Shield of Illinois Bradley Elementary School The Chicago Wolves Hockey Team Civiltech Engineering, Inc. Deerfield High School Softball Team Downers Grove Women of the Moose Chapter No. 973 Eastview Elementary School Phil Hampel and The Illinois Shotokan Booster Club Pete Hastrawser, Daniel Bevan and The Oak Park River Forest High A special thank you to our The 2014 Memory Rock Chicago School Small Business Class 2014-2015 event hosts! Committee: Hendrickson Truck Suspensions Bill Barry The Jefferson Junior High School Matt Brown Wendy Dodson Gallegos Wrestling Team and John Myers Patricia Bohmann Ryan Esche Kayhan International and Jim Idstein Jen Bosworth Thomas R. Fawkes Tony D. Long and FashionBar Chicago Sal and Brenda Burton Price Guy Greco Morton Grove Community Presbyterian Church Susie Fink, Kathleen Caveney and Krista Kearney The Caveney Family Morgan Mason, The Women of Richard L. Klein Jonathan Center Alpha Kappa Alpha and Ahmet Markicic Bob Danon Northwestern University Kevin Marschall Megan Gowda National Society of Catholic Foresters Steve Monroe Kristen O’Connor and The Family of The Alex W. Nielsen Foundation Lorraine Kriz Jeff Nuich Our Lord’s Lutheran Church Chuck Lochotzki Kathleen Parker Prairieview Lutheran Home and Xavier Moody Ted Parris Rehab Care Employees Alexa Popiel and St. Charles East Sandeep Prabhakar Presence Mercy Medical Center High School Ted Prillaman The Private Bank & Trust Company Kevin Reome & Second City Theatre Dominic Soltero Kathy and John Rezney and Students Whitney Susoreny York Furrier Seymour Rifkind Daniel R. Ulbricht Sarah Rutkowski and Rust-oleum Employees Laura Scruggs Andrew and Nikki Wiedner St. Paul’s House Residents, Staff Megan Trubich Shari Young and Families Jim Vaselopulos and Dave Fahrner Larry Zall The Monks of St. Procopius Abbey Susan Weber and Linda Backe The Advanced Group Jonathan Segal, North Shore Country Elizabeth Youshaei and Deerfield Alliant Credit Union Day School and The Segal Family High School Arden Courts Residents, Staff and Families

WINTER 2016 PAGE 13 educational programs n Chicago n Rockford To register for Chicago-area To register for Rockford-area free programs, call 847.933.2413 or programs, call 815.915.484.1300 visit alz.org/illinois or visit alz.org/illinois

Thursday, February 11 Saturday, February 6 2:00 - 3:30 p.m. 10:00 - 11:30 a.m. Learning to Connect: Relating to the Learning to Connect: Relating to the n Bloomington/Springfield Person with Alzheimer’s Person with Alzheimer’s Brighton Gardens of St. Charles Fox Point Manor To register for Bloomington/ 600 Dunham Road, St. Charles 3350 Charles Miller Rd., McHenry Springfield area programs, call 217.726.5184 or visit Thursday, March 10 Tuesday, February 16 alz.org/illinois 1:00 - 2:30 p.m. 8:30 - 10:00 a.m. Effective Communication Strategies The Basics: Memory Loss, Dementia Wednesday, September 30 Oswego Senior Center and Alzheimer’s Disease Wednesday, January 20 156 E. Washington St., Oswego Keen Age Center 10:00 - 11:30 a.m. 2141 Henry Lucklow Lane, Belvidere Healthy Habits for a Healthier You Friday, March 25 Refreshments will be served. 2:00 - 3:30 p.m. Saturday, February 20 St. John’s Lutheran Church-Fellowship Know the 10 Signs: Early Detection 10:00 a.m. - 3:00 p.m. Hall Matters Living with Alzheimer’s: 1617 E. Emerson Street, Bloomington Lutheran Life Communities For Middle-Stage Caregivers 3150 Salt Creek Ln., Arlington Heights Continental breakfast and lunch Wednesday, March 9 provided. 10:00 - 11:30 a.m. n Joliet Lincolnshire Place Learning to Connect: Relating to the 6617 Broadcast Parkway, Loves Park Person with Alzheimer’s To register for Joliet-area St. Mary’s Hospital programs, call 815.744.0804 or Saturday, March 12 1800 E. Lakeshore Drive, Decatur visit alz.org/illinois 10:00 a.m. - 3:00 p.m. Living with Alzheimer’s: For Late Tuesday, March 15 Thursday, February 18 Stage Caregivers 9:00 - 11:30 a.m. 6:30 - 8:00 p.m. Lunch will be provided. Dementia Conversations Caregiver Stress: Relief, Acceptance Senior Services LifeSpan Center and Empowerment 110 W. Woodstock, Crystal Lake 11021 E. Co. Road 800 N, Charleston New Lenox Park District 701 W. Haven Avenue, New Lenox

Tuesday, March 8 4:00 - 5:00 p.m. Effective Communication Strategies Riverside Assisted Living and Memory Care 85 E. Burns Road, Bourbonnais

PAGE 14 IMPACT educational programs by phone

These FREE monthly programs are designed for those who cannot attend a program away from their home or office. All you need is a phone, so register today! Call 309.662.8392 or visit alz.org/illinois.

Tuesday, January 12 12:00 - 1:00 p.m. Paying For Alzheimer’s Care: What Resources are Available? Tuesday, March 8 Tuesday, February 9 12:00 - 1:00 p.m. 12:00 - 1:00 p.m. Sundowning, Sleeplessness and Anxiety, Aggression and Alzheimer’s: Alzheimer’s: How To Cope in the Effective Strategies For Difficult Evening Times

Care Navigation HELP FOR INDIVIDUALS AND FAMILIES FACING MEMORY LOSS

Care Navigation provides counseling appointments with a licensed social worker trained to help after memory loss diagnosis, during a time of transition or when a caregiver needs assistance. Make an appointment at alz.org/Illinois or call the 24/7 Helpline at 800.272.3900.

alz.org/illinois | alzil.mobi

Care Navigation is a fee-based service. No one will be turned away for inability to pay. Payment options will be discussed when you make your appointment.

Funded in part through a generous donation from the Glen & Wendy Miller Family Foundation.

WINTER 2016 PAGE 15 online educational programs: live webinars

WHAT IS A WEBINAR? Tuesday, January 26 “Webinar” is short for “web-based 7:00 - 7:30 p.m. seminar.” The Alzheimer’s Association Dementia vs. Alzheimer’s: What’s now offers these live, interactive the Difference, and Why Does it programs conducted through the Matter? Internet. Participation is easy and is Thursday, February 11 a great solution if you cannot easily 10:00 - 11:00 a.m. attend a program in person. Instead, Alzheimer’s in The African-American you attend via your computer. Community: What You Need to If you can open an email and click Know a link, you can join our webinars— Thursday, February 11 it’s that easy! We offer a variety of Thursday, March 3 2:00 - 3:00 p.m. topics, professional speakers, and an 2:00 - 2:45 p.m. Alzheimer’s in The African-American opportunity to ask or type in questions Paying for Alzheimer’s Care: Community: What You Need to if you desire. Webinars are convenient Resources to Provide Relief Know and designed to meet the needs of Tuesday, March 22 busy caregivers. Saturday, February 27 2:00 - 2:30 p.m. 10:30 - 11:15 a.m. Veterans: Your Service, Your Health, WHAT EQUIPMENT DO I NEED? Healthy Living for Your Brain and Our Focus All you need is an Internet connection Body: Tips from the Latest and a computer: Research Tuesday, March 22 7:00 - 7:30 p.m. • PC: Windows Vista, Windows 8 or 8.1 Thursday, March 3 Veterans: Your Service, Your Health, or Windows 10 10:00 - 10:45 a.m. Our Focus Paying for Alzheimer’s Care: • Mac: OSX 10.8 or higher (if you have Resources to Provide Relief 10.6 or 10.7, you can still join, but you will need Google Chrome version 39 or later or Mozilla Firefox, version 34 or later).

HOW TO REGISTER AND JOIN Step 1: Register online at alz.org/illinois or call 309.662.8392. Step 2: You will receive an email with a link to the webinar. Step 3: The day of the webinar, click on the link and launch the webinar.

QUESTIONS? Call Mike Bius at 309.662.8392 or email [email protected].

PAGE 16 IMPACT unforgettableART an affair for Alzheimer’s

Saturday, April 23, 2016 | Doors open at 6 pm University of Illinois College of Medicine at Rockford 1601 Parkview Ave, Rockford, Illinois New, improved auction space!

Enjoy hors d’oeuvres and drinks as you watch 50 talented artists convert blank canvases into works of art at this annual event. The evening concludes with a live auction of all artwork. Unforgettable Art benefits and supports those affected by Alzheimer’s disease in the Rock River Valley. More information: www.unforgettableart.org www.facebook.com/unforgettableart 815.484.1300

WINTER 2016 PAGE 17 Annual Alzheimer’s Research Symposium

On Friday, October 23, the 2015 the Annual Alzheimer’s Research Symposium took place at the McDonald’s University and Hyatt Lodge in Oak Brook, Illinois. We were honored to have our opening keynote address by Dr. Reisa Sperling, Director of the Massachusetts Alzheimer’s’ Disease Research Center, Harvard Medical School. Dr. Sperling, a leader on the research front of earlier diagnosis and treatment of Alzheimer’s disease, shared an overview of the clinical research study on Anti-Amyloid Treatment in Asymptomatic Alzheimer’s disease, known as the A4 Study.

The all-day symposium shared knowledge and insights on the current state of Alzheimer’s research. Session topics were centered on increasing awareness and enhanced skill set for Alzheimer’s patients, with a special focus on translating research into care. The day was filled with experts in the field of Alzheimer’s disease, including research and best practices for care and treatment.

As a formal award ceremony, the Alzheimer’s Association, Greater Illinois Chapter CEO Erna Colborn presented grant funding awards to Grace (Beth) Stutzmann, PhD, Rosalind Franklin University of Medicine and Science Chicago

Genetics panel (L-R): James A. Mastrianni, MD, Phd, University of Chicago; Keynote speaker Reisa Sperling, MD, Director, Joseph M. Harrington, Regional Health Officer/ Tom Ala, MD, Southern Illinois University School of Medicine; and Massachusetts Alzheimer’s Disease Research Center, Administrative Law Judge, Illinois Department of Public Vince Keenan, CAE , Illinois Academy of Family Physicians Harvard Medical School Health, addressing healthy aging

PAGE 18 IMPACT Sharing knowledge and insights on the current state of Alzheimer’s research

Medical School; Roneil Malkani, MD, Northwestern University Feinberg School of Medicine; and Carole Deyts, PhD, University of Chicago; with a total amount $398,700 disseminated to researchers in the field of Alzheimer’s.

Our closing keynote speaker, Heather Snyder, PhD, Director of Medical and Scientific Operations, National Alzheimer’s Association provided highlights of current key research discoveries recently shared at the Alzheimer’s Association International Conference, including insights on innovative research trends for the future.

The symposium offered CEUs and was attended by physicians, social workers, researchers and allied healthcare professionals, including families and caregivers. We would like to thank our sponsors and exhibitors for making this event possible and sharing their resources and services with the symposium attendees.

To learn about sponsorship and exhibitor opportunities for the 2016 Annual Research Symposium, contact Heidi Johnson: [email protected] Concetta Forchetti, MD, PhD, AMITA Health, Alexian Brothers Health System: current treatment and intervention trends

(L-R) Heather Snyder, PhD, Alzheimer’s Association; Beth Stutzmann, PhD, Diagnosis panel (L-R): Sandra Weintraub, PhD, ABCN/ABPP, Northwestern University Charlene Aaron, PhD, Illinois Rosalind Franklin University of Medicine and Science Chicago Medical Feinberg School of Medicine; Rita Shapiro, DO, University of Illinois at Chicago; and State University, Mennonite School; Erna Colborn, Alzheimer’s Association, Greater Illinois Chapter Darren Gitelman, MD, Advocate Memory Center, Advocate Healthcare System College of Nursing

WINTER 2016 PAGE 19 A World Without Alzheimer’s® is a truly bipartisan goal

Illinois residents have become used to bad news lately. the advocates on their walk through Peoria. That he made it Government shutdown? Check. Fiscal crisis? Check. a priority to come to the Peoria Walk after less than a month Governor and Legislature locked in a seemingly endless in office shows how strong a foundation our team has laid. partisan battle? Check. In April, when LaHood was still a State Senator, he voted for In at least one area of public policy, however, there is a great Senate Bill 1846, legislation called ‘Silver Search,’ which the deal to celebrate: the bipartisan coalition fighting to make Alzheimer’s Association worked closely with State Senator Alzheimer’s disease a thing for the history books has been Daniel Biss and State Representative Natalie Manley to growing by leaps and bounds, and we are working tirelessly pass. The bill created a comprehensive and coordinated to increase funding for National Institutes of Health research awareness and search program for missing adults believed into possible cures, to improve Medicare’s responsiveness to have Alzheimer’s disease or a related dementia, and was to people facing Alzheimer’s and to make Illinois a signed into law on August 7 by the governor. dementia-capable state.

18 of our state’s 20 member congressional delegation are already co-sponsors of the HOPE for Alzheimer’s Act (HR. 1559/S. 857), one of the Alzheimer’s Association’s main legislative priorities, while a strong majority is actively calling for increased federal research funding.

Nowhere could this be seen more clearly than during the 2015 Walk to End Alzheimer’s® season. Elected officials from across the state joined advocates during several Walks to demonstrate their support for Alzheimer’s Association® initiatives, and often, to honor people in their lives who battled Alzheimer’s.

State Sen. Daniel Biss addresses the opening ceremony of the Chicago Walk to End Alzheimer’s.

Sen. Biss was presented with Alzheimer’s Association, Greater Illinois Chapter’s Senate Legislator of the Year award by Greater Illinois Chapter President and CEO Erna Colborn during the opening ceremony of the Chicago Walk to End Alzheimer’s® on September 27. Rep. Manley was Congressman LaHood is pictured in his purple Alzheimer’s Association t-shirt named House of Representatives Legislator of the Year and while walking in the Peoria Walk to End Alzheimer’s. presented with her award at the October 3 Joliet Walk to End Alzheimer’s. Biss, Manley and Tom Demmer, a State Darin LaHood came to the Peoria Walk to End Alzheimer’s® Representative from Dixon who joined advocates for the just three weeks after winning a special election to Rock River Walk on September 26, all took a few moments represent Illinois’ 18th Congressional District. In a moving to thank everyone in attendance for using their voices to tribute, LaHood spoke of a personal connection with push leaders in Springfield for reforms that will make Illinois Alzheimer’s during the opening ceremony and then joined a dementia-capable state.

PAGE 20 IMPACT The bipartisan coalition fighting to make Alzheimer’s disease a thing for the history books has been growing by leaps and bounds

In 2015, throughout the Walks to End Alzheimer’s, we saw again the incredible power of the fight to End Alzheimer’s to bring people together.

Congressman Bill Foster, center-right, and state Rep. Natalie Manley, center left, take a moment to pose for photos with advocates at the Joliet Walk to End Alzheimer’s.

Congressman Bill Foster joined Manley at the Joliet Walk and also participated in the Naperville walk with Mayor Steve Chirico. Foster, a Democrat, has been one of the Alzheimer’s Association’s champions on Capitol Hill, fighting tooth and nail alongside Republicans like Rodney Davis to increase federally funded research into Alzheimer’s disease. Like Foster, Congressman Davis also made time to attend the Springfield Walk to End Alzheimer’s® and thank the advocates for all of their hard work.

And when busy schedules did not permit attending a local Walk, as in the cases of Congresswoman Tammy Duckworth and Congressman Adam Kinzinger, both legislators still made attendance a priority and ensured that staff members were on hand to bring their best wishes and Congressman Rodney Davis thanks advocates before the Springfield Walk to hear their constituents’ concerns. End Alzheimer’s

ARE YOU CARING FOR SOMEONE WITH ALZHEIMER’S DISEASE?

The Alzheimer’s Association is here to help alz.org/illinois | alzil.mobi you and those you care about through care consultation, education, support and more.

WINTER 2016 PAGE 21 Non-Profit Org. U.S. Postage Greater Illinois Chapter PAID Permit No. 1182 Rockford, ILs 8430 West Bryn Mawr Avenue, Suite 800, Chicago, IL 60631 847.933.2413 | alz.org/illinois | alzil.mobi

Help advance the cause in Springfield and Washington, DC!

Illinois Action Summit Advocacy Forum Springfield, Illinois Washington, DC April 14, 2016 April 4-6, 2016

Avocates play an important role Thanks to the Alzheimer’s in improving the quality of care Association and dedicated for people with Alzheimer’s advocates nationwide, disease and their families. Your congressional leaders recently voice and your story matter as announced the largest-ever we compel our legislators to increase for Alzheimer’s engage in the fight for a world without Alzheimer’s. research funding — $350 million. This is an Transportation and meal(s) are provided. All you unprecedented victory and a historic moment for the need is passion — no experience necessary! Alzheimer’s movement. Be part of the next step at the nation’s premier Alzheimer’s advocacy event. To register and for more information, please visit alz.org/illinois and click on “Join Our Action Summit” For information and registration: or contact Andrew Kretschmar at 847.779.6947 https://registration.experientevent.com/ or [email protected]. ShowAFX161/