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Impactfy2015 WINTER 2016 IMPACT FY2015 TODAY ONE IN THREE SENIORS DIES FROM ALZHEIMER’S OR A RELATED DEMENTIA 2015: Record-setting year for Symposium focuses on Free programs—in person, by Walk to End Alzheimer’s® translating research into care phone and now webinars! Thursday, April 14, 2016 Join us in Springfield to make a difference in the fight against Alzheimer’s! n Your voice and your story matter as we compel our legislators to engage in the fight for a world without Alzheimer’s. n Transportation and meal(s) provided. n All you need is passion — no experience necessary! To register and for more information, please visit alz.org/illinois and click on “Join Our Action Summit” or contact Andrew Kretschmar at 847.779.6947 or [email protected]. Illinois Action Summit | Thursday, April 14 | Register today! Illinois Chapter Network 24/7 Helpline 800.272.3900 | alz.org a message from erna Looking back at FY 2015 ...............................2 In recent years, the political climate in Washington D.C. has shown us that the likelihood of the federal government taking historic action on Walk to End Alzheimer’s Success .............5 Erna Colborn any issue is exceptionally rare. Considering that, it is an even greater President and CEO Statewide Survey Results ..........................6 pleasure for me to announce that Congress recently passed a budget for the coming year that will increase federally funded Alzheimer’s disease research Updates ...........................................................8 by $350 million. Corporate Fundraising .................................9 This represents a 59.7% increase in funding for National Institutes of Health (NIH)-led Painting the Night Purple ..........................10 efforts to treat and cure Alzheimer’s disease, the largest such expansion in our nation’s history! The bipartisan nature of the vote is a testament both to the unacceptably high Have Fun, Do Good ................................ 12-13 prevalence of Alzheimer’s disease, which has personally affected many members of Educational Programs .........................14-16 Congress, and the hard work, passion and dedication of Alzheimer’s Association advocates, staff and donors. Research Symposium 2015 .......................18 This victory should be seen as part of a continuum of success advocating for public policies to Legislative Cooperation ............................20 address the impending Alzheimer’s disease epidemic: In 2010, Association advocates helped pass legislation that created the National Alzheimer’s Plan, an annually updated strategic assessment of federally-funded Alzheimer’s research, care and support programs, with the goal of effectively treating Alzheimer’s by 2025. Our mission Three years later, the Alzheimer’s Accountability Act was signed into law by President To eliminate Alzheimer’s disease through Obama after swift congressional action. This law will allow the NIH to submit budgetary the advancement of research; to provide and enhance care and support for all affected; recommendations directly to Congress beginning in fiscal year 2017, ensuring that lawmakers and to reduce the risk of dementia through have access to the best information available when determining future funding priorities. the promotion of brain health. With the implementation of the FY16 budget, NIH funding for Alzheimer’s disease research Our vision will have more than doubled during the last decade. A world without Alzheimer’s disease While these successes should be celebrated, we must remember that the fight to eliminate Alzheimer’s is far from won. The Association’s work to make Illinois a dementia-capable Impact is published for our donors, volunteers state remains ongoing; we are continuing to build support for the HOPE for Alzheimer’s Act advocates and friends in the Alzheimer community. (S. 857/H.R. 1559), our main federal initiative; and our fight has already begun to increase © 2016 Alzheimer’s Association, Greater Illinois Chapter. All rights reserved. annual NIH funding to the $2 billion level identified by experts as the critical mass necessary No materials may be reproduced in any form without the express to achieve the National Alzheimer’s Plan objectives. written permission of the publisher, the Alzheimer’s Association, Greater Illinois Chapter. Information, organizations and resources Benjamin Franklin once said that ‘Energy and persistence conquer all things.’ As we reflect on mentioned in this publication are for informational purposes only and do not constitute endorsement or recommendation by the publisher and the meaning of this historic achievement, that wisdom seems to describe our work in recent staff. Although much care has been taken to ensure the accuracy of the years perfectly and offer a guide for what we must do in those to come. information, the Alzheimer’s Association, Greater Illinois Chapter and staff are not responsible for any errors that may occur and cannot be If you would like use some of your energy, passion and persistence to bring us closer to A World held responsible for any damages that might arise from the use of this ® material. Readers are urged to consult with the appropriate healthcare without Alzheimer’s , please visit alz.org/illinois to learn about all the ways you can help. provider or other professionals before taking any actions as a result of reading this material. board of directors staff Janis Tratnik John Anderson Brad Moore Erna Colborn Board Chair Paul Caponigri Robert Noonan President and CEO 8430 West Bryn Mawr Avenue, Suite 800 Mary Wasik Jennifer Convery Kerry Peck Nancy Rainwater Chicago, Illinois 60631 Vice Chair Michael Duffy Scott Perry V.P., Communications Sheri Supena Kaylin Risvold alz.org/illinois | alzil.mobi Karen Greenbaum Victoria Raymont Secretary Joseph Harrington Raj Shah Media Relations Specialist Mathias E. Brown Reagan Hogerty James Werner Lynne Koenigsberger Treasurer Daneen Jachino Graphic Designer Salvador Bayron Director, E-Strategy Bloomington/Normal 207 S. Prospect, Suite 1, Bloomington, Illinois 61704 Phone 309.662.8392 | Carbondale 320 E. Walnut Street, Suite A, Carbondale, Illinois 62901 Phone 618.985.1095 | Chicago 8430 W. Bryn Mawr Avenue, Suite 800, Chicago, Illinois 60631 Phone 847.933.2413 Joliet 850 Essington Road, Suite 200, Joliet, Illinois 60435 Phone 815.744.0804 | Rockford 1111 S. Alpine Road, Suite 307, Rockford, Illinois 61108 Phone 815.484.1300 | Springfield 2309 W. White Oaks Drive, Suite E, Springfield, Illinois 62704 Phone 217.726.5184 IMPACT | WINTER 2016 PAGE 1 IMPACT FY2015 TODAY ONE IN THREE SENIORS DIES FROM ALZHEIMER’S OR A RELATED DEMENTIA Alzheimer’s is the sixth-leading cause of death and the only one in the top ten causes without a way to treat, slow the progression or cure. Illinois is among the states with the highest estimated number of people with Alzheimer’s disease – currently at 210,000. By the year 2025, it is projected that Illinois will have 260,000 people with Alzheimer’s – up by 24 percent over current numbers. With your support, the Alzheimer’s Association is working to advance care, support and research. From face-to-face support, education programs, advocacy and promising worldwide research initiatives, your donations make a difference in the lives of the millions of people impacted by Alzheimer’s today and those who will face the disease tomorrow. Thank you for helping us raise awareness and funds that strengthen our efforts and move us closer to our vision of a world without Alzheimer’s disease. Until that day comes, we will be here to help people with Alzheimer’s and other dementias, families, caregivers and the community. PAGE 2 IMPACT Volunteers These events were held in the latter half of The Alzheimer’s Association’s programs, FY2015, in locations across the Chapter’s services and events would not be possible service area. without the commitment and generous • Two public check presentations to local support of its volunteers. In FY15, more researchers receiving Alzheimer’s than 1,795 people provided more than Association research grants. 17,600 hours of service towards our mission • 5,549 TrialMatch profiles were created which equates to a total of 10 full time staff. during FY15, once again leading the nation Plus, we received national recognition in number of registrations for the fourth of our Chapter Alzheimer’s Association consecutive year. Community Representative (AACR) volunteer program. Public Policy The hard work and dedication of our over 25,000 volunteer advocates in Illinois “Thank you for all the good insights. helped to steadily increase the Association’s I feel more able and prepared for the influence with policymakers as we fight to present and future as a caregiver. You create a dementia-capable state in Illinois have helped me feel I can do what needs and implement the National Alzheimer’s to be done. It makes it better to know Plan on the federal level. Our advocates that you have been and are still there.” played an integral role as we obtained an additional $25 million in federal research – Pat B, Rockford funds and passed the Alzheimer’s Research Accountability Act (AAA). This bipartisan The Alzheimer’s Association is committed piece of legislation requires the scientists to accelerating the global effort to eliminate at the National Institutes of Health (NIH) Alzheimer’s disease through a variety to submit an annual Alzheimer’s research of initiatives, such as the Alzheimer’s budget proposal directly to Congress and “I feel I can make a difference, not only Association International
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