Research Participant Satisfaction Current Results from the July 2018 Survey Research Participant Satisfaction Survey
• In July 2018, the Institute of Clinical and Translational Research randomly selected participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months • Currently, 135 participants responded Overall Experience in Research Study
45%
40%
35%
30%
25%
20%
15%
10%
5%
0% 0 (Worst)12345678910 (Best) Would you recommend joining a research study to your family and friends?
100%
90%
80%
70%
60%
50%
40%
30%
20%
10%
0% Yes No Importance of Reasons for Joining Study
100%
90%
80%
70%
60%
50%
40%
30% Very important/Somewhat important 20% Not very impotant/Not important at all
10%
0% Preparation for Study
Did the informed consent form prepare you Did the information and discussions you had for what to expect during the study? before participating in the research study prepare you for your experience in the study?
100% 100%
90% 90%
80% 80%
70% 70%
60% 60%
50% 50%
40% 40%
30% 30%
20% 20%
10% 10%
0% 0% Yes No Yes No Satisfaction with Research Team
100%
90%
80%
70%
60% Never
50% Sometimes Usually 40% Always
30%
20%
10%
0% Treated me with respect Listened to me carefully Pressured me to join study Knew how to reach team Felt valued as a partner Satisfaction with Research Process
Were you ever concerned about your safety or health during the study?
Did you ever have to wait too long between tests at your visit?
Did you ever have to wait too long for your visit to begin?
0% 10% 20% 30% 40% 50% 60% 70% 80%
Always Usually Sometimes Never Reasons for leaving a research study
100%
90%
80%
70%
60%
50%
40%
30% Very important/Somewhat important Not very important/Not important at all 20%
10%
0% Reasons for staying in a research study
100%
90%
80%
70%
60%
50%
40%
30% Very important/Somewhat important Not very important/Not important at all 20%
10%
0% Things that would be important for participants in a future study
25%
20%
15%
10%
5%
0% Access to computer, Access to comfortable Payment/More Support groups Volunteer Flexible schedule Accessible parking Planned discharge Summary of overall Results of personal Other internet, and bed Payment appreciation and study location and proper goodbye research results lab tests television to research team Where Science and People Connect