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Hearing Loss KLEIN INDEPENDENT SCHOOL DISTRICT AAA RRREEESSSOOOUUURRRCCCEEE GGGUUUIIIDDDEEE FFFOOORRR PPPEEEOOOPPPLLLEEE WWWHHHOOO AAARRREEE HHHAAARRRDDD OOOFFF HHHEEEAAARRRIIINNNGGG OOORRR DDDEEEAAAFFF May, 2011 KLEIN INDEPENDENT SCHOOL DISTRICT A RESOURCE GUIDE FOR PEOPLE WITH AUDITORY IMPAIRMENTS May, 2011 ACKNOWLEDGEMENTS: This is the second edition of the Resource Booklet for Klein ISD. Information was collected from ESC Region VI, Cypress Fairbanks ISD, the Northwest Harris County Cooperative for the Hearing- Impaired, Klein ISD, Phonak, Better Hearing Institute, and Callier Center at UT Dallas. Over the period of about 6 months, Brenda Fry, Auditory Impairment Teacher of Klein ISD, invested a tremendous amount of time, research, and effort to update the information to make it as current and comprehensive as possible without being overwhelming. Every attempt was made to verify organization’s names, physical addresses, phone numbers, and website addresses. Special appreciation is extended to Becky Leon, translator in Klein ISD, who spent a significant amount of time translating the Resource Booklet for all of our Spanish-speaking families. This document should not be considered a complete directory of all resources available as information and issues surrounding students with hearing impairment is ever changing. We hope that this resource book will be helpful to all parents, teachers, nurses, educational staff, and students who wish to access services and information available to people who are hearing impaired. TABLE OF CONTENTS Introduction ................................................................................................................................. 4 Getting Started....................................................................................................................... 6-8 Early Childhood Programs.................................................................................................... 9-10 Hearing Loss.......................................................................................................................... 11-12 Audiologists and Ear, Nose & Throat Physicians .........................................................13-20 Local Resources ...................................................................................................................21-29 State Resources ................................................................................................................. 30-37 National Resources ............................................................................................................ 38-56 Telephone Services...................................................................................................................57 Interpreter Services ........................................................................................................ 58-59 Sign Language Classes ........................................................................................................60-61 Financial Services................................................................................................................62-71 Scholarships ........................................................................................................................ 72-73 Church Sponsored Services............................................................................................. 74-78 Camps .....................................................................................................................................79-81 Deaf-Blind Resources........................................................................................................ 82-87 Websites .............................................................................................................................. 88-90 Resources for Hearing Aid/Assistive Listening Devices ..........................................91-93 Cochlear Implant Resources ...................................................................................................94 Terms and Definitions...................................................................................................... 95-101 Parenting the Child Who is Hard of Hearing or Deaf ............................................102-104 Guidelines for Classroom Teacher ..............................................................................105-108 American Sign Language Hyperlinks ........................................................................... 109-110 INTRODUCTION This booklet is designed to be a resource guide for you. Whether you are a parent who’s just discovered your child has a hearing loss, or you’re a teacher, school administrator, or someone else related to individuals who have a hearing impairment or the deaf community, Please use it to: 1. Connect families of children who are deaf or hard of hearing to each other for support. 2. Find out about services and supports available to families and professionals. 3. Get information on resources for financial assistance. 4. Discover community support systems, resources and programs A student who has an auditory impairment is one who has been determined to have impairment in hearing, whether permanent or fluctuating, which adversely affects a child’s educational performance but that is not included under the definition of deafness. Deafness means a hearing impairment so severe that the child is impaired in processing linguistic information through hearing, with or without amplification, which adversely affects a child’s educational performance. (Taken from TEA Division of Special Education) 4 Navigating the Texas Early Intervention System yzAll newborns screened Diagnostic testing for hearing loss Follow-up completed by Hearing audiologist by or before Newborn Screening 3 months of age Hearing Outpatient screening Screening completed by or before Hearing Loss yz 1 month of age Confirmed AUDIOLOGICAL MONITORING Hearing Aid Evaluation & Fitting • Continued Monitoring • Referral to Early Intervention Referral to PACT as appropriate by or before 6 months of age • Your family is referred to your local Your family is referred to your Local Early Childhood Intervention Program Education Agency (LEA)/Regional Day (ECI) within two days of identification School Program for the Deaf (RDSPD)/ of your child’s hearing loss. Texas School for the Deaf (TSD) within 5 yz days of referral to ECI. MEDICAL HOME MONITORING Pediatrician/Primary Care/ ENT provider to coordinate medical care Assessment and development of Individual Family Service Plan (IFSP) within 45 days of referral to ECI IMPORTANT NOTE Children whose hearing Service Coordination/additional early Deaf Education Early Intervention loss is identified later than intervention services provided by ECI Services provided by LEA/RDSPD/TSD infancy or who develop hearing loss after they are born are referred for early intervention as soon as the hearing loss is suspected or confirmed. It is important that children, especially those with ECI and local education agency’s Deaf Education Early certain high risk factors, be monitored for late- Intervention Services (school district, RDSPD, TSD) onset hearing loss. are available, when determined by an IFSP, until your child is three years old. ECI and LEA will coordinate transition services before your child’s third birthday. Services for students who are deaf or hard of hearing and/or other special education services are available through your LEA/RDSPD/TSD from ages 3 – 21 when determined by an Individual Education Plan (IEP). This page is designed to provide a visual overview of Texas’ comprehensive system of early intervention services for families of infants and toddlers with hearing loss. Texas Connect Topic Card #10 has more information on early intervention services. GGGEEETTTTTTIIINNNGGG SSSTTTAAARRRTTTEEEDDD GETTING STARTED “Your Child has a Hearing Loss” Even though you may have suspected there was a problem, hearing a doctor or audiologist say, “Your child has a hearing loss”, may have come as a shock to you. Most people do not know much about hearing loss and what it means for their child and family. As the professional who delivered this news to you discusses information more in-depth, you may not have heard much of what he or she was saying. In your mind, questions may have begun to formulate: “Can it be corrected?” “What caused it?” “Will it get better?” “Will it get worse?” “Can he learn to talk?” “Can she go to regular school?” “If we have more children, will they be deaf, too?” “Can he get married?” “Will she be able to get a job?” The answers you get to some of these questions may not be what you want to hear; “No this type of hearing loss cannot be medically or surgically corrected.” Or “We don’t know for sure what your child’s future holds – it depends on a lot of factors.” You want the best for your child and now, you are not sure you know what to do. In the days and weeks following the diagnosis of your child’s hearing loss, you may feel like you are on a roller coaster. Your feelings may swing from despair to hope, from sadness to anger, from feeling incompetent to feeling confident. As you carry out your daily routines – finishing a chore or arriving at a destination – you may realize that your mind was somewhere else, thinking about your child and what you should do. You may also find within yourself unexpected sources of strength to do what has to be done in spite of feeling that you are living under a cloud. The professionals who evaluate your child’s hearing
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