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Pausing Encounters with Autism and Its Unruly Representation: an Inquiry Into Method, Culture and Academia in the Making of Disability and Difference in Canada
Pausing Encounters with Autism and Its Unruly Representation: An inquiry into method, culture and academia in the making of disability and difference in Canada A dissertation submitted to the Committee of Graduate Studies in Partial Fulfillment of the Requirements for the Degree of Doctor of Philosophy in the Faculty of Arts and Science. TRENT UNIVERSITY Peterborough, Ontario, Canada Copyright by John Edward Marris 2013 Canadian Studies Ph.D. Graduate Program January 2014 ABSTRACT Pausing Encounters with Autism and Its Unruly Representation: An inquiry into method, culture and academia in the making of disability and difference in Canada John Edward Marris This dissertation seeks to explore and understand how autism, asperger and the autistic spectrum is represented in Canadian culture. Acknowledging the role of films, television, literature and print media in the construction of autism in the consciousness of the Canadian public, this project seeks to critique representations of autism on the grounds that these representations have an ethical responsibility to autistic individuals and those who share their lives. This project raises questions about how autism is constructed in formal and popular texts; explores retrospective diagnosis and labelling in biography and fiction; questions the use of autism and Asperger’s as metaphor for contemporary technology culture; examines autistic characterization in fiction; and argues that representations of autism need to be hospitable to autistic culture and difference. In carrying out this critique this project proposes and enacts a new interdisciplinary methodology for academic disability study that brings the academic researcher in contact with the perspectives of non-academic audiences working in the same subject area, and practices this approach through an unconventional focus group collaboration. -
Becoming Autistic: How Do Late Diagnosed Autistic People
Becoming Autistic: How do Late Diagnosed Autistic People Assigned Female at Birth Understand, Discuss and Create their Gender Identity through the Discourses of Autism? Emily Violet Maddox Submitted in accordance with the requirements for the degree of Master of Philosophy The University of Leeds School of Sociology and Social Policy September 2019 1 Table of Contents ACKNOWLEDGEMENTS ................................................................................................................................... 5 ABSTRACT ....................................................................................................................................................... 6 ABBREVIATIONS ............................................................................................................................................. 7 CHAPTER ONE ................................................................................................................................................. 8 INTRODUCTION .............................................................................................................................................. 8 1.1 RESEARCH OBJECTIVES ........................................................................................................................................ 8 1.2 TERMINOLOGY ................................................................................................................................................ 14 1.3 OUTLINE OF CHAPTERS .................................................................................................................................... -
The Persistence of Fad Interventions in the Face of Negative Scientific Evidence: Facilitated Communication for Autism As a Case Example
Evidence-Based Communication Assessment and Intervention ISSN: 1748-9539 (Print) 1748-9547 (Online) Journal homepage: http://www.tandfonline.com/loi/tebc20 The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example Scott O. Lilienfeld, Julia Marshall, James T. Todd & Howard C. Shane To cite this article: Scott O. Lilienfeld, Julia Marshall, James T. Todd & Howard C. Shane (2014) The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example, Evidence-Based Communication Assessment and Intervention, 8:2, 62-101, DOI: 10.1080/17489539.2014.976332 To link to this article: http://dx.doi.org/10.1080/17489539.2014.976332 Published online: 02 Feb 2015. Submit your article to this journal Article views: 5252 View related articles View Crossmark data Citing articles: 1 View citing articles Full Terms & Conditions of access and use can be found at http://www.tandfonline.com/action/journalInformation?journalCode=tebc20 Download by: [University of Lethbridge] Date: 05 October 2015, At: 05:52 Evidence-Based Communication Assessment and Intervention, 2014 Vol. 8, No. 2, 62–101, http://dx.doi.org/10.1080/17489539.2014.976332 EBP Advancement Corner The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example Scott O. Lilienfeld1, Julia Marshall1, James T. Todd2 & Howard C. Shane3 1Department of Psychology, Emory University, Atlanta, GA, USA, 2Department of Psychology, Eastern Michigan University, Ypsilanti, MI, USA, 3Boston Children’s Hospital, Boston, MA, USA ................................................................................................................................................. Abstract Communication disorder and mental health professionals may assume that once novel clinical techniques have been refuted by research, they will be promptly abandoned. -
Why We Oppose Autism Speaks
Why We Oppose Autism Speaks Autism Speaks, despite its name, does not speak for autistic people. When polled, 98% of autistic adults oppose Autism Speaks –and there is a massive global movement by autistic people and allies to stop Autism Speaks. In fact, regardless of the many differences among autistic advocates about politics and advocacy, there is one view we pretty much ALL agree on: that Autism Speaks is a hate group. Some reasons: Autism Speaks has allocated hundreds of millions of dollars towards “eugenics” projects that may seek to prevent autistic people from being born. • Autism Speaks is a co-founder of the MSSNG project, a massive, far-reaching project to make a global database of 10,000+ autistic children’s DNA available for use by researchers throughout the world who can fill out a pop-up menu on their website to access it. • The DNA is extracted without the children’s permission. • It is done with the purpose of identifying “autism genes” that will then be used in prenatal testing. • If common genes are identified through this research, people will do prenatal testing and terminate pregnancies if they think there are “signs of autism”. • This project is active in Canada. Autism Speaks Canada has earmarked hundreds of thousands of dollars to its own arm of the project. A group of geneticists in Toronto has also been involved in collecting data for the database. • One of the project’s co-founders, Dr. James Watson, was fired from Cold Spring Harbour Laboratory for his racist remarks about African Americans, intelligence and using eugenics to find “a cure for stupid”. -
Rhythm and Timing in Autism: Learning to Dance
REVIEW ARTICLE published: 19 April 2013 INTEGRATIVE NEUROSCIENCE doi: 10.3389/fnint.2013.00027 Rhythm and timing in autism: learning to dance Pat Amos* Training and Private Consultation, Ardmore, PA, USA Edited by: In recent years, a significant body of research has focused on challenges to neural Anne M. Donnellan, University of connectivity as a key to understanding autism. In contrast to attempts to identify a Wisconsin-Madison, University of single static, primarily brain-based deficit, children and adults diagnosed with autism are San Diego, USA increasingly perceived as out of sync with their internal and external environments in Reviewed by: Elizabeth B. Torres, Rutgers dynamic ways that must also involve operations of the peripheral nervous systems. The University, USA noisiness that seems to occur in both directions of neural flow may help explain challenges Trevor McDonald, Education to movement and sensing, and ultimately to entrainment with circadian rhythms and social Associates Inc., USA interactions across the autism spectrum, profound differences in the rhythm and timing of *Correspondence: movement have been tracked to infancy. Difficulties with self-synchrony inhibit praxis, and Pat Amos, 635 Ardmore Avenue, Ardmore, PA 19003-1831, USA. can disrupt the “dance of relationship” through which caregiver and child build meaning. e-mail: [email protected] Different sensory aspects of a situation may fail to match up; ultimately, intentions and actions themselves may be uncoupled. This uncoupling may help explain the expressions of alienation from the actions of one’s body which recur in the autobiographical autism literature. Multi-modal/cross-modal coordination of different types of sensory information into coherent events may be difficult to achieve because amodal properties (e.g., rhythm and tempo) that help unite perceptions are unreliable. -
Disability in an Age of Environmental Risk by Sarah Gibbons a Thesis
Disablement, Diversity, Deviation: Disability in an Age of Environmental Risk by Sarah Gibbons A thesis presented to the University of Waterloo in fulfillment of the thesis requirement for the degree of Doctor of Philosophy in English Waterloo, Ontario, Canada, 2016 © Sarah Gibbons 2016 I hereby declare that I am the sole author of this thesis. This is a true copy of the thesis, including any required final revisions, as accepted by my examiners. I understand that my thesis may be made electronically available to the public. ii Abstract This dissertation brings disability studies and postcolonial studies into dialogue with discourse surrounding risk in the environmental humanities. The central question that it investigates is how critics can reframe and reinterpret existing threat registers to accept and celebrate disability and embodied difference without passively accepting the social policies that produce disabling conditions. It examines the literary and rhetorical strategies of contemporary cultural works that one, promote a disability politics that aims for greater recognition of how our environmental surroundings affect human health and ability, but also two, put forward a disability politics that objects to devaluing disabled bodies by stigmatizing them as unnatural. Some of the major works under discussion in this dissertation include Marie Clements’s Burning Vision (2003), Indra Sinha’s Animal’s People (2007), Gerardine Wurzburg’s Wretches & Jabberers (2010) and Corinne Duyvis’s On the Edge of Gone (2016). The first section of this dissertation focuses on disability, illness, industry, and environmental health to consider how critics can discuss disability and environmental health in conjunction without returning to a medical model in which the term ‘disability’ often designates how closely bodies visibly conform or deviate from definitions of the normal body. -
Constructing Narratives and Identities in Auto/Biography About Autism
RELATIONAL REPRESENTATION: CONSTRUCTING NARRATIVES AND IDENTITIES IN AUTO/BIOGRAPHY ABOUT AUTISM by MONICA L. ORLANDO Submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy Department of English CASE WESTERN RESERVE UNIVERSITY May 2015 2 CASE WESTERN RESERVE UNIVERSITY SCHOOL OF GRADUATE STUDIES We hereby approve the dissertation of Monica Orlando candidate for the degree of Doctor of Philosophy.* Committee Chair Kimberly Emmons Committee Member Michael Clune Committee Member William Siebenschuh Committee Member Jonathan Sadowsky Committee Member Joseph Valente Date of Defense March 3, 2015 * We also certify that written approval has been obtained for any proprietary material contained therein. 3 Dedications and Thanks To my husband Joe, for his patience and support throughout this graduate school journey. To my family, especially my father, who is not here to see me finish, but has always been so proud of me. To Kim Emmons, my dissertation advisor and mentor, who has been a true joy to work with over the past several years. I am very fortunate to have been guided through this project by such a supportive and encouraging person. To the graduate students and faculty of the English department, who have made my experience at Case both educational and enjoyable. I am grateful for having shared the past five years with all of them. 4 Table of Contents Abstract ............................................................................................................................... 5 Chapter 1: Introduction Relationality and the Construction of Identity in Autism Life Writing ........................ 6 Chapter 2 Clara Claiborne Park’s The Siege and Exiting Nirvana: Shifting Conceptions of Autism and Authority ................................................................................................. 53 Chapter 3 Transformative Narratives: Double Voicing and Personhood in Collaborative Life Writing about Autism .............................................................................................. -
The Joy of Autism: Part 2
However, even autistic individuals who are profoundly disabled eventually gain the ability to communicate effectively, and to learn, and to reason about their behaviour and about effective ways to exercise control over their environment, their unique individual aspects of autism that go beyond the physiology of autism and the source of the profound intrinsic disabilities will come to light. These aspects of autism involve how they think, how they feel, how they express their sensory preferences and aesthetic sensibilities, and how they experience the world around them. Those aspects of individuality must be accorded the same degree of respect and the same validity of meaning as they would be in a non autistic individual rather than be written off, as they all too often are, as the meaningless products of a monolithically bad affliction." Based on these extremes -- the disabling factors and atypical individuality, Phil says, they are more so disabling because society devalues the atypical aspects and fails to accommodate the disabling ones. That my friends, is what we are working towards -- a place where the group we seek to "help," we listen to. We do not get offended when we are corrected by the group. We are the parents. We have a duty to listen because one day, our children may be the same people correcting others tomorrow. In closing, about assumptions, I post the article written by Ann MacDonald a few days ago in the Seattle Post Intelligencer: By ANNE MCDONALD GUEST COLUMNIST Three years ago, a 6-year-old Seattle girl called Ashley, who had severe disabilities, was, at her parents' request, given a medical treatment called "growth attenuation" to prevent her growing. -
Walpole Public Library DVD List A
Walpole Public Library DVD List [Items purchased to present*] Last updated: 9/17/2021 INDEX Note: List does not reflect items lost or removed from collection A B C D E F G H I J K L M N O P Q R S T U V W X Y Z Nonfiction A A A place in the sun AAL Aaltra AAR Aardvark The best of Bud Abbot and Lou Costello : the Franchise Collection, ABB V.1 vol.1 The best of Bud Abbot and Lou Costello : the Franchise Collection, ABB V.2 vol.2 The best of Bud Abbot and Lou Costello : the Franchise Collection, ABB V.3 vol.3 The best of Bud Abbot and Lou Costello : the Franchise Collection, ABB V.4 vol.4 ABE Aberdeen ABO About a boy ABO About Elly ABO About Schmidt ABO About time ABO Above the rim ABR Abraham Lincoln vampire hunter ABS Absolutely anything ABS Absolutely fabulous : the movie ACC Acceptable risk ACC Accepted ACC Accountant, The ACC SER. Accused : series 1 & 2 1 & 2 ACE Ace in the hole ACE Ace Ventura pet detective ACR Across the universe ACT Act of valor ACT Acts of vengeance ADA Adam's apples ADA Adams chronicles, The ADA Adam ADA Adam’s Rib ADA Adaptation ADA Ad Astra ADJ Adjustment Bureau, The *does not reflect missing materials or those being mended Walpole Public Library DVD List [Items purchased to present*] ADM Admission ADO Adopt a highway ADR Adrift ADU Adult world ADV Adventure of Sherlock Holmes’ smarter brother, The ADV The adventures of Baron Munchausen ADV Adverse AEO Aeon Flux AFF SEAS.1 Affair, The : season 1 AFF SEAS.2 Affair, The : season 2 AFF SEAS.3 Affair, The : season 3 AFF SEAS.4 Affair, The : season 4 AFF SEAS.5 Affair, -
Supporting Neurodiverse Students on Campus and Beyond
Supporting Neurodiverse Students on Campus and Beyond Eric R. Mitchell, PhD [email protected] [email protected] Amy D. Edwards, Ed.D. [email protected] with Drexel Students Armon Owlia, Robert Barton, and Morgan Murtagh 4th Annual Philadelphia Autism Project Conference “Journey through the Lifespan: Mapping Your Path” In collaboration with Ruttenberg Autism Center and Drexel University October 18, 2019 Objectives: Statistics on the low rates of college success and under-employment for individuals diagnosed on the spectrum are staggering. Developing programs that individualize supports for students are essential for successful transitions. This workshop will explore components of successful transition planning starting at 14 years of age under IDEA, continuing through the college years with ADA accommodations, and preparing graduates for success in vocational settings in the workplace. Ruttenberg Autism Center and Drexel’s DASP program have supported such success, and will discuss with students how these supports have promoted their own educational and vocational trajectories toward a more successful future. Describe components of transition planning that predict success in college and work settings. Identify how colleges can successfully assist neurodiverse students to overcome challenges. Summarize how a local university and service provider are collaborating to address the increasing need for autism accommodations in higher education, leading to success in the workplace. Your Questions….Answered! o On the index card, please write a question you would like answered in this presentation o We will incorporate those answers as we talk! What is Neurodiversity? - Definition - Neurodiversity is a concept where neurological differences are recognized and respected just as any other difference. -
Autistic Adult and Non-Autistic Parent Advocates: Bridging the Divide
AUTHORS' VERSION Rottier, H. & Gernsbacher, M. A. (2020). Autistic adult and non-autistic parent advocates: Bridging the divide. In. A. C. Carey, J. M., Ostrove, & T. Fannon (Eds.) Disability alliances and allies (Research in social science and disability, Vol. 12, pp. 155-166). Emerald Publishing Limited. https://doi.org/10.1108/S1479-354720200000012011 Chapter 7 AUTISTIC ADULT AND NON-AUTISTIC PARENT ADVOCATES: BRIDGING THE DIVIDE Helen Rottier and Morton Ann Gernsbacher ABSTRACT Purpose: Due to the developmental nature of autism, which is often diagnosed in preschool or elementary school-aged children, non-autistic parents of autistic children typically play a prominent role in autism advocacy. How- ever, as autistic children become adults and adult diagnoses of autism continue to rise, autistic adults have played a more prominent role in advo- cacy. The purpose of this chapter is to explore the histories of adult and non-autistic parent advocacy in the United States and to examine the points of divergence and convergence. Approach: Because of their different perspectives and experiences, advocacy by autistic adults and non-autistic parents can have distinctive goals and conflicting priorities. Therefore, the approach we take in the current chapter is a collaboration between an autistic adult and a non-autistic parent, both of whom are research scholars. Findings: The authors explore the divergence of goals and discourse between autistic self-advocates and non-autistic parent advocates and offer three principles for building future -
What About… Autism Spectrum Disorder
Special Needs J Biography The One and Only Sam: A Story Explaining Idioms Temple Grandin: How the Girl who Loved Cows Special Needs Picture Books The Red Beast: Controlling Anger in Children with for Children with Asperger Syndrome or Other Embraced Autism and Changed the World/ Sy Communication Difficulties/ Aileen Stalker 2010 Montgomery 2012 Asperger’s Syndrome/ K. Al-Ghani 2009 SPECIAL NEEDS E ALG SPECIAL NEEDS E STA SPECIAL NEEDS J BIO GRANDIN What About… Autistic Planet/ Jennifer Why does Izzy Cover her Ears?: Dealing with Sensory Special Needs DVD Overload/ Jennifer Veenendall 2009 Autism Elder 2007 Embracing Play: Teaching the SPECIAL NEEDS E ELD SPECIAL NEEDS E VEE Child with Autism 2006 SPECIAL NEEDS DVD EMBR Spectrum Looking After Louis/ Lesley I have Autism, I am Awesome/ Meredith Zolty 2011 Ely 2004 SPECIAL NEEDS E ZOL Living Along the Autism Disorder SPECIAL NEEDS E ELY Spectrum: 2009 Special Needs J/Y Fiction SPECIAL NEEDS DVD LIVI Who Took My Shoe?/ Karen Emigh 2003 Anything but Typical/ Nora Raleigh Baskin 2009 SPECIAL NEEDS E EMI SPECIAL NEEDS J FICTION BAS Managing Puberty, Social Challenges and Almost A-U-T-I-S-T-I-C?: How Silly is that?: I Don’t Need Jackson Whole Wyoming/ Joan Clark 2005 Everything 2013 Any Labels at All/ Lynda Farrington Wilson 2012 SPECIAL NEEDS J FICTION CLA SPECIAL NEEDS DVD MANA SPECIAL NEEDS E FAR Mockingbird: Mok’ing-bûrd/ Kathryn Erskine 2010 Model Me Friendship: For Children with Autism, Playing by the Rules: a Story about Autism/ Dena SPECIAL NEEDS J FIC ERS Asperger Syndrome, PDD-NOS, Nonverbal Learning Fox Luchsinger 2007 Disorders, Social Anxiety, Learning Disabilities and SPECIAL NEEDS E LUC The Boy Who Ate Stars/ Kochka Delays 2007 2006 SPECIAL NEEDS DVD MODE My Brother is Autistic/ Jennifer Moore-Mallinos 2008 SPECIAL NEEDS J FICTION KOC SPECIAL NEEDS E MOO Time for a Playdate 2005 Rules/ Cynthia Lord 2006 SPECIAL NEEDS DVD MODE David’s World : a Picture Book about Living with SPECIAL NEEDS J FIC LOR Autism/ Dagmar H.