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Download The POSITIVELY AWARE HIV TREATMENT, PREVENTION AND HEALTH FROM TPAN MAY+JUNE 2021 THE AIDS AT 40 FORGOTTEN A MATTER OF JUSTICE VACCINE NATIONALISM GENERATION IS KILLING US Cameron Siemers, 39, diagnosed with HIV at age seven resulting from a blood factor he received to treat his hemophilia, CONFERENCE UPDATE is among a generation of younger, long-term survivors VIRTUAL CROI 2021 NOT HAVING AS MUCH SEX? YOU’RE NOT ALONE POSITIVELY AWARE JEFF BERRY EDITOR-IN-CHIEF @PAeditor ENID VÁZQUEZ ASSOCIATE EDITOR @enidvazquezpa ANDREW REYNOLDS HEPATITIS C EDITOR @AndrewKnowsHepC RICK GUASCO CREATIVE DIRECTOR @rickguasco SCOTT SCHOETTES LEGAL COLUMNIST @PozAdvocate PROOFREADER JASON LANCASTER PHOTOGRAPHERS HABEEB MUKASA DAVID FRANCO JOHN GRESS CHRIS KNIGHT ADVERTISING MANAGER LORRAINE HAYES [email protected] DISTRIBUTION MANAGER DENISE CROUCH [email protected] SUBSCRIBE OR ORDER COPIES positivelyaware.com/subscribe LIVE LIFE POSITIVELY AWARE. FOR OVER 30 YEARS, PUBLISHED BY 5537 N. BROADWAY CHICAGO, IL 60640-1405 (773) 989-9400 FAX: (773) 989-9494 [email protected] positivelyaware.com @PosAware TPAN was founded in 1987 in Chicago as Test Positive Aware Network, when 17 individuals living with HIV gathered in a living room to share information and support in response to the HIV/AIDS epidemic. POSITIVELY AWARE is the expression of TPAN’s mission to share accurate, reliable, and timely treatment information with anyone affected by HIV. BE GREEN. SHARE OR RECYCLE THIS MAGAZINE. 2 MAY+JUNE 2021 | POSITIVELYAWARE.COM/SUBSCRIBE MAY+JUNE 2021 POSITIVELY AWARE • VOLUME 31 NUMBER 4 • positivelyaware.com • @posaware EVERY ISSUE THIS ISSUE CONFERENCE UPDATE VIRTUAL CROI 2021 5 12 EDITOR’S NOTE Neurocognitive impariment 24 The flip side of aging. in people living with HIV First HIV and now COVID-19 What you can do The president of the largest to stay sharp. historically Black academic 6 BY JOSH MATACOTTA, health center lays out BRIEFLY PSYD, CAHIMS the pandemic’s effects An injectable HIV treatment on different populations. that’s administered every two COMPILED BY ENID VÁZQUEZ months? Long-acting regimen 14 in development: islatravir The dawn of AIDS in 1981 and lenacapavir. The Lancet’s Forty years later, AIDS is 26 call to action for ending past, present, and future. Vaccine nationalism the HIV epidemic. DHHS BY MICHAEL BRODER is killing us updates its HIV and COVID-19 How inequities in research recommendations. and access to SARS-CoV-2 20 vaccines will perpetuate The forgotten generation the pandemic. 38 Young long-term survivors BY JEFF BERRY POZ ADVOCATE are often overlooked. Spring to summer to sex BY ENID VÁZQUEZ (with or without disclosure) PHOTOGRAPHY BY 29 BY SCOTT SCHOETTES DAVID FRANCO Some take-home messages from CROI COVID hospitalization, on- 40 35 demand PrEP with Truvada POSITIVELY AGING A matter of justice just as good as the daily pill, Not having as much sex? POSITIVELY AWARE webinar and more. You’re not alone shines a light on health BY ENID VÁZQUEZ BY MARK S. KING inequities among PLHIV during COVID-19. BY RICK GUASCO 30 41 Pregnancy update plus BEING BRIDGETTE HIV therapy for children Too young to be this old 42 A round-up of CROI reports. BY BRIDGETTE PICOU Looking deeper to dispel BY ENID VÁZQUEZ stigma and fear A Q&A with Anne Aslett, 44 CEO of the Elton John AIDS 32 FRONT COVER BACKSTORY Foundation. Highlights from CROI’s Symbol of longevity INTERVIEW BY JEFF BERRY Community HIV Cure BY RICK GUASCO Research Workshop A dialogue between biomedical HIV cure researchers and community members fosters deeper understanding of the science behind the search for an HIV cure. BY KARINE DUBÉ AND MICHAEL LOUELLA ON THIS SPREAD AND ON THE COVER CAMERON SIEMERS, PHOTOGRAPHED BY DAVID FRANCO POSITIVELYAWARE.COM/SUBSCRIBE | MAY+JUNE 2021 3 A new ‘Day’ springs forth THE EQUINOX only happens twice a year, when day and night are of equal length. It marks the changing of the season; in some ancient cultures, the equinox also signifies a change in thinking. For this reason, A Day with HIV, POSITIVELY AWARE’s anti-stigma campaign, has taken place on the autumnal equinox in September since 2010. This year, a new springtime version was added, coinciding with the vernal equinox. On March 20, people captured a moment of the first day of spring in pictures, and shared on social media how they are affected by HIV using the hashtag #adaywithhiv. Here’s a sampling: 10:00 AM: SAN JUAN, PUERTO RICO > JOIN IN THE “Esta semana me visitó una de mis parejas CONVERSATION sexuales y uno de mis mejores amigos para [email protected] hacerse las pruebas. El VIH se puede prevenir. ¿Te envío una prueba a ti también? @posaware Déjame saber.” POSITIVELY AWARE “This week one of my 5537 N. sexual partners and BROADWAY one of my best friends visited me to get tested. CHICAGO, IL HIV can be prevented. 60640-1405 Should I send you a test, too? Let me know.” ALL LETTERS, —Andres EMAIL, ONLINE POSTS, ETC. 2:30 PM: BALTIMORE, are treated as MARYLAND >> letters to the “Living with HIV has editor unless inspired me to become otherwise a warrior, so that I can instructed. help educate people and help get rid of the We reserve the toxic myths associated right to edit for with HIV.” —Nairobia length, style, or clarity. Let 5:29 PM: WINSTON-SALEM, us know if you NORTH CAROLINA > prefer not to have “Today I feel peaceful, your name or city accomplished, and mentioned. overall happy. Effects of inflammation from HIV and the many autoimmune issues GET YOUR that come with it are SUBSCRIPTION starting to make some OR ORDER days difficult, BULK COPIES but I will prevail!” —Nicole Elizabeth Dye 10:48 PM: LONGMONT, COLORADO >> “It just so happens that I received my first COVID-19 vaccine shot today! HIV was not considered a serious second pre-existing SCAN THIS QR CODE condition until the with your smart- fifth round in Colorado, phone, or go to but it is now. Take care positivelyaware. and get your vaccine! com/subscribe Thank you Out Boulder County for your vaccine initiative! — Andrew Espinosa A Day with HIV returns Wednesday, September 22, 2021. ©2021 POSITIVELY AWARE (ISSN: 1523-2883) is published bi-monthly by Test Positive Aware Network (TPAN), 5537 N. Broadway, Chicago, IL 60640. TPAN is an Illinois not-for-profit corporation, providing information and support to anyone concerned with HIV and AIDS issues. POSITIVELY AWARE is a registered trademark of TPAN. All rights reserved. Readership: 100,000. For reprint permission, email [email protected]. Six issues mailed bulk rate for $30 donation; mailed free to those living with HIV or those unable to contribute. We accept submission of articles covering medical or personal aspects of HIV/AIDS, and reserve the right to edit or decline submitted articles. When published, the articles become the property of TPAN, POSITIVELY AWARE, and its assigns. You may use your actual name or a pseudonym for publication, but include your name, email address, and phone number with your story. Although POSITIVELY AWARE takes great care to ensure the accuracy of all the information it presents, POSITIVELY AWARE staff and volunteers, TPAN, and the institutions and personnel who provide us with information cannot be held responsible for any damages, direct or consequential, that arise from use of this material or due to errors contained herein. Opinions expressed in POSITIVELY AWARE are not necessarily those of staff or TPAN, its supporters and sponsors, or distributing agencies. Information, resources, and advertising in POSITIVELY AWARE do not constitute endorsement or recommendation of any medical treatment or product. TPAN recommends that all medical treatments or products be discussed thoroughly and frankly with a licensed and fully HIV-informed medical practitioner, preferably a personal physician. A model, photographer, or author’s HIV status should not be assumed based on their appearance in POSITIVELY AWARE, association with TPAN, or contributions to this journal. 4 MAY+JUNE 2021 | POSITIVELYAWARE.COM/SUBSCRIBE EDITOR’S NOTE JEFF BERRY @PAeditor The flip side of aging This year marks 40 years since the first cases of pneumonia were reported in five gay men in Los Angeles, all of whom later died. That same year we also heard about Kaposi sarcoma, then known as the “gay cancer,” being reported in gay men. This is the story we’ve all come to know as the by Bridgette Picou about living and thriving with HIV beginning of the AIDS epidemic (see page 14). But as a woman of color. years earlier in 1968, Robert Rayford, a 15-year-old Like HIV, we’re now in the midst of another pan- African American male, presented with a strange demic that has forever altered our world. And yet series of infections that baffled doctors in St. Louis. many things remain the same, for better or worse. Three months after his 16th birthday in 1969, he died Institutional racism, White supremacy, the killing of of pneumonia. An autopsy revealed that Rayford had innocent Black and Brown people at the hands of Kaposi sarcoma lesions within and throughout his those sworn to serve and protect us—I often think, body, and thankfully tissue samples were preserved “it’s overwhelming,” but then stop myself. I mean, if In this issue, by the treating physician, knowing that one day they it’s overwhelming for me… And as a white cis man, do you will read might prove useful. I even have a right to say I’m overwhelmed? According to a Washington Post article in 2019, “In And then I read in The New York Times Magazine about some time, the case of a poor young African American who about an outbreak of pediatric HIV, “The City Losing of the younger apparently never left the Midwest would add a sur- Its Children to HIV,” by Helen Ouyang.
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