Barriers Beyond the Clutter: Co-Morbid Issues Complicating Hoarding Disorder Interventions Elspeth Bell, Ph.D. Disclosures

I have nothing to disclose. Objectives

 Identify three common psychiatric diagnoses that are often seen in individuals who exhibit hoarding behaviors

 Describe why individuals with HD may be more susceptible to chaotic environments

 Discuss three strategies for addressing barriers to treating HD Hoarding Disorder: DSM-V Criteria

 Persistent difficulty discarding or parting with personal possessions, even those of apparently useless or limited value, due to strong urges to save items, distress, and/or indecision associated with discarding.

 The symptoms result in the accumulation of a large number of possessions that fill up and clutter the active living areas of the home, workplace, or other personal surroundings (e.g., office, vehicle, yard) and prevent normal use of the space. If all living areas are uncluttered, it is only because of others’ efforts (e.g., family members, authorities) to keep these areas free of possessions. Hoarding Disorder: DSM-V Specifiers

 Specify if with Excessive Acquisition  If symptoms are accompanied by excessive collecting or buying or stealing of items that are not needed or for which there is no available space.  Specify whether hoarding beliefs and behaviors are currently characterized by:  Good or fair insight: Recognizes that hoarding-related beliefs and behaviors (pertaining to difficulty discarding items, clutter, or excessive acquisition) are problematic.  Poor insight: Mostly convinced that hoarding-related beliefs and behaviors (pertaining to difficulty discarding items, clutter, or excessive acquisition) are not problematic despite evidence to the contrary.  Delusional: Completely convinced that hoarding-related beliefs and behaviors (pertaining to difficulty discarding items, clutter, or excessive acquisition) are not problematic despite evidence to the contrary. Co-Morbid Psychiatric Diagnoses

 Major Depression (57%)

 Social Phobia (29%)

 Generalized Anxiety Disorder (28%)

 Obsessive Compulsive Disorder (17%)

 Attention Deficit Hyperactivity Disorder (ADHD) (16%)

 Specific Phobia (12%)

 Post-Traumatic Stress Disorder (6%)

 Dysthymia (4%)

 Panic (2%)

Frost, Steketee, Tolin, & Brown, 2006; Hall, Tolin, Frost, & Steketee, 2013 Psychiatric Diagnoses Impact on HD  Exacerbating worries about life and consequences  Restricted social supports  Difficulty allowing others access to home  Seen as resisting help  Fear of making mistakes  Management of physical space inhibited by obsessions and compulsions  Seeking reassurance from others about decisions/choices  Distractability and difficulty focusing  Poor time management and planning Psychiatric Diagnoses Treatment Interventions

 Cognitive Behavior Therapy (CBT)  Exposure/Response Prevention (E/RP)  Cognitive Reframing

 Medications

 Coaches and Assistants

 Structuring and scheduling

 Building decision-making skills Personality Variables

 Sensitivity to criticism

 Anger

 Feeling overwhelmed

 Difficulty managing emotions Personality Variables Impact on HD

 Feeling (unjustly) criticized by others

 Dismissive of others’ concerns regarding clutter

 Defensive reactions

 Procrastination/Avoidance

 Paralyzed to undertake any interventions

 Resistant to listen to treatment recommendations Personality Variables Treatment Interventions

 Cognitive Behavior Therapy (CBT)  Cognitive Reframing  Challenging distorted thoughts

 Anger management

 Building frustration tolerance

 Structuring activities into small, discrete steps

 Coaching family regarding interactions

 Providing concrete feedback regarding behaviors Health and Medical Concerns

 Obesity  Higher Body Mass Index (BMI)

 Diabetes

 Arthritis

 Joint problems

 High blood pressure

 Asthma Health and Medical Concerns Impact on HD

 Limited strength/endurance

 Multiple medical appointments

 Exacerbating psychiatric diagnoses Health and Medical Concerns Treatment Interventions

 Assess the extent of the health issues

 Determine impact of environment on health

 Assess appropriateness of living environment

 Connecting decluttering efforts with caring for physical well- being

 Structuring decluttering efforts to ease health and medical concerns Other Barriers

 Financial Challenges  Debt  Non-payment of bills, taxes  Poor follow-through with financial obligations  Living Arrangements  Home falling into disrepair  Unsafe physical environment  Interpersonal Factors  Hostility  Rejection  Resentment  Hoarding Other Barriers Impact on HD

 Financial  Problems with meeting obligations  Inability to afford services  Pressure to keep valued items or sell for profit

 Living Arrangements  Tensions with landlord  Deadlines for removing clutter  Threat of eviction

 Interpersonal  Isolation  Threats from members of the community  Guilt/Blame/Responsibility  Enabling behaviors Other Barriers Treatment Interventions

 Financial  Budgeting (with family involvement as possible)  Automating bill payment  Involving financial planners, accountants

 Living Arrangements  Education of landlords, housing officials  Developing housing contracts with involved parties

 Interpersonal  Family education and therapy (as possible)  Connecting with community resources for socialization General Goals of Clutter-Related Interventions

For the Physical Space: For the Individual: • Increase usable living space • Address related medical and • Reduce risks to health and mental health symptoms safety • Develop skills and alternative • Declutter living spaces behaviors • Store kept possessions in • Establish functional support systematic way network • Reduce excessive acquisition • On-going services • Relapse prevention

How do barriers interfere with these goals? Resources

 Group Treatment for Hoarding Disorder  Muroff, Underwood, and Steketee

 Treatment for Hoarding Disorder: Therapist Guide and Workbook  Steketee and Frost

 The Hoarding Handbook  Bratiotis, Schmalisch, and Steketee

 Digging Out  Tompkins and Hartl Thank You! Elspeth Bell, Ph.D.

5850 , Suite 140 Columbia, MD 21045

(410) 480-8052

[email protected] www.elspethbellphd.com