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Final Roadmap: March 2015 2 Final Roadmap: March 2015 2 Photo: ©Fotolia Grant agreement no. 282586 ROAMER: A roadmap for mental health research in Europe Coordination and Support Action Objective THEME [HEALTH.2011.3.3-4] Roadmap for Mental Health and Well-being Research in Europe Deliverable reference number and title: D11.4 Due date of deliverable: month 42 Actual submission date: 27/05/2015 Start date of project: October the 1st 2011 Duration: 42 months 2UJDQLVDWLRQQDPHRIOHDGEHQH¿FLDU\IRUWKLVGHOLYHUDEOH KCL - IOPPN / UNIMAN AUTHORS Prof. Til Wykes / Dr. Stefano Belli / Prof. Shôn Lewis (WP11) CIBERSAM-PSSJD Dr. Josep Maria Haro, Dr. Carla Obradors Tarragó (COORD) APPROVAL KCL - IOPPN / UNIMAN WORK-PACKAGE LEADER Prof. Til Wykes (WP11) CIBERSAM-PSSJD PROJECT COORDINATOR Dr. Josep Maria Haro (COORD) AUTHORISATION EUROPEAN PROJECT OFFICER Barbara Kerstiens COMMISSION Project co-funded by the European Commission within the Seventh Framework Programme (2007-2013) Dissemination Level(Please choose) PU Public X PP Restricted to other programme participants (including the Commission Services) RE 5HVWULFWHGWRDJURXSVSHFL¿HGE\WKHFRQVRUWLXP LQFOXGLQJWKH&RPPLVVLRQ6HUYLFHV CO &RQ¿GHQWLDORQO\IRUPHPEHUVRIWKHFRQVRUWLXP LQFOXGLQJWKH&RPPLVVLRQ6HUYLFHV Contents Contents ................................................................... 4 Partners.................................................................... 6 Executive Summary ......................................................... 8 1.Introduction ............................................................. 11 Structure and Approach of the Roadmap ................................. 12 Impact............................................................... 13 Relevance ............................................................ 19 European Competitive Advantage in Mental Health........................ 21 Summary ............................................................ 25 2. ROAMER List of Priorities for Mental Health and Well-Being Research.......... 26 A. Supporting Mental Health for All ..................................... 27 B. Responding to Societal Values and Issues............................... 27 C. Life Course Perspective of Mental Health Problems...................... 28 D. Research Towards Personalised Care .................................. 28 E. Building Research Capacities ......................................... 29 3. High Level Priorities for Policy Action ...................................... 30 Justi!cations and Relevance of High-Level Priorities for Policy Action ........ 30 4. ROAMER Method ....................................................... 37 ROAMER Overview ................................................... 37 ROAMER Process..................................................... 39 5. ROAMER State-of-the-art in Mental Health Research ......................... 44 A. Supporting Mental Health for All ..................................... 44 B. Responding to Societal Values & Issues ................................ 47 C. Life Course Perspective of Mental Health .............................. 49 D. Research Towards Personalised Care .................................. 52 E. Building Research Capacities ......................................... 56 4 FP7/2007-2013/num. 282586 6. ROAMER Gaps (and Advances Needed) in Mental Health Research........................59 A. Supporting Mental Health For All................................................59 B. Responding to Societal Values and Issues..........................................63 C. Life Course Perspective of Mental Health Problems.................................66 D. Stronger Research Focus, Towards Personalised Care ...............................69 E. Building Research Capacities ....................................................72 7. Conclusion .........................................................................77 References............................................................................79 ROAMER Consortium.................................................................92 ROAMER Advisory Boards .............................................................93 Appendix I – Glossary .................................................................95 Abbreviations/Acronyms .........................................................105 Appendix II – Full List of Priorities Generated by Each Work Package .......................107 Appendix III – ROAMER Justi!cations for Mental Health and Well-Being 133 Priorities in Europe...................................................................133 Appendix IV – Systematic Multidisciplinary Literature Mapping ............................159 Appendix V – Work Package Participants................................................173 Appendix VI – ROAMER Prioritisation Survey...........................................183 Appendix VII – List of ROAMER Publications ...........................................190 5 Partners Coordinator Consorcio CIBER para el área temática de salud mental (CIBERSAM) Other partners France Institut National de la Santé et de la Recherche Médicale / European Fondation FondaMental Clinical Research Infrastructures Network (INSERM/ECRIN) Germany Technische Universität Dresden (TUD) Zentralinstitut für Seelische Gesundheit (CIMH) Hungary Italy Semmelweis Egyetem (SE) Seconda Università degli Studi di Napoli (SUN) CF Consulting S.R.L (CFc) Netherlands Nordic Countries Universiteit Maastricht (MUMC) Nordiska Högskolan för Folkhälsovetenskap (NHV) Spain Hospital Gral. Universitario Gregorio Marañón Parc Sanitari Sant Joan de Déu (PSSJD) Universidad Autónoma de Madrid (UAM) United Kingdom London School of Economics "e University of Manchester "e Chancellor, Masters and Scholars of King’s College London (KCL) and Political Science (LSE) (UNIMAN) the University of Cambridge (UCAM) 6 ROAMER: A Roadmap for Mental Health and Well-being Research in Europe Measuring quality across health services and Using systems economics to Investigating Applying safe, Prevention, measure wider socio- innovative protective intervention economic and efective Supporting factors and efficacy outcomes interventions Mental resilience Addressing Health For Societal Values All and Issues Finding how How service Effects of Reducing access to users and carers inequality on mental health services can be can be mental health stigma improved empowered and well-being Sharing findings and databases Involving Building Maintaining stakeholders Research interdisciplinary in research research Capacities networks Building Longitudinal a strong and cohort empirical datasets and research base studies Mechanisms of Improving psychological diagnostic disorders strategies Taking a life Towards Course Personalised Perspective care The Risk factors Mechanisms development Standardising and outcomes and preventions of symptoms in childhood and treatment of across the evaluations comorbidity adolescence lifespan Executive Summary Mental Health and Well-being in Europe 0HQWDOGLVRUGHUVSODFHLPPHQVHEXUGHQVRQLQGLYLGXDOVWKHLUIDPLOLHVDQGVRFLHW\. This bur- den is increasing in Europe, especially when compared to the relative burden of physical health problems. The cost of mental disorders in Europe is estimated as €461 billion per year and is predicted to rise. Mental health research can help to resolve these burdens. However, funding for mental health re- search in Europe is much lower than the population impact of mental disorders, with spending being less than half the disability burden. Mental disorders represent between 11% and 27% of total disease burden, while investment across countries and FP7 is about 6%. Nonetheless, there is evidence of a large re- turn on investment – for every one euro spent on mental health research there is a 0.37 euro return per year, which is similar to the return for cardiovascular disorder research and other areas of health. :K\(XURSH" Europe is home to some of the world’s best mental healthcare and research centres. Eu- rope’s diverse and comprehensive health systems also produce rich and representative datasets not available elsewhere in the world. European research networks are gaining momentum, and a coordinated strategy for mental health will help to realise the EU’s full research potential. ROAMER (ROAdmap for MEntal health and Well-being Research in Europe) has developed a comprehen- sive and integrated mental health research roadmap, focused on improving the mental health of the population and increasing European competitiveness. ROAMER analysed existing resources in European regions, and involved input from over 1000 individuals and stakeholder organisations. Evidence- based recommendations were prioritised through iterative feedback, consensus meetings, international advisory boards and surveys of researchers, experts and wider stakeholders in Europe. ROAMER designed research priorities to take advantage of Europe’s existing infrastructures and research strengths and to address timely challenges in European society. The answers to these research questions can guide European policy, mental health service provision and treatments. This will also provide the highest return on research investment, improve the lives people with mental health problems and their families, and increase European productivity. 8 FP7/2007-2013/num. 282586 ROAMER Aims and Approaches ROAMER reviewed and summarised the excellent European mental health research landscape, and its rec- ommendations will shape the direction of future research. ROAMER’s three guiding principles are: 7RSURYLGHJXLGDQFHIRUPHQWDOKHDOWKUHVHDUFKDFURVV(XURSH
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