children Review Redefining the Relationship: Palliative Care in Critical Perinatal and Neonatal Cardiac Patients Natasha S. Afonso 1, Margaret R. Ninemire 1, Sharada H. Gowda 2, Jaime L. Jump 1,3, Regina L. Lantin-Hermoso 4, Karen E. Johnson 2, Kriti Puri 1, Kyle D. Hope 4, Erin Kritz 1, Barbara-Jo Achuff 1, Lindsey Gurganious 3 and Priya N. Bhat 1,* 1 Sections of Critical Care Medicine and Cardiology, Department of Pediatrics, Texas Children’s Hospital and Baylor College of Medicine, Houston, TX 77030, USA;
[email protected] (N.S.A.);
[email protected] (M.R.N.);
[email protected] (J.L.J.);
[email protected] (K.P.);
[email protected] (E.K.);
[email protected] (B.-J.A.) 2 Section of Neonatology, Department of Pediatrics, Texas Children’s Hospital and Baylor College of Medicine, Houston, TX 77030, USA;
[email protected] (S.H.G.);
[email protected] (K.E.J.) 3 Section of Palliative Care Medicine, Department of Pediatrics, Texas Children’s Hospital and Baylor College of Medicine, Houston, TX 77030, USA;
[email protected] 4 Section of Cardiology, Department of Pediatrics, Texas Children’s Hospital and Baylor College of Medicine, Houston, TX 77030, USA;
[email protected] (R.L.L.-H.);
[email protected] (K.D.H.) * Correspondence:
[email protected]; Tel.: +1-832-826-6230; Fax: +1-832-825-4252 Abstract: Patients with perinatal and neonatal congenital heart disease (CHD) represent a unique population with higher morbidity and mortality compared to other neonatal patient groups. Despite Citation: Afonso, N.S.; Ninemire, an overall improvement in long-term survival, they often require chronic care of complex medical M.R.; Gowda, S.H.; Jump, J.L.; illnesses after hospital discharge, placing a high burden of responsibility on their families.