Sickle cell disease is an inherited blood disorder. People with sickle cell disease have red blood cells that become hard which can cause Say It Loud! anemia, pain and many other seri- ous health problems. Your involve- ment makes the difference in over- coming this disease. December 2012 V o l u m e 3 Sickle Cell News You Can U s e I s s u e 1 2 The Sickle Cell Association of New J e r s e y

Our Holiday Gift To You... Calendar Listings Holiday Party at the Van Vleck House available resources and others in the in Montclair. At this joyous occasion, we fight against sickle cell disease. And you December December will honor organizations and individuals are invited! 3rd Bowl with NY Jets Santonio 8th... who have done outstanding work in the Holmes. Monday, 7 PM in Linden. Here’s a shout out of thanks to Santonio fight against sickle cell disease with the Wait list only or buy tickets via Third Holmes' Third and Long Foundation, the Dr. Charles F. Whitten Awards. National Organization of Black Law Exec- and Long Foundation New Jersey Sickle Cell Poster Child, utives North NJ Chapter (NOBLENNJ), 8th SCANJ Breakfast With Santa at Jimmy Williams, will be on hand to help Cooper Hospital, Embrace Kids Founda- Applebees Saturday, 8:30AM Newark Mary Bentley LaMar present the awards. In addition, at- tion and the Central & Northern New (RSVP closed. Wait list only) SCANJ Mission tendees will enjoy festive games, caroling, Jersey Sickle Cell Network/Newark Bar- To advocate for and enhance our mem- nabas Health. Their funding and toy drive 8th SCANJ’s December Holiday Toyland, delicious food, gifts for young bership’s ability to improve the quality of support contributes greatly to the suc- Party (North) with Kente Klaus and health, life and services for individuals, and old, and a special appearance by "Kenta Klaus...Santa's brother from anoth- cess of our Holiday Program. the Dr. Charles F. Whitten Awards - families and communities affected by Saturday, 3PM-5PM Van Vleck Man- sickle cell disease and related conditions, er mother." The parties are free for families affected sion 21 Van Vleck St. Montclair. while promoting the search for a cure for We’ll keep this sleigh moving throughout by sickle cell disease, however, capacity Free for families with SCD. RSVP all people in the world with sickle cell New Jersey with the Holiday Party is limited. RSVP via eventbrite.com or required disease (South) in Cherry Hill on December 13th give us a call at 973 482-9070. This year, SCANJ’s Holiday Party 13th SCANJ Holiday Party (South) and the Holiday Party (Central) on Warmest Regards... Program expands statewide. We’ll with Kenta Klaus Thursday 6:00PM- December 22nd in Howell (Pg.2). What I ~Mary kick off festivities Saturday, De- 8:00 PM Garden State Discovery value most about the Holiday Program is th rd Children's Museum. 2040 Springdale cember 8 , with the 3 Annual the opportunity for families to connect with Ave in Cherry Hill. Free. 2012 Dr. Charles F. Whitten 22nd Holiday Party (Central) 2012...a Very Good Year! Award Honorees: In cooperation with the Central and Northern NJ SCD Network A “first” for SCANJ was providing a live  Expanding the December Holiday Dr. Lori Colyer-Aversa (CNNJSCN)/Newark's Barnabas video stream of the 24 Seven Line Dance Party Program (SCANJ’s Holiday Outstanding Service by a Health. Marathon. This capability allowed us to Program with support from Santo- Health Care Professional

increase outreach and have live cover- nio Holmes Third & Long Founda- Mrs. Joyce Jones SCD families may attend any of the age of our event by NBC TV during their tion, CNNJSCN/Barnabas Health, three holiday parties, regardless of In broadcast. Outstanding Advocacy Cooper Hospital, NOBLENNJ & location. RSVP via eventbrite.com Perhaps you saw us being interviewed by Embrace Kids Foundation) Ms. Margaret Hadnott or call 973 482-9070 for SCANJ news anchor, Pat Battle, on Saturday,  Presenting at the SCDAA national Outstanding Volunteer of programs. October 20th. convention The Year January That live stream broadcast was arranged  Presenting at the Florida Sickle The 107.5 WBLS Radio Take Control of Your Health Work- by the great team at New Jersey City Cell Annual Scientific Meeting Outstanding Media Coverage of shops resume. Details TBA University’s (NJCU) Office of Community  Being selected as an advocate to Sickle Cell Disease Service. We had a challenge and thanks attend the American College of The Sickle Cell Association of to Rob Quinones, and his colleagues at Medical Genetics Annual Meeting National Organization of New Jersey NJCU, they figured it out . Black Law Executives North is the  Creating awareness PSA’s and NJ Chapter (NOBLENNJ) New Jersey Chapter of the Other “firsts” for SCANJ include: Spanish language educational Outstanding Community Service  Becoming the state chapter of the materials. (SCANJ’s Say It Loud! Outreach Program with support SCDAA. Remember the from NYMAC)  Being recognized for having the Sickle Cell Association of You may notice a common thread… most attendees at the SCDAA New Jersey convention (SCANJ’s Road Trip we’re accomplishing things with the support of others. We can accomplish for your end of the year giving. Program) even more with your involvement. Per- Sickle Cell Disease  Being granted office space courtesy Association of America haps you could volunteer...make a dona- of Shiloh Baptist Church in Newark tion or share something you’ve learned. (SCANJ’s Sickle Cell Sabbath And that will help us live up to our motto; Turn for Page 2... Program) “SCANJ equals faith with good works...” Holiday Party Program...

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52000 to donate $10.00 to support programs, services and research, that help the SCANJ in the fight against sickle cell disease.

Your donation makes a difference. Please text now! A one-time donation of $10.00 will be added to your mobile phone bill or deducted from your prepaid balance. Donor must be age 18+ and all donations must be authorized by the account holder (e.g. parents). By texting YES, the user agrees to the terms and conditions. All charges are billed by and payable to your mobile service provider. Service is available on most carriers. Donations are collected for the benefit of the Sickle Cell Disease Association of America and it’s member chapters (including the Sickle Cell Association of New Jersey) by the Mobile Giving Foundation and subject to the terms found at www.hmgf.org/t. Message & Data Rates May Apply. You can unsubscribe at anytime by texting STOP to short code 52000; text HELP to 52000 for help. www.sicklecellnewjersey.org For the latest visit our website home page “SCANJ News”-events calendar or Phone: 973 482-9070 Fax: 973 485-6591 SCANJ PO Box 9501 Newark, New Jersey 07104 e-mail: [email protected]

2012 Pictorial End of The Year Report

And on December 22nd-CNNJSCN Holiday Bowling Party in Howell.

The “Say It Loud” newsletter is published monthly with the exception of the Summer Breeze Edition. Archived copies can be downloaded from our website resource page. —Beverly Lucas-Editor