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Annual General Report TWO THOUSAND AND FOURTEEN annual general report 1 FROM THE BOARD CHAIR Dear CDSS Family, On behalf of the Canadian Down Syndrome Society Board and staff, it is my honour to share with you the results of our 2014 efforts and activities. CDSS continues to be an organization that represents the Down syndrome community across Canada. We are proud to be its voice. This is my first year as the Chair, but my seventh on the Board. I can tell you that the passion and pride that exists on the Board and within the staff has never been higher. We are excited about the opportunities that exist for CDSS over the next couple of years. A significant priority for us is on building connections and ensuring our collective voice is heard. 2014 marked the beginning of important initiatives and activities to make this happen. In 2014, we launched two fantastic initiatives aimed at supporting local organizations and self- advocates. CDSS launched the Go21 fund development platform. Go21 provides support to local groups for fundraising initiatives in their own community. Through the Go21 scaled profit-sharing model, more funds raised are kept in the community. We also launched the Mind & Body: Answers To Your Questions book for self-advocates. The book explores questions about relationships, sexual health, safety, and growing up. It is written for people with Down syndrome and other developmental disabilities. The book was developed in consultation with various organizations and groups in the fields of sexual health and disabilities. 2 Connecting to others remains important to the Canadian Down Syndrome Society. Our ability to connect with various organizations continues to grow and flourish. Our Affiliate Council (see page 15) continues to represent nationally. These organizations have presented their community’s needs and issues, which has allowed CDSS to better understand how we can support them. Lastly, there is no better voice than VATTA (Voices At The Table for Advocacy), comprised of adults with Down syndrome, to represent the impact of the work of CDSS. VATTA acts as a moral compass for the Board and shares their voice across Canada (and the globe!). They prove to everyone the real potential that exists for people with Down syndrome. 2015 represents VATTA’s tenth year and the impact that they have made has been truly inspiring. In 2015 and beyond, we look forward to continuing these initiatives and beginning many more. Our hope is to provide a stronger connection between CDSS and local organizations. Our goal is to meet the needs of the community. We want to give them the tools, advice, and support when and where they are needed. Kevan McBeth Board Chair 3 FROM THE EXECUTIVE DIRECTOR 2014 – STRENGTH IN NUMBERS It is with privilege that we present to you the 2014 Canadian Down Syndrome Society Annual General Report. In developing my commentary, I thought of all the objectives CDSS met throughout the year and relationships we established with people from across Canada. Then it hit me: our success relies on people. People just like you! Strength in numbers is the theme that best characterizes 2014. When I started working on this Annual General Report, I asked myself “What should I focus on? What do I want to talk about? What are we most proud of?” The answer came quickly. I wanted to focus on how we have helped the 45,000 Canadians with Down syndrome and how CDSS has answered the needs of the membership and communities across Canada. You will see described in this report all our tremendous successes in 2014. Without you, none of these accomplishments would have happened. 2014 was another great year of growth and stability. People from across Canada are taking advantage of an ever-evolving number of services and support from CDSS. With the help of our Affiliates and local member groups, we were able to hear your voice and understand and anticipate future changes. In 2014, that meant not only encouraging innovation, but also be in continuous contact with our membership to broaden our understanding of your communities. We’ve talked with healthcare professionals and care providers. We’ve talked to educators, policymakers, 4 business leaders, community organizers, moms, dads, and self-advocates. Perhaps even more importantly, in 2014 we have listened. We are delighted to continue with the excellent foundations you have given CDSS. This has given us an opportunity to achieve growth in an ever- changing landscape. We have been able to continue to implement our strategic targets. We have steadily expanded our position as the number one Down syndrome organization in Canada and are seen as global leaders. The skills and determination of our people and the quality of our assets give us a great advantage as we move into 2015 and beyond. The dedication of our Board of Directors, VATTA, and the outstanding staff at CDSS allows us to deliver services and benefits both to members and to the greater community. I am very thankful to them for their efforts, which allow us to fulfill our Mission and Vision. So what’s the next step? I can assure you that we will move forward in providing support through all life stages. I can tell you that people with Down syndrome will be valued, fully participating citizens. And I can tell you, with confidence, thatyou are our most important asset. There is indeed, strength in numbers. Sincerely, Kirk Crowther Executive Director 5 “Thanks KPMG for supporting VATTA. We could not do it without you!” –Matthew FROM THE VATTA CHAIR Hey everyone! Matthew here from VATTA. There were some amazing things that happened in 2014 for VATTA! Here are some of the highlights: In January, we had to vote for the newest Vice-Chair and Chair. I was voted Chair and Mary Frances Vice-Chair. We definitely need to say thank you to Ruth and Janet for being the past Vice-Chair and Chair; they did a great job and they are a great inspiration to the group. Thank you! Every year we celebrate World Down Syndrome Day on March 21. VATTA members do different things to celebrate, like go to events with their local Down syndrome group, make presentations, or wear their Lots of Socks. We also send pictures to the CDSS office to be in their See the Ability slideshow. Each year we blog about it! You can see that blog at www.cdss.ca/vatta. We welcomed our newest member who joined us in the fall. Her name is Alana Gersky and she is from Edmonton, Alberta. She has been great to have on the committee! During the conference in Fredericton, we did a presentation about prenatal testing called What Prenatal Testing Means To Me. We did a lot of homework to prepare for this. We were so lucky to have CDSS make it into a video that can be found on the Canadian Down Syndrome Society YouTube 6 channel (www.youtube.com/user/cdndownsyndrome). I am so happy to share our feelings about parents getting fair and balanced information about Down syndrome. Every year we meet in January and September in Toronto. Last January, we worked hard on our strategic plan, which includes a Mission, Vision, and Values. You can find some of this information on our blog. VATTA also has two committees now; the Lifestyles Committee and the Employment Committee. The Employment Committee is working on blog posts for self-advocates about working. We posted four of these on our blog already. They are about being flexible and being professional at work, making your passion into a paycheque, and starting your own business. The Lifestyles Committee helped CDSS in the creation of their new book, Mind and Body: Answers to Your Questions. This book is about bodies, relationships, growing up, sexuality, and safety. The committee gave CDSS feedback and helped with editing it for people with Down syndrome. They also wrote a blog about being a self-advocate. For National Down Syndrome Awareness Week, VATTA members did many different activities around their communities to spread the word about Down syndrome. Some members did presentations, some were on media to spread the word, and some wrote articles. In 2015 we have to say goodbye to four original members of VATTA. Janet, Ruth, Mary Frances, and Andreas will be celebrating their ten-year term at the conference. We will help them celebrate during the Endnote Session of the Canadian Down Syndrome Conference. We are very thankful for all the work these amazing people have done. Thank you everyone for your support in 2014! We can’t wait to see how much we grow in 2015! Matthew MacNeil VATTA Chair 7 witter 4000 OVER 15 0 4500, T 2014: Facebook er 3100 GREAT VOLUNTEERS WHO INSPIRE CDSS 2014 2013: Facebook 3500, Twitt 2012: Facebook 2000, Twitter 2100 PEOPLE TO SEE THE ABILITY! AT A GLANCE: Social Media Rise CDSS Operations: 8 employees THE BILLBOARD 10 VATTA members 11 board members CAMPAIGN $1.5M 12 affiliates Seen in 50+ communities Raised by you! coast to coast This billboard is made possible thanks people with Down to PATTISON Outdoor Ltd. syndrome in Canada THANK YOU! 45,000 2000 inquires from new parents, teachers, doctors, self-advocates and more! MEMBERSHIP MAP # of 33% Ontario 28% Alberta RESOURCES 13% Manitoba DISTRIBUTED: MAY 16 –18: 14 CONFERENCE ATTENDEES: 9% British Columbia Canadian Down Syndrome Conference 4% Nova Scotia 2000 20 JUL 28: 4% Newfoundland Magazines in Released VATTA’s What Prenatal Te sting Families 3.5% Saskatchewan Means To Me video 3% New Brunswick 15 00 TES New Parent Packages OCT 14: Self-Advocates 1.5% Quebec Unveiled the new See The Ability Billboard 0.6% Prince Edward Island Professionals 0.3% North West Territories 15 00 NOV 7: 0.1% Nunavut Calendars Released online New Parent Package Other BLE DA CDSS is based in Calgary, Alberta.
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