Biobanking, Bioethics & The Law

September 26th, 2008 Stanford Law School

9:15 Welcome and Introduction

9:30 - 10:45 The Scientific Promise of Biobanks Russ Altman, Professor of Bioengineering, Genetics, and ; Director, Biomedical Informatics Training Program, Rex Chisholm, Adam and Richard T. Lind Professor of Medical Genetics; Dean for Research, Feinberg School of Medicine, Northwestern University Douglas Levinson, Walter E. Nichols, M.D. Professor in the School of Medicine, Stanford University Scott VandenBerg, Professor of Pathology and Neurosurgery; Director, Brain Tumor Research Center Tissue Core; Director, Neuropathology Biomarkers Laboratory, University of California San Francisco

10:45 - 11:00 Coffee Break

11:00 - 1:00 The Administration of Biobanks and Review of Research Mariana Bledsoe, National Institute of Health Elena Grigorenko, Child Study Center; Department of Psychology; Department of Epidemiology & Public Health, Yale University Julie Kaneshiro, Policy Team Leader, Office for Human Research Protections Elizabeth Peloso, Director of Compliance; Adjunct Professor of Psychology, University of Delaware Susan Stayn, Senior University Counsel, Office of General Counsel, Stanford University

1:00 – 1:30 Break

1:30 - 2:30 Lunch and Keynote Address: Hakon Hakonarson, Director, Center for Applied Genomics, The Children’s’ Hospital of Philadelphia; Associate Professor, Department of Pediatrics, University of Pennsylvania School of Medicine

2:30 - 4:00 Legal and Ethical Issues Related to Biobanks Kelly Ormond, MS, CGC, Associate Professor Department of Genetics & Director, MS in Genetics and Genetic Counseling, Stanford University David Resnik, JD,PhD, Bioethcist, NIEHS/NIH Ellen Wright Clayton, Rosalind E. Franklin Professor of Genetics and Health Policy; Professor of Pediatrics; Professor of Law; Director, Center for Biomedical Ethics and Society, Robert Cook-Deegan, Director, Center for Genome Ethics, Law, and Policy, Institute for Genome Sciences & Policy, Christina deHayes, General Counsel, Asterand

4:00 - 4:15 Coffee

4:15 - 5:00 Reflections on Lessons Learned and Best Practices

5:00 Reception