Inspire hope. Extend our reach. Annual Report Strengthen our impact. 2014 Better, together. Our Mission Executive Message Parkinson Society is the voice of British Columbians living with This year marked the first year of a five year strategic Parkinson’s. Our purpose is to ease the burden and find a cure for Parkinson’s plan that will take us to 2020. Our primary strategic disease through advocacy, education, research and support services. directions are to inspire hope, extend our reach, strengthen our impact and work better to achieve optimal performance. What is Parkinson’s Disease? Colin MacBeath To extend our reach and strengthen our impact, Chair Parkinson’s disease is caused by a loss of dopamine in the brain and is the we delivered several new programs and services, second most common chronic neurodegenerative disorder after Alzheimer’s including Voice & Swallow seminars and an exercise disease. Symptoms include tremor, rigidity, slowness of movement, difficulty with pilot. Our Voice & Swallow seminars taught practical speech, sleep disturbance and mood disorders. There is currently no cure. skills to those who currently experience these It is estimated that there are 12,500 individuals living with Parkinson’s in British symptoms and offered valuable information to Columbia; 100,000 in Canada; 1 million in the US; and 6.3 million worldwide. those wishing to be proactive in their treatment. Our Experts predict that the incidence of Parkinson’s will increase significantly as the exercise pilot participants showed improvements in population ages. While the vast majority of people with Parkinson’s are over 60, physical capacity and quality of life. Jean Blake CEO 20% are diagnosed before the age of 50 and many are in their 30’s and 40’s. To inspire hope, we launched The Parkinson’s Movement, a campaign to further draw attention to Staff the benefits of exercise. Participants were encouraged Chief Executive Officer Jean Blake to commit to an exercise goal for Parkinson’s Awareness Month in April. The positive responses and Director, Resource Development Cecilia Tupper extraordinary stories that were shared helped to raise Director, Education and Support Programs Robbin Jeffereys (retired) public awareness of Parkinson’s disease and the Information and Programs Manager Stacey Dawes issues associated with it. Resource Development Manager Betty Hum We delivered several new Further, together with our Parkinson Canada programs and services, Marketing and Communications Manager Laura Darch Partners, we were proud to fund 29 new grant, including Voice & Swallow seminars. Information and Referrals Coordinator Courtney Hanna fellowship and student awards across Canada. Education and Support Services Coordinator Caroline Wiggins Included in the awards were eight research projects Donor and Member Services Coordinator Susan Atkinson in British Columbia. We are sincerely grateful to have the support of our members, donors and sponsors. It has allowed us Board of Directors We launched to be a friend and a guide to individuals and families Chair Colin MacBeath The Parkinson’s Movement, living with Parkinson’s disease. a campaign to draw Vice Chair Andrew Davenport & Alexandra Rice attention to the benefits Treasurer Mona Kragh of exercise. Signed, Secretary Bob Thompson Colin MacBeath, Chair and Jean Blake, CEO Members at Large Tony Pugh & Val Swannell Directors Pat Gallaher (In Memoriam) Dave Rickards Ariane Grill Jennifer Spencer Tim O’Connor Joe Vukelic Cec Primeau Sherri Zelazny Colin MacBeath, Chair Jean Blake, CEO Together with Parkinson Medical Advisor Martin J. McKeown, BEng, MD, FRCP(C) Canada Partners we funded 8 research projects in BC. 1 2 Message from Inspire Hope Mona Kragh, Treasurer How are we growing our investment in research and supporting advocacy? Our financial statements for the year ended RESEARCH December 31, 2014 have been audited by our l $1,348,949 invested by Parkinson Society Canada’s National Research external auditors who provided their qualified opinion Program towards Parkinson’s research in British Columbia since 2002. Mona Kragh that, based on the audit evidence they accumulated, l 29 new grant, fellowship and student awards supported by Parkinson Society Treasurer the financial statements fairly present the Society’s British Columbia and its regional partners as of July 2014. financial position and results in accordance with • 8 research projects in British Columbia funded including: Canadian not-for-profit accounting standards. The Statement of Financial Position reports healthy Dr. Mark Paul Cocker Dr. Daryl Wile Matthew Sacheli Naila Kuhlmann Professor Carpenter Grappling with Mapping the Prescribing How one Alex MacKay working capital with current assets significantly Balance and gambling: brain to find an exercise Parkinson’s gene Measuring the exceeding current liabilities. The Society’s investment the brain The receptor that early diagnostic as a treatment can change the brain’s white portfolio, with a market value of $1,017,545, continues could hold the key test for for Parkinson’s shape & function matter and how Parkinson’s of brain cells it affects thinking to generate modest returns. in Parkinson’s Overall, the Statement of Revenue and Expenses reports a planned deficit of $234,618. In 2014, the Board chose to invest in additional research to inspire hope and additional education sessions to extend our reach and strengthen our impact. The Board chose to invest The Society enters 2015 with reserves roughly equal in additional research to to 12 months of its historical expenses which provides inspire hope and additional Also: Dr. Mattia Volta Knocking out a protein to protect against Parkinson’s education sessions to the Board with further opportunity. In response to Kim Taylor End-of-life care planning: Removing the onus from the patient extend our reach and increasing evidence that exercise is one of the best strengthen our impact. non-medical options to manage Parkinson’s symptoms, the Board is further investing in this area for 2015. ADVOCACY We are excited and pleased to announce the return of Dr. Becky Farley who will provide training for up to 50 l Support group visits coupled with a survey conducted in 2014, allowed us to certified physical trainers in PWR! exercise strategies and establish the following as advocacy priorities: up to 50 physiotherapists in PWR! physio techniques. • Reducing Waitlists currently at 18 to 24 months to see a neurologist specializing in movement disorder. • Educating Community and Allied Health Professionals regarding diagnosing Our Picture of Financial Accountability and/or treating and/or caring for people with Parkinson’s disease. To view a copy of our 2014 Financial Statements, please visit www.parkinson.bc.ca. • Medication on Time is an issue especially when hospitalized and sometimes Revenue 2014 Expenses 2014 in care facilities. • Pharmacare Coverage for PD medications especially for those with lower 50% Special Events 35% Support Services 9% Research $573,820 $484,436 $120,432 incomes. • Caregiver Supports and Resources 31% Donations 27% Fundraising 5% Administration & $353,732 $376,047 Governance $77,039 Action: In 2015 we plan to recruit and train volunteer advocacy ambassadors 15% Bequests 12% Public Awareness $171,343 $163,435 to share their stories and build a campaign to take these issues forward. Furthermore, we will support Parkinson Society Canada in a national advocacy 4% Investments and Other 12% Federation Support Income $46,940 $159,064 campaign during the upcoming federal election. 3 4 Serving People Across BC Extend Our Reach & NEW! VOICE 2014 Support Groups Strengthen Our Impact & SWALLOW l Abbotsford l New Diagnosis 2 How are we investing in a full range of services for the Parkinson’s community? l (Vancouver)

SEMINAR l Campbell River l 80 people l Chilliwack l North Shore trained in voice & 40% INCREASE 192 TOTAL l Chinese Speaking l Osoyoos swallow disorder over 2013 in traffic to Parkinson (Vancouver) l Parksville/Qualicum techniques. Society British Columbia’s website. ATTENDEES l Courtenay/Comox l Parksville/Qualicum at our Regional l Courtenay/Comox Caregivers Conferences Caregivers l Penticton in 34% INCREASE l Cowichan l Penticton Caregivers in web downloads of educational and 43 l Cranbrook l Powell River materials over the previous year. Kamloops. INDIVIDUALS l Creston l Prince George l Fort St. John l Quadra Island at our REACHED l Kamloops l Richmond Young Onset Conference l l Elk Valley held in September. 50% IMPROVEMENT l Kelowna Caregivers l South Sunshine Coast IN OVERALL QUALITY l Ladner l Shuswap/Salmon Arm l Langley l Surrey OF LIFE reported by those who l Lion’s Bay l Terrace participated in our pilot exercise programs in l Maple Ridge/Pitt l Trail/Castlegar Vancouver and Burnaby. Participants also Meadows l Tri-Cities showed advancement in all monitored activities. l Maple Ridge/Pitt l Tri-Cities Caregivers Meadows Caregivers l l Mission l Vancouver Arbutus l Nanaimo l Vancouver Caregivers 32 12 ACTIVE l Nelson l Vancouver West Side l New Diagnosis 1 l Vernon REGISTRANTS AND CURRENT (Vancouver) l White Rock for our Time Out for CONNECTIONS Caregivers made through the PD Link 1450+ workshop. program. INDIVIDUALS HAVE 255 RESPONSES FROM PEOPLE SPOKEN 50+ SUPPORT GROUPS LIVING WITH PARKINSON’S AND 124 SUPPORTED BY PSBC ONE-ON-ONE in British Columbia to connect those living with RESPONSES FROM CAREPARTNERS with our support services Parkinson’s, their families and caregivers. to two surveys that assisted in identifying advocacy issues (see page 4) & team for information and determining the need for more programming outside the . referrals. 5 6 Better, Together How are we working to collaborate, improve and raise critical funding? $86,000 IN ONLINE GIFT GIVING. A 64% INCREASE over 2013, further reducing administration time.

$171,343 WAS RECEIVED FROM THE ESTATES OF 6 THANK YOU GENEROUS INDIVIDUALS who MEMBERSHIP named Parkinson Society British Columbia in their Will. FOR HELPING GROWTH OF $70,876 RAISED DURING OUR US TO RAISE 5% OVER NEW CAMPAIGN, THE $1,073,565! 2013. PARKINSON’S MOVEMENT, meant to promote the benefits of exercise for Parkinson’s 29% symptoms and raise funds for critical programming. INCREASE IN MONTHLY 19 CHAMPIONS FOR PARKINSON’S DONORS. HELPED TO RAISE $56,906 by holding independent community events including Me-n-Ed’s 7th Annual Charity Golf Classic and Coast to Coast for Parkinson’s – Grady and Kelley Ride Across Canada.

$432,998 WAS RAISED BY 21 COMMUNITIES during the Parkinson SuperWalk, representing a 10% increase over 2013.

7 8 l Mavis and Walter LEGACY GIFTS l Canadian Western Tulip Circle Special Thanks to Our Supporters Norman l The Estate of Patricia Bank $500 - $999 l Rendy and Brian l We are inspired by donors who champion our cause with their generous gifts and we Ashleigh DNV Firefighters l Abbotsford Olthuis l are proud to acknowledge the support of our volunteers, members and donors who The Estate of Jessie Charitable Society Parkinson’s Support l Helen Petre McLennan Loca 1183 I.A.F.F. Group enable us to serve the Parkinson’s community in BC. Thank you. l Paula Phillips and l The Estate of John l Fasken Martineau l Abilities Neurological This report lists those who have honoured Parkinson Society British Columbia with Dan Robb Morrison DuMoulin, LLP Rehabilitation l Iris Pierrot l l l a significant gift in 2014. Due to space constraints, we are unable to list all of our The Estate of Erica Global BC Army, Navy and l Ian and Ebie Pitfield Saladin l Gorman Bros. Airforce Veterans - donors but their support is greatly appreciated. l June and John Reeve l The Estate of John T. Lumber Ltd. Unit 284 l David and Elaine l l INDIVIDUALS l Linda Leslie l Barry West l Gary Holland Walters Green Planet Burnaby Lougheed Rickards l Marna Leslie l Dick Williams l Dolores I. Houghton Wholesale Lions Club Leadership Circle l Judy Rose l l l Roberta and Angus l James and Deborah and Cary Graham CORPORATIONS, Howard C. Green Can-Ital Ladies Society $5,000 or more l Lana Russell Leslie Yeates l Wim and Mimi Hunfeld COMMUNITY AND Memorial Fund l Colliers International l Anonymous (3) l Ivor Ruste l Linda Loo and l Jennifer Hunt EMPLOYEE GROUPS, held at Vancouver l Custom Plates and l l Sarah and Cameron l Richard Shantz Foundation Stephen Richards Tulip Circle Lucille Huot FOUNDATIONS AND Profiles, a division of Belsher l Theresa Sheehan l l Colin and Kate l Barbara Inniss SERVICE CLUBS MacDonald Dettwiler Samuel, Son & Co. $500 to $999 and Terry Ellis MacBeath l Audre Barbara and Associates Ltd. Limited Benefactors Circle l Leadership Circle Anonymous (7) l Doris and David l l Jonathan Mackin Jackson Lions Club l Dr. Hugh M. Parsons l Darbra Adair $5,000 or more $1,000 - $4,999 l John and Mary Manuel l Rita Jo-Ann Johnston Shoemaker l Pine Crescent Holdings Inc. l Rob Aird l l A&W - Newton/ l Anonymous (10) l Diane Marsh l Anders Jorgensen Cordie and Stan l Powell River l Fibreco Export Inc. l Colin Arnold Strawberry Hill l Mark Betteridge l Ellen and John l William Koch Siemens Parkinson’s Support l Graham Marine l Joanie Ball l l AbbVie Corporation l Barbara Bilsland McCurrach l Faisal Khokhar Mary Simonin Group Services Ltd. l Shelagh Ballard l l Bell Media, Kelowna l Ernest D. Black l Peter McDermott l Mona Kragh Kip Smith l Pratt’s Compounding l Green Roads l Maureen J. Bird l l Blake, Cassels & l Jean Blake l Margaret Mutch and l Chuck and Deb Lawson Richard and Joan Pharmacy Inc. Recycling Ltd. l Mike and Lynn Born Graydon LLP l Delores Couch James Patterson l Mark Lyons Smyth l Provincial Employees l Kamloops Brock l Wallace Bradley l l BMC Networks Inc. l Linda Dawson l Judith and Robin l Gary Mah Suzanne Stothers Community Services Central Lions Club l Todd Brown l l CISL - AM 650 Radio l Marjorie and Roger Nelson l Jennifer and John Marni and Kent Fund l Land Forest People l Blake Burgess l Community Connection Eamer l Ruth Nobbs Marriott Stuehmer l Right of Way Consulting Ltd. l Margaret Carley l Health Foundation l Ralph Emsland l Ted and Carolyn l Len and Betty Marston Jim and Eva Stuehmer Operations Group l Ledcor Construction l Wendy Caywood l l Grant Thornton, LLP l Donna Evans Osborn l Eileen Mate Janet Stuehmer and l Royal Canadian Ltd. l Nancy and Ken Coutts l Iranian-Canadian l Frank Fallows and l Stewart Pugsley l Richard and Barb Richard Hutton Legion Branch No. 173 l Leslee Farrell Real l Tim Creelman l Benevolent Foundation Family l Dr. Alan Reynolds Mathias Ida Sullivan l Royal Canadian Estate l LaVerne Cunliffe l l James B. Wallace l Leah Shaw and l Breda and John l Herb & Donna Robert Swannell Legion Branch No. 88 l LKN Consulting Ltd. l Justin D’Agostino l Foundation Steven Genn Sheehan Matthews Geoffrey Swannell l SFU Community Trust l Mill Bay Lions Club l Dale DeBeeld l l Lewis Family Fund l James H. Gilkison l Carolyn and David l Nairn McKenna Michael Tatchell l The Capital Media Co. l Pender West Capital l Gavin E. Dirom l l NL Broadcasting Ltd., l Jean E. Greenaway Simmons l Jack and Angela Linda Tod l The Lighting Partners Inc. l Victor Dyck l Kamloops l Alan and Marjorie l Bernie and John McKeown Russell Tront and Warehouse l Royal Canadian Legion l Janet E. Ellis l Scotiabank Grinnell Smerdon l Malcolm McLaren Jennifer Hunt l The Magee Seward Branch No. 164 l l l Gerald Falk l Telus (Team Telus Cares) Cathy and Gary l Mike, Melissa and l Dave McNeil Antoinette Tummillo Family Foundation l Royal Canadian Legion l l Hermann and Regine l l TEVA Canada Harasym Caroline Smerdon Roger and Dominique Judith and Ewout van l The Raven Foundation Branch No. 280 l Fefer Innovation Richard Haschke l Lyn Blanchard and Miller Dishoeck l Tsleil-Waututh Nation l Royal Canadian l l Tracy Fertig l l The Alan and Doreen and Jacqueline Val Swannell Richard Milton Barbara and Andrew l Valley Driving School Legion Branch No. 8 l l Matthew Freeman l Thompson Charitable Ordronneau Dr. Jennifer L. Bjorn Moller Vogan Ltd. l The Madulo Fund l l Yuri Fulmer l l Foundation Barbara and Shell Takahashi Steven Moore Val Walters l Valley West l Tsleil-Waututh Nation - l l Hershberg l Linda Thiessen Mike and Ae Ganske l Brett B. Morgan Ms. Gwendolyn Automotive Ltd. Health Department l l l Gerald M. Gartner l Benefactors Circle Jan and Rod Hobbs John and Gilberte Edward and Penny Williams l Werner and Helga l UniPHARM & Medicine l l l Ruth and Donald Thompson Stanley E. Gieschen Moul Jennifer Williams $1,000 - $4,999 Hoing Foundation Centre Pharmacies l l l l l James Cheryl and Garry Toop David Grunder Beverley Muench Leroy and Shirley Allwest Electric l White Spruce Charitable Foundation l l l Ingrid and Jurgen Kahl l Dean Toye Terry and Brent Dr. Kenneth Muth Wolbaum l Beaver Valley Lions Enterprises (1901) Ltd. l Klaus Kahl l Christopher Vollan Hancock l James & Kim Nenniger l Paul and Marguerite Club l Anne and Peter Kains l Carl A. Wagner l Linda and Rick Hirtle l Dorothy Nenniger Zakus l Bellringer Family Note: We strive to ensure that each name is appropriately l l l Bernadette and l Maureen Legg Magdalene and Peter Kathy-Ann Nobbs- Foundation listed and spelled. Please let us know if we have made an l Paul Leinemann Watts Bruce Hirtle Thiessen l Bond Repro error so we may correctly recognize you the future. 9 10 In memory of Pat Gallaher, our longest serving director, who passed away in February 2015. “My glass isn’t half full; it’s overflowing.”

Suite 600 - 890 West Pender Street, Vancouver, BC V6C 1J9 Telephone: 604 662 3240 I Toll Free: 1 800 668 3330 I Fax: 604 687 1327 www.parkinson.bc.ca CHARITABLE REGISTRATION NUMBER 11880 1240 RR0001

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