News and Information Letter for Cornwall & the Isles of Scilly August/September ‘21
I hope you have already spotted the changed front page. The Coronavirus restrictions black box has gone - it has been there since the April 2020 Issue. Fingers crossed that it doesn’t ever return! Returning to our meetings is not quite so straightforward. Both branches have articles outlining their plans and readers from areas covered by Mid Cornwall Branch also have a questionnaire. The back page is now a guide to activities. It will be more important than before to contact organsers in advance if you plan to attend any September meetings. The website calendar should have the most up-to-date information. Elsewhere in the issue there are details of courses both in the community and online. The Medicine Chest has some interesting news regarding Parkinson’s Nurses in Treliske Hospital. There are two more quizzes to tax your brains and even a suggestion of Christmas. Perhaps now is the time to enjoy the sunshine and have a good read of your Newsletter, Happy Reading!
Looking Ahead It has been a long time since we have been able to meet up and the Committee have now had their first meeting in person. Although no date can yet be given to re-start our various group meetings, please be assured that enquiries have started and dates will be given as soon as possible when everyone will feel safe getting together again.
The “ALL’s well that ENDS well” Quiz 1. In which novel does one encounter the Wilcoxes, Schlegels and Basts? 2. Which fictional character’s home is “Bag End”? 3. “At the end of the day” is a song from which musical? 4. Clive Anderson ties these up in which Radio 4 programme? 5. What is the most northerly point of mainland Britain? 6. Whose last words were “I am just going outside and may be some time”? 7. Which cities are at each end of the M3? 8. Where do the following sporting events normally end? (a) The London Marathon; (b) The Tour de France (c) The Boat Race 9. Who sang the song “Anyone can fall in love” based on the theme tune to ‘Eastenders’, and what was her role in that soap opera? 10. Which film ends with the words “And oh, Auntie Em, there’s no place like home”? 11. “The End of the Line” is a song by The Travelling Wilburys. Can you name any of the five well known band members? 12. What names are given to the ends of the Lords cricket pitch?
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General Knowledge Quiz
1. What does the “V-J” of V-J Day stand for? 2. What is the day before Ash Wednesday? 3. How many teaspoons make up a tablespoon? 4. What colour is the District Line on London’s underground? 5. What is the only mammal that can’t fly that does fly? 6. What has a maiden thoroughbred horse never done? 7. What is the other common name for a peewit? 8. Where is the Marianas Trench? 9. What colour beards grow quickest? 10. How do you write “99” in Roman numerals? 11. What arrives at your table in Madrid if you say “La cuenta por favour”? 12. How was the world’s largest diamond sent to England in 1905? 13. What does a French road sign reading “sens unique” mean? 14. What travels through space at 66,700 miles per hour? 15. How do you write “49” in Roman numerals? 16. What precedes “and never the twain shall meet”? 17. What London landmark has an 11’ long hand? 18. What was the Silver Jubilee year for the Queen and Prince Philip? 19. Who is the Patron Saint of Scotland? 20. Where would you find “a frog” on a horse?
Answers at end of Newsletter.
Sing for Fun at Home Thank you for your feedback on summer singing. Gail and I have come up with a schedule which gives space for some holiday but keeps continuity. We are very lucky that Gail is happy to step in again, thank you Gail! Gail will lead the first three weeks of August and I will return in the first week of September. Full details are on the website calendar. It will be great to keep the singing, chat and fun going over the summer. Kelsey Michael
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To Open or Not to Open? That is the Question (Sorry Shakespeare)
You may have noticed that a little thing called a pandemic prevented the Mid Cornwall Branch (and the rest of the country) opening the doors to our Face to Face monthly meetings (Drop-Ins). Parkinson’s UK has been advising group leaders on the safety standards required to make any such activities possible.
So, while the whole country is crystal ball gazing about third waves, new variants, mask wearing or not mask wearing etc we are trying to judge when we volunteers would be able to reinstate Drop-ins and at which venues. Please remember though, we on the committee and the lead volunteers have also been through Covid and may not be ready to ‘lead’ for a while.
As I write, some early decisions are being made. It is certain that: • Not all venues will reopen straight away in September even if we get the all clear from Parkinson’s UK. • Some meetings will change venues. • Some meetings will be shorter. • Some meetings may take place at a different time of day. • We shall need more volunteers to help with some groups. A questionnaire has been formulated and included in the Mid Cornwall newsletters so that we can judge what you would like to see at future Drop-ins. Please take some time to reply. The newsletter comes out every two months. If we open up between editions, you might miss out so we need your permission to contact you when it happens.
If you live in the Liskeard, Torpoint, Wadebridge, Newquay and Launceston areas and the East of the county, ring Sue Whipps and let her know you would like to hear from her when the drop-ins open up. 01503 262166 (It may be an answer machine message so leave your name and phone number to get on her list.) 4
If you live in the St Austell, Summercourt, or Fowey areas, phone Nick on 01726 61502. If there is a call minder service in operation, please state your name and telephone number. For Truro and on down to Redruth, phone Rowena on 07813 548767 For now, Kelsey’s singing group and the PD Active group will continue to operate by Zoom but again, this is subject to change if we begin meet in person
You are welcome to any Drop-In, regardless of where you live, so as long as one of us has your telephone number we can keep you informed when we open.
Watch this space Sue Whipps
PDActive Becky, of Neuro Physio Practice, will restart the PDActive online for 10 weeks towards the end of September for all existing participants. If anyone new wishes to join this group on Zoom, they are very welcome and they need to contact Becky on 01326 561012 or email [email protected] .
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LOCAL CONTACTS AND SOURCES OF INFORMATION
Parkinson’s Nurse Service
Parkinson’s Nurse Service 01209 318048 [email protected] (Recorded message covering the whole county with advice, and explaining the current service)
Appointment changes only (NOT Nurses) 01209 318050
Neurological Advice Service Mary Eason and Bernadette Murray 01209 318106 [email protected] (Answerphone service – please leave a message and one of the advisors will call you back) Living Well with Parkinson’s Programme
Jane Rideout 07511 592318 [email protected] Website https://www.livewellwithparkinsons.uk/
Parkinson’s UK Representatives
Local Parkinson’s Adviser
Kirsty Maidment 0808 800 0303 [email protected] The whole of Cornwall and Isles of Scilly
Network Support Officer
Mary Jane Hunter 0344 225 3695 [email protected]
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LOCAL CONTACTS AND SOURCES OF INFORMATION
Contacts for Mid Cornwall, West Cornwall & IoS Branches
Mid Cornwall
Chairman Jan Wilder 01726 61502 [email protected] Vice Chairman Position vacant Secretary Sue Whipps 01503 262166 [email protected] SE Cornwall Rep Tom Bevan 01579 321132 Newsletter Kay Maycock 01208 420432 [email protected] Membership Sec Kay Maycock 01208 420432 [email protected] Treasurer Nick Wilder 01726 61502 [email protected] YOPs see Facebook group People with Parkinson’s in Cornwall
West Cornwall and Isles of Scilly
Chairman Edward Bolitho 07980 826613
Vice Chairman Helen Hichens 01736 788309 Secretary Linda Ashmore 01736 711293 [email protected] Treasurer Rob Burt 01326 221330 Membership Sec Kay Maycock 01208 420432 [email protected]
Parkinson’s UK Helpline 0808 800 0303
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Promas Caring for People Cornwall Carers Service
We are delighted to announce that our partnership, CRCC, Disability Cornwall & IoS, Age UK CIOS, Barnardo’s and Promas CIC were the successful bidders for the Carers Service in Cornwall. CRCC are the lead organisation in the partnership. Cornwall Carers Service will begin on 1st July 2021. We would like to share with you some information about Cornwall Carers Service. The Service has 3 levels of support: Level 1 will offer help to self-manage via a whole-age Adviceline, an interactive website, text-to-chat options, live web-chat options, Carers Emergency Card, Carers Passport, Carers Register and Carers Newsletter. Level 2 will offer enhanced support when you need it via the whole-age Adviceline where there will be a dedicated Team available to answer Carers’ calls and queries. There will also be face-to-face support available and access to carer specific training and Community Support. Level 3 will offer formal care and support through a Carers Needs Assessment and associated Support Plan. Through the Support Plan, carers will be empowered to improve their wellbeing and manage their caring role. Support for Young Carers and Young Adult Carers is available through all levels of the Service and will be led by Barnardo’s. As we draw closer to the start of the new Service we will share more information about how carers will be able to link in with Cornwall Carers Service. We hope that this information is helpful and we look forward to working with you in the future. Jayne Price (Care & Prevention Manager) 01736 756655
Expert Patient Programme
The course detailed on the next page will also be run online only from Thursday 2nd September to 14th October from 11 until 1.30pm. In addition, there will be a course Caring for Me and You – free self management online course for carers from Monday 13th Sep to 25th October from 11 until 1.30pm. Contact Elaine Curno as detailed on next page.
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Small steps to better health
FREE ONLINE/COMMUNITY SELF MANAGEMENT COURSE FOR PEOPLE LIVING WITH LONG-TERM HEALTH CONDITIONS Would you like To improve your quality of life Learn new skills to manage your health condition Meet others and share experiences Communicate better with family, friends and professionals Feel confident and more in control of your condition The Expert Patient Programme is being run by CFT online via Teams/ Community for anyone living with a long-term health condition. The course is delivered over six weeks for 2½ hours, led by volunteer trainers with lived experience. Course sessions will cover • Relaxation techniques • Dealing with difficult emotions • Introduction to physical activity • Making healthy food choices • Coping with depression • Fatigue and getting a good night’s sleep • Pain management • Planning for the future We offer 1 to 1 support to enable everyone to access Teams To register for our online/community course places now available Liskeard Hospital Seminar Room and Teams Tuesday 7th September to 12th October 1.30 to 4pm contact: Elaine Curno EPP Manager Tel: 07824598626 or please leave a message on Liskeard Hospital Reception desk 01579 373500
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New Parkinson’s Nurses Royal Cornwall Hospitals NHS Trust Emma Worden and Angela Hart are pleased to have been appointed as Parkinson’s Nurses within the Acute Hospitals Trust in Cornwall and are based at Treliske Hospital. This is a new and developing inpatient service for people with Parkinson’s who may need to be admitted to the Acute Hospitals. Emma has been employed at Treliske Hospital for 18 years and has worked as a Frailty Nurse, with a specialist interest in Parkinson’s, for the past 11 years. Angela was previously a community-based Parkinson’s Nurse in Cornwall before working as Community Matron and more recently as a Palliative Care Nurse at Treliske Hospital. They will prioritise medication management and promote the need to ‘get it on time, every time’. They will have a key role in educating staff about Parkinson’s to ensure that if you are admitted to the acute hospitals you feel supported and that your needs are understood. Emma and Angela say they are excited by this new opportunity and are here to support you and your family through both planned or emergency admissions to the acute hospitals in Cornwall. Peninsula Parkinson’s Research Interest Group A small part in the work of Dr Will Young on gait disturbance at Exeter University is turning in to deeper involvement. In September we are back in the Zoom studio. Firstly, to introduce the work of Dr Megan Courtman in Parkinson’s Research, and secondly to host a Talk and Q & A Panel about the Homecare Pathway with Emma Edwards and Emma King on September 15th (see https://penprig.org.uk/events-and-videos). This is what we do, we do it well, and we could use some more help to do it! Get in touch through [email protected]
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Fund Raising Greetings Cards For several years Sue Williams has made cards and donated the proceeds to Parkinson’s UK. Her outlets have been the local hotels and a couple of local shops, all of which are now unavailable. Sue is now taking orders for Christmas cards. Please contact her if you would like details (postage £3.10 for up to 20 cards) Phone 01637 871169 or 07971164503, or email [email protected]
All’s Well that Ends Well Answers General Quiz Answers 1. Howards End” by E M Forster 1. Victory in Japan 2. Bilbo Baggins 2. Shrove Tuesday 3. Les Miserables 3. Four 4. Loose Ends 4. Green 5. Dunnet Head 5. Man! 6. Lawrence ‘Titus’ Oates 6. Won a race 7. London and Southampton 7. A lapwing 8. (a) The Mall; (b) Les Champs- 8. Pacific Ocean Elysees, and (c) just before 9. Blond Chiswick Bridge 10. XC1X 9. Anita Dobson. Her role was Angie 11. The bill Watts 12. By post! 10. The Wizard of Oz 13. One Way 11. George Harrison, Bob Dylan, Jeff 14. Earth Lynne, Tom Petty and Roy Orbison 15. XL1X 12. The “Pavilion End” and the 16. East is east and West is west “Nursery End” 17. Big Ben 18. 1977 19. St Andrew 20. In the hoof
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COUNTY WIDE MEETINGS
We have a number of monthly meetings run by our Parkinson’s groups and branches, they are: Contact nos. BUDE group on 2nd Sat (NOT YET OPEN) 01237 441913 LAUNCESTON Drop-In on 1st Tue (NOT YET OPEN) TORPOINT Shuffle Club on 1st Thu (NOT YET OPEN) 01752 822870 WADEBRIDGE Drop-In on 4th Mon 01503 262166 HELSTON Meeting on 3rd Fri (NOT YET OPEN) 01736 711293 LUDGVAN Meeting on 2nd Tue (NOT YET OPEN) 01736 788309
These three are generously supported by local Rotary Club members LISKEARD AREA Drop-In 3rd Wed (NEW VENUE) 01503 262166 ST AUSTELL Drop-In 2nd Wed (NOT YET OPEN) 01726 61502 st CARNON DOWNS Drop-In 1 Thu (NOT YET OPEN) 07813 548767
ACTIVITY MEETINGS run by the branches HELSTON PD Active Thu(term-time) (ZOOM) 01326 561012 SUMMERCOURT PD Active Thu(term-time) (ZOOM)01326 561012 TOWNSHEND Singing every Wed (ZOOM) 01736 351330 SUMMERCOURT Trembellows every Mon (NOT YET OPEN) 01726 61502 GOLDSITHNEY Exercise to Music every Mon (NOT YET OPEN) 07773 669667
Wherever you live in Cornwall and the Isles of Scilly, you are all welcome at any of the meetings and events mentioned in this newsletter. Just follow the instructions to make a booking. DISCLAIMER. Whilst every effort is made to ensure all details in this News and Information letter are accurate at the time of publication, The Editors, The Mid- Cornwall Branch and the West Cornwall and Isles of Scilly Branch of Parkinson’s UK or any Committee Member do not accept any responsibility for the accuracy of information or of any technique, medication or treatment.
This Newsletter is published by Parkinson’s UK Cornwall Branches. [email protected] 01208 420432 Website https://parkinsonscornwa ll.com
THE DEADLINE FOR NEXT EDITION IS 15th September 12