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Connect Issue 42 Vision The award winning magazine for RNIB Members Issue 63 • December 2013/January 2014 • rnib.org.uk Andrea Begley The Voice UK winner on singing, writing and RNIB! Write about a day Author Peter Robinson gives tips for our competition Choosing an ereader What questions to ask VIS63PRINT Welcome Contents Hello and welcome to your 4 News December/January Vision magazine. I went to meet Andrea Begley, winner of BBC’s singing 9 Member news competition The Voice UK. Andrea, who was busy promoting her new album, 10 Andrea Begley: The Message has had lots of messages from other The Voice UK winner on her new album people with sight loss who have been encouraged by her success (page 10). 14 Read for RNIB Day 2013 You can listen to the interview and hear a track from her album on the free 16 Seize the day! Vision podcast. This is a taster of the Enter our members’ writing competition audio magazine, which is produced as a recorded radio programme, at rnib.org.uk/visionmagazine 17 Peter Robinson: getting started Writing tips from DCI Banks author Reading is a theme for this edition. We have a round up of all the fun reading related events which took place for 18 Campaign news Read for RNIB Day in October (page 14). Crisis in capacity in eye clinics In technology on page 26, discover how to find the best ereader for you. While 20 Find out benefits of registering on page 17, Peter Robinson, author of the successful DCI Banks series gives tips 22 Your letters and tips on writing to help inspire you for this years’ writing competition (page 16). 25 RNIB presents Prodigi There’s still time to enter! 26 Technology column On a serious note, campaign news How to choose an ereader reveals a crisis in capacity at eye clinics which is resulting in many people losing 28 Audio book review their sight unnecessarily (page 19). We Alice’s Adventures in Wonderland give you some information on your rights by Lewis Carroll and how you can get involved, to help to stop this happening. 29 Recipe Wishing you all the best for the festive Boxing Day turkey and chickpea curry season and a happy new year. Clare Conley 30 Your membership benefits Editor of Vision magazine Contents • 3 news Welsh Government launches NICE approves eye health care plan treatment for VMT The Welsh Government launched its five year Eye NICE (the National Health Care Plan (EHCP) for Wales in September. Institute for Health The document sets out plans for preventing avoidable and Care Excellence) sight loss and for improving eye health services and has approved the use of ocriplasmin for the support for blind and partially sighted people. RNIB treatment of VMT Cymru played a key role in shaping the plan, which (vitreomacular traction). includes: a commitment to develop a public education This is an eye condition campaign for eye health; vision screening in schools, related to ageing that can and improving the links between hospital eye services lead to vision loss. The and social services. decision by NICE follows months of campaigning by RNIB. Ocriplasmin offers a welcome alternative to surgery, which often requires the patient to lie immobile face down for up to a week afterwards. Technology for Life in Glasgow A bicycle using ultrasonic sensors to detect obstacles was among the innovations on display at RNIB Scotland’s Technology for Life exhibition in Glasgow in September. The aim was to explore how new technology can transform the lives of people with sight loss. Delegates had the chance to try the Ultra Bike (pictured right) made by UltraCane, which allows people with sight loss to cycle independently; wear “smart-specs” that automatically focus light on undamaged areas of the eye, and learn about a tool developed by the Scottish company Optos which diagnoses health problems just by scanning the retina in the eye. 4 • News Read Man Booker 2013 winner Can you help with The novel that won the Man Booker alcohol and sight prize this year is available to read loss research? in unabridged audio, braille or The Thomas Pocklington giant print. Eleanor Catton, is the Trust and Alcohol youngest winner at age 28 and Research UK are carrying her novel, “The Luminaries”, is the out a study to explore the longest novel ever to triumph in the links between sight loss award. and alcohol or other drug RNIB has also produced the other problems. five novels that were shortlisted, in People dealing with sight alternative formats. For the fifth year running it has been problems can sometimes a condition of entry for the prize that publishers must start drinking more provide RNIB with electronic files to enable this. alcohol due to feelings Lesley-Anne Alexander, Chief Executive of RNIB, said: “At of isolation, loss or RNIB we believe that blind and partially sighted people difficulties sleeping. It should have the same access to books at the same time can then become a habit as sighted people. We’re very grateful to the Booker Prize that’s hard to break. Foundation for their continued support so that we can The team of researchers make the shortlisted books available to blind and partially from England and Wales sighted people as quickly as possible.” want to hear from people with experiences of both sight loss and alcohol or Do you have metamorphopsia? other drug use – this may be now or in the past. RNIB campaigns team would like to hear from people in If you can help us Scotland and England who experience distorted vision yourself, or if you are a – known as metamorphopsia. This can be caused by family member or friend, a number of eye conditions including wet age-related please get in touch macular degeneration and other macular disease. If with Sarah Galvani on you have metamorphopsia or you experience visual 07884 007 222 or disturbances including seeing straight lines appearing [email protected] as wavy lines and you would be interested in helping us Any contact is completely with research, please contact the campaigns team on confidential. 020 7391 2123 or email [email protected] Photo © Janie Airey News • 5 Eye Pod tours 24 events in 2013 RNIB has taken the Eye Pod sight loss simulator to 24 events in England and Northern Ireland during 2013, including the Stormont Parliament Buildings in Belfast. A range of high profile figures have visited the Pod including Health Minister, Earl Howe. Inside the Pod, visitors experience digital simulations of common eye conditions using special digital screens. RNIB also raises concerns over the limited data that most councils hold on local sight loss, as part of our “Don’t lose sight” public health campaign. To find out more about the Eye Pod tour and get involved with our “Don’t lose sight” campaign visit: rnib.org.uk/sos or call the campaigns team on 020 7391 2123. BridgeVis wins international award BridgeVis society from Bridgend in Wales has won an International Innovation Award for their fully accessible allotment – beating 14 other countries in the process. The purpose- built allotment is built on a grid system to make navigation easier, with tactile numbers on the raised beds. There are high visibility markings and the ground is paved to ensure easy use of Clara Eaglen (RNIB), Sue Pritchard (NHS), Earl Howe canes and there is also a and Steve Winyard (RNIB). special sensory area. 6 • News Action hosts UK’s biggest athletics event for children with sight loss Around 150 youngsters with sight loss competed in the Boots Opticians Actionnaires Athletics Day, in Sheffield in September. The track and field event, which was organised by Action for Blind People, took place at the English Institute of Sport. The blind and partially sighted participants, aged 4–16, are members of Action for Blind People’s 27 Tell us about Actionnaires clubs which provide opportunities to service providers’ develop fitness and artistic skills while building self confidence and social interaction. Youngsters competed attitudes to email in sports including sprinting, long jump and javelin. Many blind and partially Bailey Ashman, 14, a partially sighted athlete from sighted people have Sheffield, who took part, said: “I had a great time. told RNIB that they Last year’s Paralympic Games made me want to do now prefer to receive even more sport. I’ve met lots of other children today. utility bills and other Making friends and doing new things is what I love communications, by about Actionnaires. This event is the highlight of email. However, some the year.” service providers and Government departments For more information about Actionnaires clubs, please are reluctant to visit actionforblindpeople.org.uk/children or call the communicate by email RNIB Helpline on 0303 123 9999. as they claim it could present security concerns. RNIB campaigns team is investigating this situation and we would like to hear your experiences of obtaining information and correspondence via email. Please get in touch with the campaigns team on 020 7391 2123 or email Coby, Lucas and Bailey Ashman [email protected] News • 7 Help us defend social care for people with sight loss This is a crucial time for us to campaign to preserve social care, including rehabilitation services, for people with sight loss. In England, RNIB’s “Facing Blindness Write to, or visit, your MP to make sure Alone” report revealed that there’s been they understand how important these a 43 per cent decline in care provision, issues are. For more information please which means that 25,000 fewer blind contact the RNIB campaigns team on and partially sighted people have been 020 7391 2123 or visit receiving basic council support.
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