DOCSLIB.ORG

Night with the Arts for FTD

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Night with the Arts for FTD OCTOBER 23, 2015 BOSTON HARBOR HOTEL A Night with the Arts for FTD Walk on the Dark Side by Sybil Sermos Inaugural Gala & Art Show to benefit The Frontotemporal Disorders Unit Massachusetts General Hospital www.ftd-boston.org [email protected] From To Care Cure Photography by Joshua Touster Welcome from Brad Dickerson, MD October 23, 2015 I am delighted to welcome you to the first MGH FTD Unit Gala, “A Night With the Arts for FTD.” We are inspired tonight by Kemon and Sybil Sermos and others like them who continue to strive to maintain art as a central force in their lives – and as a magnet to galvanize our community – despite the challenges posed by FTD and related brain disorders. In addition to the inspiration we will enjoy from joining together for this special evening, we hope that tonight will help raise funds for new and expanding initiatives in our programs of FTD Care Today and FTD Research for a Cure. The first prong of our work focuses on trying to provide the best FTD Care Today. We feel good about what is being done now, but we always strive to expand and improve. We are delighted that Katie Brandt officially joined our team in summer 2015 as a Community Resource Specialist and look forward to her efforts to develop more training courses, support resources, and other connections to services in the community that can help provide essential physical and psychological lifelines to patients and families living with these conditions today. Aphasia therapy, music therapy, and specialized patient/caregiver support groups are only some of the new initiatives we are planning to launch with seed funds from events like this one. The second prong of our work aims to advance FTD Research for a Cure. I am tremendously excited about the possibilities and opportunities in our research portfolio today. I will show images tonight of some of the pathologies of FTD in the brain—seen for the first time in living people—and of models of these conditions in the lab. We desperately need these new tools and technologies which are the bricks and mortar of the foundation for the development of new treatments. We have seen time and time again how seed funds for new pilot projects like those generated tonight are able to kickstart larger programs that will be supported by major medical foundations and the National Institutes of Health. I can’t thank you enough for participating in tonight’s mission to raise the bar in our efforts – as the largest FTD clinical and research program in New England – to improve FTD Care Today and expand FTD Research for a Cure. “I’m confident that if we all continue to dedicate ourselves to working together as a team, we will move the research forward toward a cure.” Bradford C. Dickerson, MD – Brad Dickerson, MD Director, MGH Frontotemporal Disorders Unit Associate Professor of Neurology, Harvard Medical School Featured Artists – Kemon & Sybil Sermos Frontotemporal Disorders Unit Staff Janet Sherman, Ph.D is Chief Neuropsychologist at Massachusetts General Hospital and Clinical Director of the MGH Psychology Assessment Center. She is a specialist in adult and child clinical neuropsychology. She has specific interests in language disorders and in the neurocognitive changes and behavioral changes associated with neurodegenerative disorders as well as in other acquired neurological disorders. Dr. Sherman serves as the neuropsychologist for the MGH Memory Disorders Unit and the MGH Frontotemporal Dementia Unit. Barbara Hawley-Maxam, LSW, is Social Worker for the MGH Memory Disorders Unit and the MGH Frontotemporal Dementia Unit. She provides emotional support to patient’s family members and directs families and patients to community resources. She also co-leads an Alzheimer’s Caregivers’ Support Group. Clinical Fellows Jaya Padmanabhan, MD is a fellow in the McLean / MGH Behavioral Neurology and Neuropsychiatry program. She works with Dr. Dickerson in the MGH FTD Unit. Her research interests include neuropsychiatric genetics, imaging, and psychosis in the setting of neurological disease. She is a graduate of the Harvard Longwood psychiatry residency training program and Harvard Medical School. Alessandro Biffi, MD is a part of the FTD Unit through his fellowship in Behavioral Neurology and Neuropsychiatry at Massachusetts General Hospital. He is currently conducting NIH-funded research investigating the role of vascular risk factors in cognitive impairment and psychiatric disorders. Dr. Biffi also has a special interest in precision medicine aspects of prevention and treatment in cognitive neurology, including personalized risk determination and integrated use of genomics, imaging and advanced statistical techniques. Joel Salinas, MD is a member of the FTD Unit through his research and clinical fellowship in Behavioral Neurology and Neuropsychiatry at Massachusetts General Hospital. His research focuses on investigating psychosocial predictors and modifiable risk factors of age-related neurologic disease and its sequelae using large epidemiologic cohorts. His long-term goal is to develop and deploy interdisciplinary strategies to prevent the development of devastating chronic brain disease. Ryan Darby, MD is a Behavioral Neurology and Neuropsychiatry fellow who sees patients at the FTD Unit at MGH. He is interested in the diagnosis View Kemon & Sybil’s work in tonight’s art show. A portion and management of social and moral behavioral abnormalities in FTD of the proceeds from tonight’s sales will be donated by patients and is currently working with Dr. Dickerson to develop novel Kemon & Sybil to the MGH Frontotemporal Disorders Unit. behavioral and neuroimaging assessments of social behavior. He also is interested in the application of non-invasive brain stimulation to measure differences in neural plasticity in FTD and other neurological patients. e To Featured Artists – Kemon & Sybil Sermos From Car Cure Kemon and Sybil Sermos are experts at exploring new cultures and navigating unchartered territory. “We have traveled to 65 countries and six continents together. Our art has allowed us to travel and our travel has inspired our art,” says Sybil. Their home is a bright mosaic of that inspiration. Beautiful paintings, photo albums bursting with stories and a wall tiled with photos of grown children, grandchildren and great-grandchildren are the illustrations of a life well lived. As their story continued to unfold, a new journey began when Kemon was diagnosed with Frontotemporal Degeneration in 2012. With no set itinerary and little knowledge of the landscape, Kemon and Sybil set out to find an expert guide and found themselves at the Frontotemporal Disorders Unit at MGH. They were now members of a new community, ready to learn and contribute. Early in 2015, the idea for a gala and art show to benefit the FTD Unit was born when Kemon and Sybil spoke to Dr. Dickerson during a clinic appointment. The seasoned travelers saw and opportunity to forge a new path for other donors and families who wanted to make a difference and a course was set. When asked why fundraising for Dr. Dickerson was so important, Sybil remarked “How many artists in their lifetime have the opportunity that we have had to find someone like Dr. Dickerson? To find someone who has impressed us and is doing work that is important to us, work that we can contribute to? We are inspired to do more, and that is a wonderful thing.” Tonight’s art sale showcases works by Kemon and Sybil. A portion of the proceeds will directly benefit the FTD Unit. Each sale made with the intention of igniting hope for today’s care and tomorrow’s cure. Sybil says “whatever joy this brings to the person who buys it, they also help in the cause to Dr. Dickerson. It is called giving back. That is what this is all about.” Find out more about how you can become a voice for (L to R) Megan Quimby, Katie Brandt, Brad Dickerson, Christina Caso, FTD and the research happening in the Dickerson Lab by Barbara Hawley-Maxam, Sara Makaretz, Michael Stepanovic, Bedia Samanci, emailing [email protected] Alexander Zaitsev Frontotemporal Disorders Unit Staff Elena Ratti, MD, MMSc is an Instructor in Neurology at Harvard Medical School and within the MGH Neurology Department. She is affiliated with the MGH Neurological Clinical Research Institute (NCRI) and the MGH Amyotrophic Lateral Sclerosis (ALS) Unit and the FTD Unit Clinics. Her research is aimed at improving the understanding of the ALS-FTD continuum longitudinally with clinical and neuroimaging assessments. Dr. Ratti was the 2014 Dr. Anne B. Young Neuroscience Translational Medicine Fellow, a joint training program between Biogen and MGH Neurology. Diane Lucente, MS, CGC is a Senior Research and Clinical Genetic Counselor in the MGH Center for Human Genetic Research. She provides clinical care to patients and families with neurodegenerative and neurodevelopmental conditions. She is involved in research that focuses on determining the underlying causes for many neurodevelopmental and neurodegenerative conditions. Daisy Hochberg, MS, CCC-SLP is a speech-language pathologist at MGH who provides evaluation and treatment services that aim to facilitate functional communication for patients and their families with progressive language disorders. She has worked in Dr. Bradford Dickerson’s Laboratory at the MGH FTD Unit since 2007 and her research has focused on the development of a scale to measure the presence and severity of language symptoms in this patient population. Megan Quimby, MS, CCC-SLP is a speech-language pathologist at MGH who provides evaluation and treatment services that focus on facilitating functional communication to patients with progressive language disorders. She helps run a PPA Education and Support Group and conducts research on progressive language disorders in Dr. Bradford Dickerson’s Laboratory at the MGH FTD Unit. Affiliated Faculty Stephen J. Haggarty, Ph.D is an Associate Professor of Neurology at Harvard Medical School, an Associate Neuroscientist at Massachusetts General Hospital, and Director of the Chemical Neurobiology Laboratory within the MGH Center for Human Genetic Research.
Load more

Recommended publications
  • An International Standard Set of Patient-Centered Outcome Measures After Stroke
    Original Contribution An International Standard Set of Patient-Centered Outcome Measures After Stroke Joel Salinas, MD, MBA; Sara M. Sprinkhuizen, PhD, MSc; Teri Ackerson, SCRN, BSN; Julie Bernhardt, PT, PhD; Charlie Davie, MD; Mary G. George, MD, MSPH; Stephanie Gething, Dip COT, MSc; Adam G. Kelly, MD; Patrice Lindsay, RN, PhD; Liping Liu, MD; Sheila C.O. Martins, MD, PhD; Louise Morgan, MSN, CPHQ; Bo Norrving, MD, PhD; Gerard M. Ribbers, MD, PhD; Frank L. Silver, MD; Eric E. Smith, MD, MPH; Linda S. Williams, MD; Lee H. Schwamm, MD Background and Purpose—Value-based health care aims to bring together patients and health systems to maximize the ratio of quality over cost. To enable assessment of healthcare value in stroke management, an international standard set of patient-centered stroke outcome measures was defined for use in a variety of healthcare settings. Methods—A modified Delphi process was implemented with an international expert panel representing patients, advocates, and clinical specialists in stroke outcomes, stroke registers, global health, epidemiology, and rehabilitation to reach consensus on the preferred outcome measures, included populations, and baseline risk adjustment variables. Results—Patients presenting to a hospital with ischemic stroke or intracerebral hemorrhage were selected as the target population for these recommendations, with the inclusion of transient ischemic attacks optional. Outcome categories recommended for assessment were survival and disease control, acute complications, and patient-reported outcomes. Patient-reported outcomes proposed for assessment at 90 days were pain, mood, feeding, selfcare, mobility, communication, cognitive functioning, social participation, ability to return to usual activities, and health-related quality of life, with mobility, feeding, selfcare, and communication also collected at discharge.
    [Show full text]
  • 12Th Annual of the American Synesthesia Association, Inc
    12th Annual National Meeting of the American Synesthesia Association, Inc. Harvard University Cambridge, Massachusetts October 6 – 8, 2017 Organized and Made Possible by Takao K. Hensch; and the Board Members of the ASA: Greta Berman, Edward M. Hubbard, Lawrence E. Marks, Daphne Maurer, and Carol Steen Harvard University Cambridge, Massachusetts October 6 – 8, 2017 Friday October 6, 2017 EVENING EVENTS 5:00 PM – 6:15 PM At the Door Conference Registration 6:30 PM – 8:30 PM Psyche Loui and Project LENS present: Hearing in Color: Synesthesia and the Musician Free and Open to the Public Psyche Loui, Musician, Neuroscientist; Department of Psychology, Program in Neuroscience & Behavior, Wesleyan University, Middletown, Connecticut Project LENS Co-Founders and Musicians: Ariel Mitnick, Ranier Crosett, Alan Toda-Ambaras, Cambridge, Massachusetts Harvard University Geological Lecture Hall University Museum Room 100 24 Oxford Street, Cambridge, Massachusetts 02138 RECEPTION immediately following Saturday October 7, 2017 Harvard University Geological Lecture Hall University Museum Room 100 7:30 AM – 9:00 AM At the Door ASA Conference Registration until 9:00 AM COFFEE 9:00 AM – 9:15 AM WELCOME Takao K. Hensch, Professor, Molecular and Cellular Biology, Neurology Children’s Hospital, Center for Brain Science, Harvard University Carol Steen, Co-Founder and President American Synesthesia Association Patricia Lynne Duffy, Co-Founder American Synesthesia Association Harvard University Cambridge, Massachusetts October 6 – 8, 2017 Saturday October 7, 2017 continued 9:15 AM – 9:40 AM Joel Salinas Harvard Medical School and Massachusetts General Hospital Is Synesthesia a Gift, a Curse, or a Quirk? 9:40 AM – 10:05 AM Daphne Maurer Daphne Maurer, Julian Ghloum, McMaster University, Hamilton, Ontario, Canada Face Processing in Synesthesia 10:05 AM – 10:30 AM Radhika Gosavi Radhika Gosavi, Edward M.
    [Show full text]
  • Factors Associated with New-Onset Depression After Stroke
    ARTICLES Factors Associated With New-Onset Depression After Stroke Joel Salinas, M.D., M.B.A., Alexa Beiser, Ph.D., Jayandra J. Himali, Ph.D., Jonathan Rosand, M.D., M.Sc., Sudha Seshadri, M.D., Erin C. Dunn, Sc.D., M.P.H. To better identify stroke survivors at risk for depression who may benefit from early prevention through targeted strategies in the acute-subacute poststroke period, we examined 118 Framingham Heart Study stroke survivors with longitudinal prestroke depression assessments. Among those who developed poststroke depression, most lacked a history of depressive symptoms 5 years prior to their stroke. Sex (female), advanced age, and prestroke factors (smoking and functional dependence) were associated with new-onset depression poststroke. These findings suggest fully characterizing and accounting for prestroke factors, including psychosocial and behavioral determinants, may inform the predictive modeling needed to determine whether targeted preventive trials early in stroke recovery will improve stroke outcomes. J Neuropsychiatry Clin Neurosci 2016; 28:286–291; doi: 10.1176/appi.neuropsych.15110388 Poststroke depression has been increasingly recognized as of risk factors for depression unique to stroke. Using the one of the most important consequences of stroke, as de- combination of prestroke factors and cases of new-onset – pression is common and often recurrent,1 3 associated with depression poststroke may help identify those cases where poor outcomes,4 costly,5,6 and difficult to treat given cur- an early empiric antidepressant after stroke or a behavioral rently available treatments.7 The impact of poststroke de- intervention may prevent the development of poststroke pression is perhaps most pronounced as a barrier to recovery depression.14 Candidate risk and protective factors linked to of functional status,8 independence,9 and long term survival poststroke depression have been proposed, though extant – after hospital discharge.10 12 Although antidepressants are studies are limited in three primary ways.
    [Show full text]
  • An International Standard Set of Patient-Centered Outcome Measures After Stroke
    An International Standard Set of Patient-Centered Outcome Measures After Stroke Joel Salinas, MD, MBA; Sara M. Sprinkhuizen, PhD, MSc; Teri Ackerson, SCRN, BSN; Julie Bernhardt, PT, PhD; Charlie Davie, MD; Mary G. George, MD, MSPH; Stephanie Gething, Dip COT, MSc; Adam G. Kelly, MD; Patrice Lindsay, RN, PhD; Liping Liu, MD; Sheila C.O. Martins, MD, PhD; Louise Morgan, MSN, CPHQ; Bo Norrving, MD, PhD; Gerard M. Ribbers, MD, PhD; Frank L. Silver, MD; Eric E. Smith, MD, MPH; Linda S. Williams, MD; Lee H. Schwamm, MD Background and Purpose—Value-based health care aims to bring together patients and health systems to maximize the ratio of quality over cost. To enable assessment of healthcare value in stroke management, an international standard set of patient-centered stroke outcome measures was defined for use in a variety of healthcare settings. Downloaded from Methods—A modified Delphi process was implemented with an international expert panel representing patients, advocates, and clinical specialists in stroke outcomes, stroke registers, global health, epidemiology, and rehabilitation to reach consensus on the preferred outcome measures, included populations, and baseline risk adjustment variables. Results—Patients presenting to a hospital with ischemic stroke or intracerebral hemorrhage were selected as the target population for these recommendations, with the inclusion of transient ischemic attacks optional. Outcome categories http://stroke.ahajournals.org/ recommended for assessment were survival and disease control, acute complications, and patient-reported outcomes. Patient-reported outcomes proposed for assessment at 90 days were pain, mood, feeding, selfcare, mobility, communication, cognitive functioning, social participation, ability to return to usual activities, and health-related quality of life, with mobility, feeding, selfcare, and communication also collected at discharge.
    [Show full text]
  • Annual Highlights of the Resident & Fellow Section: 2016
    Annual Highlights of the Resident & Fellow Section: 2016 A Representative Collection of Previously Published Articles Navigating Your Career: ALL ABOARD! Friday, April 15–Thursday, April 21, 2016 Vancouver Convention Centre, West Level 2 Learn about career development at every stage: from “choosing a track,” to “staying on track,” to “changing tracks” in your career. This area has something for everyone: medical students, residents, fellows, junior faculty, senior faculty, and advanced practice providers. • Learn from successful neurologists and advanced practice providers on how to establish and maintain effective partnerships • Hear from neurologists who chose careers outside of academia in areas such as teleneurology, government, and advocacy • Hone your skills in conflict resolution, giving and receiving feedback, and interviewing Faculty and Trainee Reception Saturday, April 16 Vancouver Convention Centre West, Level 1, Ballroom C&D Experience a unique place for undergraduate and graduate attendees to network with peers, find information about residency programs, on pursuing fellowships and/or careers in neurology academics, research, or practice, and get recognized for their scholarships/awards. Meet the Neurology Residents & Fellows Section editors and editorial team at the R&F booth. Table of Contents 1. RESIDENTS & FELLOWS SECTION EDITORIAL TEAM 34. MEDIA AND BOOK REVIEWS 35. Reaching Down the Rabbit Hole: Extraordinary 3. THE NEUROLOGY® RESIDENT & FELLOW SECTION 2004–2015 Journeys into the Human Brain John J. Millichap, Roy E. Strowd, Kathleen Pieper P.A. Kempster | December 15, 2015 85: e193 4. TOP 10 WAYS FOR PROGRAM DIRECTORS TO USE THE 36. MYSTERY CASE NEUROLOGY RESIDENT & FELLOW SECTION 37. A 21-year-old man with visual loss following marijuana use Sara Stern-Nezer, John J.
    [Show full text]
  • Whole Blood Microrna Expression Associated with Stroke: Results from the Framingham Heart Study
    University of Massachusetts Medical School eScholarship@UMMS Open Access Articles Open Access Publications by UMMS Authors 2019-08-08 Whole blood microRNA expression associated with stroke: Results from the Framingham Heart Study Joel Salinas Harvard Medical School Et al. Let us know how access to this document benefits ou.y Follow this and additional works at: https://escholarship.umassmed.edu/oapubs Part of the Cardiology Commons, Cardiovascular Diseases Commons, Fluids and Secretions Commons, Genetic Phenomena Commons, Nervous System Commons, Nervous System Diseases Commons, and the Nucleic Acids, Nucleotides, and Nucleosides Commons Repository Citation Salinas J, Lin H, Aparico HJ, Huan T, Liu C, Rong J, Beiser A, Himali JJ, Freedman JE, Larson MG, Rosand J, Soreq H, Levy D, Seshadri S. (2019). Whole blood microRNA expression associated with stroke: Results from the Framingham Heart Study. Open Access Articles. https://doi.org/10.1371/journal.pone.0219261. Retrieved from https://escholarship.umassmed.edu/oapubs/3963 Creative Commons License This work is licensed under a Creative Commons Attribution 4.0 License. This material is brought to you by eScholarship@UMMS. It has been accepted for inclusion in Open Access Articles by an authorized administrator of eScholarship@UMMS. For more information, please contact [email protected]. RESEARCH ARTICLE Whole blood microRNA expression associated with stroke: Results from the Framingham Heart Study 1,2☯ 1,3☯ 1,4 1 Joel SalinasID *, Honghuang Lin , Hugo J. Aparico , Tianxiao HuanID ,
    [Show full text]
  • Associations Between Social Relationship Measures, Serum Brain-Derived Neurotrophic Factor, and Risk of Stroke and Dementia
    Associations between social relationship measures, serum brain-derived neurotrophic factor, and risk of stroke and dementia The Harvard community has made this article openly available. Please share how this access benefits you. Your story matters Citation Salinas, Joel, Alexa Beiser, Jayandra J. Himali, Claudia L. Satizabal, Hugo J. Aparicio, Galit Weinstein, Farrah J. Mateen, Lisa F. Berkman, Jonathan Rosand, and Sudha Seshadri. 2017. “Associations between social relationship measures, serum brain- derived neurotrophic factor, and risk of stroke and dementia.” Alzheimer's & Dementia : Translational Research & Clinical Interventions 3 (2): 229-237. doi:10.1016/j.trci.2017.03.001. http:// dx.doi.org/10.1016/j.trci.2017.03.001. Published Version doi:10.1016/j.trci.2017.03.001 Citable link http://nrs.harvard.edu/urn-3:HUL.InstRepos:34492415 Terms of Use This article was downloaded from Harvard University’s DASH repository, and is made available under the terms and conditions applicable to Other Posted Material, as set forth at http:// nrs.harvard.edu/urn-3:HUL.InstRepos:dash.current.terms-of- use#LAA Alzheimer’s& Dementia: Translational Research & Clinical Interventions 3 (2017) 229-237 Featured Article Associations between social relationship measures, serum brain-derived neurotrophic factor, and risk of stroke and dementia Joel Salinasa,b,c,d,*, Alexa Beiserb,e,f, Jayandra J. Himalib,e,f, Claudia L. Satizabalb,f, Hugo J. Apariciob,f, Galit Weinsteinb,g, Farrah J. Mateena, Lisa F. Berkmanc,d, Jonathan Rosanda,h, Sudha Seshadrib,f aDepartment
    [Show full text]
  • Lee Kum Sheung Center for Health and Happiness
    LEE KUM SHEUNG CENTER FOR HEALTH AND HAPPINESS ANNUAL REPORT 2021 CONTENTS 2 Greetings from the Center Co-Directors 3 A Year of Change and Resilience 8 Health Equity and Well-Being 13 Social Relationships 18 Emotional Well-Being 23 Future Directions 25 People 35 Selected Publications and Presentations “The field of medicine has long focused on the prevention, diagnosis, treatment, and cure of disease. But health is more than the mere absence of disease. The emerging concept of positive health takes an innovative approach to health and well-being that focuses on promoting people’s positive health assets—strengths that can contribute to a healthier, longer life.” Robert Wood Johnson Foundation LEE KUM SHEUNG CENTER FOR HEALTH AND HAPPINESS | ANNUAL REPORT 2021 | 1 GREETINGS FROM THE CO-DIRECTORS THE LEE KUM SHEUNG CENTER FOR HEALTH AND HAPPINESS AT THE HARVARD T.H. CHAN SCHOOL OF PUBLIC HEALTH IS LEADING A SEA CHANGE IN POPULATION HEALTH, FOCUSED NOT JUST ON THE ABSENCE OF DISEASE BUT ON THE PRESENCE OF POSITIVE WELL-BEING. We are pleased to share the fifth annual report on the activities and accomplishments of the Lee Kum Sheung Center. As always, we are deeply grateful to the Lee Kum Kee family for their generous support of our work. As COVID-19 upended lives and disrupted health and wellness across the globe, we have found a renewed sense of purpose in our mission to build a rigorous and interdisciplinary science of positive health and well-being and translate this science to influence practice and policy. In a year defined by an unprecedented global public health crisis, we knew that our work must reach further than ever before.
    [Show full text]
  • View Final Program
    140TH ANNUAL MEETING CHICAGO, IL OF THE AMERICAN SEPTEMBER 27-29, 2015 ANA2015 NEUROLOGICAL ASSOCIATION THE 140TH ANA TABLE OF CONTENTS ANNUAL MEETING Enjoy outstanding scientific symposia covering the latest research in the fields LETTER FROM THE CHAIR .......................................3 of neurology and neuroscience, and take the opportunity to network with leaders in the world of academic neurology at the 140th ANA Annual Meeting in Chicago, SCHEDULE AT A GLANCE .........................................4 Illinois, September 27-29, 2015. HOTEL FLOOR PLANS ..............................................6 IMPORTANT DATES • Pre-conference Symposium: September 26, 2015 GENERAL INFORMATION .........................................8 • Annual Meeting: September 27-29, 2015 • On-Site Registration Hours: PROGRAM SCHEDULE BY DAY: Saturday, September 26 3:00 PM–7:00 PM Sunday, September 27 6:00 AM–5:45 PM SATURDAY, SEPTEMBER 26 .................................10 Monday, September 28 6:30 AM–5:45 PM Tuesday, September 29 6:30 AM–2:00 PM SUNDAY, SEPTEMBER 27 .....................................10 • Speaker Ready Room Hours: Saturday, September 26 3:00 PM–7:00 PM Sunday, September 27 6:00 AM–5:45 PM MONDAY, SEPTEMBER 28 ....................................17 Monday, September 28 6:30 AM–5:45 PM Tuesday, September 29 6:30 AM–2:00 PM TUESDAY, SEPTEMBER 29 ...................................24 • Poster Viewing Hours: Sunday, September 27 11:00 AM–7:00 PM Poster presenters will be in attendance from 5:30 PM to 7:00 PM SYMPOSIA ABSTRACTS BY DAY:
    [Show full text]
  • Synaesthesia Salon Poetry and Author Talk on July 27Th 6 - 9 Pm (Doors Open at 6, Event Starts at 6:30 Pm)
    FOR IMMEDIATE RELEASE Contact Rachel Legault July 12, 2018 Telephone 857.277.1700 Cell 617.835.4645 Email [email protected] Website www.beacongallery.com Beacon Gallery 524B Harrison Ave Boston MA 02118 Synaesthesia Salon Poetry and Author Talk on July 27th 6 - 9 pm (doors open at 6, event starts at 6:30 pm) Boston MA - July 12, 2018– Beacon Gallery is pleased that in conjunction with its current show, “Synaesthesia: Abstract Art and Creative Writing,” it will be hosting an evening of poetry and an author talk. This event will feature nine of the writers included in the Synaesthesia show. Featured writers include Matthew Goff, Olivia Kiers, Chris Lee, Naomi Mulvihill, Joel Salinas, Barbara Rosen, Anjali Shankar, Daniel Shkolnik and Teb. Each of these contributors submitted an original piece of creative writing in response to works of abstract art. Their responses are a form of synaesthesia, or the production of one sense of the body by the stimulation of another sense. Beacon Gallery was impressed by the works submitted by these authors, and we want to share their talent with you! 524B Harrison Ave | Boston, MA 02118 USA | 857.277.1700 | www.beacongallery.com Below is a sneak-peek of a few of our featured writers. Olivia J. Kiers holds a Master’s degree in the History of Art and Architecture from Boston University and is the Assistant Editor of Art New England magazine. Her poetry has appeared in Sunset Liminal, The Ekphrastic Review, Bewildering Stories, Gyroscope Review, and others. Chris Lee is a Creative Director at The Boston Group and also help organize the Synaesthesia Salon.
    [Show full text]
  • Night with the Arts for FTD
    OCTOBER 21, 2016 ROYAL SONESTA HOTEL A Night with the Arts for FTD 2016 Gala & Art Show to benefit The Frontotemporal Disorders Unit Massachusetts General Hospital From To Care Cure Photography by Joshua Touster Welcome from Governor Charles Baker October 2016 Dear Friends: On behalf of the Commonwealth of Massachusetts, I welcome you to the Second Annual “A Night with the Arts for FTD” Gala. Since 2007, the Massachusetts General Hospital Frontotemporal Disorders Unit (FTD) has cared for over 400 patients suffering from terrible diseases like Alzheimer’s, Primary Progressive Aphasia and ALS-FTD. As someone who has experienced the impact Alzheimer’s has on a family, I applaud the FTD Unit for its efforts to not just diagnose and treat frontotemporal disorders, but to help patients and their families every step of the way. Tonight’s gala, “A Night with the Arts for FTD” will showcase many talented artists and hold live auctions to raise thousands to help fund the unit, as it strives to provide the highest quality of care for patients while working towards a cure. I’d like to thank Massachusetts General Hospital and the FTD unit for its dedication to the patients and families touched by these disorders. Please accept my best wishes for a successful gala. Sincerely, CHARLES D. BAKER GOVERNOR Welcome from Brad Dickerson, MD October 21, 2016 I am delighted to welcome you to the second annual MGH FTD Unit Gala, “A Night with the Arts for FTD.” We are inspired tonight by Kemon and Sybil Sermos, Dennis White and family, and others like them who strive to maintain art and music as a central force in their lives – and as a magnet to galvanize our community – despite the challenges posed by FTD and related brain disorders.
    [Show full text]
  • Mobile Health, Broadly Defined As a Means to Monitor Patients
    Title: Feasibility and Sensitivity of a Symptom Monitoring Application in Real Time (SMART) for Amyotrophic Lateral Sclerosis Additional authors (in order):Jenna Wells, Brian Richburg, Joel Salinas, Jordan Green, Jukka-Pekka Onnela, James Berry Institution name, city, state, country of additional authors: Speech & Feeding Disorders Lab, MGH Institute of Health Professions, Boston, MA, USA; Department of Neurology, Massachusetts General Hospital, Boston, MA, USA; Department of Speech, Language, and Swallowing Disorders & Reading Disabilities, Massachusetts General Hospital, Boston, MA, USA; Department of Biostatistics, Harvard T.H. Chan School of Public Health - Harvard University, Boston, MA, USA Background: Mobile health, broadly defined as a means to monitor patients’ health status and functioning remotely, is beginning to provide novel models for gathering outcome data for clinical research. In ALS, mobile health solutions might monitor gross motor, fine motor, bulbar, and potentially respiratory function in real time. They can be used to assess subjective functional data (ALSFRS-R) more frequently than with in-person and telephone administration. Traditional observational and interventional ALS clinical research require visits every 1-3 months for clinical outcome monitoring; mobile health tools might provide continuous, objective data about patient functioning to supplement/supplant traditional outcome measures. The Onnela Lab at the Harvard T.H. Chan School of Public Health has developed a smartphone research platform called Beiwe, which can be configured to capture data from various sensors. This flexible design has facilitated its use for mobile health monitoring in a variety of diseases, including different psychiatric conditions, where pilot data already exists. Objective: We describe the design of a pilot study using smartphones to monitor the gross motor, fine motor, bulbar function, and subjective function of a cohort of people with ALS.
    [Show full text]