THE AUTISM GUIDE: The Only Guide you will ever need autism treatments, methods, organizations and approaches from Around the World Updated every 6 months!
LASTEST UPDATE : January 2015
FEATURING:
Organizations: Autism Organizations – some well known, some not - all helpful to families and teachers.
Approaches: Behavioral, Educational, and Psychological
CAM Therapies: Aromatherapy, Hyperbaric, Vision, Music, Art, Equine, Massage, biofeedback, holistic, diet
Treatment: Speech, OT, PT, Sensory Integration, Auditory Integration
Parent Organizations: Support, Advocacy, safety issues
Over 14 Pages and updated every 6 months or sooner!
Compiled and Edited by: Sally J. Colletti Advocates For Autism, NY Copyright 2013
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APPROACHES - BEHAVIORAL, EDUCATIONAL, PSYCHOLOGICAL
The Incredible 5-Point Scale www.5pointscale.com E-mail either Kari or Mitzi at: [email protected] or [email protected]
Applied Behavioral Analysis 550 West Centre Avenue, Suite 1 Portage, MI 49024 (269) 492-9310 www.abainternational .org
Center for Autism Spectrum Disorders Institute for Child Development Dr. Raymond G. Romanczyk Binghamton University campus 4400 Vestal Parkway, Vestal NY, 13850 http://icd.binghamton.edu
Autism Treatment Center of America www.autismtreatmentcenter.org 1-877-766-7473 or outside the U.S. at 001-413-229-2100
The Miller Method www.millermethod.org LCDC, Inc. 154 Wells Avenue, Suite 5 Newton, MA 02459 USA Tel: (800) 218-LCDC (5232) or (617) 965 0045 E-mail: [email protected]
DIR/Floortime Model Stanley I. Greenspan, M.D. 7201 Glenbrook Road Bethesda, Maryland 20814 (301) 657-2348 www.stanleygreenspan.com
TEACCH – Treatment and Education of Autistic and Communication Handicapped Children For general information about the TEACCH Program, please contact www.teacch.com
Relationship Development Intervention 4130 Bellaire Boulevard suite 210 Houston, Texas 77025 Toll-Free: 866.378.6405 www.rdiconnect.com
Integrated Self-Advocacy Cirriculum Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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Valerie Paradiz, PhD 4182 Adams Avenue, San Diego, CA 92116 Tel: (619) 961-7210 || Fax: (619) 563-6840 Email: [email protected]
Social Stories™ – Carol Gray 4123 Embassy Dr. SE Kentwood, MI 49546 616.954.9747 Fax: 616.954.9749 [email protected] www.thegraycenter.org
Jed Baker, Ph.D. 29 Collinwood Road Maplewood, New Jersey 07040 www.jedbaker.com
Tony Attwood, Ph.D. The Asperger's Syndrome Clinic PO Box 224 Petrie QLD 4502 Australia Phone: (61) 7 3285 7888
Valerie Paradiz, Ph.D. Autism Consulting, author www.valerieparadiz.com
Linda Mood Bell Learning Process 416 Higuera Street San Luis Obispo, CA 93401 800-233-1819 www.lindamoodbell.com
The Advanced Brain 5748 South Adams Avenue Parkway Ogden, Utah 84405, United States Email: [email protected] Phone: 801-622-5676 Toll Free: 888-228-1798
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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LANGUAGE/COMMUNICATION
American Speech & Hearing Association National Office 2200 Research Boulevard Rockville, MD 20850-3289 301-296-5700 www.asha.org
SECRTS- (Social Communication, Emotional Regulation and Transactional Support) Barry M. Prizant, Ph.D., CCC-SLP PO Box 973 Wilbraham, MA 01095 Phone: (508) 965 - 5705 Fax: (413) 279 – 1361 www.barryprizant.com
Soma® Mukhopadhyay's Rapid Prompting Method HALO PO Box 303399 Austin, TX 78703 Toll-Free: (866) 465-9595 www.halo-soma.org
Spectronicsinoz PO BOX 88 Rochedale Q 4123 AUSTRALIA Phone: (07) 3808 6833 Fax: (07) 3808 6108 Email: [email protected] www.spectronicsinoz.com
Picture Exchange Communication Systems Available worldwide 1-888-732-7462 www.pecs.com
Facilitated Communication - 350 Huntington Hall School of Education Syracuse University Syracuse, NY 13244 315-443-5268 www.inclusioninstitutes.org/fci/
Picture This – (Real Photos) [email protected] 888-777-0876 www.silverliningmm.com
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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DynaVox – Mayer Johnson (ACC Devices with Picture Symbols) Available in US, UK, CA 2100 Wharton Street Suite 400 Pittsburgh, PA 15203 866-396-2869
Visual Strategies – Linda Hogdon QuirkRoberts Publishing P.O. Box 71 Troy, MI 48099-0071 248-879-2598 www.usevisualstrategies.com
Applied Verbal Behavior Dr. Vincent Carbone 614 Corporate Way Suite 1 Valley Cottage, NY 10989 845-267-0920
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COMPLEMENTARY AND ALTERNATIVE SERVICES (CAM)
The National Center for Complementary Alternative Medicine http://nccam.nih.gov
Autism Research Institute 4182 Adams Avenue San Diego, CA 92116 1-866-366-3361 www.autism.com
Dr Kenneth Bock Rhinebeck Health Center (845)-876-7082. www.rhinebeckhealth.com
Massage Therapy
American Massage Therapy Association 500 Davis Street, Suite 900 Evanston, IL 60201-4695 Toll-Free 1-877-905-2700 Phone 847/864-0123 Fax 847/864-1178 www.amtamassage.org
Aromatherapy
National Association for Holistic Aromatherapy 3327 W. Indian Trail Road PMB 144 Spokane, WA 99208 PH: (509)325-3419 (PST) FAX: (509) 325-3479 www.naha.org
Hippotherapy – Therapeutic Horseback riding
Southern Tier Alternative Therapies, Inc. PO Box 1567 Binghamton NY 13902 www.statinc.org
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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Biofeedback
Association of Applied Psychophysiology and Biofeedback, Inc. 10200 West 44th Avenue Suite 304 Wheat Ridge, CO 80033 (800) 477-8892 www.aapb.org
International Stress Management Association (ISMA) www.isma.org US: University of Nebraska - Lincoln 135 Mabel Lee Hall Lincoln, NE 68588-0229 USA
Dietary Approaches and Gastroenterology:
Timothy M. Buie, MD Associate in Pediatrics, American Board of Pediatrics Timothy Buie, MD is a pediatric Gastroenterologist at the Lurie Center for Autism, a multidisciplinary program that treats children, adolescents and adults with autism spectrum and other neurodevelopmental disorders. Massachusetts General Hospital Phone: 617-726-8705 Or at Lexington: Lurie Center for Autism; Newton: Newton-Wellesley Hospital
The Gluten Free & Casein Free Diet (GF/CF) The GFCF Diet Support Group PO Box 1692 Palm Harbor, FL 34683 www.gfcfdiet.com
Talk About Curing Autism – Diet Tips page http://gfcf-diet.talkaboutcuringautism.org/
Feingold Association of United States and International 554 East Main Street Suite 301 Riverhead, NY 11901 800-321-3287 (U.S. only) 1-631-369-9340 (Eastern Time) www.feingold.org
Occupational Therapy and Sensory Integration:
American Occupational Therapy Association 4720 Montgomery Lane PO Box 31220 Bethesda, MD 20824 www.aota.org
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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The Spectrum Center 4715 Cordell Avenue, 3rd Floor Bethesda, MD 20814 (301) 657-0988 www.spectrumcenter.com
Occupational Therapy Associates 124 Watertown Street Watertown, MA 02472 www.otawatertown.com
Sensory Integration Global Network – Ayres Sensory Integration ® www.siglobalnetwork.org/asi.htm
Music Therapy
American Music Therapy Association, Inc. 8455 Colesville Road, Suite 1000 Silver Spring, Maryland 20910, USA Phone: (301) 589-3300 www.musictherapy.org
Stanley Jordan Music Therapy This has a full list of all international programs http://www.stanleyjordan.com/Links/MusicTherapy.html#IntlOrg
Vision Therapy
Vision Help www.visionhelp.com/autism/
The Optometrists Network ATTN: Rachel Cooper 93 Bedford Street, Suite 5D New York, NY 10014 www.visiontherapy.org American Optometric Association http://www.aoa.org/
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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College of Optometrists in Vision Development 215 West Garfield Road, Suite 200 Aurora, OH 44202 P 330-995-0718 | 888-268-3770 www.covd.org
Art Therapy: Listing of Art Therapy Links by Country: www.art-therapy.us/links.htm#International HippoTherapy/Equine Therapy American Hippotherapy Association, Inc. 136 Bush Road Damascus, PA 18415 888.851.4592 www.americanhippotherapyassociation.org
Auditory Integration AIT Institute for Berard Auditory Integration Training (Berard AIT) Available worldwide www.aitinstitute.org
AIT Resources Auditory Integration Training (AIT) Services throughout the United States, Australia, Indonesia & Malaysia P: +1.206.463.5237 25947 Gold Beach Dr. SW Vashon Island, Washington 98070 www.aitresources.com
Hyperbaric Oxygen Therapy
International Hyperbaric Medical Association Dr. Kenneth Stoller, Medical Director 4 Brunn School Rd. 40 Santa Fe, NM 87505 Phone: +1 505 955 8560 www.hbotnm.com
The Hyperbaric Therapy Center Phone: (877) HYPERTC www.hypertc.com
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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PARENT/INDIVIDUAL INFORMATION & SUPPORT
The American Epilepsy Outreach Foundation P.O.Box 31078 Chicago, IL 60631 www.epilepsyoutreach.org
Stephen Shore, Ed.D. www.autismasperger.net
Autism Support Network Autism Support Network Box 1525 Fairfield, CT 06824 (USA) Tel: (203) 404-4929
SafeMinds 16033 Bolsa Chica St. #104-142 Huntington Beach, CA 92649 Telephone: 404-934-0777 www.safeminds.org
The National Society for Epilepsy Chesham Lane Chalfont St Peter Bucks SL9 0RJ UK 01494 601 300 www.epilepsysociety.org.uk
Epilepsy Action Australia 1300 37 45 37 www.epilepsy.org.au
The Epilepsy Foundation 8301 Professional Place Landover MD 20785 (800) 332 1000 www.epilepsyfoundation.org
The Autism Society of America 7910 Woodmont Avenue, Suite 300 Bethesda, Maryland 20814-3067 1-800-3-autism www.autism-society.org
Autism Independent UK www.autismuk.com
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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Families for Early Autism Treatment www.feat.org USA and Canada
Asperger Syndrome Support (for those with AS in UK) www.assupportgrouponline.co.uk
Talk About Curing Autism (TACA) 3070 Bristol Street, Suite 340 Costa Mesa CA 92626 949-640-4401 www.talkaboutcuringautism.org
Autism Speaks – USA, UK, Middle East and Australia 2 Park Avenue 11th Floor New York, NY 10016 Phone: (212) 252-8584 www.autismspeaks.org
National Autism Association 1330 W. Schatz Lane Nixa, MO 65714 877-622-2884 www.nationalautismassociation.org
Autism Network International P.O. Box 35448 Syracuse NY 13235-5448
First Signs, Inc. P.O. Box 358 Merrimac, MA 01860 978- 346-4380 www.firstsigns.org
Ahead with Autism PO Box 599 Riva, MD 2114 410.956.5882 www.aheadwithautism.com
Generation Rescue 1-877-98autism www.generationrescue.com
Talk Autism Box 1348 Princeton, NJ 08540 www.talkautism.org
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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ASPEN – Asperger Syndrome Education Network 9 Aspen Circle Edison, NJ 08820 Phone: (732) 321-0880 www.aspennj.org
Autism United 100 W. Nicholai Street Hicksville, NY 11801 www.autismunited.org
INDEPENDENT LIVING
Advocates For Autism Sally J. Colletti Twitter, Facebook www.advocatesforautism.com
Canadian Centre on Disability Studies 56 The Promenade Winnipeg, Manitoba, CANADA R3B 3H9 Telephone: (204) 287-8411 www.disabilitystudies.ca
TASH My Life-Going FAR c/o : TASH 1025 Vermont Ave., Suite 300 Washington, DC 20005 Phone: 202-540-9020 www.tash.org
Center for Self Determination www.centerforself-determination.com
The Marquette Group www.themarquettegroup.com
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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SAFETY ISSUES:
4 Paws for Ability 253 Dayton Ave. Xenia, Ohio 45385 www.4pawsforability.org
Autism Service Dogs of America 4248 Galewood Street Lake Oswego, Oregon 97035 www.autismservicedogsofamerica.com
Assistance Dogs International 0114 261 7800 www.support-dogs.org.uk/ADUK.htm
Autism Risk Safety Management Mr. Dennis Debbaudt 2338 SE Holland Street Port St. Lucie FL 34952 772 398-9756 www.autismrisksafetymanagement.com
Online and Print NEWS AND MEDIA
Schafer Autism Report by Lenny Schafer - www.sarnet.org Autism One Radio - www.autismone.org/radio Autism Spectrum Quarterly- www.starfishpress.com Autism Spectrum News - www.mhnews-autism.org Age of Autism – Editor Dan Olmstead – www.ageofautism.com Examiner: Sally Colletti
continued on next page
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RESEARCH and TREATMENT CENTERS FOR AUTISM AND EPILEPSY
Mark R. Geier, M.D., Ph.D., FACMG, FACE Genetic Centers of America The Institute of Chronic Illnesses 14 Redgate Ct., Silver Spring, MD 20905 (301) 989-0548
Clinic for Special Children Dr. Holmes Morton Specializing in Amish and Mennonite 535 Bunker Hill Road Strasburg, PA 17579 Phone: 717-687-9407 www.clinicforspecialchildren.org
Hardy Healthcare Dr. Paul Hardy 62 Derby Street, Suite 3 Hingham, MA 02043 (781) 740-8300 www.hardyhealthcare.com
Manuel Casanova, MD University of Louisville Department of Psychiatry 500 S Preston St Bldg 55A Ste 217 Louisville, Kentucky 40292-1702 502-852-4077
Fernando Miranda, MD Bright Minds Institute 1199 Bush Street, Suite 350 San Francisco, CA 94109 Phone: (415) 561-6755 www.brightmindsinstitute.com
Boyd Haley, Ph.D. Chairman of Department of Chemistry Kentucky University (859) 257-2300 x246 http://www.chem.uky.edu/research/haley/
Jim Adams, Ph.D. Arizona State University PO Box 876006 Tempe, AZ 85287 (480) 965-3316 www.eas.asu.edu/~autism
Allan Sosin, M.D. Institute for Progressive Medicine 4 Hughes #175 Irvine, CA 92618 Telephone: 949-600-5100 Website: www.iprogressivemed.com Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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University of Minnesota S. Hossein Fatemi, MD, PhD 321 Church Street SE Minneapolis, MN 55455 http://www.neurosci.umn.edu/faculty/fatemi.html
University of Texas-Houston Medical School. Richard Frye, MD, PhD Department of Pediatrics, Division of Neurology 6431 Fannin Street MSB 3.153 Houston, TX 77030 (713) 500-7113 http://ped1.med.uth.tmc.edu/faculty/bio-Frye-Richard.html
Illinois Magnetoencephalography (MEG) Center Jeffrey Lewine, PhD 847-981-3690 or e-mail [email protected]
The Kilee Patchell-Evans Autism Research Group University of Western Ontario – Department of Psychology Dr. Derrick MacFabe, Director 1151 Richmond Street London , Ontario , Canada N6A 5C2 www.psychology.uwo.ca/autism.htm
Athens Neurological Associates Dr. Jon Poling 1086A Baxter Street Athens, GA 30606 800-929-9502 www.athensneuro.com/index.html
Center for Excellence in Autism Research Dr. Nancy Minshew Webster Hall, Suite 300, 3811 O’Hara Street, Pittsburgh, PA 15213 866-647-3436 www.wpic.pitt.edu
Dr. Darold Treffert St. Agnes Hospital 430 E. Division Street Fond du Lac, WI 54935 (920) 921-9381
The United Mitochondrial Disease Foundation The United Mitochondrial Disease Foundation 8085 Saltsburg Road, Suite 201 Pittsburgh, PA 15239 1-888-317-UMDF (8633) www.umdf.org
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Centers for Autism Treatment in the U.S. as recommended by the National Institute of Health
Research Centers
Mount Sinai School of Medicine (Multigenerational Families and Environmental Risk for Autism Network) University of California, Davis (Intervention Effects of Intensity and Delivery Style for Toddlers with ASD) University of California, Los Angeles (Adaptive Interventions for Minimally Verbal Children with ASD in the Community) University of California, Los Angeles (Autism Genetics: Increasing Representation of Human Diversity)
University of North Carolina at Chapel Hill (A Longitudinal MRI Study of Infants at Risk for Autism) University of North Carolina at Chapel Hill (Study of Oxytocin in Autism to Improve Reciprocal Social Behaviors [SOARS-B]) Yale University (Multimodal Developmental Neurogenetics of Females with ASD)
Evaluation and Treatment in addition to the above who also perform evaluations:
Lurie Center/MassGeneral Hospital (Lexington, MA) Contact: Christine Ferrone Phone: (781) 860-1715
Seaver Autism Research Center
Icahn School of Medicine at Mount Sinai Department of Psychiatry Box 1668 One Gustave L. Levy Place Ne Tel: 212-241-0961 New York, NY 10029
University of Pittsburgh Medical Center (Pittsburgh, PA) Contact: Cathy Wolfe Phone: (412) 235-5412 [email protected]
University of Rochester (Rochester, NY)/Gollisano Children's Hospital - ask for Dr. Susan Hyman Contact: Alison Diehl Phone: (585) 275-7701 [email protected]
Children's Hospital of Philadelphia (Philadelphia, PA) Contact: Kathy Pinzone Phone: (267) 426-3023 [email protected]
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
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Cincinnati Children's Hospital Medical Center (Cincinnati, OH) Contact: Terry Mitchell Phone: (513) 636-1665 [email protected]
University of Missouri (Columbia, MO) Contact: Alicia Curran Phone: (573) 884-7544 [email protected]
Nationwide Children's Hospital (Columbus, OH) Contact: Amy Hess Phone: (614) 355-8315 www.nationwidechildrens.org/autism-treatment-network
Arkansas Children's Hospital / UAMS (Little Rock, AR) Contact: Hannah Feild (501) 364-4665 [email protected]
Vanderbilt University Medical School (Nashville, TN) Contact: Nina Harris Phone: (877) ASD-VUMC (273-8862) [email protected]
Children's Hospital of Los Angeles (Los Angeles, CA) Contact: Kathryn Smith Phone: (323) 361-6102
The Center for Autism & Neurodevelopmental Disorders at UC Irvine (Irvine, CA) www.thecenter4autism.org (Santa Ana, CA) Contact: Maureen Dillon, LCSW Phone: (949) 267-040 [email protected]
Toronto ATN Site (Holland Bloorview Kids Rehab, Surrey Place Centre, Hospital for Sick Children) (Toronto, ON, Canada) Contact: Salina Eldon Phone: (416) 925-5141, ext 2270
University of Alberta and Glenrose Rehabilitation Hospital (Edmonton, AB, Canada) Contact person: Barb Traill Phone: (780) 735-8285 [email protected]
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission: Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com