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Annual Reportreport Annual2006Annual ReportReport Leading the way with comprehensive programs that empower people and families living with MS to transform and improve their quality of life. Message from the President Dear Friends, Founder—Jimmie Heuga In 2006, one of our goals was to reduce our organizational 2006 Board of Directors expenses so more of your dollars support e Heuga as of 12/31/06 Center’s programs and services. 81% of all funds raised in James Bergmann, MD Howard Brinton 2006 were spent on programs and services for people and Jonathan Feeney, MD families living with MS. Bob Gardner George Garmany, MD Our Board of Directors adopted the Better Business Bureau Patricia Kennedy, RN,CNP Brian Hutchison Wise Giving Alliance Standards for Charity Accountability, —Secretary President and CEO Andrew Malloy which dictates the program–services expenses should be at Sheila Marmion least 65%. Our 81% far exceeds these standards. Michael S. Marolt Richard Neustedter —Vice Chair Another goal was to update our strategic plan. In August 2006, e Heuga Jeff Olson— Treasurer Holly Ong Center board and staff met to discuss e Heuga Center’s strategic plan. e Gini Patterson, PT —Chair strategic plan provides important direction to e Heuga Center in all areas of Barbara Roehrig the organization. Some highlights of our plan include an emphasis on outcomes Harry Ryan measurements of programs and services to determine their effects on people John Shipp living with MS. In addition, we set out to strengthen our governance structure Michael omas and establish e Heuga Center as a top-rated nonprofit charity. 2006 Advisory Board as of 12/31/06 Several Heuga Center supporters initiated fundraisers in 2006 including 24 Bob Beattie Hours of Sunlight, CT Jamboree, e Dusty Boot’s Dine Out for MS, Colorado Tom Brokaw Footwear’s Shoe Sale with Soul, Bend Golf Blast, and Star Power Systems Golf Scott Carpenter Tournament. ese events provided diversity to our established events: Vertical John T. Chain Robert Craig Express for MS, e Heuga Center Golf Tournament, Alpen Wine Fest and the Andy Daly Annual Autumn Benefit. ese events, along with our annual giving programs, Elizabeth DeSeelhorst grant and corporate donation programs, have allowed us to continue diversifying Gary DeSeelhorst our funding and provide more programs and services for people living with MS. Don Elliman, Jr. Gerald Engle Gerald G. Gallegos We continue to provide an array of programs and services designed to address Bruce Hallett the health and wellness needs of people living with MS. Our CAN DO, CAN Dick Hauserman DO 2, and JUMPSTART programs continue to attract people from across Jan Helen the United States and Canada. e best part is that we are able to provide Richard W. Hicks, PhD Jim Hosier scholarships for programs fees to more than 90% of the programs participants, Aubyn Howe making our programs more accessible for people to attend. We have also added David Ingemie more educational content to our Web site, www.heuga.org, to make it a health Jerry Jones and wellness resource for people living with MS. Hank Kashiwa Jack Kemp Billy Kidd All of this is possible due to the support we receive from our board of directors, Jean-Claude Killey staff, volunteers, donors and programs participants. anks to all you do in Bill Marolt supporting people with MS. Warren Miller Stephanie Novosad Ed O’Brien With admiration and respect, Frala Osherow Tom Phelps Brad Quayle Randall Schapiro, MD John Tlapek Brian Hutchinson, PT, MSCS Howard Twilley President and CEO e Heuga Center for Multiple Sclerosis—www.heuga.org—pg. 2 Vision, Mission and Core Values Our vision, mission and core values were updated in 2006 by a special task force comprised of Heuga Center board members and staff members. Our Vision: e Heuga Center believes people should be empowered to lead healthy, produc- tive lives even with an incurable disease like multiple sclerosis. Our innovative and world-renowned programs provide leading edge education, skills, and motivation to help people with MS and their families achieve this goal. Our Mission: e Heuga Center leads the way with comprehensive programs that empower people and families living with MS to transform and improve their quality of life. Our Core Values: Empowerment, Positive Approach, Education, Comprehensiveness, Innovation, Effectiveness, Empathy, Responsibility Empowerment: Empower people to acquire the knowledge, tools and information they need to achieve a high quality of life and a sense of control over MS Positive Approach: Embrace a positive, “can do” philosophy and perspective that complements the traditional medical model and standard of care to address people’s mental, physical and emotional needs MS Education: Provide unique offerings to build knowledge, skills, tools and motivation for people and families living with MS Comprehensiveness: Recognize that MS affects many people, and ensure that the quality of life needs of both people with MS and their support partners are met Innovation: Deliver client-centered programs via an interdisciplinary team dedicated to developing a personalized prescription for overall health and MS management Effectiveness: Demonstrate value and impact through the practice of evidence-based medicine and achievement of the highest possible outcomes Empathy: Deliver programs and services with caring, understanding and commitment Responsibility: Demonstrate highest integrity in areas of programming, privacy, fiscal responsibility, and organizational transparency e Heuga Center for Multiple Sclerosis—www.heuga.org—pg. 3 e Heuga Center Programs “My world seemed to have been shrinking. But e Heuga Center exposed me to new ideas and possibilities and some very good, important people. Now the world is growing again.” —program participant Steve Olszyk CAN DO—e Heuga Center’s five-day CAN DO programs are intensive health and education programs that teach people with MS and their families how to take charge of their lives within the context of their disease. Programs focus on overall management of the whole person with MS, empha- sizing health, physical fitness, nutrition, psychological well-being, and social interaction. e culmination of the health program for each participant is a personalized lifestyle strategy that includes comprehensive recommendations and ways to seek out and acquire needed resources based on their specific goals. e staff-to-participant ratio guarantees that each person receives personal attention. Participants are able to speak with healthcare professionals in an intimate, relaxed environment that is rare in healthcare today. In addition to the focus on the MS participant, there is a separate track for support partners. Spouses, family members, or friends are encouraged to attend the CAN DO program with the MS participant. Special sessions are devoted to this group of support partners, addressing the unique needs, concerns, and challenges brought into their lives by a loved one with MS. “e CAN DO program was a life changing event for me and now I actually understand that I can truly live my life with MS to the greatest capacity.” —program participant Dawn Ward CAN DO 2—Because the symptoms of MS fluctuate over time, the two-day CAN DO 2 program gives the CAN DO program's past participants a way to update and modify their personal program. is educational/wellness program re-evaluates participants physical abilities, updates their current exercise and lifestyle program, and provides renewed moti- vation for maintaining health. Each CAN DO 2 program is limited to 15 participants and their support partners. “I find my strength through my faith, my family, and knowledge I’ve learned over the past few years, including knowledge learned from my experience at both the CAN DO and CAN DO 2 programs.” —program participant Debbie Moore JUMPSTART—e Heuga Center created JUMPSTART in 2000 because of the high demand for the CAN DO programs and as a cost-effective alternative for people to learn more about health promotion and wellness as they relate to MS. JUMPSTART, a one-day program, consists of educational presentations and workshops that emphasize health and wellness. Topics include disease and symptom management, exercise, nutrition, and stress management. “CAN DO helped me reach inside myself and find the courage to move on and live a full, happy, successful life.” —program participant Robin Morton JUMPSTART for kids—JUMPSTART held its first program for kids whose parents have MS in 2006. e interactive workshop focuses on education and positive strategies for living well. rough a series of activities, children experience what many symptoms of MS feel like, both physically and emotionally. ey are taught creative strategies for living positively with the disease. Children are separated into groups so that the information is provided at age-appropriate levels. Enrollment is limited to 25 families, including the children in each family. e JUMPSTART for kids is a free program and optional activities for parents are provided for a minimal fee. e Heuga Center for Multiple Sclerosis—www.heuga.org—pg. 4 2006 Programs and Events Summary Provided programs and services for 6,000 people Twenty-five fundraising events in the United States and Canada Twelve one-day JUMPSTART programs in seven states Eight health care professionals symposiums in eight states Seven patient seminars in six states Five on-line educational programs, teleconferences and pod-casts Four five-day CAN DO programs in three states and one province One international conference One JUMPSTART for kids program
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