ccanewsletter of the children’s craniofacialnetwork association Cher—national spokesperson 2017: Issue 1 inside cca kid delaney cunha ...... 2 cca teen alyssa rieger...... 3 cca supersibs dayna and tyler rieger. . . 4 gingertown dallas. . . . . 5 dallas holiday party. . . . . 6 midwest holiday gathering...... 7 message alexa’s give back campaign...... 8 from the change the world with wonder ...... 8 executive it made a difference director to that one...... 9 Individually we are rare, 3 cheers for volunteers . 10. but together we are donor in the spotlight. . 10 thankful for strong. thank you CUSD and KISD...... 16 his is the tagline for crouzon syndrome Rare Disease Day, which testimonial...... 16 By Ashley Rhodes t the world celebrates every positive exposure . . . . .17 grew up with a moderate case of Crouzon syndrome . February 28 . We celebrate calendar of events. . . . 18 iIt was both my curse and my blessing . I thought once I this day because one in 10 new wonder shirts . . . .18 finished having all my surgeries, grew up and became an Americans live with a rare retreat sponsors . . . . .23 adult that the syndrome would be behind me . disease or disorder, and 50 2016 donor list. . . . 19-23 I was wrong . percent of those patients are What I found out is it is always with you and is always children . alexis’ ice cream “Celebrate” may seem meet-and-greet. . . . . 24 a part of you . It shapes you and how you see the world . What I once hated, feared and could not wait to get rid an odd word to use for of, I am now so very blessed by, grateful for and I cannot recognizing this day, but we use it because we are imagine my life without it . celebrating the fact that we I was raised in Kentucky, the middle of three kids in a can travel this difficult road middle-class family . I was the only person in my family together . We are not alone with the syndrome . A spontaneous mutation is what it is in our moments of despair, called when you are the first person in your family to get and we are bound by the see thankful, page 12 see executive empowering and giving hope to individuals and families affected by facial differences director, page 11 ive-year-old Delaney and the Roadster Racers, fCunha is only a Elana from Avalor, Doc Kindergartener, but she is McStuffins, and Sofia the one busy girl . She really First . likes school, where she Delaney has plans for the ccakid gets to meet new friends summer . She’s headed to and play with them on the Boston for appointments playground . Her favorite and to visit her family, plus subjects are art and recess, she’s headed to Virginia and she loves riding the and Washington, DC, for bus to school . the CCA Retreat! She also After school, Delaney loves going to Orlando and goes to Extreme Youth Disney World for vacation, Sports . She has the chance too . to try a lot of different Her first etreatr was last activities like karate and year in Fort Lauderdale, dance . Over winter break, and she had so much fun all her grandparents came hanging out at the pool, to her house, which she dancing the night away enjoyed . She also went to on Saturday, and meeting Busch Gardens and had a new friends . She enjoyed super-fun time, especially the entire weekend, and so climbing in the big did her mommy and daddy . treehouse . They are counting the days In her spare time, you until this summer’s retreat! may find Delaney painting Delaney was born with pretty pictures, cooking or Pfeiffer syndrome . Even baking something yummy, though she is only five, or singing or dancing to she has some practical songs from Frozen, Doc advice for other kids going McStuffins, or anything by through something similar: Taylor Swift . Or she’ll be “Listen to your doctor and reading an Amelia Bedelia, nurse, and tell someone Pinkalicious, Curious if something is bothering George or Sofia the First you .” Well said, Delaney! book . Her favorite movies at the moment are Tangled, Despicable Me, Minions, and The Little Mermaid 1 and 2 . As for TV, she loves just about anything meet delaney on Disney Junior, cunha including Mickey Delaney with parents 2 Steve and Kelly ccateen meet alyssa rieger

y name is Alyssa both been very supportive mRieger. I am of everything that I have to 14 years old and I am go through, even though it from New Jersey . I was is hard on them too . born with Lambdoidal When I am older, I want Craniosynostosis . Since to work with children . I my diagnosis, I have enjoy playing with and had six surgeries for my teaching toddlers . They condition, including two are so much fun . I plan to cranial vault reconstructions teach kids early in life that and one frontal orbital bullying is not nice . advancement . I had my My first retreat was in latest surgery on March 30 . 2016 . It was one of the I love to bowl, and I best experiences of my life . won a state tournament I met kids who were going that led me to a national through what I was, when tournament in Chicago I had previously thought I when I was just 12 years was all alone . This made old . I also enjoy listening me feel better about myself to music . My favorite artist and made me feel good to is Selena Gomez . After know that my family and I my fifth surgery, I got to had support all over . I can’t meet her at the Children’s wait for the next retreat to Hospital of Philadelphia . see old friends and make My favorite TV show is The new ones . Vampire Diaries. I have an older sister, Dayna, and a younger brother, Tyler . They have 3 meet dayna and tyler rieger

y name is Tyler why retreat is so fun . I get mRieger. I am 10 to spend time with my years old and I am in fifth family and I make a lot of grade . My favorite things friends . I really enjoy going to do are watch YouTube and meeting new people, videos and play games . with new conditions, and When I am bored, I from new places that I can like to hang out with my hear all about . friends and family, and I feel special being the sometimes we play games . sibling of a CranioKid . I also like to watch and play My sister shows me how Pokémon . I am in band and important it is to be nice to y name is Dayna favorite people to be play the xylophone . I also everyone and teaches me Rieger and I am 15 m around . I love keeping in sing in our choir in school . how to be strong through years old . I’m a sophomore touch with friends from I’m very good at math and the worst of times . I hope in high school and am in retreat and am sad I will I get good grades . that I can help teach others band, which keeps me very miss being there with my I love my family and everything I have learned busy, but I love it . I play the family this year . friends very much and marimba and the piano by being Alyssa’s brother . Living with a sister with spend as much time with extremely well . Craniosynostosis has them as I can . That is This summer I will be been hard but can also traveling with the Jersey be cool because I always Surf Drum Corps, this is just the beginning of all that have a story to tell . I went I wish to accomplish . This to my first retreat in Ft . opportunity will bring me Lauderdale . It has helped to many cities and states me because it exposed this summer to perform . me to other people with Music is my greatest other conditions besides passion . My dream is to Craniosynostosis . I met get a degree in music amazing people and other education and then go to siblings whom I could relate law school . I’m working to . I was afraid that I was hard for the grades it takes going to feel left out, but I to achieve this goal . ended up, of course, being My friends help me with just fine . everything, and they have really been there to support me through everything my sister has gone through . I spend all my time with them, and they’re my ccasupersibs 4 gingertown dallas: a sweet holiday tradition

CA is honored to be PHOTO CREDITS: NORTHPARK CENTER cthe beneficiary of the annual Gingertown Dallas event at NorthPark Center once again . The 2016 event marks our 7th year as the recipient charity, and the theme this year was “London .” The intricate creations were displayed on the first floor of the luxury shopping center, so visitors could enjoy it as part of the art experience that NorthPark offers . Each year, teams of local architects, engineers, and design professionals build

This delightful event Mitchell, Isabel O’Neill, raised $20,494 for CCA, and Shelby Foster of and we are so grateful to NorthPark Center; everyone who participated The David M. Schwarz and donated . We extend Architects Charitable our special thanks to Foundation, and the RJ Reissig, Project Gingertown Dallas Manager of NorthPark construction crew! Management; Pamela NorthPark Gingertown Dallas-2016 Participants & Donors: a stunning miniature town when they view the display . out of candies, sweets, Nunzio DeSantis HCBeck, Ltd. We visited the exhibit and Mark E. Brohard GFF Architects, Inc. treats and, of course, captured some fun photos William R. Carroll Omniplan Incorporated gingerbread! and enjoyed seeing all Mark & Rebecca Lowry Blum Consulting Engineers, Inc. HKS Architects Nedderman & Associates Inc. The Gingertown event the kids checking out the Brazos Restoration & Waterproofing The Whiting-Turner Contracting was established in 2006 tasty town and finding Inc. Company Droese Raney Architecture, Inc. Pacheco Koch by David M. Schwarz their favorite buildings Kpost Roofing Morrison, Dilworth & Walls Architects in Washington, and recognizing London A&A Concrete Sawing CallisonRTKL Associates Inc. DC, and started in Dallas in Access By Design, Inc. Gensler landmarks . Even Santa Kpost Company Page 2010 . We are so grateful picked his favorite while WJE Associates The Theodore Restaurant for this unique and fun visiting NorthPark—the Boka Powell, Inc. Mrs. Fields Cookies Walter P. Moore and Associates, Inc. Corner Bakery event that encourages London Eye Ferris Wheel! Datum Engineers, Inc. Chick-fil-a visitors to donate to CCA Merriman Associates/Architects, Inc. Fuzziwig’s Candy Factory 5 dallas holiday party

CA, together with Drs. cJeffrey Fearon, David Genecov and Carlos Barcelo, hosted its 27th annual holiday party at Southfork Ranch, in Parker, TX . The much-anticipated event was held Saturday, which were donated by December 10, and around several local businesses . 350 attendees joined us for Prizes included tickets to the a morning full of fun! Dallas Zoo, a gift card to DJ Joe Mir was the the Magic Time Machine, entertainment, and passes to Amazing Jake’s everyone really enjoyed and more! Each year, the participating in the fun, highlight of the party is the music and games . Parents big guy from the North Pole, had just as much fun as Santa Claus, and this year the kids, especially during was no different . Children the wrap-your-mom-and- had their pictures taken dad dance competition . with Santa, and everyone Captain from the Texas went home with a toy and Rangers also joined in the keepsake photo . fun and danced with our CCA would like to thank kiddos! Southfork Ranch for Everyone enjoyed cake, hosting as well as their punch and other goodies amazing staff! Huge thanks as well as arts and crafts . go out to our wonderful The kids made crafts, and volunteers from the Italian some dads decorated their Club of Dallas, Gerardo own extra-large cookie . Seltzer, Clif Bar & Some even had their faces Company, Tyler Hanson, painted! They were also KLS Martin, Medical City able to see a real fire truck, Children’s Hospital of thanks to the Parker Dallas, Dr. Kenneth Salyer County Fire Department! and World Craniofacial Families went home Foundation . with lots of door prizes, 6 midwest holiday gathering

anta also stopped a photo of his latest poster sby at the Parkway pic taken with a celebrity, Chateau in Kenosha, this time none other than Wisconsin, to visit with our own spokesperson, CCA kids and families who Cher! gathered for a pizza lunch, Kids young and old sat crafts and visiting . Regulars on Santa’s knee for photos joined a few new families, and to tell him what they and lots of networking wanted for Christmas, and and sharing made the each received a bag of gifts afternoon successful and to tide them over until his THIS ISSUE OF THE fun . official visit, compliments of Special guest, Peggy the Jaskowiak family and CCA NETWORK IS DEDICATED Lightfoot, came to meet their Project Angel Eyes the kids and hand out gifts, NFP . Big thanks to them, IN MEMORY OF representing Cher Crew Santa, and all those who EMMANUEL GUTIERREZ, fans who raised funds attended, brought snacks during Cher’s birthday or helped in any way! A JAXSON HOFFMAN, month last May to care good time was had by all . for our kids . Our friend See you next year! AND MARISA VAN TIL Christian Scalise also came to present CCA with 7 alexa’s change the world with wonder

hanks to the incredible dedication and hard work of tCCA volunteer Carolyn Johnson, CCA now has full- campaign scale lesson plans available for middle-grade teachers lexa Rast made a pledge at the 2016 Retreat to raise wanting to use Wonder in their classroom curriculum . afunds for Retreat Scholarships for 2017 . We created This is what Carolyn says of the project: her Facebook page called, Alexa’s CCA Give Back and our I wrote this Curriculum with Classroom Guide on family surpassed our goal by raising just over $5,000 . behalf of CCA, and it is intended to accompany R.J. We held multiple fundraisers, including a lemonade Palacio’s award-winning children’s book, Wonder . I am stand, casino bus trip, online auction, a GoFundMe page, an instructional consultant with 45 years of educational and jewelry and food parties . Also, Alexa and her sister, experience as a classroom teacher, reading specialist, Hadley, collected donations instead of birthday gifts . trainer and facilitator . Most recently, I serve as an We have been blessed by the friendships we have made independent consultant providing training and technical through CCA and we know the importance of CCA assistance to schools to assist with student achievement . retreats . We are excited to give back and our next big The lessons were written and correlated to the project is our golf tournament in Modesto, CA, on May National Common Core Curriculum standards and the 20, 2017 . Please join us in FUNdraising for CCA retreat Texas Essential Knowledge and Skills, since I am a Texas- scholarships! based educator . These correlations are merely suggested skills, and, certainly, the classroom teacher can make determinations as to other skills that may be addressed . The three-dimensional graphic organizers, or “foldables,” used as performance assessments were inspired by the work of Dinah Zike and are used with her permission . Both CCA and I offer our sincere gratitude to Dinah . (See more of her work at www.dinah.com .) We also offer our sincere thanks to Jennifer Johnson, my daughter, for the design of the lesson plans . See more of her work at JenniferJohnsonArt.com . Finally, sincerest thanks to R .J . Palacio for her brilliantly written novel and for the impact that it is having on adults and children everywhere . As a parent of a child born with a facial difference, I can tell you that as more people approach the world with kindness in their hearts, the weight of being different and the associated burdens will be greatly lightened . This poignant little book is a great reminder to all of us to “Choose Kind .” 8 it made a difference to that one

n honor of Char Smith’s boy came closer still and This year we will be i27 years as Executive the man called out, “Good adding $27,000 to our Director, CCA started the morning! May I ask what it retreat scholarship fund Starfish Scholarship Fund is that you are doing?” for families to attend based on the parable, “The The young boy paused, the Retreat . The hope is Star Thrower ”. looked up, and replied that we can offer these Once upon a time, there “Throwing starfish into the scholarships to new was an old man who used ocean. The tide has washed families and families who to go to the ocean to do them up onto the beach, have been unable to his writing. He had a habit and they can’t return to attend for many years but of walking on the beach the sea by themselves,” the live in the region of the every morning before he youth replied. “When the event . We are awarding began his work. Early one sun gets high, they will die, these scholarships based morning, he was walking unless I throw them back on applications and along the shore after a into the water. nominations . big storm had passed The old man replied, If you would like to and found the vast beach “But there must be tens participate, please know littered with starfish of thousands of starfish that you too can make a as far as the eye could on this beach. I’m afraid difference . We are asking see, stretching in both you won’t really be individuals, workplaces, directions. able to make much of a teams, neighborhoods, Off in the distance, the difference.” schools and churches to old man noticed a small The boy bent down, come together and fund a boy approaching. As the picked up yet another named Starfish Scholarship . boy walked, he paused starfish and threw it as far We encourage you to every so often and as as he could into the ocean. work together to raise the he grew closer, the man Then he turned, smiled and $1,000 it takes to sponsor could see that he was said, “It made a difference a child . You have until May occasionally bending down to that one!” 15, 2017, to pledge to to pick up an object and sponsor an attendee for throw it into the sea. The this year’s retreat . 9 cheers 3 for volunteers! call from a family during your child’s surgery, visit: bit.ly/ccasurgery . Mavis is the proud grandma to Emily, 25 and Danny, 23 . She is one of the most generous, caring, friendly, and talkative donor in the spotlight people you’ll meet! She Thank you, Christian Scalise! loves to sew, crochet, knit, bake and volunteer . hristian is the founder/CEO of Country Stars Central When I asked if she’d like hank you, Denise cand Showbiz Deluxe, two websites dedicated to donate some blankets Paulson and Mavis to covering celebrity and music news and interviews . t to CCA She said “I’d love Christian first learned about CCA because of his Midwest Lura for the incredible to! How many would they (Wisconsin) connection with buddies Jill Patterson and donation of handmade like!” Mavis says that CCA her son, Robbie Gorecki . Initially he used his websites to blankets for our care means a lot to her because run advertisements for CCA to help raise awareness and packages! These comfy it has been special to funds during Craniofacial Acceptance Month . He then met and cozy blankets mean her granddaughter Emily some of the younger CCA Kids, which only increased his so much to the kids who and her family . Emily has desire to spread the word about CCA . receive them, and it is all Now, Christian continues to bring along the CCA poster Treacher Collins syndrome, the more special when on his exciting celebrity interviews and asks each famous and Mavis loves to see they are made with so face to pose with it to further spread the message of retreat photos of Emily much love . Thank you so acceptance and hope . Christian has also secured valuable with her “mini me” TCS much, Denise and Mavis donations of concert tickets and meet-and- friends! for sharing your hearts with greets, which he generously donates our CCA Kids! If you would to CCA to auction on CharityBuzz. like to sign up for a care com . His hard work has resulted package, get well card, or in hundreds of dollars for CCA, a true gift for which we are so grateful . Read our exclusive interview with Christian, and see more of his celebrity photos, on our blog, CCAKidsBlog.org . Thank you, Christian, for using your energy, enthusiasm, and celebrity sway for CCA!

10 executive director, from page 1 And possibly most yourself, and exchange text importantly, at the Retreat messages . Work together often lonely and difficult to terms with and learn this year, I challenge CCA to decide how you’ll bring decisions we face . So, each to navigate the tricky attendees to meet at least kindness back to your February, we celebrate our situations, just like five new families you’ve classrooms, clubs, teams ability to connect, share, everyone else out there . never met before . I promise and neighborhoods . Then, and ultimately, advocate However, my fervent it won’t be hard to find tell us at CCA what we can as a larger constituency to passion these days is the them, as we are projecting do to help . create the change we want second part of this Rare this to be the largest Our motto extends to see in the world . Disease theme—together, Retreat to date! It may be beyond Retreat, if you are But this slogan— we are strong. hard to step out of your reading this newsletter, Individually we are rare, but Our board of directors comfort zone and speak we are family! Let us together we are strong—is and I have big goals for up, but it will be worth it . know how we can work more than a great T-shirt to CCA­­—goals that preceded While we had 29 with you . Email me your me . It is my driving force . all of us, but that we intend scholarship families in ideas, your hopes, and your As a person with a facial to nurture and grow . Our 2016, because of support availability and together, difference, I often feel hope is that together CCA from generous donors, let’s make the world a singled out in a crowd . families support each other we have 50 this year! No kinder place . It’s up to My “individuality” is not on our journeys and bring a matter how big our group us and we are strong . a choice; it is a fact of life . powerful, joyful awareness gets, our Retreat mantra [email protected] It comes with the territory to the world that we remains, “we are family .” of living with a difference . are more alike than Please be open to the new Erica Mossholdeer Fortunately, the older I’ve different . We want our faces you see and don’t just CCA’s Executive Director gotten, the more I have community to realize that smile—go up, introduce learned that my physical when we work together, presence can invite or we can accomplish dissuade questions—and I amazing things—like can use that presence as a distributing more than tool to my advantage . 5,000 Wonder books When I’m out last year to students and representing CCA, I sending families on more welcome questions so I than 100 travel trips . can encourage others to So this is my request to see the value in the work you: We must practice we do, and help them reaching out and bringing understand why I believe others into our community we must raise funds and of kindness and hope . awareness for our kids . We must fight against However, if I am at the cliquishness and challenge grocery store or the DMV, ourselves to say, “You my presence can also can sit with me,” at every dissuade unnecessary or single lunch table across rude questions by acting America . I ask that you pass assertively, cheerfully and along a Wonder book—or politely . any book—to the newest But these are “hacks” person at your workplace, that we all employ as then invite them out for part of the individual coffee to talk about it . experience . We come 11 thankful, from page 1 becoming commonplace him he did not want to I was scared of having in homes across America . I marry me because I could a child worse than me . I had just received an email not give him a house full of was afraid I would not be address and there certainly perfectly perfect children . able to handle it . At the was not any social media . It did not matter . None of geneticist appointment, My world had been it mattered . We married in we both went through a awakened . I immediately December 2004 . series of tests . They told told my Mom I wanted to For many years, things us that the option of IVF go to a retreat . I was so were fine, just him and me . (invitro fertilization) with excited at the possibility of Then my biological clock pre-genetic implantation meeting someone else like started ticking . I did not was available . It was a me because I had never know it then, but that clock mouthful, but what did it met anyone else with would signify the beginning mean? Well for us it meant Crouzon syndrome . It was of a long journey to having a long time praying and an amazing experience, a family . Eventually, Patrick determining what was best it—lucky me . Most all of just like it is today . It gives and I, now living in South for our family . In the end, my surgeries were done in people with craniofacial Carolina, went to see a we decided against it . Charlottesville, VA, by Dr. syndromes a place to be geneticist in Charleston . If we were not going to Milton Edgerton, so we accepted . Where there You see, I always knew birth children, we would were always traveling back once was isolation, there my risks of having a child adopt . In December of and forth for appointments was now a community . with the syndrome—it 2010, we went to an and procedures . As one can imagine, for was a 50/50 shot . It was adoption seminar and The syndrome was a part people with craniofacial because of those odds had plans to begin taking of my life but certainly not anomalies, dating was not that we had not yet had classes in January . But all of it . I had a very normal always easy, but then again children . I knew full well God had something else childhood . I was a good it isn’t easy for anyone . that if I had a child with it in mind . That night, I student . I fought with my There was one particular that he/she could be less found out I was pregnant . siblings, had friends, was guy that did not pursue severe or more severe than Shocked, scared, terrified involved in all kinds of things further with me I had been . activities and even played because I was “genetically sports . I did the things that flawed ”. Shocking I know . were expected . Eventually, I But it dawned on me graduated from college and that while others may not moved away from home . have said it, they probably I made it to Tennessee, thought it . where I would work with It did get a little easier as children that had similar I became more comfortable craniofacial anomalies . in my own skin . I ended up While still in college breaking a few hearts and in the late 1990s, I got my heart broken . Then found a group on the in 2003, I met Patrick . Internet called Children’s I told him all about the Craniofacial Association . syndrome and it did not Keep in mind that the matter . When we began Internet was just then to discuss marriage, I told 12 and excited are the words I mentioned too many times use to describe it . to count, my husband I realize that many people told them that abortion have varying opinions was not an option for about people with a us so they could stop craniofacial syndrome mentioning it . We had having their own children . more appointments, tests Why would you want to and ultrasounds than I bring a child into this world can remember . I asked with something so bad? It questions that they did is too high of a risk—I truly not know the answers to . I get it—I even had people was a mom that knew too criticize me too . One girl much . made snide remarks about I asked the ultrasound my pregnancy . She did not tech to tell me how many understand how anyone sutures were closed on the could possibly be so excited baby . The tech would not about bringing a child tell me . Instead, the doctor into the world that may came in and told me that be deformed . It did not the baby had something matter . Nothing anyone called “cloverleaf” skull . I said mattered . But, what knew exactly what it meant people forget is that for the and I cried . Later, I even person with the syndrome, asked them if fluid was they are having all the passing through the baby’s In July 2011, I began canal, so some of it would same feelings that anyone nostrils . Why did I ask having complications smooth out with time . else who is expecting is that question? Because I from too much amniotic While I was wrapping experiencing . wanted to know if my child fluid . After a two-hour my mind around his skull Four months into the would be able to breath on ambulance ride to issues, the doctors and pregnancy, we found out their own or if he would Charleston, 48 hours nurses were trying to get that the child I was carrying have to be trached . My without sleep for Patrick Jack to breathe . Within a tested positive for Crouzon greatest fear was that my or me, and nearly six few minutes, my husband syndrome . We were child would have a trach . weeks premature, Jack went with the nurses up crushed . I had hoped and When the tech told me came into the world . Upon to the NICU where he was prayed that the baby would yes, I breathed a sigh of first seeing my new son, immediately intubated . He be spared . I was mad and relief that I would not have I knew his skull was bad . was stable, for now . angry . After all, I had done to worry about that . We But within a short time, Over the next few days, everything right . I had lived wanted to be fully prepared the “rose colored glasses” we were given lots of through it myself; I worked for what was coming . that all moms wear kicked information . At one point, in it; now I would have to What I quickly found out in . I convinced myself that Patrick, myself and my walk through it again, only was that I knew more maybe it wasn’t really that mom were all sitting in this time, as a mother . than they did about the bad . After all, he had just my room searching the The doctors gave us syndrome and that I would come through the birth Internet . Mom looked “options .” After the never be fully prepared for up at us and said, “What “options” had been what was about to come . see thankful, page 14 13 thankful, from page 13 we began learning how that we would live our life a difference 30 years get rid of it . The doctors we would care for him at as best as we could and makes .” She told us that told us that according to home with all the machines we would discover a new when I was born, all she the scan, his nostrils were and medical care that it normal . If we went to the got was a piece of paper completely blocked and would require . grocery store, so would he . that described Crouzon that they would never open Then there was the If we went to the mall, so syndrome and was told on their own . I shared with matter of the cloverleaf would he . I knew that if I that I would probably die, them what we were told skull . It was bad too . sheltered him, the world but if I lived I would more during the ultrasound . We were told that all his would not ever accept him . than likely be mentally When they went in sutures but one had fused . I discovered that friends disabled . But here we were for surgery, they found Due to this, his brain was we had would no longer growing and pushing out be our friends because of the one open suture on it was too difficult for top of his head . He looked them and that was okay . like one of the old Saturday I understood . Conversely, Night Live characters, the friends we would never Coneheads . His skull had have imagined would been stretched so thin that become people we would it was like “Swiss cheese” come to rely on . the doctor told us—so By March 2012, it was many holes and very little time for the frontal orbital protection . The procedure advancement—and a that the neurosurgeon shunt . By now, Jack’s head used was called the had grown quite large and “springs” procedure . It the shunt was the only was not a conventional thing to do to relieve it . procedure and very few If we did not, permanent neurosurgeons used it, but brain damage would surely ultimately we decided to set in . This surgery was in the year 2011 and we that there was indeed an go for it . After a few starts the most complicated and had all the information opening albeit a very, very and stops, it worked for the most trying for Patrick we could ask for at our small one . They put in a Jack . and me . After it was over, fingertips . I defied the nasal stint to see if it would In September, we finally we all three came home odds, and I was determined work . For three weeks, brought him home . My changed for the better . that my child would too . we waited . Jack never mom and Patrick’s mom The first year of Jack’s life In less than a week, we got better, only worse came to help us get was the hardest of mine . knew that Jack could not and worse . The stint was acclimated to being new The shunt, the trach, the breathe on his own . I spent not enough . Things were parents . We were both cloverleaf—these were my days by his bedside and bad, very bad . After nearly his parents and his nurses . all things that I did not my nights scouring the losing him, the realization Our world was forever have as a child . I knew Internet and making phone that a tracheotomy was changed . I learned that going into this these were calls looking for alternatives inevitable finally set in . how we acted and treated possibilities, but I never to a tracheostomy . I felt Surgery was set and we him would be how the thought my child would like if he went home with a were finally at peace with world would . One of the get all three . Well, he did; trach, then he would never the decision . After surgery, first things we decided was lucky him . He won the 14 that people can see . But what if he had been born normal on the outside and then a genetic mutation that manifested itself in the form of some other disease? Would I do anything less than get him the best treatment? No . Would it mean that I should have terminated the pregnancy years ago? No . Would it mean that his life is not worth living? No way . I have learned that children like Jack have a purpose . Now, I don’t know what that is, but trifecta, but he would make He has learned to answer compare his syndrome to there is a purpose . Maybe it through . There were questions about his trach other people . Instead, I see it is just simply to show so many surgeries that himself, by giving a simple, the connections he made God’s glory . The miracles year that at his 12-month “It helps me breathe,” this year with two other He can do when these checkup we were told answer . little boys his age . I see children defy the odds . The that he was functioning A close friend of ours the support he will have miracles He can do when as a 6-month-old . I kept describes Jack in the through the years whether He brings this mother telling myself he would following way, “He is just it is online or in person . I and father to their knees . catch up . I knew that like any other 5-year-old see that he will not grow Sometimes it is to show with every surgery there boy in that he runs, jumps, up feeling isolated because hope to others . Whatever would be developmental gets dirty, plays tag, gets in he is the only one . I see plans God has for Jack, I setbacks, and catch up trouble sometimes, loves a sense of normalcy and can’t wait to find out . he did . By the time he to play superheroes and is acceptance . reached 24 months, he was learning how to read—oh So, knowing what I functioning right on target . and he happens to have a know now, would I do Today, Jack is a very trach .” it over? Absolutely! Jack normal 5-year-old little boy . As CCA was a part of my is my greatest joy, and He still has his trach, but it life, I want it to be a part love can give you the has now become a part of of Jack’s as well . This past stamina to walk our lives . I am now grateful summer, my husband and through anything . for it because I believe that I were able to take Jack to His life is worth he would not be thriving his first retreat . While Jack living just as had he not had it . He is does not really get it yet, much as a child in Kindergarten this year, I certainly do . I no longer that had been and cognitively he is above see the retreat through the born without average . This year he took eyes of someone with a complications . swimming lessons and he syndrome . I see it through Jack’s syndrome is played on a baseball team . the eyes of a mom . I don’t just a genetic mutation 15 hank you Capistrano Unified School tDistrict and Katy Independent School District for participating in CCA’s Choose Kind Wonder program!

testimonial

CCA is an assembly and a special smile . Her has been very generous of the most devoted, name is Autumn . in financially supporting caring and compassionate Autumn was born with these trips . Without them, “ miracle-makers the world a severe complete bilateral they never would have has known . This team cleft lip and palate . The happened! is fueled by the love for severity of her condition Not only have they every child ever born with made it very challenging assisted us in paying for the a craniofacial anomaly . to find a surgeon with the trips but every time that we Every person on this team experience necessary to speak with Annie, CCA’s will move mountains and treat her condition . Program Director, it is just bend over backwards to After months of research a reminder of all the good do everything within their we found Dr. Mulliken at in the world . She is nothing power to help a child . Children’s Hospital Boston . short of an angel . My husband and I are Autumn has had six While we still have so very blessed to have operations, the first being several more surgeries to ery rarely in our had the opportunity to see 12-and-a-half hours long . go, Autumn is doing well . vlifetime do we have the the miracles they perform Each surgery has required Every day when we look at opportunity to experience firsthand . Back in 2007 a one-to-two-week stay in her smile we thank CCA! something truly miraculous, we were blessed with a Boston, and the lodging, and what we experienced beautiful little girl . She was airfare, transportation and The Grady Family with CCA Kids is nothing born with a heart of gold food cost combined are short of a miracle! extremely expensive . CCA 16 ” Thank you to Rick Guidotti and Bieke Kreps of Positive Exposure for attending the 2016 Annual Family Retreat and capturing these gorgeous photos for us!

Learn more about their work at PositiveExposure.org

” 17 calendar of events check it out: new date event contact wonder shirts 2017 e have redesigned our Wonder t-shirts with the April 5-6 6th Annual Morgan Meck’s anticipation of the movie coming out! You will Match Play Invitational w Coto de Caza Country Club love them! Designed by CCA Adult Jennifer Johnson Coto de Caza, CA (merchandise designer for Andy Grammer, Reba McEntire,

Apr 28 5th Annual Texas Moms’ All the Becky White Rachel Platten and more) they say, “Change the World: Way for CCA Golf Tournament [email protected] Choose Kind .” Get Wildcat Golf Club one for yourself Houston, TX online in our May 20 Alexa’s Ace for CCA Denise Rast webstore or contact Creekside Golf Course [email protected] us for school bulk Modesto, CA orders . For orders May 20 2017 “Miles for CCA Kids” [email protected] of 48 or more, Benefit Ride we can give you a Jun 29-Jul 2 27th Annual Cher’s [email protected] great discount so Family Retreat 214.570.9099 your whole class Hyatt Regency Reston 800.535.3643 can participate Reston, VA in the Kindness September 13th Annual Craniofacial [email protected] Movement . Acceptance Month 214.570.9099 Nationwide 800.535.3643

Sep 9 10th Annual National Picnic Day [email protected] 11A-1P Sandy Lake Amusement Park 214.570.9099 a living legacy Carrollton, TX 800.535.3643 e are so grateful Sep 29 10th Annual Links of Love [email protected] for those who Golf Tournament 214.570.9099 w Firewheel Golf Park 800.535.3643 have thought ahead— Garland, TX (Dallas area) many arranging planned 11:30 AM Registration, 1 PM Shotgun start giving according to their wishes—many times without even telling us . Those who have made the decision WonderWonder to champion CCA by leaving our charity in their will are providing a lasting legacy for years to come with their gifts . For this reason, we initiated the CCA Legacy Society, GiftGift for those who name Children’s Craniofacial Association as a beneficiary . Through this effort, we will chronicle information about our Legacy donors who care for our SetsSets future and the wellbeing of our CCA kids . If you wish to fill out a declaration form and become a Legacy member, please contact us . If you have already set up a bequest in CCA’s name, please allow us to include your Go to bit.ly/wondergear intentions in our records, describing your gift of security for to order yours! the future of Children’s Craniofacial Association . 18 donors, january 1 – december 31, 2016 * Lawrence Byrne Lisa Fakhry Jim Hensley Sam Langner Gifts from Anita Cain Michael & Christian Fant Marcia Hermann J.A. & Michael Lanzer Wilma & Lester Campbell Diane Farrell Jolene & Andy Herrera Kelly Larcada Individuals Kim Capek Shannon Farrell Donna Hertha Sigrid Larson Adam Campen Mark Ferguson Maryann & Todd Heston Andrea Lauber CCA Supporters Deena Carr Cary Fields Sharon Hill Rick Laude (up to $100) Danielle Cavignac Joan Finnen Beth Hilliard Jill Laufbaum Carly Ceccarelli Edward Fisher Mary Ellen Hindin Lynn Laughlin Alan Abbruzzese Gene & Jacclyn Celli Kristina Fisher Roger & Barbara Hines Jahira & Gabriella Lazo Kyle Aftimos Eunice Caswell Giulia Flerean Tracy Hinterman Triet Le Lourdes Aguiar Jennifer Cavalieri Beverly Floyd Mandie Hiznay Eileen Lee Michele Aimone Gabe Cawford Kathryn Floyd Linda Hobaugh Tanya Lee Lisa Ainsworth Mercedes Cernuda Kevin R. Forbes Jennifer Hobbs Wendy Lees Jeremy Alarcon Sara Chambers Jennifer Ford Chris Hoeffel Theresa Lehbrink Joyce Albert Chrisian Chapa Melissa Ford Jon & Karen Hoelscher Christina Lemmo Evelyn Albrecht Sherry Chapman Jane Foster Donna Holladay Andrew Lennard Sharon Albright Carolyn Chiappone Zeb Frank Susan Holman Raymond Leon David & Bonnie Alex Julian Chivas Ronald Fraioli Andrea Holt Missy Leonard Carolyn Alloway Heather Christeson Jane Franklin Janis Hood Jason Levine Tracey Alsip Melissa Ciampa James Fray Barbara Hopwood Jennifer Lewis Stephen & Vickie Ambrosch Alicia Ciccone Margaret & Michael Fredmonski Margaret Horn Andrea Liddell Justin & Samantha Ames Christine Clancy Adam Friel Salli Horst Maryann Lillis Mica Anderson Jill Clancy Mike Fuhrmann Dee Horton Christine Lindberg Anonymous John Clark Mary Gage Nancy Housteau Karla Lindblom Carol Jean Anthony Christine Clinton Heather Gagliano Jerome & Kay Hughes Danielle Lisowski Katharine Armstrong Michael Close Timothy & Sandra Gagliardo Felicia Humenik Shelly Livingston Jen Recht Lynne Cole Geraldine Gallagher Donna Hunker Jenny Locke Sue Amell M.V. Colton Regina Gallagher Christine Hunt Susan Loffredi Eileen Aroneo Patricia Cook Audrey Galletti Louis Hunter Sandra Lombardi Kristi Arth Todd & Patricia Cook Paul & Anne-Marie Galvin Donna Hurd Barbara Long Asdruba Shannon Cook Morgan Ganz Janet Hurwitz James Lonsdale Cheryl Ashburn Michelle Collar Kim Garcia Frankie & Julie Inacio Barbara Lorenz Ginny Ashby Sarah & Michael Collins Kristina Gardner Anthony Ingrassia Jeremy Lussier Joyce Ashcraft M.V. Colton Jeffrey Geisler Julie Isidro Mary Lytle Kathy Aspinall Katrina Coreces Delta Genasci Kara Jackman James & MaryJo Macaulay Taylor Aumann Scott Cornhill Brian & Kimberly Gerard Heather Jahn Patricia MacWilliams Harriett Corbett Austin Cynthia Costello Jon & Nancy Gilbeau Annette Jakubiak Naisan Madson James Austin Carolyn Craig Tina Gillum Denise Jenkins Marta Magnani Norma Avalos Cathy Cresta Sal Gionfriddo Michele Jenkins Evelyn Maina Natalie Avila Anthony Cuda Larry Giordano Fred Jennings Maria Mariana Sem & Donna Aykanian Christina Curtis Erin Gisler Dale Johnathan Linda Marie Donna Badilla Michelle Cummings Geri Gitto Arianne Johnson Linda Marowitz Dominique Baillot Jeremy Dahl Brooke Gladson Christine Johnson Claire Marquart Leslie Balber Johnathan Dale Giulia Glerean Tammy Johnson Peter Marston Diana Barnat Joann Dalessandro Dawn Glinksy Patsy Jones Kelly Martens Brenda Barnette Nick & Barbara Damico Marianne Glover & Helga Matos Sonia Joseph Jessica & Bradley Martin Ellen Barry Joyce Daniels Keith Glovins John Kapp Leon Martin Kathryn Baugher Marina Davis Sarah Goodyear Karin Karey Lynn Martin Connie Bearden Renee Davis Kara Goglia Maria Karnafel Terry Martindale Christine Beardslee Todd & Kimberly Davis Deborah Goguen A.E. Karpen Joni Martines Michael & Sherri Beasley Karen Ellen French Day John Goins Brian Keever Debbie Matera Jen Bechley Nancy Deakin Lynn Gonzales Ed Kern Deborah & Steven Mato Robert & Mary Ann Beck Casey Deakins Michelle Gonzales Brenda Kessler Ken & Tanya Mattson Raf Beckers Kathy Degner Andrea Gordon Michael & Kathryn Kevany Louraine McAlaster Jonathan Behn Diane Dehmer Julie Gosse Sarah Key Mary & Edward McCarthy Nancy Bennett Mark DeLache Gareth Gould Leslie Kliesh Sandy McClintock Brian & Cynthia Bentley Deborah De La Rosa Suzette Govin Jennifer Kilmer Susan McClure Michelle Berlin Lizsl de Leon Liane Gowen Ann Kimmell Charles McClusky Bambi Bernstein Dakota DeLeo Lynn Graham-Eagle Ted & Judy King Gary McConnel Mary Bergstraesser Darlene DeMattia Jennifer Grasso Timothy King Kelly McDade Randall Bier Kristin Demilio Kyland Emanuel Derrick Gray Ann Kinkaid Lisa McKelvy Catherine Biersack Betty DeNardo Louis Graziano Renee Kippa Audrey McKinney Zoe Bilski Courtney Deno Robert Greaves Agnes Kleinhelter Barbara McLeod Irma & Chuck Biroschak Michael Deranek Kelli Griffin Donna Klick Maggie McLinden Thomas Biroschak, Sr. Saskia DeRidder-VanHarmelen Morgan Grobis Sandy Klinger Jeff McManus Mary Jo Blackwell Jean Deserable Elizabeth Groupp Bradley Kneedler Sheri McManus Joel & Yael Blasberg Carmela Detoma Valentina Gualandi Katie Kneeland Ellen McPadden Greg Boadwine Steven & Joanne Diamond Jennifer Guarino Steve & Karen Knight William & Judy McPeek Melintha Bobrick Bianca Diaz-Hernandez Jairo Guillermo Tony Knighten Connie Meade Missy Boland Sylvia Dindayal Harry Gunner Audri Kocsis Lisette Melendez Nikki Boone Melvin & Rachel Doane Donna & Ron Haas Tina Koenig Barbara Mellendorf Margaret Bordonaro Lindsay Dobish James Haack Amy Koon Patricia Meewes Zachary Bordonaro Joseph Donoghue Nena Hagen Michele Koushan Angelica Mendoza Gayle Boring Matt Dougherty Lynne Hallanan Robin & Rachel Kral Carol Metcalf Erielle Borley Kelly Dowd Salet Handley Mary Kriss Gary Miczak Carol Borota Debra Dowdy Sheri Hanlon Denise Krum John Miner JM Bosko Nancy Dreschel Patricia Hannon Christine Krygowski Nick Mirandi Deborah Boucher Roseann Dumont Ruth Hargis Manuela Kubisch Peter & Georgette Miras Barbara Braddock & Susan Kucko Timothy Duquette Torey Harrah Ilona Kuntar Angelika Misztal Ann Bradley Renee & Adam Duvall Brandi Harris-Molin Donna Kurtz Anna Moffitt Becky Brady Lauren Dwyer Kevin Eugene Haugh & Ellen C Kolkhorst- Ladonna Liley Barbara Monroe Mr. Braun Heather Dyer Haugh Joe Lafrance Cheryl Monroy Jim Breidenbach Amy Dyke Renee Hays Judy Lake Lisa Morabito Deborah Breslow Debra Eddy Greg Haynes Simon Lamont Michele Morawski Jeremy Bridwell Elizabeth Ebeling David Helixon Massimo Lampa James Morris Christopher Brinkman Bev Edwards Brad Hemmah Amy Langevin Jillian Morris Christine Brocco Dare Edwards Karin Henry Tim Lance Leslie Morris Kristie Brong Kristine Eller Alison Morrisey Francis & Laurie Brookes Michael & Kristine Eller Andrea Mottram Joe Brooks Daniel Elliott Lynne Moulton Samantha Brooks James & Stacie Emerson Pamela Mueller Leda Brunzie Jill Emerson *Listed are all Monetary Donations. We are extremely grateful for these and all Sheri Muha Evelyn Buday Jim Endres other fees, purchases, fundraisers, cash and in-kind gifts, which may not be individually Louis & Peggy Murray Dana Bulko Carolyn Epperson recorded here. Christina Muscaritolo Keith Bullard Suehan Estrada Jennifer Mussato Kari & Stephen Burke Georgette Evans We do our best to accurately recognize donors. If you notice an error, please let us know. Doreen Myers Mark Butera Robin Fagler Carol & Michael Nagel Peggy Butterworth CFC (Combined Federal Campaign, federal-employee giving) 19 Cindy Naguib Daniel Servaty Desiree Yannone Ilona & Scott Hicks Lee-Ann Sewell Kenneth Tucker Christine Najarian Estate of Juanda Seventy Melanie Yarbrough Elaine Hochheiser Janelle Sikorski Gary Uttke Nichole Nation Dian Sharma Emma Yepez-Ziegenbalg Jon & Karen Hoelscher Helen Sims Mr & Mrs James Voss Dennis Naylor Darla Sheehan Stephenie Yeung Michael Hogan William Skarie Chris Walker Aaron Near Cindy Sherling Nicolle Zeman Von & Stephanie Honsberger Michael Slusher Steven & Petty Weiss Orit Neeman Richard & Cathy Shipley Susan Hoofnagle Anthony & Trish Snead Larry Whitler Debbie Neff Katy Siked CCA Friends Glenda Hudson Celeste Elizabeth So Kristine & Gregory Williams Carolyn Nelson Ruth Simmons ($100 +) Brian Hughes Kathryn Lee Soblewski Deirdre Zimmerman Michelle Nelson Leonard & Carol Simons Darlene & William Hunter Bob Sorbanelli Ronald & Danielle Nelson Darcy Sims Marcia Abbott Yharilei Hurtado Matt Stamatoff CCA Extended Family Diane Newman Pamela Skeen Michelle Aftimos Samuel Hurwitz Erin Stephens ($500 +) John Nickens Nicole Skinner-Graudons Brian Akins Mary & Rob Jacobson Mary Szarejko- Dorine Nicol Bonnie Slosburg Tanya Amaro Joanne Jankowski Bergstraesser Anonymous Lynn Niergarth Sharon Slovenz Chester Amedia Heather Jay Shannon Taliercio David & Melissa Baumgardner Carol Belt Niemuth Christi & Corey Smith Geoffrey & Stephanie Amsel Holly Jenkins Lorraine Thielmann Sherry Bert Rochelle Noel Donna Smith Anonymous Russell & Carol Jenna Dirk Thompson Brandon & Sandi Bicknell Robert & Mary Nugent Francis Smith Pat Arlington Kevin Jerolimic Sarah Thrower Steve Blado Maia-Aly Odette Nancy & Richard Smith Stacey Arrighi Lori Jerome Stephen Thyne Michael & Lisa Boch Erin O’Halloran Robert Smith Nichole & Carlos Aviles Brittany Jerstad Richard Urso David & Yvonne Boon Therese O’Laughlin T.K. Smith Thomas Bain Erica Jones Linda Vala Darren & Cris Bowden Elizabeth Oldroyd Regina Smolar Gabriella Baldassarre Theodore Kalivas Hermine Valizadeh Geraldine Brill Jeanne Olsen Colm Smyth Derek Barrows John Kapp Tammy VanNess Joe Briscoe Karen Orth James Sneed Christine Batt Amanda Kastern Alison Vargas Martha & James Brown Jason & Shannon Owen Gregory Sorbello Kathryn Baugher Al Keller, Jr. Stephen Venable Justin Buskirk Mary Therese Owen Meaghan Sowell Danny Baze Ed Kern Robert Vest Wincie Campbell Lee Anne Owens Karmen Spadavecchia Derek Beard Bruce Kish Paul Vickers John & Peggy Carr Robert Paige Shannon Spring Bob Bendardt Donna Klick Malte VonAnrep Denny Coker Joanne Palmiotti Patricia St Cyr S. Berg Darla Kramer Shannon Von Hasseel Martin Curran Elizabeth Paonessa Christine Stecker Tim Bicknell Dana Kurland Susan Walker Lizsi de Leon Jennifer Paris Rose Stadmiller Kim Bird Tim Lance Lindsay Wall Graham Doran Diane Parker Lloyd Stamilio Roselinda & Stephen Blood Daniel & Linda Larrick Doug Wemple Jennifer Dunn Dorothy Parker Joy Stashonsky Michael Bluzer Jean-Marc Laurin Rebecca White Daniela Flaschka Brean Pastor Lewis Steinhoff Melintha Bobrick Scott & Margaret Lavender Barbara Wiedenman Fred & Judi Freeman Deeanne & Steven Paulson Nancy & Chris Stellato Kenneth Boese Sylvia & C.K. Lawson Lee Wist Roland & Dottie Freeman Phileemon Payne Rebecca Stern Nowell & Stephanie Box Paul & Fran Leatherwood Linda Wohlford James Gawne John & Diane Pelletier Nicholas Stigliano Richard Boyle Jennifer Levine Rodney Woodman Beth Gibson Denise & John Peloquin Colleen & Donald Stimley James Boyd Juliet Lewis Rich Ziegenbalg Johnny Griego Emili Peo Walter Stranzl Lewis Boykin Jess Leyva Eric Zimeskal John Grimes Zsanett Pereces Philip Stewart Cristina & Kevin Bremer Peggy Lightfoot Jackie Halpin-Osteen Diana Perez Ingrid Strik Benjamin Michael Briscoe Jill Lloyd CCA Darryl Heckle Irma Perez Vivia Sturz Lisa Catherine Bryant Monica Lombardo Clayton & Kathy Huck Michelle Perosi Aleksandra Svet Michael Budish Amber & Matthew Long Companions Mike Huggins Andrea Peters Jennifer Sund Keith Bullard Michele & Tye Long ($250 +) Chon Kantikovit Kerri Burne Richard Kinas Carol & Joseph Pignatelli John Suslak Eric & Jennifer Luca Anonymous Jennifer Pignatelli Beth Swanson Lily Burton Anthony Manzitto Haney Labriola Larry Carpenter Bette Barbalaci Dave Larkin Julie Pignatelli Diana Sweeney Susan Martin Troy Lynn Hershman Susan Pirozzolo Keith & Samantha Tanner Nicole Chaplin Lisa McComas Jim & Sue Lavender Annie Chastain Betenbaugh Christopher Lawrence Kendra Poliska Frecia Tapia Sarah McDonagh Bilberry Family Reunion Patty Powell Missy Tatum Richard & Laurie Chiavari Timothy & Debra McKim Jodi Lindgren Terri Christie Kevin & Angela Brecher Brandon & Annie Martin Cindy Preston Vernette Tatum James McPadden Christine Brocco Phillip Price Sue Taylor Janet Ciccone Lisa Mercer Ralph Martinelli John Clupak Robin Chapurtinov Tony Martinez, Jr. Richard Pride Eleanor Tesner Ryan Mitchell Greg Crawford Marian Purcell Mary & Truman Terrell III Lynn Cole James & MaryJo Montalbano Tony Martinez Patricia Cook Scott Clarke Marcy Matson Allie Quinn Bernadette Thomas Gloria Montgomery Claire L. & Abby Cullen Helen Racowski John Thomas Stephanie Cooper Tracy Morales Elizabeth Modde Barbara Crawford Haley Daileda Natalee Morin Robert Radmore II David Thommen Cyndi Morgan George Dale, Sr. Roxanne Ragan Michelle Thompson Anthony Cuda Bruce Moore John Nickens Clifford Cummings Ruth & Gerald Francis Obrien Cathy Rain Jana Tiller Cyndi Morgan Dankelson Michelle Ramey Cheryl Tokuoka Jacqueline Cuneo Alison Morrisey James & Jennifer Oh Louis Cunningham Bonnie Dresner Steven Page David & Suzanne Rayburn Declan & Paul Tremblay Erica Mossholder Ellen Dreyfuss William Reasoner Paul Trifoso Josephine Curcio David Naranjo Jana & Hugh Peace Brian Czop M. Brian Evans Joe Pellegrini Anthony & Lisa Recchia James & Dolores Tripp Peter Nelson Heath Fisher MeG Records Justin Turner Tricia & Paul Dagenhard Robin Nichols Janette Perkins John Dalton John & Carrie Follett Dale & Kathleen Philippi Meghan Read Ross Van Der Heide Tyann Nordness Ashley Galban Mike & Sharon Reed June Vanvolkenburgh Janice Marie Delbert Joan O’Branovich Paul Pokladnik Christopher Dionisio Casey Gardner R.J.Reissig Cheryl Reeves Marcos Vargas Beverly Ohanlon James Haack Barbara Regula Regina Vassallo Sue Dolby-Dawson Maryann O’Hern Jessica Roche Sandy Deakins Darryl Heckle Jeffrey Robison J. & B.L. Riese Sally Vermette Roseann & Robert Opdyke Cheryl Hlad Jennifer Reyes Elena Vontik Marlene Deily Ann & Brad Orcutt Randolf Schafer Victor Derkach Christopher Hood Paul Schulze Laura Reynolds Sheri Voss Fernando Parra Margaret Iannelli Shawn Reynolds Sally Wackerly Richard & Michelle Dousman Edward Parrillo Melissa Sewell Byron Doyle Jessica Johnson Pat & Robin Shannon Donna Rhoades Emily Waldrop James & Leah Pasant John Kinney Jamie & Kevin Ritchey Katie Walker Jane Driver Steve Pate Alisa Shelton Jason Durrett Brian Krassa Tony Tripeny Heather Rizzo Susan Wargo Kent Penwell Leslie Lahoud Edward & Elizabeth Roberge James Waters April Elliott Erik Perks Joshua Warren Mary Lou Elspas Daniel & Anne Larkin Marcia Weber Kami Robey Dorina Watkins Susan Petersdorf Dave Larking Sabrina Robineau Jordan Watkins Athena Emirtepe Lynn Pflughoeft Rose Wiese Mike & Maria Estrada Andy Lehrer Robin Williamson Kristin Robins Jennifer Wayne Nicholas James Pignatelli Mary Lytle Steve Robinson Eric Weber Judith Fagle Amy Plummer Angela Wojtyniak Paul Fahey Joshua Mallett Frank Zeb Sheilia Roby Carolyn & Paul Weber, MD Stanley & Mary Pond Deborah Mecklenburg Michael Rodell Michael & Laura Wedekemper Shannon Farrell Stacy Powell Michele Ferguson Tina Neal Marilyn Roehrig Renee Whitelock Allie Quinn Joan O’Branovich CCA Sponsor Zuilda Roig Rose Wiese Paul Ferraioli Sherri Ramsey ($1,000 +) Frances Fisher Kathy & Jerome Penna Vincent & Marion Romano John & Remy Wilcox Denise Rast Steven Petryk & Patty Ann Romero Candace Williams Karen Fisher Tom Reeves Anonymous Bonny Flemister Andrew Hamon C. Eric & Ellie Berglund Terri Roop Carol Willliams Kristen Ressler Martin Philip Michelle Ross Sandra Williams Heather Ashley Ford Keith Rhew David & Christine Booher Bunsiri Frazier Cindy Podner William Burns Cheryl Rossi Leah Williamson Andrea Richard, D.O. The Rado Family Dana Sacco Lesley Williamson Ken Freeman William & Megan Richard Andrew Bustillo Margaret Freund Foundation Fund Alan Calaway Barbara Santiago Jennie Willmott Kenneth Richardson William & Megan Paul Savage Colleen Wilson Mary Frings Richard & Arlene Richroath Steven Charbonneau Mike Fuhrmann Richard Craig Cooper Nick Sayre Kevin Winter Julia Rodriguez Robert & Sallye Rife Cathy & Wendell Schais Helena & Andy Wlodarczyk Cauhtemoc Garcia Annie Rolwing Celeste Creager Bill Gillies Randall Riley Diana Critchlaw Melanie Scott Kim Wohanka Terri Rossman Jessica Roche Julie Scouller JoAnn Wohlert Tate Gorman Mitchell Ryan Darin & Dede Dankelson Laura Graudons Rene Rodriguez Joe Davies Connie Shewchuk Deb Wood Cindy Samhammer Patty Ann Romero Karen Schrom Wendy & James Woodard Jason Green Mark Sanborn Peggy Dear Ella Groves Socorro Sade Scot Dillon Jennie & Logan Schultice Simone Woodwell Scott & Josie Santoro Alissa Schultz Gerald & Jeanne Schumm Kirk Wooldridge Curtis Hailey Gary Scarbrough Alan Driscoll Sarah Hall Julie Scott Darryl & Deena Dyson Myron & Clara Secrest Brian Wooters John Schaff June Sweeny Rose Seitz Aimee Wright Barbara Heilman Roberta Schini Kara Edwards Arleen Heirty Andrew Tabbert Jennifer Ezzell Daphne Sellers Brenda & Edward Wright Paul Schmidt Danny & Cheryl Taylor Susan Serrao Chris & Nancy Wyant Ginger Henshall Barry Scurran Tate Gorman 20 William Gorman Todd & Patricia Cook, in honor of Joe Erica Mossholder, in honor of Char Smith’s Rose Wiese, in honor of Char Smith’s Keith Rhew David Hardt Brooks’ Birthday Retirement Retirement Heather Rizzo Ryan Henry Stephanie Cooper, in honor of Avery for Erica Mossholder, in honor of Meg Storie’s Mike & Marty Willson, in honor of Avery Lytle Patty Ann Romero Robert Kacer Retreat Birthday Lee Wist, in honor of Chelsea Wist Sal Rahway Post 5 Inc Stacey Lee George Dale, in honor of Char Smith’s Motor Casting Foundation, in honor of the Linda Wohlford, in honor of Caroline Price Dana Sacco Ann & Don Lucas Retirement Dankelson Family Chris & Nancy Wyant, in honor of all the SJV Student Council Parker Megginson Dede Dankelson, in honor of Char Smith’s Louis & Peggy Murray, in honor of Morgan volunteers Scott & Josie Santoro Susan Moul Birthday Meck Melanie Yarbrough, in honor of Erica Nick Sayre Dale Myer Dede Dankelson, in honor of Char Smith’s Tina Neal, in honor of Ashton Carter Neal Mossholder Helen Sims Matthew Osburn Retirement Ronald & Danielle Nelson, in honor of Regina Smolar Jill & Greg Patterson Janice Marie Delbert, in memory of Richard Leighton Nelson Olivia Rae’s 8th Birthday Bob Sorbanelli Erik Payne Richroath & Dianne Newman, in honor of James Meaghan Sowell John Peppard In honor of Trevor Layrs Newman, to assist children with Hemifacial Wish for CCA Rose Stadmiller Robert & Karen Reader Jane Driver, in honor of great-niece, Debra Microsomia Akaal Auto Repair LLC Frecia Tapia William Reasoner Rose “Rory” Eller Robin Nichols, in honor of Shierry Lance- American Legion Auxillary Missy Tatum Darrell & Kim Ridenour EMJ Development individuals, in memory of Laugharn American Legion Riders Post 5 United Roosevelt Savings Bank Shaun Shendauda Roger David Wincn Maryann O’Hern, in honor of Morgan Ginny Ashby Alison Vargas Amy Rowland Smith Michael & Kristine Eller, in honor of Lea Mecklenburg Donna Badilla Marcos Vargas Charlene & John Smith Cummings Diane Parker, in honor of Tami Laugharn’s Diana Barnat Sally Wackerly Stephen Smith Daniel Elliott, in honor of Rosemary Birthday Christine Beardslee Jordan Watkins Michael & Shelly Sprague Michael & Christian Fant, in honor of Ginny Jill & Greg Patterson, in honor of Joe Brooks’ Jonathan Behn Jennie Willmott Barbara Tabbert Wiese’s birthday Birthday Bob Bendhardt Helena & Andy Wlodarczyk Ryan Vallone & Jenelle Harmon Francis Fisher, in honor of Cher Jill Patterson, in honor of Char Smith’s Bambi Bernstein Kim Wohanka Bradley Walsh Kristina Fisher, in honor of Wade White Retirement Greg Boadwine JoAnn Wohlert Stony Welch Bonny Flemister, in memory of Frances Jill Patterson, in honor of Meg Storie’s Kenneth Boese Emma Yepez-Ziegenbalg Harrington Birthday Deborah Boucher Frank Zeb CCA Patron Roland & Dottie Freeman, in honor of Rob John & Sheryl Paul, in honor of Char Smith’s James Boyd Rich Ziegenbalg ($2,500 +) Gorecki Retirement Keith Bullard Joe & Sally Anderson Mary Frings, in honor of Monica Shelton & Erica Mossholder’s promotion Carteret PBA Local 47 In Honor of Cher’s Birthday Gregory Bonnell Geraldine Gallagher, in honor of Vienna Dan & Denise Paulson, in honor of Char Jennifer Cavalieri Anonymous Michael Carr Caldwell Smith Melissa Ciampa Stacey Arrighi Kris & George Dale Paul & Anne-Marie Galvin, in memory of Lily Denise & John Peloquin, in honor of Joe Alicia Ciccone Asdruba Tracy Kish Ann Haley Brooks Janet Ciccone Dominique Baillot Gary & Nancy Merrill Elsie Garcia, in honor of Randy Urbay & John & Diane Pelletier, in honor of Camryn Christine Clancy Troy Lynn Hershman Betenbaugh Bret Pardue designated for Retreat Berry Jill Clancy Jen Bechley Doug & Shelley Potter Sal Gionfriddo, in memory of Dorothy Depel Diane Perez, in honor of Roy Scott Cornhill Zachary Bordarno Schrum Family Fund of Triangle Community Christine Gorman, in honor of Louis & Susan Petersdorf, in honor of Molly Cynthia Costello Ann Bradley Foundation Margaret Henschel Stanley & Mary Pond, in honor of Jackson Anthony Cuda Mr. Braun Mike & Marty Willson Tate Gorman, in honor of John Gorman Pond’s Birthday Michelle Cummings Joe Brooks Tate Gorman, in honor of Char Smith’s Cindy Preston, in memory of Stephanie Jeremy Dahl Leda Brunzie Retirement Sumpter Joann Dalessandro Mark Butera CCA Benefactor Joyce Daniels ($5,000 +) Jackie Halpin-Osteen, in honor of John Phillip Price, in honor of Caroline Larry Carpenter Gorman Sherri Ramsey, in memory of Ricky Potter Renee Davis Gabe Cawford Maria Amelio Jackie Halpin-Osteen, in honor of John Anthony & Lisa Recchia, in memory of Lily Kristin Demilio Carolyn Chiappone Bob & Paula Guzzo Gorman, and in lieu Ann Haley Michael Deranek Laurie Chiavari Greg Luetkemeyer of Christmas gifts for daughter Holly Annie Reeves, in honor of Joe Brooks’ Sylvia Dindayal Jacqueline Cuneo John & Sheryl Paul Ruth Hargis, in honor of Shierry Lance- Birthday Lindsay Dobish Deborah De La Rosa Dan & Denise Paulson Laugharn Annie Reeves, in honor of Char Smith’s April Elliott Courtney Deno Jacob Tremblay Arleen Heirty, in memory of Elizabeth Barry Retirement Georgette Evans Aaron Diener Arleen Heirty, in memory of Ben Johnson Donna Rhoades, in memory of Donovan Lisa Fakhry Sue Dolby-Dawson Arleen Heirty, in memory of Linda Rhoades Shannon Farrell Mark DeLache CCA Guardian Cary Fields ($10,000 +) Arleen Heirty, in memory of Michael Richard & Arlene Richroath, in honor of Saskia DeRidder-VanHarmelen Arleen Heirty, in memory of Joan Zaranti Trevor Larys Fine Line Transportation Ellen Dreyfuss Nellie Coudare Estate Ilona & Scott Hicks, in memory of Rose Kenyi Darrell & Kim Ridenour, in honor of Colette Ken Freeman Timothy Duquette & designated for Financial Assistance Lopez Adam Friel Amy Dyke Chris Hoeffel, in honor of Francis Smith’s Julia Rodriguez, in honor of Beth Henschel Heather Gagliano Debra Eddy CCA Shepherd Birthday Julia Rodriguez, in honor of Louis & Larry Giordano ($35,000 +) Dare Edwards Jon & Karen Hoelscher, in memory of Lily Margaret Henschel Geri Gitto Jill Emerson Julia Rodriguez, in honor of Rose & Travis Dawn Glinksy Robert Engelhorn Estate Ann Haley Jim Endres Michael Hogan, in memory of Margaret Killion Kara Goglia Mark Ferguson Bill & Christine Mecklenburg Hogan Jeffrey Robison, in honor of families touched John Goins Karen Fisher Christopher Hood, in honor of Trevor Laryrs by Craniosysostosis Gareth Gould Daniela Flaschka Janis Hood, in honor of Team Lentil Michael Rodell, in honor of Jenna Rodell Jennifer Grasso Fred & Judi Freeman Memorials / Glenda Hudson, in honor of Tami Laugharn’s Marilyn Roehrig, in memory of Paul Roehrig Louis Graziano Beverly Floyd Birthday Zuilda Roig, in honor of son, Gabe Roig Elizabeth Groupp Heather Ashley Ford In-Honor Gifts Brian Hughes, in memory of Tobyn Paul Brill Elizabeth Scheu, & Kniss in memory of Paul Jennifer Guarrino Giulia Glerean Those with ten or more are Jerome & Kay Hughes, in memory of Brian Roehrig Louis Hunter Deborah Goguen subheaded Leslie Roberta Schini, in honor of Samantha Wayne Anthony Ingrassia Asdrubal Gonzalez Rodriguez Russell & Carol Jenna, in honor of Elizabeth Paul Schmidt, in honor of Peter Dankelson Sonia Joseph Julie Gosse Stephen & Vickie Ambrosch, in honor of Dalton Gerald & Jeanne Schumm, in memory of Timothy King Lisa Gretano Claire Lillian Lewis Joanne Jankowski, in memory of Richard Dorothy Depel Bruce Kish Morgan Grobis Geoffrey & Stephanie Amsel, in honor of Richroath & Julie Scott, in honor of Cliare Lillian Lewis Tina Koenig Paula Guzzo John Gorman In honor of Trevor Layrs Rose Seitz, in honor of Joe Brooks’ Birthday Denise Krum Scott Guzzo Ansell Healthcare Products, in honor of Amanda Kastern, in honor of Nathaniel Rose Seitz, in honor of Meg Storie’s Birthday Ilona Kuntar Nina Hagen Becky White Beitzel Patty & Mike Shay, in honor of Dorothy Joe Lafrance Jim Hensley Kristi Arth to Sydney’s Dance for Acceptance, Jennifer Kilmer, in honor of Char Smith’s Riordan Andrea Lauber Tracy Hinterman in honor of Erica Mossholder Birthday William Skarie, in honor of Jameson Jahira & Gabriella Lazo Linda Hobaugh James Austin, in memory of Dorothy Depel Ann Kimmell, in memory of Ricky Potter (“Jameson’s Journey”) Eileen Lee Georgette Hohl Sem & Donna Aykanian, in memory of Lily Ted & Judy King, in honor of Francis Smith’s Pamela Skeen, in honor of Shierry Lance- Jason Levine Donna Holladay Ann Haley Birthday Laugharn Barbara Long Dee Horten Ellen Barry, in memory of Paul Roehrig Donna Klick, in memory of Ricky Potter Sharon Slovenz, in honor of Trevor Layrs & in Evelyn Maina Terry Hughes Michael & Sherri Beasley, in honor of Audri Kocsis, in honor of Parker memory or Richard Richroath Peter Marston Heather Jay Kimberly Beasley Jean-Marc Laurin, in honor of Jérémy Gabriel Robert Smith, in honor of Francis Smith’s Terry Martindale Lori Jerome Nancy Bennett, in honor of Mark Randell Margaret Lavender, in honor of Char Smith’s Birthday Audrey McKinney Brittany Jerstad Cathy Biersack, , in honor of Joe Brooks’ Retirement T.K. Smith, in honor of Meg Storie’s Birthday Jeff McManus Darla Kramer Birthday Jennifer Levine, in memory of Roger David Anthony & Trish Snead, in memory of Richard Connie Meade Brian Krassa Kim Bird, in honor of Parker Wincn Richroath & Gary Miczak Mary Kriss Mary Jo Blackwell, in memory of Paul Shelly Livingston, in honor of James Culp In honor of Trevor Layrs Nick Mirandi Manuela Kubisch Roehrig Megan Mahoney, in honor of Sophia Lewis Steinhoff, in honor of Joe Brooks’ Cheryl Monroy Rick Laude Booster Funder, in honor of Peter & Jacob Susan Martin, in memory of Ellery E. Walker Birthday Christina Muscaritolo Andrew Lennard Dankelson’s Birthdays Ken & Tanya Mattson, in honor of Ryan June Sweeny, in memory of Antoine Aparicio Cindy Naguib Peggy Lightfoot Margaret Bordonaro, in honor of Zachary Gulich, Jr. Keith & Samantha Tanner, in memory of Paul Carolyn Nelson Susan Loffredi Francis & Laurie Brookes, in memory of Ellen McPadden, in honor of Jeremy Dale Roehrig Maia-Aly Odette Sandra Lombardi Dorothy Depel Bill Mecklenburg, in honor of Tracy Carragher Lee-Ann Sewell, in honor of Shierry Laugharn Erin O’Halloran James Lonsdale Anita Cain, in memory of Sonny Bill Mecklenburg, in honor of Char Smith’s Elena Vontik, in honor of Anna Marie Wong PBA Honorary Local 47 Barbara Lorenz Larry Carpenter, in honor of Cher for the Retirement Susan Walker, in memory of Ellery Walker Elizabeth Paonessa Linda Marie holidays Lisa Mercer, in honor of Mark Elzey Jennifer Wayne, in honor of Sammi Wayne Edward Parrillo Leon Martin Eunice Caswell, in honor of Trevor Layrs & in Angie Mendoza, in honor of Joe Brooks’ Steven Weiss, in honor of Char Smith’s Brean Pastor Ralph Martinelli memory of Richard Richroath Birthday Retirement Irma Perez Debbie Matera Robin Chapurtinov, in honor of Brandon Elizabeth Modde, in memory of Howard & Westfield State University Dance, in memory Jan Perkins Darren Mathews Joe Brooks, in honor of Char’s Birthday Eldora Niedermiller of Lily Haley Michelle Perosi Sarah McDonagh Joe Brooks, in honor of Jill Patterson’s & Rob James & MaryJo Montalbano, in honor of Barbara Wiedenman, in memory of Jennifer Rahway Post 5 American Legion David McGill Gorecki’s Birthdays Jennifer Montalbano Small Walker Barbara Regula 21 Lisa McKelvy Jane Foster Karen Schrom Angie Mendoza Bethlehem United Methodist Maggie McLinden Margaret Fruend Melanie Scott Erica Mossholder Brotherhood of St. Anthony #30 Angelika Misztal Mary Gage Dian Sharma Jill Patterson Joan Bullard Realty, Inc. Anna Moffitt Regina Gallagher Darla Sheehan Jana Peace Burley Oak Brewing, LLC Gloria Montgomery Morgan Ganz Cindy Sherling Amy Plummer Carteret PBA Local 47 Lisa Morabito Carly Gerstman Connie Shewchuk Cindy Podner Citigroup Cyndi Morgan Tina Gillum Ruth Simmons Sabrina Robineau Cole Investigative Agency James Morris Lynn Gonzalez Bonnie Slosburg Julie Scouller Cole Legal Group Sheri Muha Sarah Goodyear Donna Smith Rose Seitz Communities Foundation of Texas Orit Neeman Suzette Govin Gregory Sorbello Char Smith Diamonds in the Rough Janet Novick Lynn Graham-Eagle Ingrid Strik Robin Williamson Dickweed Motorcycle Club Jeanne Olsen Valentina Gualandi Vivia Sturz Ann & Joe Zaengle Ekvall & Byrne, LLP Jill Patterson Lynne Hallanan Aleksandra Svet Elizabeth Scheu, & Kniss Emili Peo Salet Handley Beth Swanson In Memory of Doretta Fidelity Charitable Gift Fund Zsanett Pereces Sherri Hanlon Diana Sweeney Fine Line Transportation Lynn Pflughoeft Patricia Hannon Mary Szarejko-Bergstraesser Hughson Funding Factory Patty Powell Brandi Harris-Molin Vernette Tatum Brian & Cynthia Bentley GST Boces Robert Radmore II Greg Haynes Sue Taylor GST Boces Goodshop MeG Records Karin Henry Bernadette Thomas Barbara Braddock & Susan Kucko Great Western Valve, Inc. Kenneth Richardson Jolene N. Andy Herrera Michelle Thompson Wilma & Lester Campbell HTM Conservator Rene Rodriguez Donna Hertha Sarah Thrower Betty DeNardo Heart of Illinois United Way, Inc. Annie Rolwing Sharon Hill June Vanvolkenburgh Jon & Nancy Gilbeau Hewlett Packard Enterprises Terri Roop Mary Ellen Hindin Regina Vassallo Robert Greaves Hanson Professional Services Michelle Ross Jennifer Hobbs Sheri Voss Horizon Solutions LLC Horizon Solutions LLC Terri Rossman Elaine Hochheiser Sally Wackerly Ken & Tanya Mattson Hunt Consolidated Mike Ruckinger Susan Holman Katie Walker Elizabeth Oldroyd GE Foundation Mitchell Ryan Janis Hood Susan Wargo Mary Therese Owen iGive Gary Scarbrough Sue Hoofnagle Renee Whitelock Roxanne Ragan Grace & Young Partners, LLC Daniel Servaty Margaret Horn Candace Williams SHS Faculty / Sunshine Club ISB Capital, LLC Janelle Sikorski Sallli Horst Carol Willliams Leonard & Carol Simons Jay C Service, Inc. Shannon Spring Nancy Housteau Sandra Williams Victory Highway Wesleyan Church Jefferson Lumber & Millwork Nicholas Stigliano Felicia Humenik Lesley Williamson Wellsburg Volunteer Fire Dept Auxillary The Kidney Group, Inc. Lorraine Thielmann Donna Hunker Simone Woodwell Kogan-Mellis Family Charitable Fund David Thommen Janet Hurwitz Desiree Yannone In Memory of Jennifer Kohnen Air Conditioning & Heating, Inc. Linda Vala Julie Isidro Stephenie Yeung Kroger Ross Van Der Heide Heather Jahn Litteken Latern Street Grill & Tap House Paul Vickers Annette Jakubiak In Honor of Jakob American Federation Employees Local 494 Laucius & Associates James Waters Tammy Johnson Joyce Ashcraft Law Offices of William W Bruzzo Doug Wemple Brenda Kessler Graudons’ Birthday Kevin & Angela Brecher Liberty Burger Abrams Pkwy Leah Williamson Sarah Key Mercedes Cernuda Samantha Brooks Liberty Burger Allen Inc. Deb Wood Ann Kincaid Sara Chambers Joan Bullard Realty, Inc. Liberty Burger Forest Ln Aimee Wright Renee Kippa Jennifer Ford Adam Campen Liberty Burger Keller Springs Leslie Kliesh Liane Gowen Darlene DeMattia Liberty Burger Shire / Richardson Team Lentil / In Honor Tony Knighten Laura Graudons Debra Dowdy Macy’s East Amy Koon Christine Lindberg Todd & Kimberly Davis Marathon Petroleum Company, LLC of Lentil’s Third Birthday Dana Kurland Michelle Nelson Hansson Professional Services Metal Parts & Equipment Co. Michele Aimone Donna Kurtz Shawn Reynolds Jon & Karen Hoelscher Microvention Lisa Ainsworth Simon Lamont Steve Robinson Kohnen Air Conditioning & Heating, Inc. Munoz Family Realty Joyce Albert Massimo Lampa Patricia St. Cyr Erik Perks National Christian Foundation, Houston~ Donor Tracey Alsip Tim Lance Barbara Santiago Mike & Sharon Reed Advised Fund Sue Amell Kelly Larcada Nicole Skinner-Graudons Richard & Cathy Shipley Network for Good Pat Arlington Sigrid Larson Jennifer Sund Hermine Valizadeh New Jersey Manufacturers Insurance Co Kathy Aspinall Jill Laufbaum John Suslak Michael & Laura Wedekemper New York Life Insurance Norma Avalos Lynn Laughlin OP4G Natalie Avila Triet Le In Honor of Torey In Memory of Fred Seitz, Sr. One Body Matrix Leslie Balber Tanya Lee Chester Amedia The Options Clearing Corporation Gabriella Baldassarre Christina Lemmo Harrah’s Birthday Mary & Robert Beck Orange County United Way Brenda Barnette Raymond Leon Kim Bird Irma & Chuck Biroschak PASCO Kathryn Baugher Missy Leonard Smyth Colm Thomas Biroschak, Sr. PBA Honorary Local 47 Connie Bearden Andrea Liddell Steve Cunha Becky Brady PFSA Council 7 Raf Beckers Ladonna Lilley Casey Deakins Nick & Barbara Damico PRV Rentals Carol Belt Niemuth Maryann Lillis Deena Dyson Edward Fisher Partner Reinsurance Michele Berlin Karla Lindblom Mary Lou Elspas James Fray PayPal Giving Fund Randall Bier Renee Lippa Michelle Gonzales Jeffrey Geisler Pedison Capital Fund Zoe Bilski Danielle Lisowski Susan Hoofnagle Marianne Glover & Helga Matos Pike Home and School Melantha Bobrick Barbara Long Nancy Housteau Donna & Ron Haas Pioneer Natural Resources USA, Inc. Nikki Boone Melissa Love Kara Jackman Maryann & Todd Heston Portugese Fraternal Society of America Gayle Boring Naisan Madson Ed Kern Mandie Hiznay Prudential Employee Giving/Matching Carol Borota Maria Mariani Jennifer Kilmer The Kidney Group, Inc. Rahway Post 5 American Legion Christine Brocco Linda Marowitz Sigrid Larson Christine Krygowski Run Canton, Inc. Kristie Brong Joni Martines Erica Mossholder Cathy & Wendell Schais Rush University Medical Center Evelyn Buday Lauraine McAlaster Beverly Ohanlon Chris & Nancy Stellato SAL Rahway Post 5 Inc Peggy Butterworth Sandy McClintock Janette Perkins Eleanor Tesner SHS Faculty / Sunshine Club Kim Capek Susan McClure Cheryl Rossi John Thomas SJV Student Council Carly Ceccarelli Sheri McManus Rose Seitz James & Dolores Tripp Southern Star Capital LLC Nicole Chaplin Carol Metcalf Sally Wackerly XCD Management Services Southwest Stainless & Alloy Sherry Chapman John Miner Mary Zimmerman Specialty Tank Services Annie Chastain Barbara Monroe State Farm Companies Foundation Terri Christie Michele Morawski In Honor of Annie Corporate/ Sugarskull, LLC Michelle Collar Jillian Morris Reeves’ Birthday Irby N & Marion Taylor Foundation Harriet Corbett Austin Leslie Morris Foundation Gifts Time Tech Katrina Coreces Kyle Aftimos Lynne Moulton Michelle Aftimos Truist, Citigroup & Macy’s Employee Giving Cathy Cresta Pamela Mueller Tuolumne Band of Me-Wuks Marina Davis Jeremy Alarcon CCA Corporate/Foundation Jennifer Mussato Sharon Albright United Roosevelt Savings Bank Lizsl de Leon Doreen Myers Friends United Way California Capital Region / Directed Nancy Deakin Mica Anderson up to $1,000 Aaron Near Anonymous Donations Kathy Degner Debbie Neff United Way of Central Ohio / Directed Donations Diane Dehmer Taylor Aumann Abraham Joshua Heschel School Karen Orth Joe Brooks United Way of Greater Philly & South New Jersey Dakota DeLeo Lee Anne Owens Acacia Insurance Managers, LLC / Directed Donations Jean Deserable Kelly Dowd Adkerson, Hauder & Bezney, P.C. Jennifer Paris Fred & Judi Freeman United Way of the Southern Tier / Directed Matt Dougherty Janette Perkins Akaal Auto Repair LLC Donations Nancy Dreschel Brooke Gladson Albertsons Safeway Andrea Peters Michelle Gonzales Verizon Roseann Dumont Marian Purcell Allstate-The Giving Campaign Jim Wade Investments Heather Dyer Kelli Griffin AmazonSmile Foundation Helen Racowski Renee Hays Wells Fargo Community Support Campaign Bev Edwards Kathy Rain American Express Foundation / Employee Giving XCD Management Services Mary Lou Elspas Arianne Johnson & Matching Michelle Ramey Patsy Jones YourCause Corporate Giving Carolyn Epperson Meghan Read American Federation Employees Local American YourCause, PWC Employee Giving / Matching Suehan Estrada Karin Karey Legion Auxillary Cheryl Reevs Ed Kern YourCause, AT&T Employee Giving Robin Fagler Kristen Ressler American Legion Knowles Doyle Zanesville Gymnastics, LLC Joan Finnen Sandy Klinger American Legion Riders Post 5 Luis Rivero Zubira Jenny Locke Judith Fagle Kami Robey Anonymous Kathryn Floyd Annie Martin AT&T Sheilia Roby Kelly McDade Melissa Ford Cheryl Rossi BEHCO-MRM 22 From Steven Petryk & Andrew Hamon CCA Corporate/Foundation Lemonade for a Cause / Amelia Gerard CCA Sponsors Volunteer $1,000-$5,000 Selma’s Pizzeria Restaurant Fundraiser / Mecklenburg Family 212 Management Group Seth’s Stride / Stacy & Barry Horne & CCA Kid, Seth Bristol-Myers Squibb Foundation Swihart & Sibs Clif Bar Char Smith’s Surprise Birthday Fundraiser / Joe CRB Construction Brooks Charitable Auto Resources, Inc. (Auto Donations~Funds Francis Smith Birthday Funder / Francis Smith, PHD listed as donations by Donors) Meg Storie’s Birthday Funder / Meg Storie Combined Federal Campaign Westside Terrace Denim Day Funder / Daphne Sellers Corning, Incorporated Foundation in honor of Lane Rosser Credit Union of Texas Dallas Children’s Charities / Margarita Society $1,000-$5,000 Dell (Employee Giving / Matching) Chance Raffle / Retreat Attendee Families Deutche Bank Americas Foundation (Employee Match) Paint Nite CAM Funder / Dyson Family annual EMJ Development Principals & Employees September fundraiser Epic Health Services, Inc. Torey’s Birthday Funder / Torey Harrah FairLease Angela Wojtyniak Life Expressions party / Jill Allevato L Hall THB Group rep The June and Cecil McDole Charitable Fund Alexa’s Give Back for CCA Kids / Denise Rast, CCA KLS Martin LP Kid, Alexa Rast The John Lazarich Foundation Sydney’s Dance for Acceptance / Sydney The June and Cecil McDole Charitable Fund Motor Casting Foundation NMS Data, Inc. $5,000 or more Partner Reinsurance Co. are Package (& More) GoFundMe for CCA Kids / Praxair, Inc. Petty & Steven Weiss Praxair Employee Matched Gifts CherCrew Birthday Surprise for Cher to benefit R & J Management, Inc. CCA Kids Razoo Foundation Friends of Jeremy “Unevent” Fundraiser / George & Republic National Distributing Company Foundation Kristine Dale Schwab Charitable Fund (donor advised funds Lentil’s 3rd Birthday Fundraiser for CCA / Lindsay management contributions) Condefer , Lentil / Team Lentil The Servants Heart Foundation Miles for CCA Kids / Lewis Boykin, DWMC & 2nd SES Inc Brokerage Services Sunday Biker Church / Rob Gorecki Shell Oil Company Foundation/Employee Giving/Matching Olivia Rae’s 8th Birthday Wish Fundraiser for CCA / Shelton Services Inc. Olivia Rae Vargas Spiegel Properties Raegan’s Rally / Ashley & Boz Daugherty / CCA Kid, TOPA Insurance Company Raegan Daugherty, family & friends Victory Highway Wesleyan Church Annual “Links of Love” Golf Tournament / Children’s Westfield State University Craniofacial Association Willis Foundation Martin Woodall Foundation, Inc. $50,000 or more All The Way For CCA / Becky White, Lisa Bock, Jennifer Kilmer CCA Corporate/Foundation 5th Annual Morgan Meck’s Match Play Golf Partners Invitational / Mecklenburg Family $5,000+ The Theodore and Beulah Beasley Foundation The Chatlos Foundation Diamonds In The Rough Everguard Insurance Human Investments Org M D Inshallah Trust W.P. and Bulah Luse Foundation MM The Tony Stewart Foundation, Inc. United Fire Insurance Co The Veritas Trust registration is now CCA Corporate/Foundation Partners $10,000+ open for 2017 cher’s Ansell Healthcare Products Stephen and Mary Birch Foundation The David M. Schwarz Architects Foundation annual family retreat Wheeler Foundation June 29-July 2 Fundraising Events & in Reston, Virginia Other Efforts Up to $1,000 Please join us for an educational symposium, Bar Mitzvah & Bat Mitzva Tzedaka Donations / Abraham Joshua Heschel School ice cream social, dinner/dance and much more! “Be Brody’s Angel” Fundraising Effort / CCA Kid, Brody Lucas & Family Run Participant to benefit CCA / Nicole Abalde, CCA For more information, Volunteer Fundraiser Joe’s Birthday Funder / Joe Brooks please contact Annie Reeves, Booster “ChooseKind” Shirt/Cap Sale / Dede Dankelson CCA Mom & Volunteer Greg Caldwell Cash Collections for CCA / Vienna [email protected] Caldwell, CCA Kid CAM Pin & Keychain Sales / Dorina Watkins, CCA Mom & Volunteer We hope to see you there! Cannister Collection for CCA / Various CCA Families & Friends We are accepting applications for scholarships for Alea Carter Fundraising Effort / Alea Carter / Nichole Nation “Coins for Craniofacial” Funder / Madison Loucks, this Retreat until December 31, 2016 . Register Volunteer Keep Collective Funder for CCA / Jennifer Lang “Kate the Great” Fundraising Effort / CCA Kid, Kate by May 1st to get the early bird price of $100 . McAllister American Legion Funder for CCA / Jaci Samhammer Registration will increase to $125 starting May 2nd . Jakob Graudons’ Birthday Funder / Jakob Graudons Family Knightgram UCF College Funder / portion of proceeds to CCA 23 good news good children’s craniofacial association 13140 Coit Road, Suite 517 • Dallas, TX 75240

Honorary Chairperson: Cher

Board of Directors: George Dale, Chair, Corning, NY Dede Dankelson, Libertyville, IL Tate Gorman, JD, Dallas, TX Margaret Lavender, Norman, OK Bill Mecklenburg, Mission Viejo, CA Steven Weiss, Dallas, TX Rebecca White, BSN, RN, MBA, Houston, TX Rose Wiese, Mars, PA

CCA Network Editor: Kelly Liszt, copybykelly.com

CCA Network Design and Production: Robin Williamson, Williamson Creative Services, Inc.

Executive Director: Erica Mossholder, MBA

Program Director: Annie Reeves

Development Director: Jill Patterson

Executive Director Emeritus: Charlene Smith

voice 214.570.9099 fax 214.570.8811 toll-free 800.535.3643 url CCAkids.org

The views and opinions expressed in this newsletter are not necessarily those of CCA . If you no longer wish to receive this newsletter, please send an email to AReeves@ccakids com. or mail the label CA would like to send out a special “THANK YOU” to to the CCA office and ask that alexis’ and her kids! They recently attended cAlexis Bellino it be removed from the mailing list . ice cream an ice cream social which was put together with the help If you know of someone who of CCA Moms, Dorina Watkins and Courtney Vysocky . would like to be placed on the meet-and- The Bellinos were able to meet several of our amazing ­mailing list please forwar­ d to us greet families . Everyone had a wonderful time, and Alexis even their name and address . brought gifts for the kids . Alexis has also donated sand buckets and beach toys for our 2015 and 2016 retreat! Thank you for your continued support! 24