Making Meaning of Voices
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Neurodiversity Studies
Neurodiversity Studies Building on work in feminist studies, queer studies, and critical race theory, this vol• ume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and ‘others’, including dyslexics, autistics, and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/ prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neu• rodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assump• tions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humani• ties, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field – neurodiversity studies – will be of interest to people working in all these areas. Hanna Bertilsdotter Rosqvist is an Associate Professor in Sociology and currently a Senior Lecturer in Social work at Södertörn University. Her recent research is around autism, identity politics, and sexual, gendered, and age normativity. She is the former Chief Editor of Scandinavian Journal of Disability Research. Nick Chown is a book indexer who undertakes autism research in his spare time. -
Mental Distress and Public Representation
Notes 1 Madness and the Popular Imagination 1. Despite the change of headline, the paper’s editor Rebbekah Wade was unprepared for the backlash from mental health and psychiatric user groups. Using press releases and Internet chat forums, the editor encoun- tered a storm of national and international protest about its stigmatizing of Bruno. So much so in fact, that the next day Bruno received the paper’s good wishes for his recovery (though no public apology) and a commit- ment to financial help. So apparently contrite was the Sun that it was reported that Marjorie Wallace of SANE would educate Wade in mental health issues (although ironically Wallace/SANE have been criticised by service users for their own stigmatizing media promotional practices – see Crossley, 2006, pp.192–9). 5 Visualising Madness: Mental Distress and Public Representation 1. Panorama: ‘Whose Mind Is It Anyway’ (broadcast BBC1, 1 March 1993). Panorama is the longest-running public affairs TV programme in the world. Broadcasting since 1965, it currently gets around five million view- ers and is still considered the BBC’s ‘flagship’ current affairs programme. 2. Disguises: ‘A Place of Safety’ (broadcast ITV, 25 February and 4 March 1993). Made by Granada TV, Disguises was launched in 1993 as the series that can ‘get to parts of a story others can’t reach’ (Granada publicity material for Disguises, March 1993). However, the format provoked strong reaction from critics concerned that its ‘voyeuristic’ appeal based on jour- nalist subterfuge and ‘spying’ with a hidden camera outweighed its public service merit (see Corner, 1995, pp.100–1). -
The Concept of Recovery in Voice Hearers Attending Hearing Voices Group: a Single- Case Study
The concept of recovery in voice hearers attending Hearing Voices group: a single- case study F.C.S. Rérat S1981803 Master Thesis Clinical Psychology Supervisor: Dr. H.M. Koopman Institute of Psychology University of Leiden 30-03-2018 Table of content 1. Introduction ....................................................................................................................... 4 2. Method .............................................................................................................................. 9 2.1. Research design ......................................................................................................... 9 2.2 Population ................................................................................................................. 10 2.2.1 Recruitment and selection ................................................................................... 10 2.2.2 The HVG meetings .............................................................................................. 10 2.2.3 Case presentation ............................................................................................... 11 2.3 Procedures ................................................................................................................ 12 2.3.1 Questionnaires .................................................................................................... 12 2.3.2 Description of the sessions ................................................................................. 14 2.4 Statistical Analysis .................................................................................................... -
What You're Not Hearing About the Hearing Voices Movement by Susan Inman
Reprinted by NSSS with permission. Originally posted: 08/29/2015 9:40 am EDT (www.huffingtonpost.ca) What You're not Hearing About the Hearing Voices Movement by Susan Inman ecently the Hearing Voices Movement should reject the diagnosis and just work R (HVM) has been receiving a lot of very through their emotional problems. As well, positive press in Canada. The Globe and Mail, Romme believes that "anti-psychotic CBC's Tapestry program and the University of medication prevents the emotional processing British Columbia's alumni magazine TREK have and therefore healing, of the meaning of the offered similar kinds of stories. The public voices." finds out about the long known but not well- publicized fact that lots of people who have These can be very dangerous messages for auditory hallucinations don't have mental people who are struggling to understand and illnesses. Then we learn about someone who accept that they have serious brain disorders benefitted from the supportive atmosphere that will require careful management. that the Hearing Voices Movement's Although the Hearing Voices Movement has programs offers. We hear that this program been around for over 25 years, there is no helps people better manage their voices. research attesting to its benefits for people How could anyone object to such a helpful with mental illnesses. And operating from the use of our very limited mental health belief that medications interfere with budgets? recovery can have negative consequences; ample research demonstrates that the longer Some of us need to object because, by failing the period of untreated psychosis is for to differentiate between the needs of people people, the worse their outcomes are. -
Abolishing the Concept of Mental Illness
ABOLISHING THE CONCEPT OF MENTAL ILLNESS In Abolishing the Concept of Mental Illness: Rethinking the Nature of Our Woes, Richard Hallam takes aim at the very concept of mental illness, and explores new ways of thinking about and responding to psychological distress. Though the concept of mental illness has infiltrated everyday language, academic research, and public policy-making, there is very little evidence that woes are caused by somatic dysfunction. This timely book rebuts arguments put forward to defend the illness myth and traces historical sources of the mind/body debate. The author presents a balanced overview of the past utility and current disadvantages of employing a medical illness metaphor against the backdrop of current UK clinical practice. Insightful and easy to read, Abolishing the Concept of Mental Illness will appeal to all professionals and academics working in clinical psychology, as well as psychotherapists and other mental health practitioners. Richard Hallam worked as a clinical psychologist, researcher, and lecturer until 2006, mainly in the National Health Service and at University College London and the University of East London. Since then he has worked independently as a writer, researcher, and therapist. ABOLISHING THE CONCEPT OF MENTAL ILLNESS Rethinking the Nature of Our Woes Richard Hallam First published 2018 by Routledge 2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN and by Routledge 711 Third Avenue, New York, NY 10017 Routledge is an imprint of the Taylor & Francis Group, an informa business © 2018 Richard Hallam The right of Richard Hallam to be identified as author of this work has been asserted by him in accordance with sections 77 and 78 of the Copyright, Designs and Patents Act 1988. -
Resisting the Diagnostic Gaze
Resisting the diagnostic gaze “We cannot abandon the injured or the maimed, thinking to ensure our own safety and sanity. We must reclaim them, as they are part of ourselves.” Brian Keenan Despite being promoted by the World Health Organisation and most Western institutions the psychiatric diagnostic system misrepresents people’s emotional problems. The Diagnostic process converts someones’s distress from a psychosocial problem into an individual problem. It takes the person’s experience out of their social and historical context and tries to categorise the evolving mental state into a fixed category. This suits the interests of the pharmaceutical industry who need to associate specific drugs to diagnostic categories but it does not serve the interests of the person on the receiving end. It has been well documented that diagnostic categories do not stand up to scientific scrutiny (see Boyle, 1987 Bentall, 2004). However despite this awareness, in practice psychiatric diagnosis continues to be seen as useful and important in understanding and treating mental health problems. The impact of diagnosis is huge on people’s lives. The diagnostic process has a similar psychological effect to assigning someone to a low social caste, having a significant influence on how the person sees themselves. For example if a person is given a diagnosis of schizophrenia they and the people around them can often acquire a learned hopelessness; similarly a young person given a diagnosis of bipolar disorder can resign themselves lifelong episodes of mania and depression; a spiritual experience can feel written off if it is described by clinicians as a delusion. -
Kate Fenton Thesis Submitted in Partial Completion of The
The role of empowerment in recovery from the experience of severe psychological distress: A grounded theory exploration Kate Fenton Thesis submitted in partial completion of the requirements of the award of Professional Doctorate in Counselling Psychology Department of Psychology Faculty of Health and Life Sciences University of the West of England, Bristol Thesis submitted November 2016 This copy has been supplied on the understanding that it is copyright material and that no quotation from the thesis may be published without proper acknowledgement. Word count: 39999 Table of Contents Acknowledgements……………………………………………………………………..………3 Abstract………………………………………………………………………………….……....4 1.0 Introduction…………………………………………………………………………..….5-11 2.0 Literature Review……………………………………………………………………..12-34 3.0 Methodology and Reflexivity……………………………………………………. 35-41 4.0 Method…………………………………………………………………………………42-53 5.0 and 6.0 Results and Analysis……………………………………………. ……………54 5.1 Becoming disempowered…………………………………………………………....55-73 6.0 Becoming empowered……………………………………………………………..…74-91 7.0 Discussion…………………………………………………………………………....92-115 References………………………………………………………………………….…..116-143 Journal Article…………………………………………………………………………..144-160 Journal Article References…………………………………………………………161-169 Appendices…………………………………………………………………………….……..170 Table 1: Demographics of Interviewees……………………………………….170-171 Table 2: Demographics of Authors of Recovery Narratives……………….…...…........172 Table 3: Diagram Pathways of Empowerment and Disempowerment…….........173 Table 4: Transcript -
Why, When and How to Ask About Childhood Abuse John Read, Paul Hammersley & Thom Rudegeair
Advances in Psychiatric Treatment (2007), vol. 13, 101–110 doi: 10.1192/apt.bp.106.002840 Why, when and how to ask about childhood abuse John Read, Paul Hammersley & Thom Rudegeair Abstract Subscribers to the medical model of the causation of madness and distress emphasise the role of genes and can severely underestimate the impact of traumatic events on the development of the human mind. This bias persists despite the worldwide popular wisdom that mental illness arises when bad things happen to people. Childhood physical and sexual abuse and neglect are extremely common experiences among those who develop serious mental health problems. Unfortunately, victims are typically reluctant to disclose their histories of abuse and practitioners are often reluctant to seek it. We explore the nature and extent of the problem and the apparent reasons for the pervasive neglect of this important area of care. Then, on the basis of our experience in New Zealand, we provide guidelines on asking patients about childhood abuse and describe an ongoing initiative in the UK to further advance our understanding of the impact of abuse and our skills to detect it and treat survivors. Mental health experts do not have a proud history that there is such a thing as ‘acquired vulnerability’ when it comes to understanding how often very bad and that this can be ‘due to the influence of trauma, things happen to children. Just three decades ago specific diseases, perinatal complications, family a prominent psychiatric textbook reported that the experiences, adolescent peer interactions, and other prevalence of incest was one per million (Henderson, life events that either enhance or inhibit the develop- 1975). -
Aapp 2017 Abstracts
AAPP 2017 ABSTRACTS Association for the Advancement of Philosophy and Psychiatry. Annual Conference May 2017 Philosophical Perspectives on Critical Psychiatry: Challenges and Opportunities Rethinking Insight: What Does It Mean to Be Aware of Illness When Awareness Doesn’t Map to Concept of Illness? Kathleen Lowenstein Once considered paradigmatic of a schizophrenia diagnosis, poor insight is a common clinical problem in individuals diagnosed with schizophrenia or other psychotic spectrum disorders. Denying that they are ill and consequently refusing treatment, individuals suffering from poor insight often end up mired in protracted and contentious engagement with frustrated family members and treatment providers. As such, individuals presenting with poor insight constitute one of the most challenging patient populations among those with a schizophrenia diagnosis. The dilemma posed by individuals presenting with poor insight is generally considered to result from lack of treatment, rather than failure of an epistemological framework. However, the work of psychiatric service users highlights the way in which the concept of poor insight is itself indicative of competing epistemological frameworks. Critical psychiatry has challenged the role of master narratives and the way in which traditional framing of mental illness frequently excludes or diminishes the perspectives of psychiatric service users. Central to this conversation has been a focus on the role of meaning in both interpretation of and recovery from extreme states of consciousness. A central tenet of the Hearing Voices Network is that voices demand interpretation. As much work by and with psychiatric service users suggests, the ability of an individual to find meaning in and make meaning of their experiences is often central to their identity and, more broadly, to recovery from states that, in standard medical narratives of psychosis, are frequently presented as arising from neurological dysfunction and thus constituted as essentially meaningless. -
Hearing Voices
sp ecial issue: Hearing Voices News from the Joan of Arc Project July – September 2006 The Joan of Arc Project 59 Magdalen Street Exeter EX2 4HY tel : (01392) 204495 mobile : 07855 633304 fax : 01392 204494 e-mail : [email protected] Editorial: This relatively small collection of some subjective accounts of 'voice hearing' alongside some of the interests of some 'professionals' is not intended to be at all definitive. Rather, it represents but one small cross-section of the views of these people affected in different ways by 'voices'. It is hoped that by reading these articles together, an appreciation of how voices can impact upon people's lives may be gained. Such insight is often claimed but is the experience of voice hearing ever really understood ? Thanks to the honesty, frankness and spirit of the 'experts-by-experience' for providing their accounts. It is hoped that 'carers' reading this issue will appreciate and respect their sense of altruism. They have already come a long way. Thanks also to the carers who have provided access to their under-standing of voice hearing. Their commitment also deserves respect. Non-voice hearers may gain knowledge by reading this special issue of the Joan of Arc Newsletter. Voice hearers may also benefit by learning about other hearers' voices and experiences as well as from carers' viewpoints. Hopefully, the message in the following pages will suggest that both enquiry and support; empathy and hope are becoming increasingly available from those who care about others who suffer with voices. This appears to be gaining momentum at local, national and international levels. -
Boekje Congres.Indd
PART TWO ABSTRACT BOOK 9 17 September Morning programm: Plenary session from 10.15 hours till 13.00 hours Chair: Elisa Carter , MBA (NL) CEO of GGzE Eindhoven en de Kempen (Mental Health organization, clinical, polyclinic and outreached care) Member of the advising board (RvZ) for the ministry of Health Care Netherlands Member of the board of commissioners for healthcare research (Bestuur ZoNMW) Shortly after I had accepted the CEO position at the mental heath institute Maastricht I met Professor Marius Romme. We had one hour to get acquainted. We exchanged briefl y each others career, some insights on the national heath care policy and the goals for mental health services in Maastricht. I was inspired by his passionate approach and logical reasoning while explaining his research on hearing voices. This inspiration help me to focus on an other way to organize the care in such a way that we can meet the Elisa Carter MBA demands of service users effectively. Hearing voices has been regarded by psychiatry as “auditory hallucinations” and as a symptom of schizophrenia. Traditionally the usual treatment for voice hearing has been major tranquillizers and specifi c medication administered to reduce hallucinations and other symptoms. However not everyone responds to this treatment. Ideally, most professionals would see all interventions as cooperate ventures between professionals and service user, but the perception of users is often different. Nearly always, the professional is in a position of power over the service user. In a culture where the person with a mental health problem expects the work done by a professional to be akin to arranging a ceremony with supernatural signifi cance, the power is not located in either the user or the professional. -
Hearing Voices” and Exceptional Experiences Renaud Evrard
From symptom to difference: “hearing voices” and exceptional experiences Renaud Evrard To cite this version: Renaud Evrard. From symptom to difference: “hearing voices” and exceptional experiences. Journal of the Society for Psychical Research, Society for Psychical Research (Great Britain), 2014, 78 (3), pp.129-148. halshs-02137157 HAL Id: halshs-02137157 https://halshs.archives-ouvertes.fr/halshs-02137157 Submitted on 22 May 2019 HAL is a multi-disciplinary open access L’archive ouverte pluridisciplinaire HAL, est archive for the deposit and dissemination of sci- destinée au dépôt et à la diffusion de documents entific research documents, whether they are pub- scientifiques de niveau recherche, publiés ou non, lished or not. The documents may come from émanant des établissements d’enseignement et de teaching and research institutions in France or recherche français ou étrangers, des laboratoires abroad, or from public or private research centers. publics ou privés. FROM SYMPTOM TO DIFFERENCE: “HEARING VOICES” AND EXCEPTIONAL EXPERIENCES By RENAUD EVRARD ABSTRACT Traditionally considered psychopathological auditory-verbal hallucinations, the voices heard by patients, but also by many people from the general population, are currently the subject of much attention from researchers, clinicians and public authorities. One might think that voice hearing is a psychopathological experience that has little to do with parapsychological phenomenology, except when information is ostensibly acquired paranormally under the form of a voice. But paranormal and spiritual interpretations of voices are ubiquitous in many studies of voice hearing, and even are outstanding examples of salutogenic appraisals of psychotic-like experiences. The research on the type of appraisal along the axes of internal / external or personal / impersonal provides direct guidance on clinical intervention strategies.