Annual Report

Sweet Louise is my strength. The member meetings bring hope, laughter and ideas. To all those who support Sweet Louise – I am so grateful. Your support helps me to live my life to the fullest. – Marino Sherwin 2019/2020 ANNUAL REPORT Sweet Louise 2019/2020 ANNUAL REPORT 1 Contents Message from the Chairman _______________________________________ 3 Farewell from Philippa Reed, CEO __________________________________ 4 About Sweet Louise ______________________________________________ 5 The 2019/2020 year in review _____________________________________ 6 Member’s Day 2019 _____________________________________________ 10 Celebrating our members ________________________________________ 12 Our supporters and volunteers ____________________________________ 14 Meet the team _________________________________________________ 15 Highlights from 2019/2020 _______________________________________ 16 Sweet Louise 2019/2020 ANNUAL REPORT 2 MESSAGE FROM THE CHAIRMAN No organisation works harder to meet the needs and hopes of those living with incurable breast cancer. Reflecting on the 2019 / 2020 Financial very appreciative of his dedication and wise Year, we can’t help but be influenced by counsel. how the year has ended. We don’t yet know The Board of Trustees was delighted to the longer-term effects of the upheaval welcome Catrin Devonald as our new CEO and strains of COVID-19 and the associated in April 2020. Her background at Macmillan lockdown, which remains in place as we write this report. The year ahead will surely be one Cancer Support and at the Breast Cancer of the most challenging for Sweet Louise. But Foundation NZ couldn’t be better. We are all it is one from which we are confident we will looking forward to the prospect of working emerge even stronger. with Catrin, who has already hit the ground running! In times of adversity, an organisation’s purpose and its resilience is tested. Our As I look ahead, it is clear that our members members have again during the year, both will rely on us even more this year. That in turn humbled and energised us. It is their voice requires innovative approaches to ensure we that reminds us of the truly valued role we have the resources to deliver these services play in their lives. No organisation works sustainably. With exciting new appointments harder to meet the needs and hopes of into our fundraising team and our marvellous those living with incurable breast cancer. team of skilled Support Coordinators, the Our purpose to improve their quality of life Sweet Louise team is the strongest it has ever remains as vital today as it ever has been. been. The underlying health of Sweet Louise Sweet Louise will prove to be resilient remains strong. Our membership increased because of the purpose we all believe in and again this year. We gained 308 new members the team who are dedicated and skilled at and acknowledged the passing of 242 delivering on it. I thank you again for believing members. We listened to our members and as in us. a result, played an active role in the advocacy for improved access to new therapeutic Scott Perkins treatments. We engaged with our members Chairman in person, one-on-one in our member meetings, as a group at our inspirational Member’s Day and increasingly digitally. All of this is made possible by the dedication and professionalism of our team and the generosity of our supporters. We thank you all sincerely for the sponsorship, donations, grants, volunteer hours and in-kind gifts. We are so fortunate to have the Sweet Louise team, who are truly remarkable for their belief in our purpose and their preparedness to go the extra mile for our members every day. I would like to acknowledge the contribution of Philippa Reed, our CEO, who left us at the end of the financial year. Philippa has been a passionate believer in the role Sweet Louise plays in our society and has given the role 100%. We wish her well in the future. I also thank Andrew Young, a long-standing Trustee, who left the Board this year to take up the role as CEO of the Cancer Society Auckland and Northland. Andrew has left an indelible mark on Sweet Louise and we are Trustee Andrew Young and Chairman Scott Perkins: Sweet Louise 2019/2020 ANNUAL REPORT 3 FAREWELL FROM PHILIPPA REED, CEO Farewell from Philippa Reed It has been an immense honour to work with Sweet Louise for the past two and a quarter years. Whatever passion and energy I have brought to the role has always been inspired by the mission and purpose of Sweet Louise alongside the incredible courage, resilience and fortitude shown by Sweet Louise members every single day. It is a tribute to Louise and her family that her spirit lives on in the values of the organisation, the kindness of the supporters, the compassion of the Sweet Louise team and the courage and connection of all our members living with incurable breast cancer. Over the past few months, we heard the news that Pharmac would publicly fund both Kadcyla and Ibrance. Sweet Louise members Sue Wall-Cade and Terre Maize Nicholson initiated a focus on action in advocacy in late 2018 by starting petitions to have these two drugs funded, which included presenting to the Health Select Committee. These announcements were greeted with huge relief by members of Sweet Louise and all other patient advocacy groups involved. Seeing the hard work of our members and their commitment to advocacy be successful was a wonderful conclusion to my time at Philippa Reed Sweet Louise. CEO And a very special welcome to Catrin Devonald, who brings a wealth of experience to Sweet Louise from roles with the Breast Whatever passion Cancer Foundation NZ and Macmillan Cancer Support in the UK. I wish Catrin all the very and energy I have best and thank Scott and all the Trustees for brought to the role has their support. always been inspired Best wishes to all at Sweet Louise. by the mission and purpose of Sweet Louise alongside the incredible courage, resilience and fortitude shown by Sweet Louise members every single day. Sweet Louise 2019/2020 ANNUAL REPORT 4 ABOUT SWEET LOUISE Our Mission Sweet Louise helps to improve the lives of everyone in Aotearoa living with incurable breast cancer. Sweet Louise is the only charitable organisation in New Zealand dedicated to supporting women and men living with incurable breast cancer. Our Values Compassion Connection Courage Credibility How we help Sweet Louise provides a range of services to support women and men living with incurable breast cancer: Member meetings Information Our meetings, held at locations We support members with throughout the country, provide information on complementary and members with peer support and practical services available through us opportunities to connect with other or other providers and agencies. members. Advocacy Support Coordinators We advocate for improvements in Our Support Coordinators, who treatment, services and funding for have varied health professional medicines for people with incurable backgrounds, provide personal, breast cancer. practical and emotional support to our members. Referrals Service vouchers We provide referrals to other social services and agencies where We provide members with $500 appropriate. of vouchers annually that can be redeemed for a range of services, complementary therapies and practical support that helps to improve quality of life. Sweet Louise 2019/2020 ANNUAL REPORT 5 THE 2019/2020 YEAR IN REVIEW MEMBERS 308 & THEIR NEW MEMBERS IN FAMILIES ONE YEAR 727 SUPPORTED 242 MEMBERS 223 DECEASED MEMBER MEETINGS IN ONE YEAR 2yrs 95% AVERAGE LENGTH OF MEMBERS VALUE OF MEMBERSHIP THE CONNECTION WITH OUR SUPPORT COORDINATORS 250+ VOLUNTEER HOURS 89% OF MEMBERS VALUE THE VOUCHERS VOUCHER $202,122 SPEND Sweet Louise 2019/2020 ANNUAL REPORT 6 MEMBERS FROM MEMBER AGE RANGE SURVEY: AS OF MARCH 2020 Valuable/Very Valuable 216 Not Valuable 183 SUPPORT CONNECTION How valuable is the connection with the Support 111 117 Coordinators for you? 39 36 15 4 3 95% under 30 - 39 40 - 49 50 - 59 60 - 69 70 - 79 80 - 89 90+ no data 30 MEMBERS BY ETHNICITY VOUCHERS AS OF MARCH 2020 Please explain how valuable the vouchers are to you? 89% NZ European Ma¯ori Island Pacific Asian Indian Not specified Other European 288 MEMBER HOUSEHOLD INCOME Household income under $60K 201 Household income over $60K 53% 88 45 46 12 22 25 Sweet Louise 2019/2020 ANNUAL REPORT 7 CURRENT MEMBERS BY REGION AS OF MARCH 2020 EMOTIONAL FINANCIAL SOCIAL 38 SUPPORT SUPPORT SUPPORT Northland 302 Auckland WHAT SUPPORT COORDINATORS DO: 134 Waikato, Bay of Plenty 48 Hawkes Bay CONNECTION 69 WITH MEMBERS Palmerston North and Mid-central Members meetings 51 Wellington & ONE-ON-ONE Wairarapa SUPPORT Phone calls, email and text contact, home/hospital/hospice visits. 24 Nelson and Marlborough 62 Canterbury, Southland, Otago and Westland Sweet Louise 2019/2020 ANNUAL REPORT 8 In 2019/2020 Sweet Louise RAISED: SPENT: DONATED SERVICES DONATED SERVICES ADMINISTRATION MEM Vou B S D T cher E T O EN s + R N N M m S E A em E Y b R V T O e E I L r V O in P t I N e C r M a E S c E t S i o n RAISED SPENT s $1,201,103* $1,228,210* G R S A P E N I C H I T S V S R t R E n O S e S R ym N BE plo SPO MEM Em FUNDRAISING $283,140 MEMBER SERVICES $334,968 Vouchers and member interactions DONATIONS Includes: regular givers, bequests, major $450,070 donors, appeal letters and online donations MEMBER SERVICES Employment $293,929 SPONSORSHIP $31,961 Support from generous corporates and FUNDRAISING businesses Costs associated $331,753 $176,378 ADMINISTRATION GRANTS Includes office rent and outgoings, Support from trusts and foundations telephone, internet $222,953 $269,161 EVENTS EMPLOYMENT Fundraising and community events Fundraising and operations $17,500 $17,500 DONATED SERVICES DONATED SERVICES Audit and accounting services Fundraising and operations $1,201,103* $1,228,210* TOTAL RAISED TOTAL SPENT *rounded to the nearest dollar *rounded to the nearest dollar Sweet Louise 2019/2020 ANNUAL REPORT 9 MEMBER’S DAY 2019 A day of wellbeing, self-care & compassion Every second year we host our Member’s Day to honour and celebrate Sweet Louise members around the country.

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