Bioethics Newsletter Winter-Spring 2019

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Bioethics Newsletter Winter-Spring 2019 Winter/Spring 2019 Volume 3, Issue 1 PRACTICAL BIOETHICS TODAY hackingdarwin: GENETIC ENGINEERING AND THE FUTURE OF HUMANITY What if scientists could edit genes for and CEO of the Center. “Jamie’s depression or autism with the keynote will show us how the genetic ANNUAL DINNER changes passed on to future revolution will transform our generations? Would you be okay healthcare in the short term, how we April 9, 2019 with that? What about your children, make babies and the nature of Reception whose families may face such babies in the medium term, and how 5:30 pm choices? Would they be okay with it will transform our species’ editing for intelligence or evolutionary trajectory long term. Dinner and Program personality? This is a unique opportunity to 6:45 - 9:00 pm prepare for these massive changes.” Dinner keynote speaker Jamie Metzl Marriott Muehlebach Hotel believes these choices and more are Guests will receive a complimentary 12th & Wyandotte not only on the horizon. Many are copies of Jamie’s new book, Hacking Kansas City, Missouri already happening. Darwin: Genetic Engineering and the Future of Humanity, scheduled for “I urge everyone planning to attend release April 23. the Annual Dinner to invite younger colleagues and family members to join you,” said John Carney, President JAMIE METZL Born and raised in Kansas City, Jamie graduated from The Barstow School and holds a PhD in Asian history from Oxford University and a JD from Harvard Law School. Currently a senior fellow at the Atlantic Council, he has previously served as a member of the U.S. National Security Council, State Department and Senate Foreign Relations Committee. He was a Human Rights Officer for the United Nations in Cambodia, advised the government of North Korea, and was an election monitor in Afghanistan and the Philippines. The author of five books and a syndicated columnist, Jamie is also an athlete. He has raced in 30 marathons, 13 Ironman triathlons and 12 ultramarathons. INSIDE: Annual Dinner Continued of managing, operating, and year, in addition to her signature developing the Institute. Jim joined argentium sterling silver gingko leaf HONORARY the Center’s board in 2011 and brooch, Robyn is creating a custom CO-CHAIRS served as Board Chair in 2013 and piece. Wayne and 2014. “After experiencing the death Julie Carter of my daughter from cancer,” he Wayne Carter, said, “the Center’s long history of Marn DVM, PhD, recently stepped down as helping families with the most Jensen and CEO of BioNexus KC to move to difficult medical decisions became Andy Atlanta, where his wife, Julie Carter, personal.” Newcom JD, joined St. Mary’s Health Care System as vice president of mission ARTS ENCOUNTER services. A veterinarian by training, Artists are creating custom pieces Marn has been with Hallmark for Wayne led BioNexus KC for more you can acquire at the dinner. over 30 years. A mixed-media artist, than six years. Julie was previously a she often incorporates found or mission leader intern at Via Christi antique objects to add texture and Hospital in Manhattan, Kansas. story to her work. Andy has been Robyn creating art since his debut as the Nichols youngest exhibitor in the Plaza Art Fair. At Hallmark, he has been a VISION TO Senior Photo Stylist for the past 20 ACTION years and enjoys teaching macramé AWARD Silversmith workshops. Andy and Marn shared James and Lisa Robyn Nichols’ handcrafted jewelry, Hallmark’s 2017 Barbara Marshall Spigarelli Award. The result was “Wishes for tableware and sculpture are As President collected and displayed in world- the World,” an exhibit inspired by and CEO of MRI Global, Jim Spigarelli, renowned museums, including the conversations with more than 70 PhD, was responsible for all aspects Smithsonian and Nelson-Atkins. This older adults and their 250 wishes for themselves, families and the world. Liza Townsend, JD, MSW Landon Rowland used to send sparked a desire to learn what she could do to improve his daughter Liza articles from it. the Hastings Center Report, British Medical Journal and “As a family, we have resources,” she said. “But JAMA. She devoured them. If the people who lack resources, or meaningful access to C in biology at Smith College resources, I wondered how do they do this? I began to hadn’t discouraged her, she would have applied to focus on the ways policy might impact more positive medical school. interactions with the healthcare system that would lead to better health outcomes.” Liza graduated with a BA in art history, worked in New The MSW she earned from the University of Kansas in York City for a brokerage firm and UMB Bank in Kansas 2017 and related practicums enabled Liza to pursue this City, enrolled in law school at the University of Kansas, goal. At reStart, she worked with adults with chronic married Guy Townsend, and was pregnant with her first homelessness, substance abuse and mental health child when she passed the bar in 1993. issues. “The clients face paralyzing obstacles,” she said, Navigating Healthcare "and yet they press on." She devoted the next 18 years to raising three children Professionalism in Healthcare and volunteering. During that time, family illnesses necessitated a deep dive into the healthcare system and Liza traces a direct line from her practicum at KU Family Medicine to participation on the Continues on page 3 2 ...continued from page 2 Liza Townsend, JD, MSW Center’s task force to review methods for teaching and Before joining the Center’s board of directors in 2017, evaluating medical students’ professional behavior and Liza’s volunteer efforts have supported Turning Point, likelihood to succeed as doctors. At the KU Clinic, she said, Child Protection Center, Voter Protection Project, ACLU, “I saw what I thought good and poor healthcare looked Nelson-Atkins Museum of Art, Harriman-Jewell Series, like and the impact that communication with medical Kansas City Ballet, Planned Parenthood Great Plains, professionals has on patients and their health.” American Royal, Pembroke Hill Alumni Executive Board, St. Paul’s Episcopal Day School and Smith College Club of Liza and her husband Guy Townsend met in middle school. Kansas City. In addition to the Center, she currently serves Both grew up in families where giving back to the on the board of Fountain Valley School of Colorado. community was a given. “It’s just what you do,” she said. Ethics Committees Helping Patients and Providers Address Conflict and Ambiguity Say your mom has been in the Consortium published numerous hospital for days, and things just guidelines archived at aren’t going well. You disagree with PracticalBioethics.org. We now offer our advance care the advice you’re getting and, frankly, planning materials in Spanish . find it hard to understand. Reimagining Committees Or say you’re a nurse. A supervisor As times have changed, so have recently implemented new committee needs. Many activities procedures and you’re worried they once understood to be their may be detrimental to patient care. responsibility have migrated to other hospital departments. Large academic medical centers typically have clinical ethicists on “Nevertheless,” said Matthew Pjecha, staff to work through such issues. program associate at the Center, Smaller, community-based hospitals, “issues that involve customer which provide most acute healthcare relations or risk management or in the U.S., rely – or should rely – on quality improvement still often have ethics committees. significant underlying ethical implications.” Recognizing the need to improve the accessibility of education and To Order Online: resources for ethics committees, the Center is offering eight lunch-hour webinars and two half-day workshops. Webinars and Workshops The first workshop will be held on Ethics Committees: April 11 featuring Brian Carter, co- Matthew Pjecha and Dr. Terry Rosell Save These Dates presented the first webinar on January director of Children’s Mercy 10. Hospital’s Certificate in Bioethics, on conducting a family meeting. The ✓ March 14 — Webinar: next webinar is scheduled for March Intro to Ethics Committees In 1986, in response to ethics 14. committees seeking opportunities to ✓ April 11 — Workshop: learn from each other, the Center For information about these Conducting a Family convened the Kansas City Regional programs, contact Matthew Pjecha at Meeting Hospital Ethics Committee [email protected] or Consortium. Through the years, the 816-979-1366. 3 Harzfeld Building 1111 Main Street, Suite 500 Kansas City, MO 64105-2116 www.PracticalBioethics.org 816.221.1100 1.800.344.3829 IN MEMORIAM Board of Directors Richard Payne, MD Sandra R. Stites, MD It was with profound sadness that we announced Chair that our colleague and friend Dr. Richard Payne, 67, died on January 3 from complications related to a Eva Karp, DHA, MBA, RN-C, FACHE recent cancer diagnosis. Richard had just completed Vice Chair his sixth year as the John B. Francis Chair at the Center. A neurologist, he was also an international Drew Billingsley, CFA expert in palliative care, pain management and care Treasurer near the end of life. Liza Townsend, JD, MSW Richard’s association with the Center began in the Secretary mid-90s, working on projects to improve end-of-life care and designing outreach efforts to engage John D. Yeast, MD, MSPH clinicians of diverse backgrounds in caring for underserved and disaffected Immediate Past Chair populations. Mary Beth Blake, JD Richard leaves his wife Terrie Payne, son Richard Jr., daughter Susan Oziogu, their Co-Founder spouses,
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