LFA SEAL OF APPROVAL MATERIALS Items with code # are available online at shop.lupus.org Updated September 2013
BOOKS
After the Diagnosis: Transcending Chronic Illness by Julian Seifter, M.D., and Betsy Seifter, Ph.D. (approved 2011) In this often-inspiring book, the authors use case studies drawn from Julian’s decades as a practicing physician to explore the process of creative change in the way we think about chronic illness, and provide strategies for balancing being sick and being ourselves. After the Diagnosis speaks not only to the millions of people living with chronic illness, but also to their loved ones and caregivers. Julian Seifter is one of the leading kidney specialists in the country, as well as a professor at Harvard Medical School and chair of the Ethics Committee on Human Research at Brigham and Women’s Hospital in Boston. (Simon & Schuster, New York, NY; 2010) $25; 243 pp.
Coping with Lupus Revised and Updated 4th Edition by Robert Phillips, Ph.D. (approved 2012) This is a new edition of one of the most popular books for people newly diagnosed with lupus. Dr. Robert Phillips, licensed psychologist and director of New York’s Center for Coping, answers a variety of lupus-related questions in the revised edition of his highly respected guide. Phillips offers provides insightful and much-needed information on lupus, including coping strategies, symptoms, treatment, and medications. (Avery Publishing Company, Garden City Park, NY, 2012)Available at the LFA online shop, shoplupus.org; paperback, $21.00; 489 pp. Item # 136813
Dancing at the River’s Edge: A Patient and Her Doctor Negotiate Life With Chronic Illness by Alida Brill and Michael D. Lockshin, M.D. (approved 2009) By exploring the bond between caregiver and patient, this sensitive account illustrates the day-to-day frustrations and emotional toll suffered by the chronically ill, as well as an understanding of the mental struggles and conflicts a conscientious doctor must face in deciding how best to treat a patient without compromising personal freedoms. In alternating chapters, the narrative explores the frustration, joy, despair, grief, and pain on both sides of the doctor-patient relationship. As a dual memoir, this book also traces the growth of a unique friendship over a span of decades. Schaffner Press, Inc., January 2009; hardcover, $23.95; 224 pp.
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Despite Lupus by Sara Gorman (approved 2009) In this book, the author allows readers a glimpse into her life with lupus, from diagnosis to seeking treatment to becoming proactive in her own care, and finally, to exploring the possibility of living a well-rounded healthy life despite having lupus. According to one reviewer, “Through firsthand knowledge, Despite Lupus gives all lupus patients a better understanding of not only who they are, but most importantly, who they can become, despite having lupus.” Includes relaxation techniques, bibliography, and list of works cited. FourLeggedPress, 2009. $19.95. Paperback, 207 pp. Signed copies of Despite Lupus are available at www.despitelupus.com. Books are also available on Amazon.com. Contact [email protected] for more information.
Disability Handbook For Social Security Applicants Eighth Edition by Douglas Smith, Attorney at Law (approved 2012) This brand new 8th edition is an invaluable guide to understanding and navigating the Social Security Disability Insurance (SSDI) system. Used by thousands of people who have needed help filling out and filing disability insurance claims, the workbook includes an appendix with the latest changes to the SSDI regulations. The text includes chapters on what SSDI is, how the application process works, how to prove disability, and how to appeal an unfavorable SSA decision. The workbook also has work sheets, a “frequently asked questions” section, information on various Social Security Administration publications, and a section on what happens after you win benefit, including: overpayments, disability reviews, and returning to work. There is also an updated discussion of the pros and cons of applying for Social Security Disability benefits online. Physicians’ Disability Services, Inc. (2012). Paperback, 130 pp. Item # 136815
Fibromyalgia & Chronic Fatigue Syndrome: Seven Proven Steps to Less Pain and More Energy by Fred Friedberg, Ph.D. (approved 2009) The author of this encouraging and insightful book is a clinical psychologist and assistant professor in the School of Medicine at Stony Brook University, Long Island, NY. He also has lived with chronic fatigue syndrome for 27 years. His previous book on CFS described a variety of illness coping strategies; in this book he visits these in more detail, and offers them as actual health and life improvement techniques. Although this is not specifically about lupus, the seven steps in this book offer an improvement program that can significantly reduce pain and fatigue, and increase energy. (New Harbinger Publications, Inc., 2006) Paperback, 181 pp., $14.95
For Inquiring Teens With Lupus: Our Thoughts, Issues & Concerns (approved 2003; reapproved 2013) Illustrated in neon-bright colors, this booklet discusses subjects that matter to teens in language they can relate to, such as what lupus really is, how to share feelings with family and friends, changes in body and mood, and what the future may bring. Above all it offers encouragement and the power of positive thinking. Created and published by Hospital for Special Surgery Charla de Lupus (Lupus Chat) Program, New York City, NY, 2003.Made possible by the generous support of Rheuminations, Inc. Booklet, 20 pp., free. Call (866) 812-4494 for ordering information.
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Great Medical Care: The Handbook for Making Your Visit to the Doctor Better by Steve Feldman, M.D., Ph.D. (approved 2009) This readable and practical resource guide provides insightful information to help people make better informed medical decisions in an increasingly complex healthcare system. Helpful tips are provided throughout, and the author has created simple charts which will make excellent communication tools for both patients and doctors. The message throughout is the importance of patient-doctor communication in creating a more effective relationship. Reviewers especially appreciated the emphases on obtaining test results following each visit, and on encouraging patients to ask about a second opinion when there is a serious medical concern. (Medical Quality Enhancement Corporation Publishers, Winston-Salem, NC) Paperback, 56 pp. $7.00. Order by email: [email protected].
How Can You NOT Laugh at a Time Like This? Facing Illness with Humor, Creativity, and Grit by Carla Ulbrich (approved 2011) Singer/songwriter turned comedian and author Carla Ulbrich says having a sense of humor is essential to our health. Her book is a collection of short essays with titles like “The Top Ten Annoying Things to Say to Someone Who’s Just Been Diagnosed,” “My Other Body Is a Porsche,” and “A Good Vein Is Hard to Find.” Her candid insights, wisecracking commentary, handy lists, and hilarious song lyrics set to popular tunes encourage readers to face illness with courage and humor, and to thrive and celebrate life despite medical complications. (Tell Me Press, New Haven, CT; 2011) Paperback, 219 pp.; $14.95.
I Still Dream Big: Stories of Teens Living with Chronic Illness by Penny B. Wolf, M.S.W. (approved 2010) This book captures the concerns, hopes, and emotions of 17 young people who are bravely meeting the challenges of living with chronic diseases. Whether living with lupus, juvenile-onset diabetes, Crohn’s disease, multiple sclerosis, or juvenile rheumatoid arthritis, they have one thing in common: they refuse to allow their disease to define them. Chapter topics include: Being Different; Independence Delayed; Talking to Your Doctor; Ways We Cope; and Words of Advice: Teen to Teen. Wolf explains, “The insights shared by the young people in this book are important not only to teens living with illness, but also to their parents and loved ones who so want to support them and understand what they are going through.” (AuthorHouse Press, 2010) Paperback, 137 pp., $15.95.
It’s Your Health: Navigating American Health Care by Robert D’Antonio, Ph.D. (approved 2012) This small book contains a great deal of valuable information offered in easy-to- understand language to help you manage your health care. Based on a lifetime of experience, the author discusses how to optimize interactions and communications with health care providers, hospitals, and insurance carriers, and explains the role of the federal government. Topics include finding the right physician and understanding the diagnosis and the treatment plan, evaluating health insurance carriers, and the importance of being in control. No matter what level of understanding you have, this book will help
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you make the most of today’s complex health care system. (Self-published, 2011) 86 pp. Available in paperback for $9.95 at amazon.com/Robert-DAntonio-Ph.D.
Loopy Lupus Helps Tell Scott’s Story (approved 2002; reapproved 2013) This book, written by Scott and his third-grade class, explains what it’s like to live with lupus. The story is told in Scott’s voice, for children reading the book, and in the voice of Loopy Lupus, for parents, teachers, and caregivers. (Lupus Foundation of America, 2002). Paperback, 34 pp. $8.95. Item # 136802-001 Hardcover Item # 136802-002
Lupus: My View After 35 Years by Norma J. Bogetto (approved 2010) “None of us chooses to have an illness, but I hope to demonstrate that an illness can have positive aspects,” writes Bogetto in the introduction to her informative and patient- oriented book. This book discusses every aspect of living with lupus, including chapters on symptoms, diagnosis, emotional stages, appointments and physician relationships, stress relief and pain management, life choices, medical costs, and benefits of disease. At the end of the book are helpful cooking hints and several pages of recipes. At the end of the Introduction, Bogetto adds, “[T]here are numerous times the words I, me, you, we…and us are used... [T]his book is about our lupus family.” Self-published. Available at Amazon.com for $14.95 or as an ebook from lupusbookonline.com for $9.95; 181 pp., softcover.
Nutrition and Rheumatic Disease Edited by Laura A. Coleman, Ph.D., R.D., Foreword by Ronenn Roubenoff, M.D., M.H.S. (approved 2009) The information in this book will help to alleviate some of the confusion surrounding the risks and benefits of various dietary therapies. Part I includes general topics such as an overview of immunology and rheumatic disease, nutrition assessment, medication- nutrient interactions, and complementary and alternative therapies. Part II focuses on specific disease conditions, including chapters on rheumatoid arthritis, osteoarthritis, systemic lupus, and gout, which are considered the four most frequent serious rheumatic diseases. Part III offers references for additional reading and Internet sites. Although the text is primarily oriented toward practicing health professionals, the contents will be very helpful to health policymakers, research scientists, and those working at patient advocacy foundations. (Humana Press, Nutrition and Health Series, 2008). Hardcover, 298 pp., 26 illus., 6 in color, $129; online version available at springerlink.com.
Prickly Cactus: Finding Sacred Meaning in Chronic Illness by Concha Delgado Gaitan, Ph.D. (Approved 2009) At the height of her thriving career as a university professor, anthropology researcher, writer, and influential advocate for education, Concha Delgado Gaitan was suddenly stricken with unbearable pain and partial paralysis. Diagnosed with lupus, she began the long and arduous process of taking control of her own healing: first, by creating a language to describe her physical symptoms; second, by accessing the wisdom of traditional and alternative healers; and third, by building a supportive community in which she could reinvent herself, transforming her life and overcoming adversity. (Cypress House, March 2009) Paperback, 200 pp., $14.95
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The Lupus Book: A Guide for Patients and Their Families Fifth Edition by Daniel J. Wallace, M.D. (approved 2012) This revised and expanded edition of the best-selling guide to lupus explains a complicated disease in easy-to-understand terms, and is suitable for motivated patients who want a concise, practical overview of their disease. It also contains new sections relating to disability, economic impact of the disease, biologics and other new drug treatments, clinical measures of disease activity, clinical trial methods, and proactive treatment strategies, while the sections on immunology, immunosuppressive medications, clinical trials, and new treatments have new information. (Oxford University Press, 2012). Hardcover, 304 pp. $19.95. Item # 136812
We Really Need to Talk: Steps to Better Communication by Paul J. Donoghue, Ph.D. and Mary E. Siegel, Ph.D. (approved 2011) Best-selling authors Donoghue (Lupus Now columnist for “Ask Dr. Paul”) and Seigel once again offer their compassionate insight and impressive experience to enable readers to improve communication with spouses, family members, friends, and co-workers. The authors’ previous books, both of which have the LFA Seal of Approval, are Sick and Tired of Feeling Sick and Tired (2001) and Are You Really Listening? (2006). Archbishop Desmond Tutu offers this praise for the new book: “It requires courage to be honest, but it also requires skill. Drs. Donoghue and Seigel teach in a deeply human way the skills needed to communicate with genuine love.” (Sorin Books, Notre Dame, Indiana, 2010.) 213 pp. $16.95.
What Chinese Americans and Their Families Should Know About Lupus (approved 2003; reapproved 2013) Written in a culturally sensitive way, the goal of this booklet is educate the Chinese community about lupus, how it is treated, where to find support, and where to go for more information. Created and produced by Hospital for Special Surgery’s LANtern (Lupus Asian Network) Program, New York City, NY, 2003. Made possible by the generous support of Rheuminations, Inc. Bilingual booklet, 20 pp., no cost. Call (866) 812-4494 for ordering information.
Women, Work, and Autoimmune Disease – Keep Working, Girlfriend! by Rosalind Joffe, M.Ed. and Joan Friedlander (approved 2009) The goal of this book is to encourage all women living with chronic illness to stay employed to preserve their independence and sense of self. The book’s chapters cover many excellent topics: Why You Should Keep Working; Challenges of the Workplace; The Relationship Between Diagnosis, Disease Course, and Career Development; Success in the Workplace: When Knowledge Is Not Enough; Talking About Your Chronic Illness; You’re Fired—By Your Body Or Your Boss; Building Your Support Team; Developing Your Warrior Spirit: Hope and Resilience. (Demos Medical Publishing, LLC) Paperback, 195 pp., $18.95
DVDs
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“The Right Moves for Lupus” Fitness Program (approved 2004; reapproved 2013) If lupus has you on the sidelines rather than in the middle of the action, this new low- impact exercise program, designed specifically for people with lupus, may be “just right” for you. Guided by a licensed A.C.E. instructor who also has lupus, this DVD offers a gentle fitness routine that you can practice in the comfort of your own home. The goal is not to become a super model but to get moving—and to improve your well-being in the process. DVD, 27 minutes. Item # 137772
RECOMMENDED READING Updated September 2013
The books featured in this section are each based upon the author’s personal experiences of living with lupus. Memoirs are not included in the categories of educational materials that are accepted for the LFA formal Seal of Approval process. But if you seek a greater understanding of what it’s like to live with lupus, or you wish to meet a kindred spirit, we recommend these titles.
A Lupus Handbook: These Are the Faces of Lupus By Arlene Moore (Self-published, 2011) This book profiles prominent people who had or have lupus, including “King of Pop” Michael Jackson, Detroit music producer J. Dilla, British soul and R&B singer Seal, Major League Baseball player Tim Raines, and many others, but it does not stop there. It also features a resource section, giving an in-depth look into the physiology and mechanisms of lupus, as well as descriptions of symptoms, treatment, lab tests, doctor- patient interactions, and financial implications. Available at Amazon.com for $9.99 in paperback and $4.99 as an e-book; 179 pages.
Beyond Pain: Job, Jesus, and Joy By Maureen Pratt (Twenty-Third Publications/A Division of Bayard ©2010) “Pain is one of life’s most debilitating, depressing, and dark sensations… Pain can wrench us away from everything we love—people, activities, even God… if we let it.” So begins this in-depth look at how people can not only live with pain, but come to see it and all suffering with the eyes of faith. Regular readers of Lupus Now may know Maureen Pratt from her two previous books, reviewed in this magazine: Peace in the Storm: Meditations of Chronic Pain and Illness (2005) and Taking Charge of Lupus (2003). 164 pp. $14.95.
Butterflies on My Mind: My Journey with Lupus and a Return to Wellness By Phyllis Bass (CB Publishing & Design, 2007)
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Much more than a personal story, Phyllis’s account of the first 11 years of her life with lupus also provides important and useful information on the many ways her body was affected by the disease, in particular dealing with kidney failure and two subsequent kidney transplants. She also reveals her struggles to accept the loss of her healthy body and her dependence upon a dialysis machine to live, and, how, finally, with the unwavering support of her family. she is able find spiritual joy and peace in her life. ISBN 978-1-56411-524-9, 157 pp., $18.32 (includes S&H). To order contact the author: 910-797-7252, [email protected], www.butterfliesonmy mind.com, or P.O. Box 9255, Fayetteville, NC 28311.
Diagnosis: Lupus – The Intimate Journal of a Lupus Patient By Marilyn Celeste Morris (PublishAmerica Press, Baltimore 2005) When the author was suddenly confronted with symptoms of joint pain and extreme fatigue, she undertook an intensive search to understand what eventually would be diagnosed as systemic lupus erythematosus. Through the pages of her intimate daily journal she takes the reader on a journey, from chronic joint pain, frustration, anger and grief for her former self, to her current state of remission. Far from being a list of complaints, the author’s pages reveal her unexpected spiritual growth and gratitude for life itself. In addition to this book the author has written both fiction and memoir. Paperback, 216 pp., $19.95.
Gregory: The Life of a Lupus Warrior by Gregory Garland Johnson and Sandra K. Johnson, Ph.D. (AuthorHouse Publishers, 2008) In the first part of this fascinating book, Gregory writes autobiographically about growing up in the 60s and 70s as a young black man in the South, and then being diagnosed with lupus in his sophomore year of college. In spite of receiving medical care, lupus complications ended Gregory’s life when he was only 35. Until then, he provided a picture of determination and fortitude that provided an example to all who knew him. His family found the manuscript of the autobiography among his things, but it wasn’t until 11 years later that his sister, Sandra, was able to take on the task of completing the second part of the story by writing the rest of the story as Gregory’s biography. Sandra herself is an important part of the story: The first black woman to earn a Ph.D. in electrical engineering in the U.S., who accumulated 35 patents and patent applications, and wrote more than 35 technical publications during her 20 years with IBM, Sandra was diagnosed with discoid lupus nine months after her brother died. ISBN 978-1-4343-8467-6, 105 pp. $12.95 + S&H. To order call 800-839-8640 or go to www.authorhouse.com. hallucination By Kim Green (BookLogix Publishing Services, 2012) A work of fiction depicting the life of a 15-year old prep school student who is thrown into turmoil as she is faced with the surprises that life hands to her, including a lupus diagnosis and much more. Author Kim Green, who has herself been diagnosed with lupus, leads readers to follow a young heroine on a journey to rediscover herself and to find new meaning in a life that has begun to disintegrate around her. Available at Amazon.com for $19.95 in paperback and $9.95 as an e-book; 234 pages.
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How to Be Sick By Toni Bernhard (Wisdom Publications, 2010) Struck by a mysterious, chronic, debilitating illness in the prime of her career, the author found that her longtime study of Buddhism helped her view her condition with gentle acceptance. Although these techniques may be unfamiliar to many people in Western cultures, it was through truly learning ╥how to be sick╙ that the author learned to live a life of equanimity, compassion, and joy. As a teaching guide to Buddhist practices, the book also speaks to the loved ones of those who are ill by offering a new understanding of themselves in the role of caregiver. Available at bookstores or through wisdompubs.org for $15.95 in paperback; 185 pages.
Joy Comes in the Mourning By Korika L. Johnson (Tate Publishing & Enterprises, 2009) This uplifting first novel from a fresh new voice in the growing field of Christian fiction is a story of faith, friendship, and forgiveness. Tonya Monroe is a smart and beautiful young African American woman who seems to have it all, until she begins to experience the mysterious symptoms of lupus, and learns how the renewal of her spiritual self leads to a greater understanding of herself and the people around her. An enjoyable read for Christians and non-Christians alike.; $23.99; 327 pp., softcover. Also available as in audio download format upon hard copy purchase. Go to tatepublishing.com for more information or call 888-361-9473.
Julie’s Story: My Life With Lupus By Julie Miller, M.S.W. (AuthorHouse Publishers, 2008) Julie was 24, planning her dream wedding to her college sweetheart and completing her Master’s degree in social work. She thought life couldn’t get much better. She hesitated to voice her concerns about vague symptoms because she “looked fine on the outside.” But when excruciating chest pain landed her in the hospital emergency room, her life changed forever. This is a touching story of a young woman’s hope and dreams, courage and triumph. ISBN 978-1-4389-2276-8, 95 pp., $8.30 + S&H. To order call 800-839- 8640 or go to www.authorhouse.com.
Lupus…It Takes a Family By Joscelyn Derene Knight (RoseDog Books, 2007) This is a straightforward and remarkable account of how a family comes together to help one sister survive the mental, physical, and financial devastation of lupus, never giving in or giving up, and never forgetting that God’s hand is at work in all that happens in their lives. Joyce’s touching memoir describes the determination of one sister who was her steadfast patient advocate and caregiver, and another sister who donated a kidney without hesitation. ISBN 978-0-8059-8973-1.139 pp., $16.00. To order call 800-834-1803.
Lupus Love By Tammy Anderson (Moral Literature Press, 2008) “My mommy has lupus, but I can’t see. On the outside she looks very normal to me!” This child-narrated story, written in rhyme and beautifully illustrated, is a charming
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account of how we learn to accommodate a parent’s limitations, without ever compromising on love. The story will help young children understand some of the ups and downs of a parent who is living with lupus. The author, who was diagnosed with lupus more than 20 years ago at age 12, has fulfilled her lifelong dream of becoming a grade-school teacher. Available at createspace.com/3449722; 34 pp.; $10.95.
Lupus, My Doctor, and Me: A Sacred Dialogue By Anita M. Fricklas and Stuart S. Kassan, M.D., FACP (Astute Press, 2101) A lupus patient and her physician take the reader on their personal journey into the world of lupus and other autoimmune diseases. ISBN 978-0-615-36563-3.200 pp., $15.95.
Magic Wand For Sale: A Story About Lupus By Isabel de Ron (Sweety London Books, 2011) This beautifully illustrated and entertaining children’s book tells the story of a little girl who wishes more than anything for her mother, who is sick in bed with lupus, to get better. She spends her afternoon reading the newspaper to her mother and in the evening helps her father prepare supper. One day, she reads an ad that says, “Magic wand for sale” and she rushes to buy it. The book is available in English and Spanish. 30 pp. Available in hardcover for $19.99 or paperback for $5.99 at www.sweetylondon.com.
Peace in the Storm: Meditations on Chronic Pain and Illness By Maureen Pratt, co-author of Taking Charge of Lupus (Doubleday, 2005) The author, who lives with lupus, fibromyalgia, Grave's disease and vasculitis, is intimately aware of the toll that chronic pain and illness can take on patients and their families. In this practical and spiritual guide, she uses a combination of passages from the Bible and her own insights to provide help on issues such as dealing with isolation, finding the right doctor, rejoicing in the happiness of others, and mourning the loss of health. Written with honesty and understanding, this book can help readers to identify their own spiritual and physical needs. In one reviewer's words, "Readers can find valuable daily inspiration and encouragement while leisurely reading through Peace in the Storm. It provides good food for thought and lifts a patient’s outlook on lupus." 321 pp., $12.95 paperback.
The Beauty of Pain: My Experience and Practical Advice for Christians with Chronic Illness By Judy L. Dillard (Outskirts Press, Denver, CO, 2008) The author is a retired practical nurse; however, most of her medical knowledge comes from her own experience of living with lupus. Her desire is to help others find the beauty in the midst of their own pain, and she is now dedicated to raising awareness of the disease that has altered the course of her own life. Within the pages of this lovely little book she shares her experiences of joy, sorrow, victory, loss, and even humor, on her journey as a Christian with chronic illness. $10.95. Paperback, 87 pp. Available at amazon.com.
The Butterfly Silhouette: A Parable In Verse By Jeanne Marian Nangle (Vesuvian Press, 2012)
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The Butterfly Silhouette is an inspiring allegory about changing your life to fulfill your purpose. The author uses the character of a caterpillar who doesn’t believe she can ever become a butterfly as a metaphor of possibility in this inspirational story, written in verse. 109 pp. Available in paperback for $9.99 at https://www.amazon.com/author/jeannenangle and coming soon on Kindle.
The Healing Hour By V.C. August (Smart Beagle Books, 2011) This memoir delves into the relationship between a woman with lupus and her psychiatrist, following their journeys as each faces the ups and downs of a life- threatening illness. Available at Amazon.com for $14.95 in paperback and $9.95 as an e- book; 274 pages.
Unexpected Blessings: Finding Hope and Healing in the Face of Illness By Roxanne Black (Avery Publishing/Penguin Group USA Inc., 2008) Diagnosed with lupus as a teenager, Roxanne’s mission has always been to turn her “bad news” diagnosis into something positive. “I might wonder, ‘Why me?’ I know the answer: ‘To help others,’” she says. Her book is an extension of that goal, illuminating her personal struggles with lupus as well as lessons in courage she has learned over the years from the famous and not-so-famous, who stand tall in the face of extraordinary challenges. These stories are a powerful testimony to the strength of the human spirit, and are sure to offer encouragement to anyone touched by illness or trying to cope with a difficult time in life. Roxanne is the founder and executive director of Founder of Friends’ Health Connection. ISBN 978-1-58333-321-1. Paperback. 240 pp. $24.95. To order go to www.roxanneblack.com.
What’s Lupus, Mama? By Wanda O’Loughlin (self-published 2008) A mother explains lupus and the importance of helping others when she takes her two young children to help a friend who is not feeling well. Charmingly illustrated by Virginia high school students Brennan O’Laughlin and Najee Freeman. ISBN 978-0-578- 06630-1. Available at The Book Owl in Portsmouth, VA, and Ham Town Books in Smithfield, VA; at Amazon.com (check for discounted price); or from the author at [email protected]. Paperback. 22 pp. $16.99.
When Reality Shines By Susan Majette (Kabod Publishing, 2008) In this inspirational book, Susan relates her story of coping with lupus using God’s guidance. As she writes in her introduction: “Once cognizant of the fact that mankind’s spirit holds that much power and potential, I’ve come to realize that one’s spiritual self is, no doubt, the true essence of life.” Take this journey with Susan as she shares lessons she learns from lupus that will enlighten and encourage you while also promoting personal growth and spiritual renewal. ISBN 978-0-9798756-2-5, 224 pp. To order write Kabod Publishing, 4240 Portsmouth Blvd., Suite 175, Chesapeake, Virginia 23321 or [email protected].
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The Healing Hour By V.C. Avery (Smart Beagle Books, 2011) This honest memoir broaches the rarely-discussed relationship between patient and psychiatrist, following the journeys of both as they simultaneously face the ups and downs involved in living with a life-threatening illness. Available at Amazon.com for $14.95 in paperback and $9.95 as an e-book; 274 pages.
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