Breast Cancer Now Annual Report 2015-2016
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We are family Annual Report and Accounts 2015/16 1 4 Message from the CEO and Chair 26 Jim’s story 50 Statement of Trustees’ 6 About Breast Cancer Now 32 Money matters Responsibilities 7 About breast cancer 34 Our next steps 51 Independent Auditor’s Report We are 8 Strategic report 2015/16 40 Financial review 53 Financial statements 14 Amanda’s story 44 Governance, structure 69 Legal and administrative details family 20 Paul’s story and management We’re determined to stop women dying from breast cancer. We know it can be done. But it’s only by standing together – as scientists, policy makers, fundraisers, families, colleagues and campaigners – that we will make it happen. 2 3 Breast Cancer Now Annual Report and Accounts 2015/16 Breast Cancer Now Annual Report and Accounts 2015/16 One year closer Following the launch of Breast Collaboration is at the heart of our charity, and breast cancer are still able to benefit from this As we look to the future, we’re developing a new creating new partnerships and relationships has drug. However, larger problems remain with our strategy for Breast Cancer Now and identifying Cancer Now in June 2015, we been a major focus of our work. In February drug access and pricing systems, and we will the steps we need to take to stop this dreadful have been delighted by the 2016 we announced the launch of the Breast continue to work with patients, pharmaceutical disease. The strategy is informed by leading public’s response. We believe Cancer Now Catalyst Programme. By inviting the companies and the NHS across the whole of the scientists and experts, and includes direct input world’s leading researchers and pharmaceutical UK to ensure patients can access the treatments from thousands of people diagnosed and living that if we all act now, by 2050, companies to pool resources, this new initiative they need. with breast cancer including through our new everyone who develops breast will be a great boost for breast cancer research initiative, The Big Breast Cancer Conversation. cancer will live. in Europe. We have continued to raise the profile of breast We are committed to hearing the views of all cancer and our work to stop the disease, among people affected by this disease and will use One year on from the merger of Breast Cancer Through our first collaboration with Pfizer, politicians across the UK. In March 2016, every their feedback to guide our direction and assess Campaign and Breakthrough Breast Cancer one of the world’s largest research-based mainstream political party in Scotland got behind where we can achieve the greatest impact. we are demonstrating that by uniting to stop pharmaceutical companies, our researchers will Breast Cancer Now’s 2050 Challenge. As a breast cancer taking lives we are already having be granted unprecedented access to at least 13 result, the Scottish Government has made a We firmly believe that if we all act now, by 2050, a truly positive impact across the UK for people of Pfizer’s existing drugs and drugs currently in clear commitment within its Cancer Strategy to everyone who develops breast cancer will live. affected by the disease. development. Pfizer has also committed around adopt our 2050 ambition. But we can only make this happen if we harness £10 million in funding over three years to ensure the passion and ambition of our supporters – Despite a challenging time for the sector we saw research can happen. During a challenging year for the charity sector, they are our heart, and together we will stop our total income rise to £27.6 million and made we continued to work to ensure we use our breast cancer and save lives. considerable savings in our expenditure. Most Whilst high-quality research is the key to supporters’ generous donations as effectively as importantly, we have also been able to increase stopping breast cancer taking lives, research possible. Our aim is to inspire people to support our investment in our charitable work across the alone isn’t enough. That’s why we use our Breast Cancer Now and ensure they feel valued UK by nearly £2 million. influence to drive improvements in policy and and respected by the charity and can see the practice and create the change needed so life-saving impact of their donations. Breast High-quality research is the key to stopping patients across the UK can benefit from scientific Cancer Now will be joining the new Fundraising breast cancer taking lives. Our scientific research progress. Through our campaigning work we Regulator and currently works to ensure community is focused on addressing the critical endeavour to ensure that everyone affected by our fundraising reflects not only regulatory gaps in breast cancer knowledge more quickly. the disease receives the best possible treatment requirements but best practice. Thanks to the We’re supporting nearly 400 researchers, and services. fantastic support and commitment of thousands including many of the world’s top breast cancer of individuals, companies and trusts, our income scientists, at more than 30 institutions across the Earlier this year, we were invited to sit on has risen. UK and Ireland. This includes The Breast Cancer the National Cancer Advisory Group, as Now Toby Robins Research Centre – the UK’s a representative of the Common Cancers In the coming year, we will also work with the first dedicated breast cancer research centre. Coalition, to help advise on the implementation scientific community to analyse the effects of of the Cancer Strategy. We continued to help Brexit on our work, help mitigate the risks and This year 145 scientific publications have been patients get access to the drugs they need in maximise any opportunities it may bring. We will Baroness Delyth Morgan Professor Lynne Berry published, including a study by Professor Clare England and Wales. More than 42,000 people continue to seek post-merger efficiencies and Chief Executive Chair of Trustees Isacke which identified a key protein that enables joined our call urging Roche to reduce the price find savings in our day-to-day work, to ensure cancer cells to spread and eventually become of the innovative secondary breast cancer drug we maximise our impact on breast cancer at incurable. This finding brings us a step closer Kadcyla, so it could remain available in England every opportunity. to understanding how secondary breast cancer through the Cancer Drugs Fund. It’s thanks to the develops and may help us identify those patients strength and passion of our supporters that our The Trustees are aware of the Charity Commission’s guidance on public benefit and confirm that most at risk. voices were heard and women with secondary they have complied with the duty in section 17 of the Charities Act 2011. 4 5 Breast Cancer Now Annual Report and Accounts 2015/16 Breast Cancer Now Annual Report and Accounts 2015/16 About About Breast Cancer Now breast cancer We’re the UK’s largest breast Breast cancer is the most cancer charity – and we’re common cancer in the UK. One dedicated to funding research in eight women will face it in their into this devastating disease. lifetime. We believe that if we all act now, by 2050, no one Nearly 700,000 people living in the UK have who develops breast cancer will die from it. But experienced a diagnosis. More women are being we’ll only reach that point by working in a new, diagnosed with breast cancer than ever before. collaborative way. We’re bringing together all those affected by the disease to improve the way This year, more than 50,000 women will be told we prevent, detect, treat and stop breast cancer. they have the disease. That’s one woman every 10 minutes. Breast Cancer Now won’t stop until breast cancer has taken its last life; something we are Breast cancer touches the lives of millions of confident we can achieve, but only if we get the us in the UK. For every woman or man who support we need. develops breast cancer, there are families, friends and loved ones who also feel the fear and uncertainty the disease brings. Nearly 1,000 women in the Right now, we are funding UK die from breast cancer over £26 million worth of every month. That’s one ground-breaking research woman every 45 minutes projects, supporting nearly whose life is cut short by 400 of the world’s brightest the disease. researchers at more than 30 institutions across the UK and Ireland. 6 7 Strategic report 2015/16 Breast Cancer Now Annual Report and Accounts 2015/16 In 2015 we published our Action Plan for Breast Cancer which sets out the key challenges we must overcome It’s been a if we’re to achieve our ambition that by 2050, everyone who develops breast cancer will live. busy year... Throughout this publication we are reporting against the aims and objectives of Breast Cancer Now from 1 August 2015 to 31 July 2016. The following summarises this year’s achievements and performance as measured Strategic against these areas of focus: report 2015-16 Risk and Early detection Treatment Secondary Prevention and diagnosis breast cancer Our work also promotes collaboration and innovation. We connect the laboratory bench with the hospital bedside, the GP’s surgery, the MP’s office and the policies that govern our health service – and all of our work is informed by women and men living with breast cancer and those committed to putting an end to the disease. 8 9 Strategic report 2015/16 Breast Cancer Now Annual Report and Accounts 2015/16 Risk and prevention Our aims and results in We will identify sustainable lifestyle changes, We will find the best risk-reducing 2015-2016 such as diet and physical activity, which “Our study has analysed very large interventions for women at increased risk of can reduce the risk of breast cancer, and amounts of data from women over breast cancer and ensure these are made help women understand how making these available and used as effectively as possible.