Novmeber 2005 Edition 7 and 8 combined

Table Of Contents Aut-Talk Newsletter from South Africa – the National Body for people with autism in South Africa Year-End wishes from Autism South Africa...... 1 “Autism Safari – Exploring New Territories” ...... 2 Registration Fees for delegates living in Africa for the World Congress on Autism. 2006...... 2 Year-End wishes from Autism South Africa Fee Structure for Delegates Living in Africa...... 2 Apologies ...... 2 Willing To Home-Host Out-Of-Town Delegates Attending The World The staff and members of the National Executive Congress In 2006...... 2 Committee of Autism South Africa would like to take this Tips and Suggestions for Families ...... 2 opportunity to wish all our reader’s of “Aut-Talk” well Begin subscribing to the different autism related organisations and newsletters...... 3 over the festive and holiday season. Tips To Make Holiday Time With A Child With Autism More Enjoyable Due to limited resources, the offices of Autism South For Everyone...... 3 Preparation ...... 3 Africa are under-staffed and despite the fact that we work Practical Considerations...... 4 jolly hard, we are aware that we have not been able to Check-In ...... 4 achieve all that we set out to do this year, but we are Special Requirements ...... 4 doing our best, so please bear with us!! Language Problems...... 4 UK NAS Autism Alert Card Text...... 4 The offices will be closed from 15th December till 9th Social Interaction...... 4 January, but in the case of a pressing situation that you Imagination...... 4 Communication ...... 4 feel you need to speak to someone about urgently , please What To Do If You Think A Person May Have Autism ...... 4 do not hesitate to contact Rosemary on 084-519-3740. When Talking To A Person With Autism: ...... 5 Flying Time...... 5 Thank you for your interest and support in 2005 of those Behaviour...... 5 with autism in our country. Holiday Letter...... 5 Books that are available for order through Autism South Africa...... 6 Books on New Diagnosis Or New To The Field Of Autism...... 6 CHANGE OF WEB ADDRESS Books on Hygiene...... 8 FOR AUTISM SOUTH AFRICA Books on Asperger Syndrome ...... 8 Books on Behavioural Issues...... 10 Books on Adolescence and Transition into Adulthood ...... 13 Please note that Autism South Africa has a new web address: Books on Sexuality...... 14 www.autismsouthafrica.org Books on Sensory Issues ...... 14 Please help us spread the word by letting all interested people Books on Communication ...... 15 Books on Dietary Intervention...... 15 know. Books on Personal Accounts ...... 16 Books for Siblings ...... 16 Are You A Professional Rendering A Service To Children?...... 18 Contact Details The Masters in Early Childhood Intervention...... 18 Jill Stacey. Pauline Shelver and Rosemary Viljoen For Whom Is The Course Intended? ...... 18 Course Structure ...... 18 P.O. Box 84209 Post Available National Out-Reach Trainer...... 18 Greenside. 2034 Pre-School Home-Based Education Training Course Comes To South Africa February 2006...... 19 Tel: (011) 486 3696 / 4037/0122 An Education and Skills Training Programme ...... 19 Fax: (011) 486 2619 ROLL CALL!!...... 20 Jill Mobile : 083 449 5179 Quarterly Magazine...... 21 Creation Of Support Groups Across South Africa...... 21 Pauline Mobile : 082 491 0833 Medicalert Bracelets For All Who Need Them ...... 21 Rosemary Mobile: 084-519-3740 Formation of network for children with Autism and E-mail: [email protected] ...... 21 Aspergers Family support circle...... 22 Web Page: www.autismsouthafrica.org “Tree of Light” to enhance the awareness of Autism ...... 22 (Please note new web address) Membership Form...... 24 Book order list...... 25 Have You Changed Any Of Your Contact Details Recently?...... 26

Autism South Africa sincerely thank the National Lottery Distribution Trust Fund for their ongoing support.

2nd World Congress on Registration Fees for delegates Willing To Home-Host Out- Autism living in Africa for the World Of-Town Delegates Cape Town Congress on Autism. 2006 Attending The World Congress In 2006 South Africa Fee Structure for Delegates 2006 Living in Africa. For those people living in Cape Town, are you willing to home host delegates The World Autism Organisation attending the World Congress on selected South Africa as the host Autism next year? If so, please let the country for the 2nd World Congress on offices of Autism South Africa know. Autism as a way to reach out and offer If you feel costs would need to be assistance to those affected by autism covered, please indicate the from more disadvantaged contribution you would require. backgrounds. As a result it was

decided that sponsorship would be sought by the World Autism Organisation and Autism South Africa

to underwrite approximately 50% of Tips and the registration fee for delegates who Suggestions for Families live on the African continent. Therefore the fee structure for (Taken from www. autisminfo.com) delegates living on the African Autism South Africa and the World Autism continent, will be as follows: Organisation have formed a partnership Establish A Division Of with the aim of providing the expected Professionals/Parents/People with Responsibility. If you are lucky audience of 1 500 delegates at the Cape ASD: Early Bird (Before 30th June enough to have a spouse, significant other, family member, or friend that is Town International Convention 2006) R 2 400 Centre, with at least 90 speakers from willing to lend a hand, establish a Professionals/Parents/People with around the world as well as many division of responsibility. There are m th poster presentations. ASD: Normal (After 30 June 2006) any areas that require work such as an R 2 900 ABA program, special diets, vitamin and “Autism Safari – Exploring (NB: Qualification for Early Bird mineral supplementation, dealing with entails registering and paying in full New Territories” school districts, and communication with before 30th June 2006) doctors and nutritionists to name a few. All of these areas take a large amount of th 30 October For further information please time initially, and a substantial amount till visit www.autismcongress.com of time on an on-going basis. If you are nd 2 November 2006 on your own, reach out to family and Apologies friends for possible assistance. One spouse may become an expert in the Cape Town International We are aware that a year ago different medical/nutritional areas, and the other Convention Centre rates were provisionally mentioned in may become the expert at dealing with the December 2004 Aut-Talk and the the school system, Medical Aid, and Two full days and two half days of above rates are different. We sincerely other services. It may be impossible for plenary sessions, plus 4 or 5 lectures apologise for the change , but when both spouses to work on all areas at the running concurrently throughout the working with the budget and after same time. congress. strong objection from the professional field as regards their category being Enquiries: charged a higher rate, we have had to Never Mention The Words SBS Conferences. alter the fees. Autism Or PDD/NOS With P.O. Box 1059. Doctors Or Insurance We do hope you find these fees Bellville. 7535. South Africa Companies. If you are treating satisfactory as you may well have Tel: +27 21 914 2888. biological abnormalities such as a yeast noted that overall each delegate from Fax: +27 21 914 2890 overgrowth, abnormal immune markers, Africa is “receiving” an average or diarrhoea, have the doctor code the E-mail: [email protected] sponsorship of close on treatment as such. There is a much R 2000. better chance of reimbursement or

payment for items that are coded this way. Many Doctors specifically exclude

Aut-Talk 3

AUTISM in their policies. If your child the thrift stores, and shop when they Preparation has chronic diarrhoea, they deserve have a half-price sale. Share books, and Once you have decided on your treatment like a typical child would get. take advantage of lending libraries. destination, it is advisable to tell your Do not let a medical professional tell you Make book purchase requests at your child about the trip. Individuals on the these abnormalities are "just a part of local library. Point out that many of the autistic spectrum find change difficult, autism". They are serious biological autism books are not "obscure" readings and this may lead to high anxiety and conditions that deserve attention and but quite desired by many local families possible challenging behaviour. vigorous treatment. with special needs children. However, by preparing your child as much as possible, any apprehension Immediately Find a Doctor and a Help other families of newly will hopefully be kept to a minimum. Nutritionist that are Experts in diagnosed children. If you are a You could perhaps compile a booklet about the holiday, including pictures Do not settle for couple of years into your child's Autism from the holiday brochure. These professionals that are familiar with progress, and things seem to be going well, try to reach out to others from time visual supports will help your child to autism or have a few patients that are understand where they are going and autistic. There are an increasingly large to time, as others may have done for you initially. what it will be like when they are number of doctors and health care there (see Visual supports information providers that are very knowledgeable Begin subscribing to the sheet). However, be careful if your in the most up-to-date treatments and child's understanding is very literal, as protocols. Do not be frustrated or dwell different autism related they may be upset if the holiday is not on a healthcare professional who tells organisations and newsletters. the same as the pictures in their you the situation is hopeless and nothing booklet. You could also include a can be done. Immediately move on to Tips To Make Holiday Time timetable of what you will be doing on another who shares your attitude that each day, perhaps including the times the underlying biological abnormalities, With A Child With Autism that you will have breakfast, lunch if corrected, may help your child More Enjoyable For and dinner (you could find out what improve and enable other therapies to be Everyone times meals are served from your more effective. travel agent, holiday company or in the holiday brochure). How structured Begin Reading and (Taken from the UK National Autistic this timetable needs to be will depend Bookmarking Sites on the Web Site www.nas.org.uk with a few on your child and how much they rely alterations for the South African Internet If you do not have a on routine. You do not necessarily situation) computer and internet access, get them. need to be very detailed about exactly which activities you will be doing If you do not have them available and Planning a holiday is exciting and during the holiday. Perhaps you could money is an issue, check into getting a sometimes stressful. If you have a write: 'Explore the resort' on the first used computer(1-2 years old) and free child with an autistic spectrum day, 'Go to beach' for the second day internet access. You can also establish disorder (ASD) a trip away may and so on. Sticking to some sort of where the closest Internet café is in your involve extra organising and routine each day should benefit area or close to your place of work. A preparation. We hope that the everyone. two year old computer will work just information given here will help you If your child has not travelled on a fine and there are now many sources of with this task. The word 'child' is used free access. Start bookmarking the key plane before, or you are going from an throughout this document, but the airport new to you, or on a sites. Join some of the internet discussion information provided may well also be groups. bigger/smaller plane, you may like to applicable to adults. When choosing a make a visit to the airport before you As you clean up and possibly restrict the holiday destination, you may like to diet of your child, do the same for go. This will help your child to find out what facilities are provided understand what the airport is like, as yourself. Try to find time to exercise, to and whether the staff have an eat right and to improve your health well as allowing them to experience understanding of disabilities in the journey to the airport before the where possible. Autism will not only general, or ideally, ASD. You may drain you financially, but it will drain day arrives. You could contact the wish to consider the specific needs of airline directly, and explain to them you physically. It will deteriorate your your child. For example, if your child health if you do not take proactive steps that your child has an ASD. You may is particularly sensitive to noise it can need to provide some general to improve your lifestyle. be a good idea to enquire how close information about the condition, as

your accommodation will be to the well as some details on your child's Begin networking with other pool area, as groups of people may particular needs and habits. This will families. Start a toy rotation program gather there all day and therefore help the airline staff to understand any with other families as rotating toys some noise will be inevitable. behaviours they observe: such as your among families to save money. Shop at

Aut-Talk 4 child's hand-flapping which helps telephone you should confirm these A person with autism has difficulty with him/her to keep calm. requirements in writing as well. social interaction, communication and If your child has particular medication Many airlines/airports are able to imagination, and will show some of organise tours around an aircraft or on needs, please discuss this with your these characteristics: GP before the holiday. And remember a simulator to help people with Social Interaction disabilities or those who might be to take all the medication that your . Seems isolated or not to care about child will require for the length of nervous about flying. This may benefit others . your child as it provides some your stay . Cannot read body language or impression of what being in an aircraft If your holiday will include any trips understand the need for tact might be like. to theme or water parks you may want . Behaves inappropriately or oddly to find out before you go whether . Avoids eye contact when feeling Practical Considerations these places require specific proof of worried or under pressure your child's disability, in order to . Dislikes physical contact. Check-In avoid the queues or make use of the You could discuss your check-in disabled facilities. Some may have Imagination arrangements with the airline. Perhaps particular forms for you to fill out, or . Cannot foresee the consequences they could arrange a time for you to may supply a specific member of staff of their actions check in, so that your family is able to to be your contact or guide for the day. . Very worried by changes in approach the check-in desk straight routines or unexpected events away, and your child does not become Language Problems . Likes set , and may overreact anxious due to the wait in the queue. While on holiday you may want to tell when people break them They may be able to provide a quieter others about your child's difficulties. . Often has special interests that area of the airport where you could This might be fellow holidaymakers or may become obsessions wait with your children. They may be theme park staff, as well as others. . Finds it difficult to see or imagine able to let you board first or last, Maybe take a small card that gives a another persons point of view. depending on what would be most brief explanation of autism and beneficial for your child, and perhaps Asperger syndrome. You could also maybe consider Communication seat you on the airplane either in the making an “Autism Alert” card that is • May not understand tone of front or back row of the plane, where voice, gestures or expressions there is often more room. The back easily carried around by the person with the ASD. This is the text from the like frowning or grinning row often has space behind the seats • Takes similes and metaphors where your child could walk about, if card compiled by the UK National Autistic Society: literally (so thinks daft as a brush this might be helpful. However, please and throwing the baby out with remember that this area is often the UK NAS Autism Alert Card the bathwater are about brushes location for toilets; this means that and babi es) there may be a high level of activity Text • Finds it difficult to hold a which could be distressing for some The holder of this card has autism conversation people with an ASD. (which includes Asperger syndrome). • May seem argumentative, Special Requirements This card is issued by The National stubborn, or angry... Remember to give the airline advance Autistic Society. It tells you what to • or over-compliant, agreeing to notice if your child has any special expect when you meet a person with anything even if untrue dietary requirements, particularly if autism. Autism is a disability that • May use formal, stilted or they are following a gluten or casein- affects social and communication pedantic language free diet as this may take longer to skills. People with autism may behave • May seem inattentive or organise. You will also need to let unpredictably because they have unresponsive your hotel know. To be on the safe difficulty understanding social • Can be honest to the extent of side it may be a good idea to take your situations and language. bluntness or rudeness. own meal. What To Do If You Think A Please note that many holiday Please help by showing understanding Person May Have Autism companies provide forms for and tolerance. People with autism may speak clearly passengers with disabilities where and properly but can lack full they can write any of their special understanding. Their apparent requirements. If you are unsure about independence can disguise their this form, please contact your holiday isolation and social disability. company or travel agent direct. Alternatively, if you tell your holiday company of any special needs over the

Aut-Talk 5

When Talking To A Person the familiarity of items from home can course in what to expect from their With Autism: help a person with an ASD to feel guest with autism. . first explain what you are more relaxed and calm in the new going to do and make sure environment. Remember also to bring Dear Family and Friends: " I understand they understand any such items which are used as that we will be visiting each other for the . use clear simple language comforters at home and may relax holidays this year! Sometimes these visits with short sentences your child while away. can be very hard for me, but here is some . ask specific, unambiguous information that might help our visit to be questions Behaviour more successful. As you probably know, I . avoid irony, sarcasm or At the start of the holiday you may am challenged by a hidden disability called metaphors like to establish clear, simple 'holiday Autism, or what some people refer to as a . allow the person extra time to rules'. These should tell your child Pervasive Developmental Disorder think about or act on what you about your expectations and should be (PDD). Autism/PDD is a said positive. Write these down if your neurodevelopmental disorder which makes . remember that if he or she is child is able to read. Use clear it hard for me to understand the avoiding eye contact, this does language as a reminder: "We don't do environment around me. I have barriers in not imply shiftiness or that on holiday." Once you have my brain that you can't see, but which disrespectfulness. decided on these rules, stick with them make it difficult for me to adapt to my and be consistent. This will establish surroundings. Important notes for legal or criminal boundaries for the holiday. Sometimes I may seem rude and abrupt, justice professionals but it is only because I have to try so hard Look out for any behavioural changes. to understand people and at the same time, A person with autism is vulnerable, It has been noticed that when some make myself understood. People with whether as victim, witness, or suspect. individuals with ASDs are on holiday autism have different abilities: Some may Their difficulty with communication, a regular behaviour pattern disappears not speak, some write beautiful poetry. interaction and imagination puts them and new behaviours emerge. This may Others are whizzes in math (Albert at a disadvantage when their actions be due to the change of environment Einstein was thought to be autistic), or and behaviour can be misinterpreted. and routine. For example they may may have difficulty making friends. We An Appropriate Adult should be communicate being tired, bored or are all different and need various degrees called upon to look after their welfare. stressed in a different way to when of support. Sometimes when I am touched they are at home. unexpectedly, it might feel painful and This card can also contain the person's Please remember that any change in make me want to run away. I get easily name and emergency contact details temperature might also affect their frustrated, too. Being with lots of other Flying Time behaviour. Some children may feel irritated by the heat and need time to people is like standing next to a moving To help your child cope with the adjust. They may need explanations freight train and trying to decide how and aircraft noise, particularly during take- and reminders to change their clothes, when to jump aboard. I feel frightened and off and landing, you may consider especially if they need to change from confused a lot of the time. This is why I using some sort of headphones. Some trousers and jumpers to shorts and t- need to have things the same as much as individuals on the autistic spectrum shirts. You may want to discuss this possible. Once I learn how things happen, like to listen to music. Perhaps your change in clothing before going on I can get by OK. But if something, child might like to listen to a familiar holiday, perhaps connecting each anything, changes, then I have to relearn piece of calming, reassuring music season with a particular type of the situation all over again! It is very while in the airport or during the clothing on your calendar at home. hard. flight. There are also headphones When you try to talk to me, I often can't which have been designed to shut out understand what you say because there is all surrounding noise, including the Holiday Letter a lot of distraction around. I have to sounds of aircraft engines. Remember concentrate very hard to hear and to check that these products would be (Taken from www.autisminfo.com) understand one thing at a time. You might suitable for children before buying This article appeared in the holiday think I am ignoring you--I am not. Rather, them, for both size and safety. 1999 issue of ASAP News! (Volume I am hearing everything and not knowing There may also be other items which 3.5) The Autism Support and what is most important to respond to. would keep your child occupied and Advocacy Project, and Potential Holidays are exceptionally hard because happy while travelling. These might Unlimited Publishing. there are so many different people, places, be favourite toys or objects they like to "Dear Family and Friends:" was and things going on that are out of my fiddle with. You could bring your written for the purpose of it being sent ordinary realm. This may be fun and child's pillow for comfort during the to relatives and hosts of holiday adventurous for most people, but for me, flight. You may even like to pack bed gatherings who might need a crash it's very hard work and can be extremely linen or a sleeping bag as sometimes stressful. I often have to get away from all

Aut-Talk 6 the commotion to calm down. It would be Perseverative behaviors are good to a limited quantity of each of our selected great if you had a private place set up to certain degree because they help me calm books to significantly increase delivery where I could retreat. down. time to you the customer. So if there is If I can not sit at the meal table, do not Please be respectful to my Mom and Dad if stock in Cape Town delivery will be think I am misbehaved or that my parents they let me "stim" for awhile as they know within the week (subject to post office have no control over me. Sitting in one me best and what helps to calm me. service!), but in some cases it could be place for even five minutes is often Remember that my Mom and Dad have to longer if there is no stock in Cape impossible for me. I feel so antsy and watch me much more closely than the Town and your books have to be overwhelmed by all the smells, sounds, average child. This is for my own safety, ordered from overseas. and people--I just have to get up and move and preservation of your possessions. It about. Please don't hold up your meal for hurts my parents' feelings to be criticized Please note that Autism South Africa me--go on without me, and my parents for being over protective, or condemned for cannot place an order on your behalf will handle the situation the best way they not watching me close enough. They are until we have received your full know how. human and have been given an payment for the books you wish to Eating in general is hard for me. If you assignment intended for saints. My purchase. understand that autism is a sensory parents are good people and need your processing disorder, it's no wonder eating support. Please find below a list of the books is a problem! Think of all the senses Holidays are filled with sights, sounds, with descriptions as well as an order involved with eating. Sight, smell, taste, and smells. The average household is form. May we ask you to fax, e-mail or touch, AND all the complicated mechanics turned into a busy, frantic, festive place. post the details of the books you wish that are involved. Chewing and Remember that this may be fun for you, to order as well as the proof of swallowing is something that a lot of but it's very hard work for me to conform. payment slip to Autism South Africa, people with autism have trouble with. I am If I fall apart or act out in a way that you ensuring you have written your not being picky--I literally cannot eat consider socially inappropriate, please surname and initial in the reference certain foods as my sensory system and/or remember that I don't possess the block of the bank deposit form. oral motor coordination are impaired. neurological system that is required to Autism South Africa is receiving Don't be disappointed If Mom hasn't follow some social rules. I am a unique discount on the books that will dressed me in starch and bows. It's person--an interesting person. I will find contribute to our posting your books because she knows how much stiff and my place at this Celebration that is to you via Speed Services, but we ask frilly clothes can drive me buggy! I have to comfortable for us all, as long as you'll try that you add R 10 per book ordered to feel comfortable in my clothes or I will just to view the world through my eyes! assist with costs of sending your books be miserable. When I go to someone else's via Speed Services, which we believe house, I may appear bossy and controlling. Books that are available for is the safest route In a sense, I am being controlling, because Bank: Standard Bank that is how I try to fit into the world order Branch: Benmore Gardens around me (which is so hard to figure through Branch Code: 012005 out!) Things have to be done in a way I am Autism Account Name: Autism South Africa familiar with or else I might get confused Account No: 2207 312 33 and frustrated. It doesn't mean you have South to change the way you are doing things-- Africa. Reference: Your surname and initials just please be patient with me, and understanding of how I have to cope. Mom Autism South Africa has entered into and Dad have no control over how my an agreement with Book Promotions autism makes me feel inside. People with and Horizon Books to make an initial autism often have little things that they do selection of books on autism more to help themselves feel more comfortable. accessible to people in South Africa. Books on New Diagnosis Or The grown ups call it "self regulation," or New To The Field Of Autism "'. I might rock, hum, flick my We have been informed by the 3 fingers, or any number of different things. involved publishers (Jessica Kingsley, I am not trying to be disruptive or weird. David Fulton and Guilford Press) and How to Understand Autism – The Again, I am doing what I have to do for distributors that the prices shown are Easy Way my brain to adapt to your world. unlikely to increase in the near future, Written by Alex Durig Sometimes I cannot stop myself from but as with delivery too, this may be Jessica Kingsley Publishers talking, singing, or doing an activity I subject to change in unforeseen ISBN: 1 84310 791 0. enjoy. The grown-ups call this circumstances and we ask that you (Current Price R 221.45) "perseverating" which is kinda like self bear with us. In this clear and accessible introduction regulation or stimming. I do this only to autism, Alexander Durig provides a because I have found something to occupy As far as delivery is concerned, host of ideas and examples that enable myself that makes me feel comfortable. Horizon Books has already order a the reader to understand the

Aut-Talk 7 phenomenon of autism, recognize ‘Mechanics’ of ‘Autism’ and its inundated with prognoses and clinical different kinds of autistic perception and Developmental ‘Cousins’ jargon, or confused by technical behaviour, and prepare for interaction Written by information. This book introduces with autistic people. To help ‘normal’ Jessica Kingsley Publishers autism from a non-clinical, humanist people understand and lose their fear of ISBN: 1 85302 387 6 perspective, emphasizing that we are all autism, Durig discusses the notions of (Current Price R272.75) more alike than different. The author ‘slight’ autism, being or becoming deconstructs the fundamental concepts Donna Williams’ challenging new ‘autism-friendly’, and the mental well- of the autistic experience using language, book, written by an autistic person for being of autistic people. The author examples and anecdotes that are people with autism and related explains how autistic perception ‘works’ concrete and understandable for all. disorders, carers, and the professionals and how it yields autistic behaviours’, to Reinforced for the reader is the who work with them, is a practical enable readers to see the world through importance of listening carefully to what handbook to understanding, living the eyes of an autistic person, and thus people are telling us about valuing with and working with autism. change the way they perceive autism. differences, personal passions, Exploring autism from the inside, it communication, and holistic wellness. shows clearly how the behaviours

Autism – The Eighth Colour of associated with autism can have a the Rainbow. Learn to Speak range of different causes, and in many A Positive Approach to Autism. Autistic. cases reflect the autistic person’s Written by Stella Waterhouse. Written by Florica Stone. attempt to gain control over their Jessica Kingsley Publishers Jessica Kingsley Publishers internal world. The sensory and ISBN: 1 85302 808 8 ISBN: 1 84310 182 3 perceptual problems that challenge a (Current Price R272.75) (Current Price R306.95) person with autism are described in In this fresh and positive book, Stella Through her questioning of traditional depth, together with strategies for Waterhouse investigates how people approaches regarding autism, and tackling them so as to enable that with autism perceive the world, and with determination and patience, person to take more control of their discusses the symptoms, behaviours and Florica Stone has been able to develop lives. Donna Williams comments on possible causes of this condition. In a satisfying and supportive two-way the various approaches to autism, addition to examining the relation of channel of communication with her drawing out those strategies that are autism to hyperactivity, Attention Deficit autistic son. In Autism – The Eighth of real use, and explaining why some Disorder, Obsessive Compulsive Colour of the Rainbow Florica shows approaches may prove Disorder and Tourette Syndrome, she how shared meanings can be learnt counterproductive, leaving the autistic also considers the impact of anxiety and and expressed between autistic and person feeling even more isolated and the pros and cons of some of the current non-autistic individuals, though they misunderstood. treatments including secretin, diet, tinted experience radically different Taking the view that understanding lenses and Auditory Integration perceptions of reality. Through autism is the key to managing the Training. Her approach mphasizes the interacting with and listening to her condition, Donna Williams’ book will importance of taking into account the autistic friends and son, she began to bring illumination to all those who have views of people with autism and their understand the autistic learning style felt baffled and frustrated by the outside families. This is a practical and and to decipher the various appearance of autism. It contains a sympathetic book, which will be of behavioural needs that arise from their wealth of helpful suggestions, insights interest to professionals and non- particular sensory processing. and new ideas, exploding old myths and professionals alike. promoting a view that all those involved A Mind Apart. Understanding In this inspiring, much-needed practical with autism will find empowering and Children with Autism and guide she presents ways of creating creative. Asperger Syndrome autistic-friendly environments, Written by Peter Szatmari. modifying habitual or traditional Demystifying the Autistic Guilford Press. ISBN 1-57230-544-4 responses to autistic behaviour, using Experience. A Humanistic (Current Price R 193.23) forms of literal learning, and provides Introduction for Parents, How do you know if your child is happy many useful examples and exercises. Caregivers and Educators. or sad, tired or hungry, when all he This book will help parents, teachers and Written by William Stillman wants to talk about is wasps—or the professionals to learn how to interact Jessica Kingsley Publishers color of subway train doors? What can positively with autistic children and ISBN: 1 84310 726 0 you do to reassure a nine-year-old who bring about long-lasting changes. (Current Price R 221.45) asks questions about death hundreds of

Parents, caregivers and educators are times in a day? And how can you build a Autism: An Inside-Out Approach. often at a loss about how best to support nurturing relationship when your little An Innovative Look at the an individual with autism because they girl hates to be touched? are overwhelmed by ‘behaviors’, Questions like these make parenting a

Aut-Talk 8 child with autism or Asperger syndrome Toilet Training for Individuals This is a book to be read and consulted (AS) a journey through uncharted with Autism and Related over and over again.' (- From the foreword by Lorna Wing) terrain. That’s why understanding how Dsorders. kids with these disorders actually think A Comprehensive Guide for and feel—and the striking ways in which Tony Attwood's guide will assist their minds work differently from those Parents and Teachers parents and professionals with the of typical children—is so important. Written by Maria Wheeler. identification, treatment and care of Through moving stories of children he Jessica Kingsley Publishers both children and adults with has worked with, Dr. Peter Szatmari ISBN: 188547 745 7 Asperger's Syndrome. The book helps you see the world through your (Current Price R238.55) provides a description and analysis of child’s eyes. Revealed is what lies behind Wetting and soiling clothes results in the unusual characteristics of the the intense preoccupations, significant amounts of time, energy syndrome and practical strategies to communication problems, and seeming and resources being devoted to an reduce those that are most lack of affection that often accompany individual's personal care needs, and conspicuous or debilitating. Beginning autism and AS, and what your child’s can also significantly interfere with with a chapter on diagnosis, including mystifying behavior might really be social acceptance. Research shows that an assessment test, the book covers all trying to tell you. This compassionate persons with autism are the most aspects of the syndrome from book shows how gaining a better sense difficult population to toilet train, not language to social behaviour and of your child’s experience can deepen the least because many techniques used to motor clumsiness, concluding with a bonds that support learning and toilet train children are not sufficient chapter based on the questions most growth—and help you lead the way when used to teach toileting skills to frequently asked by those who come toward a happier future. persons with autism. There are, into contact with individuals with this however, strategies which have been syndrome. Covering the available Books on Hygiene demonstrated to be effective when literature in full, this guide brings teaching toileting skills, and Maria together the most relevant and useful Wheeler explains these in an easy-to- information on Asperger's Syndrome, Personal Hygiene? What's that read and accessible way in this new incorporating case studies from the Got to Do with Me? book, which covers all aspects of the author's own practical experience as a Written by Pat Crissey. Illustrated by subject and includes over 200 toilet Clinical Psychologist, with examples Noah Crissey. training tips, and more than 40 case of, and numerous quotations from Jessica Kingsley Publishers examples with solutions. people with Asperger's Syndrome. ISBN: 1-84310-796-1, (Current Price R221.45) Books on Asperger Syndrome Asperger's Syndrome DVD Personal Hygiene? What's that got to do By Tony Attwood. with me? is a curriculum developed for Asperger’s Syndrome. A Guide Jessica Kingsley Publishers students with autism, Asperger's for Parents and Professionals. ISBN: 1-88547-796-1. (Current Price R 1091.50) Syndrome, learning and developmental Written by Tony Attwood. In this new DVD, Tony Attwood goes disabilities, designed to help them Jessica Kingsley Publishers into depth on three important issues; understand how others perceive their ISBN: 1 85302 577 1. Anger management, teaching teachers, appearance and the social implications of (Current Price Approx R221.45) neglecting personal hygiene. Simple and teenage issues. Readers of his 'Parents, other family members and factual information is accompanied by book will be aware of his thoughtful professionals have to understand the humorous cartoons that emphasize how and down-to-earth approach and this point of view of people with others view someone with poor hygiene. DVD presents groundbreaking new Asperger's Syndrome in order to work Step-by-step cartoons explain exactly approaches to significant challenges. with them effectively. The strength of what the student needs to do to ensure Tony Attwood's book is that he has good hygiene. Quizzes and activity made the essential imaginative leap Asperger's Syndrome Video. pages provide numerous opportunities into the Asperger world. He has real Diagnosis and Support. for repetition and reinforcement of the empathy with the children and adults By Tony Attwood. key points. There are also hands-on he writes about and his sympathy, Two 90-minute videotapes. activities to demonstrate why and how knowledge and common sense come Jessica Kingsley Publishers. to perform various hygiene tasks. through on every page. Readers will ISBN 1-85302- 787-1, Several are also provided, appreciate the detailed discussions of (Current Price R 945.97) along with a set of worksheets that help the problems people with the All those who know Tony Attwood's students set up a daily schedule to allow syndrome will encounter and the work, and his highly acclaimed book, time for completing necessary hygiene practical suggestions for helping to Asperger's Syndrome: A Guide for tasks. overcome or compensate for them. Parents and Professionals will be aware of his extensive knowledge of the

Aut-Talk 9 subject and his down-to-earth and Reflecting the views of parents, include individuals on the autism positive approach. In this video he professionals and those with AS spectrum, parents and professionals. explains and discusses the diagnosis of themselves, this book tackles issues The broad range of the chapters, Asperger's Syndrome and how people that are pertinent to all teenagers, such which draw on anecdotal, professional who have been diagnosed in this way as sexuality, depression and and research-based evidence, make can be supported, and their strengths friendship, as well as discussing topics this book a comprehensive and highly developed. He covers the theory of like disclosure and therapeutic original consideration of the mind of those with this challenge and, alternatives that are more specific to implications of an AS diagnosis. as he does, his ideas broaden our those with AS. This book aims to make The ever-difficult question of who to perception and understanding. The the transition from child to adult as tell and when once a diagnosis has video format enables the viewer to see smooth as possible, and is an essential been confirmed is discussed in great his ideas in action, and will be survival guide to adolescence. depth. Liane Holliday Willey and invaluable for parent support groups, Stephen Shore examine the dynamics training, and as a general introduction Congratulations! It's Asperger of disclosure, its risks and the possible to Asperger's. Syndrome. effect on self-confidence. Jacqui This presentation was given live to Jackson looks at how a diagnosis By Jen Birch. audiences recently in several major impacts upon family life. Tony Jessica Kingsley Publishers ISBN: 1- American cities, and at all the events Attwood provides a clinician's view of 84310-112-2, 2003. attendees were unanimous in their diagnosing adults, and Lynne Moxon, (Current Price R272.75) appreciation for the quality of his Wendy Lawson, Dora Georgiou and One of the increasing number of ideas. Jane Meyerding discuss adult issues Author of the well-known book people diagnosed with Asperger surrounding disclosure, including Asperger's Syndrome: A Guide for Syndrome in adulthood, New how to deal with relationships and Parents and Professionals, Tony Zealand-born Jen Birch relates her sexuality, and disclosure in the Attwood is a Clinical Psychologist story with humour and honesty, workplace, as well as social and who has specialized in autism for over taking us through the years of disability issues. twenty-five years. As a practising frustration and confusion that led to A unique and fascinating insight into clinician, with special interest in early her diagnosis in 1998. Now that she the important issue of diagnosis diagnosis, severe challenging can put her life experiences into disclosure, this book is an essential behaviour and Asperger's Syndrome, context, she candidly describes her guide for people with AS, parents, his experience covers the full range of continual search for 'normality', teachers, professionals and all those including her experiences at work, her the spectrum, from the profoundly who have ever felt confused about disabled to the most highly difficulties with relationships, her time revealing a personal issue. spent in psychiatric hospital and her functioning. Over the last twenty-five struggle for correct diagnosis in a Asperger Syndrome. years he has met and worked with Edited by Ami Klin, Fred R. Volkmar, and several hundred individuals with this country where the syndrome is relatively unknown. Talking positively Sara S. Sparrow. syndrome, ranging widely in age, Guilford Press. ability and background. about how her life has changed since the 'revelation', Jen aims to use this ISBN 1-57230-534-7

new-found knowledge to inform (Current Price R 695.30) Asperger Syndrome in others about the syndrome and how, Usually diagnosed in childhood, Adolescence. once its pros and cons are understood, Asperger syndrome is a lifelong social Living with the Ups, the Downs life can be lived to the full. disorder that bears many similarities and Things in Between. to high-functioning autism. Individuals with the disorder are Edited by Liane Holliday Willey. Coming Out Asperger. Diagnosis, Foreword by Luke Jackson. characterized by a lack of empathy, Disclosure and Self-Confidence. little ability to form friendships, one- Jessica Kingsley Publishers Edited by Dinah Murray. ISBN: 1-84310-742-2. sided conversations, clumsy Jessica Kingsley Publishers movements, and intense absorption in (Current Price R238.55) ISBN: 1-84310-240-4, Childhood and adult experiences of special interests. While Asperger (Current Price R238.55) syndrome has received increasing individuals with Asperger Syndrome Coming Out Asperger explores the (AS) are becoming increasingly well attention from researchers, clinicians, complexity of diagnosis for Asperger educators, and parents in recent years, documented, yet the crucial formative Syndrome, the drawbacks and benefits teenage years have, so far, been numerous central questions about the of disclosing a diagnosis of a "hidden disorder remain unanswered. This neglected. Adolescence is a difficult disability," and how this impinges on time for any teenager, but when you groundbreaking volume brings self-esteem. The contributors include together preeminent scholars and have Asperger Syndrome this already some of the best-known and most emotionally complex time of life practitioners to offer a definitive exciting writers in the field of statement of what is currently known becomes all the more challenging. Asperger Syndrome (AS) today, and

Aut-Talk 10 about Asperger syndrome and to efforts.' such as physical aggression, self- highlight promising leads in research – Gary B. Mesibov, Ph.D., Professor & injury, verbal abuse, rudeness and and clinical practice. Diagnostic and Director, Division TEACCH, property damage. conceptual issues are explored in University of North Carolina at depth, and the disorder's assessment, Chapel Hill The book is organized around the treatment, and neurobiology are common messages conveyed by thoroughly reviewed. The book This book offers a comprehensive behaviors and some of the underlying examines the effects of Asperger overview of clinical, research and issues that drive these messages. syndrome on an individual's social, personal perspectives on Asperger Practical ideas for intervention are communication, and behavioral Syndrome, including contributions provided and illustrated by case development, and identifies the from parents and experts in the fields examples. A range of exercises help to challenges that these individuals face of , social work, psychiatry, build understanding of the issues and at home, in school and the workplace, genetics, sexology and vocational detail appropriate plans. A log book and in other settings. The volume counselling. helps to track what has been tried and concludes with several parent essays It includes first-hand accounts from what has been learned. In addition the that exemplify the trials and adults with AS, highlighting their author explores the role of relationship tribulations--as well as the joys and the difficulties in areas such as social ‘styles' that can help reduce victories--of life with a child with competence and education. Specialist challenging behaviors and encourage Asperger Syndrome. perspectives on AS, including positive ones. Realistic information sexuality and relationships, finding about working together with Children, Youth and Adults with and keeping employment and anxiety individuals, families and outside Asperger Syndrome. and depression are sensitively agencies, and about the pros and cons Integrating Multiple Perspectives. addressed. The viewpoints of parents of medication, is also included This explore experiences of parenting AS hands-on, practical manual is Edited by Kevin P Stoddart. individuals. These varied approaches indispensable for families, carers and Jessica Kingsley Publishers to living with AS complement the anyone involved with autistic people ISBN: 1 84310 319 2. emerging literature on theory, research who need help with behavioral or (Current Price R341.15) and practice in this area. emotional challenges. This new emphasis in the field on the more able group with Autism Behavioural Concerns and The broad scope of Children, Youth Autistic Spectrum Disorders. Spectrum Disorders (ASD) is an and Adults with Asperger Syndrome important one for researchers and Explanations and Strategies for guarantees a wide readership among Change. practitioners so this comprehensive practitioners, students, parents, young book is a welcome addition to the Written by John Clements and Ewa people and adults with AS, educates Zarkowska literature. The editor has assembled a service providers how to assist people Jessica Kingsley Publishers distinguished group of contributors, with AS and suggests a model of ISBN: 1 85302 742 1. representing a wide range of interdisciplinary collaboration for (Current Price R272.75) disciplines and perspectives. The administrators and funders. result is a comprehensive volume that Understanding and Working with the Behavioural Concerns and Autistic adds immeasurably to our Spectrum of Autism. Wendy Lawson Spectrum Disorders: Explanations and understanding of theory and practice Strategies for Change is a practical and in this important area. Although the comprehensive account of how people contributors are primarily Canadian, Books on Behavioural Issues who attract autism labels can come to their themes and reputations are behave in ways that give rise to international, and readers will People with Autism Behaving serious concerns in other people and, appreciate the multitude of Badly. Helping People with ASD sometimes, themselves. The authors experiences they bring to these Move On from Behavioral and identify the range of needs that may important issues. Clinical practice is Emotional Challenges. be expressed through behaviours that highlighted but there is a solid section Written by John Clements cause concern and provide strategies on theoretical perspectives as well. Of Jessica Kingsley Publishers for addressing both needs and particular interest to many are the ISBN: 1 84310 765 behaviours. These strategies are based personal perspectives of individuals (Current Price R238.55) on extensive research and on the with ASD and their parents. The book authors' own clinical experience. People with autism spectrum will be of interest to parents, conditions may often behave in ways professionals, academics, and Each aspect of need is analysed in that cause difficulties for themselves everyone else affected by or interested detail. General principles for dealing and those who care for them. People in ASD. It is a welcome addition to the with these needs are presented, and in with Autism Behaving Badly offers literature and the editor and each case a `tips and hints' section effective, long-term strategies to help contributor are to be thanked for their offers more specific help on possible resolve common problem behaviors

Aut-Talk 11 solutions. Included in the appendices Conversation Skills; Sensory and Autism Spectrum; National are advice on identifying the factors motor; Language and communication; Curriculum - challenges for pupils behind a behaviour that causes Social skills; Section 2: General with ASD; Structured teaching as a concern and guidance on how to strategies; Section 3: An autistic view foundation for educational ensure that support services are of the world; Section 4: Resources; programmes; Physical structures and delivering what they should. This is a Circle of friends 1; Circle of friends 2; routines; ; Work book that will be essential reading for Conversation cue cards; Task sheets. systems; Visual information; Tying it all those working or living with all together. autistic people. Accessing the Curriculum for Pupils with Autistic Spectrum Pre-Schoolers with Autism. An Autism in the Early Years. Disorders. Using the TEACCH Education and Skills Training Written by Val Cumine, Julia Leach and Programme to Help Programme for Parents - Manual Gill Stevenson. Written by Gary Mesibov and Marie for Clinicians. David Fulton Publishers. Howley. Written by Avril V Brereton and Bruce J ISBN: 1-85346-599-2. David Fulton Publishers. Jonge. (Current Price R307.80) ISBN: 1-85346-795-2. Jessica Kingsley Publishers ISBN: 1- This practical guide outlines the (Current Price R290.70) 84310-342-7. characteristics of autism as they This book explains ways to open up (Current Price Approx R598.50) present themselves in the early years; the curriculum to pupils who have considers the nature of autism and the autistic spectrum disorders. The issues surrounding assessment and particular difficulties experienced by diagnosis; offers practical strategies for pupils are discussed in direct relation effective and realistic intervention to specific areas of the curriculum, Pre-Schoolers with Autism. An both at home and in a variety of early including: core and foundation Education and Skills Training years settings; and explores subjects; PSHE; citizenship; and Programme for Parents - possibilities for enhancing access to broader aspects such as break times Manual for Parents. the early years curriculum. Table of and assemblies. Many pupils with Written by Avril V Brereton and Bruce Contents: Assessment and diagnosis; autistic spectrum disorders (ASD) J Tonge. implications of current theories for have difficulties accessing the Jessica Kingsley Publishers intervention; intervention approaches; curriculum due to problems including ISBN: 1-84310-341-9, differentiating the early years lack of understanding of meaning, (Current Price R238.55) curriculum; managing difficult organization, sequencing and behaviours. This ground-breaking training problem-solving. They require programme has been developed in

consistency and structure to enable response to a real need for evidence- Autistic Spectrum Disorders. them to make sense of concepts such based early interventions for very Practical Strategies for Teachers as what work, how much work, what young autistic children. Authoritative and Professionals. to do and what is next regardless of and extensively tried and tested, it will Written by County Council the curriculum subject. Division help both parents and carers to Communication Support Services TEACCH is North Carolina's understand the disorder and how it Northumberland County Council statewide programme serving people affects child development. Ultimately, Communication Support Services with autistic spectrum disorders and the programme is designed to reduce David Fulton Publishers. the principles behind its intervention the severity of emotional / ISBN: 1-84312-155-7. technique, called Structured Teaching, behavioural difficulties by managing a (Current Price R290.70) have been widely implemented child's particular problems and throughout the world with great Increasingly, teachers are expected to encouraging effective collaboration success. identify problem areas and help between professionals and parents. This book shows the reader how children with ASD to change or The programme is delivered through Structured Teaching can enable pupils manage their behaviour appropriately. two accessible manuals – one for with ASD to access the curriculum in a This book offers off-the-shelf support parents and one for clinicians – which meaningful way and offers many to teachers and includes: helpful provide all the information and practical strategies to facilitate this categorisation of problem areas; materials you need. process. The book should benefit those solutions that will allow teachers to on specialist autism courses, all help children promptly and The Manual for Clinicians explains the providers of autism-specific training effectively; advice on setting IEP purpose and content of each session and the many teachers and teaching targets; and photocopiable resources. and includes notes for discussion and assistants working with autistic pupils Table of Contents: Introduction; teaching, a checklist of ‘things to do', who are asking for this guidance. Section 1: Areas of difficulty; and photocopiable task sheets for Table of Contents: Overview of the Behaviour; Thinking and learning; distribution and discussion.

Aut-Talk 12

challenges, Making it a Success is a Written By Peter Vermeulen. The Manual for Parents features tasks, user-friendly resource to help teachers Jessica Kinglsey Publishers. exercises and discussion points for and teaching assistants effectively ISBN 1-85302-916-5. group sessions, and complements integrate students with special needs (Current Price R306.95) these training materials with engaging into the classroom. I am Special is a workbook developed personal accounts, an introduction to by Peter Vermeulen and already used the history of autism, information With photocopiable worksheets, extensively with young people with about approaches to treatment, and a creative ideas for activities and teacher autism spectrum disorder. The list of useful websites and further notes, Sue Larkey presents effective workbook is designed for a child to reading. ways of helping children with autism work through with an adult - parent, spectrum disorder (ASD) improve teacher or other professional. Unlike Structured as a series of individual their social skills, reading, writing and other books, its content and layout are and small group sessions, the maths, play and general behaviour. devised especially for children who programme is designed to run for 20 She provides solutions for dealing read, think and process information weeks and covers key areas such as with constant questioning in the differently. I am Special is divided into understanding and managing difficult classroom as well as managing two parts. The first is a theoretical behaviour; changing/encouraging children's special interests and introduction which explains how to new behaviours; communication obsessions. inform children that they have autism problems in verbal and non-verbal or Asperger Syndrome and how to use children; social problems; and how to Making it a Success introduces the worksheets with groups or work and play together. Together, strategies that are applicable not only individuals. The second part consists these manuals will provide you with to students with ASD but also to those of a series of worksheets which the all the information, support and with a range of special needs and is an child works through with an adult to resources you need to run this essential resource for all those create a unique and personal book programme successfully. working in integrated classrooms. about him or herself. It includes a Together, these manuals will provide series of exercises that present autism you with all the information, support Addressing the Challenging positively. They strike a balance and resources you need to run this Behavior of Children with High- between general facts, information programme successfully. Functioning Autism/Asperger about autism and personal Syndrome in the Classroom. A information, covering the strengths an Making it a Success. Practical Guide for Teachers and Parents. autistic person may have as well as the difficulties they may face. Strategies and Worksheets for Written by Rebecca A Moyes.

Teaching Students with Autism Jessica Kingsley Publishers. I am Special can be used with young Spectrum Disorder. ISBN: 1-84310-719-8. people over the age of ten years. Not Written by Sue Larkey. Foreword by Tony (Current Price R272.75) only is it an excellent source of Attwood. How do teachers and parents of information for the autistic child; it can Jessica Kingsley Publishers. children with autism address a child's be the first step in a process of ISBN: 1-84310-204-8. social skills? And what do they do counselling or psychotherapy or the (Current Price R221.45) about problem behaviors? This book springboard for a discussion group on ‘Sue Larkey knows the problems provides possible explanations for autism. associated with inclusion not only these behaviours, and a wealth of from her experience as a teacher practical help for both teachers and herself, but also from her academic parents to address them. Teachers School Phobia, Panic Attacks and knowledge and qualifications and learn how to create environmental Anxiety in Children. from her intuitive understanding of supports and how to incorporate Written by Márianna Csóti. autism. She has a remarkable ability to specific teaching strategies. Students Jessica Kingsley Publishers. identify and briefly explain the with autism learn the new skills they ISBN: 1-84310-091-6. difficulties experienced by a child with might need, and ways of making their (Current Price R289.85) autism in a regular classroom and to behavior more acceptable. This book is Many children are challenged by suggest realistic and practical full of practical tips on how to tackle anxiety at some time in their school strategies to improve abilities and different kinds of challenging career. Bringing together knowledge behaviour. Her advice is succinct and behaviors both in the classroom and from her years of teaching and wise. This book is precisely what outside it. parenting, Márianna Csóti shows how teachers ask for and need.' – from the parents and professionals can help foreword by Tony Attwood I am Special. Introducing children aged five to sixteen move away from the negative thoughts and Children and Young People to Providing easy to follow, proven behaviour that contribute to school strategies for common teaching their Autistic Spectrum Disorder. phobia.

Aut-Talk 13

As well as tackling specific problems Written by Lise Pyles. Foreword by Tony school and homeschooling, medication of bullying, separation anxiety, social Attwood. and dietary issues. phobia and panic attacks, the author Jessica Kingsley Publishers. Written in clear, straightforward provides information on current ISBN: 1-85302-937-8, 2001 language, the book does not promote therapies and medication for the .(Current Price R187.25) any particular therapy or prescribe severely affected and on what to do if 'Although the book is primarily fixed solutions, but aims to help the child regresses. The advice can also written for parents, I read the parents to ask good questions and be used to help guard against another manuscript with my text liner in come up with answers to suit their sibling developing school phobia. constant use, highlighting her own circumstances and children. Full descriptions and advice and gaining of humour and common sense, This positive and practical book much insight to aid me in my Hitchhiking through Asperger provides is packed with information professional role. She provides an Syndrome will make encouraging, and guidance for parents, carers, explanation of the syndrome in terms inspiring and entertaining reading for teachers and other child-support that are clear and accurate. Her all parents of children with Asperger professionals, on dealing effectively chapter on coming to terms and Syndrome. with the difficulties of children whose moving forward examines many Books on Adolescence and lives are being adversely affected by issues that are extremely important for Transition into Adulthood this distressing and very real parents. She writes as a mentor, condition. support, from how to companion and navigator, providing Freaks, Geeks and Asperger contact professionals, to exercises to information and options, and build confidence and promote generates a positive attitude in the Syndrome. A User Guide to relaxation. reader. This book will help parents Adolescence. Asperger Syndrome - What achieve understanding and become Written by Luke Jackson.. Teachers Need to Know. not only more knowledgeable, but Jessica Kingsley Publishers Written by Matt Winter. empowered in their ability to achieve ISBN: 1 84310 098 3. Jessica Kinglsey Publishers real progress. (Current Price R221.45) ISBN: 1-84310-143-2. 'Tony Attwood' Lise Pyles' Have you ever been called a freak or a (Current Price R187.25). Hitchhiking Through Asperger geek? Have you ever felt like one? As awareness of Asperger Syndrome Syndrome is a warm personal journal, Luke Jackson is 13 years old and has (AS) grows, it becomes increasingly an incredibly comprehensive Asperger Syndrome. Over the years important that all professionals have a encyclopedia and a very practical Luke has learned to laugh at such familiarity with and understanding of instruction manual all conveniently names but there are other aspects of the condition. However, for teachers, wrapped up into one beautifully life which are more difficult. who have minimal spare time, it is written book. I have had the privilege Adolescence and the teenage years are difficult to access the details they need of reading most every book written on a minefield of emotions, transitions for working with AS children without Asperger Syndrome and I can and decisions and when a child has wading through extensive books honestly say, if you are only going to Asperger Syndrome, the result is often aimed at parents and professionals. buy a tiny handful of books on the explosive. Asperger Syndrome - What Teachers subject, make certain this is one of Need to Know bridges this gap and is them. As for me, I'm going to buy a Luke has three sisters and one brother the ideal starting point for teachers copy for everyone I know.'Liane in various stages of their adolescent wishing to learn about Asperger Holliday Willey. and teenage years but he is acutely Syndrome and how best to work with aware of just how different he is and and get the most from a child with an Written from a parent's perspective, how little information is available for ASD. Providing a summary of this book gives a candid and adolescents like himself. currently available information on AS thoughtful account of one family's trek and covering all the key issues that through the world of Asperger Drawing from his own experiences will concern teachers (e.g. social skills, Syndrome. The author makes it very and gaining information from his homework, playground behaviour, clear that, while professional help can teenage brother and sisters, he wrote assisting with study), Matt Winter, a be necessary, parents are in the best this enlightening, honest and witty teacher himself, imparts tips and position to make a difference in their book in an attempt to address difficult practical ideas that he has found children's lives and should be in topics such as bullying, friendships, successful and invaluable for anyone control of, and involved in, their when and how to tell others about AS, working in a school environment. children's care and education. She school problems, dating and relationships, and morality. Luke offers practical and positive advice on topics including diagnosis and self- writes briefly about his younger Hitchhiking through Asperger diagnosis dealing with your own autistic and AD/HD brothers, Syndrome. reactions and those of others, types of providing amusing insights into the antics of his younger years and advice

Aut-Talk 14 for parents, carers and teachers of to help students who are living away examine the implications of being younger AS children. However, his from home autistic on relationships, sex and main reason for writing was because sexuality. Having discussed subjects A CD containing time-saving "so many books are written about us, resources; How other students, tutors such as basic sex education and but none are written directly to autism, the author goes further to and disability services can help; Useful adolescents with Asperger Syndrome. references and addresses showing explore the wider issues of I thought I would write one in the interpersonal relationships, same sex where to go next hope that we could all learn together". attraction, bisexuality and transgender This book is suitable for students who issues. She also examines the Multicoloured Mayhem have Asperger Syndrome, their unspoken rules that exist between support staff and personal tutors in Parenting the Many Shades of people in relationships and explains Institutes of Higher why these rules can be difficult and Adolescents and Children with confusing for people with autism. This Autism, Asperger Syndrome and How to find work that works for book will give courage and ADHD. people with Asperger Syndrome. information to adults with autism or Written by Jacqui Jackson. Asperger Syndrome and provide Jessica Kingsley Publishers. The Ultimate Guide for Getting People with Asperger Syndrome essential insights to those living and ISBN: 1-84310-171-8. working with them. (Current Price R221.45) into the Workplace (and keeping Jacqui Jackson has seven children. them there!) Luke (author of Freaks, Geeks and Written by Gail Hawkins. Asperger Syndrome) has Asperger Jessica Kingsley Publishers ISBN: Syndrome, Joe has ADHD, and Ben 184310 151 3. has autism. Life is anything but (Current Price R255.65) straightforward, but the chaos of the For those who want to help somebody Books on Sensory Issues Jacksons' lives is threaded through with Asperger Syndrome find and with humor and common sense. Full keep a satisfying job, this book is a Understanding Sensory of anecdotes and lively thinking, the vital tool. Gail Hawkins guides Dysfunction. Learning, book explains vividly what it is like to readers through the entire process of Development and Sensory parent young people with such a gaining employment, from building a range of conditions, and provides a supportive team, identifying and Dysfunction in Autism Spectrum wealth of helpful and creative advice addressing workplace challenges, to Disorders, ADHD, Learning for other parents and carers. Anyone securing an appropriate post. Disabilities and . who has wondered what life in such a Including practical tips on topics such Written by Polly Gowin Emmons and Liz family might be like will be fascinated. as finding potential employers and McKendry Anderson. creating a dazzling CV, as well as Jessica Kingsley Publishers ISBN: 1 843198062 Managing Asperger Syndrome at sensitive advice on assessing when (Current Price R221.45) College and University. A somebody is ready for work, and how, when and where to disclose a Understanding Sensory Dysfunction Resource for Students, Tutors and disability to an employer, Hawkins' is a clear and comprehensive resource Support Services. well-tested approach aims to provide to identifying and addressing sensory Written by Juliet Jamieson and Claie all the information needed for a fast, dysfunction in children, using a range Jameson. realistic, and successful path to of practical strategies to help them David Fulton Publishers ISBN: 1- fulfilling employment. reach their full potential at home, at 84312-183-2. school and in the community. (Current Price R342.00) Books on Sexuality Meeting all the demands of student Sex, Sexuality and the Autism The authors explain the causes, life can be tough, especially for contributing factors, symptoms and Spectrum. students with Asperger Syndrome. associated behaviors of sensory Written by Wendy Lawson. Foreword by This book is full of practical dysfunction, particularly when found Glenys Jones. suggestions on how to make the post- in conditions such as autism spectrum Jessica Kingsley Publishers. 16 educational experience a good one. disorders (ASDs), ADHD and bipolar ISBN. 1-84310-284-6. Advice is based upon sound disorder. Focusing on early (Current Price R238.55) knowledge of theory and practice and intervention, they provide a host of includes: Taking steps towards Written by an ‘insider', an openly gay tried and tested integration activities, selecting the right course at the right autistic adult, Wendy Lawson writes assessment and curricular institution; coping strategies to use in frankly and honestly about autism, sex modifications, treatment options and academic and social situations; advice and sexuality. In her new book, she useful equipment and resources that draws upon her own experience to ultimately aim to limit or prevent the

Aut-Talk 15 interference of sensory dysfunction Communication Difficulties. A Children and Adults - A Practical with successful learning, socialisation Toolkit for Parents and Guide for Parents. and skills development. Professionals. Written by Marilyn Le Breton. Written by Kate Silver, Autism Jessica Kingsley Publishers This accessible and empowering book Initiatives. ISBN No: 1-85302-935-1 offers a unique approach to the Jessica Kingsley Publishers (Current Price R238.55) condition and will help families, ISBN: 1 84310 352 4. People with autism often are intolerant teachers and caregivers meet the (Current Price R341.15) of gluten (a protein in four types of particular needs of children with This fully photocopiable resource cereal) and casein (a protein found in sensory dysfunction. offers a flexible framework for the animal's milk). There are many assessment and measurement of the testaments to the benefits for such Books on Communication communication skills of children with people of a diet that excludes gluten, Communication Issues in Autism autistic spectrum disorders (ASDs). casein, monosodium glutamate and and Asperger Syndrome. Do we Packed with practical assessment and aspartame, and these persuaded speak the same language? planning sheets, it enables teachers, Marilyn Le Breton to put her autistic Written by Olga Bogdashina. educators and other professionals to son Jack on the diet. Jessica Kingsley Publishers . observe and record how children use ISBN: 1 84310 267 6. and understand language, and to This is the book that Marilyn wishes (Current Price R289.85) follow their progress over time. had been available to her when she Providing a theoretical foundation for first did so. In it she explains what the understanding communication and The completed assessment record is an diet is all about and how it works, language impair-ments specific to accessible summary of a child's what foods can form part of the diet autism, Olga Bogdashina explores the individual communication style, and what should be excluded. She effects of different perceptual and identifying strengths and weaknesses addresses frequently asked questions cognitive styles on the communication and the ways in which he or she is best and misconceptions, such as 'Is the and language development of autistic assisted and motivated to diet too difficult and time-consuming? children. She stresses the importance communicate. It focuses on how How strictly do I need to adhere to it? of identifying each autistic individual's children express themselves in Is the diet expensive to implement?' nonverbal language – which can be everyday situations – for example, and gives practical advice on basic visual, tactile, kinaesthetic, auditory, how they make requests or gain equipment and ingredients, what to olfactory or gustatory – with a view to attention, the words they use most expect when your child starts the diet, establish a shared means of verbal frequently, and how their how to adapt family meals and how to communication. She offers an communication is affected by different minimise cross-contamination in the explanation of why certain people and places. Most importantly, kitchen. The book includes a wide approaches, for example PECS, might it provides a diagnosis of where selection of recipes, an extensive list of work with some autistic children but communication skills can be addresses and websites of suppliers of not others. Offering real in-sights, the developed and improved. Using the foodstuffs in the UK, and suggestions ‘What They Say' sections enable the communication curriculum, educators for finding out more information. It is reader to see through the eyes of can set appropriate targets, linked to the first book of its kind to be written autistic indi-viduals and to work in other areas, such as literacy specifically for those living in the UK. understand their language differences and science. A separate thinking skills Marilyn's own experience and sensible first hand.‘What We Can Do to Help' curriculum aims to develop the skills approach ensure that this book will be sections throughout the book give and confidence necessary for social invaluable for any parent of a child practical recommenda-tions on what interaction, from making simple with autism, or any adult considering to do in order to help autistic choices to understanding humour and embarking on the diet. individuals use their natural abstract ideas Originally devised for mechanisms to learn and develop use with children with ASDs, this Special Diets for Special Kids. social and communicative skills. The toolkit is equally effective in Understanding and Implementing final chapters are devoted to identifying communication problems Special Diets to Aid in the in other children, and is an invaluable assessment and intervention issues Treatment of Autism and Related resource for teachers and speech and with practical recommendations for Developmental Disorders. selecting appropriate methods and language therapists. Written by Lisa Lewis. techniques to enhance communication. Books on Dietary Intervention Foreword byDr Bernard Rimland.

Jessica Kingsley Publishers. Assessing and Developing Diet Intervention and Autism. ISBN 1-88547-744-9. Communication and Thinking Implementing the Gluten Free and (Current Price R289.85) Skills in people with Autism and Casein Free Diet for Autistic

Aut-Talk 16

Lisa Lewis explains, in this easy-to- Somebody Somewhere. Breaking her struggle with autism: how it has read and accessible book, how and Free from the World of Autism. shaped her world and the way in why to implement a dietary Written by Donna Williams. which she attempts to break through intervention strategy for helping Jessica Kingsley Publishers to the other side. 'I'm a culture looking children and adults with autism. ISBN: 1 85302 719 7. for a place to happen' she writes in Drawing upon her own success with (Current Price R221.45) Somebody Somewhere, the sequel to removing gluten and casein from her (which reached the The sequel to the powerful son's diet, she answers the many bestseller list when published as a international bestseller “Nobody questions parents and professionals trade paperback). The search for this Nowhere”, Somebody Somewhere” takes might have about choosing a dietary 'place' is central to Donna's survival in us deeper into Donaa Williams’ intervention. Why choose a special diet? an unsympathetic, ignorant world journey into the world. Her war Are there tests to help me decide? Is there which fails to comprehend her version against it is finally over, but the pieces research to support this type of of normality. Her life story is a of her life lie scattered around her. intervention? Will my child starve? What landmark in the literature of mental Donna recounts the often funny, do I cook? health and gives a unique perspective sometimes harrowing awakenings on living with autism from the inside. arising from sessions with a cognitive In addition, she provides over 150 psychologist, who helps her good-tasting recipes to get started on In Nobody Nowhere, she describes the understand what she has been the diet – everything from spaghetti desolation of the first twenty-five through and make sense of her and meatballs to holiday treats and years of her life, before discovering the sensory problems, information sweets and edible clay! word 'autism' - a label which brought overload and “shut-downs”. We travel with it some answers and the hope of with her in her breakthroughs in a sense of belonging. Somebody Books on Personal Accounts working with autistic children and Somewhere takes up the thread of her other adults like herself, as she finally story at the point where Nobody finds a way of belonging and “simply Nobody Nowhere. The Nowhere left off: her ongoing battle to being” among others, without selling Remarkable Autobiography of an overcome the compulsions and out who she really is. Autistic Girl. obsessions of autism, and her By Donna Williams. increasingly successful efforts to lead a Jessica Kingsley Publishers . Soul normal life, despite her condition. ISBN: 1 85302 899 1 Searching and Soul Finding. Like Colour to the Blind tells the story (Current Price R221.45) Written by Donna Williams. of Donna's relationship with Ian, a “Nobody Nowhere” tears aside the veil Jessica Kingsley Publishing. man with difficulties similar to her that conceals the mind of an autistic ISBN: 1 85302 720 0. own. She describes how they learn to person. Donna Williams’ account has (Current Price R238.55) admit and live with their feelings for the magnetic and unrivalled power of In Like Colour to the Blind, Donna one another, as they search for a true authenticity …. This book is Williams enters the most exposing and sense of self. 'Donna Williams isn't absorbing, disturbing, enriching and it fragile realm of human interaction; her just teaching us what it is like to be will cause many to substantially revise relationship and eventual marriage autistic, she is teaching us what it is their views on what it is that with someone with whom she can like to be human.' - The New York constitutes psychological normality” – “simply be”, a relationship she terms a Book Times Review (of Somebody Professor Anthony Clare. “specialship”. But loving involves exposure and to love she must expose Somewhere) Nobody Nowhere is disturbing, eloquent the very things that protected her all and ticklishly funny; it is an account of her life – the masks she ahs hidden Books for Siblings the soul of someone who lived in the behind, the patchwork creations which word “autism” and survived in an stood in place of self. Haze. unsympathetic environment despite In Donna’s relationship with Ian, a Written by Kathy Hoopman. intense inner chaos and man with difficulties related to her Jessica Kingsley Publishers. incomprehension. It describes how, own, we watch the two of them break ISBN No: 1-84310-072-X against the odds, Donna came to live through their rock-solid emotional (Current Price £9.95. Approx R120 independently, achieve a place at barriers and dare to defy all rules university and write this remarkable imposed by the autistic condition of Acclaimed author of the Asperger autobiography. This book will stay “exposure anxiety”. Their struggle is Adventures series for children Kathy with you as one of the most told with Donna’s characteristic Hoopmann has turned her hand to a exceptional works you will ever read. humour, insight and sense of fragility. novel for teenagers. Much more than just a book about a boy with Asperger In these three autobiographies, Syndrome, this is her best book yet. Donna Williams recounts the story of Weaving the facts of Seb’s Asperger

Aut-Talk 17

Syndrome into the story, this fast- support, a good explanation of with a difference. Ben is learning to paced book will be a rivetting read for Austism and a heart-warming story. cope with his newly diagnosed teenagers of all sorts and abilities. Seb We shall have to buy another copy Asperger Syndrome, but when an is a loner. Brilliant with numbers and because both my brother and I love it alien crash-lands in his back yard, facts, but hopeless with people. Bored too much to let the other have a read. things really get complicated. The at school – he prefers the company of My only criticism is that it does not alien, Zeke, knows nothing about his computers, and his only friend, make a good bed-time story as my Earth's rules and norms and it is up to Guzzle. However, things change for brother would not go to sleep; he Ben and his friend Andy to help Zeke the better. Kristie, a girl in his class, wanted to hear more of the story and survive. The humorous parallels phones him one night. Kristie tell me more about what he had read. between the alien's inability to relate introduces Seb to Madeline and Jen, Congratulations on a truly wonderful to humans and Ben's own and the group become friends. Then a book. Best of luck.'- Clare Truman (age idiosyncrasies highlight the difficulties new computer teacher – Miss Adonia – 14) Aspie kids face every day. brings a challenge back into schoolwork. So when Seb finds out This is a warm, fun-filled fantasy story Of Mice and Aliens is not just another that he has Asperger’s Syndrome, he is for children with a difference: the hero kids' book. As well as being a not too concerned. Suddenly Guzzle is Ben, a boy with Asperger Syndrome. delightful read for anyone who loves starts to hang out with a group who When Ben and his friend Andy find an adventure, it is a valuable teaching had bullied Seb throughout the year. old bottle in the school yard, they little tool that demystifies children with Seb reacts badly and ends up realize the surprises about to be Asperger's, justifying their suspended from school. Miss Adonia unleashed in their lives. Bound up individuality as valid and interesting. agrees to tutor him so he can pass his with this exciting mystery is the story exams, but she is not what she seems. of how Ben is diagnosed with Lisa and the Lacemaker. An Before long, Seb is caught up in a web Asperger Syndrome and how he and Asperger Adventure. of computer fraud and lies. Things his family deal with the problems and Written by Kathy Hoopmann. come to a head when Madeline is joys that come along. Jessica Kingsley Publishers. mistreated by her mother and Seb ISBN: 1-84310-071-1. turns to Madeline’s mysterious cyber Blue Bottle Mystery is a delight to read (Current Price £7.95. Approx R96) friend for help. that is more than just another kid's When Lisa discovers a derelict hut in

book. For the first time, the issues and her friend Ben's backyard, she delights Blue Bottle Mystery. An Asperger frustrations that a child may have with in exploring the remnants of an era Adventure. Asperger Syndrome are explored long gone. Imagine her surprise when Written by Kathy Hoopmann. within a fictional format especially for Great Aunt Hannah moves into a

Jessica Kingsley Publishers children. Its portrayal of Ben as the nursing home nearby, and reveals that ISBN: 1 85302 978 5. central character offers other children once she was a servant in those very (Current Price £7.95. Approx R96) with autistic spectrum disorders and rooms. The old lady draws Lisa into 'I read this book in under an hour and their peers a positive role model. It is a the art of lace making and through the then immediately picked it up and valuable teaching tool that demystifies criss-crossing of threads, Lisa is helped read it again, much to my brother's children with Asperger Syndrome, to understand her own Asperger disappointment ("It's my book!") It is a justifying their individuality as valid Syndrome. But Great Aunt Hannah story that succeeds in the challenge and interesting. also has a secret and now it is up to parents and siblings have been faced Lisa to confront the mysterious In Blue Bottle Mystery Kathy with for years - how to explain what Lacemaker and put the past to rest. Hoopmann has combined her love of Autism is without drowning people children with her passion for fantasy amidst technical terms and Acknowledgements to Jessica literature to produce a delightful read psychology. It contains a lot of Kingsley Publishers, David Fulton for anyone who loves an adventure information whilst still being an Publishers and Guilford Press for the and wants a unique insight into the intriguing tale of a boy's adventure above descriptions of the listed mind of an Asperger child. that would excite any child whether books. they had autism or not. It was a wonderful to listen to my brothers Of Mice and Aliens. An Asperger cries of "Oh now I understand," "I do Adventure. that," "Aspergers - that's what I have." Written by Kathy Hoopmann. The story highlights the problems for Jessica Kingsley Publishers. family and friends of Autistic children ISBN: 1-84310-007-X and for the children themselves and (Current Price £7.95. Approx R96) allows the reader to take up their part The sequel to Blue Bottle Mystery, in the story. It provides advice and this is a science fiction novel for kids,

Aut-Talk 18

For Whom Is The Course Post Available National Out- Are You A Professional Intended? Reach Trainer Rendering A Service To Children? Medical practitioners, therapists, In 2006 Autism South Africa would educationalists, educational like to employ a National Out-Reach • Do you want to make an impact psychologists, nutrition specialists and Educational Trainer who will work on the lives of young children in social workers working with children chiefly with educationalists in special our country? 0 – 6 years. needs schools around South Africa. • Do you experience the challenge of working in a first world / third Course Structure This post will be advertised publicly, world country? but if you are interested in applying, • Do you work with people from This is a 2-year distance-education please send through your CV to the diverse cultures and social course, where students are required to offices of Autism South Africa. contexts? attend two on-site weeks per year. • Do you feel the need to work in This course will be primarily The person to be appointed must have teams with professionals from presented on-line with support at least the following: . other disciplines? material like CD-Rom. Group work 3 years experience of working will be required in collaboration with with autism whether as a Then seriously consider the Masters in students from other disciplines. teacher or therapist (the amount of time dealing with Early Childhood Intervention. people with autism in the If you would like to know more about This course presents an exciting therapy situation will be this exciting postgraduate degree evaluated by our selection formal training opportunity to build course offered by CAAC at the capacity amongst professionals panel); University of Pretoria, please visit the . Knowledge of diagnostic working with infants and young following website to read more children in the South African context. principles; http://www.caac.up.ac.za/pages/acti . A sound and up-to-date vities/masterseci.html. The Masters in Early knowledge of autism-specific Alternatively please feel free to intervention methods; Childhood Intervention contact: . Has experience in training, whether in-house or Aims at equipping multi-professionals Alecia Samuels professionally; with specialised knowledge and skills [email protected] . Be able to work as a team in the field of early childhood Centre for Augmentative and member, but also be able to intervention to function optimally in a Alternative Communication work independently using changing and challenging social University of Pretoria own personal initiative; context by: Tel : 012-4204727 . Willing to travel around the • Working in teams with or country when required; professionals and community Dr Kitty Uys [email protected] . Willing to work over members to facilitate social Centre for Augmentative and weekends if necessary; development Alternative Communication . Sound computer skills (MS • Understanding their own role University of Pretoria Word, Powerpoint, Excel, E- within the team of early Tel: 012-420 3851 / Fax: 012 - 420 4389 mail, Internet, Access) childhood professionals . Ability to write and present • Developing comprehensive reports to an audience; strategies for intervention . Own car and valid driver’s • Critically evaluating the license; accountability, appropriacy and . 3 references relating to the sustainability of service field of autism; provision. . Able to create own material and work independently; . Salary requirements to be presented to Autism South

Africa. . Payment for use of personal vehicle will be at AA Rates.

Aut-Talk 19

Pre-School Home-Based exercises and discussion points for group sessions, and complements Education Training Course these training materials with engaging Comes To South Africa personal accounts, an introduction to February 2006. the history of autism, information about approaches to treatment, and a list of useful websites and further Autism South Africa is bringing reading. Avril Brereton and Bruce Tonge to South Africa in the first week of The programme is designed to cover February to run a week long key areas such as understanding and course on Education and Skills managing difficult behaviour; Training Programme for Parents changing/encouraging new and Related Professionals. This behaviours; communication problems course will be held at The in verbal and non-verbal children; social problems; and how to work and , play together. Johannesburg. Avril Brereton is Senior Research Autism South Africa is covering the Fellow at the Centre for full costs of the actual training, but Developmental Psychiatry & attending delegates will be expected to Psychology, Monash University. pay for their own accommodation, transport, food and beverages as well Bruce J. Tonge is Professor and Head as purchasing the two manuals that of the Monash University School of collectively should cost approximately Psychology, Psychiatry and R 650. Psychological Medicine and established the successful Centre for This course is ultimately a “Trainer-A Developmental Psychiatry and Trainer” programme. There are 24 Psychology at the University. available places for this course and Autism South Africa aims to place An Education and Skills close as possible with the limited Training Programme numbers, 1 parent plus 1 teacher / Authoritative and extensively tried therapist and 1 Primary Healthcare and tested, it will help both parents Nursing Sister from each province, and carers to understand the disorder who will then be responsible and and how it affects child development. accountable to Autism South Africa to Ultimately, the programme is train other parents, teachers etc in designed to reduce the severity of their area using the material and emotional/behavioural difficulties by knowledge they glean from this managing a child's particular course. problems and encouraging effective collaboration between professionals If you are interested in being one and parents. of the recipients of the Pre-School training programme that will take The programme is delivered through place in 2006 two accessible manuals – one for OR parents and one for clinicians – which applying for the National Out- provide all the information and Reach Trainer Post materials you need.

The Manual for Clinicians explains Applications to reach Autism the purpose and content of each South Africa by 4th December session and includes notes for 2005. discussion and teaching, a checklist of ‘things to do', and photocopiable task sheets for distribution and discussion. The Manual for Parents features tasks,

ROLL CALL!!

As you may be aware, Autism South Africa is trying to establish a register of all known people with autism in our country. We therefore once again ask parents and caregivers who have not yet received or submitted the below form and are willing to do so, to please complete this form and fax it through to (011) 486 2619 or post it to P.O. Box 84209. Greenside. 2034. Thank you.

Parents / Guardian Details

Name:

Postal Address:

Area and

Province: Telephone

Number:

Fax Number:

E-mail

Address:

Your child’s details

Name:

Age when diagnosed:

Present Age:

Gender:

Diagnosed by whom:

School / Facility attending at

the moment:

Number of Siblings:

Autism Spectrum We have been offered the patients just cannot afford to pay for wonderful price of R 33 per their memberships," says Ruth Quarterly Magazine magazine (incl shipping from the Goble, office manager at USA). Therefore for a year's MedicAlert.

Available In South Africa subscription, with local postage it will cost you only R 160 per year to All that is needed is a letter Autism South Africa is acting as a receive 4 copies of this magazine verifying the patient's need and local distributor for a wonderful with informative, practical and up- circumstances from a doctor, social magazine from America called to-date information. worker or clinic sister. Autism Spectrum Quarterly. We Please deposit an amount of R 160 need your urgent response should into our bank account, before A MedicAlert bracelet can be a you wish to receive copies. placing the order with us. lifesaver for people with medical Diane Twachtman-Cullen, Ph.D., Banking Details conditions such as epilepsy or heart Editor-in-Chief, Liane Holliday Autism South Africa disease, food or drug allergies or Willey, Ed.D., Senior Editor. ASQ is Standard Bank those who have had an implant or described as “THE AUTISM Benmore Gardens organ transplant. MEGAJOURNAL™” to underscore Branch Code: 012005 that it combines the readability and Acc. No: 2207 312 33 The MedicAlert Uncedo Project will interest of a high-level magazine focus on finding sponsorships to with the substance and depth of a Please ensure that you write your give memberships to less fortunate professional journal. It is this surname and initial in the reference South Africans. combined focus that distinguishes block and fax your proof of ASQ from other publications of its payment to (011) 486 2619. After "Our goal is to raise sufficient funds type, and creates an important niche the payment has been made, please to allow us to process at least 100 in the world of autism publications E-mail or fax us the postal address memberships a month," that has heretofore been lacking. where you would like us to post says Mark Hampshire, marketing Each issue features a line of research you your Autism Spectrum executive for MedicAlert. and commentary aimed at helping Quarterly. parents, teachers, and clinicians to A contribution of R50 pays for the translate this research into practice. Autism South Africa are not making disc, service and back-up of one Included in every issue of Autism any surplus on your order, the person's membership. Spectrum Quarterly amount charged is purely to cover • Articles by, for, and about costs. To date, memberships have been individuals with ASD sponsored by various trust funds, • A focus on families and Creation Of Support Lions Clubs and legacies. family issues • Book and product reviews Groups Across South "We are hoping that through and recommended resources Africa creating awareness of the project, • Contributions by outstanding we will be able to encourage more professionals in the ASD field We would like to facilitate the sponsorships that will allow us to • Spotlight on Best Practices to creation of new support groups answer to the tremendous need out highlight an educator, across the country for families that there," Hampshire said. clinician, or paraprofessional have a child or adult with autism. support person whose work Several breakfasts and banquets will on behalf of those with ASD May we ask that anyone who is be held this year and next year in has been exemplary willing to head up or at least start aid of the project. • Tips and strategies to such a group to please contact translate research into Autism South Africa. Cape Town will see the first of the practice banquets in November this year and • User-friendly, cutting-edge Medicalert Bracelets For a further eight banquets will be held information from the world of in other provinces next year. research. All Who Need Them • And so much more! For more information, contact Ruth • Due to the financial By Lifestyle Reporter, Daily News, Goble at 021 425 7328 or 083 729 implications, we will need 30 August 2005 5431 or e-mail potential South African MedicAlert has launched its Uncedo [email protected] Project to generate sponsorships for subscribers to sign up, Formation of network for commit and pay up front for people who need identification the period of a year. bracelets, but cannot afford them. children with Autism and "We are inundated with Fragile X syndrome applications for memberships by doctors, clinics and hospitals whose

Aut-Talk 22

FRAGILE X SYNDROME is Many Fragile X children and adults considered to be the most common remain undiagnosed – a situation, “Tree of Light” to cause of inherited learning which denies them access to the enhance the disability and presents as follows: understanding and special care that, would follow diagnosis. awareness of Autism • Affects girls and boys and shows itself in a wide range of Children and adults need the difficulties with learning and diagnosis so that appropriate medical, Parkview Golf Course in Gauteng behaviour problems. educational, psychological and social has very kindly offered us a help can be given. wonderful tree at their entrance • Learning disabilities vary from The family as a whole needs the through which we have entwined subtle educational delays to an electric cable that holds 200 severe mental handicap. diagnosis so that they and their relatives, who may be unknowing light bulbs. • The most striking feature of carriers of the syndrome, may be Fragile X is the challenging offered genetic counselling. We are asking a R50 donation per behaviour. light bulb, and as the light bulbs In many families a diagnosis is not are sold, we will turn on sections • A typical Fragile X boy is made until after the birth of a second of the cable and watch the Tree of inattentive, easily distracted, or third affected child. Light grow during the second half impulsive and overactive. The of November through to Christmas girls are usually less affected than Autism and Fragile X have been Day. the boys but have similar known to occur together and Gwen attention difficulties. They are Hedges would like anyone who has We ask you to please consider often extremely shy and socially received a dual diagnosis to please purchasing a bulb thereby withdrawn. contact her as she would like to set contributing to an increase in up a networking system in South awareness and support for those • Many have autistic-like features – a Africa. dislike of eye contact, difficulty in affected by autism in our country.

relating to other people, anxiety in Please contact Gwen on 082 social situations often leading to If you would like to join us with 778 6467 or via e-mail tantrums, insistence on familiar this enlightening project, we ask [email protected] routines and hand flapping or hand that you please deposit biting. Aspergers Family support R50 per bulb, into our bank account. • Speech and language is usually circle Please ensure that delayed with continuing speech you clearly write difficulties. Here are the details of a website to your allow families living with Aspergers • Physical features include a largish surname, to interact and share information, head and prominent ears but these initial and diets, contacts and any other are rarely obvious in young the world information that will make living children. It is because of this lack of ‘light’ in the reference section. with Aspergers on a day to day obvious physical features that diagnosis is often missed or basis that much easier. With the Banking Details: Autism South delayed. hectic lifestyles we all lead, we do Africa . Standard Bank . Benmore not always have time to get to Gardens. Branch Code: 012005. Testing for Fragile X support group meetings and this Acc. No: 2207 312 33 site is designed to share information The discovery of the Fragile X gene electronically. led to the development of reliable Please would you share this website DNA tests which will accurately address with as many families as diagnose those whose learning you can who you believe will make disabilities are caused by Fragile X use of this site and benefit. and identify carriers of the syndrome. http://groups.msn.com/Aspergers These tests are usually done on a FamilySupportCircle-South Africa blood sample. (Above Web Address is all in one!) Seth, Gella and the Boyz The importance of diagnosis

Battling to find a school for your child with Autism / Asperger Syndrome?

Please find below contact details of the Education Departments and Heads of Inclusive Education for each province and therefore whom you should contact if you cannot find placement for your child in a school.

Contact Details: Heads of Provincial Education Departments Province Name Physical Address Postal Address Tel & Fax

Eastern Cape Dr DWM Edley Steve Tshwete Bld. Zone 6 P/Bag X 0032 Tel:040 608 4205 Superintendent-General Zwelitsha, CENTRAL BISHO BISHO, 5605 Fax:040 608 4249 5605 Free State Dr MC Nwaila CR Swart Building P/Bag X 20565 Tel: 051 404 8428 Superintendent-General 55 Elizabeth Street, Room 2103, Bloemfontein Fax:051 404 8269 BLOEMFONTEIN, 9301 9300 Gauteng Mr M Petje African Life Bld., Arcade PO Box 7710 Tel: 011 355 1511 Superintendent-General 10th Floor , Room1009, 111 Johannesburg Fax:011 333 5546 Commissioner St, Johannesburg, 2001 2000 KwaZulu Mr T Ndlovu 228 Pietermaritz St. P/Bag X 9137 Tel: 033 355 2355 Natal Superintendent General 3rd Floor No 304, Pietermaritzburg, Pietermaritzburg, Fax:033 355 2337 3200 3200 Limpopo Prof RH Nengwekhulu 113 Biccard Street P/Bag X 9489 Tel: 015 297 0895 Superintendent-General Polokwane, 0700 Polokwane, 0700 Fax:015 297 0937 Mpumalanga Mr CM Mashaba Govt Building No 5, P/BagX11431 Tel:013 766 5462 Acting Deputy Riverside Complex, Upper Ground Nelspruit, 1200 Fax:013 766 5577 Director General Level, Nelspruit, 1200 Northern Mr EAB Williams Perseverance Bld. P/Bag X 5029 Tel:(053)839 6500 Cape Superintendent- 156 Barclay Street, Homestead, Kimberley Fax:(053)839 6640 General Kimberley, 8301 8300 North West Dr AM Karodia Executive Block, East Wing P/Bag X 2044 Tel: 018 387 3429/8 Superintendent General 1st Floor, Garona Building Mmabatho Fax:018 387 3430 Dr James Moroka Av, Mmabatho 2735 2735 Western Mr BR Swartz Grand Central Bld. P/Bag 9161 Tel:021 467 2000 Cape Superintendent-General Rm 924, 9th Floor, Cape Town Fax:021 467 2363 Lower Parliament St. 8000 Cape Town 8000 Provincial Heads of Inclusive Education Province Name Postal Address Tel & Fax Eastern Mrs NP Nabe Eastern Cape Dept. of Education Tel: 040 608 4219 Cape [email protected] Private Bag X 0032, BISHO, 5605 Fax:040 608 4276 Mr ADO Moloabi Free Sate Dept.of Education Tel: 051 404 8226/5 Free State [email protected] Private Bag X 20565, Bloemfontein, 9300 Fax:051 404 8233 Tel: 011 355 0833 Mr Anthony Meyers Gauteng Dept. of Education Gauteng Fax:011 355 1539 [email protected] Private Bag X7710, JOHANNESBURG, 2000 Cell: 083 570 4959 Tel: 053 839 6642 Northern Ms Hawa Abass Northern Cape Dept. of Ed Fax:053 839 6633 Cape [email protected] Private Bag X 5029, KIMBERLY, 8300

Ms JJ van Wyk North West Dept. of Education Tel: 018 387 2071/3 North West [email protected] Private Bag X 2044, MMABATHO, 2735 Fax:018 387 2347 Western Dr MJ Theron Western Cape Dept. of Ed Tel: 021 467 2027/8 Cape [email protected] Private Bag X 9114, CAPE TOWN, 8000 Fax:021 425 7465 Mr JR Molai Mpumalan [email protected] Mpumalanga Dept. of Education Tel: 013 766 5358 ga [email protected] PO Box 5265, NELSPRUIT, 1200 Fax:013 766 5585 [email protected] Kwazulu Dr HP Gumede KwaZulu Natal Dept. of Ed Tel: 035 879 2018 Natal [email protected] Private Bag X04, ULUNDI, 3838 Fax:035 879 2020 Ms Asnath Mojapelo Limpopo Dept. of Education, Private Bag X 9489 Tel: 015 290 7686 Limpopo [email protected] POLOKWANE, 0700 Fax:015 297 4877

Aut-Talk 24

Membership Form

If You Would Like To Receive Our Quarterly Newsletter “Aut-Talk” Or Other Autism Related Communication, Please Provide Us With Your Details:-

Name:

Tel. No.:

Fax. No.:

E-Mail: Postal Add:

When negotiating with Government concerning services and facilities for people with autism, we are always asked as to the number of registered members on our records. Please help us to strengthen our case by becoming a member of Autism South Africa.

I wish to become a member of Autism South Africa.

Please find enclosed my cheque/postal order for R 30

(tick) OR I PREFER TO

directly deposit R30 and fax the deposit slip along with my

membership application to: 011-486-2619 (tick)

Signature Date

Contact Details Autism South Africa Banking Details PO Box 84209 Autism South Africa Greenside 2034 Standard Bank Tel: 011-486-3696/4037/0122 Benmore Gardens Fax: 011-486-2619 Branch Code: 012005 e-mail: [email protected] Acc. No: 2207 312 33 www.autismsouthafrica.org

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Book order list

No: Book Title Quantit Price y 1 How to Understand Autism – The Easy Way. (R211.45) R 2 Autism – The Eighth Colour of the Rainbow. Learn to Speak Autistic. (R 306.95) R 3 Autism: An Inside-Out Approach. An Innovative Look at the ‘Mechanics’ of ‘Autism’ R and its Developmental ‘Cousins’. (R 272.75) 4 Demystifying the Autistic Experience. A Humanistic Introduction for Parents, R Caregivers and Educators. (R 221.45) 5 A Mind Apart. Understanding Children with Autism and Asperger Syndrome. R (R 193.23) 6 A Positive Approach to Autism. (R272.75) R 7 Personal Hygiene? What's that Got to Do with Me? (R 221.45) R 8 Toilet Training for Individuals with Autism and Related Disorders. A Comprehensive R Guide for Parents and Teachers. (R 238.55) 9 Asperger’s Syndrome. A Guide for Parents and Professionals. (R 221.45) R 10 Asperger's Syndrome DVD. (R 1 091.50) R 11 Asperger's Syndrome Video. Diagnosis and Support. Two 90-minute videotapes. R (R 945.97) 12 Asperger Syndrome in Adolescence. Living with the Ups, the Downs and Things in R Between. (R 238.55) 13 Coming Out Asperger. Diagnosis, Disclosure and Self-Confidence. (R 238.55) R 14 Congratulations! It's Asperger Syndrome. (R 272.75) R 15 Asperger Syndrome. (Ami Klin) ( R695.30) R 16 Children, Youth and Adults with Asperger Syndrome. Integrating Multiple R Perspectives. (R 341.15) 17 People with Autism Behaving Badly. Helping People with ASD Move On from R Behavioral and Emotional Challenges. (R 238.55) 18 Behavioural Concerns and Autistic Spectrum Disorders. Explanations and Strategies R for Change. (R 272.75) 19 Autism in the Early Years. (R 307.80) R 20 Autistic Spectrum Disorders. Practical Strategies for Teachers and Professionals. R (R 290.70). 21 Accessing the Curriculum for Pupils with Autistic Spectrum Disorders. Using the R TEACCH Programme to Help Inclusion. (R 290.70) 22 Pre-Schoolers with Autism. An Education and Skills Training Programme for Parents - R Manual for Clinicians. (R 598.50) 23 Pre-Schoolers with Autism. An Education and Skills Training Programme for Parents - R Manual for Parents (R 238.55) 24 Making it a Success. Practical Strategies and Worksheets for Teaching Students R with Autism Spectrum Disorder. (R 221.45) 25 Addressing the Challenging Behavior of Children with High-Functioning R Autism/Asperger Syndrome in the Classroom. A Guide for Teachers and Parents. 26 I am Special. Introducing Children and Young People to their Autistic Spectrum R Disorder. 27 School Phobia, Panic Attacks and Anxiety in Children. R 28 Asperger Syndrome - What Teachers Need to Know R 29 Hitchhiking through Asperger Syndrome. R 30 Freaks, Geeks and Asperger Syndrome. A User Guide to Adolescence. R 31 Multicoloured Mayhem R 32 Managing Asperger Syndrome at College and University. A Resource for Students, R Tutors and Support Services 33 How to find work that works for people with Asperger Syndrome. The Ultimate Guide R for Getting People with Asperger Syndrome into the Workplace (and keeping them there!)

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34 Sex, Sexuality and the Autism Spectrum R 35 Understanding Sensory Dysfunction. Learning, Development and Sensory R Dysfunction in Autism Spectrum Disorders, ADHD, Learning Disabilities and Bipolar Disorder. 36 Communication Issues in Autism and Asperger Syndrome. Do we speak the same R language? 37 Assessing and Developing Communication and Thinking Skills in people with R Autism and Communication Difficulties. A Toolkit for Parents and Professionals. 38 Diet Intervention and Autism. Implementing the Gluten Free and Casein Free Diet for R Autistic Children and Adults - A Practical Guide for Parents 39 Special Diets for Special Kids. Understanding and Implementing Special Diets to Aid R in the Treatment of Autism and Related Developmental Disorders. 40 Nobody Nowhere. The Remarkable Autobiography of an Autistic Girl R 41 Somebody Somewhere. Breaking Free from the World of Autism. R 42 Like Colour to the Blind. Soul Searching and Soul Finding. R 43 Blue Bottle Mystery. An Asperger Adventure R 44 Of Mice and Aliens. An Asperger Adventure R 45 Lisa and the Lacemaker. An Asperger Adventure R 46 Haze. R PLEASE ADD POSTAGE @ R10 PER BOOK R TOTAL R

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