Running head: PSYCHOSOCIAL BURDEN OF CHILDHOOD SICKLE CELL DISEASE ON CAREGIVERS IN KENYA Psychosocial Burden of Childhood Sickle Cell Disease on Caregivers in Kenya Bethany G. Kuerten1, Samuel M. Brotkin2, Melanie J. Bonner2,3, David O. Ayuku4, Festus Njuguna5, Steve M. Taylor1,6,7, Eve S. Puffer1,2 This manuscript is published in the Journal of Pediatric Psychology with the final published version here: https://doi.org/10.1093/jpepsy/jsaa021 Full citation: Kuerten, B. G., Brotkin, S., Bonner, M. J., Ayuku, D. O., Njuguna, F., Taylor, S. M., & Puffer, E. S. (2020). Psychosocial Burden of Childhood Sickle Cell Disease on Caregivers in Kenya. Journal of Pediatric Psychology, 45(5), 561-572. Psychosocial Burden of Childhood Sickle Cell Disease on Caregivers in Kenya Bethany G. Kuerten1, Samuel M. Brotkin2, Melanie J. Bonner2,3, David O. Ayuku4, Festus Njuguna5, Steve M. Taylor1,6,7, Eve S. Puffer1,2 Author Affiliations: 1Duke Global Health Institute, Duke University, Durham, North Carolina 2Department of Psychology & Neuroscience, Duke University, Durham, North Carolina 3Division of Psychiatry and Behavioral Sciences, Duke University School of Medicine, Durham, North Carolina 4 Moi University, College of Health Sciences, School of Medicine, Department of Behavioral Science, Eldoret, Kenya. 5Moi University, College of Health Sciences, School of Medicine, Department of Child Health and Paediatrics, Eldoret, Kenya. 6Division of Infectious Diseases, Duke University School of Medicine, Durham, North Carolina 7Duke Clinical Research Institute, Durham, North Carolina Corresponding Author: Eve S. Puffer Department of Psychology and Neuroscience, Box 90086 417 Chapel Drive, Duke University Durham, NC 27708-0086
[email protected] Key Words: sickle cell disease, psychosocial functioning, parent stress, mental health, chronic illness, family functioning, quality of life, parenting, culture, disparities, hematology, public health, stress Funding This project was supported by funding from the Duke Global Health Institute.