Breast Cancer Now Annual Report and Accounts 2019-2020

Total Page:16

File Type:pdf, Size:1020Kb

Breast Cancer Now Annual Report and Accounts 2019-2020 A YEAR OF RESILIENCE Annual Report and Accounts 2019–20 WELCOME TO WHY WE NEED TO BREAST CANCER ACT NOW: NOW’S ANNUAL REPORT AND ACCOUNTS 2019–20 ONE IN SEVEN WOMEN THERE ARE AN ESTIMATED This report covers the period WILL FACE IT IN THEIR 35,000 PEOPLE LIVING from 1 August 2019 to 31 July LIFETIME WITH INCURABLE 2020. SECONDARY BREAST CANCER IN THE UK THIS YEAR, AROUND AROUND 11,500 WOMEN Inside 55,000 WOMEN AND BREAST CANCER AND 85 MEN IN THE UK 370 MEN WILL BE DIE FROM BREAST CANCER Trustees’ Annual Report TOLD THEY HAVE IS THE MOST COMMON EVERY YEAR 4 Message from the Chief Executive and Chair BREAST CANCER CANCER IN WOMEN IN THE UK 8 About Breast Cancer Now 9 Strategic report 2019/20 THAT’S THAT’S SOMEONE A DEATH 48 Financial review EVERY 10 EVERY 45 51 Governance, structure and management MINUTES MINUTES 59 Statement of Trustees’ Responsibilities Financial statements 60 Independent Auditors’ Report 63 Financial statements and notes Other information 86 Legal and administrative AN ESTIMATED 600,000 PEOPLE IN THE UK ARE LIVING WITH OR BEYOND BREAST CANCER details 87 Thank you 2 Annual Report and Accounts 2019–20 3 Message from the Chief Executive and Chair Message from the Chief Executive and Chair A YEAR OF RESILIENCE Delyth Morgan, Jill Thompson, Chief Executive Chair of Trustees Our lives and the lives of those at the very furloughed around 70% of our workforce. No heart of our charity – people affected by decision was more difficult than changing breast cancer – became filled with doubt, the size and structure of the charity, which uncertainty and worry. As we worked resulted in 45 much-valued colleagues quickly to provide clarity, reassurance and subsequently leaving the organisation. We support in a rapidly evolving situation, by would like to thank all of them, and all the speaking with patients we heard hundreds colleagues still with us, for their dedicated of stories of the severe impact that the service and professionalism in such a tough Our Chief Executive, Delyth Through our life-changing care and support coronavirus was having on the emotional period. services and expert patient and health wellbeing of so many people and families Morgan, and Chair, Jill information we continued to be that trusted affected by breast cancer. In these testing times, our colleagues, Thompson, present our Annual friend that people can turn to when they partners, supporters, volunteers and Report and Accounts 2019–20. need us most. At the height of the pandemic, we saw a big researchers have all rallied so that we can drop in the number of people being referred continue to provide the support for today We are delighted to share with you Breast We continued to be a vehicle for change, to see a specialist with suspected breast and hope for the future that so many people Cancer Now’s first annual report and championing the needs of those living cancer. Screening services were paused. rely on us for. accounts as a merged charity. It has not with this devastating disease to make sure Recruitment to many clinical trials was been an ordinary year. Against a backdrop they get the best possible treatment and paused. And, while many patient’s treatment Rising to the challenge of a global pandemic, over the past care. This included the launch of our new continued unchanged, other patients saw We are immensely proud that while we have financial year we’ve faced highs and lows campaign on secondary breast cancer. delays and cancellations to their treatment been unable to run our community support but, amongst it all, we have been resolute alongside changes to the support they services, our offices have been closed and and resilient in our commitment to people We continued making breakthroughs received. This caused huge levels of anxiety colleagues have adapted to working from affected by breast cancer. in the labs, committing around £11.5 – particularly for patients with incurable home, we have continued to be there for million to world-class research that secondary breast cancer and their loved people when they need us. As the coronavirus (COVID-19) arrived in will bring us closer to the day when ones. the UK we were just over halfway through everyone who develops breast cancer Our breast care nurses have been running our year. And, despite what was already a will live. We also proudly hosted the UK Amid a national lockdown, social-distancing, our Helpline and Ask Our Nurses services difficult external environment, we continued Interdisciplinary Breast Cancer Symposium shielding and widespread economic remotely for the first time – receiving more to lay the foundations of our new charity – again, emphasising the importance of uncertainty, Breast Cancer Now was deeply than 1,400 enquiries in the first month of building on the bold and ambitious step we collaboration between professionals from affected too. Many of the world-class the pandemic. Despite the ever-changing made in creating one organisation that is many disciplines in understanding the scientists and experts we fund spent 100 support needs of people affected by here for anyone affected by breast cancer. disease and finding the very best ways to days or more unable to work in their labs. breast cancer during this time, our expert prevent it, treat it and improve the lives of Our life-changing community support health and patient information has been The successful launch of our new brand those living with breast cancer. services run at NHS hospitals have been continually reviewed and has been a trusted and visual identity in October 2019 marked suspended. And much of the fundraising source for thousands of people affected by one of the first major milestones in our new Adapting to a changing world that powers our vital work was hit hard. the disease. charity’s history. We continued to make However, as we entered the Spring of 2020, strides forward in providing people affected nobody could have foreseen the challenges Never has our resilience been more With our community support services by breast cancer the support they need that lay ahead. As the coronavirus took its tested as it has been in 2020. Like many suspended, we created new, virtual services today and giving the hope for the future that grip on the UK, it quickly became the biggest organisations, we have had to make some so that we could continue providing a lifeline so many people rely on us for. crisis facing breast cancer in decades. difficult and decisive decisions. In April, we to as many people as possible. Our Moving 4 Annual Report and Accounts 2019–20 Annual Report and Accounts 2019–20 5 Message from the Chief Executive and Chair Message from the Chief Executive and Chair Forward Online programme is supporting However, over the next year, we will need It’s a vision we will continue putting all our people who have had a primary breast to be more resilient than ever. We are energy into making a reality – underpinned ‘IN THE COMING cancer diagnosis and finished their hospital- predicting that our income could drop by as by our new strategy for our merged charity, based treatment in the past two years. Our much as 20% and we have been left with which we will launch in 2020-21. Living with Secondary Breast Cancer Online little choice but to cancel two research YEAR, WE WILL programme and Virtual Meetings are giving grant funding rounds in 2020 which will People affected by breast cancer remain people a safe and confidential space to potentially see us spend at least £2 million at the heart of our charity. They always CONTINUE TO still meet with others who understand and less on world-class research in 2020-21. will. We continue to be inspired and driven are also dealing with the uncertainty and forward each day by their experiences FUND THE VERY challenges that secondary breast cancer As we write this, thousands of people and we will be keeping a close eye on the brings. For many, we know these services with breast cancer are still living each day economic, political and social environment BEST RESEARCH, are not a perfect replacement for being incredibly worried not only about their so we can make the biggest impact we can able to meet and talk in person, but we will increased risk of becoming seriously ill for them. PROVIDE THE VERY continue striving to make them as valuable if they do contract COVID-19 but about as possible. the impact of the current crisis on their In the coming year, we will continue to fund BEST SUPPORT AND breast cancer treatment in the future and, the very best research, provide the very best The coronavirus may have slowed down ultimately, their survival. support and campaign for the change that CAMPAIGN FOR much of our fundraising but it did not people affected by breast cancer really need. stop us completely. In April, despite the However, there is cause for optimism. But we can’t do it without your continued London Marathon not going ahead, many The resource and effort the NHS has put support. Whether you donate, fundraise, THE CHANGE THAT of our Team Now runners, their friends, into finding ways to safely diagnose and volunteer, campaign or support us in other their families and many others took on treat cancer during the pandemic, and ways, we need you now more than ever. PEOPLE AFFECTED The 2.6 Challenge for Breast Cancer Now. the knowledge we have gained, will prove We adapted events to make them more invaluable moving forwards.
Recommended publications
  • Annual Report and Accounts 2014–15 Contents
    Annual Report and Accounts 2014–15 Contents Introduction 3 Who we are and what we do 4 A little bit about us 5 The year 2014–15 in numbers 6 Strategic report 8 Facing breast cancer together 8 - where we want to be by 2020 A snapshot of our highlights and 10 achievements last year Our structure, governance and management 14 Our finances 16 Independent auditors’ report 21 Financial statements and notes 23 Thank you 34 Our legal and administrative details 35 2 | www.breastcancercare.org.uk Emma Burns, Chair of the Board Samia al Qadhi, of Trustees Chief Executive Introduction In the last year we’ve reached more people breast cancer. Over 12,000 people signed our with our face-to-face services, sent out more petition to ask the UK and devolved governments information than ever before and, crucially, raised to recognise secondary breast cancer and the more money to be able to deliver more. In this inconsistent support that people currently receive. annual report we celebrate these achievements. Read more about this and a few of our other achievements on pages 10–13. It’s so exciting to have accomplished this in our first year of working together as Chief Executive Our vision is that everyone facing breast cancer and Chair. A key theme at Breast Cancer Care is receives the best possible information and engagement and collaboration. We bring people support. We want to double our income and by together to improve everyone’s experience doing so double the number of people we reach. of breast cancer.
    [Show full text]
  • Improving Outcomes in Breast Cancer
    Guidance on Cancer Services Improving Outcomes in Breast Cancer Manual Update Breast cancer service guidance Cancer service guidance supports the implementation of The NHS Cancer Plan for England,1 and the NHS Plan for Wales Improving Health in Wales.2 The service guidance programme was initiated in 1995 to follow on from the Calman and Hine Report, A Policy Framework for Commissioning Cancer Services.3 The focus of the cancer service guidance is to guide the commissioning of services and is therefore different from clinical practice guidelines. Health services in England and Wales have organisational arrangements in place for securing improvements in cancer services and those responsible for their operation should take this guidance into account when planning, commissioning and organising services for cancer patients. The recommendations in the guidance concentrate on aspects of services that are likely to have significant impact on health outcomes. Both the anticipated benefits and the resource implications of implementing the recommendations are considered. This guidance can be used to identify gaps in local provision and to check the appropriateness of existing services. References 1. Department of Health (2001) The NHS Cancer Plan. Available from: www.doh.gov.uk/cancer/cancerplan.htm 2. National Assembly for Wales (2001) Improving Health in Wales: A Plan for the NHS and its Partners. Available from: www.wales.gov.uk/healthplanonline/health_plan/content/nhsplan-e.pdf 3. A Policy Framework for Commissioning Cancer Services: A Report by the Expert Advisory Group on Cancer to the Chief Medical Officers of England and Wales (1995). Available from: http://www.doh.gov.uk/cancer/pdfs/calman-hine.pdf This guidance is written in the following context: This guidance is a part of the Institute’s inherited work programme.
    [Show full text]
  • Improving Outcomes: a Strategy for Cancer January 2011 DH INFORMATION READER BOX
    Improving Outcomes: A Strategy for Cancer January 2011 DH INFORMATION READER BOX Policy Estates HR/Workforce Commissioning Management IM&T Planning Finance Clinical Social Care/Partnership Working Document purpose Policy Gateway reference 15108 Title Improving Outcomes: A Strategy for Cancer Author DH Publication date 12 January 2011 Target audience PCT CEs, NHS Trust CEs, SHA CEs, Care Trust CEs, Foundation Trust CEs, Medical Directors, Directors of PH, Directors of Nursing, Local Authority CEs, Directors of Adult SSs, PCT Chairs, NHS Trust Board Chairs, Directors of HR, Directors of Finance, Allied Health Professionals, GPs, Communications Leads Circulation list Voluntary Organisations/NDPBs Description Improving Outcomes: A Strategy for Cancer aims to help the reformed NHS deliver cancer outcomes that are amongst the best in the world. Cross reference Superseded docs Cancer Reform Strategy (December 2007) Action required N/A Timing N/A Contact details Jane Allberry Cancer Programme Room 411 Wellington House SE1 8UG [email protected] For recipient’s use Improving Outcomes: A Strategy for Cancer Contents Foreword 2 � 1 The challenge of cancer 7 � 2 Putting patients and the public first: information and choice 18 � 3 Improving outcomes for cancer patients: an introduction 26 � 4 Improving outcomes for cancer patients: prevention and early diagnosis 34 � 5 Improving outcomes for cancer patients: quality of life and patient experience 47 � 6 Improving outcomes for cancer patients: better treatment 55 � 7 Improving outcomes for
    [Show full text]
  • Directory of Cancer Support Services in South Wales Self Help And
    Directory of Cancer support services in South Wales Self help and support groups Voluntary sector hospice & palliative care providers Cancer related websites 2012 Introduction The following Directory is a list of self-help and support groups and organisations and Internet websites that can provide help and support and information to people affected by cancer within South Wales. I would like to thank all the groups and organisations for their help and support in compiling this directory and keeping it updated. If you are aware of any other groups that could be included in the directory or if any of the details are incorrect could you please contact me (details below) Eleri Girt Macmillan Patient Information and Support Co-ordinator South Wales Cancer Network 3rd Floor 14 Cathedral Road Cardiff CF11 9LJ Tel: 029 20196166 E-mail: [email protected] Eleri Girt South Wales Cancer Network 22/08/2012 2 A – Z Listings: All: A Aberystwyth Cancer Support group B Breast Cancer Group (Brynaman, Carmarthenshire) Breast Friends Cardiff and Vale Breast of Friends Breast Support Group – Llanidloes, Mid Powys C C.A.S.S - Colorectal and Stoma Support Group (Merthyr) Cancer Aid Merthyr Cancer Information & Support Services. (C.I.S.S.) (Swansea, Neath & Carmarthen) CancerCareline (Blackwood, Gwent) Cardiff Hepcats Support Group Cardigan Cancer Support Group D E F Faceup Cymru – the head, neck and oral cancer foundation (Cardiff) G Gwent cancer support & young person’s project H Helping Hands – Rhymney Cancer Self Help Group Hospice of the Valleys (Blaenau Gwent) I In the Pink J K Kidney Cancer Support Group South East Wales L Life After Cancer for Everyone.
    [Show full text]
  • SIGN 134 • Treatment of Primary Breast Cancer
    Help us to improve SIGN guidelines - click here to complete our survey SIGN 134 • Treatment of primary breast cancer A national clinical guideline September 2013 Evidence KEY TO EVIDENCE STATEMENTS AND RECOMMENDATIONS LEVELS OF EVIDENCE 1++ High quality meta-analyses, systematic reviews of RCTs, or RCTs with a very low risk of bias 1+ Well conducted meta-analyses, systematic reviews of RCTs, or RCTs with a low risk of bias 1 - Meta-analyses, systematic reviews of RCTs, or RCTs with a high risk of bias High quality systematic reviews of case control or cohort studies ++ 2 High quality case control or cohort studies with a very low risk of confounding or bias and a high probability that the relationship is causal Well conducted case control or cohort studies with a low risk of confounding or bias and a moderate probability that the 2+ relationship is causal 2 - Case control or cohort studies with a high risk of confounding or bias and a significant risk that the relationship is not causal 3 Non-analytic studies, eg case reports, case series 4 Expert opinion PRESENTING RECOMMENDATIONS In this guideline SIGN is piloting new methodology, based on the principles of Grading of Recommendations Assessment, Development and Evaluation (GRADE). Further details are available at www.sign.ac.uk/pdf/gradeprincipals.pdf The most apparent difference to other SIGN guidelines is the absence of grades of recommendation. The wording of the recommendation reflects how strongly the guideline development group believes following the recommendation will achieve the expected benefits. Recommendations are denoted by an R. Good practice points on the clinical experience of the guideline development group are denoted by a .
    [Show full text]
  • Stronger Together
    Stronger together: support services for people living with and beyond breast cancer Who we are and what we do Your guide to free services Breast Cancer Care is the only UK-wide charity providing specialist information and support for people affected by breast for your patients: contents cancer and the healthcare professionals who care for them. For over 40 years we’ve helped thousands of people feel better informed, more confident and in control, supporting them to Introduction 4 manage their day-to-day life and the emotional upheaval of breast cancer. How our services work 6 As a healthcare professional you know more than anyone that Helpline 8 a breast cancer diagnosis changes everything and that people Website and Forum 9 can feel overwhelmed, scared and alone. So we want to work Information resources and Information Points 10 closely with you to help ensure your patients get the best BECCA app 11 support, information and care. We offer expert, tailored and friendly support services to enhance and complement Moving Forward* 12 the care you provide. We’re here to listen, understand, care Someone Like Me 18 and help people move forward with more confidence when Living with Secondary Breast Cancer 22 hospital-based treatment has finished. Younger Women Together 24 For more information about our services contact us on Evidence of the benefits of our support services 26 0345 077 1893 or email [email protected] *Moving Forward® is a registered trademark. 2 3 Moving Forward helps people to adjust to life after Introduction hospital-based treatment. It is provided in partnership As a healthcare professional you know that people affected by breast cancer have with NHS trusts and health boards across the UK.
    [Show full text]
  • Turning the Tide
    TURNING THE TIDE Our strategy for 2021-2025 TOO MANY LIVES ARE BEING LOST OR COMPROMISED. WE MUST ACT NOW. EVERY YEAR, AROUND EVERY YEAR, AROUND 55,000 WOMEN 11,500 WOMEN AND AND 370 MEN ARE 85 MEN DIE FROM DIAGNOSED WITH BREAST CANCER BREAST CANCER THAT’S NEARLY 1,000 DEATHS THAT’S ONE EACH MONTH, WOMAN EVERY 31 EACH DAY OR 10 MINUTES ONE EVERY 45 MINUTES IF NOTHING CHANGES, YEAR AFTER YEAR THE THIS WILL RISE TO ONE NUMBER OF PEOPLE WOMAN EVERY EIGHT BEING DIAGNOSED IS MINUTES IN THE NEXT INCREASING. ALREADY, 10 YEARS 1 IN 7 WOMEN IN THE UK WILL DEVELOP BREAST CANCER IN THEIR LIFETIME 2 Turning The Tide Our strategy for 2021-2025 3 Our ability to adapt in the face of so dramatic and unexpected a crisis as a global pandemic, and to cope with the ongoing WHEN CHALLENGES aftershocks is why I’m so confident we will achieve our strategic objectives for 2025 – whatever challenges we may seem insURMOUNTABLE, meet along the way. For example, we are now more focused on developing activities that we ACTION CAN BE THE can scale up or scale down in response to a sudden crisis or fluctuations in our income and learned how to pivot our fundraising accordingly. Plus, working remotely across geographical and usual team boundaries has also ANTIDOTE TO DESPAIR forged new relationships within our charity that will make us even stronger. We’ve already achieved so much – both as Breast Cancer Now, and as our founding charities, Breakthrough Breast Cancer, Breast Cancer Campaign and As we launch our Turning the Tide strategy to 2025, we must first Breast Cancer Care, where I first became involved, as Treasurer.
    [Show full text]