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Dear Friend, on Behalf of the Vasculitis Foundation, It Gives Us

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Dear Friend, on Behalf of the Vasculitis Foundation, It Gives Us Dear Friend, On behalf of the Vasculitis Foundation, it gives us great pleasure to invite you to the 2010 International All Star Vasculitis Symposium at The Westin Long Beach Hotel, Long Beach, California, July 30 through August 1, 2010. Expanding your knowledge and understanding of vasculitis is an investment in your future health and well being. The Symposium will explore vasculitis health issues through a wide‐angle lens by offering over 35 sessions, research poster exhibit, social events, and networking opportunities. The biennial symposium will bring together the “stars” of vasculitis ‐ our patients, family members and vasculitis medical experts. Topics will cover all the vasculitides and concentrate on the advances in medical treatments, research, quality of life issues and integrative medicine. The format will include general sessions and smaller Q&A breakout sessions focusing on specific topics. Speakers will include many of the world’s most recognized experts in vasculitis. We encourage all of our patients, family members, friends and medical professionals to join us for this exciting and uplifting weekend. One of the greatest benefits of attending the Symposium is the unique opportunity to meet others who are living with vasculitis. There will be ample time for patients from the individual disease groups to meet and discuss their special concerns and issues with vasculitis experts. The Westin Long Beach Hotel is a premier conference center and is at the heart of the tourism district; within walking distance of the Pacific Ocean, the Aquarium of the Pacific, the Queen Mary, The Pike at Rainbow Harbor Amusement Park, and over 150 restaurants and shops. There is also easy access by car or bus to Disneyland, MGM Studios, Knotts Berry Farm and Hollywood. This is your opportunity to ensure that you have the knowledge needed to address your health concerns. We look forward to welcoming you to the Symposium in July 2010. Sincerely, The 2010 International All Star Vasculitis Symposium Planning Committee PO Box 28660 Kansas City, MO 64188-8660 816.436.8211 Phone/Fax 800.277.9474 Toll Free www.VasculitisFoundation.org Symposium Schedule at a Glance (preliminary) The Westin Long Beach Hotel July 30 ‐ August 1, 2010 FRIDAY, JULY 30, 2010 11:00 am ‐ 9:00 pm Registration/Information Desk and Exhibit Area open 1:00 pm ‐ 2:30 pm Please choose one session to attend • Disease Specific Round Table Discussions • Young Adults’ Icebreaker (ages 16‐25) 2:30 pm ‐ 3:00 pm Refreshment Break 3:00 pm ‐ 5:00 pm Please choose to attend either Session 1A or 1B Session 1A: Vasculitis 101: An Overview of Vasculitis and the Individual Diseases Session 1B: Vasculitis and our Pediatric Patients and Their Parents 5:00 pm Dinner on your own 7:00 pm ‐ 9:30 pm Evening Dessert Reception and Keynote Address SATURDAY, JULY 31, 2010 7:00 am ‐ 9:00 pm Registration/Information Desk and Exhibit Area open 7:00 am ‐ 7:45 am Continental Breakfast 8:00 am ‐ 9:45 am General Session #1: New and Emerging Therapies in Vasculitis • Welcome and Introductions • Understanding Immunology for the Patient with Vasculitis • What’s Happening Now in Vasculitis Clinical Research • Recently Completed Clinical Trials in Vasculitis and Implications for Patients • Rituximab (RAVE Trial results) • Other Therapeutic Advances • Ask the Experts Q&A Panel 9:45 am ‐ 10:15 am Refreshment Break 10:15 am ‐ 11:15 am General Session #2: Focusing on Specific Vasculitides (choose one to attend) Session 2A Small Vessel Vasculitis • Standard of Care Therapy • Dealing with the Chronic Medical Effects • Ask the Experts Q&A Panel Session 2B Large Vessel Vasculitis • Standard of Care Therapy • Dealing with the Chronic Medical Effects • Ask the Experts Q&A Panel 11:30 am ‐ 12:30 pm Breakout Session #1 with Q&A (choose one topic to attend) • Ear/Nose/Throat in Vasculitis • Gastrointestional Issues in Vasculitis • Kidneys in Vasculitis • Organizing Your Medical Team/Communication • Pharmacist 12:30 pm ‐ 2:30 pm Lunch and Disease Group Discussions with Faculty (choose one group to attend) • Behcet’s, Henoch‐Schönlein purpura, Kawasaki • Churg Strauss Syndrome • Giant cell arteritis (Temporal arteritis) • Microscopic polyangiitis • Pediatrics • Polyarteritis nodosa/Cryoglobulinemia • Wegener’s granulomatosis 2:45 am ‐ 3:45 pm Breakout Session #2 with Q&A (choose one topic to attend) • Cardiovascular Issues for the Vasculitis Patient (cardiac conditions, stroke, hypertension, vascular disease and health maintenance) • Eyes in Vasculitis (inflammatory eye disease, low vision, cataracts, glaucoma, eye health) • Integrative Medicine and the Vasculitis Patient • Lung Issues for the Vasculitis Patient (asthma, chronic breathlessness, respiratory infections) • Assembling Your Medical Records/Seeking a Second Opinion 2:45 am ‐ 5:00 pm Vasculitis Spanish Language Session 3:45 pm ‐ 4:00 pm Refreshment Break 4:00 pm ‐ 5:00 pm Breakout Session #3 with Q&A (choose one topic to attend) • Ear/Nose/Throat in Vasculitis • Eyes in Vasculitis (inflammatory eye disease, low vision, cataracts, glaucoma, eye health) • Integrative Medicine and the Vasculitis Patient • Kidneys in Vasculitis • Lung Issues for the Vasculitis Patient (asthma, chronic breathlessness, respiratory infections) • Family/Friends and Caregivers Support Meeting 6:30 pm ‐ 9:30 pm All Star Recognition, Celebration Banquet and Hollywood Walk of Fame! SUNDAY, AUGUST 1, 2010 7:00 a.m. ‐ 1:00 p.m. Registration/Information Desk and Exhibit Area open 7:00 a.m. ‐ 7:45 a.m. Continental Breakfast 8:00 a.m. ‐ 9:00 a.m. General Session #3 (choose one to attend) Session 3A: Understanding Lab Tests for Patients with Vasculitis Session 3B: Reproductive Health Issues for Women and Men with Vasculitis Session 3C: Getting Involved in Vasculitis Patient Advocacy 9:15 a.m. ‐ 10:15 a.m. General Session #4 (choose one to attend) Session 4A: Peripheral Neuropathy Associated with Vasculitis Session 4B: Vasculitis Medication Review (dosing/toxicities) Session 4C: Disability Rights of Patients with Vasculitis: Insurance, Workplace, Vocational Retraining 10:15 a.m. ‐ 10:45 a.m. Refreshment Break 10:45 a.m. ‐ 11:15 a.m. Motivational Presentation 11:15 am Closing Remarks 11:30 a.m. Boxed Lunch (available for pick‐up) nternational All Sta201r Vasculitis Sy mposium The Westin Long Beach Hotel July 30 - August 1, 2010 PRELIMINARY SCHEDULE FRIDAY, JULY 30, 2010 11:00 am to 9:00 pm Registration/Information Desk and Exhibits Open 1:00 pm to 2:30 pm Please choose one session to attend Round Table Disease Specific Discussion Sessions These sessions are your chance to join newly diagnosed and veteran patients, family and friends for moderated discussions on your specific disease. Learn about available resources to help you manage your disease and connect with others who share many of the same challenges and concerns. Young Adults Icebreaker (ages 16-25) Attention Generation Y! This session is for you. Meet other patients your age. Share your ideas for juggling everything from meds to school to work to dating while living with a chronic illness. (This session is for patients only.) 2:30 pm to 3:00 pm Refreshment Break 3:00 pm to 5:00 pm Please choose to attend either Session 1A or 1B Session 1A Vasculitis 101 - An Overview of Vasculitis and the Individual Diseases Introduction: Vasculitis, a family of diseases, how do they relate to each other? Peter A. Merkel, MD, MPH, Director, Vasculitis Center, Boston University School of Medicine Churg Strauss Syndrome, Microscopic Polyangiitis, Wegener’s granulomatosis Luis Felipe Flores-Suárez, MD, Head, Primary Systemic Vasculitides Clinic Instituto Nacional de Enfermedades Respiratorias Giant cell (Temporal) Arteritis, Polymyalgia Rheumatica, Takayasu’s Arteritis, Central nervous System Vasculitis Cornelia Weyand, MD, Ph.D, Immunology and Rheumatology, Stanford University Cryoglobulinemia, Henoch-Schönlein purpura, Polyarteritis nodosa, Secondary Vasculitides Philip Seo, MD, Co-Director, The Johns Hopkins Vasculitis Center Ask the Experts Q&A Panel Drs. Merkel, Flores-Suárez, Weyand and Seo Vasculitis and our Pediatric Patients and Their Parents Session 1B Join parents and young patients as our pediatric vasculitis experts discuss the management and most current treatment options for younger patients. Attendees will be able to ask questions, meet other parents/patients, share experiences, concerns, and what works for them. 5:00 pm Dinner on Your Own There are over 100 restaurants within walking distance of The Westin Hotel. Several of the individual disease groups are hosting group dinners. There will also be sign-up sheets in the Registration/Information Area for attendees who wish to go to dinner with other attendees. 7:00 pm to 9:30 pm Evening Dessert Reception and Keynote Address Welcome and Introductions Cassie Keane, President, Vasculitis Foundation Board of Directors Keynote Address: Vasculitis: Where We’ve Been, Where We’re Headed Gary S. Hoffman, MD, MS Director of Senior Staff Matters, Professional Staff Affairs Office, Cleveland Clinic SATURDAY, JULY 31, 2010 7:00 am to 9:00 pm Registration/Information Desk and Exhibits Open 7:00 am to 7:45 am Continental Breakfast 8:00 am to 9:45 am GENERAL SESSION #1: New and Emerging Therapies in Vasculitis Welcome and Introductions Peter A. Merkel, MD, MPH, Director, Vasculitis Center, Boston University School of Medicine Understanding Immunology for the Patient with Vasculitis Paul A. Monach, MD, PhD, Vasculitis Center, Boston University School of Medicine What’s Happening Now in Vasculitis Clinical
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