A Spark-Based Workflow for Probabilistic Record Linkage Of

Total Page:16

File Type:pdf, Size:1020Kb

A Spark-Based Workflow for Probabilistic Record Linkage Of A Spark-based workflow for probabilistic record linkage of healthcare data ∗ Robespierre Pita Clicia Pinto Pedro Melo Distributed Systems Lab. Distributed Systems Lab. Distributed Systems Lab. Federal University of Bahia Federal University of Bahia Federal University of Bahia Salvador, BA, Brazil Salvador, BA, Brazil Salvador, BA, Brazil [email protected] [email protected] [email protected] Malu Silva Marcos Barreto Davide Rasella Distributed Systems Lab. Distributed Systems Lab. Institute of Public Health Federal University of Bahia Federal University of Bahia Federal University of Bahia Salvador, BA, Brazil Salvador, BA, Brazil Salvador, BA, Brazil [email protected] [email protected] [email protected] ABSTRACT 1. INTRODUCTION Several areas, such as science, economics, finance, busi- The term big data [18] was coined to represent the ness intelligence, health, and others are exploring big data large volume of data produced daily by thousands of de- as a way to produce new information, make better decisions, vices, users, and computer systems. These data should and move forward their related technologies and systems. be stored in secure, scalable infrastructures in order Specifically in health, big data represents a challenging pro- to be processed using knowledge discovery and analy- blem due to the poor quality of data in some circumstances tics tools. Today, there is a significant number of big and the need to retrieve, aggregate, and process a huge amount data applications covering several areas, such as finance, of data from disparate databases. In this work, we focused entertainment, e-government, science, health etc. All on Brazilian Public Health System and on large databases these applications require performance, reliability, and from Ministry of Health and Ministry of Social Development accurate results from their underlying execution envi- and Hunger Alleviation. We present our Spark-based ap- ronments, as well as specific requisites depending on proach to data processing and probabilistic record linkage of each context. such databases in order to produce very accurate data marts. Healthcare data come from different information sys- These data marts are used by statisticians and epidemiolo- tems, disparate databases, and potential applications gists to assess the effectiveness of conditional cash transfer that need to be combined for diverse purposes, inclu- programs to poor families in respect with the occurrence of ding the aggregation of medical and hospital services, some diseases (tuberculosis, leprosy, and AIDS). The case analysis of patients' profile and diseases, assessment of study we made as a proof-of-concept presents a good per- public health policies, monitoring of drug interventions, formance with accurate results. For comparison, we also and so on. discuss an OpenMP-based implementation. Our work focuses on the Brazilian Public Health Sys- tem [23], specifically on supporting the assessment of Categories and Subject Descriptors data quality, pre-processing, and linkage of databases J.1 [Administrative data processing]: Government; provided by the Ministry of Health and the Ministry of D.1.3 [Concurrent Programming]: Distributed pro- Social Development and Hunger Alleviation. The data gramming. marts produced by the linkage are used by statisticians ∗ and epidemiologists in order to assess the effectiveness This work is partially sponsored by Federal University of conditional cash transfer programs for poor families of Bahia (UFBA), with PIBIC and PRODOC grants, by FAPESB (PPSUS-BA 30/2013 grants), and by CNPq | in relation to some diseases, such as leprosy, tuberculo- Brazilian National Research Council. sis, and AIDS. We present a four-stage workflow designed to pro- c 2015, Copyright is with the authors. Published in vide the functionalities mentioned above. The second the Workshop Proceedings of the EDBT/ICDT 2015 Joint (pre-processing) and third (linkage) stages of our work- Conference (March 27, 2015, Brussels, Belgium) on CEUR- WS.org (ISSN 1613-0073). Distribution of this paper is flow are very data-intensive and time-consuming tasks, permitted under the terms of the Creative Commons license so we based our implementation in the Spark scalable CC-by-nc-nd 4.0. execution engine [41] in order to produce very accu- 1 rate results in a short period of time. The first stage are highly desirable and necessary for the evaluation of (assessment of data quality) is made through SPSS [17]. public policies. The last stage is dedicated to the evaluation of the data From an epidemiological standpoint, tuberculosis and marts produced by our pre-processing and linkage algo- leprosy are major public health problems in Brazil, with rithms and is realized by statisticians and epidemiolo- poverty as one of their main drivers. In addition, there gists. Once approved, they load these data marts into is a broad consensus on the bidirectional relationship SPSS and Stata [6] in order to perform some specific between these infectious diseases and poverty: one can case studies. lead to another. It is therefore clear that to reduce We evaluate our workflow by linking three databases: morbidity and mortality from poverty-related diseases CadUnico´ (social and economic data of poor families is necessary to plan interventions that address their so- | approximately 76 million records), PBF (payments cial determinants. from \Bolsa Fam´ılia”program), and SIH (hospitaliza- This work pertains to a project involving the longi- tion data from the Brazilian Public Health System | tudinal study of CadUnico,´ PBF (\Bolsa Fam´ılia”pro- 56,059 records). We discuss the results obtained with gram), and three databases from the Brazilian Public our Spark-based implementation and also a comparison Health System (SUS): SIH (hospitalization), SINAN with an OpenMP-based implementation. (notifiable diseases), and SIM (mortality). Table 1 shows This paper is structured as follows: Section 2 presents these databases with their years of coverage to which we the Brazilian Healthcare System to contextualize our have access. The main goal is to relate individuals in work. In Section 3 we discuss some related works spe- the existing SUS databases with their counterparts in cially focusing on record linkage. Our proposed work- the PBF and CadUnico,´ through a process called lin- flow is detailed in Section 4 and its Spark-based im- kage (or pairing). After linkage, the resulting databases plementation is discussed in Section 5. We present re- (data marts) are used by statisticians and epidemiolo- sults obtained from our case study, both in Spark and gists to analyze the incidence of some diseases in fami- OpenMP, in Section 6. Some concluding remarks are lies benefiting from \Bolsa Fam´ılia”compared to non- presented in Section 7. beneficiary families. 2. BRAZILIAN HEALTHCARE SYSTEM Databases Years As a strategy to combat poverty, the Brazilian go- SIH (hospitalization) 1998 to 2011 vernment implemented cash transfer policies for poor SINAN (notifications) 2000 to 2010 families, in order to facilitate their access to educa- SIM (mortality) 2000 to 2010 tion and healthcare, as well as to offer them allowances CadUnico´ (socieconomic data) 2007 to 2013 for consuming goods and services. In particular, the PBF (payments) 2007 to 2013 \Bolsa Fam´ılia” Program [25] was created under the management of the Ministry of Social Development and Table 1: Brazilan governmental databases. Hunger Alleviation to support poor families and pro- mote their social inclusion through income transfers. Socioeconomic information about poor families are The major obstacle for linkage is the absence of com- kept in a database called CadastroUnico´ (CadUnico)´ [24]. mon identifiers (key attributes) in all databases, which All families with a monthly income below half the mi- requires the use of probabilistic linkage algorithms, re- nimum wage per person or a total monthly income of sulting in a significant number of comparisons and in a less than three minimum wages can be enrolled in the large execution time. In addition, handling these data- database. This registration must be renewed every two bases requires the use of secrecy and confidentiality poli- years in order to keep updated data. All social pro- cies for personal information, especially those related to grams from the federal government should select their health data. Therefore, techniques for data transforma- recipients based on data contained in CadUnico.´ tion and anonymisation should be employed before the In order to observe the influence of certain social in- linkage stage. terventions and their positive (or negative) effects for The longitudinal study requires the pairing of all avai- their beneficiaries, rigourous impact evaluations are re- lable versions for certain databases within the period quired. Individual cohorts [19] have emerged as the to be analyzed. In the scope of our project, we must primary method for this purpose, supporting the pro- link versions of CadUnico,´ PBF, and SIH between 2007 cess of improving public policies and social programs and 2011 to allow a retrospective analysis of the inci- in order to qualify the transparency of public invest- dence of diseases in poor families and, thereafter, draw ments. It is expected that these transfer programs can up prospects for the coming years. In this scenario, the positively contribute to the health and the education of amount of data to be analyzed, processed, and anonymi- beneficiary families, but studies capable to prove this sed
Recommended publications
  • A Framework for Detecting Unnecessary Industrial Data in ETL Processes
    View metadata, citation and similar papers at core.ac.uk brought to you by CORE provided by Apollo A Framework for Detecting Unnecessary Industrial Data in ETL Processes Philip Woodall Duncan McFarlane Department of Engineering Department of Engineering University of Cambridge, UK. University of Cambridge, UK. [email protected] Amar Shah, Department of Engineering Torben Jess University of Cambridge, UK Department of Engineering University of Cambridge, UK. William Krechel Boeing, USA Mark Harrison Eric Nicks Department of Engineering Boeing, USA. University of Cambridge, UK Abstract—Extract, transform and load (ETL) is a critical procurement system that is used to select suppliers for the process used by industrial organisations to shift data from one orders of the parts. These orders may then also be transferred database to another, such as from an operational system to a data by ETL into the order release system, ready to send to the warehouse. With the increasing amount of data stored by suppliers. Moreover, for reporting, these orders may be sent via industrial organisations, some ETL processes can take in excess ETL to a data warehouse that is used by managers to, for of 12 hours to complete; this can leave decision makers stranded example, scrutinise various orders over the last month. while they wait for the data needed to support their decisions. After designing the ETL processes, inevitably data requirements However, the problem is that ETL is a time-consuming and can change, and much of the data that goes through the ETL expensive process, which can leave decision makers in process may not ever be used or needed.
    [Show full text]
  • Large Scale Record Linkage in the Presence of Missing Data Otherwise (A8,A 9 ) Is a Member of U (True Non-Matches) and A8 and Definition 3.3 (Relational Signature)
    Large Scale Record Linkage in the Presence of Missing Data Thilina Ranbaduge Peter Christen Rainer Schnell The Australian National University The Australian National University University Duisburg-Essen Canberra, Australia Canberra, Australia Duisburg, Germany [email protected] [email protected] [email protected] ABSTRACT One major data quality aspect that so far has only seen limited Record linkage is aimed at the accurate and efficient identifica- attention in RL is missing data [4, 16, 19, 28]. There are various tion of records that represent the same entity within or across reasons why missing values can occur, ranging from equipment disparate databases. It is a fundamental task in data integration malfunction or data items not considered to be important, to dele- and increasingly required for accurate decision making in appli- tion of values due to inconsistencies, or even the refusal of individ- cation domains ranging from health analytics to national security. uals to provide information for example when answering surveys. Traditional record linkage techniques calculate string similarities Missing data can be categorised into different types [26]. between quasi-identifying (QID) values, such as the names and ad- Data missing completely at random (MCAR) are missing values dresses of people. Errors, variations, and missing QID values can that occur without any patterns or correlations at all with any however lead to low linkage quality because the similarities be- other values in the same record or database. For example, if a first tween records cannot be calculated accurately. To overcome this name is missing for an individual, then neither last name, address, challenge, we propose a novel technique that can accurately link age, nor gender, can help predict the missing first name value (as- records even when QID values contain errors or variations, or are suming no external database is accessible where a complete record missing.
    [Show full text]
  • Historical Census Record Linkage
    Historical Census Record Linkage Steven Ruggles† University of Minnesota Catherine Fitch University of Minnesota Evan Roberts University of Minnesota December 2017 Working Paper No. 2017-3 https://doi.org/10.18128/ MPC2017-3 †Correspondence should be directed to: Steven Ruggles University of Minnesota, 50 Willey Hall, 225 19th Ave S., Minneapolis, MN 55455 e-mail: [email protected], phone: 612-624-5818, fax:612-626-8375 Abstract For the past 80 years, social scientists have been linking historical censuses across time to study economic and geographic mobility. In recent decades, the quantity of historical census record linkage has exploded, owing largely to the advent of new machine-readable data created by genealogical organizations. Investigators are examining economic and geographic mobility across multiple generations, but also engaging many new topics. Several analysts are exploring the effects of early-life socioeconomic conditions, environmental exposures, or natural disasters on family, health and economic outcomes in later life. Other studies exploit natural experiments to gauge the impact of policy interventions such as social welfare programs and educational reforms. The new data sources have led to a proliferation of record linkage methodology, and some widespread approaches inadvertently introduce errors that can lead to false inferences. A new generation of large-scale shared data infrastructure now in preparation will ameliorate weaknesses of current linkage methods. Introduction Historical census data are indispensable for studying long-run change, since they provide the only record of the lives of millions of people over the past two centuries. In much of Europe and North America, investigators can access individual-level data based on original census manuscripts (Szołtysek & Gruber 2016).
    [Show full text]
  • Volume I, Record Linkage Issues and Resul
    Chapter Two Administrative Data and Record Linkage Issues For research purposes, administrative data have the advantage of detailed and accurate measurement of program status and outcomes, complete coverage of populations of interest (enabling detailed subgroup analyses), data on the same individuals over long periods, low cost relative to survey data, and the ability to obtain many kinds of information through matching (Hotz et al., 1998). In addition, many types of administrative data have relatively high degrees of uniformity in content across geographic areas.13,14 Government agencies have recognized the potential research uses of administrative data. Of 10 data development initiatives recently identified by USDA’s Economic Research Service, only one did not involve administrative data (Wittenburg et al., 2001). Five of the 10 initiatives involve creation of linked databases matching administrative records from multiple agencies, or matching administrative records to survey responses. Linked databases are a way to create “new” data from existing sources. For example, the National Center for Health Statistics (NCHS) determines infant mortality rates using state files of linked data from birth and death certificates (Mathews et al., 2002). The Department of Transportation examines motor vehicle crash outcomes by linking records of police-reported crashes to hospital discharge data, EMS data, and hospital emergency department data (NHTSA, 1996a). In the social services arena, a number of States have developed master client indexes that
    [Show full text]
  • Approaches to Multiple Record Linkage
    Approaches to Multiple Record Linkage Mauricio Sadinle, Rob Hall, and Stephen E. Fienberg Department of Statistics, Heinz College, and Department of Machine Learning Carnegie Mellon University Pittsburgh, PA 15213-3890, U.S.A. E-mail: [email protected]; [email protected]; fi[email protected] We review the theory and techniques of record linkage that date back to pioneering work by Fellegi and Sunter on matching records( in) two lists. When the task involves linking K > 2 lists, the most common approach K consists of performing all 2 possible pairs of lists using a Fellegi-Sunter-like approach and then somehow reconciling the discrepancies in an ad hoc fashion. We describe some important uses of the methodology, provide a principled way of accomplishing the reconciliation and we finally present some key parts of the generalization of Fellegi and Sunter's method to K > 2 lists. Introduction Record linkage is a family of techniques for matching two data files using names, addresses, and other fields that are typically not unique identifiers of entities. Most record linkage approaches are based or emulate a method presented in a pioneering paper by Fellegi and Sunter (1969). Winkler (1999) and Herzog et al. (2007) document the basic two-list methodology and several variations. We begin by reviewing some common applications of record linkage techniques, including the linking K > 2 lists. Data Integration. Synthesizing data on a group of individuals from two or more files in the absence of unique identifiers requires record linkage, e.g., to create a data warehouse to be used for querying such as credit checks, e.g., see Talburt (2011), or to assess enrollment in multiple government programs, e.g., see Cole (2003).
    [Show full text]
  • Record Linkage: a Machine Learning Approach, a Toolbox, and a Digital Government Web Service
    Purdue University Purdue e-Pubs Department of Computer Science Technical Reports Department of Computer Science 2003 Record Linkage: A Machine Learning Approach, A Toolbox, and a Digital Government Web Service Mohamed G. Elfeky Vassilios S. Verykios Ahmed K. Elmagarmid Purdue University, [email protected] Thanaa M. Ghanem Ahmed R. Huwait Report Number: 03-024 Elfeky, Mohamed G.; Verykios, Vassilios S.; Elmagarmid, Ahmed K.; Ghanem, Thanaa M.; and Huwait, Ahmed R., "Record Linkage: A Machine Learning Approach, A Toolbox, and a Digital Government Web Service" (2003). Department of Computer Science Technical Reports. Paper 1573. https://docs.lib.purdue.edu/cstech/1573 This document has been made available through Purdue e-Pubs, a service of the Purdue University Libraries. Please contact [email protected] for additional information. RECORD LINKAGE, A MACHINE LEARNING APPROACH, A TOOLBOX, AND A DIGITAL GOVERNMENT WEB SERVICE Mohamed G. Elfeky Vassilios S. Verykios Ahmed K. Elmagarmid Thanaa M. Ghanem Ahmed R. Huwait CSD TR #03-024 July 2003 Record Linkage: A Machine Learning Approach, A Toolbox, and A Digital Government Web Service' l Mohamed G. Elfeky 1 VassiliosS. Verykios Ahmed K. Elmagarrnid 1 Purdue University Drexel University Hewlett-Packard [email protected] [email protected] [email protected] Thanaa M. Ghanem Ahmed R. Huwait 2 Purdue University Ain Shams University [email protected],edu [email protected] Abstract Data cleaning is a vital process mat ensures the quality of data smred in real·world databases. Data cleaning problems are frequently encountered in many research areas, such as kllowledge discovery in databases, data warellOusing. system imegratioll and e­ services.
    [Show full text]
  • Contributions to Record Linkage for Disclosure Risk Assessment
    Contributions to Record Linkage for Disclosure Risk Assessment by Jordi Nin Guerrero Advisor: Dr. Vicenç Torra i Reventós A dissertation submitted in partial fulfillment of the requirements for the degree of Doctor in Artificial Intelligence at the Departament de Ciències de la Computació Universitat Autònoma de Barcelona A la Mireia , que fa seves les meves il·lusions. I a en Xavier, a qui esperem amb entusiasme. ii I am only a child playing on the beach, while vast oceans of truth lie undiscovered before me. Isaac Newton (1642-1727) iii Contents Agraïments xiii Abstract xv 1 Introduction 1 1.1 Motivations ................................... 1 1.2 Contributions .................................. 3 1.3 StructureoftheDocument . 4 2 Preliminaries 7 2.1 AggregationFunctions . 7 2.2 TimeSeries.................................... 12 2.3 Re-identification Methods . 17 2.4 Microdata Protection Methods . 21 2.5 Information Loss and Disclosure Risk . 33 2.6 DataSetsDescription ............................. 38 3 Microaggregation Analysis 45 3.1 Attribute Selection in Multivariate Microaggregation ........... 45 3.2 Modeling Projections in Microaggregation . ...... 58 3.3 Improving Microaggregation for Complex Record Anonymization . 62 v 4 Specific Disclosure Risk Measures 77 4.1 Rank Swapping Record Linkage . 77 4.2 AlignmentRecordLinkage. 93 4.3 ProjectedRecordLinkage . 98 5 Record Linkage using Fuzzy Integrals 109 5.1 An Alternative Disclosure Risk Scenario . 109 5.2 Experiments ................................... 117 6 Time Series Protection 125 6.1 TimeSeriesProtection .. .. .. .. .. .. 125 6.2 Time Series Information Loss Measures . 127 6.3 Time Series Disclosure Risk Measures . 130 6.4 Final Trade-off Evaluation . 135 6.5 Experiments ................................... 136 7 Conclusions and Future Directions 141 7.1 Summary of Contributions .
    [Show full text]
  • Neural Networks for Entity Matching: a Survey
    Neural Networks for Entity Matching: A Survey NILS BARLAUG, Cognite, Norway and NTNU, Norway JON ATLE GULLA, NTNU, Norway Entity matching is the problem of identifying which records refer to the same real-world entity. It has been actively researched for decades, and a variety of different approaches have been developed. Even today, it remains a challenging problem, and there is still generous room for improvement. In recent years we have seen new methods based upon deep learning techniques for natural language processing emerge. In this survey, we present how neural networks have been used for entity matching. Specifically, we identify which steps of the entity matching process existing work have targeted using neural networks, and provide an overview of the different techniques used at each step. We also discuss contributions from deep learning in entity matching compared to traditional methods, and propose a taxonomy of deep neural networks for entity matching. CCS Concepts: • Computing methodologies → Neural networks; Natural language processing; • Infor- mation systems → Entity resolution. Additional Key Words and Phrases: deep learning, entity matching, entity resolution, record linkage, data matching ACM Reference Format: Nils Barlaug and Jon Atle Gulla. 2021. Neural Networks for Entity Matching: A Survey. ACM Trans. Knowl. Discov. Data. 15, 3 (April 2021), 36 pages. https://doi.org/10.1145/3442200 1 INTRODUCTION Our world is becoming increasingly digitalized. While this opens up a number of new, exciting opportunities, it also introduces challenges along the way. A substantial amount of the value to be harvested from increased digitalization depends on integrating different data sources. Unfortunately, many of the existing data sources one wishes to integrate do not share a common frame of reference.
    [Show full text]
  • Introduction to Data Science Rest of Today’S Lecture
    INTRODUCTION TO DATA SCIENCE REST OF TODAY’S LECTURE Exploratory Analysis, Insight & Data Data hypothesis analysis Policy collection processing & testing, & Data viz ML Decision Continue with the general topic of data wrangling and cleaning Many slides from Amol Deshpande (UMD) ! 2 OVERVIEW Goal: get data into a structured form suitable for analysis • Variously called: data preparation, data munging, data curation • Also often called ETL (Extract-Transform-Load) process Often the step where majority of time (80-90%) is spent Key steps: • Scraping: extracting information from sources, e.g., webpages, spreadsheets • Data transformation: to get it into the right structure • Data integration: combine information from multiple sources • Information extraction: extracting structured information from unstructured/text sources • Data cleaning: remove inconsistencies/errors ! 3 OVERVIEW Goal: get data into a structured form suitable for analysis • Variously called: data preparation, data munging, data curation • Also often called ETL (Extract-Transform-Load) process Often the step where majority of time (80-90%) is spent Key steps: Already • Scraping: extracting information from sources, e.g., webpages,covered spreadsheets • Data transformation: to get it into the right structure • Information extraction: extracting structured information from unstructured/text sources In a few • Data integration: combine information from multiple sourcesclasses • Data cleaning: remove inconsistencies/errors ! 4 OVERVIEW !5 OVERVIEW Many of the problems are not
    [Show full text]
  • Learning Blocking Schemes for Record Linkage∗
    Learning Blocking Schemes for Record Linkage∗ Matthew Michelson and Craig A. Knoblock University of Southern California Information Sciences Institute, 4676 Admiralty Way Marina del Rey, CA 90292 USA {michelso,knoblock}@isi.edu Abstract Record linkage is the process of matching records across data sets that refer to the same entity. One issue within record linkage is determining which record pairs to consider, since a detailed comparison between all of the records is imprac- tical. Blocking addresses this issue by generating candidate matches as a preprocessing step for record linkage. For ex- ample, in a person matching problem, blocking might return all people with the same last name as candidate matches. Two main problems in blocking are the selection of attributes for generating the candidate matches and deciding which meth- ods to use to compare the selected attributes. These attribute and method choices constitute a blocking scheme. Previ- ous approaches to record linkage address the blocking issue in a largely ad-hoc fashion. This paper presents a machine learning approach to automatically learn effective blocking Figure 1: Record linkage example schemes. We validate our approach with experiments that show our learned blocking schemes outperform the ad-hoc blocking schemes of non-experts and perform comparably to or cluster the data sets by the attribute. Then we apply the those manually built by a domain expert. comparison method to only a single member of a block. Af- ter blocking, the candidate matches are examined in detail Introduction to discover true matches. This paper focuses on blocking. Record linkage is the process of matching records between There are two main goals of blocking.
    [Show full text]
  • A Hierarchical Graphical Model for Record Linkage
    A Hierarchical Graphical Model for Record Linkage Pradeep Ravikumar William W. Cohen Center for Automated Center for Automated Learning and Discovery, Learning and Discovery, School of Computer Science, School of Computer Science, Carnegie Mellon University Carnegie Mellon University [email protected] [email protected] Abstract edit distances as a general-purpose record matching scheme was proposed by Monge and Elkan [10, 9], and The task of matching co-referent records is in previous work [2, 3], we developed a toolkit of vari- known among other names as record link- ous string-distance based methods for matching entity- age. For large record-linkage problems, of- names. The AI community has focused on applying ten there is little or no labeled data available, supervised learning to the record-linkage task | for but unlabeled data shows a reasonably clear learning the parameters of string-edit distance metrics structure. For such problems, unsupervised [14, 1] and combining the results of di®erent distance or semi-supervised methods are preferable to functions [15, 4, 1]. More recently, probabilistic object supervised methods. In this paper, we de- identi¯cation methods have been adapted to matching scribe a hierarchical graphical model frame- tasks [12]. In statistics, a long line of research has been work for the record-linkage problem in an un- conducted in probabilistic record linkage, largely based supervised setting. In addition to propos- on the seminal paper by Fellegi and Sunter [5]. ing new methods, we also cast existing un- In this paper, we follow the Fellegi-Sunter approach of supervised probabilistic record-linkage meth- treating the record-linkage problem as a classi¯cation ods in this framework.
    [Show full text]
  • An Introduction to Probabilistic Record Linkage with a Focus on Linkage Processing for WTC Registries
    International Journal of Environmental Research and Public Health Review An Introduction to Probabilistic Record Linkage with a Focus on Linkage Processing for WTC Registries Jana Asher 1,* , Dean Resnick 2, Jennifer Brite 3, Robert Brackbill 3 and James Cone 3 1 Department of Mathematics and Statistics, Slippery Rock University, Slippery Rock, PA 16057, USA 2 National Opinion Research Center, Boston, MA 02114, USA; [email protected] 3 Division of Epidemiology, New York City Department of Health and Mental Hygiene, World Trade Center Health Registry, New York, NY 11101, USA; [email protected] (J.B.); [email protected] (R.B.); [email protected] (J.C.) * Correspondence: [email protected]; Tel.: +1-724-738-2508 Received: 3 August 2020; Accepted: 17 September 2020; Published: 22 September 2020 Abstract: Since its post-World War II inception, the science of record linkage has grown exponentially and is used across industrial, governmental, and academic agencies. The academic fields that rely on record linkage are diverse, ranging from history to public health to demography. In this paper, we introduce the different types of data linkage and give a historical context to their development. We then introduce the three types of underlying models for probabilistic record linkage: Fellegi-Sunter-based methods, machine learning methods, and Bayesian methods. Practical considerations, such as data standardization and privacy concerns, are then discussed. Finally, recommendations are given for organizations developing or maintaining record linkage programs, with an emphasis on organizations measuring long-term complications of disasters, such as 9/11. Keywords: epidemiology; disaster epidemiology; data matching; record linkage; probabilistic record linkage; interagency cooperation; 9/11 health 1.
    [Show full text]