Course: EDUC 586 Teaching Students on the Autism Spectrum—Online Med
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1 | [footer text here] 2 | [footer text here] • The reason I wanted to give this talk is because I have come to understand that a lot of what we know for sure about autism, just isn’t so. We have developed services for autistic people which are based on the belief that autism is primarily a psychological problem characterized by deficits in social understanding, restricted behaviors and interests, and cognition. But I have come to believe that autism is better accommodated and supported when it is understood as a neurological condition. [pause] Increasingly, people working in a neurological paradigm are achieving remarkably good outcomes, especially for those who don’t speak or whose speech is unreliable communication, and for those with prominent symptoms of dyspraxia. Dyspraxia is difficulty coordinating movement. 3 | [footer text here] • Ten years ago, we thought that autism was a thing. Find the gene! Maybe it’s vaccines? It’s an epidemic and a crisis! We’ve mostly moved through that, thankfully. But remnants of it sometimes rear its ugly head on occasion. • A diagnosis of autism doesn’t correlate with any specific trait or characteristic. People can be super smart or have significant cognitive challenges. They can be organized or have executive function problems. They can be a competitive surfer or use a wheelchair. They may or may not have seizures. They may have normal, very acute or scrambled senses. They may be blind or deaf. They may be polite and regulated to a fault, or have significant anxiety, behavioral, or mental health problems. • Historically, autism was defined by psychiatrists who were rooted in early 20th Century cultural ideas about intelligence, eugenics, and social hygiene. -
Autism Society History
Feature | Autism Society History Where We’ve Been and Where We’re Going The Autism Society’s Proud History s the nation’s oldest grassroots autism organization, the Autism Society has Abeen working to improve the lives of all affected by autism for 46 years. When the organization was founded in 1965, the autism community was very different than it is today: the term “autism” was not widely known, and doctors often blamed the condition on “refrigerator mothers,” or parents who were cold and unloving to their children – a theory that we now know to be completely false. Perhaps even more discouraging than the blame and guilt placed upon parents of children with autism at this time was the complete lack of treatment options. Parents were often told that their child would never improve, and that he or she should be institutionalized. “All practitioners we saw had one characteristic in common – none of them was able to undertake treatment,” wrote Rosalind Oppenheim, mother to a then-6-year-old son with autism, in an article in the June 17, 1961, Saturday Evening Post. “‘When will you stop running?’ one well-meaning guidance counselor asked us along the way. When indeed? After eighteen costly, heartbreaking months we felt that we had exhausted all the local medical resources.” Oppenheim’s article garnered many letters from other parents of children with autism who had had similar experiences. She sent them on to Dr. Bernard Rimland, another parent of a child with autism who was also a psychologist. Not long after, Dr. Rimland published the landmark book Infantile Autism, the first work to argue for a physical, not psychological, cause of autism. -
Autism and New Media: Disability Between Technology and Society
1 Autism and new media: Disability between technology and society Amit Pinchevski (lead author) Department of Communication and Journalism, The Hebrew University of Jerusalem, Israel John Durham Peters Department of Communication Studies, University of Iowa, USA Abstract This paper explores the elective affinities between autism and new media. Autistic Spectrum Disorder (ASD) provides a uniquely apt case for considering the conceptual link between mental disability and media technology. Tracing the history of the disorder through its various media connections and connotations, we propose a narrative of the transition from impaired sociability in person to fluent social media by network. New media introduce new affordances for people with ASD: The Internet provides habitat free of the burdens of face-to-face encounters; high-tech industry fares well with the purported special abilities of those with Asperger’s syndrome; and digital technology offers a rich metaphorical depository for the condition as a whole. Running throughout is a gender bias that brings communication and technology into the fray of biology versus culture. Autism invites us to rethink our assumptions about communication in the digital age, accounting for both the pains and possibilities it entails. 2 Keywords: Autism (ASD), Asperger’s Syndrome, new media, disability studies, interaction and technology, computer-mediated communication, gender and technology Authors’ bios Amit Pinchevski is a senior lecturer in the Department of Communication and Journalism at the Hebrew University, Israel. He is the author of By Way of Interruption: Levinas and the Ethics of Communication (2005) and co-editor of Media Witnessing: Testimony in the Age of Mass Communication (with Paul Frosh, 2009) and Ethics of Media (with Nick Couldry and Mirca Madianou, 2013). -
Pausing Encounters with Autism and Its Unruly Representation: an Inquiry Into Method, Culture and Academia in the Making of Disability and Difference in Canada
Pausing Encounters with Autism and Its Unruly Representation: An inquiry into method, culture and academia in the making of disability and difference in Canada A dissertation submitted to the Committee of Graduate Studies in Partial Fulfillment of the Requirements for the Degree of Doctor of Philosophy in the Faculty of Arts and Science. TRENT UNIVERSITY Peterborough, Ontario, Canada Copyright by John Edward Marris 2013 Canadian Studies Ph.D. Graduate Program January 2014 ABSTRACT Pausing Encounters with Autism and Its Unruly Representation: An inquiry into method, culture and academia in the making of disability and difference in Canada John Edward Marris This dissertation seeks to explore and understand how autism, asperger and the autistic spectrum is represented in Canadian culture. Acknowledging the role of films, television, literature and print media in the construction of autism in the consciousness of the Canadian public, this project seeks to critique representations of autism on the grounds that these representations have an ethical responsibility to autistic individuals and those who share their lives. This project raises questions about how autism is constructed in formal and popular texts; explores retrospective diagnosis and labelling in biography and fiction; questions the use of autism and Asperger’s as metaphor for contemporary technology culture; examines autistic characterization in fiction; and argues that representations of autism need to be hospitable to autistic culture and difference. In carrying out this critique this project proposes and enacts a new interdisciplinary methodology for academic disability study that brings the academic researcher in contact with the perspectives of non-academic audiences working in the same subject area, and practices this approach through an unconventional focus group collaboration. -
Becoming Autistic: How Do Late Diagnosed Autistic People
Becoming Autistic: How do Late Diagnosed Autistic People Assigned Female at Birth Understand, Discuss and Create their Gender Identity through the Discourses of Autism? Emily Violet Maddox Submitted in accordance with the requirements for the degree of Master of Philosophy The University of Leeds School of Sociology and Social Policy September 2019 1 Table of Contents ACKNOWLEDGEMENTS ................................................................................................................................... 5 ABSTRACT ....................................................................................................................................................... 6 ABBREVIATIONS ............................................................................................................................................. 7 CHAPTER ONE ................................................................................................................................................. 8 INTRODUCTION .............................................................................................................................................. 8 1.1 RESEARCH OBJECTIVES ........................................................................................................................................ 8 1.2 TERMINOLOGY ................................................................................................................................................ 14 1.3 OUTLINE OF CHAPTERS .................................................................................................................................... -
Best Kept Secret a Film by Samantha Buck
POV Community Engagement & Education Discussion GuiDe Best Kept Secret A Film by Samantha Buck www.pbs.org/pov LETTER FROM THE FILMMAKER The first question i get about Best Kept Secret is usually “What is your personal relation - ship to autism?” until making this film, i always thought the answer was “none.” What i learned is that we are all connected to it. Autism is part of who we are as a society. Across the country, young adults who turn 21 are pushed out of the school system. They often end up with nowhere to go; they simply disappear from productive society. This is what edu - cators call “falling off the cliff.” While i was on the festival circuit with my last feature documentary, 21 Below , i saw many films about young children with autism. These films were moving and important, but they only spoke of a limited population—predominately caucasians from financially stable fam - ilies. But what happens to children with autism who grow up in other circumstances? i began to research public schools in inner-city areas all over the united states, and the best kind of accident of fate brought me to JFK in newark, n.J. and Janet Mino—a force of na - ture who changed my life. she has been a constant reminder to have faith, value every member of society and believe in people’s potential. Best Kept Secret on the surface could seem like a straightforward vérité film, but we tried to accomplish something different—a subtle and layered story that takes on issues of race, class, poverty and disability through a different lens than the one to which many people are accustomed. -
The Persistence of Fad Interventions in the Face of Negative Scientific Evidence: Facilitated Communication for Autism As a Case Example
Evidence-Based Communication Assessment and Intervention ISSN: 1748-9539 (Print) 1748-9547 (Online) Journal homepage: http://www.tandfonline.com/loi/tebc20 The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example Scott O. Lilienfeld, Julia Marshall, James T. Todd & Howard C. Shane To cite this article: Scott O. Lilienfeld, Julia Marshall, James T. Todd & Howard C. Shane (2014) The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example, Evidence-Based Communication Assessment and Intervention, 8:2, 62-101, DOI: 10.1080/17489539.2014.976332 To link to this article: http://dx.doi.org/10.1080/17489539.2014.976332 Published online: 02 Feb 2015. Submit your article to this journal Article views: 5252 View related articles View Crossmark data Citing articles: 1 View citing articles Full Terms & Conditions of access and use can be found at http://www.tandfonline.com/action/journalInformation?journalCode=tebc20 Download by: [University of Lethbridge] Date: 05 October 2015, At: 05:52 Evidence-Based Communication Assessment and Intervention, 2014 Vol. 8, No. 2, 62–101, http://dx.doi.org/10.1080/17489539.2014.976332 EBP Advancement Corner The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example Scott O. Lilienfeld1, Julia Marshall1, James T. Todd2 & Howard C. Shane3 1Department of Psychology, Emory University, Atlanta, GA, USA, 2Department of Psychology, Eastern Michigan University, Ypsilanti, MI, USA, 3Boston Children’s Hospital, Boston, MA, USA ................................................................................................................................................. Abstract Communication disorder and mental health professionals may assume that once novel clinical techniques have been refuted by research, they will be promptly abandoned. -
The Reason I Jump ||Dramaturgy Pack
The Reason I Jump || Dramaturgy Pack Concept The Reason I Jump is a site-specific immersive performance conceived by Graham Eatough constructed around the autobiography written by Naoki Higashida as well as the lived experiences of its performers. After acquiring the rights to the book, the National Theatre of Scotland commissioned Eatough to conceptualise a production around 2015. Eatough initially imagined a curatorial production in gallery spaces that experientially presented and narrativised different perspectives on autism for the audience, which they would travel through like the chapters of a book. From these early stages he was already keen to represent multiple individual experiences of autism in an immersive journey, and this has remained key to the dramaturgy throughout. That kind of dramaturgical approach was there from the start, as was the desire to work with people who have autism actually in making the project. Rather than it just being Naoki Higashida’s ideas and point of view and experiences that are expressed in the book, we wanted a range of experiences and ideas presented in the show, of which Naoki’s would be one.1 “They identified a group of autistic participants and went through several workshops. The first paired participants with professional artists to develop a theme from the book in line with their own experiences in order to approach a space, a room. From this, and through Eatough’s previous work on site-specific outdoor art collaborations, the dramaturgical journey shifted outside as Andre Dekker came on board and introduced his architectural approach. The move outside was particularly significant in playing into, and playing up, Naoki’s ideas about nature in the book: a massive part of the book is Naoki’s idea that he, and he assumes other autistic people, has this very special connection with nature and with outdoor spaces and with a feeling of connection, and belonging, in a natural environment. -
Autism: a Generation at Threat Review Article
April 2009 JIMA:38486-IMANA.qxd 4/27/2009 10:10 AM Page 28 Review Article Autism: A Generation at Threat Sabeeha Rehman, MPS, FACHE President and Founding Member of National Autism Association New York Metro Chapter New York, New York Fellow of American College of Healthcare Executives Abstract A generation of children is at risk as the incidence of autism increases. No consensus exists on the causes of autism or its treatment. A wide range of poten- tial factors such as genetics, vaccines, and environmental toxins is being explored. Some clinicians offer a combination of behavioral, educational, and pharmaceutical treatments, whereas allied health professionals stress diet, bio- medical interventions, and chelation. With a lack of an organized approach to diagnosis and treatment and a lack of trained professionals, children are not receiving timely interventions. Curing autism has to be made a national priori- ty. National programs should conduct research, standardize treatments, and offer public and professional education. Key words: Autism, autism spectrum disorders, health planning. Purpose impact the normal development of the brain in the he incidence of autism spectrum disorders areas of social interaction, communication skills, and (ASD) is becoming an epidemic. This phenome - cognitive function. Individuals with ASD typically non, not unique to the United States or Europe, have difficulties in verbal and nonverbal communi - Tis fast emerging as a worldwide problem. This paper cation, social interactions, and leisure or play activi - reviews the gains made and obstacles faced in the ties. Individuals with ASD often suffer from numer - diagnosis and treatment of ASD and proposes a com - ous physical ailments, which may include, in part, prehensive plan to deal with this phenomenon. -
Disability in an Age of Environmental Risk by Sarah Gibbons a Thesis
Disablement, Diversity, Deviation: Disability in an Age of Environmental Risk by Sarah Gibbons A thesis presented to the University of Waterloo in fulfillment of the thesis requirement for the degree of Doctor of Philosophy in English Waterloo, Ontario, Canada, 2016 © Sarah Gibbons 2016 I hereby declare that I am the sole author of this thesis. This is a true copy of the thesis, including any required final revisions, as accepted by my examiners. I understand that my thesis may be made electronically available to the public. ii Abstract This dissertation brings disability studies and postcolonial studies into dialogue with discourse surrounding risk in the environmental humanities. The central question that it investigates is how critics can reframe and reinterpret existing threat registers to accept and celebrate disability and embodied difference without passively accepting the social policies that produce disabling conditions. It examines the literary and rhetorical strategies of contemporary cultural works that one, promote a disability politics that aims for greater recognition of how our environmental surroundings affect human health and ability, but also two, put forward a disability politics that objects to devaluing disabled bodies by stigmatizing them as unnatural. Some of the major works under discussion in this dissertation include Marie Clements’s Burning Vision (2003), Indra Sinha’s Animal’s People (2007), Gerardine Wurzburg’s Wretches & Jabberers (2010) and Corinne Duyvis’s On the Edge of Gone (2016). The first section of this dissertation focuses on disability, illness, industry, and environmental health to consider how critics can discuss disability and environmental health in conjunction without returning to a medical model in which the term ‘disability’ often designates how closely bodies visibly conform or deviate from definitions of the normal body. -
Book Review: the Reason I Jump: One Boy's Voice from the Silence of Autism by Naoki Higashida
Book Review: The Reason I Jump: One Boy's Voice from the Silence of Autism by Naoki Higashida Constantinos Mantzikos Special education teacher [email protected] Table 1. The book Below is a review of the book “The Reason I Jump: One Boy's Voice from the Silence of Autism”, written by Naoki Higashida. The author writes about autism. First of all, the author is an autistic man. He was born 1992 in Kimitsu, Japan and he received his original autism diagnosis in 1998. He has classic autism (Leo Kanner’s autism) and can’t talk effectively with speech. He developed an alternative communication system with an alphabet with his teacher. He wrote this book, because he wanted to show how he functions as an autistic person. Autism is the most known human condition and many scholars have studied this condition. This remarkable book promotes the real image of autism and autistic individuals. He gives us an exceptional chance to enter the mind of another and see the world from a strange and fascinating perspective. In this book there are 58 questions and answers from the author. He answers the most common questions, such as: Why do autistic individuals demonstrate stereotypical behaviors? Why do these people delay giving an answer to a question? Why can’t these people have eye contact? He gives answers in various fields, such as sensory issues and behavioral conditions. Naoki Higashida gives a better understanding of autism and he wants to know if we want to understand autism from the part of autistics, we can teach effectively these students. -
The Impact of a Diagnosis of Autism Spectrum Disorder on Nonmedical Treatment Options in the Learning Environment from the Perspectives of Parents and Pediatricians
St. John Fisher College Fisher Digital Publications Education Doctoral Ralph C. Wilson, Jr. School of Education 12-2017 The Impact of a Diagnosis of Autism Spectrum Disorder on Nonmedical Treatment Options in the Learning Environment from the Perspectives of Parents and Pediatricians Cecilia Scott-Croff St. John Fisher College, [email protected] Follow this and additional works at: https://fisherpub.sjfc.edu/education_etd Part of the Education Commons How has open access to Fisher Digital Publications benefited ou?y Recommended Citation Scott-Croff, Cecilia, "The Impact of a Diagnosis of Autism Spectrum Disorder on Nonmedical Treatment Options in the Learning Environment from the Perspectives of Parents and Pediatricians" (2017). Education Doctoral. Paper 341. Please note that the Recommended Citation provides general citation information and may not be appropriate for your discipline. To receive help in creating a citation based on your discipline, please visit http://libguides.sjfc.edu/citations. This document is posted at https://fisherpub.sjfc.edu/education_etd/341 and is brought to you for free and open access by Fisher Digital Publications at St. John Fisher College. For more information, please contact [email protected]. The Impact of a Diagnosis of Autism Spectrum Disorder on Nonmedical Treatment Options in the Learning Environment from the Perspectives of Parents and Pediatricians Abstract The purpose of this qualitative study was to identify the impact of a diagnosis of autism spectrum disorder on treatment options available, within the learning environment, at the onset of a diagnosis of autism spectrum disorder (ASD) from the perspective of parents and pediatricians. Utilizing a qualitative methodology to identify codes, themes, and sub-themes through semi-structured interviews, the research captures the lived experiences of five parents with children on the autism spectrum and five pediatricians who cared for those children and families.