ISSN: 1366-0209 Summer 2017 No. 53 A-T Society News This sparkling issue celebrates • The start of the Erydex trial • The International A-T registry • Achievements of people with A-T • Inspirational fundraisers 2 A-T Society News Ataxia-telangiectasia is a rare, genetic, challenges than many, people with A-T have lives neurodegenerative disease. It starts in early to live, and the Society’s aim is to ensure they have childhood and affects many parts of the body causing the support they need to live them to the full. We do severe disability. this through funding research, providing information, practical support and financial assistance, working to The A-T Society was established in 1989 and is improve clinical management and raising awareness. committed to helping, supporting and advising families affected by A-T. While they may face more Contents 3 Diary 13-22 People • William Davis, • Erin’s new wheelchair chief executive • Pride of Gwent award • My journey to employment 4-8 Research • Erydex trial underway 23-43 Fundraising • A-T Registry • Corporate fundraising Page 6 Page 22 • ATTeST trial • Chelsea Film • Diabetes and A-T Study • Global Make Some Noise • Inspirational Fundraisers 9-12 Support Services • BBC One Show Children in • Adult Activity Weekend Need Rickshaw Challenge • PIP assessments • Breast screening in women Page 9 Page 34 Editor’s comments Many thanks to all contributors. The copy date Phone: 01582 760733 for the next issue is 1st October 2017. Please Fax: 01582 760162 send comments, ideas, articles and pictures to:
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