For friends and supporters of the Cystinosis Research Foundation DEDICATION DEVOTION Cystinosis Love Stories WINTER 2017 YSTIN R C OSI OU S LOVE STORIES ISSUE OUR CYSTINOSIS LOVE STORIES We all have cystinosis stories of love and persistence. Families and friends are continuously dedicated to the well-being of their loved ones with cystinosis, and researchers are devoted to their studies and making a difference. The journey of both families and researchers includes pure love and sacrifices, with the same goal of finding the cure. CONTACT US: Please send suggestions and comments regarding Cystinosis Magazine to
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[email protected] Stéphanie Cherqui, PhD and The entire cost of Cystinosis Magazine Corinne Antignac, MD, PhD is underwritten by friends of the in Cherqui’s lab. PAGE 8 Cystinosis Research Foundation. Art Direction and Printing: Idea Hall CYSTINOSISRESEARCH.ORG 949 223 7610 | 18802 Bardeen Avenue, Irvine, CA 92612 WINTER 2O17 ii Cystinosis Research Foundation The mission of the Cystinosis Research Foundation is to find better treatments and a cure for cystinosis by supporting bench, clinical and translational research. Since 2003, CRF has raised $39 million for cystinosis research in an effort to find a cure. WELCOME ANNOUNCEMENTS 02 A Letter from Nancy and Jeff Stack 12 Canada Unites with CRF To Find A Cure 05 A Note from Natalie Stack 22 Happy Holidays from CRF 06 What is Cystinosis? Who is CRF? 45 CRF Day of Hope Family