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AT HER FEET One Woman’S Global Ambition Type 1 TRAVEL SPECIAL Issue 83/ July – October 2019 Doing it yourself How safe is DIY technology? Protection Pregnancy packet priorities Advances in Project seeks to wrapping beta cells improve healthcare to keep them safe Treatments beyond insulin New investment boosts prospects Ready for take-off WORLD Campaign success for type 1 air travellers AT HER FEET One woman’s global ambition Join us in finding the cure for type 1 diabetes Learning that diabetes A word from Karen management can be about The CONTOUR®DIABETES app just choices, not just constraints. got even smarter. With brand new Everything is possible That’s illuminating. features, you can explore your diabetes like never before and keep motivated Type 1 diabetes should never be a to stay on track with treatment plans. barrier to accomplishing anything. Managing the condition does mean, though, that some things need extra planning, like travelling. In this issue, we explore the best way to get the most out of travel when you live with the condition. We talk to people with type 1 who love to travel whether it be in the UK or far flung destinations. 6 Marathon running also needs careful preparation and this year 27 runners with type 1 took part in the London Marathon in JDRF colours Marathon contributing fully to what was a fantastic overall effort by the team. success Runners raise I’d like to extend a huge congratulations and thank funds for type 1 you to all 143 of you who ran for us. So far more than £390,000 has been raised for type 1 research. I am immensely grateful for all the support that you 5 10 give JDRF. Everything you do brings the cure closer. Karen Addington Encapsulation 12 Chief Executive The research area bringing us closer to a cure Join us on Editor: Jonathan Henderson, Managing Editor: Orna Joseph Production Editor: Deepti Bahal social media Contributors: Cazzy Magennis, Jamie Lowe Read this onlineResponding to Cazzy Magennis as featured on pages 6/7 Cover picture: jdrfuk Get the latest edition of Type 1 Discovery JDRF does not endorse any of the products or services at jdrf.org.uk/discovery glucoseto find out how monitors advertised in Type 1 Discovery. Articles in Type 1 Discovery written by freelance contributors do not necessarily represent 12:23 jdrfuk My Readings the views of JDRF. WED THU FRI made easier Today, Friday, Oct 21 mmol 5.2 L 12:23 These foundations and trusts are supporting the following research projects: My Week (Past 7 days) The Steve Morgan Foundation Masonic Charitable Foundation The Charles Wolfson Charitable Trust Using chemically modified insulin in a new Mike Green Foundation. Pancreatic enteroviral persistence - Harnessing vascular stem cells to model and treat 1 10 7 test for type 1 diabetes a molecular trigger for islet autoimmunity and type 1 diabetes diabetic retinopathy My Averages Neuroimaging Hypoglycaemia Awareness in humans Dr Reinhold Medina – Queen’s University Belfast Dr Nissim – Queen Mary University of London Dr Sarah Richardson – University of Exeter Sugar Free Can high-intensity exercise combat A generous legacy from the estate of James Elson The Bernard Sunley Charitable Foundation hypo-unawareness? Overnight closed loop control in suboptimally controlled Glucose Responsive Insulin Therapy (GRIT) Professor Rory McCrimmon – University of Dundee type 1 diabetes under free living conditions Dr John Fossey – University of Birmingham TrialNet Professor Roman Hovorka – University of Cambridge ® Professor Polly Bingley – University of Bristol Wellcome Trust and Sugar Free Apply for a FREE* CONTOUR NEXT ONE meter by The Alan and Babette Sainsbury Charitable Fund JDRF/ Wellcome Trust Diabetes and Inflammation The Mason Le Page Charitable Trust Beta cell turnover in patients with long-standing Laboratory Glucose Responsive Insulin Therapy (GRIT) type 1 diabetes Professor John Todd – University of Oxford visiting www.contournextone.co.uk/JDRF0518 Dr John Fossey – University of Birmingham Dr Richard Oram – University of Exeter and Professor Yuval Dor – Hebrew University, Jerusalem * Eligibility criteria apply. Only one meter from the CONTOUR® range per person every twelve months. Ascensia, the Ascensia Diabetes Care logo and CONTOUR are trademarks and/or registered trademarks of Ascensia Diabetes Care Holdings AG Apple and the Apple logo are trademarks of Apple Inc., registered in the U.S. and other countries. App Store is a service mark of Apple Inc. The Bluetooth word mark and logos are registered trademarks To find out about all the research projects we fund, visit jdrf.org.uk/research owned by Bluetooth SIG, Inc., and any use of such marks herein is under licence. Google Play and the Google Play logo are trademarks of Google Inc. © Copyright 2018 Ascensia Diabetes Care Holdings AG. All rights reserved. TRAVEL SPECIAL 3 JDRF0518 NEWS & VIEWS NEWS & VIEWS Find out more Trial finds New Chairman is You can keep up with our latest news at New investment long-time supporter jdrf.org.uk/news artificial or follow us David McTurk has been boosts pancreas safe appointed UK Chair of the JDRF Board of and effective Directors. search for David’s daughter, We asked you... Sarah, was diagnosed Have you ever had any in toddlers with type 1 22 years ago treatment at the age of 11 and the problems travelling with The artificial pancreas is a safe and family became heavily type 1?’ beyond effective treatment for very young involved with the charity children, according to the results of soon afterwards. We always have trouble with David has supported Professor the latest trial. orange juice – we are never insulin and championed allowed to take it through and Colin Dayan many JDRF fundraising have to throw what we have away initiatives including cycle then buy some in the airport. The next generation of immunotherapy research for rides and organising the Newbury David McTurk, JDRF Walk to Cure Diabetes. Sarah Board of Directors type 1 diabetes has been given a £490,000 funding has taken part in skydives and I've never had problems. Every boost by JDRF and Diabetes UK supported JDRF with donations in country I’ve been to is relaxed and lieu of gifts from her wedding. seems to fully understand. A network of British scientists, A number of immunotherapies backed by the two charities and have shown promise but multiple I’ve been travelling the world called the Type 1 Diabetes UK trials are needed before a drug can with type 1 for 41 years and Immunotherapy Consortium (T1D UK), be licensed. The consortium will never had any problems. I’ve was set up in 2015. Its aim was to work to fast-track this process and Confronting myths and had a pump since 1999 and a make the first immunotherapy drug get immunotherapy drugs to market CGM for 7 years. available to people with type 1. sooner. misconceptions This major new funding, announced Scientists believe these treatments in May, will allow the scientists three could pave the way towards a cure for Twenty-four children from ages one to Diabetes Week, an annual more years to continue their research type 1. seven trialled the technology day and night UK-wide awareness week into finding treatments that will stop, Rachel Connor, UK Director of for six weeks at home. that takes place in June, Our survey says or prevent, type 1. Research Partnerships for JDRF, said: They spent on average 70 per cent of the encouraged the public to Advances in immunotherapy ‘Our funding will empower more time within the target glucose range of #SeeDiabetesDifferently by What part of the world have you found to be the most research have the potential to move scientists to coordinate and integrate 3.9-10 mmol/L, and experienced no severe examining the myths and type 1 friendly when travelling? treatment for the condition beyond data from a greater number of hypos or ketoacidosis. misconceptions that face insulin, which has been the only studies. This will accelerate research The trial was carried out by Cambridge- people living with type 1. Topics option since it was discovered nearly progress and bring swifter change for based Professor Roman Hovorka and included the causes of type 1, 55% 100 years ago. people living with the condition.’ living with the condition and his team who have been developing an Europe artificial pancreas since 2006. how to respond to people who are unfamiliar with it. 30% America or Canada STARS TURN OUT FOR PRO-CELEBRITY MARATHON TEAM RAISE FUNDS FOR RESEARCH GOLF CHALLENGE Our 2019 London Marathon 10% team included some well- Asia A JDRF Pro-Celebrity Team Challenge known faces. These included Golf Day took place in May, raising Dan Hawkins, guitarist of the nearly £20,000. The event, at Woking band The Darkness, whose 5% Golf Club, was attended by the actor daughter has type 1, and Jonny Labey, the former England the comedian Ed Gamble, Australia footballer Sir Trevor Brooking and the who himself has type 1. So far magician Jamie Raven. the impressive team has raised For more information about the latest more than £390,000. news go to jdrf.org.uk/news 4 TRAVEL SPECIAL TRAVEL SPECIAL 5 REAL LIFE REAL LIFE Change your lock screen on your phone to a message explaining you have type 1 diabetes in the language of the country ‘My aim you are travelling is to travel adjust my insulin to suit the new time 7. Trying new foods: Carb counting zone. When I am on an aeroplane, I new foods presents a challenge, set my insulin pump to the destination but there are ways to overcome this. time. After a few days I will start to Download apps such as MyFitnessPal to every notice patterns and can adjust my as they give you a generic carb count insulin as necessary.
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