07/08/2017 Pia de Jong on why she refused treatment for ill baby | Daily Mail Online
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‐77% GOOD ‐77% ‐54% COUNTRY LIVING Site Web Enter your seaESQUIRErch 'Stay with me, I whiHOUSEKEEPINGspered': When her
daughter was born with a rare form of Like Follow £6 £6 Daily Mail £9.99@MailOnline
leukaemia, one mother decided Follow +1 Daily Mail Daily Mail ‐75% ‐69% ‐75% against treatment. WOMEN'SInst HEALTHead, she didPRIMA MEN'S HEALTH DON'T MISS
nothing and took h£3er baby home no£6t The fabulous nerve of £3 the woman! Forget being embarrassed, knowing if she would live or die Diana would have LOVED her intimate By PIA DE JONG tapes being broadcast PUBLISHED: 00:41, 6 August 2017 | UPDATED: 13:39, 6 August 2017 as they show her in a golden light
'We tried hard for a 2.1k 688 long time': Chris Pratt shares View comments and Anna Faris 'legally separate' in shock split after eight years of When her daughter was born with a rare form of leukaemia, writer Pia de Jong marriage decided against treatment, which could prove fatal to a newborn. Instead, she told Seemed rock solid
the doctors, ‘We do nothing,’ and – not knowing if her baby would live or die – took PICTURE EXCLUSIVE: her home Love Island's Olivia Attwood puts on a VERY muggy display When Charlotte is born the midwife is concerned. She points to a bump on the with mystery man... as boyfriend Chris Hughes baby’s back, a soft rosy hill. She presses it and when she lifts her index inger, the is nowhere to be seen spot turns blue. Over the next few days the spots on Charlotte’s pale skin do not disappear; they multiply around her body. Our doctor does not know what to make 'CBB is not an appropriate rehab of them so he refers us to the hospital for further examination. facility': Fans express concern over recovering alcoholic The results of the bone-marrow biopsy are on the table in front of the oncologist. Sarah Harding... as she ‘They con irm what we already suspected,’ he says. ‘Charlotte was born with a rare enjoys boozy night but extremely dangerous form of leukaemia. Sadly her prospects are not good.’ BFFs Katy Perry and Robert Pattinson get close during dimly lit dinner... two weeks after actor dished he was 'kind of engaged' to FKA Twigs
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http://www.dailymail.co.uk/home/you/article-4736266/A-mother-explains-refused-treatment-ill-baby.html 1/30 07/08/2017 Pia de Jong on why she refused treatment for ill baby | Daily Mail Online Three's NOT a crowd! Shirtless Cowell is joined by his VERY busty girlfriend Lauren Silverman AND his bikiniclad ex Terri Seymour
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Pia de Jong with newborn Charlotte. When Charlotte was born with a rare form of leukaemia, Pia decided against treatment
His voice sounds lat, rehearsed. He wants to do this properly. He knows I will remember this conversation for the rest of my life. ‘We have to discuss the treatment plan,’ he continues, ‘choose what is best for Charlotte. The only thing we can offer for leukaemia is chemotherapy. Unfortunately it is very dangerous for children. For newborns it is so dangerous that it can cause them to die. And if they survive, the side effects can be severe. They can become blind, infertile...’
The rest of his words I don’t hear because Charlotte is slurping loudly from my
breast. The oncologist looks at her. ‘To be honest, we don’t know what is best for Why my kids, 15 and Charlotte. So little is known about this disease. Only a few articles exist to gather 19, still need a nanny, by Fiona Bruce: information from.’ Newsreader reveals she uses carer because she's at work so much ‘Can I see those articles?’ my husband Robbert asks. ‘I am a physicist – I know how to Dividing opinion read scienti ic papers.’ Can you teal the love? Jennifer Lopez stuns in The doctor gets the articles out of the binder and puts them in front of us. My eyes revealing gown while wander to the irst sentence. ‘In general, congenital myeloid leukaemia is deadly,’ I beau Alex Rodriguez rocks a tuxedo at read. friend's wedding What a gem The room starts to move and slowly I leave my chair and become a bird, loating From hero to above it. I see Robbert leaning over the articles. Far below I see myself, the mother cuckold... Ross was who just gave birth, with her limp, pale child in her arms. betrayed by Demelza. He then sided with his enemy against the 19 starving, revolting, The doctor coughs, trying to get my attention. He wants to know what I think. NEW peasants in Poldark's ARTICLES Top humiliating finale ‘About what?’ . Share 'You had to get her at ‘The treatment,’ he says. the right angle because http://www.dailymail.co.uk/home/you/article-4736266/A-mother-explains-refused-treatment-ill-baby.html 2/30 07/08/2017 Pia de Jong on why she refused treatment for ill baby | Daily Mail Online I put on my sweater and put Charlotte snugly in her sling. she had a bit of a big nose': Former royal press secretary reveals ‘What are you doing?’ the doctor asks. Diana created THAT signature look
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'I don't know what love Pia with Charlotte as a toddler. Pia writes: 'Parents always want to do everything for their child, is anymore': Internet the doctor had said. Not us, I had replied. We do nothing' loses it over news Hollywood golden couple Chris Pratt and ‘I’m leaving.’ Anna Faris are separating ‘You can’t leave just like that, we are here together to discuss the treatment plan.’ Fabulous at 52! Ageless Famke Janssen I search for Robbert’s eyes. He will understand. puts on an incredibly leggy display in a thigh grazing miniskirt as she ‘We’re not going to treat her. We’re going home, all three of us.’ steps out in New York
‘Are you sure this is what you want? Just waiting, no treatment? People always want 'They looked so happy to do everything for their children.’ together': Danny Dyer and Joanne Mas put on a united front at ‘We do nothing,’ I say. ‘That can be a lot, too.’ daughter Dani's 21st birthday bash... amid * * * * * reports they have split
Robbert leaves to pick up our two boys. I lie on the bed with Charlotte and inhale the Advertisement aromas of stale sweat, baby shampoo and disinfectant that we carried back from the hospital on our clothes. She searches for her favourite place in the crook of my arm. Together we stare at the ceiling until her eyes fall shut.
My love for her overwhelms me. It is so big it frightens me. ‘Charlotte,’ I whisper, Charlotte makes people ‘stay with me.’ “hold their breath. She reminds us that those we I kiss her as gently as I can, again and love can leave us just like again. My tears drip on to her hair, ine that as cobwebs. From her half-open mouth I can smell her breath. I savour her ” aromas, trying to ind words for them – sweet, round, warm. I want to remember that on this very day she smelled sweet, round, warm. I want to bottle it, to keep it with me. For later.
Sleeping is a waste of my time, of Charlotte’s time. I want my heart to become like a freshly ploughed ield where I sow every one of her life’s moments. I will harvest the experiences later. I want to prepare myself for a life illed with memories of her.
Parents always want to do everything for their child, the doctor had said. Not us, I had replied. We do nothing. Why was I so determined just to take her home? Was it 19 NEW the graph showing the statistics, which so clearly demonstrated that children have ARTICLES Top little chance against this disease? Was it hearing about the side effects of chemotherapy? What all that poison would do to her delicate body? Was it my own Share fear of facing this ordeal? http://www.dailymail.co.uk/home/you/article-4736266/A-mother-explains-refused-treatment-ill-baby.html 3/30 07/08/2017 Pia de Jong on why she refused treatment for ill baby | Daily Mail Online The next morning when I am taking Charlotte for a walk, the sky darkens. I duck into Making the most of those warm summer the irst shop to ind shelter and notice I’ve landed in a bookshop. As long as I’m here nights! A leggy I might as well start searching for books about grief. Alessandra Ambrosio steps out for dinner in Malibu dressed in a pale A man with a friendly face walks over to me and asks if he can help. ‘I’m looking for a blue playsuit book about grief. For my young sons. In case the worst happens.’ He glances at my SPOILER ALERT! How hand, shielding Charlotte’s head. He seems to understand. ‘Come with me,’ he says. she trained her dragon! Daenerys Targaryen brings fire and blood as We go to the children’s department where we step over a stuffed toy giraffe. ‘Read she takes on Lannisters this to your sons. It’s a picture book about a rabbit, a duck and a badger who ind in Game Of Thrones The war is coming their friend, a blackbird, dead in the woods. They realise he’ll never ly again, but they each share their dearest memories of him. Children always love stories about I get a kick out of you! Perrie Edwards can't animals.’ I start to thank him but he brushes it off. ‘That’s what I am here for.’ contain her excitement as she cheers on beau Alex Oxlade When I get home, the boys, their hair stiffened by sand and dried rain, huddle Chamberlain at Arsenal against me. I love them so much the way they are now. Two carefree boys tumbling match over each other. I cannot bring myself to disturb their happiness. I put the book 'I love my away. There is still time. imperfections!': Stacey Solomon uploads hilarious bikiniclad * * * * * video championing her 'saggy boobies' and In my half sleep I hear Robbert scurrying through the house. I listen to the familiar 'stretch marks'
sounds while Charlotte nestles in my arm. Late in the evening he is always searching 'There are barriers I for things to inspire him. He browses through books and magazines. hope to break': Heavily pregnant Serena Williams displays her ‘I’m awake,’ I say as he comes into the bedroom. I know he wants to tell me bump in scantilyclad shoot... and discusses something. her child's future
‘I found something important tonight,’ he whispers. ‘A blog about a child somewhere Beaming Megan in America born with the same disease as Charlotte. And here is the most incredible McKenna embraces a pyjama chic look as she thing. He is still alive, at eight years old.’ reunites with leggy best friend Amber Turner for TOWIE night out in I let Charlotte slip out of my arms and sit up. My heart is thumping and suddenly I am Marbella excited about an eight-year-old boy far away on another continent. I want to meet him, look into his eyes. My thoughts scatter in all directions. I try to focus on the SPONSORED implications of what Robbert is telling me. Love the age you are with Clarins Super Restorative ‘So he wasn’t treated, and he survived?’
‘Exactly,’ says Robbert. ‘He went into spontaneous remission.’
I feel like crying and screaming at the same time. I am so energised I could go outside in my pyjamas and run a marathon in my bare feet.
* * * * *
My visits to the hospital are starting to blur. The oncologist examines Charlotte in his 0:00 / 0:00 predetermined routine. I watch him as he studies her skin as if he is trying to decipher a mysterious hieroglyphic. Beauty journalist and YouTube expert Nadine Baggott discusses what mature skin needs (and how to give it the nourishment it deserves).
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'Oh my god how Share skinny!': X Factor's http://www.dailymail.co.uk/home/you/article-4736266/A-mother-explains-refused-treatment-ill-baby.html 4/30 07/08/2017 Pia de Jong on why she refused treatment for ill baby | Daily Mail Online Lucy Spraggan shocks fans with her noticeably slimmer frame after ditching beer and unhealthy food
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Pia with Charlotte in 2015. For the irst year of Charlotte's life Pia was prepared for the worst
‘I must tell you something important,’ I stumble over my words. ‘About a boy in America. His name is Sammy.’
The doctor glances up then bends over Charlotte. ‘He has the same illness but he survived. At least he survived until he was eight…there is a blog but we can’t ind it again, it’s lost in cyberspace. We need to ind out more about him.’
The doctor smiles while examining Charlotte’s delicate feet. A boy lost on the internet does not command his attention. He has eyes only for Charlotte. ‘She does it Pregnant Danielle Lloyd shows off her her way,’ he says when I dress her. baby bump as she cuddles up to baby niece... after confessing It unsettles us that there is still no change in her health. She is such a fragile baby, her fourth pregnancy tired and listless. Sometimes she seems worse, when the blue tumours on her body has been stressful
multiply and I ind them in new places. How long is this going to take? The 'They're f***ing fake!': uncertainty frightens me. I am scared that death will be too rough for my butter ly CBB's Trisha Paytas slams her housemates girl. I am afraid to see her slip away. To be left with her still body, which will no longer in epic tantrum about cling to mine. But mostly I’m afraid of what comes after that, my empty arms. her hunger... before choosing PIZZA over immunity from eviction Before Charlotte I was careless with my time. Now my world has shrivelled to a cocoon in which I hide with her. Time has shrunk. I think in minutes, live in details. I Ant McPartlin's wife Lisa arrives at Heathrow count the beads of sweat on the forehead of my child. I know by heart the number of airport ahead of jetting overseas... as he T-cells in her blood. prepares to 'leave rehab in the next month' Charlotte makes people hold their breath. She confronts them with impermanence. She reminds us that the people we love can leave us just like that. It is a pain we like Val Kilmer prompts to avoid. A child is supposed to hold the promise of a future, making up for the fact new concerns for his health as he pulls out of that we do not live for ever. events at the last minute with vague excuses months after One morning in the hospital, at the end of Charlotte’s checkup, the oncologist puts finally admitting he has his hand on my arm and says, ‘I would like to take a new biopsy, from her foot.’ I’m cancer . not surprised he wants to know more about the stubborn large nodules on her feet. ‘We want to understand what’s going on with the DNA. Maybe this new insight can Working the decks! Rumer Willis DJs in help her.’ Chicago during the 2017 Lollapalooza Music Festival As we peel away Charlotte’s clothes, he listens to her heart, takes her blood pressure She was mixing the tunes and examines her skin. Then he picks up a cotton ball and disinfects her skin. I hold at the festival
her close as he takes her foot in his latex glove. Then he drops his hand. ‘I’d rather Former TOWIE stars not do this…what if I damage something, a tendon, a nerve? I would not forgive Lauren Pope and Mario Falcone look set to myself if she could not walk because of this.’ RETURN to the ITVBe series... as they are spotted jetting out to 19 Slowly I turn to him. For the irst time we do not look away but stare into each other’s Marbella with castmates eyes. The man who holds the key to the health of the sweetest and most delicate NEW ARTICLES Top person in my life, who can read and explain her blood, now tells us what we dared 'Hot felon' Jeremy Meeks relaxes with a not imagine: the possibility that Charlotte might one day walk. cigarette in the sunshine... as he and Share Chloe Green continue to http://www.dailymail.co.uk/home/you/article-4736266/A-mother-explains-refused-treatment-ill-baby.html 5/30 07/08/2017 Pia de Jong on why she refused treatment for ill baby | Daily Mail Online * * * * * flaunt their controversial romance in Barbados ‘The spot on her back has disappeared,’ says Robbert. We are about to bathe her. Curious, I trace the tips of my ingers along her back. The blue place that the midwife noticed when she was born has vanished.
‘This is really signi icant,’ Robbert says. ‘It was the irst and the largest. I do not understand how she did it, but she has overcome this on her own.’ 'Stop giving men trophies for doing the ‘Her skin is cleaner every time,’ says the oncologist. His remarks make me weak with bare minimum': Tess joy. Healing is still too large a word to grasp, but the future becomes less bleak. Holliday hits out at man who went viral with post about his 'curvy wife' Robbert and I wonder if it might be possible that she will get better soon. And she Like father, like son! does. She looks less pale, is not exhausted all the time. Gone is the girl who seems to Former Best Ink host be on the verge of disappearing into her own faraway world. Carefully we make Pete Wentz watches as son Saint, 2, gets plans for the summer. Recklessly we measure her, look at her growth curve and temporary tattoo Got a taste for the inked predict her height and weight. What will she become, later when she is all grown up? life with his dad We still live in a dense fog but occasionally a light shimmers through. No Love (Island) lost Charlotte is better every day, livelier. ‘Her skin is clean,’ the oncologist says after her here! Chyna Ellis brands ex Jonny checkup. He sounds surprised as well as relieved. Charlotte lies on the exam table, Mitchell a 'disgusting' snake in very public her feet paddling in the air. I have been making a game of it by trying to catch her Twitter spat after his toes. ‘The tumours are gone. What we hardly dared hope for has happened. She is in explosive claims she cheated remission.’ Hailey Baldwin hides her model figure under slouchy sweater and baggy jeans for religious conference Laid back look for off duty model
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+4 19 NEW ARTICLES Top Pia and Charlotte today. She is now 17 years old. Photograph: Annaleen Louwes Share Like me, he seems to ind it hard to believe. ‘For good?’ http://www.dailymail.co.uk/home/you/article-4736266/A-mother-explains-refused-treatment-ill-baby.html 6/30 07/08/2017 Pia de Jong on why she refused treatment for ill baby | Daily Mail Online ‘In my profession this is as close as I can give you to certainty. With adults, if after ive years the leukaemia has not returned, we consider them cured. It’s harder to say with babies.’ TH He has never used words like remission or certainty. Five years seems like an OUR 25 ANNIVERSARY unimaginably long time. I do not know if I should be happy, or rather how much WILL DAZZLE YOU happiness I should allow myself to feel. It seems too good to be true. I start to shake so strongly that I hold on to a chair. The doctor puts his arm around me. Tears roll down his cheeks. ‘There were times when I thought she could not handle it, that the disease would take a wrong turn. I’m so proud of her, she really did it her way.’ Megan McKenna is
radiant in vibrant green ©DISNEY *Terms and conditions apply I put Charlotte beside me in the car seat and drive away. Everything is different. I shirt and geekchic glasses as she returns cannot believe that she has healed, that all is well and that one day she will walk on to TOWIE filming in those delicate feet of hers. I know that I will spend the next few years bending over Marbella... after jetting to Nashville her body in search of blue spots, but this is the moment I have been waiting for. I pull over and while I try to calm down I see the hospital in my rear-view mirror. I take Never Say Never Again! Daniel Craig Charlotte out of the car seat and hold her close to me. She smiles. 'signs up for TWO more James Bond movies'... after claiming he'd ‘Charlotte,’ I whisper. I know she 'rather slit his wrists' understands what happened. She has I cannot believe that than reprise 007 role spent a year trying to get better. I rock “ Charlotte has healed, that Love Island's Chloe her in my arms. A year ago, on a hot day all is well and that one day Crowhurst cosies up to former TOWIE star like this, I gave birth to a daughter. A girl she will walk on those Jamie Reed in a we gave the most beautiful name in the skintight pink leather delicate feet midi dress... after 'split' world. Today she is born again, this time ” from Jon Clark in a healthy body. 'Splash!': Christina Milian shares sizzling Charlotte’s blood is still clear. She is now 17 years old. bikini snap of herself emerging from a This is an abridged extract from Saving Charlotte – A Mother and the Power of swimming pool She knows how to make Intuition by Pia de Jong, to be published by WW Norton & Co on 21 August, price waves £12.99. To pre-order a copy for £11.04 until 20 August, visit you-bookshop.co.uk or Casey Batchelor puts call 0844 571 0640; p&p is free on orders over £15 on a VERY busty display as she flaunts her envyinducing figure in a black cutout swimsuit Intense workouts x
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View all EXCLUSIVE 'You are The comments below have not been moderated. holding us hostage!': Jillian Michaels argues with Italian yacht crew Kaia, London, United Kingdom, 4 hours ago demanding 'mafia' money after she paid Glad you said No to chemo. It's a killer. May your daughter lead a long & productive life. Xx company $60k'
Mindy Kaling's family New Comment Reply Click to rate 1 1 remains silent about the actress' mysterious Allison, Oxford, United Kingdom, 10 hours ago pregnancy amid rumors they were hoping for a @Jayley: "To paint doctors as blood thirsty as Charlie's parents have is extremely dangerous for 'traditional marriage and society." Except that they didn't, haven't, most likely, probably even, wouldn't. End of. soninlaw'
Meghan Markle opens New Comment Reply Click to rate 0 3 up on being 'ethnically ambiguous' in candid Upstate, SC, 15 hours ago interview as she enjoys a romantic getaway with Harry in Botswana While this is a nice story, it isn't the reality for most people. I think it's irresponsible to promote this . like it is the new frontier on cancer treatment. Desperate parents could see this and refuse life saving treatment for their children, causing them unknown suffering, because "this woman on the Internet...". This would be the exception, not the rule. Little Mix's LeighAnne Pinnock flaunts her cleavage in a skimpy New Comment Reply Click to rate 10 8 bralet during LA night out... as she is granted a restraining order Jayley, Boston, United States, 14 hours ago against bodybuilder
I agree in the sense that it's fuel for parents who don't believe in medicine and think Louise Redknapp prayer is the answer, but the writer makes it very clear that her child had a very rare form channels androgynous of leukemia to the point where the doctor admitted he didn't know what the best course of chic as she parties into action would be because chemo would have caused suffering and possibly death. If the early hours with pal stories like Charlie's are plastered all over the media then ones like this one should be Daisy Lowe... as Jamie too. A big problem nowadays is a lot of people can't think for themselves and blindly hopes to 'whisk her follow what they read in the media. It's those peoples mindsets that need to change, not away' the stories that are posted. Kylie Minogue cuts a casual figure in a beige Click to rate 8 0 duster jacket and a baseball cap as she Kaia, London, United Kingdom, 4 hours ago enjoys a lowkey night out in London Chemo'therapy'? This is the ONLY treatment offered by our western medicine, that Solo night out radio'therapy'. Both toxic. She took her daughter out in the sunshine, as you can see from photos. Vitamin D deficiency is responsible for some 90% of cancers, that and sugar Lizzie Cundy, 47, consumption. leaves little to the imagination as she shows off her slender Click to rate 0 1 figure and behind in a VERY skimpy caged bikini in Mallorca DottieL, Santa Maria, United States, 16 hours ago
wonderful article, and so happy for this family. Zoe Ball and Nadiya Hussain insist new show The Big Family New Comment Reply Click to rate 10 0 Cooking Showdown is 'different to anything else out there' as they Jayley, Boston, United States, 16 hours ago bemoan Bake Off comparisons The headline of this story made me think it was going to veer off in a completely different direction. I'm glad it didn't. To paint doctors as blood thirsty as Charlie's parents have is extremely dangerous He's a true Belieber! for society. Parents with sick children often cannot think rationally because their first instinct is to Justin Bieber dons floral shorts as he gives fight for their child's life, even when it has been proven there is no hope of recovery or treatment 19 may cause suffering. It is made even worse if the parents have victim complexes. It is refreshing to up weekend to attend see a story where doctors are painted in an honest humanistic way and the Mom decided she did church conference NEW ARTICLES Top not want to put her child through painful treatment that could have maimed her. I am very happy at Has been focusing on his spirituality the outcome for Charlotte! Best of luck to this young lady!
'My dreams have come Share New Comment Reply Click to rate 28 2 true!': CBB beauties http://www.dailymail.co.uk/home/you/article-4736266/A-mother-explains-refused-treatment-ill-baby.html 8/30 07/08/2017 Pia de Jong on why she refused treatment for ill baby | Daily Mail Online including Marissa Allison, Oxford, United Kingdom, 10 hours ago Jade sun themselves in TINY bikinis... and Paul Except that they didn't, haven't, and, most likely, probably even, wouldn't. End of. Danan can't believe his eyes
Click to rate 0 1
Kate908, New Jersey, United States, 17 hours ago
You wrote in the article summary on the home page that this family is from Princeton, NJ, yet the author writes that the 8 year old boy in America was in "another continent," so where was this family living throughout all of this? Does anyone know? I'm just curious because it isn't made clear. Yazmin Oukhellou exudes confidence in a New Comment Reply Click to rate 24 1 chic LBD for TOWIE filming in Marbella... as she steps out for the rayme, manchester, United Kingdom, 17 hours ago first time since getting a nose job A truly wonderful story. It shows beyond all doubt that you should never lose hope and that the treatment can often be responsible for death of a tiny baby. I salute you madam and good luck to ABSolutely ripped! both you and your daughter. Bethenny Frankel, 46, flashes her toned midriff in tiny bikini for New Comment Reply Click to rate 45 3 roadside selfie She has a body of a woman half her age simply irresistible, Amanda, United States, 17 hours ago
Wow dm what a great story. Amazing miracle! 'Looks like he's hiding a frog in his mouth': SpiderMan star Tom New Comment Reply Click to rate 40 3 Holland responds to meme about his red carpet facial mavbebe, Copenhagen, Denmark, 17 hours ago expressions
Maternal instinct took over. Just the way it does in the animal kingdom. Great story Just like Neverland! Paris Jackson gets in touch with her inner New Comment Reply 66 1 Click to rate child at Disneyland... but still makes time for aSwe, Texas, United States, 17 hours ago a cigarette break Magical day The medicine would have killed her. 'We miss you!' Miley Cyrus writes sweet New Comment Reply Click to rate 69 4 Instagram note to her beau Liam Hemsworth
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