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International Bureau for Epilepsy ANNUAL REPORT 2007 International Bureau for Epilepsy: Bureau for Epilepsy: International Annual Report 2007

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International Bureau for Epilepsy ANNUAL REPORT 2007 International Bureau for Epilepsy: Bureau for Epilepsy: International Annual Report 2007 International Bureau for Epilepsy ANNUAL REPORT 2007 International Bureau for Epilepsy: Annual Report 2007 Report Annual Our Vision Our Mission IBE has a vision of the world where everywhere fear and IBE exists to improve the social condition and quality of ignorance about epilepsy are replaced by understanding life of all people with epilepsy and those who care for and care. them. Our Goals Organisation: To provide an international organisation Communication: To promote the facts about epilepsy for national epilepsy organisations and other epilepsy or- and to communicate IBE’s vision, mission and messages to ganisations whose primary purpose is to improve the the widest possible audience. quality of life of people with epilepsy and those who care Education: To increase awareness, understanding and for them. knowledge of epilepsy and to increase awareness, Support: To provide a strong global network to support understanding and knowledge of how best to meet the the development of new members, to support existing needs of people with epilepsy and those who care for them. members to develop to their fullest potential and to Representation: To provide an international and global encourage co-operation and contact between members. platform for the representation of epilepsy in relation to national and international organisations and governments. International Executive Committee 2005 - 2009 Annual Report 2007 Report Annual Back row, from left: Abdulaziz Al-Semari, Vice President Eastern Mediterranean; Mike Glynn, Treasurer; Carlos Acevedo, Vice President Latin America; Nico Moshé, ILAE Secretary General; Shunglon Lai, Vice President Western Pacific; Peter Wolf, ILAE President; Martin Brodie, ILAE Treasurer; Mary Secco, Vice President, North America; Eric Hargis, Secretary General. Front row: Anchor Hung, Vice President South East Asia (inset photo); Athanasios Covanis, Vice President Europe; Zenebe Gedlie Damtie, Vice President, Africa; Philip Lee, Immediate Past President; Susanne Lund, President. International Bureau for Epilepsy: • The International Bureau for Epilepsy is s Non-Governmental Organisation (NGO) in Special Consultative Status on the Economic and Social Council of the United Nations (ECOSOC) • The International Bureau for Epilepsy is in official relations with the World Health Organisation (WHO) 2 Report from the President Another year has already passed and I am very pleased to Members, including announce that IBE is moving forward with many positive articles on medical activities and with a strong determination to change con- issues, reports on best ditions for people with epilepsy worldwide. practice, news from 2007 was an exciting and historic year for the International congresses, and the Bureau for Epilepsy as IBE was formally recognised as latest activities in IBE having Special Consultative Status on the Economic and initiatives and activities Social Council (ECOSOC) in the United Nations. As a in which we work non-governmental organisation with consultative status jointly with the Interna- IBE will be able to contribute to the different programs of tional League Against Epilepsy. the UN and to serve as experts and advisors to governments During 2007 the major redesign of the website, which and secretariats. With 50 million people with epilepsy began in 2006, was completed. The site now offers a worldwide I am happy that IBE has a voice in the world wider range of information, with particular reference to community, that our experiences can be used and high- our regional bodies. The successful redevelopment of the lighted in relevant issues. It is also encouraging for every- website is another crucial element in our efforts to provide one working in the field of epilepsy that the word attractive and high quality information. ‘epilepsy’ is being echoed in the halls of the United Nations. The ILAE/IBE/WHO Global Campaign Against Epilepsy Epilepsy might be a sometimes invisible condition, but is perhaps the longest running joint initiative in which we IBE will not be invisible in the fight against prejudice and are involved. In 2007 it celebrated its 10th anniversary. discrimination of people with epilepsy, no matter where in This is a very visual and widespread activity and IBE is the world they live. grateful to the co-Chairs Philip Lee (IBE) and Giuliano This was also the year when IBE announced the winner of Avanzini (ILAE) who are heavily involved in its direction. the first IBE Volunteer Award, which was presented at However there was a sad moment in the campaign during the General Assembly during the 27th International the year with the death of Leonid Prilipko, who had Epilepsy Congress in Singapore in July. The honourable and worked on the campaign at the WHO. Dr Prilipko was worthy winner was Mrs Margaret Fandiňo-Merz from devoted to his work and to the activities of the Global Colombia. She is one of the many hardworking volunteers Campaign Against Epilepsy. His dedicated commitment who campaign tirelessly to improve the quality of life for facilitated the important link between IBE and WHO in people with epilepsy worldwide. IBE is very happy to maintaining the impetus of the campaign. have the opportunity, through the Volunteer Award, to IBE continued its partnership on a number of interesting highlight the efforts made by those often silent volunteers. projects including the Action Zone! Game and the Freedom The IBE/ILAE Ambassadors for Epilepsy and Social in Mind art competition. These collaborations with UCB Accomplishment Awards were also presented during the Pharma have both been very successful and popular. congress in Singapore and IBE congratulates the twelve new Ambassadors and Dr John Kirker, who received the It is by working closely together on a common idea we can bring change for the many people with epilepsy Social Accomplishment Award. International Bureau for Epilepsy: around the world. By strengthening our network, by in- This was the year when a second round of IBE’s successful creasing contacts and building relationships, by sharing Promising Strategies Program was launched, aimed at experiences and developing new strategies, valuable steps improving conditions in the field of epilepsy in developing will be taken to improve the quality of life for people with countries. The Promising Strategy Program has provided epilepsy and those who care for them. funding for almost twenty exciting projects which focus on capacity building initiatives – both through training I would like to thank all those who have contributed to the programs and advocacy projects. great success of the IBE during the year. I thank the mem- bers of the International Executive Committee for all their Early in the year IBE celebrated the launch of the Regional st time and efforts. IBE’s superb office is also an important Committee Eastern Mediterranean, at the time of the 1 element of an efficient voluntary NGO and IBE is very East Mediterranean Epilepsy Congress in Luxor. IBE now fortunate to have Ann Little as its Executive Director. has seven Regional Committees, matching the WHO regional boundaries. Finally I would like to thank each and every Member of 2007 Report Annual IBE who, both individually and collectively, devotes time IBE also enjoyed great growth in membership in 2007 and energy to the epilepsy movement worldwide and I am with ten new epilepsy associations welcomed as IBE grateful for their great dedication and support. members during the year. This is very encouraging and we look forward to working with these new members over the coming years. The face of IBE is of major importance and I am delighted to note that the IE News, edited by Dr Carlos Acevedo, has Susanne Lund reported on a tremendous amount of global epilepsy President activities and reports in a very attractive way. The maga- zine reflects the great scope of IBE’s work and that of its 3 Financial Report Balance Sheet Year ended 31st December 2007 With comparative totals for 2006 2007 2006 US$ US$ FIXED ASSETS Tangible assets 14,423 11,842 CURRENT ASSETS Debtors and prepayments 185,274 160,038 Cash at bank and in hand 3,055,551 3,139,474 3,240,825 3,299,512 CREDITORS: (Amounts falling due within one year) (1,144,302) (1,223,782) NET CURRENT ASSETS 2,096,523 2,075,730 CREDITORS: (Amounts falling due after more than one year) Deferred Income - (412,202) NET ASSETS 2,110,946 1,675,370 CAPITAL AND RESERVES General reserve 1,324,491 1,300,922 Annual Report 2007 Report Annual Restricted fund 786,455 374,448 2,110,946 1,675,370 International Bureau for Epilepsy: 4 Statement of Income and Expenditure Year ended 31st December 2007 With comparative totals for 2006 2007 2006 US$ US$ INCOME International congresses and symposia 1,793,322 813,684 Commerce and industry 139,295 125,094 Membership dues 18,009 14,133 Investment income 45,709 50,221 Sale of materials 127 247 Other grants 343,801 213,852 Miscellaneous income 2,047 2,483 2,342,310 1,219,714 EXPENDITURE Congress expenditure 1,390,084 729,126 Distribution to Paris Congress - 234,863 Administration pay costs 162,465 114,188 Office expenses 33,108 5,783 Printing and postage 14,159 8,133 Printing and postage - International Epilepsy News 27,111 30,974 Travel 57,327 87,966 International Bureau for Epilepsy: Global Campaign costs 30,000 25,000 Accountancy fees 27,666 10,873 Audit fees 12,000 4,125 Bank charges 2,061 1,027 Rent 29,941 17,945 Promising Strategies Program 30,313 - Depreciation 7,044 6,539 Annual Report 2007 Report Annual Website costs 7,396 2,854 EUCARE costs 300,221 213,852 2,130,896 1,493,248 Currency exchange fluctuations (224,162) (198,419) 1,906,734 1,294,829 5 Income and Expenditure Account Year ended 31st December 2007 With comparative totals for 2006 2007 2006 US$ US$ INCOME 2,342,310 1,219,714 EXPENDITURE (1,906,734) (1,294,829) OPERATING (DEFICIT)/SURPLUS FOR YEAR 435,576 (75,115) Auditor’s Note: All gains and losses have been recognised in the income and expenditure account.
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