Teen Living with SMA Inspires Others to Stay Positive, Dream

INSPIRATIONSCélébrons nos communautés inclusives Celebrating inclusive communities Vol. 10 No. 1

Fall 2017 / Winter 2018 Follow us on Automne 2017 / Hiver 2018 www.inspirationsnews.com Suivez-nous sur Teen living with SMA inspires others to stay positive, dream big By Valentina Basilicata Like many recent high school graduates, Sammy independence for Sammy impossible,” explains his Cavallaro has exciting plans for his future. It’s not mother Rosa Mariani. “He needs to be dressed, fed, surprising the 17-year-old honour student is pursuing rolled at night, scratched, placed in his motorized a business marketing degree at John Abbott College. wheelchair and taken out. Basically everything that Order online This young entrepreneur already has over two mil- you do for yourself on a daily basis, he needs some- lion followers on his sports-related Instagram page one to do for him.” Nevertheless, she adds, he is “al- www.chefoncalldelivery.com (@sickhighlights) and plans to launch a related cloth- ways very grateful for what life gives him,” and there ing line in the near future. What’s Sammy’s secret to is “never a complaint from his lips.” stayingChef motivated? On Call will “My generously motto in life donateis, ‘everyday a portion is of or call a goodthe proceedsday,’” he says. from each Donator Burger sold inThough his parents were told he would not live past December to Inspirations the age of two, and despite undergoing major sur- Sammy was diagnosed with spinal muscular atrophy gery to correct a debilitating spinal scoliosis, Sammy (514) 844-2044 (SMA) at nine months. This genetic motor neuron continues to thrive and succeed both academically disease affects the part of the nervous system that and socially. controls voluntary muscle movement. “SMA makes Read the full story on page 14 of this edition... Inside this edition

From the House with MP Mike Lake Page 3 Technology Feature Pages 25, 26, 27 L’été des premières fois avec un enfant autiste Page 8 The Transforming Autism Care Consortium Page 28 Autonomy Preparation Program at John Grant High School Page 10 The Quebec Angelman Syndrome Foundation Page 30 The Cavallaro family celebrate at Breaking isolation, one hearing aid at a time Page 16 Seeing vision loss through a humorous lense Page 33 Sammy’s graduation ceremony. Canada Shriners Hospital patients #CutTheBull Page 23 Adapted Travel with Mike Cohen Pages 34, 35, 36 (Photo credit, Cavallaro family)

Chef On Call will generously donate a Order online www.chefoncalldelivery.com portion of the proceeds from each Donator Burger sold in December to Inspirations or call (514) 844-2044 Fall 2017 / Winter 2018 - INSPIRATIONS 2

#YCCTikvah KOULEINU YACHAD: WE ALL BELONG Family Camp �� Private family cabins • All meals included • Activities • Parent peer nights �� the unique opportunity to experience the magic of summer camp �� INCLUSION SERVICES �� Children, Teens & Young Adults

SUNDAY FUN IN THE GYM/SWIM 4 - 12 years Ride for Special Needs! LEGO BUILDING 4 - 12 years SENSORY ART 4 - 12 years September 16, 2018 YCC DAY CAMPS (SPECIAL NEEDS SPECIALTY) 4 - 12 years MULTIMEDIA CLUB 16 - 25 years CHAVERIM (LEADERS) 20 - 35 years Adults

CLUB RENDEZ-VOUS DROP-IN CENTRE 18 years + KOULEINU YACHAD: WE ALL BELONG 16 years + MISCHAKIM (LEISURE AND LIFE SKILLS) 30 - 45 years SUNDAY LEISURE TIME 50 years + FAMILY OUTREACH PROGRAM VISUAL ART FOR ADULTS 20 years + • MIXED MEDIA 60 km • OPEN STUDIO 100 km

INFO: 514.737.6551 #YCCTikvah Family Camp ext. 267 �� Y Cycle for Special Needs �� Marlene & Joel King Special Needs Department ext. 235 �� Y Cycle for Special Needs ext. 228 ��

Inspirations - full page - 10.375” x 10.167” Fall Sept 19, 2017 3 Fall 2017 / Winter 2018 - INSPIRATIONS

Mike Lake and his son Jaden FROM THE HOUSE presenting at the Canadian with MP Mike Lake ASD Alliance (CASDA) Summit in Ot- Jaden: A partner in life, love, tawa in March, 2015. (Photo adventure and advocacy courtesy of CASDA) By Hayley Chazan OTTAWA -- It was a cold Alberta day be- he’s sad, he cries, when he’s happy, autism and have tween Christmas and New Years when he giggles, when he’s nervous, he gets largely the same Mike Lake stopped for takeout at the shaky. His innocence is what makes him life expectancy McDonalds in West Edmonton Mall beautiful.” that everyone else with his then nine-year-old autistic son has,” said Lake. “Who’s going to be with life is like and what this funding means Jaden. There were over 70 people in line A father and an advocate them when we’re no longer around?” to our families and our loved ones with and more employees than usual serving Ever since he was elected as the Member autism,” said Lake. the holiday-crazed crowd. of Parliament for Edmonton-Wetaskiwin In order to make that unthinkable tran- in 2006, Lake has been a dedicated and sition easier for autistic kids and their What’s next? Normally, when Lake takes his son on powerful advocate for autistic children families, Lake believes that more needs Together, Lake and Jaden will continue outings, he keeps a tight grip and a close and their families. Lake says that when to be done to put into place the proper to spread their message of hope. Jaden watch. But this time, Lake’s hands were people think about autism, it’s impor- societal structures to support individuals recently transitioned out of high school full and Jaden took off. “He had a smile tant to consider the multitude of hurdles with autism. and is now enrolled in a program called on his face and I knew I was in trouble,” families encounter across the lifespan. “Quest for Independence” in Edmon- Lake recalled lovingly. Like many conditions, early evidence- In 2015, Lake helped launch the Ca- ton, where he is learning important life based intervention is key to unlocking nadian Autism Partnership. The vision skills to prepare him for the future. Squealing with excitement, Jaden ran potential. behind the partnership was to establish in front of everyone waiting in line and a network of experts to advise govern- Meanwhile, Jaden continues to find new ducked behind the counter, pushing the But the challenges don’t end there. ments in different jurisdictions on evi- ways to overcome every day challenges. workers out of his way. “He grabbed a Navigating the education system can be dence-based policies. Early interven- His journey as an advocate is just be- handful of crushed Smarties right out of difficult and supports vary between ju- tion, education, housing, vocation and ginning. “Jaden regularly gives us new the bin and shoved them in his face,” risdictions. In many cases, schools can transitions at different life points topped stories to share with people and it’s Lake said. “That’s Jaden. He sees Smart- make accommodations for kids with their list of priorities. The group of ex- pretty cool to have the platform we have ies, he wants Smarties and he goes and autism to stay in the education system perts determined that in order to carry to really meaningfully impact people’s gets them.” a few years longer. Jaden was in high out their work, they would require a lives,” said Lake. “It’s been a blessing to school until his 21st birthday and had $9 million investment over five years. be able to walk this journey with him.” Jaden, now 22, is unable to converse the opportunity to work in the school through words. Lake describes him as library. The current government has made Hayley Chazan is Inspirations’ Ottawa a three or four-year-old trapped in the mental health care a priority in its new bureau chief. A graduate of Carleton’s body of a young adult. Emotions are But by far the biggest challenge facing health accord. Specific commitments Master of Journalism program, she cur- particularly challenging for him and families and caregivers of individuals to support Canadians with autism have rently works in communications for a he has trouble navigating the abstract. with autism is: “What happens when not yet been announced. “Regardless of national non-profit organization. “Many people go through life wearing we’re gone?” party, what we need to do to move the masks, trying to hide what makes them ball forward is to respectfully reach out k human,” said Lake. “Not Jaden. When “Kids with autism turn into adults with to our elected officials and explain what Fall 2017 / Winter 2018 - INSPIRATIONS 4

Offering bilingual service to children and teens with special needs including Autism, ADHD, PDD-NOS, and Global Developmental Delay.

Strengthens self-confidence, social skills, concentration and perseverance Therapeutic benefits of belonging to a group Small groups with skilled trainers Fun while developing motor skills and body awareness Improves sports skills Safe, secure environment for your peace of mind

www.prosetautism.ca Philippe Manning, B(Psych). ABA. (438) 321-1564 [email protected]

Social Integration Services (SIS) MORE English services! Life after High School for Adults with Learning Disabilities For adults experiencing adjustment di culties of a psychological, intellectual, social or physical nature, we help build their autonomy skills. Included in the curriculum from the Ministry of Education, individualized plans and a personal approach for the needs, abilities and potential of each student are oered.

Development and learning of: • domestic, personal and social skills • making shopping lists • preparing meals • cleaning • understanding healthy nutrition • banking • managing time and personal items • developing academic skills • AND MORE! If you have a loved one who would be eligible for our program or know of someone please contact us to make an appointment.

CDC VIMONT | 2100, boul. des Laurentides, Laval (Québec) H7M 2R5 450 688-2933 ext. 3141 5 Fall 2017 / Winter 2018 - INSPIRATIONS The Dynamic Funds Teacher of Inspiration 2017 The Dynamic Funds teaching team, with Rivky Hendel, Shauna Teachers of Inspiration: May, Jennifer McLeod, Samantha Honouring Team Yaldei Smith, Chaya Sil- ber, Tina Haggarty, By Cindy Davis Sonja Washer, and Risa Plotnick, When Risa Plotnick, director of School says Plotnick, has allowed the students director of School and Rehabilitative Services at the Don- and staff to feel more at home in a natu- and Rehabilitation ald Berman Yaldei Developmental Cen- ral school environment, complete with Services. (Photo tre tried to decide which school teacher a gym, a schoolyard and plenty of space credit, Yaldei) to nominate for the Dynamic Funds and natural light. Teacher of Inspiration award, she had crying, and I thought ‘Oh my G-d some- trouble choosing – so she nominated The school’s transdisciplinary and col- thing happened,’’’ says Plotnick. “I went them all! Plotnick felt that the teaching laborative approach to education en- out, and there she was, walking down staff work so closely as a unit, it would ables each teacher to run their own the hallway, and the teachers were just be most fitting to nominate them as a classroom, while working closely to- crying tears of joy for this child.” INSPIRATIONSInspirations is produced by the group. gether to develop individual education Communications and Marketing Division and the plans for each student in the school. The Washer notes that while the special Student Services Department of the “It was hard to choose. So we nomi- teachers also work closely to develop education profession can be emotion- English Montreal School Board nated the entire teaching team from last school programming based on the really draining, the rewards are profound. and distributed across the Greater Montreal, Laval-Laurentians and South Shore areas. year,” says Plotnick proudly. “We have a search and interests of the teachers, in- “Some of these parents have been told very passionate and dedicated staff that cluding a new dance program, and art that their child may never walk or talk Editor really tailor the program to suit each therapy. (by other institutions). But the teachers, Mike Cohen student’s needs. We also work closely therapists and staff at Yaldei see it as Managing Editor and with the parents because we want the Sonja Washer is proud to be the head though there are no limitations for these Coordinator of Operations skills taught to translate into the home. teacher of this dynamic team and says children. We’re creating opportunities Wendy Singer The transdisciplinary approach we use that the level of energy that the group for these children.” is very unique.” brings to the table is what makes them Layout & Design With a 100 percent increase in enrol- Nur Erdem Dynamic Funds is one of Canada’s most recognized asset ment in recent years, room for more in Consulting Editors management firms. We offer a comprehensive range of products and the new building, and having recently Lew Lewis, Julie René de Cotret services, spanning every major sector, geographic region and investment been granted the autism code by the discipline. Dynamic’s actively managed investment solutions add value ministry of Quebec enabling them to of- Copy Editors Elaine Cohen, Randy Pinsky, Fay Schipper to a wide variety of accounts, including fee-based, tax-advantaged, and fer a curriculum for children on the au- customized high-net-worth programs. tism spectrum, the hard working teach- Sports Editor ers at Yaldei look forward to changing Daniel Smajovits the lives of many more families in the The winning team includes last year’s so effective, as well as how closely they near future. Says Plotnick, “We have this Coordinator of Educational Outreach core teaching team of Tina Haggarty, function as a team and how genuinely belief that each child has an untapped Linda Mahler Rivky Hendel, Shauna May, Jennifer they care about their students. “The way potential and that our job is to unleash McLeod, Chaya Silber, Samantha Smith the teachers support each other is re- Special Advisors it.” Joanne Charron and head teacher, Sonja Washer. Plot- ally what makes them so special,” says Nick Katalifos nick notes that the assistant educators, Washer. “Seeing a child walk for the first Yaldei offers a range of profession- therapists and support staff as well as time and having the staff there to sup- Ottawa Bureau Chief al services including, occupational Hayley Chazan new teachers on the team are all highly port the child is so special. For our stu- therapy, physiotherapy, speech therapy, deserving of an award as well. dents, even small accomplishments are Applied Behavioural Analysis, social Advertising & Sponsorship huge milestones so really being able to Rikee Gutherz-Mado groups, creative therapies and parent Leonard Rauch The Donald Berman Yaldei Develop- witness those and share in those accom- training which is an integral part of Yal- mental Centre also has a specialized plishments is amazing.” dei’s programs. For information contact Administration Carole Gagnon school for children with mild to pro- [email protected]. found intellectual disabilities and au- Plotnick recalls one particular student tism, and runs from pre-k to secondary who was unable to walk and with Phone: (514) 483-7200, ext. 7244 Fax: (514) 483-7213 1. The school, which used to be located whom the staff was working tirelessly E-mail: [email protected] on the 5th floor of the Queen Elizabeth for months in the hopes that she would Website: www.inspirationsnews.com Medical Centre, relocated last year to gain some mobility. “All of a sudden, the former premises of JPPS at 5170 Van one day last year I was sitting in my of- 6000 Fielding Ave. Suite 109 Horne in Côte-Des-Neiges. The move, fice and I heard people screaming and k Montreal, Quebec, H3X 1T4 Fall 2017 / Winter 2018 - INSPIRATIONS 6

Notebook By Wendy Singer

On August 23, 2017, Temple Emanu- Last year, Montreal artist and photog- Amihod, most particularly the profound El-Beth Sholom in Westmount held a rapher Solli Amihod learnt about I Can connections he developed with his pro- ceremony to inaugurate their new in- Dream Theatre, and, like for most of tégés. The feeling was mutual. As Gerin- door access ramp. This project comple- us, it was love at first song. He donated Lajoie said, “I like being with Solli. He’s ments the outdoor ramp that they con- paintings to their gala event, but knew an awesome guy.” Po enjoyed the expe- structed in recent years. The ramp took that he was destined for a greater col- rience of painting: “It encourages and four years to build, from inception to laboration. Amihod invited the cast to inspires me to express myself.” reality. According to Stephen Yaffe, past explore their creativity further through president and chair of the capital cam- visual arts. Five of the “Dreamers” ac- paign, constructing the ramp required a cepted his offer, excited to try their hand considerable amount of planning, reno- at another art form. vation work, and funding. Susan Greenberg, president, Arlene Fels, Rabbi Lisa Grushcow, and Denise Amihod mentored the budding artists in This project was made possible in part Grossman, past president, at Temple his studio from January to May. As their through the generosity of Arlene Fels Emanu-El Beth Sholom. talents emerged, his admiration grew and her late parents, Sybil and Jack Fels, (Photo credit, Barbara Peisajovich) even deeper. On August 6, Maxwell Po, as part of the Temple’s capital campaign. Michelle Perron-Elgee, Alexis Gerin- Fels is a Montrealer who, since retiring, expressed the importance of always mak- Lajoie, Diego Noya, and Jasmine Gee- has devoted herself to helping others by ing sure that you’re doing the best pos- Silverman exhibited over 30 abstract Maxwell Po, Jasmine Gee-Silverman, Solli giving back to organizations that she sible job for yourself and your commu- paintings at Gallery 5275 on Ferrier Amihod, Michelle Perron-Elgee, Alexis values and have made a difference in nity. “In a sacred space like this Temple, street in Montreal. Gerin-Lajoie at Gallery 5275. Missing her life, including Agence Ometz, the it is important that we keep the bar high,” from the photo is Diego Noya. Miriam Foundation, and the Mackay said Grushcow, acknowledging Fels’ gen- The experience was fulfilling for (Photo credit, Cathy McDevitt) Rehabilitation Centre. erosity and the hard work of the Temple’s Inclusion Committee. This project was While unveiling a plaque commemorat- also funded by the Government of Cana- Guitar coach, musicologist, and organizations. “We’re giving students ing Fels’ donation, Rabbi Lisa Grushcow da’s Enabling Accessibility Fund. founder of Sharing Music Unites Us™, with challenges something to smile Artist JAYE is sharing his deep love and about while helping them develop key talent for music with as many children life skills through learning to play mu- Tony Fraschetti sic,” states JAYE. from McDonald’s West Island, Lyne On September 7, JAYE visited Crestview Charlebois, Gail and Elementary School of the Sir Wilfrid Frédéric Cassir, own- Laurier School Board in Laval. For one ers of six McDonald’s joyful hour, he entertained the students restaurants, Jeremy with his electric and acoustic guitars, Hampson, Pierre played various forms of music and ex- Frégeau, Natalie plored how music creates a mood. Stu- Chapman, Diane dents clapped and sang along. Principal Gibb, and Liam of Crestview Aimee-Elizabeth Parsons Chapman. was delighted to share this inclusive (Photo credit, WIAIH) event with her students, and that all could participate at their own level. The KIZMET Centre was the recipi- With the WIAIH’s (West Island Associa- ents of this year’s annual McHappy tion for the Intellectually Handicapped) On each community visit, JAYE do- Day at six West Island and Saint-Lau- decades of expertise in helping vulner- Principal of Crestview Elementary nates one or more guitars and les- rent McDonald’s locations, all owned able families, the KIZMET Centre will School Aimee-Elizabeth Parsons, stu- sons to students. The lucky recipient by Gail and Frédéric Cassir. One dol- serve all West Island families and their dent Julian, and Artist JAYE after a at Crestview was Julian, an appropri- lar from each Big Mac, Happy Meal, babies, toddlers and preschoolers un- performance at Crestview Elementary ate winner due to his love of music. and hot McCafe beverage sold was do- der the age of six. Planned services in- School. “Music transforms people’s lives for nated to building KIZMET – the West clude infant stimulation, early literacy, the better,” shared JAYE. “Our students as humanly possible. When he was a Island’s new non-profit family resource parent-child drop-in, support groups benefit enormously by playing an in- young boy, JAYE picked up the guitar centre and community hub. Amazing- and information sessions. By building strument.” For information on how to and realized that music helped him ly, McHappy Day raised $51,297 for the new KIZMET Centre, WIAIH will bring Artist JAYE to your school, visit cope in difficult times. For the past five KIZMET. now be equipped to service all local www.SharingMusicUnitesUs.com. years, he has volunteered his time by families with young children. performing at schools and community 7 Fall 2017 / Winter 2018 - INSPIRATIONS

Notebook By Wendy Singer

After 21 years as Director of WIAIH, Chapman leaves WIAIH with a “tran- Spider-Man rappelled down a building in Natalie Chapman has retired. She was quil mind” knowing that her successor downtown Montreal on September 26 as celebrated on October 2 at a retirement Lyne Charlebois, past coordinator of the part of the Société des enfants handicapés party at Chalet Arthur-Seguin in Pointe- Pat Roberts Developmental Centre, will du Québec’s Drop Zone fundraiser, which Claire. Over 200 people attended this capably step into the role of director at raises funds and awareness for disabled warm celebration, where parents and WIAIH. children in Quebec. their children, WIAIH members, community leaders, board members, and Marla Spider-Man was not the only celebrity on local politicians, including Mayor Newhook, hand. Local media stars including Jason Morris Trudeau, came together to cel- Natalie Rockman from CHOM FM, and gold medal Chapman, ebrate Chapman’s work. Both Clifford sprinter Bruny Surin raised funds and rap- Brothers and Lisa Lincoln and MP Francis Scarpaleggia pelled down the 23-story Industrielle Alli- Frédéric and shared words about Chapman, WIAIH, Walsh ance building on McGill College Avenue. Alexandre and their visionary project, KIZMET. celebrate Bilodeau at Natalie’s Olympic gold medal skier Alexandre rappelled down Singer Lisa Walsh and accompanist retirement Bilodeau and his brother Frédéric in his the Industrielle Richard Bastien entertained with ren- party. wheelchair, were the real superheroes. Alliance building. ditions of Fly Me to the Moon and (Photo They rappelled side-by-side, encouraging Dream a Little Dream of Me. Artist Lena credit, each other on the long way down. Come- Baldoni presented a portrait of Tommy dian Michael Lifshitz also rappelled the Chapman as a retirement gift. Bosa) high-rise in his wheelchair.

On October 1, over 700 people participated in the Friendship The American Academy for ily. Frank Gavin of the Citi- Circle’s Walk4Friendship at the Old Port. The organizations’ big- Cerebral Palsy and Develop- zen Engagement Council at gest event was a huge success, with activities to entertain all, from mental Medicine (AACPDM) CHILD-BRIGHT presented face painting to a reptile zoo, circus acts, scooter racing and carni- recently brought medical and on defining roles, the patient val games provided by Everblast Play Company, and of course, the research teams from around as case manager, and collab- walk. The Walk4Friendship raises funds and awareness for chil- the world together in Montreal orative engagements between dren with special needs, and promotes the power of inclusion and for their annual conference. patients and researchers. the value of a community coming together for the benefit of those in need. Together, over $436,000 was raised. These funds will en- On September 16, AACPDM Over 700 people came out to the hance the Friendship Circle’s weekly and seasonal programs, and hosted a free community forum Walk4Friendship in Old Montreal. provide the opportunity for many more friendships to bloom for for family members, caregivers, (Photo credit, Rocha Photography) young people with special needs. and individuals with cerebral palsy and other childhood- Chef On Call is a food concept for students, young This year alone, The Donator Burger has raised more onset disabilities. Attendees professionals, and anyone who desires convenient, than $5,000 for local charities. Chef On Call looks enjoyed an afternoon of net- home-style fresh comfort food at an affordable price. forward to its continued work with the Montreal working, learning from an ex- “We understand how hard it is for people to find time community. pert advocacy panel, and vis- to cook a meal in their busy lifestyles. That’s where iting with local vendors. New we come in. We make great food and we dedicate To order The Donator, visit www.chefoncalldelivery. research and medical advances ourselves to exceptional customer service,” says com, use the mobile app, order online, or call to or- on cerebral palsy and other Gabriel Malbogat, one of Chef On Call’s co-found- der at (514) 844-2044. Make sure to ask what’s on childhood-onset disabilities the Donator Burger as toppings change every month. ers. were exchanged with families. Chef On Call delivers throughout downtown Mon-

Each month, Montreal’s gourmet food delivery ser- treal, reaching as far as Westmount, St. Henri, Old vice donates its charitable burger called “The Dona- Montreal, the Plateau, Mile End, and most of NDG. Dr. Peter Rosenbaum, profes- tor” to a different cause. For each burger sold, Chef sor of Paediatrics at McMaster On Call contributes two dollars to the cause of the Thank you for your University in Hamilton, On- month. support, and awesome tario, Canada research chair burgers, Chef On Call! in Childhood Disability and JoAnne Mosel and Dr. Peter Chef On Call is teaming up with Inspirations this De- co-founder of the CanChild Rosenbaum at the communi- cember. Mark your calendar - it’s time to enjoy The Centre for Childhood Disabil- ty forum at the The American Inspirations Burger! “We are thrilled to finish off the ity Research engaged attendees Academy for Cerebral Palsy year strong with Inspirations,” says Malbogat. “It’s a Enjoy an Inspirations with his presentation on the and Developmental Medicine burger that gives back and it’s the least we can do for Burger in December “F words”: Fun, function, fu- Conference in Montreal. the community that has been so good to us over the with Chef On Call! ture, friends, fitness, and fam- (Photo credit, JoAnne Mosel) past nine years.” Fall 2017 / Winter 2018 - INSPIRATIONS 8 L’été des Le Support : une premières fondation fois avec un pas comme les autres enfant autiste Par Alain Mongrain

Par Emmanuelle Assor L’année 1988 revêt une importance l’agrandissement d’édifices; particulière pour les personnes con- • De réaliser d’importants projets cernées par la déficience intellectu- d’inclusion sociale; L’auteure et son fils qui profitent d’une elle. Une fondation entièrement con- • D’acheter des équipements spé- belle journée d’été. sacrée à cette cause est mise sur pied cialisés; Notre fils autiste aura bientôt huit ans. par l’Association du Québec pour • D’installer des structures de jeux Huit ans déjà qu’on le regarde évoluer, préparatifs : pictogrammes et photos du l’intégration sociale (AQIS). Ainsi, la adaptés; grandir, trouver sa voie. Huit ans aussi lieu où nous irons avec un déroulement Fondation québécoise de la déficience • De financer des activités de que nous avons renoncé aux longs vo- de la journée pour diminuer l’anxiété intellectuelle (FQDI) voit le jour. Son loisirs, de sports, de culture et des yages, activités de groupe et sorties engendrée par trop de nouveauté. Une nom deviendra Le Support – Fondation voyages éducatifs; sociales. Un long chemin souvent ardu, fois sur place, trouver ce qui l’intéresse de la déficience intellectuelle en 2013. • De financer des camps de av - parsemé de surprises et de découvertes. le plus et le laisser découvrir le plaisir Elle opte pour la collecte de vêtements cances, des centres d’intégration de faire quelque chose qu’il aime (autre et d’articles usagés afin d’amasser des et des maisons de répit. Cet été, après de nombreux étés à ne que de regarder son iPad!). fonds, une idée originale doublée d’un rien faire par peur des crises terribles que souci de protection de l’environnement. Depuis ses débuts, Le Support a remis la nouveauté provoque chez lui, nous Ce jour-là, il a passé son temps à se 18 millions de dollars pour favoriser avons décidé d’innover. Nous sommes baigner dans une immense rivière à En quelques années seulement, la FQDI une meilleure qualité de vie, une meil- allés au cinéma « normal », celui qui vagues sur une bouée gonflable avec est en mesure d’aider son association- leure inclusion et une meilleure inté- est pour tous, que l’on regarde dans le l’un de nous deux, puis tout seul, com- mère et plusieurs organismes oeuvrant gration des personnes vivant avec une noir et en silence. Dès que les lumières me un grand. La seule crise - que nous auprès des personnes vivant avec une dé- déficience intellectuelle partout au se sont éteintes, mon fils a commencé à n’avons pu éviter - est souvent celle ficience intellectuelle. Pour les familles, Québec. parler à voix haute. Puis il m’a demandé du départ, car il faut mettre un terme à pour les personnes vivant avec une DI, mon cellulaire pour regarder des vidéos, toutes choses, même les plus excitantes. pour les organismes, les aides financières probablement pour se rassurer. Ensuite, octroyées constituent un soutien inesti- Vers de nouveaux les cris ont suivi puis les « chuuuuut » Enfin, la plus belle expérience de l’été mable. Du jamais vu dans bien des cas! horizons se sont mis à fuser de partout dans la fut de louer un chalet avec une grande salle. Nous sommes sortis en panique et piscine. À la campagne, notre fils lui avons alors donné deux choix: quit- était détendu. Sa plus grande passion : Vive l’inclusion et À l’aube de ses 30 ans, Le Support ter les lieux (et ne pas voir le film Cars nager, ce qu’il pouvait faire à sa guise. procède à un virage important pour as- 3 qu’il voulait tant voir) ou revenir dans Le calme de la nature lui fait du bien l’intégration! surer sa pérennité et lui permettre de la salle en silence. Nous sommes re- comme la plage qu’il a découverte l’an mieux remplir sa mission sociale. Pour tournés nous asseoir au dernier rang, et dernier. L’eau semble avoir un effet bé- Parent pauvre du système de santé et la première fois de son histoire, la Fon- à ma grande stupéfaction, nous sommes néfique sur lui et sur la majorité des en- des services sociaux, la déficience intel- dation organisera des activités philan- restés jusqu’à la toute fin. fants ayant des troubles de développe- lectuelle ne fait pas l’objet d’un finance- thropiques afin d’amasser des dons en ment et sur nous, si contents de le voir ment très important et très soutenu. argent. Nous accroîtrons nos activités Échec ou succès? Tout est une question ainsi épanoui. Le fardeau repose sur les parents et de communication afin de hausser de perspective. À force d’éviter d’être en les organismes leur venant en aide. notre visibilité et notre notoriété. La public avec un enfant qui crie ou pleure Après La Ronde, le parc aquatique de La présence et le soutien de la Fonda- cause de la déficience intellectuelle fort, nos vies sont devenues ennuyeu- Saint-Sauveur et la luge au Mont Trem- tion Le Support vient donc permettre mérite que l’on fasse tous les efforts ses. Impossible d’être spontanés car la blant, je conclus que malgré les crises d’améliorer la quantité et la qualité des pour bien la servir. spontanéité n’est pas le fort des autistes! imprévisibles, le jeu en vaut la chan- services offerts. Mais que faire devant tant de rigidité? delle. Les apprentissages du quotidien Pour plus de renseignements, visitez Accepter des routines contraignantes se font ainsi en essayant de nouvelles Les aides financières accordées par Le www.lesupport.ca. alors que la vie est pleine d’imprévus? choses, en étant frustré parfois et ravi Support ont permis notamment : d’autres fois. C’est sûr qu’il faut s’armer Alain Mongrain est le directeur des Après trop de renoncements, j’ai décidé de patience, mais quel plaisir est plus • De promouvoir et de défendre les communications, Le Support – Fonda- cet été de faire des nouvelles choses. grand que celui de voir son enfant heu- intérêts des personnes vivant avec tion de la déficience intellectuelle. Direction donc vers le parc aquatique reux? Pour l’instant, je ne l’ai pas trouvé. une déficience intellectuelle; k de Jay Peak. Avec un enfant « neuro- • De faciliter la construction de loge- typique », cela signifie beaucoup de k ments adaptés, la rénovation ou 9 Fall 2017 / Winter 2018 - INSPIRATIONS L’ÉTAPE : célébrons 40 ans Spina bifida : au service des personnes prévention d’abord! en situation de handicap Par Mickaël Dulin Par Emmanuelle Assor C’est en présence de 80 invités que la Lors de la vidéo-conférence orga- gimes; si vous ne mangez pas de vi- direction de L’ÉTAPE a célébré à Montré- nisée par la fondation OVO au prin- ande ou peu de produits enrichis; si al le 25 mai 2017 ses 40 ans d’existence temps dernier, la nutrionniste Mylène vous avez eu plusieurs fausses couches au service de l’intégration des personnes Duplessis-Brochu nous a fait part ou si dans la famille il y a des antécé- en situation de handicap sur le marché de ses conseils et recommandations dents de malformations, de maladie du travail, lors d’un événement qui s’est pour éviter des malformations du céliaque, d’épilepsie, etc.). tenu à l’Institut Raymond-Dewar. directeur général de L’ÉTAPE, M. Fran- tube neural lors d’une future gros- çois Huard. sesse. Dans tous les cas, ne pas craindre de Étaient présentes à l’événement, de prendre de trop grandes doses d’acide nombreuses personnalités qui appuient À propos de L’ÉTAPE Première chose à savoir concernant folique car il est hydrosoluble et ex- l’organisme dont, entre autres : Hélène le spina bifida : il s’agit d’une mal- crété par l’urêtre. Par contre, il n’est Laverdière, députée fédérale, Laurier- Avec ses bureaux à Montréal et à Laval, formation des nerfs dans la colonne pas recommandé de doubler la dose Ste-Marie; Michel Nadeau, président l’organisme L’ÉTAPE, subventionné par vertébrale (dont la conséquence la de supplément prénatal car certaines du CA de L’ÉTAPE; François Huard, Emploi-Québec, répond aux besoins plus connue est le spina bifida) et ce vitamines ne peuvent pas être prises en directeur général de L’ÉTAPE; ainsi des personnes en situation de handicap risque de malformation arrive lors des trop grande quantité (une surconsom- que de nombreux représentants des qui habitent l’île de Montréal et l’île de premiers jours de grossesse. Selon mation de vitamine A peut avoir des organismes, tels que Emploi-Québec La- Laval, en offrant des services gratuits en Mylène, le manque d’acide folique effets non bénéfiques). val et Montréal, la commission scolaire matière d’employabilité. Leur intégra- joue un rôle prépondéral dans la sur- Parler à votre médecin est le mot de Montréal, la commission scolaire de tion se fait dans différents domaines : venue de cette problématique. d’ordre! Vu qu’il est impossible de ren- Laval, le CIUSSS Est de l’Île. administration et commerce, manufac- verser une malformation : prévention turier, santé, sciences humaines et soci- Mylène conseille donc à toutes les et efforts en début de grossesse sont e L’ÉTAPE a présenté lors de son 40 anni- ales, les nouvelles technologies, etc. Ces femmes en âge de concevoir de pla- essentiels. versaire son nouveau logo. Le précédent services sont offerts en français et en an- nifier leur grossesse en prenant des datait de plusieurs années et la direction glais, et pour les personnes sourdes ou vitamines prénatales qui contiennent, Enfin, il est évident que de dévelop- a décidé de profiter de cet évènement malentendantes, l’organisme privilégie entre autres, de l’acide folique. Mais per de saines habitudes alimentaires, afin de faire peau neuve et de dévoiler la langue des signes (LSQ/ASL). où trouve-t-on de l’acide folique? avant, pendant et après la grossesse est un concept plus actuel. Naturellement, il existe dans certains une bonne chose. Avoir une alimenta- Chaque année, plus de 700 personnes légumes verts (asperges, épinards, tion équilibrée, en suivant le guide ca- Le concept du logo est que le « E » en participent à nos activités. Plus de 75 brocolis) et dans les légumineuses nadien d’alimentation, est important. forme d’escalier représente les étapes, pourcent de ces personnes développent (lentilles, pois chiches, haricots) et on Dernier conseil (valable pour tous) : le cheminement qu’un chercheur leur employabilité et intègrent ainsi le en retrouve aussi dans les oranges et mieux vaut manger régulièrement des d’emploi doit effectuer avant d’intégrer marché du travail. les produits enrichis (farine blanche, petits repas pour éviter la nausée et la un emploi. pâtes blanches, farine de maïs). fatigue. Une collation aux 3-4 heures Mickaël Dulin est chef d’équipe chez Cependant, 75 pourcent des femmes aide à fournir des glucides et proté- « Depuis maintenant 40 ans, L’ÉTAPE vise L’ÉTAPE. qui désirent avoir un enfant ne con- ines et surtout d’attendre le prochain l’intégration professionnelle et le main- somment pas assez d’acide folique repas. Lorsqu’une femme est enceinte, tien en emploi des personnes k par leur alimentation seule. elle devrait manger 2 fois mieux et non en situation de handicap. Au deux fois plus! cours des cinq dernières an- C’est pourquoi Santé Canada recom- nées, à nos bureaux de Mont- mande de prendre des multivitamines Pour plus de renseignements sur ce réal et Laval, 3 542 personnes prénatales en amont de la grossesse sujet, consultez le site de la Fondation ont eu recours à nos services pour prévenir les carences et di- OVO : www.cliniqueovo.com. pour de l’accompagnement minuer les risques de donner nais- vers l’emploi, le renouvel- sance à un bébé de petit poids. Lors Emmanuelle Assor est une journaliste lement d’un CIT ou pour un de la grossesse, les femmes peuvent particulièrement touchée par la cause maintien à l’emploi. Ces don- faire une transition vers des vitamines des enfants aux besoins spéciaux, étant nées confirment l’importance adaptées et il est fortement conseillé elle-même la mère d’un garçon ayant de maintenir et de développer de consulter un médecin pour tout un TSA. des services de haute qualité besoin particulier (par exemple, si répondant aux besoins de Les équipes de L’ÉTAPE de Montréal et de vous êtes une femme qui fume beau- cette clientèle », mentionne le Laval. (Crédit photo : Louis-Charles Dumais) coup ou qui a longtemps fait des ré- k Fall 2017 / Winter 2018 - INSPIRATIONS 10 dence and career devel- Autonomy Preparation Program (APP) opment. equips students with tools to pursue APP offers practical work expe- productive lives By Elaine Cohen rience. Stu- dents learn Just as former U.S. Secretary of State education classes. “We have enjoyed they staged transitioning fairs at various how to prob- Hillary Clinton alluded to the African teaching all age groups but with the 18 EMSB venues. They also maintained ties lem solve in proverb “It takes a village to raise a to 21-year-olds, it’s gratifying to witness with students after they had transitioned real time and child,” teachers, Tanya Yankowsky and the change in maturation,” Toffoli said. into the community. Although they re- develop a Carla Toffoli, at John Grant High School call success stories and praise many as- pro-active at- (JGHS) of the English Montreal School Others on board are Anna Gualtieri, a pects of JOP, they realized the need for titude. They Board concur it takes a pedagogical teacher at L.I.N.K.S.; JGHS Career Ad- improvement. spend two team to launch a transitioning program visor Sissi Séguret, who places students days a week Ajeevan Ratnam assists in food service at EMSB head that prepares students to lead produc- according to skills, ability and interests; “We used JOP as a catalyst for APP,” in a work en- office cafeteria. and Work Oriented Training Pathway said Yankowsky, adding JOP’s valued tive, fulfilling lives. vironment. (Photo credit, Carla Toffoli) Consultant Travis Hall. components have been updated for “We join Yankowsky and Toffoli’s brainstorming APP. “We had to propose APP to the them on- site, offer guidance and sessions came to fruition recently with JGHS/L.I.N.K.S. Principal Angela Vaudry Quebec Ministry of Education with the conduct an evaluation, along with their government approval of the Autonomy and Vice Principal Grace Fanelli praise courses we had designed. Our students supervisors,” Yankowsky said. “We meet Preparation Program. APP is designed the comprehensive program. Educators do not receive provincial high school with parents and community organiza- for special needs students, ages 18 to address topics such as health, sexuality, leaving certificates. Therefore, we tions and are always looking for phar- 21, and is offered at the EMSB’s JGHS independent living and budgets. APP sought official government recognition macies, department stores, food banks in Côte Saint-Luc and L.I.N.K.S. High is tailored to meet individual student and approval.” and other venues for student stages.” School in Ahuntsic. needs. The program includes English language For information, visit www.emsb.qc.ca. Between them, Yankowsky and Tof- Yankowski and Toffoli co-taught the Job arts, French as a second language, foli have chalked up 30 years teach- Orientation Program (JOP) for seven mathematics, health and human devel- ing students in mainstream and special years prior to APP. Throughout the years, opment, transitioning towards indepen- k Learning Centre (SLC) and long-time and visual/spatial abilities, among oth- Dara Goldsmith, one of two program educator. ers. Once this process is complete, an directors at SLC, explains. “A strong appropriate and suitable plan can be sense of timing is crucial for informa- “My child Schipper explains that there is no quick recommended by specialists. tion to be processed efficiently.” fix to addressing longstanding learning has a psycho- difficulties. It requires a great deal of Schipper explains that there are a vari- It is important to reassess students after patience. “We make sure that parents ety of program options offered at SLC: certain milestones have been met, and understand that it is a process, and all unique science-based brain training and goals are achieved. “Meetings with educational parties must work together to help their remedial programs, as well as one-on- parents at regular intervals to review child reach their full potential.” one academic support, all of which are the student’s test results and progress assessment. delivered by specially trained teachers. are essential,” Goldsmith said. “When When addressing the needs of a student, required, it is also important to contact What do I do SLC takes a holistic approach to learn- Fast ForWord addresses language, pho- the schools, psychologists, and other ing about the child’s challenges, includ- nological, and auditory processing chal- professionals interacting with the stu- ing the psychologist’s report as well as lenges, while Interactive Metronome is dent.” now?” reports from other health and educa- a motor-based program which enhances By Elaine Cohen tional professionals. By delving into the the student’s cognitive efficiency by ad- “The foundation of learning is built child’s developmental, cognitive, and dressing the individual’s attention, work- by addressing the root causes of the Many parents consult a psycholo- emotional history from infancy to the ing memory, and processing speed. Cell- student’s learning challenges,” added gist if they suspect that their child has present, Schipper and his team elicit vi- field, the third brain training program, Schipper. “With the processing diffi- a learning disability that impedes their tal information. At this point, it could be addresses weaknesses in reading fluen- culties addressed, the student is newly progress in school. When they receive decided that further testing is required cy, which can ultimately lead to greater ready for the learning that lies ahead.” the psychologist’s report, they turn to in order to uncover the underlying rea- comprehension. The remedial programs the school’s professional staff for sup- sons for the student’s struggles in school. teach students the skills they have not For more information, port. mastered, such as reading, writing, and call (514) 631-9745 or visit Such further investigations including spelling in English and French as well www.strategiclearning.ca. “Schools are already doing all they standardized academic tests in English, as math. The one-on-one academic sup- can to support their students, but some French, and math help determine a stu- port program prepares students for as- children require additional help,” says dent’s strengths and weaknesses, cogni- signments and tests. “So much of learn- k David Schipper, director of Strategic tive efficiency, phonological processing, ing takes place in millisecond timing,” 11 Fall 2017 / Winter 2018 - INSPIRATIONS Worktopia: Improving future Get down to work: employment prospects for An exploratory study of youth with autism employment among post-

By Rakhee Chowdhury secondary graduates

The road to finding meaningful employ- with disabilities ment in adulthood is By Evelyne Marcil, Laura King, Alice Havel, Catherine Fichten, hardly ever a smooth ride. For a person with and Mary Jorgensen autism spectrum disor- After working hard in college and contacts, skill set, volunteering, already der (ASD), navigating university for many years, most people working there, and other strategies, such this road often results assume they will obtain employment as personal qualities, experience in the in unique challenges when their studies are completed. In the field, and a good resume. that can be particularly case of graduates with disabilities, find- daunting. According to Participants and staff of the first cohort of Employment- ing a job is a major concern. As there Regarding advice participants would the Canadian Survey Works Canada (Québec) at Action Main d’Oeuvre inc. are multiple barriers to employment for give to recent post-secondary graduates on Disability conduct- (Photo credit, Audrey Morrissette) graduates with disabilities, we decided with disabilities looking for a job, their ed in 2012, as many to investigate the job search process of answers were divided in the four P’s of as 83 percent of adult respondents with pants felt more prepared than ever to successfully employed post-secondary employment. These were, in order of im- ASD report no employment income. It transition toward future employment, graduates with disabilities. portance: Practical (i.e. work on CV, pre- is no question that the right job can im- having gained lasting friendships and pare for interview), Personal (i.e. accept prove one’s self worth and be something a new set of skills under their belt. The We selected 16 English speaking par- yourself, do not give up), People (i.e. net- to look forward to. The question is: what journey continues as participants ex- ticipants from previous studies who told work, having someone to vouch for you can be done to help make the road to plore even more employment possibili- us that they had a job and interviewed is good), and Professional experience adulthood for young adults with ASD an ties with the ongoing support of career them about their job search process. Six- (i.e. volunteering, internship). It is note- easier one to navigate? counsellors at Action Main D’Oeuvre teen short interviews (10 to 15 minutes) worthy that some participants suggested inc. were conducted over the phone, email disclosing a disability, whereas others ad- With the aim of creating vocational ini- or Skype. Questions concerned the na- vised against it. tiatives for individuals with ASD and/ This fall, STMW is thrilled to launch ture of employment, duration of the job or intellectual disability, the See Things another edition of EWC as well as the search, how participants heard about The advice provided can be beneficial My Way (STMW) Centre for Innovation first edition of CommunityWorks Can- the employment opportunity, strategies to everyone, not only graduates with dis- is participating in Worktopia, a national ada® (CWC). The latter is a 10-week used to obtain employment, and advice abilities. Advice such as “do not give up” project sponsored by The Sinneave Fam- after-school pre-employability program they would give to a graduate with dis- or “prepare for interviews” is useful for ily Foundation and Autism Speaks Can- that aims to improve job readiness abilities who is looking for a job. anyone in search of a job. Thus, among ada, and funded in part by the Govern- among students with ASD, aged 15 to post-secondary graduates with disabili- ment of Canada’s Opportunities Fund 21, through volunteer opportunities. Participants’ jobs ranged from store ties, strategies and advice to obtain em- for Persons with Disabilities Program. Soon, more youth with ASD will enroll manager to teacher, and from lawyer to ployment do not differ from those for the Worktopia programs emphasize com- in these programs to foster the develop- translator. Although many participants general population. In terms of disclosing munity participation by helping youth ment of important skills and to seek op- had jobs related to their field of stud- a disability, as a general recommenda- with ASD develop the skills necessary portunities for future employment. ies, some worked in a different field (i.e. tion, individuals should disclose only if: to obtain sustainable employment. studying in a pastoral ministry and work- 1) their disability might impact their work STMW is currently seeking youth with ing as a youth centre counselor). All 16 performance, 2) there are benefits to dis- The first Worktopia program offered in ASD, aged 15 to 29, to participate participants had obtained employment closing (i.e. accommodations, quotas for Quebec by the Centre is Employment- in the 2018 editions of Employment- within 12 months of graduating. Nine employment) that outweigh potential pit- Works Canada (EWC): a 12-week train- Works Canada and CommunityWorks participants did not even look for a job falls (i.e. discrimination, not getting the ing program that paves the road to future Canada®, both offered in English. To as they were hired where they had com- job), and 3) they are comfortable disclos- employment for young adults with ASD, participate, contact Rakhee Chowd- pleted their internship or were already ing their disability. Other than that, the aged 15 to 29, and no longer in school. hury, Worktopia coordinator in Québec working when they finished their stud- world is yours. Get down to work! Inaugurated in January 2017, EWC col- at [email protected]. To ies. In order of importance, participants laborated with a variety of workplace learn more, visit http://worktopia.ca/, learned about job opportunities through This research was conducted by the partners to provide eight adults with http://www.seethingsmyway.org/, and contacts, employment centers or job Adaptech Research Network at Dawson ASD opportunities to explore their in- http://www.actionmaindoeuvre.ca/. websites, volunteering, and other ways College. terests in the areas of foodservice, TV (i.e. already employed there). Regarding production, and community services. k strategies to obtain employment, par- For information, email Catherine at Throughout these experiences, partici- ticipants used, in order of importance: [email protected] k Fall 2017 / Winter 2018 - INSPIRATIONS 12 Tax tips to minimize your tax liability By Harold Akerman Donations paid in the calendar year

Donations in excess of $200 qualify for higher tax credits. A donation can be non-cash (e.g. a car). It is important that the donation receipt reflect the market value of the item. Donating certain types of capital property (e.g. qualified investments - Canadian marketable securities) directly to a charity will avoid capital gains tax and is eligible for the donation tax credit. The year 2017 is the last year of the federal First-Time Donor’s Super Credit (an additional 25 percent federal tax credit for donations up to $1,000), subject to certain eligibility criteria.

RRSP

RRSP (Registered Retired Savings Plan) contributions reduce taxable income and the tax savings are based on your marginal tax rates. The federal tax assessment indicates your RRSP contribution room, unused RRSP contributions carried forward, and the repayment schedule of the Home Buyer’s Plan. The contribution deadline is 60 days after December 31 of the current year, and contributions made in this time period can either be deducted in the previous tax year or in the year of the contribution. The Plan ahead to stay ahead higher income earner could contribute to a Spousal RRSP and claim the RRSP deduction. Subject to certain restrictions, when the spouse makes an RRSP withdrawal, the RRSP could be taxed at the lower spouse’s marginal tax rate.

TFSA, RDSP, and RESP

TFSA (Tax-Free Savings Account), RDSP (Registered Disability Savings Plan), and RESP (Registered Education Savings Plan) are not direct tax savings, but should be included in your family overall wealth planning. To qualify for the RDSP, the person must be eligible for the Disability Tax Credit. The latter two plans have additional incentives in the form of government money. Ensure that you know how to maximize the government contributions.

Medical expenses

Medical expenses can be claimed for any 12-month period ending in the current tax year. Review your medical expenses, and calculate the 12-month period that totals the highest medical expense (i.e. March 2016 to February 2017). Medical expenses include employee’s contributions to group medical plans (Rel 1 Box J), and travel medical insurance. Stationnement et dîner GRATUITS

FREE Parking & Lunch SPOUSAL LOANS

The higher income earner loans funds to their spouse and must pay the prescribed rate of interest. The borrower uses the funds to earn income and the tax savings is the difference of the spouses’ marginal tax rates. Please RSVP to Emily Zimmermann at 1 (800) 263-3463 ext. 7305 or by email at [email protected] RSVP à Emily Zimmermann The filing deadline is April 30. If you or your spouse is self- au 1 (800) 263-3463 ext. 7305 ou par courriel à [email protected] employed, then the deadline is June 15. 13 Fall 2017 / Winter 2018 - INSPIRATIONS Make It Matter ready to fund educational initiatives By Wendy Singer

Last spring, Inspirations and St. Gabriel tizers and a dessert buffet, not to men- Elementary School of the English Mon- tion dance tunes by DJMADJ. Make It Matter volunteers Helen Chan treal School Board were the first organi- and Jasmine Pham sell raffle tickets at the zations to receive funding from Make It Funds given to St. Gabriel were allocat- Funfair. Matter (MIM). It is now our turn to honed to their Home Reading Program and (Photo credit, Adriana Luu Photography) our their work. iPads for their SEEDS and Transition program classrooms that cater to students MIM is a new non-profit organization with behavioural and academic issues. that funds project-specific initiatives that At Inspirations’, we are developing our support quality education for all learn- outreach to the community. On January ers. How does this work? MIM invites 25, we will host our first Make It Mat- educators, teachers, and community or- ter lecture: Transition Planning: When Make It Matter Founders Olivia Sheehy- ganizers in need of financial assistance and how, from 7:00 to 9:00 p.m. at the Gennarelli and Deborah Athanasopoulos to propose a project and apply for fund- EMSB. And save April 14 for our Fun For getting ready for the Funfair at Kandy Art ing through their website. Acting as a li- All recreation fair! In addition, we have Gallery. aison between the Montreal community created the Make It Matter lecture tour (Photo credit, Adriana Luu Photography) and the classroom, the team aims to cre- and series, featuring engaging speakers ate a support system for administrators, who are experts in the field of special educators, parents, and learners in order needs. to enhance every student’s educational experience. Two Make It Matter lectures took place at Elizabeth Ballantyne Elementary MIM is the creation of Olivia Sheehy- School (EB), organized by Linda Mahler, Gennarelli, a recent graduate from Inspirations coordinator of educational Concordia University’s School of Public outreach, and Principal Michael Brown. Affairs and Policy Studies with a minor Isaac Hoch from Disability Financial in First People’s Studies and currently Assistance Corporation enlightened EB a Graduate student in the Community parents about government benefits that Economic Development program, and are available. Deborah Athanasopoulos, who is cur- MIM guests hamming it up at the Funfair rently teaching at an elementary school On EB’s staff orientation day, child care photo booth. DJMADJ has guests on their feet at the in New York City and earning her mas- workers, student teachers and teaching (Photo credit, Dana Conceptions Photography) Funfair. ter’s degree in education. Both of these staff were treated to an inspirational pre- (Photo credit, Adriana Luu Photography) impressive and energetic young women sentation by Steven Atme about living strongly believe in community engage- with autism. His audience was moved ment, philanthropy, and making every when he explained how influential his day at school the best day ever. teachers and parents were in making him the person he is today. Atme helped Organizations like MIM show us what teachers realize just how much positive happens when a group of young profes- influence, and the life-changing impact, sionals with deep hearts and powerful they can have on their students. Brown’s minds pull their resources together to words shared after Atme’s presentation create change. rang true and long: “Don’t get furious, get curious.” On May 6, 2017, the dynamic MIM team, including a sophisticated crew of To book a lecture with the Make It volunteers, hosted their inaugural Fun- Matter lecture tour, email linda_mahler@ fair fundraiser at Kandy Art Gallery in hotmail.com. To apply for a grant, visit Montreal. The venue was tastefully dec- www.makeitmattertoday.org. Linda Mahler, Wendy Singer, Deborah orated to set the tone for a fun and ex- Athanasopoulos, Jim Daskilakis, Olivia Linda Mahler, Steven Atme, Michael citing evening. There was candy galore, Sheehy-Gennarelli, and Joanne Charron Brown, and Kate Marien at the Make It fabulous raffle prizes, a photo booth, a at the Make It Matter Funfair. Matter lecture on staff orientation day at giant Twister board, an open bar, appe- k (Photo credit, Adriana Luu Photography) Elizabeth Ballantyne Elementary School. Fall 2017 / Winter 2018 - INSPIRATIONS 14 Teen living with SMA inspires others to stay positive, dream big

continued from cover page...

Vicky Stuhec, an occupational therapist “It’s changed over the years. Initially Integration was the best choice for Sam- at the Lester B. Pearson School Board, there were a lot of people writing or my and his family. “John Rennie was a has been working with Sammy since he scribing for him,” explains Vicky. “We great experience. [I] made friends and started kindergarten at Margaret Man- then turned to a more technological ap- did very well in my classes,” Sammy son Elementary School in Kirkland. She proach – people typing for him. All his says. refers to her time spent with him as a science notes were on Google drive. He “privilege.” Last school year, she proudly has his iPod Touch which has a remote His parents and older sister are proud watched Sammy accept his high school mouse app that allows him to access of everything Sammy has accomplished, diploma surrounded by classmates and and make a laptop function for him.” but his mom acknowledges his recent friends at John Rennie’s graduation cer- Sammy can speak well, but his speech graduation was bittersweet. “They were emony. is not always loud or articulate enough all amazing there with Sammy and my- to be able to use speech-to-text technol- self. We will miss the resource team.” Over the last 12 years, she and a team ogy. of specialists worked together to make Rosa is confident her son will have a Sammy’s mainstream school integration “Full integration … benefits the child bright future since new treatments for a success. “I remember buying him his and I think it’s an amazing learning ex- SMA should soon be available in Cana- first pair of scissors – adapted scissors,” perience for all the peers and the staff. da. Until then, the family will continue reminisces Vicky. “At the time, Sammy It changes people’s perspective of any to raise funds for SMA research with had the use of his right arm. Now he’s physical disability,” says Vicky. “On the their annual Valentine’s Day gala. “We down to just his right hand, from the other hand, I totally understand and worked hard to keep him healthy and Sammy Cavallaro at his graduation wrist down.” respect parents who prefer not to have happy,” says his mom. “I hope Sammy ceremony. their child integrated. As a parent you continues to be the sweet, positive per- (Photo credit, Cavallaro family) Integration aids helped Sammy get his need to make a decision that’s going to son that he is.” work done in class and during exams. be right for you and your child.” k Mental Tips on how to listen:

fitness tip: • Choose a time and place when there will be limited interruptions or Listen! distractions (e.g., shut down devices or television) • Going for a walk or a drive together is more naturally conducive to a By Janet Perlis, M.Ed. and conversation Despina Vassiliou, Ph.D. • Food can always promote conversations (e.g., have a hot chocolate together or go for ice cream) hen our children are young, we as W • Find things you like to do together. Connecting through less parents, seek to find solutions to their conversation and directed activities can help promote long term problems. They are hungry and we feed communication (e.g., draw together, go biking together, go to the park, them. Their diaper is dirty and we change listen to music) it. They have a misunderstanding with a (Photo source, Internet) playmate or sibling and we help them • Create a comfortable physical environment. You may cuddle together clear it up. It becomes second nature to under a blanket on a comfy couch, or dim the lights Overall, make this time enjoyable for us. We listen to them when they speak but • Parents should speak the least, and ensure your child takes the lead in both of you. A little time everyday de- we often do so to try and find solutions the conversation voted to simply listening to your child is when something upsets or frustrates them. an investment in your future relationship The purpose of listening is to allow them • Using phrases like “tell me about…” can help your child open up with them. the space to express themselves in a safe instead of direct questions (who, why) that can be misconstrued as space without judgment. This is a time for intrusive Despina Vassiliou and Janet Perlis are parents to speak as little as possible while • Reserve judgment and avoid making suggestions, blaming or shaming. psychologists with the English Montreal children express themselves. Sometimes, Judgment and blame can hinder communication quickly School Board. when we offer solutions before they are • Use language and terms your child will understand or use ready to listen, we can shut down com- k munication. We empower our children • Keep the conversation confidential. Sharing with grandparents or friends when they come up with the solutions can sever the trust your child has in you themselves. 15 Fall 2017 / Winter 2018 - INSPIRATIONS

A fresh perspective: Special needs as a family affair

By Jay Jones-Doyle

Grâce. Carter’s brother, Jonathan (Jon), es available to her family through the has cerebral palsy and their family has CLSC. “I am not afraid to ask anything. taken an extremely healthy approach to And generally, whatever I ask has been Framing, simply defined, is the way the situation. I spoke to Susan, a retired met with consideration... I rarely get a The Right Lawyer. A Fair Price. in which you choose to look at some- nurse and Carter and Jon’s mother, about “No”. Often parents feel like a failure thing – and often what impact you al- the foundational framing of their fam- and feel unworthy by asking for help. Fixed-fee legal services, no hidden costs. low it to have on your life. You know ily and how it impacts everything that There is no stigma in asking for help.” the old “the glass is half full or half stems from it. “We (Carter, Jon, Brianna, Benefitting from quality legal services at a fair price has never been simpler or less stressful. empty” question… same deal, just ap- Mike, and I) are a special needs family I am a firm believer in framing life plied to everything. of which our son Jonathan is a part. To- events in a positive light, and in proac- gether we celebrate the things that make tively seeking resources or opportunities • Browse the profiles and services of Quebec lawyers; Positive framing is especially impor- him unique and appreciate the struggles that will make your life easier or more • Choose a lawyer and discuss your needs for free; tant when a disability is in the equa- he faces in all aspects of his life,” shared enjoyable. I am proud to know people • If the fit is right, receive your quote electronically; tion. It is my opinion that too often we Susan. “We also work hard to make his like Carter, Jon, and their mother Susan • When ready, pay securely using your credit card. hear about a “family with a special life great. It has made us a whole unit, – their core family values are second to needs child”. This framing singles out and each of us better and stronger. It none and truly a source of inspiration. the special needs child as being the has made us appreciate life and all its www.legallighthouse.ca “different” aspect of the equation. It diversities, to avoid individual burnout. Jay Jones-Doyle is the co-founder and not only serves as a really poor starting We feel honoured to be part of Jon’s life, vice-president of Product Development point for fostering the child’s sense of thrilled that he survived and continues at Legal Lighthouse Inc, and the presi- normalcy, it also sets the stage for feel- to thrive because of his family. Jon is dent of Confidence Driven Coaching, ings of being burdened by the disabled who he is and is happy to be who he the chief financial officer of the Centre individual’s needs – which can lead to is because of all of us. And if one of us for International Sustainable Develop- on the Board of Directors of the Concor- resentment. was tired or unable... someone else in ment Law, and worked with the UN’s dia University Alumni Association, is a the family would pick up the mantle of Business and Biodiversity program. He motivational speaker, a championship- I have recently had the pleasure of care. Our glass is always half full - never holds two advanced degrees and was winning junior hockey coach, has cere- working with Carter Bourassa, sous- half empty. It is all perspective.” named one of Quebec’s top three grad- bral palsy, and is the proud father of a chef at Hopkins Restaurant on Monk- uate students of 2011 and Concordia’s 13-year old son. land Avenue in Notre-Dame-de- Susan has sought out the many resourc- Outstanding Student of the Year. He sits k Special kids of Montreal share the love on Facebook By Caroline Sugar Miller

I was born with holes in my heart and didn’t get enough oxygen during open including working in the clothing store in my aorta, the blood vessel that goes heart surgery, which caused me to have organizing the items to be given away, from the heart to the brain. I was in the a stroke. That left me with some dam- assisting clients, working in the food hospital for the first five months of my age. I couldn’t use my right hand very bank, and with the main receptionist. life, and the first two months were spent well, and eventually, I learned to write MADA feels like a family. It’s the second on a respirator. On my second day of with my left one. best thing that’s happened to me. life, the doctors opened up my chest and fixed the holes. Later, I developed an When I was younger, I went to Summit The best that’s happened to me is falling infection in my chest wound and now School. When I completed that, I moved in love with the most amazing guy in the have a bad scar. on to another school, but I was bullied, world, I was not expecting to meet him. so eventually left. I began to work at I knew he was the one for me when I Caroline Sugar Miller. In my 23 years, I’ve had 11 operations, MADA Community Centre, and I knew told him my story, of the dozen opera- including one to make a flap at the back it was the place for me. I love my job! tions and the scar on my chest, and he In order to bring other special kids to- of my throat so that I can push air out MADA helps people in need with the said, “I don’t care. You’re beautiful just gether, Caroline started a Facebook my mouth and talk, and I have a pace- basic necessities of life while preserving the way you are! Will you be my girl- group called Special Kids of Montreal. maker. On my sixth birthday, I blew out their dignity and helping them become friend?” I said absolutely, I will! And Join her at SpecialKidsOfMontreal. my birthday candles for the first time. I self-sufficient. I’ve taken on many tasks, then he stole my heart. k Fall 2017 / Winter 2018 - INSPIRATIONS 16

Breaking isolation, one Aboriginal children and hearing aid at a time disability: A triple challenge in By Randy Pinsky accessing care By Randy Pinsky Have you ever witnessed the joy expressed by a se- nior citizen receiving a McGill University’s Centre for Hu- While there have been some advances hearing aid? Now just man Rights and Legal Pluralism hosted in care and respite, families must con- imagine the transformative a panel on the topic of “Indigenous tend with the foreboding knowledge potential for children in children and disability” as part of their that such initiatives are but short-lived lower income countries, Disability and Human Rights Initiative. and grant-dependent. Temporary relief breaking their isolation Speakers discussed the “triple” chal- and support programs will unfortunately and opening up a world of lenge this cohort faces in accessing not meaningfully resolve the underlying possibility. This is what the health and social services which may issue of inequitable access. Montreal-based organiza- hamper their ability to “fully partici- tion World Wide Hear- pate in cultural and family life”. Dr. Vandna Sinha from McGill’s School ing (WWH) strives to do, of Social Work discussed “Jordan’s Prin- seeking out “hearing loss A child is screened for hearing loss in Guatemala in 2015. Sharing stories from their work in child ciple” which advocates for Aboriginal hotspots” where audiolo- (Photo credit, World Wide Hearing) advocacy and community health, the children to have the same access to gists are rare and hearing speakers discussed the difficulties essential services as their non-Indige- aids, beyond reach. WWH initiatives Executive Director Audra Renyi, recipi- Aboriginal families face in accessing nous counterparts. Named in memory include spearheading intervention, ent of the Young International Leader services available to most Canadi- of young Jordan Rivers Anderson from raising awareness and encouraging lo- of Quebec Award (2013), Wharton Top ans. Luna Vives, postdoctoral fellow Manitoba’s Cree Nation, the principle cal empowerment. 40 Under 40 (2015), and the Governor at the McGill Centre for Research on is intended to “ensure equal healthcare General of Canada’s Innovation Award Children and Families, described the for Indigenous children”. The issue was While most cases of hearing loss in (2017), is determined to “transform the Centre’s collaborative work with Man- brought before the Canadian Human the Western world are linked to ge- way hearing care is delivered” through itoba’s Pinaymootang First Nations Rights Tribunal in 2016, reprimanding netic predisposition, those in the dis- simplified mobile diagnostic kits, ideal community in accurately appraising government departments for squabbling proportionately affected low to middle for reaching remote communities. the situation. over who should finance his medical income countries are due to a lack of needs instead of contributing to his re- basic health care and environmental With projects ranging from screening Disparities in access to medical, al- covery. conditions. From measles to chronic campaigns in the Philippines to partner- lied health and additional care ser- ear infections, communities are ill- ships with universities in Peru, WWH vices (such as medical transport and As stated by Aboriginal Peoples Televi- equipped to handle the challenges, recently won the Google Impact Chal- respite) have resulted in significant sion Network (APTN) National News, it often resulting in stigmatization and lenge grant (disability division). In typi- delays and disruptions for those living is hoped that moving forward, priority rejection of those affected. cal proactive style, WWH will use these on the reserves, negatively impacting will be to “care for the child first and funds to address the prevailing gap in their ability to survive and thrive. Care- fight over who pays later” so that such WWH sets out to “make hearing mat- hard data and create an open-access givers subsequently feel overwhelmed tragedies are not repeated. In order for ter” through information campaigns, global hearing database. As a leader in and under-supported, which can chal- change to be both meaningful and sus- early intervention and hearing aid pro- hearing care innovation, it has been in- lenge their ability to effectively parent. tainable, government actors must ac- vision, as well as advocacy for those vited by the World Health Organization Many are faced with the predicament tively consult with Aboriginal commu- with minimal hearing. to create the official collection app for of remaining in the community with nities so that all voices are heard and the forthcoming hearing loss prevalence few services, or uprooting in search of Jordan’s memory, honored. But why this passion for what hearing study. health amenities. aid provider Audicus calls “one of the k world’s most prevalent health con- A recent undertaking was a long-term cerns”? Unlocking the key to silence “outcomes-based impact study” in Gua- through hearing aids and sensitiza- temala, chosen because there is only WWH strives to reinforce that “better For information, contact World Wide tion is central to individuals becoming one audiologist in the entire country. hearing benefits everyone”. They main- Hearing at (514) 285-0990 or visit contributing members of their com- Through surveying individuals on rank- tain, “by addressing hearing loss, we www.wwhearing.org. munities. With a focus on innovation ings of mental health and quality of life, can promote better health, greater edu- and sustainability, WWH encourages WWH was overwhelmed by reports of cational attainment, and higher levels Randy Pinsky is an assistant writer and local involvement by facilitating peer confidence and better enjoyment of life of economic productivity” - in essence, office manager at TrueSelf Psychology. support groups, ongoing trainings, and - even “feeling safer”- after being fitted creating a true scenario of “hear” today, regular check-ins in order to ensure with hearing aids. success tomorrow. change is lasting and meaningful. k 17 Fall 2017 / Winter 2018 - INSPIRATIONS

Lakeshore Super Sonics: TEMPLE ART HIVE Soccer without limitations is back! Cost: $50 per season An inclusive community art studio where people of all ages and abilities create art side-by-side

For all children aged 4 to 20 years with intellectual challenges, poor social skills, low self-esteem, behavioral or learning difficulties

Saturday mornings Drop in between 3:00 p.m. and 7:00 p.m. Winter: January to April November 16 & 30 January 4 & 18 Summer: May to August 2017 December 14 2018 February 1 & 15 March 8 & 22 Ratio of coaches to children varies from 1:2 and 1:4 April 19 Offering Young Coach Mentoring Program Potluck snacks May 3, 17 & 31 (for players aged 14 to 20) No skill or experience necessary June 14 & 28

Federation Combined Facebook: Temple Art Hive - Kaveret Omanut Coaches and players learn valuable life skills that help Jewish Appeal overcome life challenges. [email protected] Playing with Super Sonics is when the magic begins! www.templemontreal.ca

4100 Sherbrooke Street West, Westmount, Quebec H3Z 1A5 Kelly Anne Soutter - Director General The Art Hive is made possible thanks to a grant from Federation CJA www.lakeshoresoccer.ca [email protected]

www.ldmontreal.ca

Programs for Parents, Youth, Young Adults, Adults LD, ADHD & Mild ASD

AQUA K.I.D.S. Swim, Gym & Art Program HeartMath® Anxiety & Anger Reduction Groups Theraplay® Social Skills Groups Parent, Adult & Professional Workshops Guest Speaker Presentations Adult Employment Program

Featuring The Ambassadors Program

Email: [email protected] (514) 482-7196 The Queen Elizabeth Health Complex 2111 Northcliffe, 2nd floor, room 212 Fall 2017 / Winter 2018 - INSPIRATIONS 18 Accessibility for all abilities LBPSB students with special at the ADATH needs take action through By Elaine Cohen entrepreneurship An empowering Bar Mitzvah in 2002 resonated with congregants and By Nancy Battet paved the way for the ADATH Inclu- sion Program at the modern Orthodox Renowned Google educator Jaime Casap ways to help and protect local wildlife. synagogue in Hampstead. The well- said, “Don’t ask students what they want The entire school community benefits honed inclusive program welcomes to be when they grow up, ask them what from the Nature Club, while these inno- and embraces individuals of all abili- problem they want to solve.” This philoso- vative students develop skills to become ties in the entire religious and secular phy has been adopted by the Lester B. Pear- compassionate leaders, global thinkers community. son School Board, which has incorporated and problem solvers. Diane Blackburn, Figure skater Emile Baz, 25, from Saint- the concept of developing an entrepreneur- Macdonald High integration aide, and Alluding to the awesome spiritual ex- Laurent, spoke on Shabbat at The ADATH. ial spirit into their strategic plan. The school Ms. Cavaioulo, librarian, see that when perience, Rabbi Michael Whitman re- (Photo source, Internet) board is proud of the innovative entrepre- students have the opportunity to com- called the lasting impression made by neurship projects created each year by stu- bine arts, hands-on activities and the love the Bar Mitzvah celebrant with physi- cial Olympics figure skating champion dents from kindergarten to the adult sector. of nature, their self-esteem and sense of cal and intellectual challenges. The Emile Baz also have shared personal belonging improve and shine through. ADATH espouses Judaism for the next stories with Shabbat congregants. Baz The goal of an entrepreneurial project is generation and the congregation has recently brought home another gold for students to identify a need within their always strived to be inclusive. How- medal at the 2017 Special Olympics school, community or globally and take ac- ever, it became a sustained effort with Winter World Games in Austria and tion by creating a product, service or event the formation of the ADATH Inclusion Canadian games in Newfoundland. to address this problem. The project must Task Force in February 2017. The fol- Levine, a powerhouse athlete uses a benefit people, and place students in the lowing mission statement appears on wheelchair and Baz has autism. An- heart of the action, allowing them to par- all synagogue news releases: “The other innovation is the ADATH work ticipate actively in the decisions and tasks ADATH is welcoming and accessible program. The Task Force entered into required to carry out all steps of the project. to every person.” an agreement with Summit School using the ADATH as a location for their Every year, students across the province Members removed barriers to the program. Last spring a student at the take part in the Quebec Entrepreneurship building at 223 Harrow Crescent, mak- school began her stage working on Contest. LBPSB schools enter a variety of The Macdonald High School Nature Club. ing effective improvements. Canadian various projects in the synagogue of- projects under the category of Special (Photo credit, Diane Blackburn) Paralympic boccia champion Alison fice. “The lay leadership of the ADATH, Needs/Adaptation. This program fosters an Levine and congregant Dale Szlam- under President Peter Safran, has been entrepreneurial spirit and allows students When students work together they feel a kowicz surveyed the building and very supportive of all these efforts,” to develop lifelong skills such as problem great sense of accomplishment. provided suggestions. The Task Force Rabbi Whitman enthused. solving, critical thinking, collaboration and identified short-term, medium-term, creativity. Mary Rutherford, community and spiri- and long-term goals. Rabbi Whitman These efforts are appreciated by the tual care animator with the LBPSB works commended progress thus far, noting community. He was selected by the Students with special needs at Lakeside closely with many students with special achievement of many aspects of build- Sylvan Adams YM-YWHA as rabbi at Academy High School in Lachine created needs and oversees their projects. “One of ing access and other short-term goals. a camp devoted to children with spe- useful outdoor clothing accessories. The the more magical aspects of the entrepre- cial needs and their families. The four- “snoody”, a hat and scarf all in one made neurial program is that it often provides “The way we serve the Jewish com- day camp in August is held at the YCC by the knitting club, warms up classmates adults in the school the opportunity to see munity is by being open to the world,” campsite in the Laurentians. who don’t have hats and scarves to wear on a student with a totally new perspective. Rabbi Whitman said, adding we all cold winter days. The “mug glove” makes it Instead of seeing what the student can’t have strengths and weaknesses. “Ev- The ADATH implemented an inclusive easier to hold a hot beverage outdoors in do, they see a student being celebrated eryone is created in God’s image Shabbat program. In addition to Sat- winter. This knitted glove won first prize at for what they can do,” shares Rutherford. and must be respected.” The ADATH urday morning services, people of all the regional level of the Quebec Entrepre- has held various programs, such as a ages and abilities are invited to enjoy neurship contest. For information on the Quebec Entrepre- Yachad Shabbaton for young people the Kiddush and socializing until 2:00 neurship contest, visit with special needs. A poignant film p.m. Another winning project at the regional https://www.osentreprendre.quebec/en/ presentation of My Hero Brother also level was MacDonald High School’s Nature enlightened congregants on the topic. Volunteers are needed to accompany Club. Students with special needs involved Nancy Battet is the community partner- participants with special needs to and in this took action to help the environment, ship liaison for the Pearson Partnership Rachel Desjourdy, a community in- from the synagogue. For details, con- eco-system and wildlife in and around Program at the Lester B. Pearson School clusion specialist, sensitized the contact Rabbi Whitman at [email protected]. their school community. Students gained Board. gregation with her inspiring Shabbat valuable hands-on skills growing milkweed address. Levine and Canadian Spe- k for butterflies, feeding birds, and learning k H:\Documents\Word\ADVERTISING\EMSB\2017-10-04 one-eighth page H:\Documents\Word\ADVERTISING\EMSB\2017-10-04ENGLISH.docx one-eighth page FRENCH.docx 19 Fall 2017 / Winter 2018 - INSPIRATIONS

Where children with hearing loss Là où les enfants sourds learn to listen and to speak et malentendants apprennent

• Bilingual services à écouter et à parler

• Auditory verbal education • Services bilingues

• Parent Infant program • Éducation auditivo verbale • Preschool (reverse integration) • Programme parents et enfants • Elementary school • Préscolaire, intégration inversée • Itinerant educational services • Niveau primaire • Telepractice • Services éducatifs itinérants • • Audiological assessment Télépratique • • Consultation and professional Évaluation audiologique • development Consultation et perfectionnement

Serving children and their Au service des enfants et

families since 1950 de leurs familles depuis 1950

Montreal Oral School École orale de Montréal

for the Deaf, Inc. pour les sourds, Inc. 4670 St. Catherine Street West 4670 rue Ste-Catherine ouest Westmount, (Québec) H3Z 1S5 Westmount, (Québec) H3Z 1S5 Tel.: 514-488-4946 Fax : 514-488-0802 Tel.: 514-488-4946 Fax : 514-488-0802 [email protected] [email protected] www.montrealoralschool.com www.montrealoralschool.com

our

services Training Centre School Speech Art Cuevas Medek Occupational for Parents Therapy Therapy Physiotherapy & Professionals Integration Therapy

Paediatric Interactive Feuerstein Music Interactive Yaldei Massage Metronome Therapy Mediated Metronome Therapy Learning Plus L’ÉTAPE est un organisme à but non lucratif qui o re des services d’intégration et de maintien en emploi aux personnes en situation de handicap depuis près de 40 ans. ABA-IBI Early École Chaque année, c’est plus de 700 personnes que nous accompagnons dans Therapy Intervention Yaldei leur cheminement professionnel ! Notre travail se base sur les besoins individuels et la notion de relation d’aide. L’ÉTAPE oriente ainsi son travail en fonction des besoins et des central capacités de chaque participant. address

Les critères d’admissibilité Comment s’inscrire ? for children with Habiter l’île de Montréal ou l’île de Laval Résidents de l’île de Montréal varying needs Tél. voix : 514 526-0887 Avoir une limitation fonctionnelle ATS : 514 526-6126 diagnostiquée Courriel : [email protected] Résidents de l’île de Laval Être disponible à participer aux Tél voix : 450 667- 9999 activités reliées à votre intégration au ATS : 450 667-5924 travail Courriel : [email protected]

ou via notre site Internet : www.letape.org

Membre du 514-279-3666 www.yaldei.org Fall 2017 / Winter 2018 - INSPIRATIONS 20

Apply for funding today! 21 Fall 2017 / Winter 2018 - INSPIRATIONS

YOUR LIBERAL MPs PROUD PARTNERS OF INSPIRATIONS NEWS VOS DÉPUTÉS LIBÉRAUX FIERS PARTENAIRES DE INSPIRATIONS NEWS

FRANK BAYLIS ANTHONY HOUSEFATHER HON. MÉLANIE JOLY EMMANUELLA LAMBROPOULOS Député / MP Député / MP Députée / MP Députée / MP Pierrefonds – Dollard Mont-Royal / Mount Royal Ahuntsic-Cartierville Saint-Laurent [email protected] [email protected] [email protected] [email protected] (514) 624-5725 (514) 283-0171 (514) 383-3709 (514) 335-6655

ALEXANDRA MENDÈS MARC MILLER FRANCIS SCARPALEGGIA Députée / MP Député / MP Député / MP Brossard – Saint-Lambert Ville-Marie – Le Sud-Ouest – Lac-Saint-Louis [email protected] Île-des-Soeurs [email protected] (450) 466-6872 [email protected] (514) 695-6661 (514) 496-4885 Fall 2017 / Winter 2018 - INSPIRATIONS 22

Founded in 1963, Summit School creates an individualized and enriching environment for over 600 students with AWAKEN THE developmental disabilities. The students, from ages 4 to 21, present with a range of difficulties including, but not limited POTENTIAL to, autism, behavioural disorders, emotional disturbances and sensory deficiencies.

ÉCOLE LE SOMMET SUMMIT SCHOOL WWW.SUMMIT-SCHOOL.COM Summit School Educational Programs

1750 Deguire Pre-School - Program Saint-Laurent H4L 1M7 Primary - Adapted Primary - Modified Primary - C.A.S.P. 514-744-2867 Secondary - C.A.S.P. - Modified - Secondary Cycle 1 Post-Secondary - Challenges - W.O.T.P.

Herman Erdogmus, Director General Bena Finkelberg, Vice Principal 23 Fall 2017 / Winter 2018 - INSPIRATIONS Canada Shriners Hospital Project raises awareness of patients on tour: risk factors that contribute Encourage students to to poverty By Ella Jegher #CutTheBull I am a Grade 5 student at Hebrew about autism and his son’s journey with By Caroline Phaneuf Academy. As part of my English class, it. My mom bought one of their stunning I completed a project called Genius pieces of art, so I will always remember Nia, 12, is hemiplegic: she is com- just began high school this year and is Hour. The goal of this project was for this one. pletely paralyzed on the right side of now confident she’s done with the bul- me to pick any topic that interested her body. Jeffrey, 18, was born without lying. me, research it and learn more about it. I was inspired by the stories of individu- a right hand or right foot. Saoud, 15, I’ve always been concerned about poor als with disabilities and their families, has spina bifida: he was born with an Saoud faced bullying in Grade six, but people and would like to help them out. friends and teachers coming together to incomplete spinal cord. All three are his school’s quick action put an abrupt As a family, we always make an effort help make a difference with the goal of patients at Shriners Hospitals for Chil- stop to it. In the school yard, boys would to offer support to the less fortunate creating a more inclusive society. In or- dren® – Canada. Because of their differ- run away from him and yell things like (sometimes my mom ences, all three faced years of bullying. “catch us if you can, Saoud”, knowing buys Tim Hortons Canada Shriners Hospital joined the full well that with one leg amputated gift cards for people fight against bullying with its #CutThe- and arm crutches, he couldn’t catch asking for money on Bull campaign because Nia, Jeffrey and them. After speaking to his parents, the street), and so I Saoud are far from alone. Children with Saoud confided in a teacher. She imme- decided to explore visible scars or disabilities are twice as diately gave the bullies detentions and the topic of poverty likely to be bullied, meaning many of advised their parents. The bullying never in Canada. the hospital’s patients face this difficult happened again. issue. While conducting my research, I was Jeffrey, Nia and Saoud have decided to surprised to learn stand up and share their stories, hop- that the subject of ing their experiences can help eradicate poverty is a lot more bullying. All three are touring schools complicated than this fall and next winter/spring talking to it seems. Many risk students about their life with a disability, factors contribute to their bullying experience and how they individuals and fam- overcame it. ilies remaining poor Ella Jegher displaying her Poverty in Canada project poster at in Canada. One fac- Hebrew Academy. (Photo credit, Hebrew Academy) Jeffrey’s bullying lasted from Grade 1 tor is that individuals to Grade 9. Kids began by calling him with mental health problems or intellec- der to help eliminate poverty, we need to names, but in Grade 7, it turned physi- tual disabilities are considered at high look at it in a much more complex way. cal. He was beaten up by a group of risk of living in poverty. I now understand that helping the poor boys, who threw rocks and food at him. is more complicated than giving charity Jeffrey turned to his friends and parents, To better understand these risk factors, or helping in a soup kitchen. We need as well as his school’s principal and psy- I interviewed Linda Mahler, coordinator to create a society that is more inclusive chologist. “I blamed myself for a long of educational outreach at Inspirations. in education and job opportunities for time,” Jeffrey admits. “But I realized that She helped me understand that the spe- those with disabilities. All children de- I don’t have to change for these bullies. cial needs community works extremely serve the opportunity to succeed. They should learn to accept me. I now hard to fight the risk factors of ending know that if I can overcome bullying, I Jeffrey, Canada Shriners Hospital up in poverty. Some of the stories she Some questions to think about: Does can overcome anything.” patient, is speaking out against shared with me include Luca Patuelli, a your school have children with disabili- bullying. (Photo credit, Shriners dancer with his own company that lives ties? When you go shopping do you see At 12, Nia has already overcome six Hospitals for by the motto of “No Excuses, No Lim- individuals with special needs working? years of bullying. As of kindergarten, kids Children® – Canada) its.” Another is that of the I Can Dream If your answer is no then what can we would repeatedly say mean things about Theatre. Three individuals created a do about it? How can you help make a If you’d like Nia, Jeffrey or Saoud to her disability, telling her she wouldn’t theatre company to give people with change in your community? speak at your school, contact Caro- become anything in life. Nia would go disabilities the chance to perform and line Phaneuf at (514) 778-5092 or home and cry every day. She didn’t want learn from their experiences. One of my [email protected]. to go to school. She turned towards her favourite stories is of The Big Blue Hug, k parents and switched schools twice. She k created by a dad to help raise awareness Fall 2017 / Winter 2018 - INSPIRATIONS 24

NOUS PRENONS LE RELAIS POUR VOUS WE’RE HERE FOR YOU PETERHALL.QC.CA

Dyslexia or other reading di culties? We provide: * Multi-sensory reading remediation based on the Orton-Gillingham Approach * Standardized reading assessments * Dyslexia screenings * Passionate, caring, qualied teachers * A positive, supportive learning environment www.HudsonLiteracyClinic.ca L’école Peter Hall accueille depuis plus de 75 ans des élèves de 4 à 21 ans présentant une déficience intellectuelle ou des troubles du spectre de l’autisme. Notre programme éducatif est centré sur les besoins spécifiques de chaque élève. L’enseignement y est dispensé At Place Cartier, we offer a range of educational programs to meet the en français et en anglais. needs of diverse adult learners at two accessible, inclusive campuses on the West Island. Our centre offers general education courses leading to For over 75 years, Peter Hall School has welcomed students between the completion of a high school diploma or credits required for vocational the ages of 4 and 21 with intellectual disabilities or autism spectrum training, alternative programming for students with learning disabilities disorders. Offered in French and English, our educational program is and other special needs, and social integration programming for students centered on the specific needs of each student. with intellectual disabilities and autism spectrum disorder. Call us at 514 780-8966 or explore www.lbpce.ca to learn more! 840, boul. de la Côte-Vertu, Saint-Laurent For information about the Endeavour Social Integration Program, 514-748-6727 visit www.foreverendeavour.weebly.com

Date: April 13, 2015 Magazine Inspiration Client: École Peter Hall Project: EPH1501 Format: 5,125” x 10,167” 4521, clark street, montréal (québec) H2T 2T3 t. 514.286.9696 f. 514.284.9152 espressocommunication.com Proof number: FINAL Bleed: SANS bleed 25 Fall 2017 / Winter 2018 - INSPIRATIONS Technology Feature

quadriplegic. We kept trying new ways. They would work for a while Freedom but once again, they were limiting.

through We were then introduced to an augmentative communication device. Although I had to advocate technology really hard to get him one through professionals and from the govern- By Joanne Charron ment, and I mean REALLY hard, they finally approved it. That is Technology is amazing when it works has been life changing, and leaves me when everything changed! for the betterment of the human condi- awestruck every time I see it in action. tion, especially when it can augment a Imagine sitting in silence not being able My son was trained on his device, person’s independence and accessibil- to communicate or express your sim- and took off with it. He surpassed ity. From speech to virtual reality, to ad- plest of needs, pains, thoughts, wishes, the professionals’ expectations, justing your own artificial limbs, wheth- dreams….to watch someone struggle to and his peers who were already er navigating with your head, eye gaze tell you something, anything, to know using the device years before him. or any type of adaptation, there are a that they are “in there”. He began expressing his feelings, myriad of applications and adaptations his discomforts, have conversa- that can be accessed through the tech This is a feeling my son and I know all tions about his day, even tell jokes world. too well. He is non-verbal and could or tell you off! His frustration level Double trouble with brothers Nikitas and Niko only make sounds, so we made our own completely diminished. No more in Greece. Without technology, strides to indepen- vocabulary by attaching meaning to guessing or charades to understand dence could not be achieved. As it pro- these sounds. The problem with our sys- what he was trying to tell us. Now he Joanne Charron is the EMSB’s parent gresses, it changes our lives. The free- tem was that it was limited. Only myself never stops talking! commissioner for ACSES (Advisory dom it provides the user is profound. and those close to him could understand Committee for Special Education Servic- The reduction of frustration is enormous. our language, so if we were not around Until this day I will never forget the first es), and special advisor to Inspirations. to interpret, no one would understand words I heard my son speak through his Although it has been a learning curve him. Then we used pictures, but my son communication device, and they were: for me, my experience with technology couldn’t point to them because he is “I LOVE YOU MOM.” k

thousands of alternate format books for in Differentiation and Inclusion (ALDI) Accessible digital libraries all ages and interests, including popu- project and the Direction des services lar titles and bestsellers in English and à la communauté anglophone (DSCA), French. All books are free and can be developed a process for Quebec school close the reading gap accessed on computers and mobile de- boards to use the Educator Access Pro- vices using free apps. gram. Several boards, including the Eng- lish Montreal and the Lester B. Pearson By Annette MacIntyre Individuals need to obtain an attesta- School Boards, are working with pilot tion of print disability from a qualified schools during the 2017-18 school year Many children and teens struggle to Providing students with alternate format professional (as listed in paragraph two to bring CELA and Bookshare services to read due to a condition called print materials, such as audio, Braille, and of this article), and then sign-up for their students. disability. The cause may be physi- e-books with text-to-speech technol- service with the Service Québécois du cal or visual in nature, or, more often, ogy, can benefit students enormously. livre adapté (SQLA), a branch of the For information about the Educa- learning-based. Assisted reading can break the cycle Bibliothèque et Archives nationales du tor Access Program in Quebec, of disengagement from text and boost Québec (BAnQ). A student’s family can and individual memberships, visit A learning-based print disability, such their overall understanding of what’s be- initiate registration on his or her behalf. https://accessiblereading.com/ as dyslexia, has a direct impact on ing taught. It helps students bypass their (http://www.banq.qc.ca/sqla/abonne- accessible-library-memberships. reading comprehension and can be barrier, and keep up to pace with their ments). From there, members can regis- identified by a qualified professional peers. ter for CELA and Bookshare. Annette MacIntyre is a librarian with (such as a resource teacher, psycholo- Educational and Technology Ser- gist, or speech language pathologist The Centre for Equitable Library Access CELA also offers an Educator Access vices at the English Montreal School with an expertise in understanding and (CELA) provides Canadians who have Program for teachers who support stu- Board. Annette can be reached at assessing reading development) who identified print disabilities with access dents with print disabilities. The Acces- [email protected]. can provide appropriate interventions to the CELA library and its USA coun- sible Reading Quebec Project, a 2016- and remediation. terpart, Bookshare. These libraries offer 17 initiative of the Advancing Learning k Fall 2017 / Winter 2018 - INSPIRATIONS 26 Apps to support students Resource Page at home and at school Compiled by Wendy Singer We asked Andrea Prupas, assistive technology consultant at the English Montreal School Board, to share three effective apps (low-cost or free) on different platforms with Inspirations readers. Here’s what she recommends. ChoiceWorks (for iOS) Mindmeister Microsoft Office Lens (for Google Chrome) (for Office 365, Android and iOS) Recommended for: Visual scheduling, choice-making with visuals or social stories http://apple.co/21aiGf7 Recommended for: Mind mapping Recommended for: Scanning text documents http://bit.ly/2fZ9NoK http://bit.ly/2x4r9qc Research has demonstrated that many students with autism spectrum ind mapping can be effective for big dilemma for teachers and students is making paper- disorder can benefit from the use M A many students as a pre-writing strategy based text (such as assignments, texts, pages of a book) of visuals for communication, as it allows students to demonstrate into an accessible format. Making a document accessible language and social interaction. their thoughts in a visual format. means that, after scanning, it can be read with a text-to- ChoiceWorks is a social support Visual thinking prior to writing can speech tool like WordQ, Natural Reader or your device’s app for helping children complete allow students to better demonstrate, free text-to-speech tool. However, scanning documents daily routines with visual schedules organize and then reflect on their into this format is not always easy to do. as well as understand and manage ideas. their feelings. Created with child development specialists, it is Office Lens is like having a mini scanner in your pocket. designed for caregivers to provide MindMeister is a mind mapping tool With optical character recognition technology (OCR), clear and consistent support to integrated into Google Docs (a free it turns your picture into a document that is accessible. foster a child’s independence, positive behaviour, and web-based Google application that Office Lens also has a built-in text-to-speech tool within emotional regulation at home and in the community. It students can use for word processing). the app, called “immersive reader” that reads the text can also be used by teachers in a school setting. This means that a student can create directly to the student. a mind map directly within their document at the beginning of the The best part about Choiceworks is the ability to highly The best part about Office Lens is that it’s so simple. writing process or even throughout customize the app to a student’s needs. Key features Scanned docs can be saved directly to OneDrive, the writing process. For teachers include: Visual scheduling, waiting, and feelings boards; Microsoft’s service for hosting documents on the web. using G-Suite for Education in an image library preloaded with over 180 images and This allows teachers or students to access their scanned their classrooms, a nice feature of audio; the ability to add your own images, video and document anywhere. Office Lens is most effective on a Mindmeister is that students can record your own audio; the ability to create profiles to mobile device - take a picture with your device, scan and collaborate on a mind map together! personalize and manage multiple users (for teachers); read! and more.

program is for. For example, one teacher Honestly, I can’t thank WordQ™ The WordQ™ is out! thought that it’s cheating, but it’s not be- enough. Now my teachers understand cause I have to choose the word that I what I write, and I hand in presentable By Daniel Angelicola want. It gives me a variety of five words work. So when I hear the word success, to choose from that are similar to what I I think of WordQ™ because it helps me am a student in secondary 4. Spell- when you’re working on a masterpiece, I was trying to write. succeed. With that in mind, I encourage ing complex words is hard for me. As a or whatever it may be, you need your my fellow peers who have the opportu- student, spelling is a big factor in every- own space to embrace your thoughts. I When you’re the only one carrying a nity to use WordQ™ to use it because… day life, for taking notes, completing am very lucky to have a resource room laptop, of course you’re going to feel the WordQ™ is out! tests and assignments, etc. WordQ™ at Laurier Macdonald High School (Eng- a little bit special. The other kids might helps with that and more. It is a word lish Montreal School Board), where I feel sorry for you. I don’t let that bother To learn more about WordQ™, prediction software that allows me to use this amazing program. I also use me because feeling and being special read Susan Waite’s article in our express myself in writing with greater WordQ™ at home to complete my is the best. If you have something that Spring / Summer 2017 edition, or visit flow and ease. It works in a variety of homework assignments and, yes, the works that’s going to help, then use it. http://www.goqsoftware.com. writing applications. It even helps you school board gave me a laptop for I am still trying to figure out how I can make your writing richer because it al- school and home. use my laptop in class the best way pos- lows you to write what you are think- sible, like for taking notes or finding a ing about. When I am using WordQ™ in school, way that my teacher can send me the it’s mostly on the resource room com- class assignments. That way I don’t have k I use WordQ™ every day. I like quiet puters because some teachers are not as to rely too much on the resource room when I am working because I find open to it or simply don’t know what the and I can be in class. 27 Fall 2017 / Winter 2018 - INSPIRATIONS Technology Feature

breakthrough in family caregiver sup- to protect your anonymity), and Huddol: A port. using smart matching tools, Hud- breakthrough in dol builds a network of intelligent When someone you love develops a support around you. This network family support health problem or has a special need, might include people like you, everyday can feel like life unplanned. experts who can guide you, or pri- By Mark Stolow Huddol makes it easy for caregivers to vate and public resources that can share and solve everyday care challeng- give you or your loved one a help- There are 8.1 million Canadians who es together. ing hand. work tirelessly to ensure the health and welfare of the loved ones in their care. “The thing that no one prepares you for Family caregivers assume 75 per- Example of a Huddol community dedicated to In September of this past year, The is the sheer intensity and scale of the recent of all the responsibility in car- caring for a child with epilepsy. Caregiver Network launched Huddol; sponsibility, in addition to knowing so ing for loved ones, making their the first social health network exclu- little about how to actually perform the role essential but also a potential health porting families caring for a child with sively dedicated to making sure care- tasks that are being asked of you,” said hazard for both parties. The negative epilepsy. It increases their odds of suc- giving Canadians can have access to Donna, caregiver to her son and mother. consequences of caregiving on a care- cess as they move through a complex their respective care team. “That’s scary when someone’s life is in givers’ health are well documented and experience.” your hands.” include higher mortality rates, mental Huddol is a major social innovation health issues, poverty, and social isola- Huddol is being co-funded by Telus born from over 15 years of experience Huddol helps caregivers get answers tion to name just a few. and the New Horizons for Seniors Pro- helping caregivers across the country to critical health and life questions by gram of the Government of Canada. and countless hours of creative and networking the intelligence of people Dr. Sasha Dubrovsky, Emergency Room technological development. Consid- who have “been there and done that”. doctor at the Montreal’s Children’s Hos- Families interested in joining the Hud- ering the future of healthcare and the Huddol is free and easy to use. You tell pital and caregiver to his son Zach who dol community can visit huddol.com growing expectation being placed on Huddol a little or as much as you want has epilepsy, is benefitting from the or download the app on the Apple families, the time is now for a major about your care situation (it’s designed network. “Huddol is dedicated to sup- store website. k

daunting, as they don’t feel adequately Post-secondary students access assistive informed. technology with help of parents Fortunately, Adaptech provides parents with bilingual, updated information on By Alice Havel, Laura King, Maegan Harvison, and Christine Vo free and inexpensive computer technol- In May of 2017, the Adaptech Research nology staff, digital publishers and se- ogies for post-secondary students with Network hosted a three-day conference nior administrators. disabilities (http://www.adaptech.org/ at Dawson College, focusing on stake- en/research/fandi). holder perspectives regarding technol- Six post-secondary students with dis- Adaptech describes built-in accessibility ogy and its accessibility for students with abilities were invited to participate in a Members of the student panel at disabilities in post-secondary education. panel discussion on the topic of tech- features, software and hardware for Win- the Ed-ICT International Network dows and Macintosh computers, as well This was the second of five international nology, responded to questions such Conference held at Dawson College in conferences organized by the Ed-ICT as: what barriers have you encountered as mobile apps for Android and Apple Montreal, May 2017. devices. The database is categorized by International Network, under the leader- in using technology effectively, who (Photo credit, Catherine Fichten) ship of Jane Seale of the Open Univer- should be involved in making technol- need (adapted keyboards, writing tools, sity of the United Kingdom, and funded ogy accessible and usable to students other student, blind since infancy, de- screen readers) which makes searching by the Leverhulme Trust. with disabilities, and who and what had scribed how her parents advocated for easier for non-techie types. Since the helped them access and use technolo- her until she was old enough to advo- conference taught us that parents often The goal of Ed-ICT is to explore new gy? Their responses were insightful, var- cate for herself. They made sure that she pave the way for their children’s aca- perspectives on how post-secondary in- ied and in some cases, surprising. had access to assistive technology, and demic success, checking out this data- stitutions can better use technology to taught her to use the right tool in her base is a must for parents who want to remove the ongoing barriers and exclu- One student who experienced a lengthy technology toolbox for the right job. expand their own toolboxes. sion of students with disabilities. Along rehabilitation process as a young adult, with representatives from five countries due to an acquired motor impairment, These two students reminded us that it is Adaptech is a team of academ- (Canada, USA, UK, Germany and Is- shared that her parents point out poten- not solely the responsibility of rehabili- ics, students and consumers. For in- rael), there were local participants from tially useful new technology to her. She tation centers and educational institu- formation, contact Alice Havel at various stakeholder groups including researches their suggestions on Google tions to help individuals access and use [email protected]. students with disabilities, disability ser- or YouTube to judge for herself whether technology; parents are also key stake- vice providers, faculty, computer tech- it is worthwhile to pursue further. An- holders. Some parents may find this k Fall 2017 / Winter 2018 - INSPIRATIONS 28 The Transforming Autism Care Consortium: An innovative and unique new autism research network By Nick Katalifos The chal- ees, and other highly qualified person- etc.), as well as the use of electroen- networks. lenges in- nel, with more professionals continuing cephalography (EEG), magnetic reso- dividuals to be recruited. The plan includes the nance imaging (MRI), and so on. The The vision of the TACC, supported by and their rapid development of a highly coordi- knowledge gathered from this database the consortium’s member institutions families nated autism research structure across will be actively exploited to build upon as well as a group of foundation part- face when our province. the rapid impact of research on autism ners, is broad and bold. Statistically, dealing with autism continues to be care. there is no doubt that autism affects an well document, and a wide variety of As such, the TACC’s combined knowl- enormous number of individuals and organizations are working diligently to edge in the area of autism research is Capacity building. The TACC intends to families, necessitating the continued, improve what is a complex situation. At meant to enhance actual care through develop innovative training programs coordinated development of research present, one out of 68 children receives a variety of means including: the im- and to fund major research initiatives initiatives that can potentially improve the diagnosis, representing a very sig- provement of access and availability of while offering trainees fellowships and lives while raising awareness. There nificant portion of the population. As research expertise and resources; col- mentoring in an effort to prepare re- is also little doubt that our province is daunting as the challenges may be, the laboration and coordination across in- sponsible, independent researchers. The home to a very significant number of autism community received some ex- stitutions, sectors and disciplines; the goal is not only to foster trainees’ sci- exceptional researchers working in the tremely encouraging news in Montreal integration of knowledge in practice entific skills but to develop leaders and field of autism. The TACC has success- on October 23, 2017, with the estab- and policy. Ultimately, this will help to information disseminators in the autism fully brought these individuals together, lishment of the Transforming Autism advance personalized care and to mod- community. ultimately attracting even more scien- Care Consortium (TACC), a formally el the future of services in autism. The tific talent to Quebec. designated thematic network by the TACC will pursue three main objectives. Integration of autism researchers from Fonds de recherche du Québec – Santé. all domains, and clinicians, educators, Nick Katalifos is the principal of Ros- The development of a database of 1,000 advocacy groups and government, to lyn Elementary School, the chairman TACC is the result of a united vision to families compiling cellular, brain and effectively communicate legitimate re- of Giant Steps School and Resource bring together the top autism research- behavioural profiles based on clinical search progress and discoveries. This Centre, a member of the TACC Steer- ers in Quebec, creating a world-class visits will benefit families directly while issue is of particular concern and in- ing Committee, and special advisor to hub of expertise. This unique initiative allowing them the opportunity to partic- volves the development of strategies to Inspirations. for collaboration brings together more ipate in research. A multi-site protocol encourage the highest possible level than 40 researchers from different insti- for this approach has been established. of knowledge dissemination. The goal For information, visit tutes in Quebec comprising seen uni- The latter includes genetic and genomic is to ensure active partnerships be- https://www.rtsa-tacc.com/program. versities (including McGill and Univer- analysis, behavioural and cognitive as- tween researchers and members of the sité de Montréal), five university health sessment (language, reasoning, percep- wider community, including decision centres, and over 200 clinicians, train- tion, interests and sensory processing, makers in health, education and social k

jobs and social opportunities. The orga- ing list for group homes and we’re be- nization provided seed money to create ing told not to even apply because the Club ALink builds social programs, which The ADATH in spaces are reserved for those in crisis.” Hampstead is now hosting on Saturday community, breaks isolation and Sunday afternoons. Dr. Shari Brotman, a professor in Mc- Gill’s School of Social Work, recently ALink has also started a Compatibil- produced a report on supportive hous- of young adults ity Project. They interview young adults ing models, and ALink is now using By Wendy Singer and their families, and connect those that report as a blueprint for moving with similar interests and abilities. “We forward. Its monthly housing meetings Club ALink is a new support organiza- lation as is usually the case,” says Sugar realized quickly that we couldn’t just are open to all parents, guardians and tion in Montreal for families with young Miller. “The response has been over- throw everybody into one room and call support workers. adults aged 18 to 40 who have neurodi- whelming. There are so many wonderful it a social gathering,” says Sugar Miller. verse challenges. Founded last year by organizations and people here in Mon- “That would be like throwing everybody For information about Club ALink’s two parents, Helene Donath and Harriet treal who are dedicated to improving with blue eyes into a program and tell- housing committee, visit Club Sugar Miller, ALink’s mission is to cre- the world, and we’re creating alliances ing them to get along because they have ALink’s Facebook page. To partici- ate an inclusive community for young among them that are synergistic. It’s a the same colour eyes.” pate in the social programs or to adults with special needs. win, win, win for all of us.” set up an interview for the Compat- ALink is also mobilizing families to ibility Project, contact Kelly Grevatt at “We want to build a community in Recently, Federation CJA conducted fo- work together to create housing options. [email protected]. which our young adults live, work and cus groups with families and identified “The situation is deplorable,” says Sugar play side by side with others, not in iso- the community’s needs such as housing, Miller. “There is a 12 to 14-year wait- k 29 Fall 2017 / Winter 2018 - INSPIRATIONS Students pitch in to Permettez-moi de distribute Inspirations saluer l’engagement et la générosité By Wendy Singer exceptionnelle de While Inspirations is dis- toutes les personnes tributed via many routes, contribuant au one of the most effective Journal Inspirations! ways of reaching families, teachers and administrators is through our internal Allow me to salute school board distribution. the commitment We are fortunate to have tremendous partnerships and exceptional with students at CDC Vi- generosity of mont of the Sir Wilfrid Jacques Chagnon Laurier School Board (with Député de | Member for everyone at Heather Halman, director CDC Vimont students, teachers and attendants bundle Inspirations at CDC Inspirations Newspaper Vimont for SWLSB schools. (Photo credit, CDC Vimont) Westmount–Saint-Louis of Adult Education at CDC Laurier), and the LIFE Centre of the Lester 1134, rue Sainte-Catherine O. B. Pearson School Board (with Catherine Bureau 801 Burrell, special education technician at the Montréal (Québec) H3B 1H4 LIFE Centre). Students prepare bundles of In- 514 395-2929 spirations for school in their boards, provid- [email protected] ing an invaluable service to Inspirations and the community, and gaining valuable work experience in the process. LIFE Centre’s Alex Slater proudly did an amazing job The 2017 Dynamic Funds Caregiver of Last spring, LIFE students partnered with packaging Inspirations. their peers from Lindsay Place High School, (Photo credit, Catherine Burrell) Inspiration 2017: making this a collaborative, inclusive proj- Naomi Ellingsen. These fabulous students Celebrating Catherine Burrell ect. “Our main worker, Alex Slater, was prepare our external mailing in record time, proud to do this job. It was very successful,” and are efficient, accurate, and fun to work shared Burrell. With the arrival of the Fall On June 14, the LIFE with. They also takes a few bundles to dis- 2017 / Winter 2018 edition, we welcome Centre students and staff tribute by foot to readers located near their John Grant High School Students (English celebrated Catherine school. Montreal School Board) to the distribution Burrell at a joyful cer- team! emony at Lindsay Place Delivering Inspirations to you is a team ef- High School. Special fort. Special thanks to all of our students For the past seven years, Inspirations has Education Technician who do such a great job – we couldn’t do partnered with Summit School’s T.E.C.C, first Burrell was instrumental it without you. collaborating with Jesse Heffring, and now in the creation of the LIFE k (Learning Independence through Functional Edu- cation) program at the Lester B. Pearson School Board in 2012. Burrell embraced the opportunity to celebrate with her students and colleagues, including teacher Cindy Andersen and Diisa Niemi, vice-principal of Horizon High School. (Photo credit, LIFE program) Célébrons nos communautés inclusives Celebrating inclusive communities THANK YOU TO OUR GENEROUS DONORS Make It Matter The EMSB Database of Special Needs Resources First Quebec Holdings has over 500 listings Helen and Leonard Constantine Share your resource with us at All donors who contributed to Team Inspirations, [email protected] Scotia Bank Charity Challenge www.inspirationsnews.com/database.html Fall 2017 / Winter 2018 - INSPIRATIONS 30 able to demonstrate, have an inherent the foundation’s principal motivator and curiosity about people, and form close founder. A concerned bonds with others. Dubé began developing an interest in From Angelman Quebec’s creation in Angelman syndrome when her son, mother 2005, it took around eight years for Luca’s diagnosis was not initially con- members to raise $2 million to fund firmed at a Montreal pediatric hospital. laid the projects. One of the first a little more Luca, now 16, was then three years old than two years ago was the purchase of and had been having intractable seizures a former commercial/industrial building for two years. “We tried all the medica- groundwork in Pierrrefonds, which was renovated tions, all the combinations,” his mother and repurposed to become the founda- said, adding nothing worked. Dubé, for Angelman tion’s headquarters. a psychotherapist by profession, was alerted to Angelman syndrome through Because the building’s previous owner the web. When she shared the informa- Quebec was a retailer/installer of hot tubs and tion with the hospital, they said her son swimming pools, it came with three didn’t fit the profile. Since she was preg- By Martin C. Barry pools, two of which remain in use today nant at the time, Dubé was concerned for some of the foundation’s programs. her second child may be born with the But by far, respite is the centre’s most syndrome. The Quebec Angelman Syndrome valuable service. Foundation, which provides respite and Sophie Dubé in an exercise room at Some weeks later, following genetic day care for children and their families Angelman Quebec’s respite centre. Since caring for children with Angelman testing, Dubé was summoned to the affected by Angelman syndrome, was syndrome is demanding, it is common hospital where staff confirmed Luca did born from a parent’s determination to portive in nature and no cure is current- for families to feel exhausted and at a have Angelman syndrome. After that, get at the truth about a mysterious con- ly available. loss. As such, the respite centre provides the energy that drove Dubé to find the dition that her son had. a much needed break. underlying cause of her son’s problems While the syndrome is named after Brit- turned into a determination to establish Angelman syndrome is a rare genetic ish pediatrician Harry Angelman who At the centre, angels participate in ac- the Angelman Quebec Foundation. and neurological disorder that occurs first described it in 1965, those that have tivities, including swimming, music in one in 15,000 live births. It causes it are often affectionately referred to as therapy, cycling, occupational thera- Today, Angelman Quebec’s member- general developmental delays, epilepsy “angels” by their parents or caregivers. py, augmentative speech therapy, and ship includes up to 80 families. “We’re and absence of speech. Despite these The portrait of a typical angel includes multi-sensory stimulation provided in a a large community,” said Dubé. “People features, Angelman syndrome remains global developmental delays, absence specially-designed sensory room. come from far and wide – from Ottawa, unfamiliar to most people. of speech, epilepsy, walking and bal- Sherbrooke, Quebec City – for our gath- ance problems, sleep disturbances, as Although Angelman Quebec caters spe- erings, our walk-a-thon, our Christmas What’s more, it is often misdiagnosed well as frequent smiling, laughing and cifically to those with Angelman syn- parties.” as autism or cerebral palsy. Individuals a seemingly happy demeanour. Accord- drome, the foundation’s services are with Angelman syndrome require life- ing to Angelman Quebec, angels under- open to anyone with autism or an in- For information visit www.angelman.ca. long care. Treatment is generally sup- stand a lot more than they are usually tellectual disability, says Sophie Dubé, k our children with tools and information Children need to be taught the real to make the best possible choices in facts about drugs, including the impact How to talk about drugs so the moment. To do so, adults must have they have on brain development, the frank and honest conversations about reasons why teens are more likely to kids will listen these issues on a regular basis. use and become addicted to drugs, and the short and long-term effects that By Tamara Schwager Research indicates that by the age of drugs have on their bodies and their 13, more than 30 percent of Canadian relationships. This information should Talking to kids about drugs can some- op, the way they understand and expe- students have already tried marijuana be shared with them openly and with times feel like traversing a minefield. In rience the world changes. Growth and at least once. Children who have tried as little judgment as possible. Rein- order to have “The Talk” in a way that development rates vary considerably, marijuana are also more likely to engage force the message that they can come kids respond, we first need to under- however, research has shown that our in other risk-taking behaviours such as to you with any questions or concerns. stand how their brains work and de- prefrontal cortex (the area of our brain underage drinking, promiscuous sexual Encourage their curiosity and honesty velop. that helps us to determine risk, make activity and gambling. Waiting to talk and promise to help them find what- decisions and react in social situations) to kids about drugs can result in more ever information they need. Talk to Tween and teen years are largely a time is not fully developed until close to the instances of drug use than would have them about the pressures they face of identity development, exploration age of 30. Most children and teens are otherwise occurred. Starting the conver- and share your own experiences. Help and meaning making. In this period, not in the position to make prudent or sation about healthy versus unhealthy them identify healthy coping strategies children’s brains are working overtime well-informed decisions. lifestyle choices from as young as Grade to take in, process and make sense of 3 can help lay the groundwork for con- Continued on page 38 new information. As their brains devel- Our ultimate job as caregivers is to equip tinued discussions. 31 Fall 2017 / Winter 2018 - INSPIRATIONS

The Special People Have Director’s Dreams 5th Anniversary debut: The Celebration talent show troupe perform story behind at Lindsay Place the scenes High School.

By Steven Atme tance from society as people, sharing amazed, they had no idea what was in our ideas and talents, and discourage- store for them. There was laughter and It was May 2016 when I realized the 24, 2016, at Centre Greene in West- ment from achieving our dreams. Those many tears. following year would mark the fifth an- mount. Our first few meetings included were the main reasons why I organized niversary of my speech, Special People a discussion of ideas for skits; both in- the Special People Have Dreams 5th Our team did an amazing job. Congrat- Have Dreams. After trying to decide dividual and as a group. Everyone was Anniversary Celebration talent show. ulations to George Broussalis, Gabriel what to do, an idea came to mind: to happy to be part of this journey, fulfill- Volunteers helped us rehearse our lines, Fadda, Fareed Gul, Asmin Hernandez, organize and direct a variety show for ing their dreams and inspiring others. I backstage support, music, and sound ef- Samuel Lewis, Melissa Nower, Alrica adults with special needs. Why not already knew most of the participants fects. Seven months later, on April 29, Phagu, and Lucciano Vezina for a spec- do something different? I shared my because they are my friends. Some have 2017, the show took place at Lindsay tacular performance. I wish them all the thoughts with my family and they agreed done shows before, others were new to Place High School Auditorium. It was a best and to never stop following their it was a good idea. the stage. Our troupe included actors, major success! dreams. a guitarist and songwriter, singers, and It was very exciting and challenging to two of my piano students. The “Magnificent Eight” were outstand- A talent represents a person, a composi- implement this idea, but I was up for it. ing. They were naturals on stage, and tion and a message. A dream can come I began the project by finding talented Seeing everyone getting along and col- had a blast. While I acted as host, the to life. It begins with them. people who would like to participate in laborating as a team was beautiful. We troupe and I performed original skits, the show through Facebook. felt like a family because we’ve all lived some that were adapted from mov- Watch videos from the show on Steven’s through the same obstacles: struggling ies and television shows, and played Facebook page. The first day of rehearsal was September with our disabilities, gaining accep- musical numbers. The audience was k

Depending on the sensory profile, these Solidity and durability: Some children Improving sleep for children stimuli could cause reactions (tantrum, with ASD may break objects if they anxiety, excitement, avoidance or in- have a tantrum, or in response to sen- difference). The bedroom should not sory stimuli. To ensure their safety, toys, with ASD: over-stimulate your child. It should be windows and furniture in the bedroom Importance of the bedroom design a safe place in which your child wants should be solid. Securing furniture to to sleep. Observing which stimuli are the floor is also a good idea. By Audrey Bigras problematic for your child may be help- ful. It is true that children with ASD have Chloé wakes up frequently in the cap (CRISPESH) obtained an applied special needs. However, these guide- night every time she hears a tiny noise research grant in which we established Noise and light reduced: The bedroom lines can be as beneficial for them as in the house. William tears off the post- a framework for helping parents in de- should be a quiet place, without dis- they can be for neurotypical children. A ers in his bedroom when he feels anx- signing bedrooms adapted for children turbing lights or scary noises (squeaking minimalist environment and a bedtime ious. Rose wakes up before sunrise and with ASD, based on their sensory needs. floors, plumbing). Thus, an aggressive routine could be great for everyone. feels tired during her school day. 95 percent of children with ASD have alarm clock might not be the best way sensory disorders2 (hypersensitivity or to wake up. Isolation from indoor and For information, visit crispesh.com or Sleep issues affect 60 to 80 percent of hyposensitivity). Hence, it’s important to outdoor sound is primordial. Parents facebook.com/crispesh. Audrey Bi- children with autism spectrum disorder consider them. must also pay attention to the light in the gras is a research professional and (ASD)1, for example, insomnia, night- bedroom: minimize artificial and natu- was the project coordinator at CRISP- mares, frequent waking during the night How can you design an ASD friendly ral light through the windows because it ESH for this grant. Contact Audrey at or perturbed sleep patterns (sleeping bedroom? could be distracting. A dark bedroom is [email protected]. during the day, waking up very early…). healthier for sleeping.

These issues can negatively affect chil- Adaptation to the sensory profile: Many 1 Hôpital Rivière-des-Prairies (2014), Le sommeil dren and the day-to-day lives of their children with ASD can be hypersensi- Stability and routine: Many children des enfants ayant un trouble du spectre de l’autisme families. with ASD appreciate predictability in (TSA). Repéré à http://hrdp.qc.ca/webconcepteurcon- tive, in one or more than one sense (see- tent63/000023260000/upload/godbout/AUTISTEwe- ing, touching, hearing, smelling…). In their sleep environment, especially if bv2.pdf. Last year, Le Centre de recherche pour a bedroom, there are sensory stimuli: they can control it. Plus, establishing a 2 Stanciu, R. et Delvenne, V. (2006). Traitement de l’information sensorielle dans les troubles du spec- l’inclusion scolaire et professionnelle mirror on the wall, smell of the pillow, good bedtime routine is a win-win situ- tre autistique. Neuropsychiatrie de l’enfance et de des étudiants en situation de handi- textile of the blanket and other stimuli. ation for all. l’adolescence, 64(3), 155-162 Fall 2017 / Winter 2018 - INSPIRATIONS 32 Arts & Entertainment

The art of being ternational Atelier for Education and Art casionally supervised by job coach Sonia Therapy Michel de la Chenelière. This Isidoro-Marzano. Alescio takes pride in unique sparks innovative program is offered to persons describing his challenges, achievements living with autism spectrum disorder or and busy lifestyle. In addition to his stage, enthusiasm at intellectual challenges. It includes four he holds two part-time jobs. sections: work training internship, school Montreal Museum visits, art classes and research. “I play drums and I am good at working with my hands,” says Alescio, joining in of Fine Arts MMFA’s educational programs reach out the conversation. “I like it here. Every- By Elaine Cohen to the special needs community by fo- body knows and greets me. I like to work MMFA Education Officer of Well-being cusing on education, well-being or art slowly and carefully with a power drill to Louise Giroux, intern Emmanuel Alescio It’s noon-time downtown and passersby therapy. Sharing the Museum has been make sure everything turns out perfectly.” and job coach Sonia Isidoro-Marzano stop in front of the Montreal Museum of in existence for 18 years and The Art of discuss The Art of Being Unique Fine Arts (MMFA) to admire artist Dale Being Unique for two, MMFA’s Education By the time his internship ends in No- program. Chihuly’s stunning The Sun, a luminous Officer of Well-being Louise Giroux ex- vember 2017, Alescio will have acquired glass-blown structure. They are mesmer- numerous skills as well as matured so- plained. “As for the work training intern- Vania Aguiar, mother of a son with in- ized by its majestic stature but unaware of cially and intellectually, note Giroux and ship section of The Art of Being Unique tellectual challenges and founder of La the intricacies involved connecting 1,400 Isidoro-Marzano. “He can perform tasks program, we accept one or two interns at Fondation Les Petits Rois, initiated the sun ray wires. that involve multiple steps,” said Isidoro- a time and with our Sharing the Museum program two years ago. ”We called it The Marzano, explaining how he operates program, we have reached out to over Art of Being Unique, and Aguiar loves it Montrealer Emmanuel Alescio contrib- power tools. “We marked out all the steps 450 community organizations through- as it highlights the essence of the idea,” uted to the wiring component. Alescio is and taught him how to measure, cut and out the years.” Giroux pointed out. completing a one-year socio-professional sort wires. He knows how to navigate the integration internship geared for indi- building, deliver supplies and refill ma- Alescio was referred by CRDI-TED Miri- For information, visit www.mbam.qc.ca. viduals ages 21 and older in The Art of am. He works at MMFA twice a week un- chines. We have created strategies, so he Being Unique program at the MMFA’s In- der the tutelage of Giroux and he is oc- can work independently.” k 33 Fall 2017 / Winter 2018 - INSPIRATIONS Arts & Entertainment

Seeing vision loss Keanna, helps her maneuver the con- The obvious thing about Mintz is her struction-laden streets of Notre-Dame- quick wit and humour. “I’m not the through a de-Grâce. “Blindness did not come as poster child for visual impairment,” she a surprise to me. Diabetic retinopathy laughs. “I teach in a way that’s not judg- humourous lense is not uncommon in diabetics,” says mental, just funny. That makes people Mintz. “It could have been my kidneys feel better about learning.” By Wendy Singer or my heart as well, so I’m grateful. As Disability awareness advocate and long as I can live and laugh and com- When Mintz performs stand-up at local amateur stand-up comedian Tina Mintz municate, I’m fine.” comedy venues, she presents observa- has a natural ability to find the funny in tions about blindness and the awkward- just about any situation. Mintz provides disability awareness ness of the public. She describes the training in English and French with phenomenon of well-intentioned peo- Diagnosed with juvenile diabetes at the Kéroul (a Québec organization that fo- ple holding the door open for her. But if age of eight, Mintz continuously battles cuses on tourism and culture for people you don’t alert her to your presence, she to regulate her blood sugar levels. At the with restricted physical ability) to groups will not be aware of your consideration! age of 25, she lost all sight in her left eye interested in learning how to serve those As another example, she describes the due to a retinal hemorrhage, and sub- with diverse needs. “The information I surprises she’s had while relying on Tina Mintz and Keanna enjoy a sequently a detached retina, glaucoma, share is often new to students and em- touch to interpret her surroundings. summer morning together in and a cataract. Currently with only four ployees. I hear a lot of ‘Oh, I never Mintz related her shock at her first en- Notre-Dame-de-Grâce. thought of that,’” shares Mintz. counter with an automatic dispenser of to eight percent of vision in her right eye Mintz has lived for 32 years without her foamy soap with much good natured due to scar tissue after a retinal hem- vision. Between her hobby of stand-up When providing trainings in schools, humour. orrhage, she relies on brightness and comedy, her trainings, and dog-sitting, students follow Keanna as she travels contrast to capitalize on her remaining she leads a busy life. “I have to be very from one location to another. This deep- An information and trivia junkie, Mintz vision. sad or have low blood sugar to not see ens their understanding of challenges understands Braille and enjoys audio the funny. I may have lost one sense, but faced by those who are blind, and the books. She resists using assistive tech- At the time of her vision loss, Mintz thank goodness my sense of humour focus a guide dog needs to properly do nology or a cell phone, resenting the was months away from beginning her kicked in,” she jokes. studies in journalism at Concordia Uni- its job. Mintz imparts two important built-in obsolescence of the devices, and electronic clutter. “The more people versity. With the assistance of her first messages in these sessions: “Remember Mintz and Keanna provide bilingual dis- staring at the screens the more people I guide dog from Leader Dogs for the to check in with a blind person. Let us ability awareness trainings to schools bump into. They don’t look up and no- Blind in Michigan, a voice synthesizer know you’re there and who you are. If and organizations. For information, tice,” says Mintz. “When sighted-people and a tape recorder, she completed her you are an employee in a store, say ‘I contact Kéroul at [email protected] or have blinders on they are less verbal, degree. work here’. Secondly, ask: ‘May I help (514) 252-3104. you’? If the answer is yes, ask, ‘How less likely to help. That’s a problem to a Mintz’ loyal Golden Lab guide dog, may I help you?’” blind person.” k

The Western Wall for all The Western Wall People from all over the world stand there united Prayers of all types are emotionally recited for all Some expressing joy, some expressing pain But not a single tear is shed in vain All types of people, from all types of places By Rivky Hershkop All stand there with tears rolling down their faces Praying for livelihood, success and wealth Or a complete recovery for other people’s health Rivky Hershkop is a Grade Even soldiers stand there 7 student at Beth Rivkah For their lives they do fear Academy. With war raging on It’s hard to stay calm People with illness, who are sick or special needs Rivky Hershkop’s interpretation of the Western Wall (Western Wall) in Jerusalem. People whose minds work at different speeds Fall 2017 / Winter 2018 - INSPIRATIONS 34

SAN FRANCISCO Adapted Travel By Mike Cohen

In the beautiful city of San Francisco, mantic mood in this most European of dim sum lunch or witness the making of a busy day. I enjoyed the breakfast buffet where my family spent a week on holi- American cities. fortune cookies. at the hotel a couple of times during my day last summer, most major museums stay. It was terrific! and tourist attractions have wheelchair We built our week-long itinerary care- Do consider purchasing the San Francis- ramps. Many hotels offer special accom- fully. One of the nicest things about vis- co CityPASS, which saves travellers up There are accessible guest rooms with modations and services for wheelchair iting San Francisco is that, although the to 42 percent off combined admission mobility features, entry or passage users and other visitors with disabilities. city is “big” in terms of attractions and to top attractions. doors that provide 32 inches as well For the latter, an access guide is avail- amenities, it is geographically small – as special provisions for parking, entry able online or via mail (at no cost) at only 49 square miles. Consequently, it WHERE TO STAY ways, swimming, Braille on the eleva- www.sftravel.com. The Mayor’s Office is very easy to see and do a great many We were excited to get accommoda- tors, closed captioning on televisions things in a short period of time. tions at the Hilton San Francisco Union or closed captioning decoders, TDD Square (www.sanfrancisco.hilton.com), devices, a digital alarm clock available It is also easy to spend weeks located in the theatre district and with- with sound and a vibrating pad, grab in San Francisco and still not in walking distance to cable cars, the bars in bathroom, shower baths or roll experience everything the Moscone Center and about one mile in showers, an inflatable chair available city has to offer. The Golden from night clubs, Chinatown and Nob to assist in getting in and out of a bath Gate Bridge, the most famous Hill. Macy’s and the Westfield San Fran- and a level or ramp entrance into the bridge in the world, manages cisco Center are only a few blocks away. building. to impress even the most experienced travelers with its stun- This historic three-tower hotel provides EMBASSY SUITES AIRPORT ning 1.7-mile span. rooms with city views, the Cityscape Here is a tip when arriving in San Fran- lounge on the 46th floor and a ballroom cisco in the middle of the evening. Why Fisherman’s Wharf is also A look at part of the beautiful suite at the Hilton that occupies an entire floor. You can head to your main hotel right away? We home to Pier 39, a festive wa- San Francisco Union Square. relax on their 16th floor pool deck. It’s checked into the modern Embassy Suites terfront marketplace that is one only 14 miles from the San Francisco In- by Hilton San Francisco Airport hotel. on Disability is responsible for ensuring of the city’s most popular attractions. ternational Airport. There are more than Here you can enjoy spacious accom- that all public city and county services, A community of California sea lions 1,900 rooms here, making it the largest modations in this all-suite hotel, where facilities and programs are fully acces- has taken up residence on the floats in hotel on the West Coast. a separate living area and bedroom are sible to people with disabilities. The the Pier39 Marina and visitors line the standard features. The flexible rooms guide provides essential information for nearby railing to watch their antics. We stayed in one of the hotel’s newly have tiered Wi-Fi available and conve- anyone planning an accessible (ADA) From there it’s a short walk to the San renovated Tower Two Luxury suites, nient, delicious dining options at your trip to San Francisco. The 32-page pub- Francisco Dungeon and Madame Tus- which has a main bedroom with two fingertips. Their daily cooked-to-order lication offers detailed information for sauds, Ripley’s Believe It or Not! and Queen size beds and a small sofa. This breakfast and evening receptions with individuals with disabilities on more the famous crab vendors selling walk- connects to a much larger room – called drinks are included in all reservations. than 150 San Francisco hotels, restau- away crab and shrimp cocktails. Union a parlor – which features a Murphy bed, They offer a complimentary shuttle bus rants, museums, attractions, shopping Square is the place for serious shop- two sofas, a round dining room table service to and from the airport, a free centers, recreation, public transporta- pers. Major department stores and the that can seat six and windows on all daily trolley to and from Burlingame tion and service providers. most exclusive designer boutiques line sides. Combined you have two bath- (11:30 a.m. to 9:00 p.m.) and a com- streets like Post, Sutter, Geary, Grant, rooms, two fridges, two in-room safes, plimentary motor coach to downtown EVERBODY’S Stockton and Powell. The Westfield San more cupboard space, which adds up San Francisco on Fridays and Saturdays. FAVOURITE CITY Francisco Shopping Centre houses the to ultra-comfort. There is also a tablet in The hotel is located 10 miles south of San Francisco is often called “Every- largest Bloomingdale’s outside of New each room, which provides you with all downtown San Francisco. You can take body’s Favorite City,” a title earned by York and the second largest Nordstrom of the necessary hotel and city informa- a refreshing swim in their indoor on-site its scenic beauty, cultural attractions, in the U.S. tion. For a nominal charge you can surf swimming pool, or check out the fitness diverse communities, and world-class the net with it as well. center. The tropical atrium, perfect for cuisine. Measuring 49 square miles, The entrance to Chinatown at Grant relaxing after work or a day out, fea- this very walkable city is dotted with Avenue and Bush Street is called the Classic guest rooms offer HDTV and tures a beautiful koi fish pond and water landmarks like the Golden Gate Bridge, “Dragon’s Gate”. Inside are 24 blocks of Wi-Fi access while ultra-modern rooms fountain. The on-site restaurant is called cable cars, Alcatraz and the largest Chi- hustle and bustle, most of it taking place showcase city skyline or bay views. Two Fifty and there is also a Starbucks natown in the United States. A stroll of along Grant Avenue, the oldest street in Accessible rooms are also available. on site. I really felt at home here and the city’s streets can lead from Union San Francisco. This city within a city is There’s plenty of choice for dining here. enjoyed the ambience of the gigantic Square to North Beach to Fisherman’s best explored on foot; exotic shops, re- Head to Herb ‘N Kitchen where you can lobby where I connected to free Wi-Fi Wharf, with intriguing neighborhoods nowned restaurants, food markets, tem- eat your way – sit down, grab and go, or and got a lot of work done squeezed be- to explore at every turn. Views of the ples and small museums comprise its order to your room. Urban Tavern is the tween some Netflix binge watching. Pacific Ocean and San Francisco Bay boundaries. Visitors can buy ancient po- place to be for breakfast and the Lobby are often laced with fog, creating a ro- tions from herb shops, relax and enjoy a Bar is the perfect setting to unwind after The hotel is fully accessible, with a wide Continued on page 35 35 Fall 2017 / Winter 2018 - INSPIRATIONS

... continued from page 34... SAN FRANCISCO | Adapted Travel | By Mike Cohen front entrance, wide hallways, several the remarkable Muir Woods National prepared elevators, walkways above the tropical Monument and the grove of coastal Se- for walk- atrium. There is easy access to the pool quoias (Redwoods) - the tallest trees in ing long as well. Service animals are permitted. the world! The Muir Woods tour took us distances across the Golden Gate Bridge, past the uphill. The The hotel is located at 250 Gate- Marin Headlands, and into a magical distance way Boulevard. For more informa- Redwood forest known as Muir Woods. from the tion call (650) 589-3400 or log on to Once we had a special opportunity to dock to www.sanfranciscoairportsouthsanfran. walk amongst these Sequoia trees. This the prison embassysuites.com. walkway is fully wheelchair accessible. at the top of the is- HOP-ON, HOP-OFF BUS We spent about 90 minutes in the Red- land is For our first full day in San Francisco wood grove. The tour then moved on to about 1/4 Alcatraz is a major attraction. picturesque Sausalito, California, where mile (0.4 it was a no brainer to take the hop- no wheelchairs available for loan either we had a chance to shop, visit art gal- km) and the elevation change is 130 on, hop-off Big Bus tour. You can buy on Alcatraz Island or at the Pier 33 Al- leries and have lunch all while gazing feet (40 meters). This is equivalent to your tickets in multiple ways. Log on catraz Landing. Large-print and Braille across the bay at beautiful San Francis- climbing a 13-storey building. Visitors to www.bigbustours.com and click on transcriptions of the Cellhouse Audio co. Tour prices are $45 for children and unable to make the climb up Alcatraz’s the San Francisco section as this com- Tour and other interpretive materials are $60 for adults. This does not include the steep road can take advantage of SEAT- pany operates across the globe. Down- available upon request. load the free App before you go. In a $10 entrance fee to the Muir Woods Na- Sustainable Easy Access Transport - an tional Park. electric shuttle that runs twice an hour city like San Francisco with stunning Alcatraz Landing at Pier 33 in San Fran- from the dock to the prison building, bays, bridges and hills, this bus tour is cisco is fully accessible. There is limited and twice an hour from the front of the perfect way to sightsee. As for ac- ESCAPE TO ALCATRAZ accessible parking at Pier 33, available the prison back to the dock. Boarding cessibility, Big Bus tours does operate I have always been fascinated by Alca- on a first-come, first-served basis. Indi- is available on a first come, first served wheelchair accessible vehicles with traz, once home to some of America’s viduals need to show their permanent or basis. Anyone with a health condition or lifts that can accommodate a weight up most notorious criminals. The federal temporary disabled placard at the entry physical disability which limits mobility to 650 pounds. The entire fleet in San penitentiary that operated here from of Pier 33 to utilize the accessible park- qualifies for a ride on SEAT. The use of Francisco is not wheelchair accessible. 1934 to 1963 brought a dark mystique ing spaces. In addition, an Accessibility SEAT is limited to those with the physi- If you or your travelling partner(s) re- to the Rock as the presence of infamous Drop Off zone is available at Alcatraz cal need only. Family and friends, who quires an ADA accessible vehicle, con- inmates like Al “Scarface” Capone, and Landing entrance for visitors with spe- are physically able to make the walk, tact the company 48 hours prior to your the “Birdman” Robert Stroud helped to cial needs arriving by automobile. For are advised to walk to the designated planned tour commencement. They establish the island’s notoriety. To this further information on Alcatraz accessi- arrival area to meet SEAT passengers. can then arrange for a suitable vehicle day, Alcatraz is best known as one of the bility, please call the National Park Ser- One personal attendant is permitted for to be available at the time and location world’s most legendary prisons. A visit to vice at (415) 561-4900. required. Passengers with mobility im- Alcatraz is high on every San Francisco those who physically cannot board/dis- pairments may not be able to access the tourist’s list. We booked our tickets via embark the tram under their own power upper deck. Alcatraz Cruises (www.alcatrazcruises. or cannot be safely left alone. Common CALIFORNIA ACADEMY OF com), the National Park Service conces- examples of those needing an attendant SCIENCE MUIR WOODS AND sioner of ferry service to Alcatraz Island are visitors who are in wheelchairs and The California Academy of Sciences the visually impaired. Children of any (http://www.calacademy.org) is home to SAUSOLITO in San Francisco Bay. Plan about two and a half hours for your visit. age, on foot or in strollers, must meet an aquarium, planetarium, natural his- Via Best Bay Tours (https://best- the above qualifications or be under the tory museum, and research and educa- bayareatours.com), we experienced care of a qualifying parent. There are Much of Alcatraz is steep and hilly, so be Continued on page 36 Fall 2017 / Winter 2018 - INSPIRATIONS 36

... continued from page 35... SAN FRANCISCO | Adapted Travel | By Mike Cohen

tion programs, which engage people of guides are available with two weeks cisco Playhouse (http://sfplayhouse.org) and operated by the Simmons family, all ages and backgrounds on two of the prior notice. For more information, or to presents a diverse line up of shows from who created and built Pier 39, they own most important topics of our time: life book a service, call the Contact Center cutting edge, bold plays direct from three other restaurants - the Fog Harbor and its sustainability. Based in San Fran- at (415) 379-8000 or see their Plan Your Broadway runs to innovative musicals Fish House, the Wipeout Bar & Grill and cisco’s Golden Gate Park, it’s remark- Visit page. like Bloody Bloody Andrew Jackson or the Biscoff Coffee Corner. able what is housed all under one living classics. The Playhouse has a cool bar For the hearing impaired, transcripts and happy hour, as well as the diverse The restaurant is very much wheelchair are available for all regularly scheduled entertainment offering, presenting a accessible; in fact the entire pier is beau- Planetarium shows and other multime- wide range of theatre including pre- tifully set up to accommodate those in dia in the Academy, and assistive listen- mieres by new writers, all in an intimate wheelchairs. ing transmitters are positioned in the setting of 200 seats. They are in perfor- Planetarium, Earthquake Mini-Dome mances throughout the year, so there Log on to www.piermarket.com for Theater, and Earthquake Shake House is always something for people to see. more information. exhibit. Any interpreter accompanying a I’d make this an automatic stop for any deaf or hearing-impaired visitor (for the planned trip to San Francisco. You can DINNER CRUISE purpose of interpreting) is admitted free find the full lineup of their productions We had a wonderful evening on of charge. Additionally, sign-language planned through September 2018 on the Hornblower Dining Cruise interpreters for the Planetarium, the 3D their website. There is elevator service. (www.hornblower.com). You’re not truly theater in the Forum, and exhibit tours a San Franciscan, we were told, un- are available with two weeks prior no- JOHN’S GRILL til you cruise the Bay! With the Horn- tice. To book a service, call the Contact There is a very historic restaurant in San blower you can embark upon an ex- Center at (415) 379-8000. Francisco called John’s Grill (www.john- quisite brunch, lunch, or dinner cruise, sgrill.com). This is one of the city’s old- feast on shimmering Bay views of the DINNER AT FARALLON AND est and most famous dining establish- Golden Gate Bridge and Bay Bridge, SHOW ments, born in 1908, known for its great and take it that gorgeous city skyline. We came upon the ideal dinner and steaks, seafood, salads and pastas and There is great food, special cocktails, show combination under the same roof the price is indeed right. The restaurant champagne, live music, and the most of the Kensington Hotel at Union Square was actually a setting in author Dashiell stunning views in town. We chose a A look at Farallon Restaurant. - a fabulous meal at Farallon Restaurant Hammett’s The Maltese Falcon. You will three-hour dinner cruise, complete with (www.farallonrestaurant.com), followed be impressed with the interior, complete a four-course seated dinner. Our server by an evening at the San Francisco with original period furnishings as well Lupita welcomed us to our table with roof. The Academy’s entrance and exits Playhouse and a presentation of the La as a kind of virtual museum of authentic some glasses of sparkling wine, sum- are fully wheelchair-accessible from Cage Aux Folles, which we thoroughly memorabilia. Little did we realize that mer spinach salads and a basket of fresh either street level or the underground enjoyed. The dinner and a show promo- there were two more floors and a total bread. We each enjoyed some piping parking garage. All entrance lines action that Farallon has with the Playhouse capacity for nearly 300 diners. Last year hot tomato basil soup and ordered the commodate wheelchairs. The Academy is a $49 three-course prix fixe dinner. they installed an elevator for patrons in herb roasted chicken breast, with risotto is fully wheelchair accessible, welcom- wheelchairs or with mobility problems. cake, seasonal vegetables and lemon ing manual and electric wheelchairs. Farallon has been enchanting guests for Washrooms are also wheelchair acces- butter sauce and the braised lamb shank Manual wheelchairs are available to 18 years. It offers a sophisticated menu, sible. On the bright and cheerful top with parmesan truffle mashed potatoes borrow free of charge at Coat Check on featuring “coastal cuisine”. The freshest floor a private room with a door, can and seasonable vegetables. Decadent a first-come, first-served basis. To bor- seafood available comprises the major- accommodate a small group. This is ex- chocolate flourless cake with raspberry row one, visitors are asked simply to ity of the menu, rounded out with lo- cellent for business meetings or family glaze topped off one fine meal. leave their photo ID at Coat Check for cal produce, meat, and game. Dinner gatherings. the duration of their visit. Electric mo- entrees are priced from $27 to $36. We You can call (415) 788-8866 or email bility scooters, and other power-driven had an absolutely fabulous dinner. Our The restaurant is located at 63 Ellis [email protected] Monday to Friday. mobility devices (OPDMDs) such as server Nancy nicely described the op- Street. It is always crowded so call first Hornblower does have accessible yachts Segways are subject to reasonable re- tions and paired different wine with our for reservations at (415) 986-3274. in the fleet. However, not all yachts and strictions in certain areas of the facility. appetizers and main courses. The res- decks are accessible. Call 1 (888) 467- taurant is wheelchair accessible. Reser- PIER MARKET 6256 to ensure wheelchair accessibility All exhibits have built-in detection vations for dinner are recommended by Be sure to experience the Pier Market for the date you are planning to cruise. points for the blind, and the public el- phone or Open Table. For information Seafood Restaurant, located at Pier 39. evators are equipped with auditory sig- call (415)956-6969. The family owned restaurant special- Mike Cohen is the editor of Inspirations. nals. Wherever possible, exhibits have izes in mesquite-grilled fresh, local, He can be reached at been made tactile for an enhanced ex- SAN FRANCISCO sustainable seafood and fabulous Cali- [email protected]. perience. A person who accompanies fornia wines enjoyed while providing and performs the task of interpreter PLAYHOUSE Now beginning its second decade as bay views of Alcatraz and the Pier 39 for a visitor, who is blind or visually sea lions. You can also enjoy dining on k impaired, is admitted free-of-charge. San Francisco’s premiere Off-Broadway style theatre company, the San Fran- their fabulous outdoor patio, perfect for Readers and specially-trained tour people watching on the Pier. Owned 37 Fall 2017 / Winter 2018 - INSPIRATIONS

Events Support Team. “When I began, talented group of people I have ever A new the EMSB had about 25 child care work- met. It’s been a privilege and inspira- ers. Now we have over 300, with thou- tion to work alongside them every day. sands of students that require support I hope that I, in turn, was able to inspire chapter with emotional and family problems, in- them and those that I supported,” she stability, autism spectrum disorder, and added. begins for many other challenges,” shared Rubin. Lori certainly has accomplished that. Director of Student Services at the EMSB Her keen instincts and sensitivity al- Lori Rubin Lew Lewis worked closely with Rubin lowed her to bring difficult topics to the since the 1993-94 school year, and de- pages of Inspirations, most recently the By Wendy Singer scribes her as an invaluable asset to the popular: I love you but I’m losing it! and Student Services Department. “Lori is a How to avoid burning out when raising knowledgeable and intelligent profes- a child with special needs articles. Nev- After 26 years of working as a behav- sional, and a genuine, warm and sensi- er shying away from challenging or awk- iour specialist at the English Montreal tive human being,” said Lewis. “She is ward topics that need to be addressed, School Board (EMSB), Inspirations con- well respected, dedicated, insightful, a her words lent much needed support to tributor Lori Rubin has decided to retire. supportive team player, and a true lead- parents and teachers who were grate- She leaves tall boots to fill both in the er. We will miss her very much and ex- ful for her honesty and relatability. Lori Student Services Department and on the tend our best wishes to her in all of her also co-chaired Team Inspirations at the Inspirations editorial team. future endeavors.” Scotia Bank Run Charity Challenge last Lori Rubin spring. Lori began her career working on the behaviour management specialist in the Lori leaves the EMSB feeling satisfied af- Project Harbour team, a school-based Student Services Department. She also ter a fulfilling career: “I’ve loved every We will miss Lori - her support and con- intervention program designed to as- consulted on serious behavioural issues single minute. The opportunity to ac- fidence in our mission, her energy, in- sist and train teachers, administrators with students, parents, and teachers, led quire and accumulate the skills needed sight and experience. On behalf of the and child care workers in coping with anti-bullying and social skills groups, to help students and teachers was an Inspirations team, we wish her the best students exhibiting disruptive behav- delivered workshops, interviewed and honour and a privilege. My colleagues as she begins a new chapter in her life. iours. She went on to become the co- supported the EMSB’s child care work- and managers in the Student Services ordinator of the program and then the ers, and was a member of the Traumatic Department are the most devoted and k Fall 2017 / Winter 2018 - INSPIRATIONS 38

Sports By Daniel Smajovits Adapted tennis serves as body, and hold his racket to allow for an advantage for L.I.N.K.S. accurate shot. For nine weeks, Fiskas needed assis- after school student tance to accurately hit the ball over the net in a one-on-one tennis match. On By Sharon Scimeca the tenth week, he made his first accurate shot over the net without any assis- L.I.N.K.S. High School of the English visually track the ball and react quickly. tance. As Ternynck, educators and peers Montreal School Board has implement- Fiskas’ inability to see makes him fully cheered him on, a huge smile appeared ed an after-school program for its special dependent on his sense of sound and on his face expressing how proud he needs students. The program includes a touch. In order for him to enjoy playing was of himself. Witnessing this moment variety of therapeutic and stimulating tennis with his peers, adapted equip- was truly magical. activities along with programs intended ment is used. to promote life skills. Activities include “Not being able to see has made play- art and drama therapy, singing and play- Tennis instructor Cas Ternynck taught ing tennis challenging for me, but I al- ing instruments in a glee club, cooking, Fiskas using a foam ball with a bell in- ways push myself to do the best I can,” Cas Ternynck, adapted tennis instructor, gardening, and adapted tennis. side as a directional target. This helps shared Fiskas. “I feel lucky to have had teaches L.I.N.K.S. High School student him listen to where the ball is in relation supportive peers and educators that are Dimitri Fiskas how to aim the tennis Eighteen-year old L.I.N.K.S. student to where he is standing. “With a lot of by my side. They have helped me reach ball during a Proset Autism tennis class. Dimitri Fiskas has experienced an in- practice, Dimitri was able to hit the ball my goals. I am very proud of myself for credible amount of growth and persever- against the wall. He listened to where it how far I have come.” ance from participating in the adapted landed as it bounced, and in turn caught ProSet Autism is a non-profit organiza- tennis program offered by Proset Autism the ball in a fishing net,” said Ternynck. Fiskas is a great example of what having tion offering an adapted sports pro- (an adapted tennis program for students confidence, perseverance and a positive gram for children, teens and adults with special needs). Once he mastered the principles of attitude can lead to. He continues to with PDD-NOS, ADD, behavioural is- proximity and timing, Fiskas learnt how play tennis in the after school program sues, and autism. For information, visit Tennis appears to be a sport that requires to use his strength to hit the ball using and is consistently challenging himself prosetautism.ca. a lot of attention, speed and the ability to a tennis racket, to properly position his to reach new goals. k How to talk about drugs so kids will listen Invictus Games celebrate Continued from page 30 the power of sport to use when they feel overwhelmed instead of looking to substances to help them relax. Work with them to brainstorm some responses they can Initiated in 2014 in London, England use if confronted with an offer to use drugs or peer pressure. Teach them by Prince Harry, The Invictus Games to use the I.D.E.A.L. Problem Solving Model when making tough deci- use the power of sport to inspire sions in the heat of the moment: Identify the problem, Describe all the recovery, support rehabilitation and potential solutions, Evaluate the pros and cons of possible solution, Act generate a wider understanding and on one of the solutions and Learn from the lesson. respect for wounded, injured, and sick Servicemen and women. The third Invictus Games took place in Remind kids that they have the capacity to make good choices when Toronto from September 23 to 30, it comes to drugs. Be open, non-judgmental, honest, available as a re- bringing together more than 550 source, and keep them informed. Your goal is to teach them to make competitors from 17 nations. their own decisions when the time comes. Adapted sports this year were: archery, athletics, indoor rowing, Tamara Schwager is a supervisor in the Ometz School Department. She powerlifting, road cycling, sitting can be reached at [email protected] or (514) 342-0000. volleyball, swimming, wheelchair basketball, wheelchair tennis, wheelchair rugby, and golf. In this photo, St-Eustache native Julie Marcotte competes in a recumbent cycle race, winning her first gold medal at the 2017 games. Marcotte broke vertebrae in her spine during a training accident in the k military and suffers from chronic pain. She also competes in powerlifting and wheelchair basketball. (Photo credit, Canadian Forces Morale and Welfare Services) 39 Fall 2017 / Winter 2018 - INSPIRATIONS

We are proud to support Inspirations Newspaper, which is le journal Inspirations qui joue un rôle important dans community! notre communauté!

Filomena Rotiroti David Birnbaum Rita Lc de Santis Pierre Arcand Députée de / MNA for Député de / MNA for Députée de / MNA for Député de / MNA Jeanne-Mance-Viger D’Arcy-McGee Bourassa-Sauvé for Mont-Royal Présidente du caucus du gouvernement / Adjoint parlementaire du ministre de l’Éducation Présidente de la Commission de la Culture Ministre responsable de l'Administration gouvernementale Chair of the Government Caucus et de la ministre de l’Enseignement supérieur / et de l'éducation / Chair of the Committee on et de la Révision permanente des programmes, Parliamentary Assistant to the Minister of Culture and Education Président du Conseil du trésor et ministre responsable 514 326-0491 Education and Minister of Higher Education de la Côte-Nord / Minister responsible for Government [email protected] 514 328-6006 Administration and Ongoing Program Review, 514 488-7028 [email protected] [email protected] Chair of the Conseil du trésor and minister responsible for the Côte-Nord region 514 341-1151 [email protected]

Kathleen Weil François Ouimet Marc Tanguay Carlos J. Leitão Députée de / MNA for Député de / MNA for Député de / MNA for Député de / MNA for Notre-Dame-de-Grâce Marquette LaFontaine Robert-Baldwin Ministre responsable de l’Accès à l’information et de la Premier vice-président de Leader parlementaire Ministre des Finances / Réforme des institutions démocratiques, Ministre l’Assemblée nationale / adjoint du gouvernement / Minister of Finance responsable des Relations avec les Québécois First Vice-President of Deputy Government House Leader d’expression anglaise / Minister responsible for Access the National Assembly 514 684-9000 to Information and the Reform of Democratic Institutions, 514 648-1007 [email protected] Minister responsible for Relations with 514 634-9720 [email protected] [email protected] English-speaking Quebecers 514 489-7581 [email protected] DYNAMIC FUNDS IS PROUD TO SPONSOR THE TEACHER OF INSPIRATION AWARD.

dynamic.ca

Dynamic Funds® is a registered trademark of its owner, used under license, and a division of 1832 Asset Management L.P.

13DWD175_DF_Inspiration_Award_Sponsor_EN_V3.indd 1 2015-11-03 11:02 AM