IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 1

2016 ANNUAL REPORT A Year in Review Immune Deficiency Foundation 110 West Road, Suite 300 Towson, MD 21204 800-296-4433 www.primaryimmune.org [email protected]

Why does IDF say THINK ZEBRA? In medical school, many doctors learn the saying, “when you hear hoof beats, think horses, not zebras,” and are taught to focus on the likeliest possibilities when making a diagnosis, not the unusual ones. However, sometimes physicians need to look for a zebra. People with primary immunodeficiency diseases are the zebras of the medical world. So IDF says THINK ZEBRA! IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 1

Broadening Our Reach ...... 2 IDF Retreats 2016 ...... 3 IDF Education Meetings ...... 3 IDF Outreach Initiative...... 3 IDF Get Connected Groups ...... 3 IDF Volunteer Network...... 4 IDF Teen Program ...... 4 IDF Young Adult Program...... 4 IDF Medical Programs ...... 4 National Primary Immunodeficiency Awareness Month (April) and World PI Week (April 22-29) ...... 5 LivingwithCGD.org – The IDF Resource for Chronic Granulomatous Disease...... 5 Advancing Research ...... 6 IDF PI CONNECT and IDF ePHR...... 7 IDF PI CONNECT Research Forum...... 7 PROMIS-29 Quality of Life Survey through IDF ePHR...... 8 United States Immunodeficiency Network (USIDNET)...... 8 IDF Survey Research ...... 9 IDF Medical Advisory Committee and IDF Nurse Advisory Committee ...... 10 IDF Publications ...... 10 Dedicated to Future Generations ...... 11 Nationally Recognized...... 12 Patient Advocacy ...... 12 Navigating Health Insurance...... 12 Peer Support...... 12 IDF Friends - The Community Page...... 12 IDF Walk for Primary Immunodeficiency ...... 13 Public Policy...... 14 IDF Advocacy Day 2016...... 14 Medicare IVIG Access Demonstration Project...... 14 Accelerate the Start of the Medicare SCIG Home Infusion Benefit ...... 14 Cadillac Tax ...... 15 Biosimilars...... 15 Affordable Care Act (ACA) Implementation ...... 15 Blood Safety ...... 15 Health Access Advocates...... 15 State Advocacy ...... 16 SCID Newborn Screening...... 16 Private Insurance...... 16 Leadership ...... 17 IDF Board of Trustees...... 17 IDF Staff Management Team...... 17 IDF Medical Advisory Committee...... 18 IDF Nurse Advisory Committee...... 19 2016 IDF Core Service Corporate Sponsors...... 20 2016 Revenue...... 21 Statement of Activities...... 22 Statement of Functional Expenses ...... 23 Donors...... 24 IDF Walk for Primary Immunodeficiency Teams 2016 ...... 51 IDF Walk for Primary Immunodeficiency Sponsors 2016...... 53

Mission Statement The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. 2 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW

Broadening Our Reach

Because primary immunodeficiency diseases (PI) are rare, connecting patients, families and healthcare professionals is critical. From presenting education meetings throughout the country, to creating programs specifically for teens and young adults to collaborating with healthcare professionals and raising awareness among the public, IDF works to sustain initiatives that build relationships within the community and provide them with the information and resources they richly deserve. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 3 BROADENING OUR REACH

IDF Retreats 2016 IDF Retreats are weekend gatherings for everyone in the PI community – patients, parents, siblings, partners and children. In 2016, we hosted 293 attendees in Boston, MA from June 17-19, which was the largest retreat ever, and 182 attendees gathered in Salt Lake City, UT from August 19-21. We had 26 states represented in Boston, with 41% first-time attendees at an IDF event, and there were 24 states represented in Salt Lake City, with 25% first-time attendees. Retreats are a great way to discover the latest information and develop better approaches to living with PI – all while having a good time with a wonderful community. Special programs for individuals with Chronic Granulomatous Disease (CGD) and their families were offered, as well as sessions dedicated to young adults, including one in Boston for all young adults and another in Salt Lake for young adults with Severe Combined Immune Deficiency (SCID).

IDF Education Meetings Education is central to our mission, and each year IDF holds education meetings throughout the country. IDF has made a commitment to further enhance and increase the number of local education meetings throughout the U.S. Efforts have been made to partner with physicians nationwide to reach more patients and enrich the content of the meetings. In 2016, IDF hosted 27 Education Meetings and Family Conference Days, which are daylong meetings where local experts present medical and life management sessions to adults. Family Conference Days include a youth program for ages 5 and up. Through these meetings, IDF reached 1,764 individuals. We had over 141 speakers volunteer to present at the meetings. IDF Outreach Initiative The IDF Outreach Initiative expands the reach and impact of IDF nationwide. Through the initiative, volunteers serve as IDF Liaisons or IDF Get Connected Leaders to help IDF reach those in the PI community. IDF Liaisons connect and build relationships with healthcare professionals who care for individuals diagnosed with PI, as well as with clinicians who are likely to see these patients. IDF Get Connected Leaders increase connections between patients in their communities. These are exceptional opportunities for motivated individuals who want to make a difference for others living with PI. They understand the importance of education, understanding and encouragement in helping individuals live a fulfilling life with PI. IDF Get Connected Groups IDF Get Connected Groups are designed to connect individuals and family members living with PI in their local communities. The groups can occur at a local community room, library, coffee shop or other venues. They provide an opportunity for individuals to network and receive support in their local community. In 2016, each IDF Get Connected Group met 4-6 times on average in 16 different states. Through these meetings, IDF reached a total of 607 individuals. 4 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW BROADENING OUR REACH

IDF Volunteer Network The IDF Volunteer Network is committed to supporting the mission of IDF. This nationwide network of dedicated volunteers serves to advance the reach of IDF in areas of strategic importance to the PI community. In 2016, our network of volunteers created awareness by distributing thousands of education materials and spoke to approximately 2,827 people during 86 visits to plasma centers. IDF Peer Support Volunteers offered one-to-one encouragement to 236 individuals. Approximately 300 new volunteers registered in the IDF Volunteer Connection Center. Some of these opportunities include: IDF Get Connected Leaders, IDF Liaisons, Office Support, Peer Support Coaches, Plasma Center Visitors, Walk Advisors, Walk for PI – Event Day Volunteers and Walk Planning Team Members. IDF Teen Program The IDF Teen Program, specifically for teens with PI, provides education and support while fostering leadership and advocacy skills for teens. The program encourages “It helped me become teens to live life to the fullest and creates opportunities for parents of teens in the PI more social with community to meet one another, learn about PI and discover ways to support their teen. people who can relate Teens have a chance to meet face-to-face at IDF Teen Escape weekends, which are to me and helped me a central part of the Teen Program. Teens, ages 12-18, learn from healthcare and life management experts, mentors and peers, and issues they face are tackled and understand the disease confidence is gained. Meanwhile, parents participate in sessions geared toward that I have…” their own issues and concerns. Teens enjoy a night of fun and comradery at local – Casey, Dave and Busters playing games and enjoying the company of others within the PI IDF Teen Council Member community. In 2016, IDF Teen Escape weekends were held in Northbrook, IL and Charlotte, NC with a total of 169 individuals attending. Training is offered to teen volunteers on the IDF Teen Council, and council members provide support at various IDF programs and interact with other teens online. The IDF website offers an entire section devoted to teens that is filled with advice about living with PI as a teen, which can be found atwww.primaryimmune.org/teens . IDF provides multiple opportunities for teens to develop into strong, capable individuals. IDF Young Adult Online Education Series The IDF Young Adult Online Education Series was developed specifically to meet the needs and interests of this group. The program tackles the unique issues faced by young adults with PI (ages 18-34) all while connecting to others their age within the community. Presenters and participants alike asked and answered questions, discussed concerns, shared stories and connected with people who are living with the unique challenges that young adults with PI face. IDF has posted all webinar recordings on the IDF website to date. To listen to the webinar recordings, go to: http://bit.ly/IDFWebinars. IDF Medical Programs IDF actively promotes and develops medical education and resources to improve the diagnosis, treatment and care of PI. IDF continues to strengthen its outreach to healthcare professionals. We strive to increase visibility in the medical community by attending national medical conferences that generally include an exhibit in the exhibition hall. Staff may interact with healthcare providers who see patients with PI to discuss educational opportunities, distribute educational literature and discuss IDF resources. IDF typically exhibits at five medical conferences each year, including but not limited to the American Academy of Allergy, Asthma and Immunology; American Academy of Pediatrics; Clinical Immunology Society; Immunoglobulin National Society; Infusion Nurses Society; American Academy of Family Physicians; National Conference for Nurse Practitioners; and the American College of Allergy, Asthma & Immunology. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 5 BROADENING OUR REACH

The IDF Consulting Immunologist Program provides physicians the opportunity to consult with expert clinical immunologists about patient-specific questions and obtain valuable diagnostic, treatment and disease management information. Created to serve the needs of physicians who have questions about their patients with PI, this physician-to-physician service has been available since 1998 and has provided hundreds of free consults to physicians. In 2016, 140 physicians utilized this program.

The IDF and USIDNET LeBien Visiting Professor Program promotes improved knowledge about the diagnosis and treatment of PI. Teaching hospitals throughout North America may request a leading clinical immunologist to lead Grand Rounds or present at other educational activities, such as bedside rounds or house staff and/or medical resident’s conferences. This program is available at no cost to the participating hospital. In 2016, IDF sponsored four of these programs as part of our medical outreach. National Primary Immunodeficiency Awareness Month (April) and World PI Week (April 22-29) IDF promoted National Primary Immunodeficiency Awareness Month in the U.S. in conjunction with World PI Week (WPIW), April 22-29. IDF is an active member of the WPIW Steering Committee, working closely with partner organizations to develop and execute the worldwide campaign.

In 2016, members of the Clinical Immunology Society (CIS) and IDF joined forces to celebrate National Primary Immunodeficiency Awareness Month and World PI Week at the CIS Annual Meeting in April. At the meeting, renowned immunologists presented new research findings and discussed treatments for PI with more than 600 attendees. Throughout the conference, IDF distributed the Foundation’s materials and resources. To show solidarity among those caring for and working on behalf of the PI community, IDF distributed PI Awareness t-shirts to all CIS Annual Meeting attendees, encouraging them to spread the word.

IDF conducted an active social media campaign throughout April, asking followers to share facts and submit their own photos and experiences, using campaign hashtags #piawareness #thinkzebra and #worldPIweek. LivingwithCGD.org – The IDF Resource for Chronic Granulomatous Disease Because it is so rare, IDF developed a website dedicated to the Chronic Granulomatous Disease (CGD) community, LivingwithCGD.org. Launched in January 2015, the site boasts comprehensive medical and life management information from CGD experts as well as additional resources for patients and families. The site features videos from individuals living with CGD, and the integrated blog features news, events and patient stories. The videos and blog posts are designed to engage more patients and reach out to existing CGD networks and groups on social media. The site and the regular blog posts are powerful tools IDF uses to directly reach the CGD community in an authentic and meaningful way. 6 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW

Advancing Research

Over the years, IDF has worked to help advance research of primary immunodeficiency diseases. Working collaboratively with expert clinicians from across the country, IDF’s major focus is to better understand patient experiences and improve outcomes. In that regard, IDF conducts surveys of patients and physicians to gain a more complete representation of patient attitudes and experiences. In recent years, we have leveraged technology to help give researchers insight into the patient experience as well as give patients tools to better track their health. IDF continues to be nationally recognized for our critical work and valuable resources. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 7 ADVANCING RESEARCH

IDF PI CONNECT and IDF ePHR In 2014, IDF developed a revolutionary research network focused on primary immunodeficiency (PI)—IDF PI CONNECT, the IDF Patient-Powered Research Network. IDF PI CONNECT empowers patients to participate and help transform research by consenting to share their data and their individual experiences. This is part of a national movement of Precision Medicine that will help researchers find answers—ultimately individualizing treatment and providing better outcomes for patients. IDF received a grant from the Patient-Centered Outcomes Research Institute (PCORI) to develop IDF PI CONNECT, which brings together patient- entered data from IDF ePHR, the online personal health record for people with PI, with clinical data from the United States Immunodeficiency Network (USIDNET), the only national patient-consented registry for PI in the U.S. And to truly bring patients into the research conversation, patients can let their voices be heard in the IDF PI CONNECT Research Forum, where they can find out about some of the latest research and pose questions they have. Combining patient data with the patient voice holds great promise to provide researchers further insights about the diagnosis and treatment of PI, ultimately helping to improve quality of life for patients. Individuals become a part of IDF PI CONNECT through IDF ePHR, our electronic personal health record, providing our users with the latest advancements in health record system management. It enables users to enter and access their data no matter where they are with helpful, user-friendly features, transforming how individuals and caregivers manage health information. Two exciting new features in 2015 included an IDF ePHR mobile app that makes it even easier for users to track their health information from mobile devices, and a custom Health Calendar that allows users to track changes to their health in real-time. These features, along with the ability to upload many different types of electronic medical information into IDF ePHR, IDF helps patients get the most out of their healthcare visits. Individuals who wish to contribute to research can easily consent into PI CONNECT through their IDF ePHR account. This allows patients with PI to donate the information they enter into their IDF ePHR to the USIDNET Registry for use in clinical research. In 2016, the state-of-the-art platform held 3,068 health records and grew tremendously with 1,916 patients consented with USIDNET. IDF PI CONNECT Research Forum IDF PI CONNECT currently has 1,916 individuals consented to share their information, and many of these individuals are taking part in Research Forum discussions, where they can find the latest research and pose questions they have. The Forum brings together patients and healthcare professionals to drive more individualized and patient-centered research on the treatment and management of PI, such as which antibiotic works best to prevent bronchitis, how different dosing strategies compare or what laboratory studies can predict autoimmune diseases. The Forum enables patients and scientists to collaborate and shape the direction of research to ensure that all patients benefit from the best treatment information available. Patient discussions in the Forum are demonstrably driving research. Plans for an IDF research study examining body temperature and fever response are already underway and will be launched in winter 2018. Through IDF PI CONNECT, robust data direct from patients along with meaningful discussions with them will help researchers better understand the patient experience, leading to improved patient care. The initial grant from PCORI enabled IDF to develop the IDF PI CONNECT platform. In 2015, IDF was awarded an additional three year PCORI award to continue the project and transform the infrastructure built in the first year to ensure patient-centered research. 8 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW ADVANCING RESEARCH

PROMIS-29 Quality of Life Survey through IDF ePHR Quality of Life (QoL) surveys assess an individual’s ability to perform routine physical and social activities, and they compare the individual’s score to the average scores of the larger U.S. population. This can provide useful comparisons to measure your health against others. The information from QoL surveys, known as Patient Reported Outcomes (PRO’s), come directly from the patients’ responses without any interpretation by a healthcare provider, or anyone else. IDF ePHR hosts the PROMIS-29 surveys every six months. PROMIS, which stands for Patient-Reported Outcomes Measurement Information System, was developed to support NIH-funded research. PROMIS measures are standardized to assess patient-reported outcomes, such as pain, fatigue, emotional distress, physical functioning and social role participation, based on common metrics allowing for comparisons among chronic conditions as well as the general population. Using short questionnaires, the PROMIS-29 assesses seven health categories: Physical Function, Pain, Interference, Fatigue, Depression, Anxiety, Sleep Disturbance and Ability to Participate in Social Roles. IDF provides survey participants with instant customized reports of how their health compares to the general population. This information can be used as a way to better manage one’s health and help healthcare providers better guide one’s care. Additionally, patients who participate in PI CONNECT can share their PROMIS-29 PRO’s with the USIDNET Registry, allowing the patient voice to enrich clinical research. United States Immunodeficiency Network (USIDNET) The United States Immunodeficiency Network (USIDNET) was established to advance scientific research in PI and provide resources for work on PI, including the establishment and expansion of a patient registry, a program for the education and mentoring of young investigators, and the maintenance of a cell repository for use in research. The cornerstone of this initiative is a registry of patient information, and the strength of this registry lies with individuals with PI. As of 2016, over 6,000 patients with PI have registered in the patient-consented USIDNET registry. Every patient’s participation is critical to expand enrollment so an understanding of each disease is possible. Living with PI makes life experiences unique. However, when those experiences and those of other patients are examined collectively, common findings can help develop vital research and improve the quality of life for the entire PI community. USIDNET, a program of IDF, is funded by the National Institute of Allergy and Infectious Diseases (NIAID) a part of the National Institutes of Health (NIH), an agency of the Department of Health & Human Services. Additionally, USIDNET collaborated with the Clinical Immunology Society (CIS) and The Jeffrey Modell Foundation (JMF) for the implementation of the Following Infants with Low Lymphocytes (FILL) project, which allows the collection of important and specific medical information about the first year of life for infants who are identified at birth, or shortly after, as potentially having a PI. The following manuscripts were published using registry data: • Leven EA, Maffucci P, Ochs HD, Scholl PR, Buckley RH, Fuleihan RL, Geha RS, Cunningham CK, Bonilla FA, Conley ME, Ferdman RM, Hernandez-Trujillo V, Puck JM, Sullivan K, Secord EA, Ramesh M, Cunningham-Rundles C. Hyper IgM Syndrome: a Report from the USIDNET Registry. J Clin Immunol. 2016 Jul;36(5):490-501. • Perelygina L, Plotkin S, Russo P, Hautala T, Bonilla F, Ochs HD, Joshi A, Routes J, Patel K, Wehr C, Icenogle J, Sullivan KE. Rubella persistence in epidermal keratinocytes and granuloma M2 macrophages in patients with primary immunodeficiencies. J Allergy Clin Immunol. 2016 Nov;138(5):1436-1439. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 9 ADVANCING RESEARCH

IDF Survey Research IDF surveys provide crucial insight into the personal impact of PI and helps the Foundation develop initiatives for improved diagnosis and treatment. The major health surveys conducted by the government in the U.S., the National Health Interview Survey and the National Health and Nutrition Examination Survey do not collect information on PI. The data collected by IDF helps fill this void. The IDF Survey Research Center continues to provide timely data, analysis and expertise on issues of importance to the PI community. In 2016, 2,294 people with PI, the caregivers and healthcare professionals participated in five surveys developed by IDF. 2,294 Patients and healthcare professionals participated in 5 IDF surveys

The IDF Survey Research Center played a major role in the following surveys: n Consulted and managed participant recruitment for a Shire sponsored Immunoglobulin Replacement Therapy Marketing Survey. n Consulted for the Primary Immune Deficiency Treatment Consortium (PIDTC) and the Clinical Immunology Society (CIS) for the development of the Mental Health Concerns in Caregiver of Patients with PI Survey. n Partnered with PIDTC, SCID, Angels for Life Foundation, Wiskott-Aldrich Foundation and the Chronic Granulomatous Disease Association to develop and recruit for the Non-Medical Care Survey for Patients with Primary Immunodeficiency Disease. n Survey development collaboration with CIS for the Physician Health Insurance Survey. n Completed third and final Patient-Centered Outcome Research Institute (PCORI) milestone with the administration of the IDF 2016 Health Insurance Survey. IDF Survey Research Center also provided questionnaire development and data analysis expertise to other researchers and organizations: n Consulted for PIDTC on the Wiskott-Aldrich Quality of Life Survey. n Consulted for USIDNET on the CGD Survey. n Continued support of IDF ePHR and IDF PI CONNECT. 2016 Publications: n In-print: o L Rider, N., Kutac, C., Hajjar, J., Scalchunes, C., Seeborg, F., Boyle, M., & Orange, J. Health-Related Quality of Life in Adult Patients with Common Variable Immunodeficiency Disorders and Impact of Treatment. (submitted August 2016, accepted May 2017). Journal of Clinical Immunology, 37, 461-475. doi: 10.1007/s10875-017-0404-8. o Orange, J. S., Seeborg, F. O., Boyle, M., Scalchunes, C., & Hernandez-Trujillo, V. (2016). Family Physician Perspectives on Primary Immunodeficiency Diseases. Front. Med. Frontiers in Medicine, 3. n Submitted manuscripts: o Immunologist Perspectives on Assessment and Management of Lung Disease in CVID: A Survey of the Membership of the Clinical Immunology Society and the European Society for Immunodeficiencies (ESID). • Over 300 Immunologists from CIS & ESID participated. o IDF manuscript based on survey of pulmonologists has been submitted and is still in review. 10 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW ADVANCING RESEARCH

IDF Medical Advisory Committee and IDF Nurse Advisory Committee IDF has a Medical Advisory Committee (MAC) and Nurse Advisory Committee (NAC) comprised of prominent immunologists and clinicians dedicated to support the mission of IDF through the development of science-based standards and resources. IDF Publications Heralded as the best patient resources for PI in the world, IDF publications are developed by world renowned immunologists and healthcare professionals. In 2016, there were two new publications introduced.

El Cuento de Una Cebra – A Zebra Tale from the Immune Deficiency Foundation in Spanish In 2016, IDF proudly published the A Zebra Tale from the Immune Deficiency Foundation in Spanish. This illustrated storybook written for children—young and old—living with PI and their families provides hope and encouragement. A Zebra Tale chronicles the journey of a young horse who faces recurrent infections, struggles to understand why he gets sick often, and ultimately finds contentment and acceptance when he is diagnosed with a PI, discovering that he is a zebra. The publication was made possible by the American Legion Child Welfare Foundation. Healthcare professionals, educators, adults and children in the IDF community gave their helpful feedback throughout the creation of the story.

2016 Guide for Nurses_Layout 1 10/4/16 10:36 AM Page C1 IDF Guide for Nurses Immunoglobulin Therapy for Primary Immunodeficiency Diseases – Fourth Edition In 2016, IDF published the fourth edition of the IDF Guide for Nurses Immunoglobulin Therapy for Primary Immunodeficiency Diseases. Developed by the IDF Nurse Advisory Committee, the guide includes general information about PI diseases, delivery of immunoglobulin IDF Guide (Ig) replacement therapy, product selection and characteristics, for Nurses troubleshooting intravenous and subcutaneous Ig therapy, and more. Immunoglobulin Therapy for This new edition includes changes in dosing and delivery as well as Primary Immunodeficiency Diseases additional instructions for teaching patients. The sleek design and Fourth Edition pocket size make it easy to use for busy nurses. This popular guide provides direction for nurses to administer Ig replacement therapy in the safest and most effective way. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 11

Dedicated to Future Generations IDF understands the chronic nature of primary immunodeficiency diseases. Knowing first-hand how members of the PI community face significant challenges, it is a priority of the Foundation to identify and develop resources and services to meet the needs of those who live with PI – whether a patient is newly diagnosed or has been living with PI for years. Because the diseases never go away, individuals and their families will continually rely on IDF. With that in mind, we have made a commitment to the PI community and developed programs to ensure a better future for generations to come. 12 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DEDICATED TO FUTURE GENERATIONS

Nationally Recognized IDF proudly works with organizations to better serve the primary immunodeficiency (PI) community. IDF is a member of the National Health Council, which is made up of more than 100 national health-related organizations and businesses, including the nation’s leading patient advocacy organizations. IDF meets the National Health Council Standards of Excellence Certification Program®, a set of good operating practices to ensure that its patient advocacy group members maintain the highest standards of organizational effectiveness and public stewardship. For the fourth consecutive year, IDF has been awarded a 4-Star Rating from Charity Navigator, America’s largest independent charity evaluator. This top distinction is awarded for sound fiscal management practices and commitment to accountability and transparency. Patient Advocacy IDF assists individuals with PI with a broad array of services including inquiries related to diagnosis, treatment, health insurance, peer support and literature requests. In 2016, IDF’s patient advocacy services helped fill the need for over 7,883 requests from individuals and families seeking education, information and assistance, which is 862 more than 2015. IDF has answers and information when patients and families need it—online or by phone. That is the power and the dependability of IDF. Navigating Health Insurance The majority of patients with PI rely on some form of insurance to assist with expenses, but dealing with health insurance and understanding the maze of issues involved can be overwhelming. An IDF staff member offers individualized assistance when a patient or caregiver contacts the Foundation in regards to insurance problems. Issues range from co-pay and premium assistance to insurance denials for treatment. In 2016, there were more than 418 calls regarding insurance. In 2016, IDF staff also worked with patients, providers and insurers to advocate for an appropriate updated medical policy for intravenous immunoglobulin (IVIG). To offer additional resources, the IDF website features the IDF Patient Insurance Center, providing patients with regularly updated information and resources when it comes to health insurance, including information regarding the Affordable Care Act (ACA), state health insurance marketplace plans, manufacturer and assistance programs, how to appeal an insurance denial, frequently asked questions and more. To help individuals make the best possible choice in selecting a private health insurance plan, users can also download the IDF Health Insurance Toolkit which includes comprehensive information and resources along with helpful worksheets and a glossary of terms. Peer Support The IDF Peer Support Program is a caring community that connects people and patients who share similar relationships to PI. Feelings of isolation often accompany the everyday effects of living with PI. Frequently, those feelings stem from the perception that no one understands what you are going through. Sometimes a patient or family member simply needs to talk freely about how they’re feeling. Participation in the Peer Support Program gives patients and/or family members the opportunity to interact with one of IDF’s peer support volunteers, who is a trained volunteer with a personal experience on living with PI. In 2016, 236 individuals requested peer support. IDF Friends – The Community Page IDF Friends is a discussion forum designed for patients and family members living with PI. Because the site requires login and the information is closed to search engines, IDF Friends users see the site as a safe, private and comfortable alternative to Facebook, and a place where they can discuss issues and concerns that they might not discuss elsewhere. There is a wealth of user-generated information on the IDF Friends site, and it continues to be one of the first places people turn for advice on living with PI. It continues to attract an average of 75 new users each month, and in total, the 5,780 members on the site have posted over 41,500 times on 4,816 topics. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 13 DEDICATED TO FUTURE GENERATIONS

IDF Walk for Primary Immunodeficiency IDF Walk for Primary Immunodeficiency helps create a better future for those living with PI, who face an increased vulnerability to infections, endure recurrent health problems and often develop serious illnesses throughout their entire lives. They deserve better. Held across the country, the walks support vital IDF programs and services, power research to help the next generation and increase awareness to advance early In 2016, over 4,000 diagnosis and proper treatment. The walks bring together a passionate community and as of 2016 have raised over $2 million since the first walk in 2013. walkers from 438 teams In 2016, over 4,000 walkers from 438 teams in 14 cities helped raise more in 14 cities helped raise than $440,000 for IDF Walk for PI and when sponsor raised funds are included, more than $440,000 more than $1.1 million was raised. National walks were held in Atlanta, Boston, Charlotte, Chicago, Cleveland, Fort Lauderdale, Houston, Los Angeles, Minneapolis, New York City, Philadelphia, St. Louis and the Nationwide Virtual Walk. In 2016, we had 2 IDF Community Walks held in Blountville, TN and Omaha, NE. IDF Community Walks are created by members of the PI community who want to have a walk in an area that does not yet have an existing IDF-organized walk. Coordinated by dedicated volunteers in the PI community, these walks help fill in the geographical gaps between the IDF-organized walks. The IDF Order of the Zebra is the elite group of fundraisers whose efforts make an extraordinary impact on the success of the walks. If walkers set a fundraising goal of $1,000 or more on their personal fundraising page, and then reach that goal, they are inducted into the IDF Order of the Zebra. Overall in 2016, IDF had 82 members raise over $1,000 each and become a part of the exclusive Order. 14 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DEDICATED TO FUTURE GENERATIONS

Public Policy Through advocacy efforts, IDF lays the groundwork for the promise of an easier tomorrow for those living with PI. By mobilizing individuals, families and healthcare providers throughout the country, IDF continues to be at the forefront of issues relevant to this community. Public policy issues that are critical to patients at the national and state levels are monitored and addressed through the IDF Advocacy Center on the IDF website. Additionally, our Grassroots Advocacy Program organizes individuals to contact their government representatives to promote healthcare legislation that will positively affect the community. We believe that healthcare professionals, in consultation with their patients, should make decisions about care and changes in treatment. Clinicians are in the best position to understand the specific medical history and unique needs of each patient. Whether created by private insurers or public payers such as Medicare and Medicaid, IDF advocates for: • Reduced out-of-pocket costs. • Eliminating co-insurance on specialty tiers. • Expanded specialist’s in-network, avoiding narrow networks. • Access to the appropriate treatment at the appropriate site of care for each patient. • Improvement of payer immunoglobulin medical policies. IDF Advocacy Day 2016 The annual IDF Advocacy Day on Capitol Hill, held April 21, 2016, focused on garnering legislative support for opposition against the Centers for Medicare and Medicaid (CMS) proposed rule containing a payment demonstration that would severely reduce reimbursement for Part B drugs and its potentially devastating impact on access to medical care for the PI community. IDF continued its goal of gaining Congressional support for HR 1600, the Patients’ Access to Treatments Act. Targeting Members of the Senate HELP Committee and Members of the House Energy and Commerce Committee, IDF put special emphasis on inviting volunteers who had not previously participated in an Advocacy Day event in order to grow the base of trained grassroots advocates. Over 65% of attendees were first-time participants, and 70 patients (55 adult advocates and 15 young adults) participated, representing 40 states. It was a productive day with nearly 160 Congressional meetings resulting in several legislative letters sent to CMS and a hearing in front of the Energy and Commerce Committee. Medicare IVIG Access Demonstration Project After seven years of intensive advocacy efforts, the Medicare IVIG Access Act was passed by Congress in December 2012 and signed into law by the President in January 2013. The law established a demonstration project that allows Medicare to pay for immunoglobulin (Ig) therapy plus items and services for Medicare beneficiaries to receive intravenous immunoglobulin (IVIG) in the home. Over 1,700 people are participating in the program. The project is set to end September 30, 2017 and enter its evaluation phase, and it is anticipated that the project will provide the data necessary to make home infusion a permanent benefit for patients with PI. While the evaluation is taking place, IDF advocates for the project to continue to treat beneficiaries until either allocated funds are spent or the evaluation is completed and a decision is made to make or not make IVIG in the home a permanent benefit. Throughout 2016, IDF developed significant bi-partisan support for the extension of the demonstration project. [Representatives Brady (R-TX) and Matsui (D-CA) introduced legislation in 2017 to extend the demonstration project subject to already allocated funds for the project to December 31, 2020. That bill passed by both Houses of Congress and was signed by the President, extending the project, with no gaps in coverage for those enrolled in the Demonstration.] Accelerate the Start of the Medicare SCIG Home Infusion Benefit In December 2016, Congress passed the 21st Century Cures Act (Cures) which, while increasing funding for important research, unfortunately included revised reimbursement provisions that now threaten access to treatment for people with PI on Medicare who receive subcutaneous immunoglobulin (SCIG) therapy. To “pay for” the provisions of the Cures Act, effective January 1, 2017, Congress significantly reduced reimbursement for the cost of drugs, including Ig. As a result of this reduction, some providers have stopped providing services, some refuse to take new Medicare beneficiaries and some are waiting to see if Congress will fix this problem. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 15 DEDICATED TO FUTURE GENERATIONS

IDF worked diligently to get language in Cures that would authorize Medicare to develop reimbursement categories to pay for the services needed to train and monitor people who receive SCIG. While the language recommended by IDF was included in the legislation, its start date is January 1, 2021, a four-year delay from when the payment reductions began. IDF worked with legislators in 2017 to introduce legislation to move the start date to 2018 for the new services reimbursement for training and monitoring of Medicare beneficiaries who receive SCIG, closing the treatment gap. (The bill passed the House in 2017 and awaits action in the Senate, which is expected by the end of 2017.) Cadillac Tax IDF is monitoring the 40% excise tax on high priced employer-sponsored health insurance plans, also known as the “Cadillac Tax,” that was scheduled to begin in 2018 but has been delayed by Congress to 2020. IDF has been proactive in raising awareness on the issue by joining the Alliance to Fight the 40 coalition and serves on the Alliance’s steering committee. This tax will affect far more than just luxury plans and have a devastating impact on those with severe chronic diseases, such as individuals with PI. Biosimilars Since the passage of the Affordable Care Act (ACA), IDF has expressed concerns regarding patient safety aspects of the pathway for biosimilar products. IDF took the lead in forming the patient only coalition of Patients for Biologics Safety and Access (PBSA) with 23 other organizations on unique naming issues, patient safety concerns and the necessary requirements for any biosimilar pathway to be successful and safe for people with PI. Affordable Care Act (ACA) Implementation With the election of a Republican administration in 2016 and Republican control of both houses of Congress, attempts were and still are being made to “Repeal and Replace” the Affordable Care Act (ACA). IDF and patient groups nationwide began advocating in 2016 to keep all of the current patient protections of the ACA including guaranteed issue for all people with pre-existing conditions, a ban on annual and lifetime coverage caps, retention of annual out-of-pocket cost caps and need for non-discriminatory health plans. (In 2017 the ACA remained unchanged). Blood Safety In 2016, IDF continued its leadership of the American Plasma Users Coalition (A-PLUS), a group of patient organizations serving patients treated with products derived from blood plasma. A-PLUS has emerged as a means of communicating joint positions on federal issues including the submission of comments to federal agencies and Congress on Third Party Payment of Qualified Health Plan Premiums, Notice of Benefit and Payment Parameters for 2017, and the Part B Drug Payment Model. Additionally, A-PLUS sent letters in support of Nebraska legislation changing the age of plasma donation to 18 years old and sent a joint letter with PLUS of Europe in support of compensated plasma donations in Canada. Health Access Advocates Starting in 2016, IDF’s public policy and volunteer development staff worked to create a robust Health Access Advocate (HAA) Program as an enhancement to its public policy volunteer efforts. This program ensures that there are volunteer advocates from across the country who can work within their local and state communities to enhance access and remove barriers to care for the PI community. HAAs are prepared to contact local legislators on behalf of IDF, testify at legislative hearings, work with other patient organizations and stakeholders on state and federal issues, mobilize other members of the PI community and participate in various activities that further IDF’s mission. Efforts in 2016 included the launch of a new training process for this volunteer role consisting of a new application, guide and training video, as well as recruitment of potential advocates and the screening and selection of participants. Also, IDF has held trainings and identified specific advocacy issues for volunteers to address throughout the year. This has resulted in a network of well-trained HAAs that are adequately prepared to perform the tasks asked of them. 16 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DEDICATED TO FUTURE GENERATIONS

Public Policy continued State Advocacy IDF works with other like-minded patient organizations supporting state legislation that stops the use of increased cost sharing through specialty tier co-insurance practices. To this end, IDF established Affordable Co-pays and Treatments (ACT) for Nevada in 2016, to address the issue of discriminatory health insurance practices in Nevada in which people with PI and other chronic illnesses have are being singled out and forced to pay unfair portions of healthcare costs – and are potentially being driven out of their current plans. Throughout 2016, IDF coordinated a coalition of ten patient organizations active in Nevada to support these policy change efforts. IDF worked with these partner organizations to craft proposed legislation that would ensure Nevadans have options when selecting a health plan by requiring insurers to have at least 25 percent of the plans they offer at each coverage level provide a flat dollar co-pay option for all prescription medications. In addition, IDF has been active in five other state access to care coalitions (IL, MD, PA, NJ and OH) that have proposed legislation to address barriers to medication access. Efforts have included, sending action alerts, writing testimony, meeting with legislative leadership (NJ), presenting oral testimony (PA) and participating in workgroups (MD). SCID Newborn Screening In 2016, IDF continued actively campaigning for all 50 states to add Severe Combined Immune Deficiency (SCID) to their newborn screening panels following the May 2010 decision by the U.S. Department of Health & Human Services (HHS) to include SCID as a core condition on the Recommended Universal Screening Panel. Twelve new states began screening in 2016: Alaska, Georgia, Idaho, Kentucky, Maryland, Montana, New Mexico, North Dakota, Pennsylvania, Puerto Rico, Tennessee and Vermont, bringing the total number of states conducting SCID newborn screening at the end of 2016 to 42. [An additional three states (Arizona, Missouri and North Carolina) have begun screening for SCID in 2017.] Additionally, in 2016, IDF developed and is now distributing a Spanish language translation of IDF SCID education materials for parents. IDF also developed a video for families of babies who have received a diagnosis of SCID through a grant from the American Public Health Labs (APHL). This video will be distributed by each state as part of its follow-up protocol, following a diagnosis. Also, IDF began developing a brochure for families of babies who, through SCID newborn screening, are found to have low T cells. The brochure provides information and recommendations for children who do not have SCID but should be followed because of their low T cell levels. Private Insurance In recent years, IDF has been aggressive and persistent with advocacy efforts to help patients, their families and clinicians navigate their way through the maze of access issues that are unique to PI, such as appropriate Ig guidelines and standards of care, sites of care and access to specialists. Reaching out and educating insurance payers and healthcare professionals about the need for open access and the unique needs of our patients will result in better care. This campaign has resulted in publication of several articles and op-eds in payer industry publications as well as draft model Ig therapy guidelines that can be proffered to payers. IDF continues to advocate and effectively intervene on behalf of patients with PI to get insurance policy guidelines changed to ensure patients have access to the therapies and services that they need. With the increased emphasis by payers on Values Health Care (VHC), organizations like the Institute for Clinical and Economic Review (ICER), have emerged. These organizations support best patient outcomes in theory but often support policies focused on reduced costs. With these developments in the healthcare system and the expected changes in the ACA, patient advocacy organizations like IDF are more important than ever to carry the patient voice into these new processes. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 17

Leadership IDF Board of Trustees John Seymour, PhD, LMFT, Chair Terry Halper Steve Fietek, Vice Chair Chuck Lage Brian Rath, Secretary Richard Low, Jr. Barbara Ballard Yvette Shorten John G. Boyle, President & CEO, Ex-Officio John Smith Joel Buckberg Kathleen Sullivan, MD, PhD, Medical Advisory Committee Vice Chair Rebecca H. Buckley, MD, Medical Advisory Committee Chair Amy Walsh Carol Ann Demaret

IDF Board of Trustees, June 14, 2017 Back row, from left: B. Rath, B. LeBien, C. Lage, Y. Shorten, J. Buckberg, R. Low, S. Fietek, J. Smith. Front row, from left: D. R. Buckley, C. Demaret, T. Halper, Marcie Boyle, John M. Boyle, A. Walsh, D. J. Seymour. Not pictured: B. Ballard, J.G. Boyle, K. Sullivan

IDF Staff Management Team John G. Boyle Sarah Rose President & Chief Executive Officer Chief Financial Officer

Katherine Antilla Christopher Scalchunes Vice President of Education Vice President of Research Lawrence A. LaMotte Vice President, Public Policy Kara Moran Associate Vice President of Communications 18 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW LEADERSHIP

IDF Medical Advisory Committee

Rebecca Buckley, MD - Chair Ramsay Fuleihan, MD Jennifer Puck, MD Duke University School of Medicine Lurie Children’s Hospital of Chicago University of California, San Francisco Kathleen Sullivan, MD, PhD - Vice Chair Erwin Gelfand, MD Marc Riedl, MD, MS Children’s Hospital of Philadelphia National Jewish Medical and Research University of California, San Diego Center Zuhair Ballas, MD Sergio D. Rosenzweig, MD, PhD University of Iowa Vivian Hernandez-Trujillo, MD National Institutes of Health Miami Children’s Hospital Mark Ballow, MD John Routes, MD University of South Florida Steven Holland, MD Children’s Hospital of Wisconsin National Institutes of Health R. Michael Blaese, MD Ralph Shapiro, MD Howard Lederman, MD, PhD Midwest Immunology Clinic Francisco Bonilla, MD, PhD Johns Hopkins Hospital Boston Children’s Hospital William Shearer, MD, PhD Harry Malech, MD Texas Children’s Hospital Fabio Candotti, MD National Institutes of Health Centre Hospitalier Universitaire Vaudois, E. Richard Stiehm, MD Switzerland Stephen Miles, MD UCLA School of Medicine All Seasons Allergy, Asthma & Mary Ellen Conley, MD Troy Torgerson, MD, PhD Immunology Seattle Children’s Hospital and Research Charlotte Cunningham-Rundles, MD, PhD Luigi Notarangelo, MD Institute Mt. Sinai Medical Center Boston Children’s Hospital James Verbsky, MD, PhD Alexandra Filipovich, MD Hans Ochs, MD Children’s Hospital of Wisconsin Cincinnati Children’s Hospital Seattle Children’s Hospital and Research Jerry Winkelstein, MD Thomas Fleisher, MD Institute National Institutes of Health Jordan Orange, MD, PhD Lisa Forbes, MD Texas Children’s Hospital Texas Children’s Hospital

IDF Medical Advisory Committee 2017 Back row, from left: F. Candotti, H. Ochs, H. Malech, E. Stiehm, M. Riedl, J. G. Boyle. Front row, from left: F. Bonilla, K. Sullivan, R. Buckley, M. Boyle, C. Cunningham-Rundles, J. Puck, M. Ballow. IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 19 LEADERSHIP

IDF Nurse Advisory Committee

William Blouin, MSN, ARNP, CPNP - Chair Kristin Epland, FNP-C Miami Children’s Hospital Midwest Immunology Clinic Elizabeth K. Garabedian, RN - Vice Chair Mary Hintermeyer, APNP National Human Genome Research Institute (NHGRI) Children’s Hospital of Wisconsin National Institutes of Health Linda Lentini, RN Linda Anastasia, BSN, RN, CPN Arizona Allergy Associates The Children’s Hospital of Philadelphia Larraine Lyter-Reed, RN, MSN, FNP-BC Loris Aro, RN Texas Children’s Hospital Sussman & Associates Immunology Debbie Manning, BSN, RN, IgNS Colleen Hill Dansereau, MSN, RN, CPN, CPHON The Children’s Hospital of Philadelphia Dana-Farber Boston Children’s Cancer and Blood M. Elizabeth M. Younger, CRNP, PhD Disorders Center Johns Hopkins University School of Medicine Carla Duff, CPNP, MSN, CCRP University of South Florida

IDF Nurse Advisory Committee 2016 Back row, from left: L. Lyter-Reed, C. Duff, W. Blouin, E. Younger, E. Garabedian. Front row, from left: C. Dansereau, L. Anastasia, Manning, L. Aro. 20 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW

2016 IDF Core Service Corporate Sponsors

Because primary immunodeficiency (PI) diseases are rare, chronic conditions, continuity in our programs is one of the most important aspects of the services provided by our Foundation. Individuals living with PI – as well as their families – need to know that these services will be available throughout their lives. They need to know they can consistently count on the Immune Deficiency Foundation (IDF). To ensure this constancy, IDF created the Core Service Program in the spring of 2000. As one of our most essential programs, it includes patient assistance resources, peer support, local patient meetings, volunteer activities, medical and scientific programs, medical meetings and exhibits, advocacy efforts and survey research. IDF’s core services and strategic priorities are determined by an independent Board of Trustees, with input from the Medical Advisory Committee, based on the needs of patients. Because of the Core Service Program, IDF is able to provide the educational materials and local programming to patients and families and healthcare professionals free of charge. This allows us to provide services and resources to those who need it, regardless of their ability to pay. To continue to offer these indispensable core services to patients and medical professionals, IDF relies on the generosity of many for program funding. Our Core Service sponsors are dedicated organizations that make an enormous difference in the Foundation’s ability to plan and provide long-term programming on behalf of the PI community. IDF greatly appreciates these sponsors and all others who make our mission possible.

IDF Core Service Leaders AbbVie CSL Behring Grifols Shire IDF Core Service Supporters AmerisourceBergen Corporation Octapharma Leadiant Biosciences IDF Core Service Contributors ADMA Biologics, Inc. BPL Horizon Pharma Kedrion Biopharma

IDF Sustaining Contributors Accredo Healthcare CVS Caremark | Coram Specialty Infusion Services IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 21

2016 Revenue Revenue RevenueZĞǀĞŶƵĞ 2.99% Ϯ͘ϵϵй 0.45% Ϭ͘ϰϱй

5.41% Industry* Contributions and Grants (includes walk funding) ϱ͘ϰϭй /ŶĚƵƐƚƌLJΎŽŶƚƌŝďƵƚŝŽŶƐĂŶĚ'ƌĂŶƚƐ;ŝŶĐůƵĚĞƐǁĂůŬ 246450 ĨƵŶĚŝŶŐͿ 246450 Contributions - Individuals 3.0% 3.0% Industry*ŽŶƚƌŝďƵƚŝŽŶƐͲ/ŶĚŝǀŝĚƵĂůƐ Contribu3ons and Grants (includes walk funding) ϭϰ͘ϳϭй 14.71% Government Grants and Contract RevenueContribu3ons - Individuals 'ŽǀĞƌŶŵĞŶƚ'ƌĂŶƚƐĂŶĚŽŶƚƌĂĐƚZĞǀĞŶƵĞ Government Grants and Contract Revenue Investment Income 6.41% ϲ͘ϰϭй Investment/ŶǀĞƐƚŵĞŶƚ/ŶĐŽŵĞ Income

Special Events - Walks - Individuals (industrySpecial Eventsreflected - Walksabove) - Individuals (industry reflected above) 70.03% ^ƉĞĐŝĂůǀĞŶƚƐͲtĂůŬƐͲ/ŶĚŝǀŝĚƵĂůƐ;ŝŶĚƵƐƚƌLJƌĞĨůĞĐƚĞĚ ϳϬ͘Ϭϯй SpecialĂďŽǀĞͿ Events - Other Special Events - Other ^ƉĞĐŝĂůǀĞŶƚƐͲKƚŚĞƌ

*This includes contribu3onsΎdŚŝƐŝŶĐůƵĚĞƐĐŽŶƚƌŝďƵƚŝŽŶƐĨŽƌŽƵƌƉƌŽŐƌĂŵƐ͕ƉĂƚŝĞŶƚĞĚƵĐĂƚŝŽŶ for*This our includes programs, contributions pa3ent for our educa3onprograms, patient and education events and fromeventsĂŶĚĞǀĞŶƚƐĨƌŽŵƉŚĂƌŵĂĐĞƵƚŝĐĂů͕ďŝŽƚĞĐŚŶŽůŽŐLJĂŶĚŵĞĚŝĐĂůĚĞǀŝĐĞĐŽŵƉĂŶŝĞƐ͘ frompharmaceu3cal, pharmaceutical, biotechnology biotechnology and medical and device medical companies. device companies. Expense *This includes contributions for our programs, patient education and events from pharmaceutical, biotechnology and medical device companies. Expenses

10.50% džƉĞŶƐĞ

25.18% 10.49% ϭϬ͘ϱϬй DĞĚŝĐĂůĂŶĚ^ĐŝĞŶƚŝĨŝĐMedical and Scientific Medical and Scien0fic Ϯϱ͘ϭϴй ϭϬ͘ϰϵй ^ĞƌǀŝĐĞƐƚŽWĂƚŝĞŶƚƐĂŶĚServices to Patients Servicesand Families to Pa0ents and Families &ĂŵŝůŝĞƐ Administra0on and Finance ĚŵŝŶŝƐƚƌĂƚŝŽŶĂŶĚAdministration and Finance &ŝŶĂŶĐĞ Marke0ng and Fundraising ϱϯ͘ϴϰй DĂƌŬĞƚŝŶŐĂŶĚ&ƵŶĚƌĂŝƐŝŶŐMarketing and Fundraising

53.84% 22 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW

StatementIMMUNE of DEFICIENCY Activities FOUNDATION AND SUBSIDIARY & Changes in Net Assets for the Year Ending December 3, 2016 Statement of Activities and Changes in Net Assets For the Year Ended December 31, 2016

Temporarily Permanently Unrestricted Restricted Restricted Total PUBLIC SUPPORT AND REVENUE: Public support: Contributions and grants $ 4,301,474 $ 1,769,404 $ - 0 - $ 6,070,878 Net assets released from restrictions 1,375,566 (1,375,566) - 0 - - 0 - Total public support 5,677,040 393,838 - 0 - 6,070,878

Government grants and other contract revenue 1,204,053 - 0 - - 0 - 1,204,053

Revenue: Investment income 244,991 - 0 - - 0 - 244,991 Other income 60,730 - 0 - - 0 - 60,730 Special events 603,301 - 0 - - 0 - 603,301 Total revenue 909,022 - 0 - - 0 - 909,022

Total Public Support and Revenue 7,790,115 393,838 - 0 - 8,183,953

EXPENSES: Program services: Medical and scientific 1,838,427 - 0 - - 0 - 1,838,427 Services to patients and families 3,931,214 - 0 - - 0 - 3,931,214

5,769,641 - 0 - - 0 - 5,769,641

Supporting services: Administration and finance 765,611 - 0 - - 0 - 765,611 Marketing and fundraising 766,301 - 0 - - 0 - 766,301

1,531,912 - 0 - - 0 - 1,531,912

Total Expenses 7,301,553 - 0 - - 0 - 7,301,553

CHANGE IN NET ASSETS 488,562 393,838 - 0 - 882,400

NET ASSETS, BEGINNING OF YEAR 6,756,379 1,421,216 - 0 - 8,177,595

NET ASSETS, END OF YEAR $ 7,244,941 $ 1,815,054 $ - 0 - $ 9,059,995

See accompanying notes to financial statements

- 4 - IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 23

Statement of Functional Expenses for the Year Ending December 3, 2016IMMUNE DEFICIENCY FOUNDATION

Statement of Functional Expenses For the Year Ended December 31, 2016

PROGRAM SERVICES SUPPORTING SERVICES Medical Services to Administration Marketing and Patients and and Grand Scientific and Families Total Finance Fundraising Total Total

Salaries $ 572,622 $ 1,401,984 $ 1,974,606 $ 384,443 $ 293,411 $ 677,854 $ 2,652,460 Employee benefits 66,001 130,807 196,808 56,726 29,678 86,404 283,212 Payroll taxes, etc. 45,527 109,899 155,426 25,568 23,938 49,506 204,932

684,150 1,642,690 2,326,840 466,737 347,027 813,764 3,140,604

Professional fees 734,455 794,562 1,529,017 117,282 70,142 187,424 1,716,441 Training, conference, conventions, & meetings 82,253 475,492 557,745 782 156,927 157,709 715,454 Travel 94,694 292,904 387,598 3,512 31,813 35,325 422,923 Awards and grants 77,706 42,243 119,949 10,000 - 0 - 10,000 129,949 Occupancy 55,524 111,399 166,923 82,249 22,486 104,735 271,658 Insurance 10,633 9,233 19,866 6,881 2,483 9,364 29,230 Printing and publications 17,354 168,369 185,723 7,799 22,460 30,259 215,982 Telephone 13,558 28,201 41,759 16,628 5,046 21,674 63,433 Postage and shipping 8,487 110,270 118,757 6,834 37,933 44,767 163,524 Supplies 20,894 37,578 58,472 16,908 9,233 26,141 84,613 Rental and maintenance of equipment 12,303 45,593 57,896 14,384 4,400 18,784 76,680 Miscellaneous - 0 - - 0 - - 0 - 1,550 7,481 9,031 9,031 Advertising 7,203 135,138 142,341 - 0 - 24,480 24,480 166,821 Dues and subscriptions 9,376 17,806 27,182 6,081 20,406 26,487 53,669

1,828,590 3,911,478 5,740,068 757,627 762,317 1,519,944 7,260,012

Depreciation and amortization 9,837 19,736 29,573 7,984 3,984 11,968 41,541

$ 1,838,427 $ 3,931,214 $ 5,769,641 $ 765,611 $ 766,301 $ 1,531,912 $ 7,301,553

See accompanying notes to financial statements

- 6 - 24 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW

Donors

$500,000 and above $5,000-$9,999 Anchor Investments, LLC Johnson Charitable Gift Fund CSL Behring American Academy of Allergy Susan Hershey and Philip Annis The Lenore and Howard Klein Grifols Asthma & Immunology Giancarlo Asong Foundation, Inc. Shire BIO BioEthics Advantage, Inc. Thomas Kuharcik BioTest Pharmaceuticals BioTek ReMEDys, Inc. Anna Kyriakides $100,000-$499,999 Corporation Catherine Bourassa Robert LaBerry AbbVie Kristy Cacucciolo Tara and John Boyle Annette Lage Horizon Pharma CSL Plasma, Inc. Patsy and Michael Broge Cecelia and Stanley Lane, MD Kedrion Biopharma The Feuerring Foundation Bronx Rotary Foundation Andrew Lindquist Octapharma Seth Kaufman Rebecca Buckley, MD Shari and David Lombardi KJT Group, Inc. Nick Vito Cacucciolo Trust Erin and Richard Low $50,000-$99,999 Jennifer and Edward Lavin Stephanie Calvanico Megan and Vincent Maronski AmerisourceBergen Corporation Local Independent Charities of Laura and William Carroll Alonso Martin Bio Products Laboratory BPL America Lisa and Peter Cella Nancy and Sidney Martin CVS Caremark | Coram Specialty MH Equipment Children’s Hospital of Philadelphia Irma Jean Dodd McNelia Infusion Services Optum Services, Inc. Mark Christopher Auto Center Christopher Meddaugh Leadiant Biosciences Adrian M. and Doris K. Pearsall Claudia Claussen Foundation, Inc. Pfizer, Inc. Family Foundation Diane and Philip Coffey Newtown Kindness PepsiCo Shreeji Pharmacy Nancy Cross Shawn Nicely $25,000-$49,999 Lisa and Kenneth Steffes Lois and Peter Crudden NuCara Pharmacy Biotest Pharmaceuticals WePay Nancy and John Cygan Jack Oremus Corporation Georgia and John Wettstein Wendy David Michelle and Brian Osborne Clinical Immunology Society Gayle Dax-Conroy Parish of St. Peter’s Episcopal $2,500-$4,999 Diplomat Specialty Infusion Group Brian Deaves Church Koryn and Curtis Anderson EMED Technologies Corporation Susan Dillon Anitha and Prakash Patel, MD Baranay Family Foundation Kroger Specialty Infusion Holly Drabik James Perry The Binding Site, Inc. Option Care, Inc. Jane and John Drabik Anita Phillips Marcia and John Boyle RMS Medical Products Debbie Duhe and David Martinez Plainfield High School Central The Brook Fund, Inc. Lauren Dunlap Campus $10,000-$24,000 Community Health Charities Irene and Gerald Eisenberg Tonya and Tim Ponder ADMA Biologics, Inc. Judith Dean Emergent BioSolutions Shirley Taylor-Prakelt Living Bank of America Charitable Gift Kathleen Sullivan and Bob D’Zuro Kathleen Everett Trust Fund Susan Rosenthal and Michael Fair Lawn Board of Education PSEG Foundation The Mourkakos Family Hershfield Frankel Family Foundation RE Pharmacy Ethical Factor Rx Nicole and John Hill Elizabeth Garabedian Cindy and Michael Ross Express Scripts Raymond James Charitable Gem Drugs Elizabeth Scarbrough Factor One Source Pharmacy Endowment Fund Adam Grossman Doris and Thomas Schleigh, Jr. Lisa and Douglas Goldman Fund HPC of Memphis, Inc. Tyler Hawks Harry Schroeder, MD The Guetz Foundation Independent Charities of America Mary and Lawrence Hennessey SEI Private Trust Company Haemonetics Memorial Health Care System Anna and Jason Herd Tracy Shaw Lieberman Research Worldwide PhRMA Mary Elizabeth and Michael Laura Sievert and Eric Cooper NKC Family Foundation Teresa and Gary Stewart Holland, MD Southwest Sertoma PepsiCo Silicon Valley Community United Farmers Cooperative Richard Hong Revocable Trust Nicole and Mark Spinelli, Sr. Foundation Vertical Bridge REIT, LLC Icerock Performance Group, Inc. Eilean and Mark Steiner Perkin Elmer Independent Portfolio Consultants The T. Rowe Price Program for $1,000-$2,499 Schwab Charitable Fund Jewish Community Foundation Charitable Giving Anonymous (3) Soleo Health Of Greater Phoenix, Inc. Vicki and Hendrik Uiterwyk Accurate Rx Pharmacy Jewish Federation of Greater Vanguard Charitable AmazonSmile Foundation Philadelphia IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 25 DONORS

Vehicle Accessory Center George and Patricia Held Kristin Preyss Karen and Lars Bauerle David Shawn Wilson Sarah Helgeson Ellen and William Rabb Vera Berryhill Jack Holmes Elizabeth and Greg Raetz Zina and Randy Berryhill $500-$999 Debra Holwerda Joan and Donald Rayburn Lisa and James Betsworth Anonymous (2) Aundrea and Donald Hood Jason Reddish Robin and Jason Bettenhausen Aberdeen Asthma & Allergy Alan Hurley Barbara and George Roberts Marion Bishop Kristine Adams Rebecca and William Hutsell Daniel Rohwer Justin Black AlphaNet, Inc. IFPC Worldwide, Inc. Shelley and Jim Romeo Jennifer and Steven Blondin Jonathan and Jodi Anderson Dennis and Barb Jackson The David and Eleanore Rukin Wendy and Marlene Bocarsky Katherine and Daniel Antilla Jan-Pro Cleaning Systems Philanthropic Foundation Betsy Brauser Jeanne Arseneau Jewish Communal Fund Marie and Joseph Russo Bravelets, LLC Laura Bailey Ed Jones Megan and Jason Ryan Patti and Stewart Bressman Baird Foundation, Inc. Bess and Richard Kaplan Sample Czar Richard Briskin Barn Hoops Foundation Rhonda and John Karas Teri Schrock Roger and Colleen Brock William Barr Cynthia and William Key Chelsee and Troy Self Steven Brodeur Catherine and Mike Barrett Ann Kloostra Sherry and Robert Shefelton, Jr. J’Amy Brown Kelly and James Beaudoin Caryl Kourgelis Bruce Sievert Joan and Louis Burdzinski Renee and Mark Bekier Deborah Kourgelis Judy Sparrow John Burnell Christine and Chuck Belser Karen Kramer Steve and Marie Spinelli Dawn and Robert Burns BioScrip, Inc. Robert Lanier State of Arizona Dept. of Health Alan Bushbaum Larry Berkelhammer and Irma Janet and Charles Larsen Services Richard Buyer Botvin Kathy Larson Linda and Jerry Stephens Lucinda and Alan Cathcart Ryan Bettenhausen Emily Lefkowitz Robert Stevens Kathleen Chaloux Ramya and Deepak Bhaskaran Sarah Bush Lincoln Judith and E. Richard Stiehm, MD Tommy Chandler and Janice Suzanne Gendreau and Thomas Fannie and Frank Lippmann Kris Surratt Chandler, Ph.D Birge Lobato Construction Katrina Taylor Rebecca Chao BP Foundation, Inc. Susan and Bart Lopresti Kathleen and Thomas Teske Diane Chesky Booster Campaigns Alvaro Marques Nancy and Robert Thomas Kimberly and Scott Chesky John Bryant Carol and John Marzano Krista Thompson Kathy Chiarello Annette and Nicola Cacucciolo MassMutual Financial Group Laura and Jeff Uecker Mary Christopher Colonie Builders, Inc. Gerda and R.A. McDonough Rudy Vasquez Kelly Ciscone Peter Calvanico Holly and James McGill Marilyn von KleinSmid-Randolph Sean Clarkin Venus Chalfin Holly Meyers Amy and Shawn Walsh John Cleek Chris Core Michael and Sara Middleton Irene and Lawrence Walsh Leslie Coates Burpee Janel and Gerald Corrado Joseph Miskovic Warm Cases, Inc. Betty and Joseph Codispoti Peter Corrado Susan Moranski Lynn and Daniel Weggel Chris Conley Kelly Covarrubias Carolina Rubiano and Mauricio Marilyn and Jerry Winkelstein, MD David Connors Robert Crudden Naranjo Andrea Witlin and Edward Kathryn and Keith Courtright Culver’s Frozen Custard Lawrence Neumann Dippolito Holly and Ken Crombie Butterburgers Russell Newton Margaret Woods Cuyahoga Valley Career Center Carol Ann Demaret Ocean View Presbyterian Church Katrina Woodward Dakota Rods and Classics Kimberly and Angelo DiGangi Sewing Circle Betty and Charles Wray, MD Ryan Dammeyer Shannon Dowers Stacie and Christopher Otto Jeannine Daniels Julie and Kyle Edwards Sara and Jeremy Penn $250-$499 Richard Davis Chris Fitzmaurice Pennsylvania Allergy and Asthma Anonymous (6) Jeffrey DeBoy Brian Gaffud Association Nicole Adams Cheryl Deep Miller and L.A. Miller Estate of Nancy D. Garber Patricia Pixler Ellen Adolph Deutsche Bank Americas Shelley Glenfield Patrick Pollard American Service Industries Foundation Jonathan Goldsmith Elaine Pontone Ameritas Burton Dickinson Olga Gourmos LeeAnn Pounds and Thomas Molly and Mark Ballow, MD Stacey Dicks Sharon and Robert Halva Crawford Pounds Baltimore Community Foundation Jennifer DiMinni Bill Hanson Brittany Powell Marilyn Barrett Kathleen DiStefano E. Sylvia and John Harrison Marsha Powell Deanna Barton Russell Dodd Jeanne and Gary Haslip Jennifer and Gary Prescott Bernadette Battaglia Brenan Drake 26 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Beth Dwyer Karen and Richard Kinder Jeanette Price Wendy and Nevin Wilson MD, Margaret Earnest Adele Kirkpatrick John Prichard FAAAAI Mindy and Myron Edelman Kevin Konzelman Printing Solutions Bryce Yamauchi Don Emory Bruce Koppel John Putro Wayne Yetter Jose Esteban Kevin Koza Quascacunquen Lodge #39 IOOF John Zink Jansie Farris William Kreklow Paula Ragan Philip Zink James Feeser Chester Kutscher Mary and Ranjit Rath Cynthia and Joseph Zuraw Mrs. Billie Fields Shirley Bigley LaMotte and Chris Reck Sara Finley Lawrence LaMotte Sandra and Marlon Rhodes $100-$249 Mare Fitch Melissa Laneve Mike Ridley Anonymous (21) Rashann and Ted Fontenot Mary Langston Joan Roberts-Reed Caroline Abramo D. Ann Ford and Christina Purdy Jamie and Scott Lawrence Jennifer and Ronnie Rodes Lisa Abrams Kathleen Friday and Alexander Penny Lawson Rogers Surveying, PLLC Natalie and Morton Abramson Biele Susan Layman Joy Rolli Cheryl Adair Ramsay Fuleihan, MD Sandra and Larry Leech Lauri Rollins Denise Adams Kay Gaffud Brian Lenz Tina Romeo Laurie Adams Zachary Garner Roberta and Martin Lerner Marc Rosa Thayer and Chip Adams Meghan Garriott Lindsay Precast, Inc. Joseph Roth Kristen Adolph Rachel Goddard Ashley Lockwood Scott Russo Andrew Affa Betty and Ron Goddard Barbara Lufkin Irene and Carmine Sarno Lori and Steven Aiello Brian Gold Julie Lundquist and Branko Melissa and Christopher Lex Akers Julie and Richard Gold Kosovic Scalchunes Barbara and Jeff Albright Robin Diane Goldstein Mary Lyons and Briane Ritchie Christine and Parick Scheper Caterina Alduino Barbara and Peter Goodman Sherry Markham Schneider Electric North Mary Alexander Susan and David Gough Staci Maronski America Foundation Kevin Alferman Kelsey Graven Nicholas Marrangoni Alicia Scott Martin Alger Sally Greenhawk Ryan and Melissa Marsee Edie Searle Charles Allberry W H Massey Electric Company Larry Searle Travis and Cajsa Allen Susan and Edward Harnden Guy Martinez Lynn Desprez and William Joseph Alloy Jennifer Harnden-Koehler and Yajaira Martinez Shearer, MD, PhD Nanette and Carlos Almeida Stephan Koehler Sarah McCarthy Sandra and Gregory Shove MD Melissa Alt Tara Harris Mary-Jane McDonald Thomas Sinelli Nancy and Vincent Altman The Hartford Suzanne McDonough Rebecca and Michael Solomon Kathy and Steve Altobelli James Hauert Joan Mellone Jordan Sommer American Funds Sharon Heidecker Helen and Paul Meosky Robin Spencer Maria Amira Jamie Henshaw Sandy and Rob Michaels Elyse Anne and Craig Steinhart Linda Anastasia Nancy and Martin Herbeck Jacob Mihalak Kristen Strack Debra Anderson and Jose Mora Brandi Higgins Patrick Moore Seth Strope Vera and Jerald Anderson John Holliday Ms. Paulina Mourkakos Tammy Stuart Christine and Douglas Melinda Hood Jane Napper Alyson and Daniel Sugar Anderson Charles Hornbrook Gail and Sydney Nelson Joseph Sullivan Edward R Anderson Susan and Tim Hornof Lori and Randi Nordlund Sean Sullivan Janet Anderson IBPN Marketing Research Suzanne O’Brien Laura Sweeney Stephen Anderson Bureau, Inc. Joseph Orsino Shirley Taylor Susan Anderson Elizabeth and Steve McCrea Chris Ottenstroer Wellington Tichenor, MD Tanya Anderson Leah Huizinga Joanna Paliouras United Southeast Federal Credit Matt Angell Jerry Hulick Jane and Lawrence Palumbo Union Steven Anhalt Jack and Jill of America the Victoria Panos Donna Usher Linda Annucci Woodlands Chapter Ann and Jeremy Pava Jeffrey and Kit Verona Victoria and Mark Ansay Margaret and Howard Johnston Cathy and Thomas Peralto Daniel Walters James Ansay Rachel Johnston Susan and Richard Petrelli Brent Ward Phyllis Anthony Sandro Junkovic Jeanne Pfander Tiffani Weems Robert Arbeit Denise Kelly Johnnie Phares Deborah and William Weiss Mercedes Arias Faith Kenney Cherry’s Pharmacy West Babylon Fire Department Helen Arkes IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 27 DONORS

Scott Arnopolin Corey Bettenhausen Stephanie Brumbaugh Robert Chatfield DO, MPH, Jennifer Arrighi Ken and Rita Beukema Jayme and Jendall Brundidge MHA, MGH James Art Taylor Biancone Kimberly Brunson Susan and Victor Chen Angela and Amir Asadi Barbara Bibb Brent Bruun Pamela Chesky Dr. Cindy Ashkins Gina Bickel Doreen Brynga Karen Chester Anthony Aveni, Jr. Gail Biggs Buffalo Wild Wings Helen Chesworth William Ax Shirley and James Bigley Bugdahl and Graves Architects Chick-Fil-A at University at Kelly Axeen Jennifer Billings Amanda Burdi Rouse FSU Ronald Axelrod Sheryl and David Billman Ann and Dan Burdzinski Carey Childrey Carol Badaan Angela Bina Burgerville, LLC Javier Chinen, MD Halina Badaan Robert H Bing Wendy Burgess William Chmelir Jaime Amir Badaan BioLife Plasma Services Burgology of Bel Air, LLC Barbara Christ Salvatore Badalamenti Paul Bishop Karyn Burroughs Christina and Gordon Laura Bak Floriana Bivona-Lockner William Bush Churchward Gina Baker Patricia and Thomas Bixler Jane and William Button John Cicala Nicholas Baker Jessica Black Mary Beth and Dan Bylsma Patricia Cicala Betsy and Michael Bald Mary Elise Blaese Alethea Byrkit Laura Cichy Ken Balestrieri Cameron Boardman Nancy Byrne Walter Cifuentes Michelle Balich Marie Boardman Mary Byrnes Jessica Ciralsky Penny Bank Sheila and Krista Bock Fatima Cabral Connie and David Claes Lynn Barba Judy and Charles Bodrock Jennifer Caicedo Kathleen Clark Lily Barkley Henry Boender Ryan Calkins Sarah Clark Laurie and Jerry Barkley Susan Bogarad Shawna Callaghan Ricardo Clausell Sharon and Curt Barnes Allen Bogarad Calumet Schools District #132 Cheryl Cleveland Christopher Barr Randy Bogarad Susan Campbell CNB Bank and Trust Marguerite and Robert Barr Judith Shor Bogdan Donna Campbell Ericka Cobb Tracy Barr and Justin Bird Julia and Thomas Bontrager Mary Anne Cangemi Kathleen and Robert Cocchi Geovani Barraza Frederick Borden Juana Canna Faye Cochran Lucy Barry Sharmistha Bose The Capital Group Companies, Inc. Bryan Cochran Gilbert Barthe Linda and Gary Bosko Theresa Capitti and James Severin Fredda Cohen and Eric Wayne Bassett Wendy Boss Cardinal Canteen Food Service Nussbaum Damon Bates Jody Bowles Maria Carfello James Colligan Rachel Baumbach Jodi Box Catherine Carillo Mary Lou Colman Robert Bavar Debra and Gordon Boyd Maurice Carlo Anjonette Colvin Amy Baxter, MD Tamara Brake Billie and Jeremy Carlson EJ Welch Company Kristen Baxter Dolores Brassard Casey Carlson Judith Connelly Christopher Beasley George Braulke The CarMax Foundation Timothy Conner Jaime Beatty Susan Brecher-Weintraub and Donna and Michael Carr Consolidated Schools District Bradley Becker Michael Weintraub Alessandra Carratura No. 6 Jeff Bednarski Susan Brehm Patricia and Robert Carroll Veronica Constantakis Nancy Masucci-Beirne and Cheryl Brennan Beverly and John Carroll Wendy and Norman Constantine James Beirne Richard Brennan Jason Carter Cindy and Bill Cooley Robin Bencivenga Patrick Brett Sharyn Carter-Hill Tom and Sue Cooper Candy Benge Colleen Bridge Mary Jo and Wayne Case Steve Cooper Amanda Bennett Jessica Briggs Thomas and Marilyn Case Frances Cooper Stacy Benson Elisha and Jacob Brookover Alina Casillas Megan Cooper MD, PhD Roberta Benson Lynn and Robert Brooks Alba Castro Barb and Kent Corbin Deborah Benyamin Jennifer Brooks Geraldine Cathcart Steve Cornwell Marcie and Mark Berger Michael Brown Alison Cavano Frank Corrado Brittany Berkley Glynda and Robert Brown Kristine Cavin Joseph Corrado Judy and Dennis Berkowitz Cheryl Brown John Celli Mariel Corrado Jordie Berry Rick Brown Arnold and Winifred Chait Mai Corso Suzanne Bertram Ronnie Brown Karen Chapin Diane Costello Dorothy and Tristram Bethea Suzanne Browne Janice Charlton Kathy and Matt Cote 28 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Thomas Cote Patricia DeSimone Nancy Eckler Joy Fitzgerald John Cote Norma Desonia Karen and Richard Edge, Jr. Tom Fitzgerald The Cote Family Foundation Thompson Deufel Polly Edmiston Karen Flacco Michelle Cousimano Marcos Diaz Daniel Edwards Richard Flaherty Amanda Cox, MD Tyrone Dickey Rhonda Edwards Tom and Margaret Flanagan Beverley Cox Thea Dickinson Eugene Egan Holly Flax Christine Cozzens Janet and Don Dickinson Ruth and John Egan Flint Hills Holdings, LLC Diane Cravens Dickinson Janitorial Supplies, Jeanne Eichinger Debra Floyd Damian Cristiani Inc. Frank Eidelman Jessica Fontenot Denise Crow Louis DiCriscio Paul Eisenstein Cheryl Forlines Joan Csaposs Michelle Diefenbach Ellessco, LLC Joe Forlines Karen Cullen Donna and Richard Dieterle Christa Ellis Tony Formby Anita Culosi Courtney Digate Gus Ellison Robert Forster Roxanne Culver Mary Dinauer Trish Epstein Brian Fosaaen Denis Curtin Sharon Dinstel Alan Erck Dorine Fosaaen Brenda and Alan Curtis Sandy Dionne Amy Ervin Victoria and Robert Foster Lara Curtis Diane DiPetrillo Martha and Juan Escareno The Foundation for Jewish Peggy Cusack Virginia Dippolito Rosemary Esham Philanthropies CustomInk, LLC Judith and Donald Dobernic Michael Esolda Doug Fowler Kathryn Czarkowski Stephen Dockery Rob Evans Barbara Frajerman Becky Czerkie Lynne and Thomas Doebber Shelia Evans Angela Franco Dallas Jewish Community Michael Dokich Kimberly and Matthew Everett Marsha Franke Foundation Eileen Dolan Ann and Robert Everett Melissa and Adam Freestone Michelle Dallesandro Malin Dollinger Anne Reddy and Shawn Everts Cindy French Leonard Dandridge David Dordek Martha Evilla Patricia Frering Meredith Dasher Rob and Patricia Doss Leonard Fahs Rita and Carl Friebel, Jr. Dave & Buster’s Steve and Lisa Dowdall Elizabeth Faires Julie Friederich Marcy and William Davidson Christopher Downs Mazur Family Rebecca Fritsch Roberta Davidson Nancy Dowson Gayle Fantuzzi Elizabeth and James Fritz Traci and Kevin Davies Mary Doyle Norman Farber Johanne Frost Carol Davis Thomas Doyle Kathleen Farmer Frostproof Bulldog Boosters Sharon Davis Jane and John Drabik Constance Farrar Jessica Frye Amanda Davis Nicole Drai Suzanne and Danny Farrell Linda Fryer Marla and William Davis Eric Drap Catherine Farrell John Fudala Patricia Davis Dreamflight USA John Farrell Mozelle and David Funderburk William Davis Matthew Dreselly Alison Farris Marian Furst Donna De Risi Frederick and Brian Drewes Megan Fastabend Chai Gadde Melanie Dean Judy and John Drews Laura Faul Anastasia Galati Marianne Deane Katie Drinan Maureen Faul Valerie and Ronald Gale William Deaver Angela and Charles Drumright, Jr. Patrick Faul Joseph Gandolfo Charlene DeBorde Martin Duncan Dave Feast James Ganger Molly Decker Judy and TC Dunlap, III Robin Feinberg Patricia and Edward Ganley Joanne Decosta Thomas Dunlap Kathy Ferguson Daniel Garcia Frank DeFroda Katherine Duong Lisa Ferrara-Caron Charlinne Garcia Mary DeHart Maurice DuPas Donna Ferreri Aileen Garcia Destiny Delgado Julie Durrant Philippa Ferridge Caroll Garcia Daniel Demers, RPh Mark Duss Warren Field Dorothy and William Gardner Richard Demme Mary Ellen and Raymond Judith Fields Jennifer and Larry Gardner Gary Denor Duvarney Gail Figueiredo Nancy Garner Josephine DePace Joseph Dvorak Lia Filitti John Garrity Biz Deppisch Dawn Dworak Bernice and Albert Firestone Pamela Garvey Albert DeRemigis Deborah Dyckman Martha Firnhaber Tyeshia Gary Kenneth Derrick Linda Dykstra Scott Fisher Angela Gash Andrea DesCoteaux Kaitlyn Eachus Joyce and Peter Fitzgerald Lewis Gedansky IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 29 DONORS

Kelly Gee Kelly and Brian Groff Jennifer Heimall Mary and Hunter Hughes Katherine and Timothy Gelbar Janet Gross Ryan Held Stephanie Hughes Katchen Wittner Elaine and Martin Gubernick Dawn Helfrich Julia Hullfish Elaine Germont-Gavette and Bobbie Guernsey Karen Heller Dale Hulst Richard Gavette Nancy and Thomas Guetz Denise and Marty Henley Kathy and Bruce Hulst Nancy and Jay Gershman Marietta and Louis Guglielmetti Karen Henschke Bob Humer Noreen Gertz-Patterson and Arthur Guida Dennis Herbst Jacqueline Hunt-Deweese and John Patterson William Gulledge, Jr. Dorothy Herbst Josh Deweese GFWC Madison Heights Constance Gulley Jose Hernandez Carla Hunter Intermediate Women’s Club Mardelle Gundlach Michael Herscher, MD Ann and Gerry Huot Hadia Ghandour Lawrence Guros Beth Herzinger Claudia Huot and Joseph Taylor Lori and Giuseppe Giampaolo Sharon and Gary Gustafson Colleen Hickey Heather and Chris Huot David Giarrusso Tracy and David Gutierrez Janie Hicks Marcia and Robert Husband Paul Giarrusso Theresa Gwaltney Carol Higgins Christine Hutchcraft Margaret-Mary Gibson Billie Habari Gib Higgins Kathi Haynes-Hylander and Robert Deborah and John Giedris Jane Hadley Colleen Higgins Hylander, MD Lori Giedt Kevin Hageman Greg Balestrero and Frances Interstate Rental Service, Inc. Charles Gilbert Mary Smith Higgins Dennis and Barb Jackson Wesley Gilbert Cheryl Hahn Peggy Hindsman Karen Jackson Karin Gilford Jon Robert Halasz Ruth and Edsel Hiner Laura and Larry Jackson Paul Gilligan Stephanie and Scott Halden Anthony Hinkelmann Brad and Gina Jacobsen Lynn and Zach Gilmore Thomas Halden Jennifer Hintz Bruce Jacobsen Marla and David Gilmore Vicki and Thomas Halden Gillian Hirsch Jane Jacobsen Katherine Gilmore Rachel Hall Erika Hlavacek Julie Jacobsen Shannon Gilmore Michael Halliday Julie Hochberg Lynn Jafari Curtis Glass Theresa and Terry Halper Barbara Hockaday Donna Jahn Anita and Arthur Gleistein Susan Halperin Daryl Hodgkinson Erin Jedlikowski Lisa and Mike Glenn Jerry Hamill Patti Hoerig Dawn Jensen Mary and Dann Glick Craig Hamilton Eric Hoffman Marcia Jerding Kristin Gogas Katie Hammerling Sarah and Rich Hoffman Brian Jeter Colleen Goggin Larry Handler Barry Hoggard and James Wagner Teresa Jettelson Sally and Stuart Gold Mary Hanson Laura Holcomb JJBaley Ventures Darragh Golden Anne Haran Ashley Holland Carol Jockel Mitchell Goodman Linda and Michael Hardin Jean Donahue and Bart Holland Helge and Karen Johnson Karen Goodman Maureen Harney Gail and Craig Hollenback Kurt Johnson James Gorman Rhonda and Jason Harp Joan Holmes Matthew Johnson Sharon Grady Barbara Harper Christian Holmstrom and Dan Ruth Jones Melinda Graham Daniel Harris Rosterich Helen Jones Karen Graves Elmer Harris Elaine and Robert Holwerda Natalie Jones Brandon Grawe John Harris Diane Sewing and Greg Artemio Jongco and Linda Graziano Josephine Hasfal Honiotes Christopher League Melissa Grazioso Anne Hauert Steven Honma Kaylee and Kevin Jordan Cheryl Green Audrey Hauert Marnie Hoolahan James and Diane Jordan- Dale Greenhawk Jafari and Ali Kelly Hawley Malcolm Hooper Wagner, MD Reza Jafari Cinderella and Albert Hayes G. David Hopper Dorothy Jozefowicz Roxanne Greenstein Alexis Hayes Joshua Howard Carol and David Julian Evonne Greeson Travis Heath Corby Howard Michael Jurewicz Tara Gregorio Kristi Heather Elizabeth Howarth Ali Kahle Christina Gregory Laurie Heemstra Diana Howley Lisette Kaiser Ryan Griessmeyer John and Jen Heemstra Sharon and Grant Hrabovsky Nora Kalina Lisbeth and Harold Greist Susan and John Heemstra Robin Hubbard Chad and Kirsten Kallies Patricia Griffin Sharon Heidecker Janene Huber Sherry and Martin Kallies Jennifer Griffith Stephan Heidecker Heather Hudson Rhoda Kamin Joseph Grizzanti Susan Heidecker Kate and Trey Huey Rachel Kanter 30 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Amy Karst Niki Kriete Mary Litwiller Antonia and Spero Matthews Karen and David Katz, DDS Mary Kruciak Doug Livingston Christopher Matthews William Kavan Glen Kulilg Barbara Lizotte Cynthia and John Matulewicz Monica and Joseph Kayser Terry Kuperschmid Anthony Lobato Pam Maxwell Dina Keane Paul Kuperschmid Wenda Lockcuff Mrs. Rene Mayea Elizabeth Keating Wendy and Seth Kursman Andrea Lockwood Patty Maynard Nancy Kehoe Bobbi Kuyers Deborah and Dennis Lofald Gerard Mayorga Karel Keiter and Stephen Held Laura and Joseph Ladik Joseph Long Peter Mazzeo Brandon Kelly Maggie and Chuck Lage Julia Long Victoria and Jim McCallum Paul Kennedy Tricia Lakis David Long Matt and Abby McCarthy Janet and Martin Kennelly Joanne and Joseph Lamartino Stephen Long Sean McCarthy William Kenney Jay Lambke Amy LoTurco Nancy McCloskey Debra and Robert Kenney Diane Lanciotti John Love Kathleen McComsey Kentuckiana Allergy Asthma Mark Landes Malia Lowe Judy McCormick and Immunology Mary Lanier Nancy and David Lowerhouse Tina McCray Carol and Ray Kerstetter Christine Bates-Lankey and Linda Luden Sharon McCusker Laura Kersten Patrick Lankey George Ludwig Gloria McCutcheon Wendy Kessler Kathleen LaPointe George Lufkin Patricia and Paul McDonald Kathleen Kilkenny Jessica and Dr. Richard Lapp David Lutz Rob McDonald Christopher Kim Cathie and Ronnie Larmie Jenna Lynch Thomas McDonough David Kim Jama Larose Larraine Lyter-Reed and Wiliam McDonough Philip Kim Barbara Larsen Howard Reed Amy and Michael McEnvoy Jack Kime Marcia and William Larson Brenda Machacek Linda McGee Joanne Kindley Jihanna Lasala Joanne Mackie Linda and Michael McGee Terry Kindley Carol and Jansen Lasley Tracey Maher Robert McGoldrick Jason Kinsey Kathie and Alfred Laurice Madeline and Dave Maish Luann McGuinness Michael Kinzly Richard Lautenbach Laura Majerowski Nicole McInerney Rachel Kirk Deborah and Paul Lavalle Andrew Majewski Morgan McIntosh Jane Kirkland Marianne Lavery Alice and James Malloy Thayer Mckenzie Mr. Jesse Kittredge Felicia Lawrence Stephen Malloy Kathleen McKinley Christie Klimas Steve Lazar Richard Malnati Astride and Michael McLanahan Dawn Klouda Jeffrey Leach Laura and Keith Malone McLanahan Corporation Jennifer Knight Harry Lee Montgomery, MD, Kerri Maloney Richard McLean Eileen Knightly FAAAAI Maurizio Mancini Kathleen and William McLeod Karen Knipping Heather Lee Irena Mancini Laura and Scott McNaughton Katie and Kevin Knobl Karen Lee Charles Manes Laura and Robert McNeice Lisa Kobrynski, MD, MPH Gladys Leech Eileen Mangano Christine McNerney Dinah Koehler Miriam and Robert Lehman JoAnn Mangum Nancy and Michael McNulty Jennifer Harnden-Koehler and Maria Leles Michelle Manke Kathleen McNulty Stephan Koehler Cynthia Leo Ellen and Donald Mannella Pamela and Anthony McQuillen Judie and Tim Koeth Lorri Leonaitis Debbie and Glenn Manning Ann Marie McTernan Barbra Kogan Michael Lepore Angela and Anthony Manzitto Barbara and John Meade Ruth Lotsof and Daniel Komarek Carol and Reginald Letson Peter Marcano Maria Medina and Karina Nieto Angela Kontas Ariella and Naftali Levenbrown Robert Marcus Leticia Medina LeAnn Kooyenga Zorba Lieberman Daphne Markham Judith Medrow Wendy Kopanski Sharon and Charles Lindsey Carol and Chloe Marks Lon Meltesen Lisa Koppelman Lori Lion Matthew and Jennifer Martin Julia Mench Nancy and Bob Kossowsky Margaret Liotta Molly Mason and Thomas Fink Dale Mentink Paul Kothe Tobi Lippin Rick Mason Deborah Mentz James Kourgelis Dina Lipschultz Frances Massa Wendy Meoz Bernadine Koziara Amy Liss Ferdinand Massari Karen and David Merriell Stacey Kraft Scott Liss Allison Masters Donna Marie Meszaros, PhD Kevin Kramer Franklyn Litsky Elsa Matos, MD Jane and Thomas Metzger Raymond Kridle Marcus Littman Beverly and Melvin Mattheu Virginia and Frank Meuers IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 31 DONORS

Catherine Meyer Barb and Victor Nelson Passalacqua Prodigy Contracting Group, Inc. Suzanne and Charles Meyer Elaine Nelson, MD Meta Pasternak Prophet Brand Strategy, Inc Sean Meyers Michael Nelson Timothy Pastore Tom and Eileen Puette John Michels J. Nesbit Gina and Tom Pastorello Julie Pugh Debra and Paul Miehlke Corinne Newcomer Mary Elaine Patrinos Therese Pung Shelley Miehlke Joan and Gary Newton Wendy Pearson Joseph Purtell Katherine Miller Leah Newton Bryan Pearson Grant Quiles Joyce and Gregory Miller Henry Ng Karen Pearson Holly Quiles Linda Miller Kim Nicely Jo Ann and Nicholas Pellicone Edna Quillen Margaret Miller Sarah Nicholas Robert Peloso Carlos Quinones Miller Professional Pharmacy Donna Nichols Gina and Aaron Penn Diane and Daniel Radigan Linda Millette Kim Nichols Patricia and Paul Penn Paula Ragan Deborah Milling Erika Nicol Karen and Dominic Penna Neftali Ramirez John and Diana Milner Hana Nieber, MD Marguerite Pennoyer, MD Jane and Bill Rankin Patricia and Brian Miscall Jay Niebur Raul Peralto Jill Rankin Ann Mitchell Sharon and Mike Nisengard Perkins Coie Foundation Rectitude Lodge No 323 F & AM Barbara and Phillip Mitchell David Nixon Damian Perkins Walton Reddish Robert Mitchell Ikechi Nnakwe Christine Perovich Sheri Redman Carol Mokwa Dennis Nolan Judith Perr Barbara Reid Daniel Molloy Katie Norris Paul Perreault Carl Reid David Monahan Nikhil Nunes Everett Perry Thomas Reid Kevin Monahan Marilyn Nutter Pamela and Kevin Perry David Reis Eileen Moore Margaret OBrien Richetta Perry Jeanne Reisman LeeAnn Morgan Tess O’Brien Susan Peters Sofia Reisman Mickey Morgan Dennis O’Brien Karen Peterson Catherine Renwick Domenick Morin James and Elizabeth Occhipinti Paul Peterson John Renzi Joel Fishman Candace O’Connell Hillory Peters-Sulkowski Gerry Resciniti Jo Morrison Renee and Colin O’Connor Sidharth Phadke Christopher Ressa Marta Morrow Shelli and Michael O’Donnell Megan Pickette Henry Reynolds Randie Moss Karyn Odway Ruth and Thomas Pierce Tara and Jeff Reynolds Mary and Daniel Motzko National Frat of KDR Adam Pines Michael Rhodes Dona Darr Len Oliveri Zhanna Pinkus MD Lynne and Richard Rice Rosemary Mullany Anne Olson Sarah Pinson Kathleen Richards Anne-Marie Mulllen Karen and Kent Olson Andy Pinto Aaron Richards James Mullin Deborah and Peter O’Malley William Pippin Lora Richards Kristin Mullins Kimberly and William O’Neil Derek Pirruccello Paul Richards Kathy Mundinger Janice Ono Pisili, Inc. Ryan Richards Rhonda and John Mundy Ruby Opara Tim Place G. Wendell Richmond Brenda and Chris Murphy Courtney Orr Krystyna and Walter Plewa Sarah and William Richmond Dennis Musolino Sean O’Shea Stanley Plewa Kent Riddell Jeff Mustari Christine Ouellette Virginia Pollaro Rebecca Riebe Christine Musthaler Bruce Pace Vincent Ponticelli Kristen Rietema Connie and Timothy Myjak Debra and Charles Pace Paul Poole Riggins Development, LLC Masayuki Nagano Laura Pacheco Stacy Poplo Daniel Riis Sarah Napier Robert Packer Betti Porat Geraldine Rinaldo Patricia Naughton Karen Page Jason Porte Janice Rindone Alyssa Naughton Richard Paik Elizabeth Portnoy Jeanne and Harry Ritter Jayne and Thomas Naughton Painting with a Twist Gerald Powers Doug Rivenburgh Margaret Naughton Judith and William Palmisciano Presence Marketing Miriam Rivkin Judith Navetta Dee Panek Carol Price Jacqueline Robbins Greg Novack Karen Parker Jeffrey Priem Linda Robbins-Porazzo Donna Neff Ruth and Rodney Parry Dena Prochaska Nancy Roberts Nicolet Neidlinger Michele Pasqualina Elizabeth Prochnow Carol Robichaud Gregory Nell Bernadette and Dominick Richard D. Procopio Pam and Mark Roden 32 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Amanda Roder Michael Schulz Jeremy Smith Deborah Surrette Patricia Rodgers Kenneth Scianna Joan and Roger Smith Eve Svare Eliezer Rodriguez Mary and John Scott Joan Smith Michael Sweeney Steve and Linda Rogness Dan Scrivanich Karen Marie Smith Jean Swenson Michelle Romano Debra Sculley Kelly Smith Laura Swezey Neil Romberg Kerri Seagraves Marcy Smith Arlene and Donald Swift, Jr. Rosemarie Romeo Stefanie Sebastiao-Kirby Jennifer Smith-Gonzalez Matt Swirbalus Agatha and Charlie Romeo Paul Sedlacek Brenda Snyder Kathy Switow Judith Romeo Virginia Segaloff Matt Snyder Gregory Symes Dove Ronai John Segovia Nancy Soda Horace Symes Maggie Rood Gail Seidman Joan Sogan Lynne Rick Russell Roper Brian Seiz Lynn Solano John Tabor Carol Rosenau Elizabeth Seneff William Sollecito Elaine and Miles Talbert Jessica and Brendon Rosenau Maria Serna Karen Solliday Kathleen and Mark Talbert Anne Rothstein Teresa Sevener Rollin Soskin Maryann Tallman Francis Roti Patricia and Daniel Severin Jane Soucy Shalee Tan Arlene Rotter Richard Severin Jan and William Southerton Rachelle Tannenbaum Nikanna Roussou Carolyn and John Seymour Amanda Spann Felicia Tanzosh Suzanne and Willbur Ruebsman Amanda Shanahan Carla Sparkler Anthony Tarabokija Susan Rundle Kenneth Shapiro Joseph Spataro Matthew Tarabokija Timothy Russell Izhar Sharon Janet Spatz Martha Tarpay, MD Sean Ruth Brenda Shatsoff Charlene Sperger Pam and Bobby Taub Megan and Jason Ryan Alan Shaw Paul Sperry Helen Tay Michael Ryan Joseph Shaw Alda Spina Nancy Taylor Melissa S. Jennifer Shelfer Alexandra Spina Selma Taylor Vickyann Sablan Janet and Thomas Shoemaker Josine Spina Murano Steven Tempel David Saff Ryan Shuck Daniel Spitale Vita Terry Kate and Randy Safford Joyce Shupe SPJ, Inc. Nancy and Joseph Tessman Wendy Saladino Virgil Shutze Alice Spriggs Christopher Thiel Rosemary Salerno Gwendolyn Siani Sharon and John Spriggs Jessica Thomas Lou Ann Sandburg Michael Siciliani Christopher and Jamie Stanek Kim Thomas Adam Sandelli Michael Sidlovsky Natalie Stang Wanda and Kevin Thomas Sanden Oddities and Maryellen Sievert State Street Foundation, Inc. Angela and Dennis Thompson Specialties Lee and Richard Sigler Lori Steele Amber Thompson Marcia Saracino Pete Sikora Erin Steinemann Carol Thompson Grant Saul Suzanne and Steve Silverman James Stevens Tara and John Tisch Donna Sawyer Katlyn Simon Charles Stevens TJ Decker and Associates, Inc. Kevin Schaffer Carmela Simonetti Jennifer Stevens John Tolaro Joni Schaumburg Robert Singley Diane, Cynthia and William Susan and Mark Tolley Christine and Robert Schiller Miriam Sivak Stewart Steven Tomczyk Robert Schleckser Janet Skonieczny Wilson Stiles Becky and Joseph Tometich David Schmeissing Amanda Skoskiewicz Tom and Ruth Stoit Thomas Topmiller Cynthia Schmidt Andy Skrivanic Donald Stokley Judy and Richard Tornowske Justin Schmidt Peter Slesinski Sarah Stollenwerk Benjamin Torres Gregory Schmitt David Slotter Amanda Malone Peter Tozzi Ruth Schmuff Cathy Slovek Jean Stottlemyer Diem-Thuy Tran Fran and Marc Schnee Myron Small Stratford Dental, P.C. Gregory Treantos Sally Schnuck Kathleen and Drew Smith Kevin Streeper Gregory Treichel Taralee Schoen Amy Smith Erica Strohl Carl Trenz Janet and Donald Schrock, Sr. Robin Smith Christine Sturges Joanne Triguero Elissa Schuett Kim and Todd Smith Peter and Marilee Sturmer Monica Trout Gary and Linda Schulman Debbie Smith Kim Sullivan Maria Tsoukalas Adrian Schultes Elizabeth and David Smith Kathleen and Richard Sullivan Patricia Tuck Linda and Carl Schulz Heather and John Smith Alexis Sulyma Elizabeth and David Turner IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 33 DONORS

Ian Turner Debra Watson Linda Wuest AnaMarija Antic-Jezildzic Kent Turner Jackie Weaver Hovig Yacoubian Marianne and Alireza Anzabi Shannon Tyndall Victoria Webb Parviz Yadegar Michelle Appell Karin Tyson Lynn and Daniel Weggel Alisa Yang Gillian Appleton Christina and Gary Urban Sandra Weiner Brittany Yannetti Kerry Arbadji Christine and Anton Uscila Valori Weinstein Robert Yemola Frank Arena Shannon Vadnie and Marc Adele Welage Kena Yoke Maureen Armstrong Bendinelli Kimberly Wells Chrissy Young Patsy Armstrong Michael Vadnie Eileen Welsh Lisa Yuen Carolyn and Paul Arnold Jose Valdez Jennifer Wenzke Walter Zagrobski Arnold Aronson Marcia Van Alstine Jeremy Werner Terri Zainc Melanie Arsenault Jacquelyn Vandam Robert Weyer Zax, LLC Mary Ashley Kerry Vander Wal Karen Wheat Kathy Zeblisky Andrew Au Carolyn and Steve Ann Wheeler Patricia Zewalk Marcy Austin VanPaepeghem Patti E. and Loyd R. Wheeler Cathi Zichi Elaine Avinoam Ben Varon Sean Whelan Lisa Zielinski Janet Bader Mary Vasquez Mary and Ronald Whitaker Sasha Zill Patrice and James Bagby Jason Vasquez Arnold White Eric Zimmerman Kolene Bailey VDC Display Systems Paul Whitworth Barbara and Philip Zink Dedie and Steve Baker Prabhu Velan Douglas Wieder Amy Zuniga Casey Ballard Michael Venditto Sharon Wiescamp Dane Bamburry Kimberly Vengel Michael Wikete $50-$99 Tamar Barbash Margaret and John Venglarcik, MD Ethel Wilcox Anonymous (15) Debbie and Elliott Barish Mickenzie Vertuno Memorial Gwendolyn Wilcox A and B Lawn and Home Sara Barmettler, MD Fraternal Order of Police Lodge 19 Will County Circuit Clerk Services Shirley and Kenneth Barnes Lidia Vieira Deborah and Howard Willen, DDS American Family Insurance Joanne Barnes Debra Villacampa Eric Willey Sandra Mae and Gary Coralia and Cesar Barraza Cynthia Villarimo Brenda Williams Abbondandelo Kamran Barros-Rashid Daniel Villarreal Sonya and Danny Williams Ronald Abel Lisa Barry Nancy Vinger Susanne Williams Monica and Steven David Basri John Visconti J. Garrett Wilson Abramopaulos Vickie Basri Lorene Visser Emily Wilson Shelley Acosta Kevin Baszis Tom Vittum Gillian and Garrett Wilson Julie Adams Meghan Batchelor Terriann and Jeff Vogel Kellyn and Logan Wilson Anica Addison Robert Batchelor Sonia Vohnout and Steve Cassandra Wilt Polly Adkins Janice and Raymond Bates Fietek Nancy and Roger Wingert Artemio Agbay Jeannette Bauer Robin and Earl Voss Don Winkler Sarah and Nick Akins Kathleen Baumbach Victor Vrba Sara and John Wise Robyn Albaum Artie Bay Sheryl and Thomas Vrieze Louise Wisely Rebecca and Steven Alcaraz Sussan Beaven Suzanne and Jeffrey Wagner Seth Wiseman Theresa Aldape Michele and Mike Becker Bradley Waite William Wissmann Kelly Ales Wesley Beckett Lisle Waits Susan and Robert Wolf Janice and Thomas Alessi Deborah Beckman Sylvia and Robert Walker Jake Wolf Kirk Alford, II Rebecca Bedell Marshal Wallace Mary Wolf Andrew Allard Isaac Bednarski Jodie Walsh Pamela and John Wolfe Karla and Lowell Allingham Janet Beebe Jolan Walter Janey and David Wolff Dara Alperen-Cipollone Kathi and William Beiswenger Lincoln Walters Robert Wollenburg Patti Altmix Lisa Belfiglio Mary Walters Benjamin Wong Richard Amador Shelly Bell Katherine and Perry Walton Johnson Wong Surachai Amornsawadwattana Joseph Belmonte Brad Ward Debra Woodbury Dawn Anderson Rachel Ben-Avi Christine Warner Jennifer Woodman Kathi Anderson Debra Benes Peter Wasmer Shelley Woolverton Kimberley Anderson Tyler Bentley Anne Watkins Lisa and Richard Worthy Ronald Anderson Stephen Benza Lara Watrous Heather Wuebker Carrie Andreoletti Kelsey Bequette Marianne Annarummo 34 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Melissa Berkowitz Ella Brinley Jerome Carlson Lynne Cooper Laurie Bernstein Leslie Renee Briscoe David Carlson Norma Cooper Justin Berrey Caryn Briskin Ashlee Carmack Kenneth Cowan Angela Berryhill Anabela Brito Lauren and Marc Carpenter Andrea Craig Beverly Berryhill Larry Brooks Jeff Carroll Michael Craig LaDonna and Gregory Berryhill Patricia Brown Susan and Matthew Carroll Ellen Crain LaToya Berryhill Sandra Brown Mary Cary Lisa and Michael Crawford Lenny Beucler Candy Brown-Migneco Claire Cashio Kimberly Crawford Susan and Wyatt Bienfang Douglas Bruce Kay Casper Heather and Todd Creasy Jacqueline Binckes Amber Brumbaugh Nancy Castelli Sean Creelman Jack Birtwell Marty Brumbaugh Grey Cathcart Mary Jo Cristino Kim Biscoe Sabrina and Brian Brundage Beatrice Catullo Alexandra Critch Steven Blaine Karen Brundidge Dianne Cavender Wayne Cromwell Jeff Blair Monica Bruning Carla Cazares Sue Croom Douglas Blakey Jan Bryan Patricia and Christopher Cesak Virginia and William Croy Sarah Blanchette Linda and Charles Bryer Susan and Robert Chapek Karen Crumpacker Kim Blecke Helen Bryne Rebecca and Mark Charles Cindia Cruz Lauren Blondin Laura Buckley The M. E. Charlson and L.L. Danny Cruz Michael Blumberg Sandra Bullock Charlson Joint Trust Agreement Eileen Cruz Eric Boardman Patty Bumgardner Deborah Chechilo Robert Cullen Associates, LLC James Bobby April Burge Dodd Chipotle Paige Culpepper Eleanor Bockley Brenda Burgess Linda Christensen Marsha Cumb Elizabeth Bodien Lillian Burgess Jane Chu Teresa Cummings Joanne and Steven Boender William Burgess Tami Cicala Kris Cuneo Casey Bogarad Steve Burk Jessica Ciccolella-Kahl Ashleigh and Stephen Tania Bojanowski Ryan Burks Ann Clark Cunningham Shawn Boland Maria Burns Donna Clark Don Cunningham Laurie Bollinger TJ Burns Kelley Clark Joseph Curro Pamela Sherwood Booth Jill Burson Becky and Gaylon Clayton Kelly Custer Abbey Bosard Shelley Buschur Lorie Clayton Adam Cygan Brad Bothwell Matthew Bush Nicole Cleary Halina Czarnocka Nicole Bourke Scott Businsky Aspen Clements Peggy Da Silva and Dan LaRae Bourque Diane Butler Margaret Clifton Hodapp Michelle Bowen Kim Bybee Jennifer Clyburn Jane Daboub Mary Bowman Susan Byer Lonna Cobb Marilee Dalbey Robert Bowman Brenda Byrne Gretchen Cobbs Patti Dalrymple BP America, Inc. Jarrett Byrnes Elizabeth Cockrell Andrew Dalson Dawn Brabec Debra Cabrera Kerry Coffee Michele Dangelo Cynthia Brackett-Vincent and Kim Cadaret Jane Cohen Amy Danner Edward Vincent Shannon Cady Saundra and Harvey Cohen William Dare Kathleen Bradford Patricia Cahill Suzanne Cohen Cheryl Darling Sharon Bragin Donna Cain Ella Cole Leslie Dartt Scott Bramhall Michael Callaghan Donna Coll Rich Davieau Jason Brandt Sarah Calvanico Thomas Collins Karen Davis Winnie and Craig Bratlien Maria and Alfonso Campanella Esperanza Colon Cheryl Davis Kelly Brauer Wendy and David Campbell Sheila and Steven Conant Debbie Davis Domingo Bravo Jennifer and Skyler Campbell Enes Conedera Diane Davis Bridget Brennan Richard Campion and Robert David Confessore Priscilla and John Davis Amanda Brenner Crivell Nicole Connelly Stephanie Davison Marion Bridges Meredith Cantatore Susan Connor Ellen De Lalla Joyce Briggs Scott Cantrell and Brendi Nancy Conroy Angela Dean Sue Briggs Hendrickson Deborah and Anthony Conti Mallory Decof Nancy and Tom Brigham Ben Caputo Linda Contreras Christopher Deitch Christi Bringle Theresa Carguillo James Conway Tiffany Deitz IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 35 DONORS

Marcia Del Mar Michael Eichhorn Jeanne Foley and John Grip Yvonne and James Gern Mandi Del Pozo Ruth Eichinger Emilee and Ryan Fontenot Norine Gerson Carlos Del Real Loren and Jeffrey Eischeid Randal Foreman Steven Getz, RPh Audrey DeLacey Marie Elias Lois and Garold Fornander Roy Gillen Natasha Delacruz Leena Elkarib Donna Forrest Marianne Gillespie Carolyn Dellaratto Cindy and Ray Elliot Wesley Forrester Lia Gilmer Regina Delvecchio Jamey Elrod Pat and Diane Fortuna Susan Giloy Donna DeMaio Allison England Marin Fortune Martha Ginter Steven DeMarcus Dana English Melissa Foster Dino Giordano Robert DeMari Lyndsay Ensminger Tabatha Foster Tasheka Gipson Melanie DeMent Victoria Epperly Elinor Franco Bruno Giri Elizabeth Dennis Jessica and Brian Erler Sue Franco Bernetta Glazer Elizabeth Dentino Carol and James Max Ernst Sally and Michael Frank Lorraine Gliatta Emma Desiderio Samantha Ervey Kirk Franz Merrilee and Robert Glick Katherine and Charles DeVore Tayde Estrada Neil Fridman Christin Glodek James DeVoti Nathaniel Evans Tracee Friederich-Settle Cynthia and Albert Godfrey, Jr. Austin DiDomenico Elizabeth Evans Becky Fritz Linda and Paul Goldenberg Georgette and Jared DiDomenico Patricia Evans Cindy Fritz Eric Goldmann Karen Diehl Meghan Everett Angela Frost Ann Golesworthy Michelle Dielman Michael Everett-Patriquin Mary Fugleberg Marjorie Goodin Louis DiGennaro Gwen and Lloyd Everhardt Tim Fuhr Ross Goodman Emily Dillon Lori Fadden Lauren Fuller Goodshop Ana DiMaria Bonnie Falatek Carolyn and Eugene Fulmine Charles Goodwin Pauline Doane Jennifer Falesto The Fund for Blood and Cancer John Gordon Wilson Dobbs Keely Faridi Research Marjorie Gordon Donald Dodd Jessica Farmer Delaine and Michael Gable Nick Gordon, Jr. Ryan and Kimberly Dodd Jocelyn Farmer Xandramarie Gabucan Wenceslita Gorowski Theresa Doherty Kimberly Farrell Karen Gadlin Mike and Yvonne Gothard Bonnie Donaho Mary Faul Natalie Gagnon Laurie Goudy Carmen Donahue Deborah Favuzza Gainfield Sunshine Fund Laura Grabbe Patrick Donahue Sandra Feagans Diana Galaris Marianne Gradisar Vicki Dorsey Karen Feeney Eva Marie Galindo Keith Graham Betsy Dougherty Carla and Leonard Feinkind Lawrence Gallagher Nancy and John Graham Minerva and Herbert Douglas Justin Feldman Rose Gallagher Elizabeth Gralewski Patrick Dowling Paul Feltri Bhaskar and Usha Ganti Ruth Grant Theresa Doyle Anda Feneck Del Garcia Rosann Gray Susannah Dryman Valerie Fenton and Lucille Karen Garguilo Margaret and Chet Green Paul Dube Mullin Alda Garone Jacquie Green Susan DuChateau Deborah Ferguson Joni and Gregory Garrison Hallie Greene Katie Duff Elizabeth Ferguson Deborah Garrity Andrew Greenfield Jennifer Duffy Phyllis Fern Matthew Garvey Jamie Greenip Carol Dunlap Mark Fesperman Elisa Gatto Jamie Gregory Edward Dvorak Rachelle Fettig Gwenifred Gaulke Ruth Ann Griffin Justin Dvorak Joshua Feuerstein Doreen Gauthier Virginia and William Griffith Elizabeth Dwyer Michael Fietek Elizabeth Gavin Teresa Grignon Regina and Wendell Eaves Timothy Fietek Marcella and Michael Gay Andrea Groszew Jane Ebert Gail and Martin Finlayson Polly Gelfman Tom Grundy Laurie Edenzon Mary and John Fischer Hallie Geller Joanne Guarino Cathy Edminster Sharon Fisher Martha Gelles and Charles Garrity Virginia Guarino Bryce Edmond Sandra Flacco Rosemary and Paul Genisio Laura Guenther Robert Edwards Mary Flanigan Elizabeth George Tina Guglielmo Steven Edwards Tammy Flannery Gale George Ralph Guido Stephen Egan Latasha Floyd Don Gerhard Susan Guillermo Dawn Eichhorn Stuart Floyd Erika Germano Jean Guise 36 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Megan Guros Rachel Henderson Brenda Hutchinson Suzanne Jones Lolita Gutierrez Tiffany Henderson Lori Hyjurick Deborah Junk Alycia Haas Alison Hendry Michelle Hylton Ulrike Junker Naomi Hachen Dana and Serena Henjum Wilna and Frank Hylton Ahmed Kaboudan Annahita Haghgooie Cody Henninge Lauretta Ichniowski Cindy Kadlec Matthew and Erin Halden Sarah Henrickson Jeff Ieler Ralph Kaeser Deborah Halinski Virginia and Mack Henry Andrew Ierardi Janet Kahle Marybeth Halinski Renee Heraty Lorna Infanti Kimberly Kaiser Michelle Hall Greg Herman Tiffany Inglis Jill Kanter Raymond Hall Griselda Hernandez Jane Inman Catherine Kapas Jennifer Hallowell Christa Heron Lindsay Inman Andrianna Kastanek Angela Ham Matthew Hertling Michael Isaacs Jana Katsanis Julianne Hamlet Paul Hess Michael Isola Marjorie and Steven Katz Elizabeth Hammond Angela Heverling Joe Jackson Stephanie Katz Beth Hamric Eric Heydman Lyn Jackson Lynn and Stanley Kawczynski Susan Hanawalt Kathleen and Lawrence Higgins Francine Jacobson MariaLuisa Keane Patricia Hanenberg Amanda High Daniel Jacques Kirsten Keefe Denise Rene Hannah Charles and Debbie Hill Heather Jakan Jim Kellermeyer Jacque Hansen Dawn Hill Carol and Joseph Janda Dana Kelley Judy Hanson Jen and Nick Hill Carol and Allyn Janes Jennifer Kelley Cindy Harbison Elizabeth Hinckley William and Kathy Jankun Karilyn Kemerer Hannah Harman Mary Hipsher Pauline Jarrett Colleen Kenney Becky Harmon Merry Hoekstra Sheila Jarvi Erica Keogan Sally and David Harmon Jennifer Hoffman Linda Jaster Bonnie and Mark Kerns Mary Harrington Richard Hoffman Bethany Jeanblanc JoAnn Kerollis Kathryn Harris Gail Hoffmann and Charles Miller Patricia Jeansonne, MD and Kaitlin Kestenberg Keith Harris Dianne Hogan James Jeansonne Taylor Kesterson Leslie Harris Jessica Holliday Jonathan Jeffery Jill Kidder Mike Harris Zach Holliday Ross Jeffery Teri Kidwell Emily Harrison Jennifer Hood Lisa Jenkins Theresa Kidwell Matt Harrison Deborah Hooper Ruth Jeno Carmon Kieffer and Mark Alecia Harshaw Russell J Hopp DO Barbara Jensen Bentley Kathleen Hartford Richard and Shirley Horn Sherry Jewell Dennis Killeen Teresita and Gregory Hartz Adrienne Benjamin and Steven Robert Jirsa Mary Kimball Mike Haseman Horowitz Lovie Johnson Tracy Kimsey and Scott Myers Kathryn Hausner Sarah M Horton Amanda Johnson Florence and Timothy King Ellen Hawkins Jay Horwitz Amy Johnson Barbara Kinsey Lorraine Hawkins Lynn Hostmyer Ashley Johnson Rita Kirk Helena Haws Debi Hoyt Jang Mi Johnson Teresa Kittredge Julie Hayes Jennifer Hubbard Kimber Johnson Catherine and Douglas Kladis Keith Haywood Gail Hudson Lora Johnson Allan Klima Camilla Hazelrig Pat Huebner Marcia Johnson Mary Anne Knapp Gunna Hazelrig Tammy Huffman Melody Johnson Sonia Knight Rebecca Heatherman Melissa Hughes and John Nicole Johnson Erin Knobeloch Adam Hecht Baumbusch Susan Johnson Glenn Knobeloch Helen Heck Tamara Hughes Mary Jones Jackie and Bob Knudsen Tracy and Richard Heemstra Diane Hunt Alaina Jones Steve Ko Brittany Platt and Cora Mike Hunter Drucilla and Brasel Jones Ian Kocher Heidelbach Anne Hunter Falconer Jones Pam Koepsell Dianne and Frederick Hellhake Reiko Watanabe and William Kirk Jones Laura Kolk Stephanie Helms Hunter Larry Jones Patricia and David Konieczny Lance Helsel Jacklyn and Paul Huot Lawrence Jones Brian Koons Bradley Heltemes Jan and Charles Huot Rebecca Jones Barb Kourie Gary Henderson Ann Hutchins Stephanie Jones Anna Kovalszki, MD IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 37 DONORS

Kevin Kozinski Aron Lifschitz Michael Carpenter Kevin Meder Judith Kozulak Andrea Lightman Margaret and Glenn Mapes Nicole Megale LuAnn Kramer Hetty Lima Erin Marcano Elizabeth Meiser Jennifer Kranitz Rebecca Lineberger Jeffrey Marcinko Rosa Melgara Ellen and Christopher Krapf Judy Link Berri and Bernard Marglous Anna Mae and Frank Metz Cassia Krasnianski Velvet Linville Katrina Marin Shirley Meyer Steven Krasnomowitz Vincent and Kathleen Liotta Marcy Markes Fran Michelman Sherry Kridle Beverly and Ronald Little Madolyn and Mark Markham Cindy Miehlke Jerome Kroll Revocable Trust Susan Locke Brenda and Todd Marks Patricia and Carl Miehlke Paul Krippendorf Shelley Lockett Carol and Thomas Marlowe Ken Mihalik Lynn Kroll Alana Stubbs and Roy Matt Marocco Susan and Ronald Miles Catherine Kromrey Loewenstein Christopher Maroldo Amy Miller David Kruchkow Sarah Loewenstein Joseph Maronski, Jr. Carmen Miller Sarah Kudela Suzanne Logan Holly Marquedant Jesse Miller Carol and Brian Kurtz Pamela Longo Roberta Marshall Scott Miller John Kuryan, MD Suzanne Lorusso Marilyn and Tim Martin Todd Miller Ann La Botz and Gregg Mundt Rosanne Love Robert Martin Teresa Millhouse Laurie and Mike Ladewski Bill Loveless Ana Martinez Randy Mills Jane Laeng Carole Lowenkron Debra and Greg Masey Michael Mitchell Karen and William Lake, Jr. Robin Lowenkron Michael Mattheu Lynette Miya Marcia Lammando Catherine Lowery Jeffrey Maurer Janis Mlinar Susan and Arthur Landen Bonnie and Lloyd Lowinger Amy Mayer Vesna and Lino Mogorovic Jessica Lappin Cristina lu Rebecca and James Mazzeo Terrence Mohs Vito LaRosa Gail Lusvardi C. Janine Mazzola Jason Molinsky Sarah Larson Arlene Luterzo Scott McAdam Kelly Molloy Timothy Lauth Michelle Lutkowski Donna McAllister Kelli Mommaerts Linda Lawson Adele Luttrell Kerry Mcbrinn-Roda Shawne Moniz Amy Leary Jan Ly Sara Kate McCance Georgia Montgomery Patty and Morris Leavins Jacquelyn and Dennis Lynch Machele McCance Linda Montgomery Christine Ledesma Nancy Lynch Charles McCance Robert Montondo Elizabeth Lee Stacy Lyons Vilinda McCann David Moon Christine Lee Audrey Mack Laurel McCarson Deborah annd Raymond Moore Marion Lee James Mackey Edward McCarthy Gail Moore Audrey and Richard Lefever John Magalong Justin McCord John Moore Nancy and John Lehman Barbara and Kenneth Hall Magee Reginald McCord Meredith Moore Kirstin Leiby Christine Magleora Mary McCormack Marissa Morales Douglas Lemley Robin Maher Brian Mccormick Kara Moran Kathleen Leonard Diane Mai Jody McCormick Melissa Moriarty Toby Lester Marguerite and Claudio Maina Denise McCreary Melissa and Ken Morris Brian Lett Audrey Majerowski Robert McCune Michelle Morris Helen and Paul Leuzzi Suzanne and Robert Majerowski Anita McCurley Ellen Morris Mark Leventhal Juliann and John Majeski James Mcgivern William Morris Bob Levesque Janice Major Julie McGlone Carol Morrison Naomi Levin Rayna Malamut Angela McGuinn Christina and Thomas Morzello Ken and Merredith Levin Rita Malloy Mike McKay Angela Moscarelli Laura Levine Nick Malvesti Clay McKenna Gina Moscarelli Michelle Levine Barbara Malyuk Megan McLanahan Danielle Mueller Angela Levitan Robert Manarin Heather McLean Tracy Mueller Dana Levy Amanda Mancusi Sherrod McNeill Connie Muhlhahn Tracey and Evan Levy Krista Bock-Mangan and James Julie McPhee Victoria Mukovozov Yan Li Mangan Steven McPherson Joel Mulder Kerri and Brandon Libra Angelina Mangano Darlene McQuen Andrew Munyon Giselle Licursi Vicki Mangin Debora Meador Courtney and Timothy Murray Frank and Elizabeth Lieb Elizabeth Mansfield and Maria Medeiros John Murray 38 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Kelly and Rick Myers Eileen Owens Keagan Pope Jamie and David Robinson, II Eddy Myers Karen and Jeff Owsley Neil Portnoy Joseph Robitaille Ellen Myers Sonia Oyola Leanne and Stephen Ports Anne Roc Lindsey Myers Glynda Pace Nicola Poser Aran Roche Sandra Nagel Whitworth Christine and Bill Pagano Jill and Gregory Post Norberto Rodriguez Ampawan Nanbancha Jennifer Palla Allyson Potts Trina Rogers National Processing Solutions, Inc. Jamie Palmer Bree Powers Marcie Roggenstein Carmelo Navetta Mary Palmer Robert Premo Sharon Rohling and Richard Hill Deborah Nawrotzki Sandi Palmer Teresa Prickett Nina Roket John L. McNay Revocable Trust Carl Palmisano Amanda Proffitt David Rome Michael Nedzesky Sharon Pape Roxanne Prokay Rosemary Ronkes Jill Negro John Papp Karen Przestrzelski Holly Roque Dina Nelson Joshua Paradis Matthew Pucciarelli Melissa Rosa Eric Nelson Michelle Park Theresa and Marko Puljic Ariel Rosamond Gayle and Angie Nelson Krista Parker Sandy Pyott Christine Rose Rachel Neubauer Maria Pasalides Tina Quercia Kathy Rose Matthew Neugebauer Dixie Patch Darlene Quindlen Linda Rosengard and Julie Tim Neustadt Caroline Patrick Matthew Quinn Wellborn John Newton Aimee Pavek Michael Quinn Mona Rosenstock Noelle Nicholson Helen Pavia Cara Rabe-Hemp Julie Rosker Taylor Nicholson Mary Pawlowski Terry Raburn, RN, BSN Angela Rosselot John Nolan Lynn Pearcy Mary Radhuber John Rossi Amy Nordhausen Leontine Pearson Dagmar and Chris Radloff Rachel Roth Joel Nordin Joyce Pedrick Diana Radson Amy Rother Meg Noreiko Jackie Pedro Darrell Radson Caleb Rouse Nan Norene and Robert Taplin Ellen Peixoto James Radson Tracy Rowland Cindy Noverr Judith and Barney Pelant Charles Raffa Bonnie and Stephen Rowley Carhleen Nowland Jessica Pellegrini Natalie Rathbun Harriet Ruebsamen Tom Nugent Judy Pence Mary Rauch and James Hunt Melanie Ruffner Rita and Roberto Nunez Patricia H Penn RCB Cleaning Services, LLC Michelle Ruscitti Jack Oak Paul Pento, Jr. John Reardon Carrie Russell Amber OBrien Marjorie Penzetta John Reed Jeffrey Russell Angela and Rob O Brien Michael Perling Susan Reese Kimberly Russell Joanne and Timothy O’Brien Randy Perlmutter Leslie Reeves Erik Rygg Lorraine O’Brien Kristen Perry John Regan Stephanie Rykkeli Georgianne O’Connor Angela Pesic Michelle Regas Lesli Rynes Marion Odence-Ford Margaret Peterson Jennifer Reineke Erin Sacchi Rita and David Offutt Nancy Peterson Linda Reisman Larry Sachs Jen O’Hare Roger Peterson Nancy Reisman Sandi and Brett Sadovnick Jose Oliveira Robert Petracco Tara Remiasz Katie Saladucha Gina Oliveira Josette Pierce Theresa Rende Allison Salamon Cathy Olofson Karen Pifko Phillip Renico David Salamone Amy Opahle Beverly Piggott Rosemary Restuccia Raija and Samuel Salomaa Matt Orovitz Amy Pinto Monique Reyes John Samanns Brian Orsine Lisa Pisano RFRG Waterford, LLC Rebecca and Amon Samples Christina and Michael Orsino Ty Pitman Tania Rich Dana and Robert Samuelson, MD Andrew Orsino Patti Pittock Sheryl Rines Elizabeth Sanborn Anna Ortega Renee Plaza Ryan Rintoul Michael Sancho Melissa Ortega Pledgeling Foundation Peter Risdal Janet Sanford Michelle O’Shea Renata Plewa Alison Ritieni Woody Sankey Aida Osis Karen and Mark Welsh Byron Rivenbark Alyssa Santa Maria Nina Ossanna Garrett Ponciroli Lisa Roach Asha Santos Robert Otto Vincent Bonagura, MD Margaret Roberts Elizabeth Santos David Owen Jason Poole Mark Robichek Robert Santucci IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 39 DONORS

Steven Sargent John Slesinski Cindy and Steven Sussman Susan Tully Cathy Sasser Jody Sloan Steve and Olga Sutley Joan and Myron Uecker Nermina Saucier Arianna Smith Sarenne Sutton Barbara Ulrich Catherine and Patrick Bryan Smith Sheri Sutton United Technologies Saulsbury Carol Ann Smith Julie Swenson Haley Urbina Yvonne and Randy Saunders Diane Smith Doris Swenson George Valentine James Savarda Donna Smith Abigail Symes Cyndy Van Horn Malinn Saxe Hattie Smith Matthew Szott Philip Van Valkenberg Gene Sbalchiero Jean Smith Cindy Taibi Kelly Vance Andrea Scalzo Susan and Bob Smith Kiichi Takeuchi Sally and Lane Vance Robert Scasino Melba Smothers Michael Tankersley Josefina Vargas Marsha Schaal James R. Smyder Karen and Michael Tanona Shalini Vaswani Stephanie Schaal Snow Companies Mark Taraszkiewicz Joseph Vellali Julie Schadow-Laskaskie Cindy Snyder Stefaney Tate Paul Verdicchio Laura Schaffner Thomas Sollecito Anne Taylor Jason Viehland Ruth Schake Linda Spichalsky Bridget and Ryan Taylor Kelly Viera Susan Schimmel Robert Spina Darlene and Wilson Taylor Irma Villalaz Tena Schlingmann Michelle Spitale Jennifer Taylor Amy Vizenor Susan Schmidt Monica Spitale Josephine Terranova Jenny Voelker Linda and Ray Schmitt Stacy Lynn and Jim Spoonley Susan Terry Sandra Vogel Michael Schnyders Jessica Spriggs Rhonda Testa Kevin Vogel Beth Schuett Amanda Spriggs-Rhea Christine and Chris Theodore Madison Vogler Alice Schuster Tam St. Claire Marie Thomas Michael Voss Gabriella Schwartz Christine Stafstrom Richard Thompson Brett Vrieze Mary Ann Schwenk Linda and Richard Stark Natalie Thompson Joy Wagner Anthony Scrivanich Linda Stasik Ricky Thompson Jenifer Wald Randy Seidl Elizabeth Steele Marcia Thorner Joan Walendy Tracy and Dale Selbert Christie Stegall Teresa Tinney Sheila Walker Stephen Selfridge Benjamin Steiger TJR Consulting, LLC Debra Wallace Diane and Daniel Sellitto Margaret Stein Christine Toal Lisa and George Wallenfels Colleen Selvaggio Tabitha Stein Matthew Tobias Brandy Walsh Robert Severin Deborah Steinbaum Eric Toedtman Michelle and Francis Walsh Ashley and Tristan Sewell David Steinberg Deborah and Howard Tokarski Brigid Walsh Cassidy Shaffer Katie Steinfeld Donna Tolliver Matthew and Danielle Walsh Samit Shah Bonnie Steinmetz Suzanne Toloso Jennifer Walters Share Your Wish, LLC Cody Stephens Susan Tomczak Willis Watson Carrie Shield Kathleen Stephenson Leandra Tonweber Janet and William Wang Kait Shields Kenneth Stephenson Diane Tordai Yan Wang Jessica Shimek Mary and Robert Stevens Amy Toresco Linsay Ward Connor Shirey Mary Stevens Linda Toross George Ware Karen Shirey Cheryl Stewart Edgardo Torres Moses Ware Yvette and Jerry Shorten Susan Stickley Raul Torres Colleen Warner Laura Shutt John Stien Total Home Services Gerald Warren Linda Siegler Jennifer and Donald Stokley Clarice Totaro Meera Warren Dave Sievers Carol Stollenwerk Jason Totaro Sarah Warriner Nancy Sikora Robert Stone Laurie and Mike Toth Audra Washay Cynthia Silverio Carol Stratton Lori Townsend Timothy Waterworth Rose Silvers Betty Strauss Lori Trappe James Watlock Mark Simmons Diane and David Stringer Brittany Trappe Joshua Watson Darrel Simon Patricia and Edward Suffern Carrie Trask Eric Wayne Charleen Simpson Christopher Suhr Carol Tressler Steven Wayne Scott Sinelli Peggy Sullivan Carole Trohanowsky Kristen Weaver Amy Sinkus Ryan Sullivan John Trunzo Sarah Webster Tami and Paul Slaats Tammy Sullivan Sharon Tugman 40 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Carolyn Weed and William Annette Zanna Bob Armentrout Nicole Beaty Rastetter Calla Zeisloft Gina Armer Ebony Beaudoin Ami Weiner Patricia Zoeller Regina Armon Jackie Becerra Kathryn Jane Weiner Nicole Zola Olga and Lawrence Arnold Joanie Bechard Hilda Weisburg Barbara and Adam Zucker Anita Arora Jennifer Bechtel Theodore Weiss Elizabeth Ascough-Jessen Lisa Beck Kerri Wells Under $50 Shirleen Atkinson Jacqueline Becker Marsha and Charles Wells Anonymous (29) Marilyn Atlas Amanda and Matthew Beckstead Ellen Wesolowski Eyal Abraham William Aucone Gregory Beckwith Bethany Westlund Julianna Abraham Julia Austin Debora Behne Christopher Weston Elsie Acevedo Marion Avarista Karen Belden Edith Wheat Rachel Achituv Jim Aveni Andrew Belinfante Kristy White Donna Adame Jane Avila Peggy and Robert Bell Noreen White Joseph Adamkiewicz Rachel Azcuenaga Courtney Bell Sherie White Brita Adams Steven Back Kathy Bell Mary Whittall Linda Adams Joe Badalamenti Holly Bellistri Lindsey Whitticar David and Elise Adamson Kristy Bader Andrea Bell-Pitt John Whitworth Stephanie Afman Marissa Badillo Andrew Beltz Sue Whitworth Ben Aguanno Melissa Baer Lawrence Belusko, RN Sharon Wiggs Raj Ahuja Susan Baer Joan and Dan Benchek Jean Wilde Tylea Sides and Robin Alderman Julia and William Bail Amy Benjamin Nicole Wiley Vivian Alejandro Joy Bair The Benjamins Brooke Wilkins Sondra Alexander Dave Baker Keeley Benning Vanessa and Wade Wilkinson Lynn Alferman John Baker Kasey Beran Jane Williams Tina Alferman Lauren and Brent Baker Patricia and SA Bergquist Kelly Williams Tracy Alferman Kathleen Baldo Stacey and Craig Berk Rita and James Williams Katherine Alferman Laura Baldwin Glenn Berkin Robert Williamson Valbona Alla Shelli and Jacky Baldwin, Jr. Steven Berkowitz Sheryl Willis Angela Allegretti Victoria Ballantine Kristen Berner Carrie Wilson Eileen Allenstein James Balsamello Mary and William Bernhard Mary Lou Wilson Margaret Amato Melissa Balsamello Ryan Bernier Melissa Wimer Marilyn and Neil Amdur Sara Balthazor Susan Bernstein Patricia and Gerald Windstein Tricia Anderson Vivian Bansal Steven Bernstein Carrie-Ann and Richard Winquist Eric Anderson Debbi Barbieri Courtney Berryhill Louis Winston John Anderson Alyson Bardsley Jayne F. Betts Larry Winters Kathleen Anderson Kimberly Bargerhuff Kapila Bhamidipati Jason Wisely Linda Anderson Diana Barker Parth Bhatt Denise Wisely Terry Anderson Dawn Barkey Rafik Bhura Carmela Wisse Rebecca Anderson Melissa Barkley Anna Bialas Lynette and Gregory Wolcott Amy Anderson Anne Barmettler Patrick Biby Misty Wollenburg Anna and RJ Andreotti Jessica Barner Alsop Tracey Biermann Steven Wood Nancy and Joseph Andrews Cindy Barnes Susan Billings Kathy Woolner Courtney Andrews Nicole Barnhill Genevieve Bimslager Lisa and Blane Wright Kathryn Andrews Jennifer Barr Brodie Birkel Mari and Ted Wright Michael Anis Doreen Barrett Patricia and Eugene Birkner Kelly Wrolson Jodi Anselmo Jenifer Bartley Beverly Bishop Audrey Yannitty Nancy Antonius Laura Bartnicki David Bishop Heather Yannuzzo Jessica Antretter Shannon Basso Linda Bishop Albert Yau Shawna Applegate Robert Bastarache Aron Bishop Melissa York Christina Araque Jessica Bateman Linda Bitondo Rebecca Young Melannie Archie Sharonda Baxter-Mims Toni Glendening Malene Youpa Yvonne Arcilla Pamela Beach Margo Bjork Elizabeth Yuan Kathy Arens Sea Bear Heidi Bjugstad Donna Yuspeh Joy Arias Deanna Beaton Carrie Black IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 41 DONORS

Carmela Blackman Robert Brown Christina Carlson Jean Ciroalo Diane Blake Yvonne Brown Heather Carlson Christopher Clair Jody McCormick Margaret and Gary Brown Barbs Carnevale Brian Clark Greg Blakey Kimberly Brown Kathy Carnevale Cynthia Clark and Judy Luke Blanchette Kerri Broxmeyer Vanessa Carreon Buchanan Jennifer Bland Ashleigh Brucker Margaret and Charles Carroll Donna Clark Brooke Bledsoe Chassity and Travis Brugler Pattricea Carter Kisha Clark Helen Blier Swider Fran Brumit Jeneva Cary Bonnie Clark Stacey Block Dealia Bryant-Gaither Christina Case Lisa Clark Emily Bloom Courtney Budd Liz Casey Nichole Clark Juliana Bloom Tim Buehne Meghan Cassel, RN Shakima Clark Jeffrey Blum Kimberly Bullis-Byrd Bree Cassidy Paula Clarke Murray and Rhonda Blum Darrell Bullock Emilio Castaneda Mary Clawson Joshua Blumert Theresa Bumgarner Chris Castelllon Amanda Clay David Bodden Betsy Bunting Abby Castillo Joyia Clayton Barbara and Robert Bogg Patti Burd Sadie Cathcart Kevin Cleary Rose Bombela Tobias Kathleen Burge Carol and Ben Caudill Paul Cleary Jill Bond Marcos Burgos Tara Caulder Sharon Clifford Kathy Bonn Kristine Burkhalter Sandra and Kenneth Cederbaum Patricia climer Gail and Bob Book Kenneth Burleson Marylynn Cellamare Ray Clough DonnaMarie Bookbinder Melissa Burtt Coleen Cellini Sandra Cluster Maureen Boros Kelly Busa Laura Ceraolo Tommy Cochran Sara Bouberhan Mary Bush James Cereghino Emily Cochren Katelyn Bourque Mary Bushbaum Gabrielle Cervantes Elizabeth Cohn Sarah Bourque Amanda BuSteed Colleen Cesak Paula Colburn Linda Bradstreet Jenna Butler Lisa Chamberlain Ann Colcord Rosemary and Jerry Braginton Taja Butler Nona Chamberlain Chris Cole Cynthia and Lindsay Branca Sharon Butler O’Dwyer Lauren Yoojin Chang Kathy Cole Louis Brantmeyer Elizabeth Bynum James Charest Christopher Coleman Amber Brasington Kelli Bynum Carol Chase Roselle Coley JoAnn Brasington Malicia Byrd Krishna Chavali Roberto Colon Susan Brauer Katherine Caballero Bhairavi Chavan Daniel Colucci Dana Breen Robert Cagle Mr. Jordan Checkwood Margaret Cominelli Andrea Brend Jean Cagne Meredith Checkwood Mary Connett Emilee Brewer Cynthia Calderone Danielle Cheiken Dianne Cons Patricia Brewer Adrian Caldwell Maria and Jeffrey Chelette Trudy and Kevin Cook Patricia and John Brewster June Caldwell Erin Chicoine Lucinda Cooks Lyne Briand Maryann Calero Jan Chirchirillo Kara Coope Robin Bricket Gloria Caligiuri-Perdue Adam Choate Anne Cooper Colleen Brien Joyce Calogero Benjamin Choi Benjamin Cooper Phyllis Briggs Leslie Caminata Shari Christian Jaclyn Cooper Nancy Brigman Joyce Cammon Jennifer Christie Shaneka Cooper Daniel Brini Melissa Canham-Clyne Debra Christmann Julie Cope Brown Anita Brinson Kelly Cannon Stephen Christoph Vicki and John Corbin Jamie Brock Jennifer Caporale K. Christopher Julia Corley Nathan Brock Mary Lou Cappellini Alice Christy Amy and John Corneau Lindsey Brodie Rosemarie Cappoli Courtney and Daniel Chromeck Cindi Cornelius Jean Broholm Nicholas Caputo Nicholas Churaman Linda Coscore Frank Brooks Rosebud Caradec Jody Churilla Ellen Cosgrove Gina Brooks Marge and Joe Caraglia Christina Ciccone Bartholomew Costantino Mary and Robert Brosnan Gregory Carbone Leo Cid John Costenoble Virginia Brown and Stacie Snow Karen Carbonell Loretta Circkirillo Tara Costenoble Julie Brown Julie Carbonella Tammy Circkirillo Jan Costis Michelle Brown Jane Carlozzi Kathy Cirillo Mary Coventry 42 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Christina Cowperthwait April Davis Debbi Dixon Margaret Jean Eastin Loretta Cox Davin Davison Mary-Ellen Dixon Kelly Eastwood Sandi Cox Zeynep Dayar Arlas Dixon Maria Eaton David Cox Marisol De Jesus Darlene and David Doak Colleen Eckert Ingrid Cox Hans De Kok Dorian Dobrzynski Dr. Marsha and Herb Edelman Rachael Coyle John DeBartolo Shelley Dodd Andy and Lottie Edlund Tracey Craig Marie DeBlasio Margaret Dodds Pamela and Donald Edson Douglas Crail Tim and Kristin DeBoer Rhonda Dodson Angela Edwards Nan Crary Jennifer DeCota Joseph Doherty Alan Effrig Kristen Crawford Diane and Sal DeFelice Maura Dolan Paula and Douglas Egger Shea Crawford Joetta DeFrancesco Anne Dombroskie Aaron Ehle Jennafer Cribbs Barbara and Charles Degenhardt Nancy Donahue Susan Ehlers Shaniece Criss Andrea Degley Jean and John Donaphon Kristine Ehlis Cynthia and Philip Cronmiller Jennifer DeHart Mary Ann and Ben Donatelli Cheryl Eisenberg Mary Ellen Crumbock Sheila Deis Pinella Donnaruma Maryann Eleuteri Theron Crump Saida Del Real Elizabeth Donohew Suki Eleuterio Nicole Csipkes Dennise Delafuente Kristen Donovan Katrina Elkins Margaret Cumbie Rachel Delaney Jennifer Doolan Kevin Elliott Linda Cupp Esther DelCarpio Brandy Dopkin Michele Elliott Lavinda and Francis Curl Sue DeLellis Jennifer Dorman Wlenyeno Elliott-Browne Stephanie Curry Holly Delgman Brette and Cindy Dorris Amarra Ellis Michelle Curtin Deborah Delva Jill Dorsey Diane Ellis Amber Curtis Mary DeMay Scott Doty Brittany Ellison Bridget Cutshall Larry Demers Paul Dougherty Rebecca Elmendorf Patricia Cuviello Tom Demmers Thomas Dousa Lynda and Stephen Emanuels Katherine Cyr Toby DeMouey Mallie Dowdell Ryan Emmer Marc Czarkowski Dawn DeNap Michael Downer Jane Enfield Brian Da Silva Charlotte and Harold Denenberg Jennifer Downs Kathleen English Elizabeth D’Adamo Debra Denning Denis Downton Sarah and Shelton English, Jr. Donna D’Agostino Paula Denny Drew Doyle Nestor Ensenat Peggy and Mats Dahland Antonette Depace Norma Drafts HumLev Enterprises, LLC Robert Dahlen Jennifer DePace Donna Dressler and Karen Susan Entrican Christie DAiuto Lindsey DePippo Weischedel Lori Epstein Donna Damphousse Dena and Charles Deretchin Patrick Droll Talya Erdfarb Amie Dang Albert DeRita Alison Drozd Connie Erdrich Carol and Gary Daniel Cathy DeRusha Amanda DuBois Suzanne Ernst Margaret Daniel Catherine Desantis Shelby Dubois-Jenness Mauricio Escobar Virginia Daniels Nanci and Jeffrey Deverin Richard Ducham Hugo Espinoza Karen Daniels Lysa DeVinney Joyce Dudkowski Olivia Esquibel Kristen D’Antoni Anissa Di Vincente Samantha Duffy Abel Estrada Faith Danzey Barbara and Vito DiCamillo Zena Duguid Charlotte Etchison and Diana Betty Darcy David Dickens Christina Dukes McGrath Mercedes Dardet Marie Dickey Sarah Dumont Martha Eusse David Dark Jessica DiDonato Jan Duncan Spencer Evans Colleen Davidson Tammy Diener Lauren Dunlap Linda Evans Nancy Davies Jahnya Diggs Joanna Dunn Lorraine and Bill Eyl Cathy Davis and Charlotte Hughes Colleen Dillon Amie Durden Karen Ezell Magnolia Davis Penny DiMola Traci Duren Margaret Fabian and Donna Ayer Annette Davis Linda Diorio David Duvak Mary Fafara Lori Davis Mary and Joseph DiPrima Barbara Dvorak Angela Fagen Mary Davis Andrew DiPrinzio Christine Dwyer Dana Fano Tamera Davis Kathryn DiPrinzio Connie Dyer Eileen and Edward Faran, Sr. Alexandra Davis Dennis Dirksen Alexa Dysch Sandra and Meredith Farrell Nancy Davis Amanda Dixon Michelle East Thomas Farrell IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 43 DONORS

Ashley Farrow Patricia and Robert Fordham Sharon Garrow Sandra Gordon Pasqualina Fasulo Gerard Foret Beckie Gaul Stanley Gorka Margaret and Michael Faul Dawn Forman Meg Gavin Ricki Gorman Melissa Fawcett Joe Forte James Geary Helen Gosselin Christopher Fazzio Neil and Jo Fortkamp Judy Geletko Madeline Gove Susan Federspiel Katie Foshee Christy Genisio Jennifer Govern Carol and Lawrence Feidelman Tina Fox and Michael Wyman Suzanne and Ronald Genovese Shanon Gowen Zachary Feinberg Heather Foyt Scott Gentile Beth Gozdur Carole and Albert Felintin Kyrus Frames Jennifer Feltri-George Shannon Graham Joann and Donald Felker Aida and Jose Franceschi Julia and Bernard Kenneth Walter Gramley Jennifer Feltri-George Nadine Francois Geraghty Charlotte Gramling Denise Ferguson Paula Frank Craig Gerlock Douglas Granda Kathleen Ferguson Daniel Frank Holly and Jeff Germann Mary Grant Amber Ferguson Michele Franklin Elaine Germinario Robert Graul Nancy Fernandez Jay Franks Lorraine Gerretsen Cher Gray Cynthia Ferrante Andrew Frantz Jennifer Gersman Natalie Gray Douglas Ferreiro, RN Paulette Fray Cathy and Adam Gersztenkorn Timothy Gray George Ferridge Lori Frear Jeanette and Joseph Gettmeier Brianne Grealish Kathleen and John Ferrier Stacey Frear Alex Gholson Lawrence Allen Greaves Donna Ferrigno Ohanian Karen and Joseph Freburger, IV Lucille Giammarinaro Joan Green Alice Fesperman Barbara Freedgood Emmit Gibbs Paige Green Patricia Fesperman Maryann and Alton Freeman Raphael Giglio Samantha Green Simone Feudo Cynthia Freer Sharon and Claude Giguere Sonia and Colby Green Natalie Ficken Tracey Freier Dominic Gildehaus Ginny Green Teresa Field Brad French Kathleen and Joseph Gilligan Melinda Green Marlynn Filip Carie Frieder Wendy Gillis Pamela and Dwight Green Beth Filippo Sarah Fritz Tiffany Gilmore Regina Green Avriel Finder Jeremy Fritz Chris Glaser Karen Green Robin and Evan Fineman Kathryn Fujita Amy Glass Kathy and Kurt Green Lisa Finizio Leslie and Susan Fuller Linda Gleason Adele Greenberg Anthony Fiorani Suzanne Furman Jon Glickstein Brocha Greenberg Melissa Fiore Johnny Gable Lori Glitto Jonathan Greene Marie Fiorvante Katherine Gaboury and Erin Debra and Thomas Glod Robert Greeney Fire Rescue Team Boyle Joan Glosemeyer Jennifer Greenleaf Sarah Fischer Patricia Gaddess Nathalie Godbout Wendy Grennan Erik Fisher Jean and Louis Gaeta Joann Goff Daniel Greulich Michael Fisher Robin Gago Kathryn Gohman Kristina and Chris Griffin Sally Fisher Julie Gahl Isaac Goldberg Josh Grill Theresa Fister Jenna Gaither Mitzi Goldberg Johnie Grindstaff Doreen Fitch Cami Galindo Melody Goldman Amber Grindstaff Florence Fitzgerald Papia Gambelin Marla Goldsmith Rita Gronemeyer Sean Fitzgerald Ericka Gamble Jared Goldstein Gretchen Gross Arlene Fitzpatrick Lu Gan Ethan Goldstein Annette and Howard Grossman Ruth and Robert Fladmark Jeff Gaona Michelle and Ken Golembieski Laura Grosz Debra Floros Viviana Garcell Mindy Golub Shelley Grudle Martha Floyd Frank Garcia Carlos Goncalves Ariana Gruver Kathleen and Liam Thomas Flynn Sarah Garcia Carla Gonzalez Ignacio Guajardo Amy Flynn Giovanni Garcin Eddy Gonzalez Albert Guarini Patricia Fogg Anne Garcon Mintrue Gonzalez Michele Guarino Jade Foley Chris Gargani Alfredo Gonzalez Noelle Guerini Linda Folgo Beth Garofalo Jean Gonzalez Emma and Alfredo Guerra Mark Forand Linda Garoian Katie Good Martha Guerrero Christina Forbes and Wayne Jason Garrett Carol Goodrich Sally and Dick Gulbrandsen Doornbos Kathy Garriott Martha and Robert Goodwin Pamela Guthrie 44 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Bailey Guzaitis Rebecca Heidegger Miku Horimoto Chivon Jackson Heather Haas Linda Hein Cecilia Horton Juanita Jackson Laura Haas Erin Helfrich Natasha Hosein Linda Jackson Andrew Haberman Doris and Eugene Heller Elizabeth Houser Valerie Jackson Scott Hafetz Dawn Helm Nancy Howard Durman Jackson James Hager Cathy and Lloyd Hemauer Felicia Howie James Jackson George Hajishengallis Cheryl Henderson Laurel Hoynoski Rita Rae and Jerome Jacobson Michelle Halden Jess Hendrickson Briana Hoynoski Karen Jacquin Jessica Hale Susan Hendry Ellin Hoyt LaBonte Elise Jaffe Robert Halinski Marian and Maynard Henjum Mary Hrabovsky Deborah Jarvis Fredricka Hall Leslie Herbein Lin Lin Huang Jenna Jarvis Melissa Hall David Herman Margie Hubbard Madeline and Ersward Jascewsky Christina Hallak Devon Hermenau Lillie Huddleston Julia Jasper Justin Hallberg Liz Herndon Latrell Hudson Mary Jayjack Mark and Nancy Hallenbeck Dana Heron Scott Hudson Cindy and John Jeans Kristine Halliwell Abbie Herrick Donna and James Huff Ken Jefferson Carol and John Halverson Brian Herring Catherine Hufnagel Alexander Jefferson Michael Hamilton Barbara and Edward Hess Jamie Hug David Jeffery Michelle Hamilton Paula Heydman Lisa Huggins Kelly Jenkins Kellie and John Hanas Joyce and C. Michael Hicks Cathy Davis and Charlotte Heidi and Jerry Jensen Tamekia Hancock Amanda Hietpas Hughes Barbara and Russell Jerde Martha Handrich Lauren Higgason Courtney and Patrick Hull Erik Johannes Carolyn Hanff Janet Higginson Meredith Hull Matt Johns James Hanna Heather Higgs Richard Human Erin Johnson Juliana Hanner Judth and Robert Hill Mary Humphries Amy Johnson Jacob Harber Natalie Hill Marjorie Hunn Melanie Johnson Misha Hardt Ida Hill Mary Hunsberger Tunisia Johnson Eric Hardy Pat Hilsen Shirley Hunt Christopher Johnson Shawn Harlan Janice Hirneisen Adrian Hunt Marshall Judith Johnson Marietta Harmon Lila Hirsch Alisha Hunter Carly Johnson Karen Harmon-Faiai Tracey Hlucky Emily Huntoon Ola Johnston Amy Harper Linda and Martin Hoag Christa Huot Lillian and Ben Johnston Parbatty and Ghanraj Harrilal Laurie Hobbs Jon Huot Diane Jolly Francesca Harris Reiley Hoefer Kathryn Huot Amy Jones Kelli Lynn Harrison Sarah Hoff Carol Huseman Janice Jones David Harrison Joseph Hoffman MK Huthmacher John Jones Debra Harrison Nancy and Maurice Hoffman Donna Huttenhoff Jude Anne Jones Blaire Hart Phyllis Hoffman Sherre Hyacinth Michael Jones Colleen Hart Kim Hokanson Giovanna Iannello Katherine Jongco Hevan Hartman Kim Holden Mischa Idzerda Francine Jordan Michellia Hartmann Lauren Holden Kimberly Ilgenfritz Nicquelle Joseph Nancy Harville Kathlyne Holdenried Tyson Imming Bridget Joy Cindy Hatch Megan Holland Marie Inacio Deb Joyal Stephanie Hatcher Patricia Holland Loonie, Inc. Eva Joyce Shannon Hauppa Carol Hollinger Lindsay Inman Rhoda Joyner Barbara and Carl Havens Jennifer Hollowell Shawna Lee Irish Jupiter Baptist Church Robert and Margaret Hawes Laurie Holm Sadie Irvine Kelly Kabiri Carol Hayon Ellen Holman Sarah Irvine Jane and David Kadish Lori Hayward Darrel Holmes Sylvester Island Aime Kaesmann Angela Hazen Ashley Holtrop Eleni Isoldi Elizabeth Kaesmann Jane Healey Michaela Holtz Ronila Ivory Brittney Kahler Melissa Hebrink Janice Hopkins John Jablow Kristina Kallas Margriet Hedden Cari Horack Michelle Jack Ronald Kallies Erica and Gregory Heibel Cathy Horcher Cheryl Jackson Lisa Kamas IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 45 DONORS

Sidharth Kamireddy Lauren Kirk Beverly LaCoste Perkins Donna Levine Dina Kancepolsky Tomette Kirk JAnna Laine Becky Levy Joan Kane Kunal Kishore Lindsay Lair Amanda Lewandowski Clara and John Kangas Linda Kiszie Adriana Lajoie Marla Libertore Darlene and Michael Kanouse Robin Kitay Penny Lamm Anne Marie Liddy Eva Kaplan Maleewan Kitcharoensakkul, MD Julia Lammert Billie and Stephen Lieb Robert Kaplan Loretta Kladiva Barbara Landolfi Marguerite Lieb and Barbara Lisa Kaplan Sandra Klaudt Jacob Lane Nybo Autumn Kapter Aaron Knapp Sarah Lang Faith Light Samuel Kastanowski Colleen Knee Erika Lanier Evelyn Lima Briggs Rebecca Kasthuri Kara Knight Michael LaPaglia Pamela Lingenfelter Robert Katzman Maura Knobl Teodorita LaParre, RN Carmelita Lipesky Amy Kaufer Claudia Knoblauch Tami Lapp Eden and Dale Little, Sr. Martin Kavick Ruth Ko Delores Lara Mya Little Michael Kavky Deanna Kochner Nicole Larocque The Little Traveler Kaitlyn Kawczynski Clara Koczi Wendy Larsen Albert Loar Lori and Derek Keating Melinda and Dan Kodz Julie Larson Megan LoBue Virginia Keech Geraldine and Earl Koenig Linda Larson Andrea and John LoCascio, Jr. Terri Keefer Cindee Koll Josefina Lascano Dorothy and Ralph Locke Patricia and Patrick Keelan Bettie Komar Anna and Richard Lauer Jacqueline Lockerby Rachael Keeley Nick Komarchuk Stephanie Lauer Kathie Loehfelm Emily Keener Aleksandra Komeza Cindy Laufenburger Mark Loftin Sarah Kelbel Roman Kononov Caroline Laughlin-Graham Janice Long Bridgette Kelch Evelyn and Nick Kontas Christine Lavallie Kimberlie and Michael Long Colleen Keller Rebecca Kordsmeier Amy LaVancha Teresa Longo Lisa Kelley Melissa Korte Tom Lavelle Venessa Lopatka Melissa Kelley Angelica Koskela Lindsey Lawless Sandra Lopera Anna Kellogg Kathleen Kosnar Valerie Lawson Massimo Lopes Pegna Chris Kelly Sharon Kostiner Adri Lawson Karina Lopez Christine Kelly Justin Kotzenberg Rachael Lazo Jeanne and Stephen Lopilato Julie and Scott Kelly Jennifer Kowalski Marlene Leady Penny Love Ryan Kelly Patricia Kramer Johnny League Johnathan Loving Robert Kenefick Maura Kraucheunas Steve Lebrun Stephanie Loving Carrie Kennedy Greg Krempski Diane Lee Robert Lovretich Jennie Kennedy Bethany and Kevin Krieger Nathan Lee Barbara Ludwig Marilyn and Robert Kent Judy and William Krieger Karen and Mark Lefkowitz Sally Lufkin Debbie Kenworthy Melissa Krizner Rita Legan Jerome Luo Jane Keogan Tom and Chris Krol Fred Lehman Laurie Lutter Nancy Kerrigan Eric Kroll Rachel Lehn Christina Lutz Edward Kessler Jay Kroll Dana Lehner Diane and Brian Leahy Mariel Kestenberg Jennie and Joseph Krzystof Vicki Lehrer Katie Lynch Avery Kestenberg Barbara and John Krzyzkowski Kyle Lehrke Linda Jeanne Lynch Rebecca Kevern Elaine Kubicek Marilyn Leigh Miriam Lyons Carmelita and Melanie Keyes Tammy Kuempel Christy Leighton Roseann Macdonald Kierstin Kidwell Rosemary and Jacob Kuivenhoven Everett Leiter Jai Machen Whitworth Shanta Kilbert Lukasz Kuleszynski Alexis Lenhart Amy Mackey Michaelina Kilvitis Margarida Kumar Herb and Diane LeShay Heather MacPherson Karen Kim Jean Kung Shirley Lesher and Wenda Lucy Erdelac and Ted Mader Jessica and Cole Kimple Lester Kushner Lockuff Thasia Madison L. King Robin Kussman Joyce Leslie Gina Madonia Marsha King Mary Ann and Louis La Conte Eleanore Lessard Darling Magee VaLinda King Monica LaBelle Laura and John Lester Eddie Maher Richard King Wendy LaChance Mary Letteri Terriann and Jeff Vogel Vicki Kipreos Kathryn and Greg Lack Ellen Leue Pamela Maher 46 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

John Majerowski Caroline McCabe Metten Burgers, LP Phillip Morrell Aditee Majumdar Leslie McCafferty Jennifer Metz Michsel Morrill Kitty and Richard Malcom Brian McCaffrey Joanna Meyer Brian and Danielle Morris Stephanie Maldonado Heather McCarl Emily Meyers Sheila Morris William Malkus Kathleen McCarthy Steven Michael Lisa Morris Gloria Mallia Gretchen McCarty Mary Miesmer Jennifer Morris Ellen and Michael Malloy Meghan McCauley-Brown Maria Mihas Lisa Morrison Katherine and Jason Malmanger Kim McCollum Jane Milano Marcey Morse Robert Maloof Heather McCord Emily and Larry Milano Beverly Moseley Michael Malusis Denise McCormick David Miller Madelyn Mosher Joseph Mancuso Kelly McCormick Marghan Miller Margaret Mosher Tracy Manna Paul McCormick Barbara and Thomas Miller Nancy Moskowitz Deanna Manning Ruth McCormick Ed Miller Armand Moss Angelica Manriquez Lana and Jerry McCoy Jenny miller Ashley Moss Michael Mantell Ramon McCree Letitia Miller Julie Moss Kim Marban Virginia McDevitt Liz Miller Beth Mull and Michael Payton Tracie Marie Julie Mcdonald Patricia Miller Sandy Mumbleau Cynthia Mark Benjamin McDonough Rebecca Miller Samantha Munks Folty Joan Marks Maureen McElveen Stephanie Miller Jill Munoz Karen Marlano Sarah McFadden Melinda Miller Jennifer Munro Amanda Marone Emily McFerren Kim Miller Jessica Munro Jill Marquard Carmela McGowan Nicole Minni Barbara Murawski and Janet Jennifer Marquis Nicole McGregor Angelina Minutolo Hanks Patricia and Robert Marrone Elizabeth McInerney Jane Mirdo Carmen Mure Barbara and Herbert Marthaler Robert McIntyre Aliza and James Mitchell Maria and James Murphy Jackie Marti Michael McKenna Mary and Wayne Mitchell Mary Susan and Scott Murphy JP Martin Diane McLanahan Stephanie Mitchell Carol Musante Kari Martin Lori-Anne McLane Ja’el Mitten Cazim Music Mary Martin Kathleen McNally Kenneth Mize Marlene Myers Michele Martin Jamie Mcnamara William Moats Helen Myrick Ramona Martin James McNulty Heidi Mocchi Parvin Naficy and Alan Doktor Steven Martin Katie and Josh McPhail Joseph Modoni Lisa Najarian Carolyn Martin Kathryne and Larry Mealer Guy Moffitt Jamie Nakamoto Lisa Martinelli-lawson Crystal Medina Susan Mogensen Saule Narbutaitis Natalia Martinez Michael Potts Jack Mohlenhoff Kathleen and Ricky Narlock Mary Martinez Jessica Meier Liz Mohn Melissa Nation Teri and Dominick Martise Lynn Meighan Bill Momsen Katie Naumes Kimberly Marty David Meiners Oralia Montgomery Brianne Navetta-Modrov Derrick Marvin Marlin Mejia Suazo Joyce Montine-Therina Linda and Heather Nazlian Robert Mascarella Shelley Melchior Christine Montville Rose Nealon Chiarita Maslankowski Elizabeth Melius Joanne Moody John Neff Jennifer Maslen Jack Mellone Lesley Mooney Sahand Negahban Jean and Charles Massengale Marian Memmer Lauren Moore Patricia Nejmanowski Mark and Chris Matheny Elana Mendelowitz Ryan Moore Kathleen Nelson Jana Mattheu Monica Mendez Geraldine and Mark Morales Shelley Nelson Sharon Matthews Chris Mendoza Donna Moran Phillipe Nelson Phil Matthews Nell Meosky Luo Johanna Moran Jana Newar Nancy and Mark Maurer Lisa Mercer Stacey Moran Emily Newmire Samantha Maute Jill Mercer Cheryl and John Cal Moreland Patricia Newsham Jennifer Mautz Vickie Mercer Natalie Morello Ben Newton Karen Maxwell Merck Foundation Heather Moreno Monica Newton Shannon Mayers Connie Merrill John and Dana Lawson Anita Nibbs Theresa and Jacob Mayo Thomasena Merriweather Jeffrey Morgan Nancy and Woody Nicholas Joan McAlister Katie and Mike Metallo Morgan Stanley Mary Nichols IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 47 DONORS

William Nichols Amanda Palmer Michelle Pierson Megan Ramirez Michele Nicosia Pamela Palmer Adrienne Pietropaolo Arturo Ramirez Brandon Niederholtmeyer Laura Palombo Barbara Pikesley Veronica Ramos Galina Noble Connie Parisi Joseph Pinion Barry Rankin Robert Noblet Wendy Park Gene Ellen Pirazzi Gina Rantis Karen Nocella Sahrah Park Nancy Pirman-Weiss Karla Rautner Sharon Nocella Justin Parker Duane Pitt Joan Ravallo Amanda Noesen Christopher Parkes Pamela Pizanie Rahul Ravipati James Noga Chrissy Parks Rachel Pletke Christine and Del Raymond Northwestern Memorial Harold M. Parsons, III Michelle Pluhar Susan Recoon Foundation Janet Parsons William Plutt Christine Reda Ruth Norrell Laura Parsons Andrea Polites Casey Brasington Tami Nott Beverly Passantino Jean Polk Holly and John Redford Lucia Noya Shilpa Patel Molly Poloni Marvin Reed Barbara and Laurence Nybo Lynn Patinkin Ann and Daniel Polto Joel Reed Jennifer Obiedzinski Jill Patunas Kristin Pomykala Donna Regan Danielle Obrien Andrew Patzer Elizabeth Pond-McPherson Denise Reich Ed O’Brien Elisabeth Paul Jane Poole Steven Reich Martha Oburn Linda Paulet Robert Porto Teresa Reichert Carolina Ociones Rick Pavia Benjamin Posch Kara Reichler Sonia O’Connell Stephanie Pawlowski Michelle Posse Erin Reigh Kathleen and John O’connell Teri Pawlowski Kristyn Posten Terri and Douglas Reiss, PhD John O’Connor Jessica Paz Jane Potero-Motto Faith and Robert Renna Annita O’Connor Victoria Pearl Susan Potts Charles Resler Sean O’Donnell Cheryl Peckenpaugh Beth Powell Louis Ressler Nora O’Donovan Renee Pedro Ed Powell Dean Reynolds Bill Oestereich Mary and Jake Pelenis Patricia and Robert Prail Alice Reynolds Ryan O’Hare Lourdes Pena Alison Pratt Josie Rhoads Kristin OHea Lindsey Pence Steve Pratt Lamont Rice Kris O’Keefe Allison and David Penn Kimberly Preski Sarah Rice Karen Olaya Carol and Neil Penn Cynthia Price Sandra Richards Jennifer Oldham Julie Penney Tracey Prinzbach Natalie Richardson Renee Oliva Timika Peoples Progressive Casualty Insurance William Richardson Kristi Olson Karen Percy Company Amber Riefner Lane Olvera Charles Perdido The Progressive Insurance Deana and Gardiner Rigg Stephanie O’Neal Angela Perdue Foundation Kristy Riggan Marilyn and James O’Neil Michael Perez Mary and Clifford Prosch Deborah Ritz Christine O’Neill Cheryl Perine Rhoda and Morton Posner Sarah Rivard Susan Orlowitz Debra Perry Pruce Marie and Bryan River Sharon Ortega Lottie Perry Margaret and Silvio Pucci Krystle Rizzo Glen Osborne Susan Perry Patricia Puccio Patricia Roach Amy Ossi Brook Pester Leigh Pukel Nicole Roan Colleen and James O’Sullivan Gail Petersen Cathy Pulvermiller Patricia Robb Susan Ottenstroer Randy Peterson Mary Puryear Mary Roberts Amy Outhouse Susan and Richard Petrelli Jaime Pustizzi Maggie Roberts Lori Owens Agnes Pettini Ron Quartararo Ann Robinson Samuel Owens Michael Pfautsch Heather Quevillon Paul Robinson Tanya Pacheco Jay Pfister Sherri Quick Jacqueline Robinson Ralph Padilla Mia Phelps Elena Quintana Cheryl Robles Jaclyn Pajor Lori Phillips Mary Lou and Daniel Quistorff Laura Robusto Laura Palaima Caroline Phillips Frances Raede Susan Roche Christine and John Paley Elizabeth Phillips Marion Ragona Victoria Roder Raymond Palladino Tashi Phuntsok Ravi Rajamani Margarita Rodes Karlene Palmariello Madelyn Pierce Robert Raleigh Zenaida Rodriguez 48 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Michelle Rodriguez Maria Sanchez Brandt Schwer Jill Slopnick Virginia Rodriguez Sharon Sanchez Darla Schwertfeger Debbie Slowinski Melissa Rodriguez David Sanderson Melody Scott SLP Living Trust TX Pamela Rodriguez Carol Sandrowski-Hawkins Bryan Scott Linda Sluka Jean St. John and Steve Margaret Sands Audrey Scyphers Kathy and Charles Smalley Roenker Adam Sankowski Andrea Searle Elizabeth and James Smith Karen Rogers Laval Sans Brendhan Sears Barbara Smith Leila Rogers Susan and Ralph Sansolo Deborah Sebree Deborah Smith Wendy Rogers Janet-Lee Santeusanio Cheryl and George Sedar Jack Smith Yairmari Roldan Denise Santi Barbara Seebeck Matthew Smith Connie and William Roletter Mary Santor Danielle Segal S. Smith Barbara and Howard Roller Marcela Santos Elizabeth Segaloff Christen Smith Linda Romalin Stephanie Santos Kim Seibold Darrell Smith Anthony Romaniello Jamie Sarago Aaron Sensabaugh Carole and Gary Sniegowski John Romano Doriane Sarrazin Harriet Sessa Therese Snow Halley Romanoff Beverly Saturday Anne Settanni Samantha Snyder Laura Romeo Lisa Savage Rosemary and Ronald Sevean Adrianne Snyder David Rooks Hollee Saville Raymond Severin Jessica So Bernadette and Billy Rose Connie Sawyer Derek Sexton Hannah Schomburg Sarah Rose Jennifer Scantling Jenny Shaffer Carol Solberg Emily Rosenau Carletta and Craig Scarberry Betty Shamas James Sollecito Michelle Rosenberger Phyllis Scates Carol and William Shamonsky Anina Solomon James Ross Marsha Schaal Harriet Shapiro Joseph Solonika Micheala and Robert Rossell William Schaal Rosemary Sharpe Edward Sotherden Amanda Rothwell Alisha Schafer Melissa Sharpley Claudia Spallanzani Maria Rotolo Cheryl Schatzman Tracy Shavers Angie Spatola Joseph Rotolone Leslie Scheinzeit Cassandra Shaylor Blanca Spence Emily Rouleau Cindy Schempp Carol Shedlin Roberta and Mortimer Spiegel Nicholas Roundy Micheal Schenker Paula Sheehan Alli Spotts-De Lazzer Colleen and Dennis Rourke Kara Schicker Megan Sheets Dustinne Springer Rylee Rouse Cady Schimpff Michele Shelton Mary Springman Terri Rowe Molly Schimpff Judy Sheppard Charles Spurlock Jo Ann Roynestad Kathleen Schino Anne Sherbine Janice St Gemme Candice and Paul Rubin Megan Schmidt Kerry Sherlock Courtney St. Gemme Chandler Yran Rubio Kathrine Schnabel Melissa Sherrin Melissa St. Gemme Pate Amy Rudolph Rick Schnee Ann Sherwood Sarah St. Clair Gail and Robert Rudolph Samantha Schneider Andrea Shields Lorraine Stacy Mary Ruehle, RN Ashley Schoech M. G. Shields Kimberly Stacy Linda Ruff Kevin Schoen Belkis Sica Matt Stagner Dana Ruggiero Michelle Scholten, RN, BSN Barbara Siebold William Stanley Jazmin Ruiz Sheri and Allan Schott Marla Silverman Mia Stanzione Mary and William Rush Dawn Schrader Brian Silverstein Dorine Stapp Cara Rusmisell Schramm’s Family Shoes Victoria Simitses Harvey Starr Mike Russell Kathleen Schroeder Nicole and Charles Simmons Terry Starrett Carol and Thomas Ryan Vicky and Mark Schubbe Ruth and Ronnie Simmons Lynn and Lawrence Stasiak Traci Ryant Janice Schuette Stacy Simon Sue Stasiuk Sean Salins Katie Schunk Dana Skobilik Liz Stearns Tina Saller Christine Schutt Sara Skubal Renee Stefanacci Elizabeth and Brent Salsgiver Margaret Schwagerl Heather and Matthew Slack Michelle Steiger Rita Salzer Charlene Schwartz Daniel Slade Josh Stein Ronda Samouris Edith and Herbert Schwartz Heather Slesinski Marlene and Harold Stiener Cassandra Samuel Susan Schwartz Kimberly Sletmoe Erin and Michael Stephans Livia Sanandres Robert T. Schwebel Shawn Sloan Jason Stephens Natassja Sanchez Linda Schwenzfeier Annette Slomski Ron Stevens IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 49 DONORS

Candice Stevenson Gracie Theiss Stephanie Valentin Lisa Waugh Robin Stewart Maryann Theranger Tammy Valentine Susan Wease Nicole Stile Tristan Thibault Daria Vallario Amy Webb Lori Stires Judith Thomas Mary Lynn and Tim Van Duyne Kris Webb Laurence Stock Sheri Thomas Laurie B. VanKirk Lutz Weidig Jacqueline Stone Crystal Thomason Julie VanCardo Ryan Weigand Jamison Stone Melba Thomasson Kirk Vance Susan Weinberg Noah Stoner Erin Thompson Kristen Vanderwal Evie Weinstein Jessica and Jonathan Jana Thompson Eric Vantiegham Jeffrey Weintraub Stottmann Judith Thompson Shirley Vasquez Michael Weintraub Aneliya Stoyanova Laura Thompson Larry Vasquez Robert Weintraub Debra Struke Patricia Thompson Johann Vaz Troy Weis Edgar Sturkey Brian Thompson Bill Vega Jon Weisgal Janet Stutzman Melissa Thompson Eileen Veit Jess Weisman Michelle Suber Meira Tiboldo Geraldine and John Ventrice Rachel Weiss Monika Sudakov Steven Tipton, Sr. Odie Verges Cheryl Welcomer Dorothy and Joseph Suehle Lourdes Tirado Cynthia Vessel Sally Weller Michael and Lucy Sukman Art Toloso Rita Vicory Jennifer Wene Joan Sukowicz Lisa Tonnisen Laura Vieu Donna Went Kristen Sullins Chris Tornstrom Katy Vile-Craig Jeremy Werner Dorothy Sullivan John Torres Sarah Viles Kenya West Kathryn Sullivan Lori Torres Zaida Villarreal Kristin Wetzel Tracy Summers Cynthia and Vincent Toscano Mary Vitale Laura Wexler Kate Sundquist Lindsay Totaro Elizabeth and Joseph Vogler Melissa Weyeneth Reva Suter Jennifer Tounshendeaux Valerie Volaski Melinda Wheatley Gina Sweeney Denise Toval Hallie Vontroba Jennifer Wheatley Betty Swenson Nicole Tracy Robert Wacker Sandy and Alan Whiley Colin Swindlehurst Daisy Tran Tina Waeger Christie Whitbeck, PhD and Carole and Robert Swiontek Lynda Traum Brianna Wagner Thom Whitbeck Sandra Switz Diana Travelute Donald Wagner Katie White Chelsea Sydow Marcus Trein Marilyn Wagner Joyce White Christopher Symkowick-rose Kimberly Tretton Richard Wagner Linda White Marnie Syron Robert Trierweiler Lynn Walder Vicki White Melissa Szasz Trinity West Ventures, LLC Jason Waldowski Eve Whitman Brian Szempruch Kerri-An Trish Jim Waldvogel Amy Whitten Alyssa Tabachnick Walter Trott Gladys Raquel Wali Tina Wideman Jessica Tagler Tom Trumbauer Sarah Wali Linda Widmer Hoda Tahoun Jacqueline Tucker Barbara Walker and Kimblin Wiedrich Darlene and Donald Talley Kathleen Tucker Gustafson Pierre Dana Wieskopf Julie Tamer Celine Turgeon and Anne Lisa Walker Daniel Wilbers Lisa Tanimune Walsh Cassandra Wallace Renee Wilcox Nancy and Douglas Tanner Barbara Turino Erin Wallace Angelae Wilkerson Rob Tanner Lynette Turner Stacy Wallace Lynn Wille Lisa Tantillo Kyle Tweed Stephanie Wallace Mitzie Willett Janet Tarnowski Jamie Ullery Jessica Wallace Regina Williams Mary Tatum Rachel and Matthew Umhoefer Natalie and Bill Walls Emily Williams Esther and Larry Taylor Elizabeth Urbano Debra and Steven Walter Jane and Claud Williams, Jr. Vicki TeBeest Karen Uttaro Joli Wankowicz Kathryn Williams Stephanie Teichner Angel Vaccarella Quincy Ware Pam Williams Michael Teitel Suzanne Vail Troye Ware Pamela and Michael Williams Sarah Templeman Jessica Valencia Janice Warner Dusty Willis Maria Termo Louis Valencia Lesley Warren Albert Wilson Rita Territo Terry Valencia David Wasser Melissa Wilson Trudy Tharp Angela and Francesco Valente Bunny Watson Ms. Christine Walchli 50 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW DONORS

Douglas Wilson Susan Wynkoop Matching Gift Companies Macy’s Lois Goldberg-Wilson Denise Yacullo AllianceBernstein Matching Gift MassMutual Financial Group Susan Winter Andrew Yagoda Program McMaster-Carr Supply Emily Winter Yeo Jin Yoon AT&T United Way/Employee Company Cathy Winter Janice Young Giving Campaign Mercke Foundation Bonnie Winters Jessica Yuspeh Baird Foundation, Inc. MFS Investment Management Shayla Winton and Stephanie Erin Zaballa Bank of America Matching Gifts Saint-Gobain Corporation Winton-Smith Marta Zamora Baxalta Community Giving Foundation JoAnn Witek Cindy Zamrano Programs Salesforce.org Richard Witt Carmella Zastawnik Boeing Employee Individual Schneider Electric North Melissa Witt Sarah Zeitvogel Giving Program America Foundation Michele Wojik Tanya Zekovitch BP America, Inc. Shell Oil Company Foundation Carol Woldhuis Jennifer Zepf Bravfelets, LLC State Street Foundation Wendy Wolfe Earl Zibell Bristol-Myers Squibb The Benevity Community Tricia Wolff Karen Zibell Con Edison Impact Fund Anna Wolfson Lynn Zieburtz DonateWell The Progressive Insurance Jeannette Wood Debra Zierenberg Fidelity Charitable Gift Fund Foundation Rebecca Wood Kay and Re Zimbrick Goldman, Sachs & Co. The Toro Foundation Susan Woodbury Theresa and Jay Zimmerman Matching Gift Program Verizon Employee Engagement Brandi Woodke Phil Zink Graham Holdings Willoughby Capital Holdings, LLC Sherri and Shawn Wray Kristen Zivic Haemonetics Walt Wright Stephanie Zoltek Jewelers Mutual Insurance Martha and Karl Wright Sari Zugermayr Company Rosemary Wright Ryan Zurakowski Johnson & Johnson Matching Derek Wurster Gifts Program Anne Wurzbacher JP Morgan FM Global Brianne Wyatt Foundation Doris and Joel Wyman MacArthur Foundation IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 51

IDF Walk for Primary Immunodeficiency Teams 2016 TEAM NAME Clan Maish Infusion Sweets Magis #GioStrong Courageous Zebras Intactivists Magnum PI Krew #teamHailey CSL Behring Intouch Solutions Makenna’s Minions #teamrachpach CSL Plasma Irish Zebras Making Strides for PI #walkin’tallforPI Cynthia’s CVID Gang 2016 Isa is a Fighter Maldonado Marvels AAIR of Charlotte Dahlia Lovers Isabella’s Immunogladiators Mandy’s Immune Platoon Abbie’s Herd Dancing Zebras It’s an Ashley Thing Maranda AbsoluteCARE Dare to Walk Jack and Jill Associates, Marchesano4IDF Accredo Health Group David’s W.A.S. Warriors The Woodlands Texas Mark the Shark ADMA Bio Centers DeKalb Biolife Plasma Jacob’s Ninja Turtles Maryland Mighty AJ’S Platoon Services JDCH Division of Allergy and Maverick’s Mission Aj’s Team Delilah’s Crew Immunology McPhee Alanna’s Dazzle Desirea’s Zebras Team Jenny’s Journey Megan’s Herd Albert’s Angels Downtowners Jerry’s Test Michelle Alek and Kael’s Dream Drew & Mary Strength in Jessica’s Jamboree Michelle’s Family of Zebras! Team Numbers Jillsy Mighty Mighty Mason Ally’s Wish Elijah’s Warriors Jodi’s Team Mighty Mo’s Musketeers Amery’s Army Erin’s Antibodies Jonah’s Flyers Mikie G Amy’s Zebra Angels FHS SADD Judy’s Jammers Minions Anna’s Angels Fontenot Zebras Kaeser’s Krew Miracle Walker April’s Amigos Frankie’s Friends Kailey’s Superhero Team Misfits Ashlee’s Striped Sisters Frear Family For Primary Kari’s Krusaders Momma Dukes Ashley’s Zebra Stripes Immune Deficiency Katlyn’s Klan Nana’s Network Atlanta Allergy & Asthma Gabby’s Team Kaylee’s Courage Nancy’s Walkers Atlanta South Zebras Gabriel’s Angels Kaylyn’s team Nell & Jerome Avery’s Zebes Gatesville Zebras KDWHEAT’s Newton’s Herd Awesome Dawson Gifford’s Fightin Zebras Kedrion Team NKT AxelaCare Omaha Glennon Zebras Keegamole Rocks Noah’s Prison Ponies Bad Blood Good’s Gang Keeping Up With Kate Northwell Health Allergy Bette Family Green Zebras Kelly Rocks & Immunology Big E Grifols Kimber’s Pride Octapharma Biocure Gus’s Team Tyrannosaurus Rex King ‘O the Cats Omicron Gamma Zeta Chapter BioScrip Haemonetics K’S Zany Zebras Optioncare BioTek reMEDys Hafetz and Associates Laura’s Amazing Antibodies Paige Strong Biotest Holiday Team Laura’s Awesome Zebras Peachtree Asthma and BPL Halper’s Helpers Life with Liam Allergy Walkers Brandi’s Zebra Zoo Hart & Soul Li’l McZebras PI Walkers Britt’s PI Awareness Squad HealthQuest Infusion & Specialty Lois’s Coming back PromptCare Home Infusion Britt’s Trappezoids Heidi’s Heros Love Rachel Rocks CVID Brockin’ Zebras Hilton Americas- Houston Love Wins Rashann’s Stampede Caiden’s Crew Holly’s Friends & Family Lucas’s Stars Rayden Raiders Caleb’s Crusaders Horizon Pharma Team CGD Luke’s Crew Reisman Rocks Carolina Zebra’s Hot shots Luke’s Zany Zebras Rheana’s Roadies Chelsee’s Herd Houston THINK Zebra! Lurie Childrens Rhodes of Hope Christian’s Wolf Pack IGA Warriors Mac’s Pack River’s Hope Christina’s Crew IgG America Maddie’s Herd RMS Freedom for Living Chuck’s Champs Incredible Zebras Madi’s Zebras RNH Army of Awesomeness 52 | IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW IDF WALK FOR PI TEAMS

Samantha’s Herd Team Dana Team Rossi The Zebrateers Sarah’s Journey Team Dean Team Sam The Zeebs Together We Can Beat PI Team DISCOvery Team Saul Thundering Hooves Schwarz Force Team DWJ Team Sean Tommys Troop Sean Deal Team Elise Team Seth Tracy’s Troops See Jane Walk Team Elizabeth Team Sierra Jo Fields Trixie Seymour Zebras Team Emmett Team Slack Troop Ramus Smith Zebras Team Friars Team STC Tschida’s for Zebras SmolaStars Team Gamma Girl Team StuPIfy Turner Power Soleo Health Team Ganas Team Superman TZ’s Herd Southern Zebras Team Gee Team Tara University Hospitals Allergy / Spiece Immunity Team Ginger Team Taylor Immunology Steam Engines Team Greist Team Truth and Stipes Up and at ‘em! Steedabug Team Hahesy Team Tuttle Vada Strong Stephen’s Strollers Team Halden Team Vada Veterans - Team Brooklyn StormySky Team Hartford Team Waya Vrieze Team Strides for Stripes Team Hope Team Weber Walgreens Striped Warriors Team Jensen Team Wonder Walk To a Different Hoof Stripes & Strides Team Joe Team Wyatt Beat Strollin’ for Nolan Team Joslin Team X4 Walking for Ethan Super Antibodies Team Justin Team XLA Walking On The Wild Side Super B’s Team Khloe Team Zaballa Washington University Suzanne’s PI-Rate Crew Team Landon TeamFladFam Immunologists Suzi’s Sneakerz Team Laramae Texas Children’s Zany Wendy’s Warriors Take the Lead with Ethan Team Larson Zebras Whitney’s Warriors & Reed Team Liam’s Fight The A Team Wiescamp Taylor Team Linzebra The BA-Team Wild Boys Team AAPB Team Lisa The Cell Outs Wild Zebras Team Addie and Kenzie Team Longevity The Gargi Wilson’s Wonders Team Aidan Team Lukas & Danny The IV League Wygant Warriors Team AIR Team M The Jay Nytro Group Zak Attack Team Alex Team Marc The Jean Team Zebra Brothers Team Alicia Team Mass General Hospital The Low Down on PIDDs Zebra Cakes Team All That Jazz Team McGill The Mac Attack’s Zebra Crossing Team Ava and Dom Team Naughton The Mouse’s Team Zebra Princess Layla Team Baylee Team Naveyah The O’Rourkes Zebra Wings Team Becki Team Nawrotzki The Peach Cobblers Zebra Zeus’s Team Ben Team Olivia The Rad Team ZEBRA: Zany Eclectic Team Bogarad Team Owen The Region 219 Beings Rapidly Ambulating Team Boyle Team Palmer The Runt Pack Zebra’s For BioRX Team Caeden Strong Team Penna The Sub-Q-Tees Zebras in Tiaras Team Christy Team Peralto The Taters Zink’s Zippin Zebras! Team Cinderella Team Princess Leiah The Toothless Q Tips Zoo of Zebras Team Cole Team Rath The Tortoise and the Zebras Team Cole H Team Riley The Wolf Pack Team CuKo Team Risdal The Young and the Team Dallas Team Robert-Tron Breathless IMMUNE DEFICIENCY FOUNDATION — 2016 YEAR IN REVIEW | 53

IDF Walk for Primary Immunodeficiency Sponsors 2016

National Presenting Sponsor Local Platinum Sponsor Community Walk Gold Sponsor Shire Haemonetics HPC Specialty Pharmacy National Sponsors Local Gold Sponsors Virtual Walk Sponsor CSL Behring Accredo* Accurate RX Coram CVS | Specialty Infusion Services Alexacare Pentec Health Grifols Allergy Asthma & Immunology Relief My Air Comfort Mask Horizon Pharma Biotest IgG America | ASD Healthcare | US Bioservices Kroger** Octapharma Smart Meds Option Care Local Silver Sponsors Joe DiMaggio Children’s Hospital Local Walk Bronze Sponsors ADMA**** Soleo Health *** BioTek Remedys My Air Comfort Mask

*2 sites ** 6 sites ***8 sites ****10+ sites

The Immune Deficiency Foundation makes every effort to ensure the accuracy of donor and fundraiser lists. We extend our deepest regrets to any donor who may have been inadvertently omitted from this report. If you have a concern or correction, please contact us at 800-296-4433.