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July 2017 Final.Pdf HAPS Symposium Returns! JULY 2017 INSIDE THIS ISSUE: Summer 2017 marks the return of one of Houston Area Parkinson Society’s signature events—the Kerr Thorp Challenge 2 Educational Symposium—which will take place on Saturday, August 5th. It will be held at the Bayou City Event Center located at 9401 Knight Road. This is a Playing For Parkinson’s 3 new venue for HAPS as the popularity of this event has created a surge in attendance prompting our relocation. The new location Article: Low-Fat Dairy 4 Foods Associated with will allow us to accommodate well over the 300 who have registered for previous Modest Increased Risk symposiums. of Parkinson’s In this historic year, Parkinson’s Disease: 200 years later, takes a look at some of what we have learned over the last two centuries since Dr. James Parkinson Exercise and Support Insert Groups Schedule first published his Essay on the Shaking Palsy in 1817. Highlights will include breakthroughs in the field of genetics and technology; the latest developments Fond Farewells 5 in treatment options; advances in implementing exercise as part of daily disease management; and emerging awareness of how nutrition and complementary Ft. Bend County Groups 5 and alternative approaches benefit those with PD. Additional information about the conference agenda and session overviews are available in the insert in this Pasta for Parkinson’s 6 newsletter or on the HAPS website at www.hapsonline.org. Marathon 6 In the past, this full-day educational conference was held on an annual basis and we have received many questions about why this has changed. Last year, HAPS decided to adjust the schedule by keeping an all-day conference each year, but alternating Contributions & Tributes 7 between a general program and a conference specifically for those who identify as caregivers. This biennial model offers the Educational Symposium during odd numbered years, as is the case this year, and the Caregiver Conference in even numbered years. This transformation evolved as HAPS recognized the increasing needs of caregivers. HAPS offices and all In listening to their concerns and feedback, it became clear that they needed a groups are closed more formal program where they could come together to learn with their peers, Monday, July 3rd and ask important questions, and acquire skills and tools essential for long-term support Tuesday, July 4th in that improve the lives of those living with Parkinson’s. observance of the Fourth of July! In addition to this new conference schedule, HAPS will continue to present the Annual Summer Lecture Series which takes place during the months of June, July and August as well as Newly Diagnosed Education Programs throughout the year, STAY CONNECTED... and other educational sessions as those opportunities are available. This year’s Symposium is not one to miss. Local and national experts in the field will take the stage to share their knowledge on the most up-to-date Parkinson’s information. We look forward to seeing you there! HOUSTON AREA Who PARKINSON SOCIETY 24 28 22 5 Board of Board of Medical StaffStaff HAPSwho by • what the • when Numbers • where • why & how Directors Advisors Advisory Board 169 350 100 HAPS offers 169 monthly therapeutic exercise programs Each month, HAPS averages 350-400 phone calls from In 2016, HAPS social workers completed nearly one throughout the service area. clients, family members and the general community. hundred home visits which last 2.5 hours on average. 15 64K 5K Each month, HAPS social workers facilitate a total of 15 This year, HAPS will spend over $64,000 on Currently, there are 5,000 households who receive the support groups for patients and caregivers. transportation for clients and offer over 2,000 rides. monthly HAPS newsletter by mail or email. 2.4K 30K 50K 2,400 hours of education were provided through the In 2016, HAPS spent $31,914 on subsidized respite care Each year, HAPS delivers approximately 50,000 hours of 2016 Summer Lecture Series, Newly Diagnosed Education program providing 2,531 hours of respite to families. service to the Parkinson’s community. Program and Caregiver Conference. At this time of year during our Kerr/Thorp Challenge, we look to individuals to help support the importantWhere work we ervices from of diagnosis th s s th nt to do as the only Parkinson’s support organization in the 4 largest city in thee nation. HAPSe programsi are free, e but they id o n p v d don’t come without costs. For the last ten years, an average of 77% of othe funding HAPS has received has gone- right r o p f back into the local community to support programs while the remaining 23% contributed to the cost of doing business- y l i t f e e i covering rent, phones, supplies, equipment, insurance, and fundraising, etc. During these summer months donations will c a n o S d be matched up to $15,000 through the Kerr/Thorp Challenge. As the fundraising thermometer below indicates, we have n e v o s e r n i already brought in nearly $4,000 representing 25% of our goal. There are many ways to give to HAPS to helpy sustain the k t r h a i n P free programs it provides that assist families in managing life with Parkinson’s, not only now, but throughoutg the year. a i e n r b A e n t w o t e s Houston and 7 TOPsurrounding 10 WAYS TO counties GIVE TO HOUSTON AREA PARKINSON SOCIETY e u n o ! 1. Honor a friend, a loved one or the memory of someone with a contribution to HAPSH and we will notify those involved that a kind gift was made to pay tribute to that person. 2. Set up monthly giving through recurring automatic debits to your bank account or charge card Whyby calling the HAPS office. Even a nominal monthly contributionHow of $20 or $30 can add up to a significant gift by the end of the year. 3. Sign up to participate in your company’s matching gift program. 40% 4. VisitTHE www.smile.amazon.com MISSION OF HOUSTON and select AREA Houston Area Parkinson Society as your charity of choice. AmazonSmile is the same Amazon you know—same products, same prices, same PARKINSON SOCIETY IS TO IMPROVE THE 43% Funding service. HAPS receives 0.5% of the price of your eligible purchases just by using AmazonSmile SPECIAL EVENTS QUALITYwhen you OF shop LIFE on Amazon. FOR THOSE AFFECTED 5. BYOrganize PARKINSON’S a third-party DISEASE fundraising THROUGH event and name HAPS as FOUNDATIONSthe beneficiary. 6% 25% 6.SERVICES, Include Houston EDUCATION Area Parkinson AND SocietyADVOCACY. in your estate plans by naming the organization11% in your will. CORPORATIONS 7. Name HAPS as a beneficiary of a life insurance policy or donate it to the organization. 8. Make donations throughpopular donor-advised funds which are charitable givingINDIVIDUALS accounts offered by a sponsoring organization that are designed as an accessible, simple and less expensive alternative to private foundations. Put your money in, let the sponsoring institution manage it and then make a donation to HAPS. 9. Become a fundraiser for HAPS in the Chevron Houston Marathon and inspire your friends to support your efforts. 10. Share the HAPS GoFundMe page created by Board President, Pamela Skaufel, and encourage others to donate, too. For additional information on any of these options, contact the HAPS office at 713-626-7114. 2 | HOUSTON AREA PARKINSON SOCIETY The Best of the Blues at The Big Easy... Nearly 100 music aficionados and people passionate about Houston Area Parkinson Society’s mission attended Playing for Parkinson’s at The Big Easy Social and Pleasure Club on Sunday, June 11th to crusade for the cause! Event creator and organizer, Doug Benzuly, along with club owner, Tom McLendon, set the stage for a day filled with the fabulous music of eight of Houston’s finest headliner bands at this blues event in its third year. Over $6,000 of invaluable support was raised to benefit HAPS and help fund the organization’s services, with a portion of it contributing to the efforts of the Michael J. Fox Foundation for Parkinson’s Research. The Big Easy Social and Pleasure Club, where this event has been held since 2011, is the perfect venue with its nod to the tradition of the Social Aid and Pleasure Clubs that grew out of organizations of the 1800s called benevolent societies, which many different ethnic groups in New Orleans formed. Benevolent societies served a purpose that today has largely been replaced by insurance companies. They would help dues-paying members defray financial hardships, health care costs and funeral expenses. They also fostered a sense of unity in the community, performed charitable works and hosted social events. Doug’s outstanding efforts, Tom’s continued generosity, and the tremendous contributions of the band members’ time, talent and resources made it possible to honor this tradition to provide aid for those in need in our community. We thank them for helping raise valuable funds to make a difference for thousands of people with Parkinson’s as we work together to improve the quality of life for those affected by this disease. Special thanks to the bands for their rousing renditions of soulful down home blues and for inspiring us all with great music for good cause! The Mighty Orq Tommy Dardar Jonn “Del Torro” Richardson Rick Lee Sonny Boy Terry Westside Johnny Richard Cholakian Brad Absher JULY 2017 HAPS HAPPENINGS | 3 Low-Fat Dairy Foods Associated with Modest Increased Risk of Parkinson’s Frequently consuming dairy foods, in particular low- • As compared to people who didn’t consume dairy, fat milk, is associated with a modest increased risk of people who consumed at least three servings of developing Parkinson’s disease (PD), according to a low-fat dairy a day had a 34 percent increased risk new study published in the June 7th online edition of of developing Parkinson’s.
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