Martin House Hospice

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Martin House Hospice Martin House (Limited by Guarantee) Trustees’ report and financial statements Company registered number 2016332 Charity registration number 517919 30 April 2014 Martin House (Limited by Guarantee) Trustees’ report and financial statements 30 April 2014 Contents Trustees’ report 1 Statement of trustees’ responsibilities 17 Independent auditor's report to the members of Martin House (Limited by Guarantee) 18 Statement of financial activities 19 Balance sheet 20 Cash flow statement 21 Notes 22 Charity registration number 517919 / Company registration number 2016332 Martin House (Limited by Guarantee) Trustees’ report and financial statements 30 April 2014 TRUSTEES’ REPORT The Trustees, who act as directors for the purposes of company law, present their annual report and the audited financial statements for the year ended 30th April 2014. Reference and Administrative information Charity name: Martin House Charity registration number: 517919 Company registration number: 2016332 Registered office and operational address: Grove Road, Boston Spa, Wetherby, LS23 6TX Trustees and Trustees’ Interests The Trustees, who are also directors, are the members of the charitable company. The Trustees who served during the year and currently are as follows: David B Johnson BA Hons (Chair until 31 Former Chief Executive NHS (Trustee until 27 July 2013) October 2013) Will Lifford BSc., FCA* (Chair from 1 Chartered Accountant September 2013) Professor Cliff C Bailey MB, FRCP, Retired Consultant Paediatric Oncologist (retired 23 FRCPCH** (Vice Chair until 23 July 2013) July 2013) Dr Fiona Hicks BMedSci BM BS FRCP (Vice Consultant in Palliative Medicine Chair from 26 November 2013) Dr John H Livingston MB, CHB, FRCP, Consultant Paediatric Neurologist FRCPCH** Derek Chapman CA* Chartered Accountant (retired 10 June 2014) Dr Susan V Picton BM, BS, FRCP, FRCPCH Consultant Paediatric Oncologist Stephen A Plews Managing Director, Ackrill Group Ltd. Dr Robert Antony Smith MD FRCPCH Consultant Paediatrician David Swarbrick BA*/** Retired solicitor and bereaved parent Victor H Watson CBE, DL, LLD, MA* Former Chairman of Waddington Plc Jennifer Wilkinson Bereaved parent Robin W J Wood CBE* Former Administrator of Martin House (retired 23 July 2013) Jenny Slee (Cromack) LLB ** Partner, Addleshaw Goddard LLP Zoe Donaldson** Family law solicitor Michael Millington BSc Hons, MBA* Vice President, Croda Europe Ltd Timothy J Halstead LLB* Partner Shulmans LLP * Member of the finance committee ** Member of the research committee Patron: Investment Managers: The Most Revd. & Rt. Hon. Dr. John Sentamu, Brewin Dolphin Lord Archbishop of York 34 Lisbon Street, Leeds LS1 4LX Charity registration number 517919 / Company registration number 2016332 1 Martin House (Limited by Guarantee) Trustees’ report and financial statements 30 April 2014 Auditor: Bankers: Baker Tilly UK Audit LLP Barclays Bank Plc 2 Whitehall Quay, Leeds LS1 4HG 25 James Street, Harrogate HG1 1QX Principal Officers: Chief Executive: Angela Monaghan (from 01.09.13) Director of Clinical Services: Sheila O’Leary, RGN, RSCN Company Secretary: Aase Somerscale (until 24.10.13) and Angela Monaghan (from 25.10.13) Director of Business and Support Services: Aase Somerscale (until 30.9.13) OBJECTIVES AND ACTIVITIES Objectives The mission of Martin House is to enable children and young people with a life-limiting condition, and their families, to fulfil their potential through the provision of specialist services and high quality end of life care. All our services are delivered free of charge. Our vision is that every child and young person in Yorkshire and the Humber has access to palliative care when and where they need it. We have a set of core values, which guide everything we do: • We are family-led in the design, development and delivery of our services. • We are flexible and responsive to the individual needs of every child, young person and their family. • We listen to, respect and value each individual, without judgment. • We are committed to high professional standards and continual improvement in all we do. • We believe in partnership and collaborative working. • We strive to treat everyone fairly and equally. • We are passionate about our mission and vision. Our strategic aims during this period were to: 1. provide a service that is free of charge and meets the needs of any child or young person with a life limiting illness within our catchment area, who meets our criteria and wishes to use our services; and to support the family of any child or young person accepted for care by Martin House; 2. work collaboratively and/or in partnership with other professionals and organisations, statutory and voluntary, in the field of palliative care for children and young people; 3. maintain an effective financial strategy; 4. maintain high standards of care and governance; 5. develop our staff and infrastructure; and 6. play a leading role in development, promotion, delivery and research within children’s palliative care. Charity registration number 517919 / Company registration number 2016332 2 Martin House (Limited by Guarantee) Trustees’ report and financial statements 30 April 2014 We set out more detailed objectives in our Strategic Plan 2013-16. Our achievements and performance against these objectives are set out in the Strategic Report, below. The Charity Commission’s general guidance on public benefit is taken into consideration in all our reviews and plans. Activities To achieve our objectives, we deliver high-quality, specialist palliative care services for children and young people with life-limiting conditions, and their families, from diagnosis to death and beyond. These include: • planned or respite care • symptom management • emergency care • end of life care • community care (hospice at home) • bereavement care • psychological care and emotional support • a programme of clinical research and education Most of these services are delivered from a purpose-built hospice set in six acres of beautiful grounds in Boston Spa, near Wetherby in West Yorkshire. The hospice, the second children’s hospice in the UK at the time, was opened in 1987. Since then, it has developed continuously in order to meet the changing needs and expectations of the children, young people and their families who use our services. The hospice now has 9 beds in the House, which caters for the younger children, and 6 beds in Whitby Lodge, which caters for teenagers (from age 13) and young adults up to age 30 (and occasionally beyond). This was the first purpose-built teenage unit in the UK (possibly the world) when it was built in 2002. In addition, there are 9 family bedrooms where parents and siblings can stay and 3 ‘little rooms’ (mortuary rooms) where children and young people can stay after death until their funeral. Other facilities include a chapel, hydrotherapy hot tub, sensory room, teenagers’ recreation centre (the Den), recording studio, art room, music room, chapel, education/seminar room and outdoor play areas. Children and young people can be referred to Martin House at any point from diagnosis, between the ages of 0-19, if they have a life-limiting condition and live in east, north or west Yorkshire and the Humber. Children’s palliative care is different from adults’ in that it encompasses the whole family and continues throughout the life of the child or young person, and beyond for their family. Charity registration number 517919 / Company registration number 2016332 3 Martin House (Limited by Guarantee) Trustees’ report and financial statements 30 April 2014 STRATEGIC REPORT Achievements and Performance Palliative Care During 2013/14, we were actively caring, on average, for 340 children and young people and their families. In addition, we provided bereavement support, on average, to an additional 90 families. During the period, we: • received 86 new referrals, of which 67 were accepted, 16 were not and 3 were still pending; • delivered 3,105 nights’ of care for life-limited children and young people in the hospice (1,672 in Martin House and 1,433 in Whitby Lodge); • provided 1,845 overnight stays for parents, 1,099 overnight stays for siblings and 250 overnight stays for others of life-limited children and young people; • delivered 519 episodes (totaling 2,297 hours) of care at home and bereavement support; and • delivered 78 episodes (totaling 365 hours) of care in other settings. Sadly, 46 of the children and young people we were caring for died during 2013/14. Of these, 14 died at Martin House, 10 died at home, 17 died in hospital, 1 died on route to hospital and 4 died in other palliative care settings. We take referrals from east, north and west Yorkshire and the Humber. Diagram 1 shows where the children and young people we are caring for live, by local authority district: By local authority district Bradford Calderdale East Riding Hull Kirklees Leeds North Yorkshire Wakefield Out of area 0 20 40 60 80 100 Charity registration number 517919 / Company registration number 2016332 4 Martin House (Limited by Guarantee) Trustees’ report and financial statements 30 April 2014 Diagram 2 shows the breakdown, by age, of the children and young people we care for and diagram 3 shows the breakdown by diagnostic group: By age Neonate Aged 28 days - 1 Aged 1 to 5 Aged 5 to 13 Aged 13 to 16 Over 16 0 20 40 60 80 100 120 140 By diagnostic group Central Nervous system - Other Neuromuscular disease - muscular dystrophy Metabolic diseases Other Central Nervous System - Progressive Cardiovascular disease Neuromuscular disease - other Neuromuscular disease - spinal muscular atrophy Chromosonal abnormalities Oncology Metabolic diseases - mucoploysaccaride diseases Oncololgy - central nervous system 0 10 20 30 40 50 60 70 80 90 Of our 15 beds, 12 are used for planned stays and 3 are retained for emergency stays (2 in the House and 1 in Whitby Lodge). During 2013/14, we maintained an average bed occupancy level of 77% against planned capacity and 60% against total capacity. This is in line with average occupancy across all children's hospices in the UK1 [79% and 62% respectively] and just below our target bed occupancy of 80% for planned capacity.
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