The Kite A publication of AutismUp for members and friends helping those with autism today and providing hope for a brighter tomorrow.

A Bi-Annual Newsletter Issue No 3 - Summer 2013

Education and Support Services In The Community Advocacy Special Events Upcoming Programming New support AutismUp continues What it means to one KiteFlite is coming! The Fall Speaker Enhancements and programs for parents to collaborate within parent, professional Page 8 Series, The Annual expansions to and a Fall Training the community to and long-time Fall Conference, The popular programs Conference are on expand awareness advocate. Mixed Doubles begin in September the way. and advocate for Page 5 Paddle Tennis 2013. Page 3 those with autism. Tournament and Page 2 Page 4 more. Page 9

Many have asked, “why the name We’re up to the challenge and we’re up to change?” the business of bringing this organization and all it’s members up-to-speed as we Well, it was easy….our goal for developing strive to help local individuals with Autism our new brand was to provide clarity in who and their families, by providing support and we are, what we do and who we represent, opportunities that insure each individual is and, of course, we want to provide easier able to reach their full potential as we access to those who have yet to learn about promote life long success. On April 1, 2013, Upstate New York us. Our new name does all of this. Families for Effective Autism Treatment AutismUp is growing up with its members, officially changed it’s name to AutismUp. “I love the new name!” It’s about time!” always looking ahead, always moving The name change reflects the forward. What AutismUp brings is help for organization’s ongoing commitment to The response to the name change has been today and hope for tomorrow. Autism is our individuals and families living with autism. overwhelmingly positive as members, cause and it’s the reason this organization It also addresses the reality that autism families, friends and our community partners exists. We know Autism! lasts a lifetime, and AutismUp wants to face the reality that autism lasts a lifetime insure a bright future for our children as the and we need to insure a bright future for our grow. My hope is that as you read through this children. newsletter, you not only embrace our new name, but more importantly, you learn more Help for Today. Hope for Tomorrow. about the opportunities for your loved one At AutismUp, we aim to provide support to all with Autism that exist through AutismUp and individuals with autism across the ages--- that you find new ways to connect with Up support for families and children with autism families and people in our community who that grow up into adults with autism. We are willing to help. Autism is a big job, but Growing with AutismUp, you’re never alone! aim to reach new heights in everything we do. We strive to exceed expectations for AutismUp! Regards, those with autism and we’re raising the bar We hope you’re enjoying our new name and on autism awareness, advocacy, education new logo as much as we are! and support. Sarah Milko, President

The Kite, Issue 3 Summer 2013 1 THE KITE customized education programs Fall 2013 Expansions Girls Just Want to Have Fun & Boys will be Boys | “Gimme a SENSORY Break!” | Teens Convene on the Social Scene

Special Interest Group Just for Boys Sensory Exploration Camps Targeted Teen Programming

Girl Power Exploring Sensations Teen Scene

We will once again be offering our very popular Girl Exploring Sensations will once again be offered at Teen Scene is a new offering for 2013-14, and is an Power, which is a unique special interest group for the Gymnastics Training Center, for children ages expansion on our Teen Bowling program. Teens, girls with ASD, ages 8-15 years old. The girls 4-16 years old. ages 13-18 years old, will participate in one bowling participate in a variety of activities including: arts event per month, in addition to, one community and crafts; board games; wii games; discussion Led by licensed occupational therapist, Felicia outing events. We are actively pursuing popular activities and baking/cooking. Thierer, children participate in a variety of sensory community events, so please share any ideas you integration activities. Parents have seen huge or your teen might have, with Gia Carroll, AutismUp The overwhelming success of this program has improvements in their child’s ability to pay attention Program Director, at [email protected]. evolved into a second group, just for boys. and move their body, and AutismUp is thrilled to be able to continue offering this program. Lego Buddies The Boys Club Summer Sensory “Break” Camps Calling all aspiring builders! Lego Buddies is Boys will be boys, so another very popular special interest group for boys why not create a Boy’s Break weeks throughout the school year and and girls ages 5-10 years old. Turn-taking, Club?! The Boys Club leading into and out of the summer can be very cooperative play, and maintaining conversations are is for boys ages 10-15 stressful for children with autism, and their families. all goals of this program. We have seen genuine years old, and like Girl The reality is that kids with autism thrive with the friendships made through this group, and look Power, is a structure and routine of the school day, and sensory forward to welcoming more friends to join us! collaboration with integration insures regulation. AutismUp S t e p p i n g S t o n e s announces a new opportunity that fills this “gap” - a Fall programs Learning Center. sensory adventure for kids during school and begin in summer “break” weeks. September These groups will take place weekly at the Pieter’s 2013. Visit Family Life Center. We are really excited to We had a phenomenal response to our pilot autismup.org for continue our successful collaboration with Stepping program held the end of June and our second specific dates, Stones Learning Center, and the wonderful offering will be held August 27 - 30, 2013. Look for times and professionals that work with children and teens with future break week camps for the 2013-2014 school locations. Autism Spectrum Disorder. year.

Nazareth College will be offering a unique program for AutismUp teens that focuses on social communication. This program, Social Communication Clubs and Activities at Nazareth (SCCAN), is an after-school opportunity for youth in grades 7-10 to learn and practice social communication skills with same age peers in more natural settings. Skills and strategies for perspective taking, self-awareness, non-verbal communication, first impressions, humor, small talk and social problem solving will be targeted through instruction, role-play, and other interactive strategies. Please visit www.autismup.org to learn more and download the application.

2 The Kite, Issue 3 Summer 2013 THE KITE New Parent Programs AutismUp to Launch Dr. Sugarman’s “Parent Effectiveness Program”

AutismUp is honored to have received a grant from According to various researchers published in the For local parents of children with ASD, AutismUp the B. Thomas Golisano Foundation to roll out a Journal of Autism and Developmental Disorders, has learned that cost, convenience, and new program for the Fall of 2013. when therapy is delivered in a child’s natural accessibility are critical factors in their ability to environment with parents as the adjunct therapists, engage in a program. This is why we worked so The “Parent Effectiveness Program” (PEP) will be outcomes are positive. Consistency is the key to any closely with Dr. Sugarman and his team at RIT to taught by Dr. Laurence Sugarman of RIT and Easter parenting model, but especially in working with develop this grant proposal, which we are now Seals. Dr. Sugarman is a well-known pediatrician, children with ASD due to the rigidity of their own ready to bring to our members. We at AutismUp are talented presenter, and experienced teacher in the consistency. Therefore, parent education is the grateful to the Golisano Foundation for their support field of behavioral pediatrics. This program will be logical place to start to effect positive behavioral of this dynamic and innovative program and we’re for parents who want to learn to apply Dr. change. It should involve reinforcement of desired excited to offer it to our parent Sugarman’s clinical techniques from his practice at behaviors and modeling, which is demonstrating to members. Easter Seals to their home based interaction with the child what behaviors you want them to exhibit. their child on the spectrum. Data from this project Parents are searching for professional help with The new program will be will contribute to research at RIT. This interactive proven techniques. They want to both learn and offered free of charge to program on effective parenting techniques tailored practice these skills to increase their base of participants during the to the needs of children with ASD will be provided knowledge and elevate their confidence as parents. evening at the AutismUp once per week for four weeks twice this fall and be When parents are confident of their actions, they office (180 Linden Oaks) this repeated in the spring. Learning sessions will also are more likely to practice them consistently and Fall. Watch for registration be video-recorded to create a lasting educational demonstrate behavioral control in front of their opportunities in mid to late resource. children. Dr. Laurence Sugarman August.

Family Mentor Program Launching Fall 2013, our latest offering expands the AutismUp Cycle of Support. What: Who: When:

AutismUp families are assigned to trained, peer Participants: Any AutismUp family can apply to The first mentor training will take place in parent mentors who work with them for a year on an participate in the program. September, 2013, and matches will be complete by ongoing basis to connect them with community the end of October. Mentor training will take place resources and offer support and guidance. Mentors: Mentors are parents of a child with autism at least twice a year, and matches will be made at who are ready to share their knowledge and the completion of each training cycle. Due to the complexity of an autism diagnosis and experience with others. Mentors are given a ten- the inherent challenges of understanding each hour training course and resources to share. The child’s situation, supports beyond those of doctors program’s Professional Advisory Committee is are necessary for families to understand and obtain available to AutismUp staff to aid with information appropriate interventions and guidance. AutismUp’s and referral as needed. mission is to broaden the circle of support for the entire family, empowering them to take a proactive Matches: Parent mentors will be matched to a view on supporting their child with ASD. family based on several factors, so that they can provide first hand information on schools and local resources.

The Kite, Issue 3 Summer 2013 3 THE KITE awareness & support Community Relations Too Many Still Waiting 2013-14 Speaker Series Information, awareness and training are important Local and regional professionals with special elements in our efforts to continually educate our interest area expertise present to our members friends and neighbors about autism. Our goal is to about a variety of relevant topics relating to Autism continually improve our community’s ability to Spectrum Disorder. From diagnosis to treatment, support and include individuals and families with schooling and beyond, our Speaker Series is always relevant. This is an ongoing opportunity to be Autism Spectrum Disorder (ASD). informed, ask questions and interact with the AutismUp continues to offer a variety of training speakers and others with similar interests. sessions to the community at large. The Marion Elementary School invited us to provide Autism Teach Your Kids to Be Safe Awareness training. We proudly facilitated two sessions to over 500 students and staff. October 8, 2013 Presented by the National Center for Awareness and safety were the focus areas for Missing and Exploited Children recent training sessions provided to BOCES 30,000. That is the number of people with Transportation. General autism awareness, as well developmental disabilities who await a place to live as strategies for transporting students safely, were in New York State today. This number will only rise BioMedical Approaches discussed during the two day training. as children with autism grow into adulthood. The need is great and the time is now to begin to plan November 12, 2013 AutismUp is pleased to support students, for the future of individuals with autism. AutismUp Presented by Margot Weinberg, M.D. professionals, businesses and anyone in the intends to be there and participates in the efforts of community in order to further develop awareness. If Family Advocates United. your school or organization would like to learn more Special Education Legal Updates about specific training opportunities available, Family Advocates United is a cooperative group and Trends contact Ann Cole, Community Relations Director, by comprised of family advocate organizations December 10, 2013 email at [email protected]. including AutismUp, Developmental Disability Alliance of Western NY (DDAWNY), Family Presented by Joyce Berkowitz, M. Ed., J.D. AutismUp is also Advocates from Grace Community Services, available to attend area- Family Advocates of Heritage Christian Services, wide health and Lifetime Assistance Family & Friends, and Credentials Replacing the IEP recreation fairs to share Managing Autism Together Today (MATT). The Diploma information about autism goal of this collaboration is to support the January 14, 2014 and the programs and enactment of all legislation mandating supports and Presented by Jennifer Cacioppo support services provided services critical to the needs of people with by our organization. intellectual and developmental disabilities, and their Thanks to our active families who care for them. Supporting individuals with To Be Announced Autism Spectrum Disorder, membership for helping and their families, On May 18th, the collective group planted 1,000 February 11 and March 11, 2014 by expanding and enhancing to bring our mission out opportunities to improve into the community. flags at The Al Sigl Center - Wolk Campus to quality of life. represent those with developmental disabilities Presentations are held October through March, from If you would like awaiting residential support in our region. Families 7:00 - 9:00 PM in the AutismUp Training Room, 180 Direct Education Programming Social Skills | Life Skills | Recreational Skills www.autismup.org AutismUp to participate in addressed the crowd to tell of the challenges they Linden Oaks Drive, Rochester NY 14625. Please

Education and Support Services a community information have faced supporting their loved one with a register in advance by calling (585) 258-9011, or Parent | Sibling | Family | Professional | Community

Advocacy and Awareness email at [email protected]. Social Skill Education event, or know of a need disability. Legislators Mark Johns, Bill Nojay, Ted Life Skill Education Recreation Programs Special Interest Groups in the community, please O’Brien and Joe Robach were in attendance to Family and Sibling Support The Speaker Series is free to AutismUp members. Professional Training Awareness feel free to share these support such legislation. Advocacy To become a member, you may join online or Social Skill & Life Skill Education Programming for individuals with Autism Spectrum Disorder opportunities, times and Education contact the AutismUp office at (585) 248-9011. Direct Education Programming The flags traveled to Buffalo on May 25th, Social Skills | Life Skills | Recreational Skills dates with our office. We make every effort to Non-members are invited to attend. Everyone Support Services Parent | Sibling | Extended Family | Professional | Community DDAWNY (Developmental Disability Alliance of Advocacy and Awareness participate if scheduling and resources permit. In should RSVP. fact, it was a busy Spring sharing information in Western NY) held a planting ceremony. Victor and Rush-Henrietta, and at the City Health Note: Presentations are generally geared toward Connect with this collaborative project by email at Fair, MATT Fair, Greece Olympia High School, the parental perspective, but the information [email protected], or on Facebook provided will benefit all those working with the ASD Zumbathon, the Dr. James Ball Conference in at Still Waiting - Family Advocates United. We hope population. Canandaigua and the Autism Treatment Network to bring further funding and support to our loved Conference! As a result, our membership continues ones with developmental disabilities who are “Still to grow and relevant information continues to reach Dr. Margot Weinberg, Pediatric Waiting” for a place to live. Other “plantings” are in Integrative Medicine , LLC. and The more and more of our community. Center for Missing & Exploited the planning phase and a Fall trip to Albany is being Children launch the 2013-14 considered. Speaker Series.

4 The Kite, Issue 3 Summer 2013 THE KITE

advocacy

“The topic really isn’t do we advocate; the topic is how do we advocate.” — Julie Buick, Vice President AutismUp and Advocate

I was recently asked to give my definition of what learning the system from the inside out such as help families raise their comfort levels and help advocacy means to me. So I went with the first special education, social security, Medicaid, and the them become more versed in advocacy efforts and thing that popped into my head – Advocacy is list goes on. With any system it is built for the styles. supporting one’s self and others through informed people by people who work within the system and choices with the use of information, data, proactive often do not include those that are to be recipients The hardest part in creating change is taking the strategies, understanding of process and of that system. Therefore, parents and those first step. I encourage each of you to take that step collaboration in order to achieve a meaningful receiving services within systems have to become and sign up to help us reach new heights and create outcome. I pose this question to you. What is your involved in system change. an AutismUp Family Advocates group. This group definition of advocacy? will look at local and statewide issues and together System Change happens in many ways. From will be a united voice for our children and those in Advocacy is a topic and initiative near and dear to distance efforts like letter writing, emails and calls, our communities living with an autism spectrum my heart. As a parent we become advocates on to in person local advocacy efforts moving to a state disorder. behalf of our children the minute the doctor tells us and federal level. The way advocacy can effect that we are expecting. We begin by making better system change varies from individual to individual As I say everyday "It is the work we will do as informed choices about how to eat, what taking into account a person’s comfort level, their parents on behalf of our children that paves the way supplements to take, getting appropriate medical support system and the passion they have for a and continues to create change". attention, developing a treatment program, resting specific issue. Information will be following on location, time and more and endless hours of preparing for our bundle date of our first AutismUp Family Advocate’s for joy’s arrival. Advocacy is a lifelong venture AutismUp understands that when families work meeting. I look forward to seeing and hearing you whether we want this role or not. together for a common cause great things can happen. Our mission remains true to this day: to there. The topic really isn’t do we advocate; the topic is support individuals with Autism Spectrum Disorder, how do we advocate. and their families, by expanding and enhancing opportunities to improve quality of life. As you know Julie Buick is the Vice President Being the parent of a child with autism brings it will not be AutismUp directly that makes change. of Advocacy for AutismUp, an advocacy to a new level, a level many families may It will be the families who speak up and are willing to advocate and mother of three never have to be faced with especially not at such take the necessary action that will create the children, two of whom are an early stage in a child’s life. This level includes change. With this in mind, AutismUp would like to diagnosed with ASD. Julie Buick

The Kite, Issue 3 Summer 2013 5 THE KITE

Alex and Ani Charity acknowledgments Shopping Event Bracelets and bangles infused with positive energy brought many & accolades members and friends out to Alex & Ani this Aces for past May. A portion of all purchases made Autism were donated to Thank you to Roberta and AutismUp to help Mark Chaney of Calvary support the profound Automation for sponsoring, needs of our members. Alex and Ani supports and Midtown Athletic Club communities and organizations while inspiring customers for hosting, Aces for Autism to relish what is unique and authentic about themselves, - A Celebrity Tennis Benefit revealing the beauty that resides within. By allowing for AutismUp! Tennis consumers to enter the charitable world through their enthusiasts and supporters purchases, they believe a new generation of alike came out for the two philanthropists will emerge. The turnout was wonderful day charity event featuring and we plan to have another outing towards the end of the Tennis Pros Katrina Adams year. Stay tuned!

and Luke Jensen. 40 Alex and Midtown Tennis Pro children with autism partook during the clinic in tennis clinics led by Midtown Tennis Pros. AutismUp is grateful to be able to provide this

fantastic opportunity for our members! Participants, volunteers and Pros are all smiles after a successful Carm Puglia and Beth Ciardi tennis clinic!

Sarah & Ellie Milko, Lisa Chidsey, Nikki HIlger and !! Jay Advertising Sue Tharrett

AutismUp was thrilled to partner with Jay Advertising whose talented team produced a beautiful video that debuted at the 2013 Gala. The story of families living with autism in our Way to Go community was beautifully told and is available to view on our website at www.autismup.org by clicking on the YouTube link in the upper right hand corner. Thank you to everyone at Jay Wayne Advertising for your commitment to our cause. Your enthusiasm and creativity showcased the Central! spirit of our efforts in the community and the challenges of all those living with autism today. The Wayne Central High School Girls Softball Team Autism Open Zumbathon 2013 pledged their support to AutismUp through various Wayne Central Softball Team The 4th annual Autism Open was The 2nd Annual Zumbathon was led by Catherine fundraising efforts including t-shirt sales, hand crafted held June 1st at Eagle Vale Golf Mastowski and Shannon Collins at the Palmyra puzzle pieces and raffles. Ann Cole accepted a donation Club. It was another fantastic day Recreation Center on April 28th. Raffles, autism check on behalf of AutismUp from the team. Way to go! for golf with over 100 players awareness items, bake sale and other initiatives hitting the links to support autism collectively raised money to be used for scholarships initiatives, including those provided for AutismUp Summer ROC City Roller Derby by AutismUp! Thank you to Lynn Education Programming. and Mark Higgins and Carrie and Thank you Catherine and ROC City Roller Derby designated AutismUp as their Ron Toper for helping to raise Shannon. Your efforts June Bout Charity Partner, donating a portion of awareness and support for those are greatly appreciated. proceeds from June ticket sales. Many thanks! living with autism in our community. Catherine Mastowski and Shannon Collins Ronald General Motors McDonald

Thanks to General Motors Components Holdings, LLC House Grant who donated proceeds from an employee rose sale AutismUp was thrilled to receive a held in April. The sale was orchestrated by Lindsay grant from the Ronald McDonald Jones and Kristine Kinsman. House Charities! Thanks for your Mark and Lynn Higgins & Carrie and Ron Toper commitment to our community!

6 The Kite, Issue 3 Summer 2013 THE KITE FM Fitness Kudos to all for designating special event proceeds and funding to AutismUp! Autism Speaks, Inc. Baker Summer Camp A Fitness Boot Camp was held by Molly Flaherty of FM Fitness in January, 2013. Thank you to Molly for designating the proceeds from Award . Doug Flutie Jr. Foundation . Everest the event to AutismUp. Institute Jeans Day . Glenora Wine Cellars Sherman Elementary School Wine & Pasta DInner . Greece Athena Middle School Spring Performance of Willy Wonka . AutismUp was the beneficiary of the Dre$$ for Dollar$ program at the Sherman School in the Rush-Henrietta Central School District. John F. Wegman Fund . NYS Retired Teachers Sherman teachers and staff contributed for the opportunity to dress casually on Fridays! Association . Victor Central School District Sunshine Fund

GalaThe Reaching New Heights at Gala at thethe Gallery was heldGallery on April 26, 2013 to help lift AutismUp2013 raising more than $200,000 towards the expansion of programming, scholarships and a future multi-sensory learning environment.

Fun was had by more than 600 guests gathered to enjoy music by Travis Fitch and Orient Express, bid on more than 200 silent and live auction items, participate in numerous raffles all in support of families living with autism here in our Jennae and Bill Moran, Gala Emcee community! Thank you to all! We look forward to our Spring Jim and Amy Taylor Honorary Gala Chairs Gala in 2014. Stay tuned for more information! Mr. and Mrs. Ferdinand Smith

Auctioneer, Scott Hetsko

Dr. Steve and Corinna Ognibene and Sandy Christie

Sandra and Fritz Odenbach Honorary Gala Chairs

Mike and Carly Cerone & Shane and Jen Fackleman

Jeff and Renee Mertz

Mark and Roberta Chaney

CJ Buzzeli and Sheila Burke Rick Dorschel Live Auctioneer Chris and Bob McGraw & Karen and Rob McGraw Marty and Sharon James

The Kite, Issue 3 Summer 2013 7 THE KITE AFestivalThatWillTakeFlight AutismUp presents a family-friendly fundraising festival

As an organization of hundreds of parents of children with autism, d AutismUp understands win the importance of autism- friendly activities and that is exactly what you will find at the 2013 KiteFlite Festival!

A fun, family-friendly environment for a cause!

We aim to provide opportunities for our families to connect and our children to engage in a highly appropriate environment, but we need your help too. We can’t continue to expand and enhance programs and services that meet member needs without it. We are launching KiteFlite to help raise much needed funding for local programs that help Admission is FREE! ALL are welcome!autismup.org Form or ! sponsor a “March Team” today at today, develop support for Schedule tomorrow and drive awareness Registration 10:00 AM, Kite Parade 11:00 AM of the future needs of the local Festivities & Fun until 2:00 PM autism community. Featuring Kite Flying - Inflatables - Carnival Games and Get Involved! Prizes - Crafts - Face Painting - Magic - Seneca Park Zoo Mobile - Bubble Party and DJ by Form a march team or make a Showcase Sound pledge today. It’s easy and Appearances makes a big difference in the Super Mario - Rochester Red Wings player and lives of so many living with Mascots Spikes and Mittsy - National Center for Missing and Exploited Children’s Clicky - Moxie autism locally. This special the Moose from Bugaboo Creek Steakhouse - event is open to the community First Student Talking School Bus and families in an effort to raise AutismUp local & benefit awareness and enjoy a fun filled Proceeds from the event remain day in a supportive environment. the expansion of AutismUp’s programming for those living with autism in the Greater Rochester area and surrounding communities. For more Don’t Miss! www.autismup.org event information, visit A ceremonial celebration

Prizes awarded for craftiest kites, clever team names and at various fundraising levels

Dunk tank featuring familiar, friendly faces | Demonstration from Martial Arts Enthusiasts | Kid-friendly version of our famous Resource tent featuring participating agencies America | Fire Department and Monroe County Popcorn Pull raffle who service those with autism in our Sheriff Mounted Patrol | Wraps on Wheels | community Kona Ice | Kite flying by New York Kite Flying

8 The Kite, Issue 3 Summer 2013 THE KITE upcoming events August 19 August 24 “Golf Where the Pros Golf!” KiteFlite Tony Collins Foundation Parade, Festival & Expo Celebrity Golf Tournament Rothfuss Park, Penfield Locust Hill Country Club, 12:00 PM 10:00 AM - 2:00 PM Celebrity Line Up: Visit www.autismup.org for more information and updates to our Events Calendar and Lydell Mitchell, Baltimore Colts Program Schedules. September 2013 Roy Jefferson, Baltimore Colts & October 8 Fall Programs Washington Redskins Speaker Series Begin Stanley Morgan, NE Patriots October 3 Teach Your Child to be Beer and Wine Reggie Branch, Washington Redskins Safe Tasting Event Reggie Dupard, Patriots and Redskins 7:00 - 9:00 PM The Lovin’ Cup Doug Flutie, Buffalo Bills AutismUp 7 - 10 PM October 8 Roland James, NE Patriots Annual Fall Ronnie Lippett, NE Patriots 4th Annual Conference Charity Golf Tournament Fred Marion, NEMonday, Patriots August 12th November 2 Paul Kluth, PhD Registration / Sign Up Rosann Lill (585) 348-9525, [email protected] October 5 Vinson Smith,Team Name:Dallas Cowboys Team Captain: Captain Shirt Size: TYKES Sensory Friendly Inclusive Schooling and Captain Email: Captain Phone: Pay By Check: Make Checks Payable to: APFS Rochester, Inc. Production - Tales of a and Tony Collins,Credit Card: PatriotsAmEx Master Card Discover The Philanthropy Differentiated Visa Name on Card: Card Exp Date:

Credit Card #: Security Code: Challenge Signature: Fourth Grade Nothing Instruction: "A Player 1 Shirt Size: Proceeds benefitPlayer 1: AutismUp Player 2: Player 2 Shirt Size: PhotoFinish 5K Spectrum of Player 3: Player 3 Shirt Size: 4:30 PM Strategies" Door Prizes The Eastman House 50/50 Raffle Car for Hole-In-One JCC of Rochester Sports Memorabilia Silent Auction

November 12 November 23 December 10 January 14 January 16 Au-some Adventures Speaker Series Annual Mixed Doubles Speaker Series Speaker Series 2014 BioMedical Paddle Tournament Special Education Credentials Spring Gala Approaches Tennis Club of Legal Updates & Replacing the IEP Kick-Off 7:00 - 9:00 PM Rochester Trends Diploma Meeting AutismUp 2:00 - 10:00 PM 7:00 - 9:00 PM 7:00 - 9:00 PM AutismUp Annual Fall Conference AutismUp presents Paula Kluth, Ph.D. Inclusive Schooling and Differentiated Instruction: "A Spectrum of Strategies" October 8th, 2013 | 9:00 AM - 3:00 PM | Burgundy Basin Inn

Dr. Paula Kluth is a consultant, author, advocate, and independent scholar who works with teachers and families to provide inclusive opportunities for students with disabilities and to create more responsive and engaging schooling experiences for all learners. Paula is a former special educator who has served as a classroom teacher and inclusion facilitator. You can learn more about Paula at http://www.paulakluth.com/. Registration information at www.autismup.org.

The Kite, Issue 3 Summer 2013 9 THE KITE

In Appreciation Donations from June 30, 2012 to June 1, 2013 AutismUp continues to grow and evolve, bringing together parents, professionals, providers and entire families dedicated to providing help for today and hope for tomorrow. Our commitment is to work collaboratively with parents, family members and many community partners so that individuals with ASD will continue to grow in meaningful ways. Ongoing community support and involvement is vital to prepare individuals with ASD to live fulfilling, independent lives. On behalf of over 1,300 AutismUp members and their families, we thank all of our sponsors and donors for their tremendous support. *Designates 2012 Kite Society Member.

$10,000 and above Mr. & Mrs. Kermit & Laura Arrington Mr. Steven Ralph Ms. Kathryn Cook Anonymous Autodesk Sigma Marketing Group Mr. & Mrs. Joseph Coppola B. Thomas Golisano Foundation Mr. & Mrs. Jhujhar Bhambra Jen Spencer Cornell's Jewelers Calvary Automation Systems Canandaigua National Bank & Trust Dr. Laurence Sugarman Mr. Gary Cosentino Doug Flutie Jr. Foundation for Autism CMGRP, Inc. Mr. Patrick Talty Mr. & Mrs. Steve & Caroline Coyle HSBC Cobblestone Capital Advisors, LLC Mrs. Deborah Tetlow Ms. Mary Joan Cullinan OPWDD Contract Constellation Brands Truist Mr. Sean Dabrea Mr. Alberto Cosme Mr. Jeffery Tyler Mr. & Mrs. Vincent Dallo $5,000 - $9,999 Mr. & Ms. Gregory Duffy Eric Voss Mr. & Mrs. Willliam Daly The Dolomite Group Mr. Joseph Eduardo Mr. Christopher Wake Mr. Jeffrey D'Augustino Richard & Nancy Dorschel Family Mr. & Mrs. Charlie Fitzsimmons Mr. Adam Wallach Mr. & Mrs. Robert Derr Foundation GoForth Electric Inc. Stefan Willimann Amy DiFranco Wegmans Food Markets, Inc. David Guadagnino Mr. & Mrs. Lee Woodring Mr. Anthony Dondorfer Harter Secrest & Emery LLP Paul Donnelly $2,500 - $4,999 Hayes Asset Management LLC $1 - $249 Ms. Kelly Doran & Family American Packaging Corporation Mr. & Mrs. Aaron Hilger Ms. Jennifer Adams Dana Clark Drake Autism Open Hilton Family Advised Fund of the Ms. Margaret T Adams Ms. Kelly Ducar Aimee Ciulla Community Foundation of Middle Mrs. Joan Alden Mrs. Tammy Dudek Constellation Energy Tennessee Erin Alexander Ms. Carol Duffy The Dorschel Automotive Group International Union BAC Local 3 NY Ms. Chelsea Ammerman Ms. Lisa Durie First Niagara Bank Foundation The Kathleen Brenneman Fund Mr. Richard Andracki Mr. Gary Durnberg Greece Athena Middle School Theatre M. A. Services / Pullano & Company Anonymous Mr. Charles Eagle, Jr. Jeremy Raco Financial Planning Group * Ms. Eileen Maher Anonymous Mr. & Mrs. James & Suzanne Edlund Mr. & Mrs. Rob & Karen McGraw Honorable Jeffrey McCann Anonymous Mr. Thomas Enedy Monroe County Sheriff Police Benevolent Merrill Lynch, TheWoodring/Ponticello Anonymous Mrs. Tracy Engel Assoc. Group Anonymous EnPro Industries Barabara Mull Anonymous Ms. Sue Enright $1,000 - $2,499 Mr. & Mrs. Robert & Sharon Napier Martha Ansley Mr. & Mrs. Kevin Evarts Anonymous Mr. & Mrs. Lynn Parsons Mr. Robert Ashley Mr. & Mrs. Brian & Laurie Felber Autism Speaks, Inc. Penn Mutual Company Mary Atwell Fero and Ingersoll LLP Bank of America Hon. & Mrs. James Piampiano Baldwin Richardson Foods Co. Mrs. Katharine Ferruzza Mr. & Mrs. Marc Brugg Mr. & Mrs. Angelo & Lisa Ponticello Mrs. Susan Bauch Mr. & Mrs. Gary Fester Mr. & Mrs. John Carroll Mr. Michael Riordan Mr. & Mrs. Richard Bauer Wendy Filiaci Mr. & Mrs. Michael Cerone, Jr. Mary Jo Satterlee Mr. & Mrs. Darren Baun Mr. David Fingar Mr. & Mrs. Doug & Ann Cole * Mr. Gregory Schaller Mr. Bruce Bell First Niagara Empire Valuation Consultants Mr. & Mrs. Greg Schwarz Ms. Joyce Berkowitz First Niagara Rochester - Employee Dr. & Mrs. Douglas Fetkenhour * Dr. & Dr. Harry & Nita Singh Bill Gray's Restaurant Volunteer Council Mr. Frank Giangiobbe Mr. & Mrs. Mike Tharrett Jay Birnbaum The Flanders Group Goergen-Mackwirth Co., Inc. Mr. Willis Trafton Mr. Stanley Bliss Mr. & Mrs. David Flaum Ms. Diane Golisano Youngblood Disposal Enterprises of Mr. Robert Bloch & Ms. Joyce Barr Flaum Management Co., Inc. Mr. James Gould Western New York, LLC Mrs. Kathleen Borden Ms. Sheri Flynn Dr. Susan Hyman & Dr. William Fricke * Zeller Corporation Ms. Cheryl Bossert Ms. Victoria Follaco Mr. & Mrs. Frank & Sharon Insero Jeanne Bracken Mr. & Mrs. Eric & Kristyn Foskett Institutional Insurance Group $250 - $499 Valerie Bradley Susan Fox Lindamood Bell Learning Processes Allstate - The Giving Campaign Mr. Jason Brannigan Mr. & Mrs. Russ Gaenzle Mr. & Mrs. Sean Lucey Anonymous Mr. & Mrs. Steve Briggs Mrs. Heather Galetto Ms. Catherine Mastowski Anonymous Mr. Evan Brown Richard Garrett, Jr. Committee to Re-elect Assemblyman Mrs. Michon Ball Robert Brown Mr. & Mrs. Frank Gattellaro Joseph Morelle Mr. Nicholas Bottini Doris & Diane Burns Mr. & Mrs. Peter Geen Ms. Andrea Morelli * Conserve Mrs. Carolyn Jo Buzzelli Ms. Rosita Gilbert Nazareth College- School of Health & Mark Crane BVR Construction Company, Inc. Ms. Nancy Gilligan Human Services Dr. Michael DiSalle Dianne Carmody Glenora Wine Cellars, Inc. O'Connell Electric Company * The Edgecomb Family Charitable Fund Mr. & Mrs. John Carmody Dr. Ruth Goldberg The Powers Law Firm, PC Everest Institute Mr. James Carroll Mr. Jerry Goldman Mr. Timothy Rinaldi Ms. Patricia Fields Ms. Laura Carter Mr. & Mrs. Mark Grabosky Rochester Lead Works, Inc. FM Fitness Jean Casey Mr. & Mrs. M.A. Gringer The Ronald McDonald House Charities of Mr. Jerry Galeana Mr. Joe Casion Mr. & Mrs. Ralph Grotto Rochester, NY The Gates Keystone Club, Inc. Ms. Julie Caulfield Mr. Paul Grugnale The Ronald McDonald House Charities, Ms. Andrea Guzzetta Jason Chapman Mr. & Mrs. James Guerin Inc. Heritage Christian Services Mrs. Pamela Cheatle-Clark Dr. Lynne Halik, D.D.S Mr. Steve Rossi Mrs. Karen Higman Mark Christie Ms. Cassandra Hammond Ms. Maria Smith * Andrew Ireland Mr. Francis Ciardi, Esq. Mr. & Mrs. Gregory Hammonds The Arc of Monroe Mr. James Jacus Ms. Domenique Ciriello Mr. & Mrs. Michael Hanna Walmart Mrs. Kate Jacus Cobblestone Arts Center Mr. & Mrs. Stephen Harden Wayne Central Girls Softball Team Oma & Opa James Ms. Michelle Coffey Harrick Scientific Products, Inc. Mr. & Mrs. Mark & Stacy White * Janice Loss Mrs. Carol Cole Jenna Hartt Xelic, Inc. * Dr. Alice Loveys Mr. Timothy Collalto Paul Heise Mrs. Susan McNally Ms. Kathleen Colliflower Mr. Gregory Helmer $500 - $999 Mr. M Mogavero Ms. Donna Colucci Mr. Philip Hendrix Ms. Colleen Anderson Ms. Alexis Munding Mr. & Mrs. Patrick Connaughton Georgie Henry Mr. & Mrs. James Anderson NYS Retired Teachers Association Mr. & Mrs. Gerald Connolly Ms. Kathleen Hersam Anonymous Mrs. Marcia Povio Jaime Conrod Mr. & Mrs. Mark Higgins

10 The Kite, Issue 3 Summer 2013 THE KITE

Mrs. Christina Hilton Mr. & Mrs. Robert F. McGraw Ms. Theresa Panipinto RHCSD 9th Grade Academy Mr. & Mrs. Robert Hilton Ms. Eileen Mendoza Mrs. Ellen Panzer Ridge Pavement Marking, Inc. Kendra Hogg Mr. & Mrs. David Merkel Mr. & Mrs. Thomas Passero Ms. Mary Ellen Rowley Ms. Colleen Holland Patricia Messina Mrs. Patricia Peiris Mr. Joseph Ryan Mr. & Mrs. Federic Houtenbrink Ms. Elizabeth Messner Dr. Lori Jeanne Peloquin Mr. Stephen Ryan Mr. John Howland Mr. David Meyer Mr. Matthew Pfeffer Ms. Kathy Rynders Thomas Huber Mr. Daniel Miga Eileen Phillips Mr. & Mrs. Eric & Lisa Schaeffer Mrs. Kellie Hudson Mr. Richard Miga Pete & Gillian Phillips Ms. Patricia Schlegel Mr. & Mrs. Richard Humphreys Ms. Maria Milella Mr. & Mrs. Jason Pierce Mr. William Scofield Michelle Ingle Mr. & Mrs. Daniel & Ann Monaco Mr. Kenneth Pierson Ms. Patricia Seeberg J & J Matching Gifts Program Mr.& Mrs. Robert Moore Mr. & Mrs. Henry Pietraszek Mr. & Mrs. Dmitriy Shapiro Jewels of Austria, LLC Mr. Sanjay Sharma Mr. & Mrs. William Kane Mrs. Deborah Shaughnessy Mr. & Mrs. Maurice Keating Mr. Christopher Shea Kristi Kelley Mr. & Mrs. Charles Sheppard Ms. Patricia Kellman Sherman Elementary School Staff Mr. & Mrs. Steven Kerr Ms. Jayme Siegel Mr. & Mrs. Roland Ketchum AutismUp 2012 Inaugural Kite Society Members Mr. & Mrs. John Simaitis Kidzone Family Salon Ms. Deana Smith Mr. & Mrs. Charles Kirkpatrick Dr. and Mrs. Douglas Fetkenhour Mr. & Mrs. Jeffrey & Stephanie Smith Mr. & Mrs. Richard & Ronnie Mrs. Tina Smith Klein Dr. Susan Hyman & Dr. William Fricke Ms. Michelle Spear Mr. & Mrs. Carol Kober Mr. & Mrs. Paul Speranza Ms. Norma Kreiss Jeremy Raco Financial Planning Group Gretchen Stahlman Mrs. Annetta Kuder Dr. & Mrs. Michael & Marion Stanton Mr. Paul La Farciola Mr. and Mrs. Doug and Ann Cole Rabbi & Mrs. Jonathan Stein Mr. & Mrs. Dominic Lapresi Ms. Christine Stio Mrs. Karen Larkin & Family Ms. Andrea Morelli Ms. Laura Stone Mr. & Mrs. Jon Lasley Mr. Christopher Sufra Ms. Maria Smith Mr. & Mrs. Dean Latten Mr. & Mrs. Gary Tajkowski Ms. Donna Lauretta Mr. Michael Teddy CLU Mr. and Mrs. Mark and Stacy White Ms. Mary Lawless Textron Mr. & Mrs. Wayne LeChase O’Connell Electric Company TLC West LLC - Applebee's Mr. Christopher Lehfeldt Dr. & Mrs. Eugene Toy Mr. Jeff Leone Xelic, Inc. Ms. Mary Trabert Mrs. Ardys Lerch Mr. Frederick Trott Catherine Lesio Union Agricultural Society of Palmyra Mrs. Jacqui Lurie Liebman United Way of New York City Ms. Renee Liebschutz Anthony Vaccaro Ms. Deborah Long Mr. David Vaden Ms. Suzanne Luce Mr. & Mrs. John Morrell, Jr. Mrs. Donna Plain Valenti Sports Ms. Sally Lupiani Betsy Morse Mr.& Mrs. Steven Plekan Mr. & Mrs. Theodore Veremeychik Mr. & Mrs. Gregory Lupica Ms. Patricia Muir Mr. Walter Plekan Victor Intermediate School Mr. Charles Lupica, Jr. M.r & Mrs. Vincent Murphy Ms. Judy Porter Mrs. Jennifer Vilarinho-Miles Mr. & Mrs. Dennis Malinowski Mr. & Mrs. James Muscatello Mr. Paul Powers Ms. Ada Vogel Mr. & Mrs. Kevin Malloy Mr. & Mrs. John Nelson The Pub at Bushnells Basin Ms. Faye Wadlington Mr & Mrs. Anthony Malone Ms. Inge Niden Mrs. Carmella C Puglia Mr. & Mrs. Harry Walker Mrs. Christine Malvaso Erin Norman Ms. Joan Puglia Ms. Joan Wallace Mr. & Mrs. Bill Martin Ms. Colleen O'Brien Mr. & Mrs. William Pulsifer Mr. & Mrs. James & Alice Ward Dr. & Mrs. A.H. Mascioli Ms. Amanda Odenbach Andrew Rachunok Mr. Richard Warshof Anthony Mascioli Catherine Powers O'Neill Ms. Divina Ralph Wells Fargo Community Support Mr. & Mrs. James & Kelly McCarthy Ms. Teresa Ordway Mr. Jhon Ramirez Campaign Mrs. Kathy McCarthy-Proulx Pace Family Chiropractic PLLC Mrs. Kathleen Ramirez Mr. & Mrs. Mark Woodward Mr. Terrence McElduff Gillian Paku The Red Barn Ms. Joyce Zaremski Mrs. Donna McGrath Ms. Jeanne Paneck Mr. John Reis iCan Bike 2013

Congratulations to our 2013 iCanBike graduates! Held at the RIT Field House in July, 40 kids conquered a two-wheel bicycle with the help of many dedicated volunteers! Thank you to all!

The Kite, Issue 3 Summer 2013 11 THE KITE

NONPROFIT NONPROFIT NONPROFIT ORG ORG ORG US POSTAGE 180 Linden Oaks Drive, Suite 250 US POSTAGE US POSTAGE 180 Linden Oaks Drive,180 Suite Linden 250 Oaks Drive, Suite 250 PAID PAID PAID Rochester,Rochester, New York New14625 York 14625 Rochester, NY Rochester, New York 14625 Rochester, NY Rochester, NY www.autismup.org Permit # 1296 www.autismup.org www.autismup.org Permit # 1296 Permit # 1296

or current residentor currentor resident current resident

Save Save Save the the the Date! KiteDate! Parade, Festival Fun & Expo! Date! Kite Parade, Festival Fun & Expo!Kite Parade, Festival Fun & Expo! Information or formInformation a march orteam form at a autismup.org march team at autismup.org Information or form a march team at autismup.org

Reflections and Perspectives Board of Directors Up, Up, and Away by popular, international artist from Sarah Milko — President Fairport, Lorraine Staunch, is a commemorative celebration Julie Buick — Vice President of the evolution of AutismUp. Rob McGraw — Treasurer The overall sense of the painting depicts the feeling of “up”. John Carroll — Secretary The kites are soaring high in the sky, while the rainbow, Jeremy Raco — Member-at-large intertwined with the clouds, weaves onward and upward Betsy BruggScott Burdett toward the dazzling sun. Just as the families it supports Lisa Fetkenhour Mark Higgins grow up, AutismUp has grown in an effort to provide a Dr. Susan Hyman David Koon continued excellence in its programming and offerings. The Hon. Jeff McCann Kathy McCarthy-Proulx bright spectrum of colors is uplifting and optimistic, where William Myers Hon. James Piampiano the sky is the limit, and there is potential to be discovered. Angelo J. Ponticello Stephen Richards At first glance, the red box kite catches your eye. Its color is Jeanne Ricigliano courageous, yet its shape is not so typical. When one thinks of a kite, most likely a diamond shaped kite comes to mind. Up, Up, and Away’s box kite is significant of the Information grand distinction in the neuro-diversity of today’s society. The kite’s tail holds the keys to Contact (585) 248.9011 or email [email protected]. possibilities, the imaginable, whatever personal significance that may hold for all living with autism. The yellow diamond kite with the puzzle piece is a meaningful sentiment of the AutismUp (formerly known as UNYFEAT) organization. The name that it is referred to as has changed, but its unwavering commitment 180 Linden Oaks Drive to the beloved community it supports, is still the same. Suite 250 Available for purchase are 11x14 autographed prints, 20x30 commemorative posters, and Rochester, New York 14625 notecards of which proceeds benefit AutismUp in support of enriching the lives of those living with autism in the Greater Rochester and surrounding communities. Please email www.autismup.org [email protected] or call the AutismUp office at 248-9011 for purchasing information.

12 The Kite, Issue 3 Summer 2013