VOICES reast Volume 12 Number 1 Spring 2011 ancer of the ribbon oalition of Celebrating 2011a Shared ochester Journey In this Issue... at the Holiday Open House & Holiday Race ...... Cover Mission Statement . . . 2 Open th Executive Director . . . 2 10 House A Personal Journey . . . 3 Anniversary Advocacy ...... 4-5 PINK RIBBON By Pat Battaglia Spirit of the Holiday . . .6 Friends & Family . . . . 7 RUN WALK It was a large, merry crowd Advanced Breast Cancer . 8 Breast& Cancer that gathered at the Coalition for Breast Cancer News . . .9 Coalition of the 2010 Holiday Open House. Our Programs . . . .10-11 ROCHESTER Despite the chill outdoors, there Programs Update . . . 12 was plenty of warmth, good cheer, scrumptious food for noshing, Valued Volunteers . . . 13 and lively conversation within the Healthy You . . . . .14-15 brightly lit, festively decorated Holiday Open House . .16-17 office. Cares were left behind for ARTrageous Advertisers . . 19 a while as survivors, their friends, Friends Remembered .20-21 families, and supporters from throughout the local community Book Review . . . . . 22 MOTHER’S DAY Sunday, May 8, 2011 chatted with old friends and forged Water Stop Team . . . . 23 new connections. Laughter rang Fundraising Friends . 24-25 out many times, from many places Our Donors . . . . 26-29 throughout the room. On hand Upcoming Events . . . 30 to lend their musical talents were vocalists Emily Scripps and her Support BCCR . . . . 31 Mission . . . .Back Cover continued on page 17

SAVE THE DATE: GOLF TOURNAMENT AUG 15TH BROOK-LEA CC ur Executive Director Volume 12 Number 1 Spring 2011 O

VOICES of the Ribbon The Newsletter of the Breast Cancer Coalition of Rochester Holly Anderson Our Mission is to provide support to those touched by a diagnosis of breast can- cer, to make access to information and care a priority through education and advocacy, Spring is in the air! and to empower women and men to par- ticipate fully in decisions relating to breast We swear! Bulbs cancer. are popping. Robins have been spotted. Buds of life are Board of Directors: everywhere, including right here at Chair Anne-Marie Strasenburgh the Coalition! Past Chair Joyce Wichie Vice Chair Pamela Bernstein Treasurer Debra Kusse What’s new? So much! We are excited about the launching Secretary Mary Carafos of The Healing Arts Initiative. You asked and we responded. The Advocacy Marianne Sargent Healing Arts Initiative is a program that was developed in response Major Funds Patricia Cataldi to comments received on evaluations over the past two years. Are you Chair Emeriti Phyllis Connelly and interested in Qi Gong? Meet Raphaela McCormack, a local instructor. Sylvia Cappellino Tai Chi? Hello, Nancy Dimitry Gillespie. More Gentle Yoga? Raksha President, Holly Anderson Elmer joins our beloved Susan Meynadasy. Feldenkrais? Though we Ex Officio weren’t sure what this was, our curiosity led us to discussions about this healing movement therapy with the great Fred Onufryk. Pilates? We didn’t need to leave our own back yard to find Carrie Block. She Staff: was here all along! Fluid Motion? We welcome our neighbor from just Executive Director, Holly Anderson down the road, Tracey Boccia of Callan-Harris Physical Therapy. We are tremendously excited about this new initiative. We hoped classes Office Manager, Connie Zeller would fill, but were astounded by the response! Within hours of our Program Coordinator, Tracey Dello Stritto announcement, the first four-week session, Qi Gong, was overflowing, Special Events-Development, Amy Connell with a waiting list that could easily have filled a second session. So Outreach Coordinator, Niki MacIntyre how did we handle this? Thanks to the instructor, we were able to add Communications, Susan Meynadasy another class, which ran on the same day as the first. The second four- Special Events, Shawna Poisson week session, Gentle Yoga with Raksha, is underway, also with double Newsletter Editor, Susan Meynadasy classes. By all accounts so far, this is a program that really matters to PALS Coordinator, Pat Battaglia the survivor community. Please keep your feedback coming. Technical Support, Alex Cheek Speaking of feedback, what good are outstanding services and programs if those who need us are unable to find us? One of the hardest things to hear is “I wish I had known about you when I really needed Breast Cancer Coalition of Rochester you - right after my diagnosis.” In response to these types of comments, 840 University Avenue we recently expanded our repertoire of newsletter distribution sites. Rochester, NY 14607 After all, our newsletter is how many people indicate they found us. Office: 585-473-8177 During February, we visited hair salons, gyms, health clubs, more Fax: 585-473-7689 Online at www.bccr.org continued on page 15

2 At so many points in my life, I have discovered the Personal Journey act of looking backward and reflecting on a particular A “What I Have Learned” challenge or event has provided me with the strength and perspective to move forward. After that first headstand, I felt energized about what I had overcome Amy Wilkin and accomplished; I began to see that a small transformation had taken place within me. Being on By Amy Wilkin my head subtly shifted my focus and reminded me, once again, that I do possess an inner strength that I often overlook and forget about. To some, doing an assisted headstand against the wall might be a very As I climbed three flights of small accomplishment, but the act of spending a few minutes stairs to Enrique’s yoga studio one evening, I noted how on my head helped teach me that I must experience each and fatigued I felt after a long day at work in my high school every moment in the present for what it truly is, and that there classroom. Yoga class would be a quiet closure to my day, is something to be gained, even from the difficult, daunting or I mused. Enrique guided the small group through various intimidating challenges in life. stretches, poses, and breath work. Toward the end of the Four years ago I was diagnosed with breast cancer; at class he announced that we’d be doing headstands next. the time, I never believed I had the strength or stamina Demonstrating gracefully and effortlessly in the middle of to navigate through such an overwhelming and difficult the studio, he unfolded his body straight up into the air. In challenge and survive. Now, looking back, I realize an inner order to accommodate the range of abilities of the students strength was there all along, deep in my core, my being; in the class, he showed us several options and modifications it allowed me to face my fears, difficult decisions, surgery for unfolding into headstand against the wall. I had never and treatment in order to heal and become whole again. done a full headstand pose before and I told myself that I Throughout my breast cancer journey, many individuals certainly wasn’t about to do it tonight. I decided I would continually reminded me to take one step at a time – face practice downward facing dog against the wall while the one appointment, decision, test, and then move on to the others do actual headstands. next step. This advice helped me to focus on the present I placed my mat against the wall and Enrique walked moment and over and announced, “Come on Amy, then move I will help you up into headstand.” I “I am a stronger woman because of my forward each day. quickly responded, “I don’t want to be breast cancer, but it is a journey that has I am a up-side-down.” Enrique continued, also taught me to notice and appreciate the stronger woman “You must overcome your fear. You are small moments and shifts in life.” because of my strong enough to do headstand, and I breast cancer, will be right there with you.” At that but it is a journey that has also taught me to notice and moment I realized I wasn’t going to be able to avoid this. appreciate the small moments and shifts in life – the Reluctantly, I cupped my hands on the mat and placed the changing colors of the leaves on the trees, the clouds rolling crown of my head into them; I moved my legs closer and through the blue sky on a summer day, the shifting patterns closer to my torso and the wall as he instructed. He then of the sun spilling in my windows as the seasons progress, took hold of my ankles and guided them up over my head connecting with a friend from the past over tea, or standing and against the wall. I was officially up-side-down! I tried on my head for a moment or two and seeing the world from to concentrate on breathing as I studied the weave of the a whole new angle. It is the up-side-down moments and threads in Enrique’s cotton yoga pants behind me. “Do not experiences – whether facing the difficult health challenge let go of me,” I blurted out. “I’m right here. I’m not going to or conquering a momentary fear in yoga class – that let you go,” he calmly replied. After a few minutes, he gently continually remind me to pause, acknowledge and live one helped me back down to the mat. Crumpled over like a rag moment at a time. Often, it is the act of retrospection that doll, I lifted my head and sat upright, fully expecting to be helps me to recognize the gift of living in the present, and very dizzy. “How do you feel?” Enrique asked. “Wow!” I said. as a result, I am able to move forward with a new clarity “You see, it’s a whole new world up-side-down,” he responded and understanding. h as he moved on to the next student. Reprinted with permission from Amoena Life Magazine.

3 Susan believed in her core that our differences could ews on become our strength. She knew that although we could N Advocacy argue fiercely about whether access to quality care, direct support services, or primary prevention/environment was the most important focus, she knew that if we stepped back and Remembering Susan Cohen took a breath, we would agree that they were all important. -by Andi Gladstone Many of our groups could only focus on one priority or the other because we were small, under-funded, volunteer-based organizations that were working hard each day just to keep our doors open, and we could not do it all. Susan knew that as a Network, we could. So Susan went on to design a structure that was just loosely knit enough to encompass our differences, but tight enough to be a unified, strong voice in public policy decisions in Albany. She helped us change our potentially divisive differences into a sharing of expertise: we agreed to support each other’s priorities and could finally do so because we didn’t have to become experts in every aspect of the breast cancer movement. Instead, we could depend on each other’s expertise. If the focus of our individual group was, for Susan Cohen and Patsy Robertson at Breast Cancer Advocacy Day 2010 in Albany New York example, direct support services, we could still take a stand on important environmental issues affecting breast cancer Susan M. Cohen, beloved Chair of the New York because we now had our sister organizations with that focus State Breast Cancer Network, died on December 22, to guide us to the most relevant issues and the best legislation. 2010. She was 69 years old. It was a brilliant design and it works. Susan co-founded the Network with a small group Twelve years later we are still a loud, opinionated, unwieldy of other New York State breast cancer survivor power- group managing this Network, and now we are also grief- houses in 1998. For the past twelve years she has been stricken. But we are deeply committed to each other and to our leader, our teacher, and our inspiration. the mission of the Network. Susan left us with the history and In 1998 Susan had already logged many years as a New the heart to continue our work, and that is what we will do. In h York City housing advocate and lawyer for low-income people. Susan’s memory, in Susan’s honor. She came with her community-building and advocacy skills well-honed. There was no need for learning on the job: from the beginning Susan knew where the Network needed to go and how we could get there. Not to say that it was easy. We are the only statewide Network of free-standing, survivor-driven, community based, breast cancer organizations in the country. Our members are organizations, not individuals. Our member organizations manage and promote Network activities through their own chosen delegates, a group of passionate, strong-willed, JOIN US! opinionated community leaders. These delegates represent their own local groups which have different populations, The 2011 Annual Advocacy different areas of the state, different organizational approaches, and often different priorities in the struggle against breast Training Conference in cancer. When we began in 1998, our member organizations were also competing for the few, private foundation grants Washington D.C. available for community-based breast cancer organizations. It would have been easy for us to implode into disarray and April 30th -May 3rd competition. Susan had another idea.

4 Rochester Advocacy Day April 7th Join Us!

By Rebecca Solomon

Once again, members of BCCR's Advocacy Committee will meet local legislators in their offices here in Rochester on April 7th, marking the 13th anniversary of New York State Breast Cancer Advocacy Day. Advocates gather annually in Albany to promote an agenda decided each year by the New York State Breast Cancer Network; however, BCCR interchanges attendance in Albany and local visits in alternating years. This year, we will be in Rochester, and we invite all interested BCCR participants and friends to join us. “Advocacy” is not a mysterious process … we can all do our part to make calls, write emails and letters and, The 2011 legislative priorities focus on two issues: if you choose to, be part of legislative meetings to put real faces and real histories behind the paperwork and • Restrict the Use of BPA in Thermal Receipts. You process that legislators deal with every day. Try it, you may recognize the term “BPA”; it is a synthetic resin might find a new passion! h used in many products, including thermal cash register receipts, and has been determined to cause To learn more about New York State Advocacy tumors in animals, among other genetic damage. Day and state issues, please visit the Network website at Since many retailers, including Wegmans, are www.nysbcsen.org. already using BPA-free thermal paper, this route of exposure can be easily addressed in New York State. To learn more about federal priorities and the national NBCC conference in Washington, please visit • Insurance Parity of Cost for Oral Chemotherapy. the NBCC website at www.stopbreastcancer.org. Introduced in the last legislative session, this legislation would ensure that oral chemotherapy is treated no less favorably than IV or injectable chemotherapy.

Fact or Fiction? Reading Behind the Headlines -by Patti Cataldi

The National globe. There was a palpable energy development in the diagnosis of cancer: Breast Cancer in the crowd that gathered each day a new blood test that could detect the Coalition held to listen to speakers covering a wide presence of a single cancer cell! When its Annual Advocacy Training range of topics. This enthusiasm hearing the various media sources Conference in Washington, DC, and spirit was carried to Capitol Hill reporting this "breakthrough" I was last May. I attended with a group on the last day, when everyone met reminded of one of the sessions that I from the Breast Cancer Coalition of with their appropriate representatives attended, entitled "Breast Cancer & Rochester, and the trip was rewarding to discuss key issues of pending The Media: Who Gets It Right?" in so many ways. Not only did I legislation important to the breast Gary Schwitzer of the form a stronger bond with Coalition cancer community. University of Minnesota was a friends, I met many passionate breast In early January this year, it was cancer advocates from all over the reported that there was an exciting continued on page 6

5 Reading Behind the Headlines continued member of the panel for the session These words are dramatic, but Is the information supported on the media. He has specialized in vague. They provide sensational by scientific research? What type of health care journalism for more than headlines that exploit our anxieties. study was conducted? Is it a based on 30 years. His blog can be found on Our attention is drawn by fear a single study or a series of consistent the website HealthNewsReview.org. and shock, while complex medical studies that show substantial similar He offers the following seven words information is oversimplified. conclusions? A single study is rarely that should never be used when With the constant barrage of given credence. In human studies, reporting medical news: information in print and on the it is important to know the size and Cure Internet, even on Facebook and composition of the sample. Small- Twitter, how can we determine fact scale studies often produce startling Miracle from fiction? If it sounds too good to results but it is dangerous to draw Breakthrough be true, should we be skeptical? Now general conclusions from these Promising more than ever it is important that we statistics. Was there a control group? become critical health care consumers In general, larger studies are more Dramatic when dealing with media coverage conclusive. Hope about cancer "causes" and "cures". We must look beyond the headlines. Victim continued on page 23

The Spirit of the Holiday Shines...

On Thursday, I was so moved by December 30, 2010 my his thoughtfulness and doorbell rang. We were generosity, I couldn’t find expecting some friends for the words to thank him dinner, so I was surprised enough. I promised him I when I found a young man would donate the money from our church youth group to breast cancer awareness, at the door. Jake Ottenschot is and immediately thought in the tenth grade at Webster of Holly Anderson and the Thomas High School and Breast Cancer Coalition. a member of the St. Rita Holly and I have both been Church Youth Group with active in Cub Scouts and my son. As he doesn’t live in through an Unexpected Visitor Boy Scouts for years, and my immediate neighborhood, By Eileen Philipone she was very supportive and I was a bit taken aback to see helpful to me during my him on my doorstep. cancer treatment. Imagine how surprised I was to find He was there to let my family and me know that he out that she was Jake’s Cub Scout den leader years ago! had been thinking of us over the holidays, and he wished Jake is a special young man with a big heart. I am so us a Merry Christmas. He explained that he wanted proud of him. He is thoughtful, caring, and an inspiration to do something to make the holidays better for other to many. I’m honored that he thought of me this holiday people, and knowing that I am a breast cancer survivor, season, and grateful that he chose to help others with he wanted to give me a gift. He reached into his pocket breast cancer. Way to go Jake!! h and gave me a $10 bill. He told me that he knew it wasn’t much, but he just wanted to do something nice and he Eileen Philippone is a 2-year breast cancer survivor. She lives with thought of me and my family. her husband, Steve, and children, Eric and Joey, in Webster, NY.

6 It’s a very difficult place to be when someone you know is facing a breast cancer diagnosis. Whether the disease has struck a family member, or a friend, co-worker, or someone you see occasionally at social functions, learning that a person has had this life-altering Help diagnosis can be, at the very least, unnerving. When it’s someone close f or t he to you, someone you care about deeply, it sets off a complex range of emotions, unique to each person and each situation. Peg DeBaise, licensed family therapist and facilitator of the Helper Coalition’s new Friends and Family Support Group, describes some of By Pat Battaglia the emotions that typically occur in those who are supporting a loved one through breast cancer. “First, they may feel fear,” she says, “the fear of the unknown.” It’s normal to wonder what is going to happen to your wife, or daughter, sister, or friend. Uncertainty about shifting roles and expectations is also common, which can lead to anxiety. Another feeling often experienced is helplessness. “They may feel paralyzed, not knowing what to say,” says DeBaise. This can often be mingled Ever the forum for with guilt, particularly if the person is older than the newly diagnosed. A person authenticity, a recent session of may think, “It should have been me,” or “If only I had done (fill in the blank) Brown Bag found participants differently.” People often wonder, “Am I doing – or saying – the right thing?” responding to a question about Rather than trying to think of the “right” things to say, DeBaise advises how they would have liked family those who know a person struggling with breast cancer to listen; to be and friends to treat them. Among emotionally available to them. “It’s OK to say ‘I don’t know what to say,’” she the responses were these: maintains. “That’s more genuine than offering platitudes.” For example, it’s not uncommon for women in treatment to hear that “You look good!” when they • Everyone had good intentions, may not be feeling at all well. The comment is sincere, but denies the reality of but I learned throughout the the person’s feelings. It’s far more helpful to ask “How are you feeling?” process that I had to tell people Those facing breast cancer draw on deep reserves of strength to cope, but at what I needed. It was good to any given moment, may not be feeling particularly courageous or positive. The have those boundaries for them and for me. most meaningful responses at times like these honor the true feelings of the person. “I’m here for you no matter what,” or “We’ll get through this together,” are helpful, • Remind myself (when I hear as is offering a silent hug when words fail you. insensitive things) that what As a caregiver or concerned family member or friend, you need support too. “It people say is about THEM not helps,” says DeBaise, “to find others to talk to who are going through the same thing - a about ME. safe place to go to express your feelings.” The Friends and Family Support Group is one • One of the best things was to such place. “It’s important to remember that in order to care for others, you need to care receive a hug and hear “I’m so for yourself,” she adds, and a support group is a perfect place to express yourself and sorry.” have your needs met. “Remember the oxygen mask on the airplane – you have to put • I learned to dump things that your own on first before you can assist others who aren’t able to help themselves.” are not helpful and keep the If, despite your best efforts, you find yourself feeling overwhelmed – if you good thoughts at a higher place find yourself feeling anxious, overwrought, or depressed; if you’re not meeting your in my mind. basic needs or not sleeping well; or if you feel your relationships are being negatively • A friend told me that “the only impacted by all your family is going through – consider seeking professional help. A way out is through” therapist can help you navigate this uncertain terrain. • I hated the “pity look” Finally, accept assistance when it’s offered. Neighbors may offer to mow the lawn, friends can pick up groceries for you, or grandma can take the kids to soccer practice. When someone says “If you need anything, just ask,” …ask. Be specific with your requests as you offer those who want to help the opportunity to do so, and it will ease your burden. Women and men don’t need to face breast cancer alone. Family and friends don’t need to face the fallout of the diagnosis and treatment alone either. As your loved one finds a path to healing, seek all you need to help you through. We are all in this together. h

7 iving With Advanced Breast Cancer Alice Jackson L Originally diagnosed with breast cancer in 2008, Alice Jackson found herself to be part of a select group Compassionate Care for All Phases of the of women in 2010, when Journey: An Interview With it was discovered that TIMOTHY QUILL, M.D. the cancer had spread to sites far removed Dr. Quill is a Professor of Medicine, Psychiatry, and from the original tumor. Medical Humanities at the University of Rochester School Although she is now part of Medicine and Dentistry. He is also the Director of the of a club she didn’t choose to join, those who face Center for Ethics, Humanities, and Palliative Care and a the challenges of living with breast cancer draw on deep Board certified palliative care consultant. He has published wells of inner strength to move forward, and Alice is no and lectured widely in his field of expertise. He is one of the exception. Breast cancer does not hold a candle to this featured speakers scheduled for our Advanced Breast Cancer petite woman’s tenacious spirit. “My faith is what gets Seminar on April 1st. Recently, he granted an interview to me through,” she says of her journey thus far. Alice finds Pat Battaglia from Voices of the Ribbon to discuss questions comfort and strength in listening to gospel music and regarding the role of palliative care in the treatment of breast attending her church. “As we walk this path, we must hold on to what we believe,” she asserts, and her beliefs have cancer. His message is at once enlightening and reassuring. remained steadfast in the face of a daunting diagnosis. As a member of the Advanced Breast Cancer Support Group, she has found some kindred spirits. Pat: What would you consider to be a working “This is a wonderful place for support. I’ve traveled definition of palliative care that patients can use? this road and met some wonderful survivors who have Dr. Quill: assisted and comforted me. This and the Wilmot Cancer To palliate means to comfort. Palliative care really Center have helped to bring me this far.” addresses pain and symptom management. If Alice’s breast cancer journey has sometimes been you’re uncomfortable in any way, physically or on uneven ground, and it can be difficult to see what’s psychologically, we would break that out from around the next turn of the road. But she doesn’t walk whatever else is going on and try to address that in alone. Of her companions in the support group, she says itself. Now, it might sometimes require treatment with assurance that “We live the best we can, as much of the underlying disease. But sometimes you can as we can. Sure, I have bad days, but the good days treat pain at the same time your disease is being outweigh the bad.” Her gratitude to her fellow survivors, treated, or while you’re waiting for it to be treated. and her deep bedrock of faith, are a source of stability Chances are if you feel better, if your symptoms are and sustenance for Alice. A frequent affirmation of hers better, you’re going to do better. You’re going to be is “Thanks be to God.” h more resilient. It’s partly pain and symptom management. And it’s partly some added support for people who Pat: That’s interesting. My understanding of palliative might be going through a difficult time; we talk care is that it takes care of symptoms and pain with people, we listen to them. And sometimes it’s without directly addressing the underlying cause. But helping with decision making. If you’re not sure sometimes you do deal with that. which way to go, it gives you an unbiased person Dr. Quill: to weigh the potential avenues. Those are the three Sure, yeah. If addressing the underlying cause is main domains. going to really be the critical piece, if it’s going continued on page 18

8 ews on Breast Cancer The Breast Cancer Coalition of Rochester Invites You to Join Us For N FDA Recommends Against Avastin for Breast Cancer Advanced Breast Cancer: Tools For the Journey by Pat Battaglia “Living with Metastatic Breast Cancer” Moderator: n December 16, 2010, the FDA reversed an earlier Julia Smith, M.D. This 8th annual event celebrates O Medical Oncologist those living with advanced Lipson Cancer Center ruling and recommended the removal of the indication for Rochester General breast cancer.Family, friends, Avastin (bevacizumab) to treat metastatic breast cancer. Hospital caregivers and care providers are also invited. Citing numerous adverse side effects and the lack of overall Presenters: survival benefit, the agency’s recommendation was based Marcia Krebs, M.D. M&T Bank provides funding for “Updates & Trends in this event, in memory of their solely on the risks versus the benefits of the medication; the Treatment” friend and colleague, Chief of Medical Oncology Cindy L. Dertinger high cost of the drug was not a consideration. This decision Pluta Cancer Center does not have any effect on FDA approval of Avastin to treat Karen Mustian, PhD, MPH advanced lung, colon, and rectum cancers. “Benefits of Exercise Friday, April 1, 2011 in Metastatic Breast Seminar 1:00-5:00pm The new recommendation has no immediate effect - Cancer” James P. Wilmot Cancer Reception 5:00-6:00pm it is the first step in the process of withdrawing the breast Center University of Rochester cancer indication for Avastin. At the time of this writing, Memorial Art Gallery Genentech, the manufacturer of the drug, has appealed the Timothy Quill, M.D. 500 University Avenue “Managing Pain, Rochester, New York decision and litigation is underway. We will continue to Symptoms and Side Effects” closely follow this story as it develops. University of Rochester For more information: Admission is free, however seating is limited and www.medscape.com/viewarticle/734373 This panel will also reservations are required. www.breastcancer.org/treatment/targeted_therapies/new_research/20101216.jsp include Breast RSVP by Wednesday, March 30th to 585-473-8177 cancerology.blogspot.com/2011/02/bevacizumab-bad-news-continue.html Cancer Survivors. New Study Questions Axial Programs at the Breast Cancer Node Dissection in Certain Coalition of Rochester Breast Cancer Patients

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p of the lymph nodes in the armpit g advanced breast cancer. The group is led by area during a procedure known as Dr. Nancy Cooper, PhD who is a breast cancer axillary node dissection (AND). survivor as well. The group meets the 1st and Currently, a sentinel node biopsy 3rd Wednesday mornings each month at the BCCR. Participation in is often conducted first, in which this group requires pre-registration. dye is injected into the tumor and followed until it reaches a lymph node. That node, and sometimes For those living with metastatic one or more others, is removed and COMMON breast cancer, Common Grounds is an tested for cancer. If the sentinel GROUND opportunity to share experiences, laughter, node tests “positive” – if cancer is COFFEE HOUR and friendship with others who are also found – other lymph nodes are most A time to gather for those living with metastatic breast cancer living with the diagnosis. This informal often removed. group meets four times a year at the Coalition office. The next two meeting dates are Saturday, March 5th from 11AM to 1PM and Saturday June 11th from 11AM to 1PM. Please continued on page 15 call the Coalition office at 473-8177 for more information or to RSVP.

9 Our Programs at the Breast Cancer Coalition of Rochester BC 101 This program provides information and support to those who are coping with a breast cancer diagnosis. The goals of the program are to assist participants in managing the complex tasks and emotions of a breast cancer diagnosis and to empower women to be their own self-advocates as they proceed through treatment, recovery and survivorship. Our professional facilitators are eager to provide a safe, comfortable atmosphere where information can be absorbed and assimilated, while formulating a strategy for coping with each individual’s breast cancer experience.

Tuesday Night Breast Cancer Support Brown Bag Fridays Group This discussion-based support group, led by Claire Gladwell, RN, meets regularly here at the BCCR. Join with others coping with a diagnosis of breast cancer, share your experiences and lend your sup- port. We meet every three weeks on Tuesday evenings from 5:30 to 7 pm. Though no registration is required, please call BCCR for the next meeting date.

Thursday Night Breast Cancer Support Group This discussion-based support group, led by Peg At the Breast Cancer Coalition! DeBaise, MFT, meets regularly here at BCCR and Any given Friday at noon finds a is perfect for those who are newly diagnosed with group of women conversing over breast cancer, or for those within the first two years anything from the latest research following the end of treatment. Meets the 1st and 3rd on Herceptin to our own locally- Thursday of the month from 5:30-7:00 p.m. This is funded research initiatives… from an open support group- no RSVP required! hair loss to funky re-growth...from neoadjuvant therapy to the latest clinical trials…from acid reflux to Friends & Family Support Group exercise...from recurring dreams For those who have a friend, to friends and family’s behavior… partner, or family member who has been from prosthetics to bathing suits… diagnosed with breast cancer, we extend from American Idol to The Amaz- an invitation to a special group designed ing Race…and on and on! Feel free to offer support and guidance. This to bring your lunch and BCCR will group, led by Peg DeBaise MFT, meets on provide delectable desserts! the second Thursday of each month from 5:30 until 7:00PM. When This is a non-traditional support the caregiver (male or female, any age) needs support, we’re here for group, which is exactly what many you! An RSVP is appreciated, as light refreshments will be served, but of us have been looking for. Brown don’t let the fact that you haven’t called in advance keep you away! Bag is a drop-in program. There is Please call 473-8177 for more information or to RSVP. no need to call ahead.

For information regarding our programs offered for those living with advanced breast cancer, please see page 9.

10 For more information or to register for our programs, please call the BCCR at (585) 473-8177

Peer Advocates Lending Book Club What if a traditional support group isn’t for you, but Support: P.A.L.S. SM you still like the idea of participating in a supportive community following a breast cancer diagnosis? Join our Book Club! The BCCR Book Club will meet the 4th Thursday of the month, from 6:00-8:00 p.m. Participation is limited and sign-up is required. To PA LS PROJECT reserve your seat and learn the next book selection, call Tracey at BCCR.

The Breast Cancer Coalition of Rochester Voices & Vision: Peer advocacy is at the core A Writing Workshop for of the philosophy behind the People with Breast Cancer Breast Cancer Coalition of This exciting program gives people with Rochester. In that spirit, we have breast cancer an opportunity to explore developed the PALS Program. and express their feelings through writing. The concept of this program is The warm and supportive group is led by a simple: individual breast cancer professional instructor. Not only has writing proven to be very therapeu- survivors reach out to those who tic for breast cancer survivors, but this program is getting rave reviews! are new to the disease, providing Workshops run in six week cycles on Tuesday evenings and advanced a foundation of caring through registration is required. This workshop is limited to 12 participants. one-to-one contact, helping them to connect to resources in the community, and working Gentle Yoga hard to instill confidence in On Monday evenings, you can find women stretched the face of a difficult situation. out on BCCR’s floor doing Gentle Yoga taught by Su- Please call the BCCR to learn san Meynadasy, a registered yoga trainer. Yoga sessions how you can become involved as began in Spring 2005 and have been in high demand a mentor, or if you would like to ever since. Sessions run in six week cycles and the class be enrolled in the program after is limited to 14 breast cancer survivors. Advanced regis- your own diagnosis to receive tration is required. some much needed support and a pack of goodies.

Young Survivor Soiree What is a young survivor? Only an individual can determine whether or not the term fits. It could apply to a woman of any age, but it usually refers to those between the ages of 20 and 50. A young survivor can identify with those who have been dealt a breast cancer blow in the midst of a career climb, or while raising children; or perhaps with those whose family plans have been derailed by breast cancer treatment. Four times a year, young survivors gather at the Breast Cancer Coalition for our Young Survivor Soirees. These get- togethers are an informal way to meet and hang out with other survivors who have faced a similar journey. The next two meeting dates are Friday, March 4th from 6 to 8PM and Friday, June 10th, from 6 to 8PM. Please call if you have any questions, or to RSVP.

11 Program Coordinator’s Update: The Healing Arts Initiative

For the past year, we have taken a very close look at the current programs we offer here at the Breast Cancer Coalition. Our goal is to offer support through a variety Tracey Dello Stritto of ways to those diagnosed with breast cancer – at any stage and any age.

Sometimes support is in the the year to enlist our Healing Arts To learn more about our form of a traditional support group. Initiative. This initiative is an support programs and the Then again, sometimes it is through opportunity to learn about a practice information available at a connection with a PAL; someone one may have heard of, been curious BCCR, please call Tracey at who is able to offer encouragement about, or have fallen away from due and guidance to a newly diagnosed to breast cancer treatment. These 585-473-8177. woman facing the same road ahead. offerings will be held in four-week Often support may be in the form of sessions on Saturday mornings Are you on our our writing workshop or gentle yoga throughout the year. mailing list? class. With each and every program, We kicked off our Healing Is your e-mail address the greatest tool we have to learn about Arts Initiative at the first evening and/or phone number the experience of participants is the seminar of 2011 by featuring six evaluation process. Whether it is done different modalities and their a part of our listing? every six weeks or once a year, the instructors. The practices included Please send us your informa- evaluations give program participants were Qi Gong, Gentle Yoga, Fluid tion for our mailing list so an opportunity to anonymously share Motion, Feldenkrais, Tai Chi and that we can offer e-mail news their thoughts and offer feedback Pilates. Each instructor shared as well as print news. regarding other programs that might their experiences in their field of Send your information be of interest to them. work, and explained their particular (full address or just your Through these evaluations, and therapy to those in attendance. We other details) to also through verbal suggestions, were able to sample healing energy Tracey Dello Stritto at we have noticed incredible interest through Tai Chi and Qi Gong and [email protected] in mind-body-spirit programs. get up and raise our hands and kick Our hugely successful Gentle Yoga our feet with Fluid Motion. We were Thanks! program has been offered here at able to learn what Feldenkrais is (it’s the Coalition for 6 years. It has been awareness through movement for so popular, that every new 6-week those who are curious!) and practice We are pleased that we can offer enrollment has had a substantial deep breathing and meditation with this pilot program in 2011 and waiting list. The consistent waiting Gentle Yoga. With the introduction allow community exposure to these list, combined with the feedback of this program, there has been a specific healing arts. It may not be we’ve received has shown the need for large interest in sign-up for each for everyone, but those who want additional mind-body-spirit programs of the four-week Saturday sessions. to give the healing arts a try stand – in particular, movement therapies Many who have never tried these to reap great benefits. If you are such as Qi Gong, Tai Chi and Pilates. practices before will be able to interested in learning more, please In response to our community, explore them in a safe environment feel free to contact Tracey at 473- we have elected the year 2011 as with other breast cancer survivors. 8177 or [email protected]. Namaste. h

12 alued Volunteers “The world is Volunteer V hugged by the faithful SPOTLIGHT arms of volunteers.” ~ Terri Mary Jo Deichmiller Niki MacIntyre Guillemets By Pat Battaglia

The sun is shining longer each day as we head Many of our toward spring. Warmer temperatures are just around volunteers are breast the corner and the bulbs underground wait patiently cancer survivors, but for their time to push their blossoms skyward. Here at there are also those the Coalition, we find ourselves in need of a few more who believe strongly helping hands. We are putting out a call for volunteers to in the Coalition help distribute our quarterly newsletter. This newsletter without having is vital in connecting the Coalition with the community faced the diagnosis at large. Join our band of merry troopers: Pat Battaglia, themselves. Mary Jo Deichmiller is one of these. Phyllis Connelly, Pat Foucht, Niki MacIntyre, Shawna Several of her friends are breast cancer survivors, Poisson, Tracey Dello Stritto, Michele Newman, Nancy and she has become passionate about our work. Biernbaum, Betty Miller, Nancy Germond, and Jim Mary Jo is always willing to help out in any way Munnings as they hit the road! she can. A big “thank you” goes to Nancy Germond and She spearheads the Xerox Chili Cook- Sharon VanMeenen for representing the Coalition at the off Fundraiser, which donates all proceeds University of Rochester Health and Wellness Fair. This to the Coalition. A friendly face behind our is a well attended event and an opportunity to share tables at the What Women Want Expo, the our presence with UofR employees. We also extend our Lilac Festival, and the Park Avenue Festival, gratitude to Betty Miller and Nancy Wienmann, who she has greeted people and answered their made it possible for us to host a table at Gilda’s Walk for questions about breast cancer and the work of Wellness. Thank you, gals, for sharing your Sunday. the Coalition. Mary Jo participated in the Golf The Breast Cancer Coalition teams up with the Tournament held last summer. At out Gala this Highland Breast Imaging Center and Cancer Services of past October, she not only volunteered her own Monroe County to offer free mammography screenings time to help us, she rounded up about fifteen of for women 40 or older who are underinsured or lacking her friends to do the same! health insurance. This screening day is held several times It’s a long trek from her home to our office, throughout the year, and our own Betty Miller and but Mary Jo has been glad to literally “go the Linda Gaylord are always on hand to help the staff as extra mile” – or more - when she’s been needed. they strive to create a caring and supportive environment Her warm presence is always welcome, and she for women who may be hesitant to access this important has been a delight for us to get to know. At our health care service. Holiday Open House in December, she was In tandem with the lengthening daylight, we amazed by the size of the crowd. Many of those find ourselves once more preparing for the upcoming in attendance that day are the grateful recipients health fair and festival season. Mark your calendar now of the fruits of her labor; the funding she has for the Lilac Festival (May 13th through the 22nd) worked with such purpose and resolve to help and the Park Ave. Fest (Aug. 6th and 7th). Dreams of us attain. We are deeply thankful to Mary Jo as sunshine, music and food are just around the corner. h well, for giving so generously of her time and of her self! h To volunteer call Niki at 585-473-8177 or email her at [email protected]

13 ealthy YOU H Breast Cancer and Healthy Behaviors How can we take the best care of ourselves on this journey? By Mary Maley Rochester to discuss cancer risk factors relative to weight, This year, the Breast Cancer Coalition of Rochester diet, and physical activity; experiences of weight change, has partnered with researchers from Cornell University diet, and physical activity following diagnosis; and the on an innovative project to better understand views of role of cancer support groups and other social network weight, physical activity and cancer among women who structures in addressing these issues. Their experiences have had breast cancer. and opinions are helping the research team shape a The findings of this research will be used to develop project being planned for testing next year. and implement initiatives that increase social support In addition, this spring some cancer survivors in the for physical activity and healthy eating among breast Rochester area will have the opportunity to complete cancer survivors. This innovative project will use an an electronic survey that will contribute to the project. approach based on social network theory to assess how For more information, call Tracey at the Coalition office social network involvement and support affect health (473-8177) or email her at [email protected]. You can also behaviors, and ways to support behavior change. contact Mary Maley of Cornell at 888-294-9814 or by To further these goals, 36 women participated in email at [email protected]. h interviews or focus groups this fall in both Ithaca and in

Recipe: Black Bean Soup 1 large sweet onion 1 28 oz. can crushed tomatoes Healthy Sisters’ Soup and Bean Works provides a nurturing 1 T olive oil 6 c. vegetable or chicken broth work environment for women who 3 stalks celery, chopped 1 lb. andouille sausage have faced multiple life challenges, 3 carrots, chopped 1 package “Golisano’s enabling them to enter or 4 cloves garlic, minced Bountiful Bean Soup” from the Healthy Sisters Soup & Bean re-enter the workforce 2 bay leaves with self-confidence and Works Collection 1 t. salt marketable skills. The soup mixes and other items produced (IMPORTANT: Use ALL ingredients) by these women generate funds that help sustain this innovative program, and can be found at Saute onion, carrot, celery, garlic in large pan. Add small slices many local stores, including sausage and bay leaves. Heat thoroughly. Add tomatoes and broth. Abundance, Parkleigh, Craft Simmer until just beginning to boil. Add ALL ingredients of soup mix. Company #6, Lori’s and Simmer on low for 3 hours. Serve in bowl over cup of rice. Wegmans, among others. Optional garnishes: chopped scallions, sour cream, fresh squeezed lime juice, hot sauce, chopped cilantro, diced sweet or red onion, For more information, chopped fresh tomatoes. check the website: www. healthysisters.org/index.php

14 News on Breast Cancer continued Plastics in Our Environment - By Lori Griffin A recent Phase III clinical trial has found that for about 15 to 20 Did you know that most plastics percent of women facing breast are made from a non-renewable resource cancer – those who meet specific – petroleum? Plastics are convenient criteria - the AND surgery may to use, inexpensive, and virtually not be necessary. Women who had unbreakable. However, they pose risks, tumors less than five centimeters both to the environment and to our (about two inches) across; who health. Much plastic is discarded every underwent lumpectomies; most day, and it takes up a large volume of whom were followed up with of landfill space. In addition, plastic radiation, chemotherapy, and/ manufacturing and incineration releases or hormone blocking drugs; who toxins into the environment, exposing had one or two sentinel nodes that many to these chemicals. Plastic food containers can leach chemicals, some tested positive for cancer but were of which are known hormone disruptors, into foods and beverages. not palpable; and had no evidence A few of the chemicals in plastics that are thought to be of concern are of extracapsular extension; were bisphenol –A (BPA), phthalates, and diethylhexyladipate (DEHA). divided into two groups. One group The recycling codes on plastic containers indicate the particular type of underwent AND, while the other resin used in their manufacture. Avoid using containers with the numbers did not. The results were startling – 3, 6, and 7. Number 3 is polyvinyl chloride (PVC), an endocrine disruptor the recurrence and survival rates for and probable human carcinogen. Number 6 is polystyrene (PS), which may both groups appeared to be the same leach styrene, a possible endocrine disruptor and human carcinogen, into during the measured time period. water and food. Number 7, polycarbonate, contains the hormone disruptor While these study results bisphenol-A, which can leach out as bottles age, are heated, or exposed to are promising, it is important acidic solutions. Some of the better plastics are numbers 1, 2, 4, and 5. to remember that they apply to What can you do to help minimize chemical exposures? women whose cancers fell within a very distinct set of criteria. In • Use glass, Corning Ware, • Never reuse microwave addition, more follow-up is needed ceramic, or lightweight stainless convenience food trays and to determine if the findings of steel containers. containers. this study hold true for a longer • Avoid using plastic wrap. If you • Do not microwave food in period. of time than the six years must use it, don’t let it come into plastic containers. that were covered. Each diagnosis contact with foods. • Use phthalate-free baby products. is different, and treatment decisions • Use plastic containers designated • Use mild detergent and warm are weighed carefully. You may want as microwave safe. Your best bet water to wash polycarbonate. to have a conversation with your are those made of polyethylene, • Discard polycarbonate bottles if doctor, nurse-practitioner, or other which is plasticizer-free. they show signs of aging. health care providers, to clarify the situation for yourself. Executive Director’s Column continued

For more information: physician offices, coffee shops – Please help us extend our reach. http://jama.ama-assn.org/content/305/6/569.full basically, places where those newly Do you know of a location where http://www.nytimes.com/2011/02/09/health/ diagnosed with breast cancer might those needing us might be inclined research/09breast.html?_r=1&hp tend to read about us while they are to pick up our newsletter? Let us waiting. We approached site owners, know! And, in the meantime, enjoy managers, and office staff with a bit this wonderful time of year … where of trepidation. Would they welcome buds blossom, thoughts broaden, us? Though we did receive a few and hope is restored. May spring disappointing “no” responses, the burst forth in each of us! h overwhelming answer was “YES!”

15 2010 Holiday Open House

Sundra Williams & Frances Allen

Emily Scripps, Taylor Squires and Jamie Scripps

Paula Martin

"Winter, a lingering season, is a time to gather golden moments, embark upon a sentimental journey, and enjoy every idle hour." - John Boswell Amy Connell and Patti Cataldi

Wilbert & Joanne Thornton

Connie Zeller, Chrysa Charno, Tracey Dello-Stritto, Dr. Avice O’Connell, and Holly Anderson

16 Cover Story Continued

guitar-playing partner, Taylor Squires. Hannah Walpole, another local singer, also added her voice to the lovely atmosphere of the evening. As each year draws to a close, many will remember and celebrate the people and things that are truly important to them; those that have made a lasting Holiday Open House difference in their lives. We are thrilled, awed and humbled by the yearly gathering of those who have allowed us to be part of their journey. Whether they have faced a breast cancer diagnosis, supported or cared for someone who has, or care enough to show their support, each is a unique contributor to our community, and all are to be celebrated! h

Delores Pasto-Ziobro

Lila Bluestone

Rebecca Solomon, Harry Bronson, and Miriam Helm Amy Weetman and Baby Kessa "Winter, a lingering season, is a time to gather golden moments, embark upon a sentimental journey, and enjoy every idle hour." - John Boswell Left, Scott Sargent and Richard Bianchi

Marie Dickerson, Holly Anderson and Yolanda Asamoah

Carl Foucht and Gail Levy

Jean Lazeroff and Cinthia Garcia

17 Dr. Quill Interview Continued Dr. Quill: Definitely, yes. There are many people who can to make you feel better, we’re going to help you contribute to the palliative approach to things, and with that. Sometimes there are more challenging I think that the Breast Cancer Coalition would decisions about treatment. Some people might be one definite avenue. In general, oncologists or want to talk with someone who wasn’t delivering primary care physician can do some palliative care, that treatment; about the pluses and minuses, the if it’s pretty straightforward. Not everybody has risks and benefits of different avenues. We are to see a specialist. But for the tougher cases, or for often talking to people about those kinds of things. the cases where there are some more challenging issues, then I think that more formal palliative care Pat: How and when does palliative care fit into the involvement is a piece of the puzzle. It’s just a piece breast cancer scenario, and particularly, into the of a larger puzzle. metastatic breast cancer scenario? Dr. Quill: Pat: What are some of the quality of life issues that can I think you could make an argument that it should be addressed by palliative care? always be a piece of the puzzle in that setting Dr. Quill: because many people who have metastatic disease Things like physical discomfort, pain, shortness do have some symptoms – not everybody, but some of breath, nausea, constipation. We try to look at do – and they have some uncertainty about what’s the big picture and measure how the medicines are going on. To me, it’s just making it part and parcel contributing to that. Can we readjust them some of the whole package. We can have people feeling way? Can we treat the symptoms with some kind the best that they can possibly feel while they’re of additional medicine or different medicine? That undergoing treatment. would be part of it. And then we take a look at In point of fact, in a recent study of metastatic lung other kinds of discomfort – anxiety, depression, cancer patients, they looked at two groups. One fear; those kinds of things are huge when people group got standard chemotherapy and radiation, have a serious illness, and usually swept under the and the other group got chemotherapy, radiation, rug. There are support groups where these kinds and palliative care from the time of diagnosis. It of things are dealt with, and there’s also a central turned out that the group that got palliative care role that palliative care can have. If you’re very felt better, spent less time in the hospital, and depressed or anxious, at a minimum it’s going to lived longer. And how could that possibly be? affect your quality of life. And it might even affect Well, if you feel better and spend less time in the your ability to receive treatment, or respond to it. hospital, you may be able to get more treatment; you may respond better to the treatment. We don’t Pat: Can palliative care be integrated with standard really know why that occurs, but there is reason treatment? to believe that it might increase your ability to Dr. Quill: fight the cancer, and at the same time, increase Definitely. That’s the breakthrough here. You don’t wait your enjoyment of your life. So why wait? The until there’s nothing left to do to get palliative care. You old model is you wait until there’s no treatment get it from the get-go. It may or may not be specialty left and then you get hospice involved. Well, that palliative care, but it ought to be part of the puzzle. And doesn’t make any sense. It’s a lost opportunity to I think breast cancer, more than many other diseases, relieve symptoms and help people feel better, and has sort of “gotten it” to some degree; there’s a lot of to add to the meaning that they have in their life. support there. There are a lot of different kinds of groups that are working to help people through this process. Pat: At the Coalition, we encourage the newly And I think that’s been great. But there’s clearly more diagnosed to be involved right from the beginning that can be done, particularly when people end up in in decisions related to their care. Would you more difficult circumstances. Getting some added consider it viable to say that this kind of expertise as part of the team sure makes sense. involvement is palliative, even though a person may not have consulted a palliative care specialist?

18 Pat: Do you feel there’s a general misperception of palliative care, and what can be done to address that? We would like to extend our sincere gratitude to the following businesses and individuals who placed Dr. Quill: an ad in the ARTrageous Affair’s event program. I think the misperception is that it’s equated with Due to space limitations we were unable to include end of life care. That’s a historical thing. A lot of them in our previous issue. Thank you for helping to palliative care came out of a hospice tradition. But make the event such an outrageous success! in the last ten years, it’s clearly become much more broadly accepted that it’s part of good medical Honorable Victoria M. Argento care. We do care for the people who aren’t doing Brow Diva well, as well. There’s some continuity in that Callan-Harris Physical Therapy, PC process: we can’t pretend that it isn’t a possibility. Canandaigua National Bank Otherwise you have this whole elephant in the Cancer Services Program of Monroe County room that nobody’s talking about. And that’s Jim & Sylvia Cappellino not good either. A little conversation about it can Dr. Nancy Cooper be very reassuring. But the breakthrough is that Cruise Planners, Inc. you don’t have to be in extremis, you don’t have DeJoy Chiropractic to be in awful, awful pain, or be down-and-out Linda DiCesare depressed to get palliative care. You can have little Doodie Pack symptoms that can be improved, and if we can Dragonfly Garden Design improve little things, that’s huge. Elizabeth Wende Breast Care, LLC Dr. Stephen Evangelisti Pat: They might not develop into big things. Finger Lakes Radiation Oncology Center Dr. Quill: Genesee Valley Parent Magazine Exactly. That’s a very important article for us to Nancy Germond & Peter Kane get away from in this field, that it’s only for when Get-it-Straight Orthodontics things are dire. Melinda Goldberg & Ron Turk Lynne Halik, D.D.S. Pat: What can be done to improve the delivery of Highland Breast Imaging palliative care? Highland Hospital Dr. Quill: I. Gordon Corporation Karen Ann's Wig Salon At the time when a person is diagnosed with Karen Craft Photography and Graphics metastatic disease, someone ought to sit down and LaBella Associates, P.C. do a palliative care screen. If everything’s going Lumiere Photo fine, there’s by no means a need for palliative care Palmer Photography to get involved. But become aware that it’s there if Red Fedele's Brook House Restaurant you need it. And if you do need it, then right from Rochester Radiology the get-go, get it going. It will really help. You will Roswell Park Cancer Institute feel better. Russell P. LeFrois Builder, Inc. Sara Silvio Jewelry Design Dr. Quill is working to remove the fear from the term Senator Joseph E. Robach palliative care. To apply an understanding of the word Senator Michael Nozzolio “palliate” when considering the palliative approach to health Suter, Levitt & Zugner Dental Group care is to add a new dimension to the options available for The Sample Seed Shop those diagnosed with any serious illness, including breast Tompkins Insurance Agencies cancer. It is compassionate care, appropriate for many Upstate Professional Planning Services phases of the breast cancer journey. h Van Bortel Ford & Subaru Western Regional Off Track Betting Corporation For more information: Judge Kelly Wolford www.nejm.org/doi/full/10.1056/NEJMoa1000678 Woodcliff Hotel & Spa

19 Jack Connelly

On a snowy Saturday afternoon, the family and friends of Jack Connelly gathered to remember a man who has touched the lives of many at the Coalition. Jack and Phyllis Connelly have been an integral part of the our community for years, and he will be remembered with fondness by all who had the opportunity to cross paths with this kind, good-humored man. Phyllis is a beloved member of our community of survivors, known to many as the “Queen Mum” of the Coalition. Jack was her biggest supporter as she made her way through treatment, and the couple attended many Coalition functions together. It was always easy to find Jack in a crowded room. All you had to do was listen for laughter. Chances are excellent that Jack was in the middle of it. His jokes were always in good fun, leaving his listeners with a smile. His daughter, Cheryl, recalls the assembly of well-wishers that braved the winter weather to celebrate Jack’s life: “Those who approached the podium came from various parts “Because of of Jack and Phyllis' life - from family to neighbors, colleagues to co- Jack the world conspirators, friends for 50 years to friends for less than 5 years. They is a much better shared jokes, reminisced and told stories. They spoke about the place.” mundane and the profound, both silly and serious, from last week and from decades ago. They talked of fishing and friendships, game nights and gardening, sports quizzes and journalism, good- “He would natured bets and practical jokes, comedians and cigarette lighters, diners and dollars, parenting and grand-parenting. make me laugh at And through all these different stories and despite these many every encounter.” varied perspectives, several themes clearly emerged: Jack’s quit wit, warm spirit, and generous heart; his commitment to family and to friends; his integrity, his intelligence and his love of a good laugh. As one friend put it, ‘If I could become half the Dad, half the “He always made man, half the husband that he was, I’d consider it a big success.’” me feel that he was Another friend, Melisande Bianchi, offers these words that echo glad to see me.” the sentiments of many at the Coalition: “Jack had the best sense of humor and such a loving heart. We will carry him in our hearts always.” h “Jack was always a “When ray of sunshine.” he entered a room he would light “He it up.” was always “One of a kind.!.” kind and welcoming.” “What a gem. He “There was always will remain in our hearts that little impish grin and forever.” twinkle in his eye!”

“Jack was a prince among men!” 2020 Jen Schoen A Tribute - By Carrie Wozniak

You was always trying out new hairstyles, Friends Remembered... know when redecorating her home or changing you meet the walls to new, vibrant paint colors. someone After going through traditional Susan Cohen and the cancer treatment, she became two of you interested in organic, healing foods, immediately and in alternative treatments such as Jack Connelly click? acupuncture and practicing Qigong, That’s what Pilates and Yoga. happened Always thinking of others, Donna Daniels when I first Jen expressed that she didn’t want met Jen us to be sad. Still, I will miss her Schoen in laughter, her easy-going nature, her Tracy Jones Palmer 2008. We encouraging voice and fun spirit. had been Jen was the type of friend that set up by you feel so lucky to have found in Jim Van Meenan Holly Anderson through the Sister a lifetime. When I think of her, Sak program. At our first meeting, it I think of her big, beautiful blue felt like we had forever been friends. eyes, her stylish fashion sense, and Ann VanderMalle Soon after, Jen also became close to her warm welcoming smile - such a Kara, Heather and Cynthia (other caring, dependable and giving friend. young survivor friends). We all shared I recently came across this quote: a unique bond and knew we would “Good friends are like stars, even be there to support each other. We though you can’t always see them, would gather every couple weeks and they are always there”. This made me share our lives, as friends do. Whether think of Jen. She will forever be in my it was a night of bowling, trying heart and in my soul. She has inspired out a new restaurant, or relaxing on me in so many ways. In her honor I the porch enjoying a warm summer hope to appreciate more all the things night, it was just great spending time that we tend to take for granted in together. our lives. Tributes Welcomed Jen was a loving wife to her I remember during the last few husband John. When I met them, weeks she was with us, the snow Would you like to write about they were celebrating their tenth was falling almost every day. It was someone you have lost to breast “When year of marriage. Within minutes of a gentle, beautiful, soft and flowing cancer? We welcome submissions he entered spending time with them, I could snow. Whenever I see that now it from friends and family members a room he see what a perfect match they were. brings a sense of comfort. I can feel the and are particularly interested in would light She once told me how fortunate she warmth and love that she has shared hearing stories about how they have it up.” felt to have found her soul mate. Jen with us and I smile and think of how touched and changed your lives. enjoyed life, traveling with John to fortunate I was to have known her. Please send your submission England, as well as to Montreal this My heart extends to her loving with a digital photograph to Susan past summer. She would hop in the family - her husband John, her Meynadasy, BCCR Voices of the car and drive to Connecticut for parents Michael, Oneita and Mal, her Ribbon Newsletter Editor, the weekend to visit friends. Jen was sister Kara, all the rest of her family - at [email protected]. amazingly creative, and not only in and to all friends that she shared her We would be happy to honor her job as hair salon manager. She life with. h your loved ones.

21 takes more than a positive outlook to deal with breast ook Review cancer. Ms. Sulik makes a compelling case that constant B Pink Ribbon Blues light-heartedness is an unreasonable expectation; it disempowers those facing breast cancer by marginalizing -By Gayle Sulik; Reviewed by Pat Battaglia their often difficult emotions. In truth, it is a very personal journey. As Ms Sulik states, “The accepted discourse of pink ribbon culture – solidly lodged in war metaphor, pink consumption, and narratives of quest and transcendence – limits the words, plotlines, and imagery available to he pink ribbon has become T communicate women’s varied experiences the instantly recognizable symbol of of breast cancer and ways of coping.” breast cancer awareness, and those Tracing the evolution of the breast who wear or display the emblem cancer movement, the book gives an in- do so to express solidarity and depth account of forms of advocacy that support toward those affected by the existed in the first half of the twentieth disease. Pink imagery abounds in century. With the rise of feminism, the our culture, particularly during the movement gained momentum in the Breast Cancer Awareness Month of 1970’s, and quickly adopted the pink October. From pink-ribbon-adorned ribbon as its soup cans to fried chicken buckets, symbol after to vacuum cleaners, to full page ads Pink Ribbon Blues is an its first use in the pages of magazines and newspapers, we are eloquent, hard-hitting call to wake in the early urged to buy products in support of the cause. 1990’s. By The prominence of the symbol has helped to up and alter the way we deal with and large, bring breast cancer to the forefront of health care breast cancer as a culture. pink ribbon discussions, raised untold amounts of money for culture research, and destigmatized a subject that, at one as defined by Ms Sulik has come to represent only a time, could not be broached in polite society. But is that palatable portion of the breast cancer experience. To the whole story? counter this, she urges her readers to heed all the voices Gayle Sulik, a medical sociologist, author, and breast of survivors, and has included excerpts from exhaustive cancer advocate, carefully examines the direction that interviews with those who have faced or are facing breast the pink ribbon is pointing in her recent book, Pink cancer, representing a wide spectrum of experience. The Ribbon Blues. The pink ribbon, she maintains, has stories may not fit the scenario of the she-ro-ic story, but become the instantly recognizable logo of a concept they are authentic. brand - breast cancer - and the symbol of a culture that Pink Ribbon Blues is an eloquent, hard-hitting call defines the manner in which the disease is presented to, to alter the way that we, as a society, deal with breast and ultimately perceived by the public. cancer. It speaks to survivors, advocates, medical care Like any culture, pink ribbon culture has its own providers, and corporate America, maintaining that set of standards and mores, personified by the “she-ro;” while considerable progress has been made, we can, a term Ms. Sulik has coined to describe the idealized and should, do much more. This book is a valuable breast cancer survivor. Combining both female and step in the direction of clarity, not only pointing to male characteristics, the she-ro bravely battles her breast areas where improvement is needed, but applauding cancer with style and spunk. The embodiment of the advancements that have been made and urging us hope and courage, she is ultimately empowered by her to maintain an open, honest vision. By accepting and victory over the disease. (Male breast cancer survivors working with the realities, we can move toward lasting are disregarded in this imagery.) The optimism and and meaningful change. h cheerfulness of the she-ro-ic experience are highly valued qualities of pink ribbon culture. Undeniably, the belief that obstacles can be overcome is essential. But it

22 Water Stop Team to mark 10th Anniversary

Mother’s Day this year will mark the 10th anniversary of the Pink Ribbon Run and Family Fitness Walk, and with it, the 10th anniversary of the Pink Ribbon Run water stop. Ed Oliver has been in charge of recruiting and running the highly efficient water stop team since the very first Pink Ribbon race held in 2001 at Saint John Fisher College. When asked if any of the races were particularly memorable, Oliver was noncommittal – “The first time we had the race out at the lake was probably the most exciting for us, but really they are all about the same. We’ve had good weather, bad weather, starting using the Monroe County Water Authority to supply thunder, wind, snow, sun – you name it. This is just something I water, a donated service. “They bring the water, the tables, even do because of the cause…” the paper cups. All we have to do is pour the water, be prepared for The cause of breast cancer is especially important to the surge of runners, then clean up afterward. “ Ed. His wife, Sue, was diagnosed with breast cancer on her DeBaise says the total commitment of Ed and his water stop birthday in March of 1989 - and had surgery later that same team makes his job as race director easier. “One of the challenges month. She has been healthy ever since and has either run in of a large event like this is recruiting and training volunteers – the race or volunteered for the water stop every year. Last year with Ed it is simple – I send him one e-mail in January and I there were three generations represented at the water stop as know everything will be taken care of. Ed and Sue were joined by their son Jamie Fagan, son-and-law Ed has never had trouble finding volunteers for the water Sean Dreywood, and three grandchildren, Gordie, Sam, and stop. “We’ve had as many as 18 people and never fewer than six” Austen Fagan. he recalls. Some are connected to the running community, and “The water stop team members have been unsung heroes of others like Brenda Short are breast cancer survivors themselves. the race,” says race director Bix DeBaise. “Most of us don’t even see Friends Mark Snyder, Sandy Toole and Doug Peet have them – they show up to the water stop a mile-and-a-half from the volunteered numerous times. registration tent, do their job, clean up, and are on their way. We On hot days, the water stop provides an essential service. hear from the runners that they’ve done a good job.” “You better have two tables full of water,” he says. “It gets crazy Oliver says the water stop crew members take pride in in a hurry.” He also says the runners have been very appreciative, what they do. He insists that all volunteers use hand sanitizer “Maybe even more so when we’re out there on a cold day. We before handling the water cups and he personally checks to see always get a lot of ‘thank-yous”. that every last discarded water cup is picked up from the area On May 8th, 2011, Oliver and company will again be afterward. “It’s really very eerie how efficient we are – no one doing their thing at the Pink Ribbon Run water stop. The says a word, but everyone just goes about their job.” weather may be uncertain, but for the water stop team it will Ed says his job was made easier when the Pink Ribbon Run be business as usual. h

Reading Behind the Headlines continued Where did the information originate? Was it announced at a scientific meeting? Many times conference abstracts are preliminary in nature, lacking in statistical data, and often based on laboratory or animal studies. Who paid for and conducted the study? Is there a conflict of interest? It is important to be mindful that many research programs are subject to pressure to publish in order to secure and retain funding. Many reports originate from studies reported in medical journals. The Journal of the American Medical Association and the New England Journal of Medicine serve to report research findings to scientists and health professionals. Information on the Internet is available at the click of the mouse, yet not all of it is reliable. Several websites offer good sources of health information: http://www.cdc.gov/ http://www.cancer.gov/cancerinfo/wyntk/breast http://www.cdc.gov/cancer/breast/ http://www.clinicaltrials.gov/ http://health.nih.gov/ http://www.nlm.nih.gov/medlineplus/ http://health.nih.gov/topic/BreastCancer/Cancers http://www.nlm.nih.gov/medlineplus/breastcancer.html The media plays a vital role in educating the public about the most up to date information pertaining to health care. However the volume of information that is communicated daily can leave us confused and dazed. We must look beyond the sound bites and strive for the most detailed science based reports that are available. h

23 Our Fundraising Friends Salvatore’s Sells Slices For ROC Roller Derby – “Bouting For Boobies” A Cause On Saturday, Thank November 13th, ROC you to Left, Brianne Testa- City Roller Derby closed Wojteczko with her new Salvatore’s daughter, Nina out the season with Old Below, display of the casts “Bouting for Boobies”. It Fashioned made by Breast Impres- featured members of the Pizza! sions, auctioned the 5-h8-5’s, Rottenchesters, During the evening of the derby and Roc Stars in a month of round robin style bout. October proceeds from the sale of Breast Impressions cast each slice at all Salvatore’s locations 14 members of the ROC City Roller Derby. were donated to the Breast Cancer The casts were decorated by local artists and Coalition of Rochester. The slices auctioned off at half-time with all money raised even came in pink boxes! The being donated to the Breast Cancer Coalition promotion was a huge success and of Rochester. BCCR received $4,256 from the raised $2,500 for BCCR. auction. Thank you for your incredible gift! Women Gynecology & Rebounding for BCCR Spencerport High School Childbirth Associates – Marlin Johnson, a forward for Thank you to the students Dress down day the Rochester RazorSharks, has been at Spencerport High School for The staff at Women Gynecology a steady presence at BCCR. Last donating the $111.50 from their and Childbirth Associates held a dress year Marlin created Rebounding for bottle drive to the Breast Cancer down day which raised $472.22 for the BCCR, in which sponsors donated Coalition of Rochester. What a Breast Cancer Coalition of Rochester. $5 per rebound during Marlin’s 09/10 great way to “Pay It Forward”. Thank you for your support! season. BCCR has received over $3,500 from this fundraiser! We would like Roc City Florist Car Wash to extend an enormous thank you to the Sands Family and Constellation Thank you to Rockcastle Florist Brands, DG&M Agency, Inc., for hosting their annual car wash Professional Medical Resources, Inc., to benefit BCCR. In addition to Shaw Opticians, Hamill/Regional Valley the $600 raised from the car wash Associates, Boston Agency, Inc. and they raised another $400 during Senator Mike Nozzolio for their support. October by selling pink flower The girls & the gorilla invite passersby to wash their car arrangements. Thank you for your dedication to the Coalition! Simply Scrapbooks – Scrappink fundraiser Windsor Cottage Jewels by Park Lane Party Simply Scrapbooks held their On November 18th Windsor Thank you to Marybeth annual Scrappink fundraiser in Cottage hosted their 2nd annual Cerrone, Michelle Chin and their October. This year they chose the Wrapped In Pink Shopping event. friend, Mary Hutchins, a Jewels Breast Cancer Coalition of Rochester BCCR received 10% of sales from by Park Lane consultant. In lieu of as one of their recipients. BCCR is the day. Thank you to Peggy and her complimentary jewelry from their very grateful for the $260 donation. team for $200 and most importantly, party in October, Marybeth & Thank you to everyone at Simply their dedicated support of the Michelle donated $328.50 to BCCR. Scrapbooks for keeping it local! Coalition! Thank you, ladies!

24 Women’s Council of Realtors Annual Fashion Show Shop for Hope Miriam Beard stated “The results On November 14th the dancentre of philanthropy are always beyond hosted their annual Shop for Hope. calculation.” This could not be more Several local vendors were selling true of the generosity of the Rochester their goods and people were able Chapter of the Women’s Council to get a jump start on their holiday of Realtors. For the past seven years shopping. $777.50 was raised for the the Council has selected BCCR as Breast Cancer Coalition of Rochester. a recipient of a portion of the funds Thank you to Barb Grosser, event raised at their annual Fashion Show organizer, and to all who participated and Basket Auction. Since 2004, the in the event. Council has donated over $50,000 to Left to right: Tracey Dello-Stritto, Shawna Poisson, the Coalition! We are in awe. Because Holly Anderson, Sharlene Nally, Judy Rynne, Patti World Gym of the Council’s generosity we have Kesselring and Amy Connell been able to offer support to more women and more families dealing with a breast During the month of October cancer diagnosis. Also, the funds have allowed us to expand our office space to the World Gym on East Avenue accommodate additional free programming such as the Healing Arts Initiative and had two pink Cybex treadmills. For a Friends and Family support group. The Women’s Council of Realtors understand every mile logged on the treadmills that pink is more than a color – it is mothers, daughters, sisters, aunts, friends, they pledged 10 cents to the Breast neighbors and colleagues dealing with the aftermath of a breast cancer diagnosis. Cancer Coalition of Rochester. Thank you so very much for your commitment to your community. They were even so generous as to let non-members come in and use Curves – Mendon the treadmills. In addition they promised to donate $10 for every Curves Mendon raised $80 in October for the Breast Cancer Coalition new member that joined in the of Rochester. Thank you for your continued support! months of September and October. Between the new members and all Churchville-Chili Saints Varsity Hockey Team the miles logged on the treadmills, The Churchville-Chili Saints a total of $1,092 was raised for Varsity Hockey team held a BCCR. Thank you to everyone who fundraiser for the Breast Cancer participated and a huge thanks to Coalition of Rochester. The hockey the East Avenue World Gym for players collected donations at local keeping their donation local! restaurants. They raised $1,330.54 as a result of all their hard work! Thank you for your continued Parkleigh – Mackenzie- support! Childs Vase donation Those that attended BCCR’s Left to right: Kevin Clar, Tom Mcjury, Moira McJury, and Paige Castle Artrageous Affair in October found a coupon from Parkleigh in their gift KelleyAyn Wallace Wedding bag. The coupon was for $10 off the Mackenzie-Childs Courtly Check vase In lieu of favors at her wedding reception, KelleyAyn Wallace made a $500 donation with a pink ribbon. In addition, $10 to the Breast Cancer Coalition of Rochester. What a wonderful way to honor guests and from every purchase would be donated support a worthy cause. Thank you so much, we wish you and your husband the best! to the Breast Cancer Coalition of Rochester. BCCR was happy to receive “Turbo for a Cause” $430 from Parkleigh. Our heartfelt Thank you to everyone at Platinum Presenters for organizing Turbo for a thanks go out to Parkleigh for their Cause. Participants were able to take a Turbo Kick class and had the opportunity continued support, and to everyone to win raffle prizes. $815 was raised at this event! Thank you for helping us give who purchased a vase. Breast Cancer a kick in the butt!

25 onations ending December 31, 2010 Adua Caia Rina Battisti Anna Maria Battisti-Wall D The name of the individual honored or remembered is shown in bold type. The Breast Cancer Coalition thanks donors for these gifts made since our last listing. Dianna Curran (Donations made after December 31st will be included in the summer newsletter.) Ginny Ryan-Curran We apologize for any errors and/or omissions on our donor pages. Agatha Ferlicca Judy Wood In Honor of: Deb Leary Amelia “Amy” Gaesser Patricia Hagerman All Cancer Survivors Doris Ardizzone Ann Mazzarella Lori Lytle Sammel Attardo Joyce Schmidt Arnold Bernhard Holly Anderson BKEI Hockey Team Sumati Devadutt Carol Matthews R.N. Sharon Catanese Janet Miller George & Ferne Uschold Joyce Cavellaro Sara Beale Diane Mazzarella John & Marie Collins Ann Mazzarella Fairport Transportation Department Susan Van Der Stricht Sunshine Club Pam Bernstein Betty Miller Stephen & Patricia Gascon Jane Gordon Helen Elam Mike & Kathy Gaesser Miles Zatkowsky Mr. & Mrs. Walter Gaesser Jennifer & David Nicoletti Sharon Gundrum Michelle Bessette Russell & Kathleen Thomas Beatrice Hack Nicholas Gabel Joe & Beth Priebe Mary Jo Hazeldov Bonnie Hogan Sylvia Cappellino Warren & Arline Seideman Jane Keating Ann Mazzarella Sandra Roether Patti Kesselring Patti Cataldi Barbara Abraham Terry & Beth Kirkpatrick Joyce Schmidt Rose Kull Judy Rohrer Anne Lyster Phyllis Connelly Ann Mazzarella Markajani Family Paul Schutt Andrew & Laura Meloni Susie & Greg Smith Matt Moffa Barbara Compa Rodney & Anne Smith Charles & Sally Nesta Jane Oertel Josephine Trubek Gary & Christine Nesta JoAnna Connor William Egger Rose Oliveri Kim Connor Deborah McLean Joan O’Neil Kathleen Pedulla Terrill Curran Laurel Turner Barbara Sadler Ginny Ryan-Curran Black Heart Fund Lora Reynard Linda DiCesare Sherrie Valentino Dr. & Mrs. Samuel Rizzo Maxine & Jerry Rosen Joyce Schmidt Diane Campoli Dr. & Mrs. Robert Rosen Deborah Wagner Sue Druziak Walter & Anne Scheible JoAnne Druziak Randi Winterman Lawrence & Enid Shulman Jane Gordon Mary Ann Strange Timothy & Susan Englert Miles Zatkowsky Sandy Sununers Rachel Eddy Marlene Remein Olga Witherow Guy Tarquinio Nancy Germond Nicholas Gabel David Masonis Joan Throusau Ray & Judith Wood Unity Agency Susan Gibson Tom & Paula Quanz Dr. Daniel & Shelly Caccamise Julie Gibson Jacklin Randall-Ward E.H. Wheeler Karin Hauza In Memory of: Susan White Joyce Schmidt Nick Agnello Linda Williams Jean Lazeroff Ann Mazzarella Denise Graver Patricia Hagerman Stephanie Partridge Vye Agnello Cathy Vajentic Adeline Bruno

26 Rhonda Harris Jennifer Schoen Edwina Failla Amy Gabbard Tom & Holly Anderson Russell & Kristen Ferguson Laura Cathey Barbara Batt Julia N. Finn Vincent Ransom Mitchell Chait Barb Fragale Brue Wickline Charles & Lynn Cornelius Brittany E. Frick Peter & Carrie Dailor Nancy Gillan Anne Jackle Anthony & Kathie Finks Mr. & Mrs. David Graupman Kristine Hunt Richard & Christine Geyer Marlene E. Hampson Irene Kwasneski Susan Gibbons Christine Henningsen Marie Personte William & Margaret King Douglas & Barbara Henry John Olson Jody L. Hoch Ruth Lawlor Robert & Elenor Reynolds Anne Hodges Mary Knowles Sara Rosno Ashley R. Hogan Elizabeth Schoen IBM Employee Charitable Contribution Betty Ann McDonald Frederick Schneider Campaign James McDonald Thomas & Donna Turner JP Morgan Chase Foundation Matching Gift Patti Sunseri Miller Frieda Weeks Patricia Kellman John & Karen Finkle Sharon Skiba Dana Knisley Kim Miller Jean & Amy Voellinger Janet R. Kobos Brenda L. Kosman Dee Miller & Family Janet Stager Regina M. Kozak Maureen Toombs Mary Mullen Barbara Lamanna Lynn Mullen Mrs. Talhurst Charles R. Lanning Frances J. Lindgren Rosemary O’Leary Tom Corrigan Susan F. LoCicero Marcy Lazio Julia Ulrich Katherine Lomoglio Ann Oliveri Lori Jean Peloquin Kelly LoVullo Peter & Nancy Mancuso Adeline Bruno Joan Vazzana Deborah Mateo Patricia O’Toole-Vazzana Tracy Jones Palmer Raymond C. Mattice Annie Wakeley Wall Sharon E. McCabe Contributor’s Circle $1-$49 Annie E. McCarthy Linda Parker Marianne Abraham Caton McFadden Jason Plaisted Mary Affronti Wendall R. Maylin Patnawon Thung American Express Charitable Matching Joanne McDonald Sue Ann Partner Gift Mr. & Mrs. Eric Meisenzahl & Family Jeffrey Halik Anonymous Donor Christopher T. Miller Roberts Communications, Inc. Mary Antrita Heidi B. Miller Annette Applebaum Melinda S. Moon Laurie Pask Lorraine Balandis-Dennison Mesut Muyan Dr. Arthur Stewart Hengerer Carmen I. Bello Gretchen A. Myers Kristin & Don Benwitz Susan M. O’Brien Mary Pucci Kenneth Biemiller Carol A. O’Connell Angelina Locurcio Linda Bryant Nancy Paeth Esther Rosato Anne Bubacz Nancy Palozzi Laura Booth Susanne E. Callan-Harris Cristy B. Peck Kathy Ehrhardt Marcia Camp Lorraine Pellegrino Bruce Herendeen Diane M. Campbell Toni Phelps Dennis & Cynthia Newcomb Jessica M. Cator Judith M. Principe Mr. & Mrs. John Richards Donna Compitello Betty Puleo Betty Rosato Denise Cotterman Kathleen Rampe Jim Salamone Patricia D’Ambrosia Mary E. Rawlins Susan M DeCaro Allair A. Reid Jean Rosen L. DeCarlis Donna J. Romashko Gary Cohen Jennifer Derycke Patricia Romanowski Pamela Rosen Morris & Shirley Diamond Mark Ronan Jody Dietz Terri Schmitt Lori & Michael Ryan Dennis W. Fabrizi Suanne C. Santee John & Jane Schmitt Annette Farruggia Nancy Schaad Anthony J. Fichera Anna Schwartzman ESL Federal Credit Union Teresa A. Seeler 27 Sharon Seeholzer Julie A. House Steven Argento Carolyn Sheild David M. Hurley Michael M. Atkinson Mr. & Mrs. Patrick Simpson Kelly A. Jones Jeff A. Benjamin Mr. & Mrs. William Simpson Johnson & Johnson Matching Fund Delsa I. Benz Stefanie N. Smaldone Mary Keller Dorothy A. Bianchi Anna Marie Smith Matthew R. Knaub Nancy Bianchi Doreen M. Smith Cynthia Knox Richard Bianchi Monica J. Smith Shelby R. Koroly Dawn Z. Breen Patricia Smith Sue Le Sage Jennifer A. Brokaw Carol Spero Dr. Martin G. Lineham Ashley M. Brown Karen Streech Karen F. MacAnn Rachael M. Burns Meyer Stolberg Raymond Mack Lori Busch Jennifer L. Strucker Laurie A. Malsegna Samantha K. Butler Daniel Termine Patricia A. Mancine Antoinette Capellupo The Moody’s Foundation Matching Gifts Glenda G. Mansfield Kathryn A. Carson Kristen Trotta Paula Martin Marybeth Cerrone, Michelle Chin, Laurie Tschudi Madeline Merkl Mary Hutchins - Jewels by Park Lane Mr. & Mrs. David Turpyn Gary & Wendy Mervis Carole Cilano Philip D. Vanderlee Joan Mitchell Donna M. Coluzzi Patricia N. Wagner Jocine Montana Mary Ann Conley Rosemary & Philip Weidenborner Darceille Mucci Jennifer L. Conover Rene Wells Gwendolyn R. Nelson Joyce L. Cordello Kristina L. White Estelle O’Connell Lisa J. Craig Amy C. Wilkin Sarah A. Owens Brian D. Crandall Judith A. Wilson Alexis N. Page Richard L. Curtis Mary Zeitvogel Marie Personte Robin R. Cuzzupoli Robert L. Zeitvogel Jeffrey A. Raggi Jr Mary Jo Deichmiller Julian M. Rayburn Nicki K. Denny Friend’s Circle $50-$99 Judy S. Reed Kerri Diehl Ridge Culver Fire Department Patricia Dix Anonymous Donor Carol Robinson Cathy M. Dobrowal Rose Mary Agins Daniel E. Robinson Crystal Doody Nora E. Auld Israel Rodriguez Julia S. Dumuhosky Daniel J. Azzolina Erin Rodriguez-Doyle Helene Ehmann Joan R. Batzold Carol A. Sassone Janet Elman Stacey R. Bershod Dianne Schaefer Duane A. Engle Jane H. Biggs Norman E. Schaefer Wilma Findlay Mary Breeden Judy A. Schulman Barbara A. Fisher Tameka N. Breedlove Mary Anne Schum TaTanisha A. Fowler Terry Bronte Carol Schultz Bonnie R. Freville Beth Brusdal James B. Scott Cynthia Gary Rachel A. Burke Doreen J. Sears Girls Spa Parties - Amber Perez Susan Campbell Joanne Siegle Andrea Giuffre Shannon R. Carey Debra Sobko Greece Athena Student Council Class Megan E. Carlsen Paula G. Stevens of 2013 Diane Caselli Marilynn A. Sullivan Greece Athena H.S. J.V. Girls Soccer Elwin K. Castro TC Group David Guadagnino Nafisah J. Clay Adam R. Thompson Sonia M. Hahn Jeffrey W. Colaizzi Gordon J. Valentine II Howard & Carole Haims Royce A. Collins Jose M. Velez Jr. Joanne Hammond Karen M. Cosmano Village Coal Tower Restaurant Laurel Harrington Curves Mendon - Bridget Grant Kristy Wingate Derek Harrison Debra M. DeVantier Karen L. Zuber-Roberts John D. Hawkes Matthew J. DiFrancesca Christine G. Hewitt Linda A. Distefano Pink Ribbon Circle $100-$499 Susan E. Hollister Dr. Reuben Epstein John & Seana Holtz Foundation Lawrence & Rose Fiano Edward & Joan After Jacobstein Food Service Lisa A. Gawlik Mafalda C. Agostinelli Marcelino Jaime Give With Liberty Match Allen Creek School - Denim Day Cynthia Jankowski Barbara J. Gorski American Express Matching Fund Mary & Richard Johnson Lisa L. Greenwood Thomas C. Anthony Selena M. Johnson Patricia A. Herman Lisa C. Arbore Liese M. Kalmus 28 Evan Kiner Renee C. Thibeault Mark and Kathy Raeside Eleanor R. Lampeter Town of Pittsford - Employee’s Annual Rebounding for BCCR Carol T. Lannon Health Fair Raffle Mr. & Mrs. Thomas J. Reichlmayr Larijames Salon & Spa Lynda Tripi ROC City Roller Derby Deborah Lazio Thomas Tschorke Rochester Athletic Club Jeri Liles Willie M. Tucker Saints Hockey Program - Churchville - Chili Livingston County DSS Morale & Ultrafab “Go Pink” Event Salvatore’s Pizzeria Activities Committee - Denim Day Universal Instruments Xerox Benefit 2010 Chili n’ Dog Stephen T. MacIntyre VandenBrul Foundation Fundraiser Kisha M. Magee Karl R. Vandermeid Timothy P. Mahoney Carey M. Vick Founder’s Circle $5,000.00 + Ronald N. Malley Rosemary T. Volker Doreen M. Mangee Larry W. Wagemaker Estate of Donald Henderson Thomas G. Marletta Linda K. Walsh Lancers Anniversary Committee Mark D. Martin Sue Weisler Women’s Council of Realtors Pamela J. Marzolf Michael A. Wheeler James & Nona Maurer Deborah A. White BCCR Fundraising Event Theresa A. Moraldo Hans P. White Donations Mark W. Mori Windsor Cottage Pink Ribbon Run David J. Morris Women Gynecology & Childbirth James & Rita Johnson Michael & Meredith Mortimer Associates, P.C. - Dress Down Day Robert G. Mulcahy Anthony J. Yonda Gifts in Kind: Virginia A. Murn Barbara A. Zimmerman Katherine S. Mykins May Zorsch Jennifer Derycke Molly S. Nero Nicole Friberg Kimberly M. Harris-Pappin Advocate’s Circle $500-$999 Kathy Harris Joan de R. O’Byrne Kara Izzo Allstate Foundation Therese O’Connor Veronica Miller Debora S. Braman Mary E. O’Grady-Pero John Muenter Suzanne M. Campbell Timothy O’Loughlin Patricia Romanowski the dancentre - Shop for Hope One Restaurant & Lounge Second Bloom - Daria Reitknecht Gena R. Dioguardi JoAnn C. Palermo Colleen Spry Deborah Falbo Parkleigh Stampin’ Up! Sherianne Buehler GiGi’s Restaurant - Girls Night Out Pathfinder Engineer’s & Architects LLP Claudia Voorhies Steve & Niki MacIntyre Janice G. Paternico Maureen S. McCallum Darlene M. Pittman Monroe Community College Holiday Gift Exchanges Pittsford Central Schools Transportation Department Cara D’Emanuele, Hannah Walpole, & Nick Weiser - Songs for a Cure Thank you to Jennifer Lauren B. Polito Elizabeth A. Schiano Marie Polito Derycke, Kirstin and Don Matthew L. Schuler Yvonne Bourne - reBourne Yoga Benwitz, and Douglas and Section V Field Hockey - Dana Tucker Carol J. Reed Michelle Shayne Barbara Henry for thinking Charlot A. Reisinger Nicole J. Sipple of BCCR during the holidays. Christine M. Remington Kelly Sirianno Carol Reynolds Instead of buying each other Kevin J. Stone Arthur Roberts Christmas gifts this year they Wal-Mart/Sams Club Rochester School for the Deaf - Denim Elizabeth Wende Breast Care - Jean’s Day donated $100 to the Breast Cancer Day Coalition of Rochester. Thank you Maxine R. Rosby Westport Fund Damir Saracevic for your continued support. Jamie E. Scripps Visionary Circle $1,000.00-$4999 In lieu of exchanging gifts Marla H. Shannon Artistic Designs Hair Salon Terri A. Sharpe Big Oak Driving Range & Golf Shop this holiday Mr. and Mrs. Eric Simply Scrapbooks - Kristin Benwitz Patricia A. Dell’Anno Meisenzahl & Family, Mr. and Mrs. Lisa K. Smith Cycle Shop - Dice Run David Graupman, Mr. and Mrs. Harry Snyder Debrorah Falbo - Chase Patrick Simpson, Mr. and Mrs. Annette M. Stenglein Jewell Music Company Surmotech, Inc. JK Jewelry, Inc. William Simpson, and Mr. and Mrs. Stephen Szczublewski Longaberger Horizon of Hope David Turpyn donated $135 to the Maria A. Tantillo M&T Charitable Foundation Breast Cancer Coalition of Rochester. Jill C. Taylor Cindy L. Dertinger, Advanced Breast Thank you for your support. Eric Teel Cancer: Tools for the Journey 29 Upcoming Events & Programs at BCCR Wednesday, March 23, 2011 Evening Seminar: Approaches to Reducing Breast Cancer Recurrence Risk-A Survivor’s Guide Presented by: Michelle Shayne, MD 7:00 - 9:00pm Wednesday, April 27, 2011 Evening Seminar: The Pathologist’s Role in Caring for The Healing Patients with Breast Cancer Arts Initiative Presented by: Dawn Riedy, MD 7:00 - 9:00pm The Healing Arts NEW DATE Monday, August 15, 2011 Initiative is an & ‘Tee’d Off at Breast Cancer’ opportunity to learn LOCATION Golf Tournament about a practice you Brook-Lea Country Club may have heard of, been All events unless otherwise noted are at: curious about, or have THE BREAST CANCER COALITION OF fallen away from due to ROCHESTER breast cancer treatment. 840 University Avenue (Between Culver and Goodman) These offerings will be held in four-week sessions Questions? Contact the BCCR at (585) 473-8177 on Saturday mornings throughout the year.

Offerings such as: Feldenkrais Fluid Motion pcoming Fundraising Events Gentle Yoga U “Battle Against Breast Cancer” Pilates G2 Youth Wrestling Tournament at Penfield High School. Qi Gong April 2nd through 3rd. Tai Chi Greece Public Library Fashion Show “Over the Rainbow” April 30th – 2pm. For more information, please call BCCR at Drum & Bugle Corps Concert 585-473-8177 Apollo Middle School in Greece April 30th.

30 Take Action! he Breast ecome a Supporter of the Breast Cancer Coali- TCancer Btion of Rochester by making a gift today! Coalition is Your donation will ensure that you will receive a pleased to subscription and invitation to all general meetings, introduce educational forums, and special events. Additionally, you will help support our goal of creating an active voice in a new the Greater Rochester Region in the fight against breast item to cancer through advocacy, education, and support. our line of merchan- Name dise. This Address lightweight, City State Zip ladies cut, mi- Phone crofleece full- E-mail zip jacket in Kiss Pink is offered in sizes Small, I am a breast cancer survivor Medium, Large and X-Large. Two front pockets, $5000 Founder’s Circle open cuffs and hem and the BCCR logo com- Gifts of $100 + plete the look. You could easily wear this fleece $1000 Visionary Circle receive a while running errands, working out, reading a $500 Advocate’s Circle complimentary Comfort Heart. book or even at The Pink Ribbon Run & Fam- $100 Pink Ribbon Circle $50 Friend’s Circle ily Fitness Walk in May! $25 Contributor’s Circle top by 840 University Avenue in Roch- $ Other ester or call us at 585-473-8177 for more S I am not able to make a donation at this time information or to order one or more! The cost but would like to be on your mailing list. is $35.00 each. We do accept Paypal as well as most major credit cards. h I would like to make an additional gift of $ In Honor of Browse, Borrow & Read Memory of Please send notification of my gift to: (name and address)

Enjoy Payment Choice Check, Money Order Visa/Master Card/AmEx the Amount Enclosed $ Credit Card No. BCCR Expiration Signature Library Name on Card

Breast Cancer Coalition of Rochester 840 University Avenue Rochester, New York 14607 (585) 473-8177; www.bccr.org

31 Breast Cancer Coalition of Rochester 840 University Avenue Rochester, New York 14607

Voices of the Ribbon Published Quarterly by the Breast Cancer Coalition of Rochester Tel. 585-473-8177 • Fax 585-473-7689 • E-Mail: [email protected] • Online at bccr.org

Voices of the Ribbon is published quarterly by the Breast Cancer Coalition of Rochester for the purpose of providing encouragement and inspiration to those ou are facing a breast cancer extraordinaryY diagnosis, their and beautiful supporters, and care providers. and creative In addition, it is and curious intended to impart and smart and full of ridiculous and endless potential. accurate, science- based information You are the only way to make all that you are come true. to enlighten and -Joanne Sharpe empower its joannezsharpe.blogspot.com readership.