About The Johns Hopkins The Johns Hopkins Myositis Center Myositis Center

he Johns Hopkins Myositis Center, one Tof the first multidisciplinary centers of its kind that focuses on the diagnosis and management of myositis, combines the ex - pertise of rheumatologists, neurologists and pulmonologists who are committed to the treatment of this rare disease. The Center is conveniently located at Johns Hopkins Bayview Medical Center in Baltimore, Maryland. Patients referred to the Myositis Center can expect:

• Multidisciplinary Care: Johns Hopkins Myositis Center specialists make a diagno - sis after evaluating each patient and re - viewing results of tests that include muscle enzyme levels, electromyography, muscle biopsy, pulmonary function and MRI. The Center brings together not only physicians with extensive experience in di - agnosing, researching and treating myosi - tis, but nutritionists and physical and occupational therapists as well.

• Convenience: Same-day testing and appointments with multiple specialists are The Johns Hopkins typically scheduled to minimize doctor Myositis Center visits and avoid delays in diagnosis and Johns Hopkins Bayview Medical Center treatment. Mason F. Lord Building, Center Tower 5200 Eastern Avenue, Suite 4500 • Community: Because myositis is so rare, Baltimore, MD 21224 the Center provides a much-needed oppor - tunity for patients to meet other myositis patients, learn more about the disease and Physician and Patient Referrals: 410-550-6962 be continually updated on breakthroughs Fax: 410-550-3542 regarding treatment options. www.hopkinsmedicine.org/myositis The Johns Hopkins Myositis Center THE CENTER BRINGS TOGETHER Team NOT ONLY PHYSICIANS WITH EXTENSIVE EXPERIENCE IN DIAGNOSING , RESEARCHING AND Lisa Christophe r-Stine, TREATING MYOSITIS , BUT M.D., M.P.H. – Co-Director, NUTRITIONISTS AND PHYSICAL Johns Hopkins Myositis AND OCCUPATIONAL THERAPISTS Center, Assistant Professor of Medicine, Division of AS WELL .

About Myositis Referring Your Patient Andrew Mammen, M.D., PH .D. – Co-Director, Affecting approximately 50,000 Americans, If you suspect that one of your patients may be Johns Hopkins Myositis the chronic muscle known as suffering from myositis, we encourage you to refer Center, Assistant Professor myositis is complex and can be difficult to them to the Myositis Center. We have found that of Neurology diagnose and treat. There are different types patients who have had diagnostic studies per - of myositis, which the Johns Hopkins formed and interpreted elsewhere require repeat Myositis Center evaluates, diagnoses and testing when they visit the Myositis Center. treats: Therefore we strongly recommend that patients • have their diagnostic studies performed and inter - Sonye Danoff, • preted at the Center. M.D., PH .D. – • Co-Director, Johns • Toxic (caused by toxic All new patients require a physician referral, and Hopkins Interstitial exposure to drugs or toxins such as ) we accept most insurance plans. Lung Disease Clinic, Assistant Professor Symptoms of myositis may include: For more information or to refer a patient of Medicine • Trouble rising from a chair to the Johns Hopkins Myositis Center, • Difficulty climbing stairs or lifting arms please call 410-550-6962 or visit • Tired feeling after standing or walking www.hopkinsmedicine.org/myositis. • Trouble swallowing or breathing • Muscle and soreness that does not resolve after a few weeks • Elevations in muscle enzymes (CPK or aldolase) shown by blood tests Thien Nguyen, M.D., PH .D. – Assistant A definite diagnosis of myositis usually Professor of Neurology includes of the shoulder and/or hip muscles. A patchy, reddish rash on the knuckles or eyelids, when coupled with More information about our physicians available at: other significant symptoms like muscle www.hopkinsmedicine.org/myositis weakness, may indicate the presence of Physician and Patient Referrals: 410-550-6962 dermatomyositis. Fax: 410-550-3542