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MOUNTAIN STATES MEDICAL GROUP-PEDIATRIC Pediatric Notebook TABLE OF CONTENTS

GETTING STARTED Discharge checklist...... 3 What are ?...... 38 Mountain States Medical Group-Endocrinology References...... 39 contact information...... 4 Reading the food label...... 40 Phone call guidelines for newly diagnosed A handy guide to portion sizes...... 41 patients with diabetes...... 5 What if I don’t have a label?...... 42 Campus map and driving directions...... 6 Portion sizes for 15 grams of carbohydrates...... 43 Diabetes “survival skills”...... 7 Favorite reference guide...... 44 Let’s plan some meals!...... 46 DIABETES BASICS Carb counting for recipes...... 48 What is diabetes...... 8 I’m hungry….but it’s not meal or snack time...... 50 The difference between type 1 and ...... 10 Ideas for 10 gram snacks...... 51 Diabetes basics...... 11 Ideas for 15 gram snacks...... 51 Keeping in balance...... 12 Ideas for 30 gram snacks...... 52 45 gram breakfast ideas...... 53 RECORDS 60 gram breakfast ideas...... 54 log sheet...... 13 45-60 gram lunch and dinner ideas...... 55 Happy Holidays!...... 57 BLOOD SUGAR MEASUREMENT What’s on your plate?...... 58 Measuring blood sugar...... 18 The A1C ...... 19 Diabetes routine (Lantus & Humalog/Novolog before meals)...... 20 Physical activity...... 60 Diabetes care record...... 22 replacement for activity...... 61 RESOURCES Insulin products...... 23 Taking diabetes to school...... 62 More about insulin...... 24 Resources for people with diabetes...... 63 Basal regimen...... 25 Pharmacy list...... 64 Directions for drawing a single dose of insulin...... 26 Diabetes and driving...... 65 Directions for giving insulin...... 27 Traveling with diabetes...... 66 Tips for family coping...... 67 LOW BLOOD SUGAR Top 10 diabetes self-management strategies...... 68 Low blood sugar ()...... 28 Diabetes glossary...... 69 injection...... 30 Alcohol and diabetes...... 74 Diabetes identification...... 31 Drug use and diabetes...... 75 HIGH BLOOD SUGAR High blood sugar ()...... 32 /DKA...... 33 ketones...... 34 Pediatric sick day guidelines...... 36 Sick days for older children...... 37

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 2 DISCHARGE AND FOLLOWUP CHECKLIST

DISCHARGE CHECKLIST

 Finished “Survival Skill” education  Check take-home supplies against list  Glucagon emergency kit is packed  Next dose of insulin is written on record form or phone contact arranged before dose time  Diabetes school orders prepared and signed if necessary  Set up phone contact with Dr. ______

FOLLOW UP APPOINTMENTS WHAT TO BRING TO APPOINTMENTS

Physician follow-up appointment  Blood management records with ______ Meter(s), including school meter on ______ A list of questions First education follow-up appointment  A list of supplies you need with ______ Diabetes Notebook on ______ Diabetes ID and treatment for low blood sugar Second education follow-up appointment with ______on ______

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 3 HOW TO CONTACT US

MOUNTAIN STATES MEDICAL GROUP PLEASE NOTE: Prescription refills and routine blood PEDIATRIC ENDOCRINOLOGY sugar check-in should be completed during normal Located on the third floor of the 408 building business hours. behind Niswonger Children’s Hospital 408 N. State of Franklin Road, Suite 31B EMERGENCY & AFTER HOURS: Phone: 423-431-4946 Call Niswonger after hours on the nursing line: Fax: 423-431-4947 423-431-4946

WHEN YOU NEED HELP: OUR PEDIATRIC ENDOCRINOLOGY PROVIDERS Call Morgan Armentrout Diabetes Educator, • George Ford, MD, MS at 423-431-2370 during office hours, • Evan Los, MD Monday–Friday, 8:30 a.m. – 4:30 p.m. • Alexis Duty, MSN, FNP-BC HOW TO MAKE AN APPOINTMENT: • Morgan Armentrout, RN-BSN, CDE The clinic is open Monday – Friday, 8:30 a.m. – 4:30 p.m. Please call 423-431-4946 for current available days and times.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 4 PHONE CALL GUIDELINES FOR NEW PATIENTS

You have learned a lot about diabetes during your child’s hospitalization and will continue to learn more over the next several months with the help of your diabetes team. We will talk with you often by phone after leaving the hospital and follow up in clinic within 2-4 weeks.

ROUTINE BLOOD SUGAR MANAGEMENT PHONE CALLS EMERGENT PHONE CALLS Initially, you will be asked to call the diabetes educator or nurse practitioner daily 9 a.m. – 12 p.m. EMERGENT PHONE CALLS to speak with a diabetes provider. The purpose There may be times when you will need to of these phone calls are to review blood reach the diabetes team urgently. There is and adjust insulin doses as needed. If your child’s always a pediatric provider available 24-hours provider is not available, your call will be sent to a day including weekends and holidays for the on-call pediatric diabetes provider. You should emergencies. Times that you may need to reach expect a call back by the end of the day. If you have a diabetes provider urgently would include: not heard back by 5 p.m., please call and ask to speak with the on-call provider. • Advice for managing sick days • Positive urine ketones with illness or THE PROVIDER YOU WILL BE CALLING IS moderate to large ketones without illness MORGAN ARMENTROUT, RN-BSN, CDE. • Recurrent low blood sugar that does not correct with usual oral treatment** EDUCATION PHONE FOLLOW-UP • If your child will be out of insulin for the next A diabetes educator will contact you about one scheduled injection week after discharge from the hospital. We will answer questions and discuss concerns you may **IF YOUR CHILD IS EXPERIENCING A have regarding your child’s diabetes, prescriptions, DUE TO LOW BLOOD SUGAR, CALL 911 school issues, low blood sugar management and IMMEDIATELY! follow-up visits. These phone calls may continue until your child’s first follow-up appointment at the Diabetes Center.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 5 AERIAL CAMPUS MAP OF JCMC

11E Aerial Campus Map of JCMC 36 Exit 19 Exit 20 E. Oakland Ave. 26 To: I-26 Exit 19 381 Princeton Rd. (3 miles)

N. Roan St.

Sunset Dr. W. Market St. 26 Knob Creek Rd. N. State of Franklin Rd. 11E Central N. Roan St. RV Parking Billing 381 E. UnakaE. Ave. Watauga Ave. 36 W. Market St. Exit 22 Hospitots 91

11E S. Roan St. Exit 24 26 Johnson City Medical Center 11E W. Market St. H W. State of321 Franklin Rd. . Team Member Parking 321 381 y 381 381 kw U y P niversit

Ronald McDonald House MAIN ENTRANCE • Emergency Room Entrance • Patient Drop-o/Pick-up • Patient/Visitor Parking – • Niswonger Children’s Hospital • Same Day Surgery Rd. of Franklin N. State A • 408 Medical O ce Building • Ronald McDonald House Veterans Aairs Medical Center

Medical Center Drive North B Dr. George Ford, Dr. Evan Los and Alexis Duty, FNP Mountain States Medical ER Group-Pediatric Endocrinology Parking 408 Medical O ce Building C Third Floor

Woodridge Hospital

PATIENT ENTRANCE • Patient Drop-o/Pick-up G • Patient/Visitor Parking – • Team Member Parking – • Cardiovascular Health D • Surgery Tower • Radiation Oncology E • 310 Building F

r. 2 D k ar l P na io ss Profe 381 310 Building 1 3 To: I-26 Exit 24 (4 miles)

Regional Cancer Center at JCMC American Cancer Society

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 6 DIABETES “SURVIVAL SKILLS”

OTHER INFORMATION YOU’LL NEED FOLLOWSURVIVAL UP SKILLS APPOINTMENTS TO UNDERSTAND • What is diabetes, causes, risk factors and You need to learn these things before you will warning signs feel prepared to leave the hospital and manage • How the body processes food, what has changed diabetes at home: during the past few weeks and months, and the reasons for those changes • How and when to check blood sugar • Factors the affect blood sugar • Keep written records (blood sugar, urine, • How injected insulin works ketones, insulin doses, carbohydrate intake) • Pattern management • How and when to check urine ketones • What to do about physical activity • Count carbohydrates using food labels • High blood sugar and ketoacidosis: recognition, • Measure and inject insulin prevention, when to test for ketones and sick • Discuss a consistent daily routine for day care diabetes care at home • Feelings about diabetes • Identify, treat and prevent low blood sugars • Diabetes and school, baby sitters, vacations • Review how and when to use the Glucagon and camp emergency kit • Resources: groups, websites, books, and • Review what to do about diabetes during community organizations an illness • Potential long-term complications of diabetes, risk factors and preventative care • Diabetes research: what does the future hold? • Follow-up care: next visit, continuing care

This is a long list. It represents far too much information for you to completely understand until you live with diabetes for a while. You will have lots of help. A member of the diabetes care team will be available by phone when needed. It is safe for you to learn as you take care of your child.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 7 WHAT IS DIABETES?

Diabetes is a condition in which the body does not produce or use insulin properly. Insulin is a that is needed to change sugar, and other food into energy for daily life. The of diabetes is somewhat of a mystery, although both genetics and environmental factors appear to a role. There are two major types of diabetes.

TYPE 1 DIABETES: TYPE 2 DIABETES: An autoimmune condition in which the body does The most common type of diabetes, in which the not produce insulin, often occurring in children and body does not make enough insulin or does not use young adults. People with must insulin properly. Type 2 diabetes accounts for 90- take insulin injections to stay alive. Type 1 diabetes 95% of all diabetes. Type 2 in children and teens is accounts for 5-10% of all diabetes. increasing due to and inactivity.

RISK FACTORS FOR TYPE 1 DIABETES: RISK FACTORS FOR TYPE 2 DIABETES: • 5% risk of a sibling also getting diabetes • Over age 45 (increasing in teens) • 50% chance of an identical also being • Family diagnosed with Type 1 diabetes • Being and/or inactive • Children who have a parent with Type 1 diabetes • Higher incidence in , Hispanic • Peak incidence occurs during Americans, Asian and Pacific Islanders and • Highest incidence in Caucasians Native Americans • Women who had (diabetes WARNING SIGNS OF TYPE 1 DIABETES: during ) • Frequent • Increased WARNING SIGNS OF TYPE 2 DIABETES: • Extreme hunger • Any of the Type 1 symptoms • Unusual • Frequent (, or bladder) • Lack of energy • • Irritability • Slow healing cuts • Tingling/numbness of hands or feet GRADUAL ONSET OF TYPE 1 DIABETES • Acanthosis: discoloration of skin on the neck and armpit is working fine 100% Autoimmune process (damage to Beta cells) 75%

50% Diabetes (onset of symptoms) “Honeymoon” (temp. recovery of Beta cells)

% = INSULIN PRODUCTION 20%

0% TIME (IN MONTHS OR YEARS) Type 1 diabetes develops gradually over many months or years. Once diabetes is diagnosed and treatment with insulin begins, beta cells can “rest”. Once these cells have had time to rest, they may start to make insulin again. This is the honeymoon phase. It can begin between 2–8 weeks after starting insulin and can last from 6 months up to 2 years. This is a time when people may think their diabetes has gone away. Not everyone diagnosed with diabetes will have a honeymoon.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 8 WHAT IS DIABETES? (CONTINUED)

HOW YOUR BODY USES FOOD: WHERE DOES INSULIN COME FROM? All parts of your body are made of cells. Your body Insulin is made in the pancreas by special cells needs sugar for energy so that you can do things called beta cells. like walk, talk and think. Sugar comes from the foods that you eat, primarily carbohydrates. After you WHAT HAPPENS WHEN THERE IS NOT eat carbohydrate, it is broken down into sugar. This ENOUGH INSULIN? sugar is absorbed into your bloodstream and blood 1. The goes up because the sugar level rises. In order to use sugar for energy you sugar cannot get out of the bloodstream into need insulin. Insulin is the “key” that allows sugar the cells. to pass into the cells where it is used for energy and 2. Sugar begins to spill over into urine causing you growth. When your blood sugar rises, the insulin- to urinate more frequently. producing cells in the pancreas can sense this and 3. You become thirsty. This is your body’s way of will release insulin into the bloodstream so the blood trying to replace all the fluid that is being lost by sugar does not get too high. increased urination. 4. You lose weight because are being used for energy instead of sugar. If your body is INSULIN DOES THREE THINGS: not making enough insulin, sugar cannot be used for energy and your body breaks down 1. Insulin is the “key” that lets sugar enter the instead. When fat is used for energy cells where it is used for energy. ketones are produced. Too many ketones can lead to a dangerous condition called diabetic 2. Insulin allows the liver to store sugar. ketoacidosis. 3. Insulin stops your body from breaking down fat.

KEY TO SYMBOLS

Sugar

Insulin

Blood cell

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 9 THE DIFFERENCE IN TYPE 1 AND TYPE 2 DIABETES

TYPE 1 DIABETES “JUVENILE” TYPE 2 DIABETES “ADULT ONSET” 5–10% OF ALL DIABETES 90–95% OF ALL DIABETES 1:400 children Adults Average onset age 10–12 girls Age of onset Increasing in youth Average onset age 12–14 boys More common in: African Americans More common in: Ethnic factors Native Americans Caucasians Hispanic Pacific Islander Autoimmune Autoimmune? Not an Autoimmune Disease (celiac, ) Pancreas loses ability to Pancreas still makes insulin but cells in the Effect on pancreas produce insulin body don’t use it correctly Genetics (gene cell types DR3/DR4) Strong family history + + Environmental factors Obesity and inactive lifestyle Cause destruction = = Type 1 Diabetes Type 2 Diabetes

Insulin shots 3–6 times per day Oral , sometimes insulin Blood glucose 4–6 times per day Treatment 2–4 times per day Carbohydrate counting Meal planning – weight loss Regular, active lifestyle Exercise – 30 minutes daily

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 10 DIABETES BASICS

IN A PERSON WITHOUT DIABETES SYMPTOMS

LIVER HIGH BLOOD SUGAR CARBS • Increased thirst • Increased urination • Increased hunger • Blurry vision • Tired • SUGAR ENERGY “GLUCOSE” STOMACH • Weight loss

CELL DKA – FAT • Nausea/vomiting • Dehydration PANCREAS • Urine ketones • Decreased pH • Deep/labored breathing • Coma • Fruity breath

IN A PERSON WITH DIABETES

FOOD LIVER CARBS CARB FAT

KEY TO SYMBOLS SUGAR ENERGY “GLUCOSE” STOMACH Sugar CELL Insulin FAT

PANCREAS

KIDNEY

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 11 KEEPING IN BALANCE

FOOD

Type Physical/Illness Amount Emotional Time Desired Blood Sugar Range ______

Type Amount Type Time Intensity Site Time

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 12 BLOOD SUGAR LOG SHEET Comments Emotional distress? dose. Feelings? Illness? Illness? dose. Feelings?

physical activity, changes in insulin changes activity, physical Changes in amount or timing of food, in amount or timing of food, Changes BT D L B Blood Sugar/Urine Ketones Blood Sugar/Urine 2am BT D S L S B Insulin Type H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs Date Friday Sunday Tuesday Monday Saturday Thursday Wednesday ______Range Target

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 13 BLOOD SUGAR LOG SHEET Comments Emotional distress? dose. Feelings? Illness? Illness? dose. Feelings?

physical activity, changes in insulin changes activity, physical Changes in amount or timing of food, in amount or timing of food, Changes BT D L B Blood Sugar/Urine Ketones Blood Sugar/Urine 2am BT D S L S B Insulin Type H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs Date Friday Sunday Tuesday Monday Saturday Thursday Wednesday ______Range Target

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 14 BLOOD SUGAR LOG SHEET Comments Emotional distress? dose. Feelings? Illness? Illness? dose. Feelings?

physical activity, changes in insulin changes activity, physical Changes in amount or timing of food, in amount or timing of food, Changes BT D L B Blood Sugar/Urine Ketones Blood Sugar/Urine 2am BT D S L S B Insulin Type H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs Date Friday Sunday Tuesday Monday Saturday Thursday Wednesday ______Range Target

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 15 BLOOD SUGAR LOG SHEET Comments Emotional distress? dose. Feelings? Illness? Illness? dose. Feelings?

physical activity, changes in insulin changes activity, physical Changes in amount or timing of food, in amount or timing of food, Changes BT D L B Blood Sugar/Urine Ketones Blood Sugar/Urine 2am BT D S L S B Insulin Type H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs Date Friday Sunday Tuesday Monday Saturday Thursday Wednesday ______Range Target

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 16 BLOOD SUGAR LOG SHEET Comments Emotional distress? dose. Feelings? Illness? Illness? dose. Feelings?

physical activity, changes in insulin changes activity, physical Changes in amount or timing of food, in amount or timing of food, Changes BT D L B Blood Sugar/Urine Ketones Blood Sugar/Urine 2am BT D S L S B Insulin Type H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs H/NL Lantus Carbs Date Friday Sunday Tuesday Monday Saturday Thursday Wednesday ______Range Target

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 17 MEASURING BLOOD SUGAR

WHY? HOW? To make sure all factors that affect blood sugar are 1. Wash hands in warm water or use an in balance. You will find, as researchers have, that alcohol swab. feelings are not a reliable way to determine blood 2. Poke the topsides of your . sugar levels.

HOW OFTEN? Several times per day, since blood sugar changes constantly. Common times people check: • Before breakfast, lunch and dinner • At bedtime • At 2 a.m. 3. Hang hand down and use a “milking” action to • If feeling symptoms of low blood sugar get a drop of blood. • After treating symptoms of low blood sugar 4. Touch the strip to the blood drop. Be sure the • Around the time of physical activity blood is the only thing that touches the strip. • When ill 94 M

WHAT IS MY TARGET RANGE? BEDTIME/OVERNIGHT AGE DAYTIME SUGAR SUGAR A1C% Infant, toddler and up to 100-180 mg/dL 100 or ______ADA 7.5% or less age 5 School age: 6-12 years 80-180 mg/dL 100 or ______ADA 7.5% or less Teens: 13-19 years 70-150 mg/dL 100 or ______ADA 7.5% or less

OTHER HELPFUL INFO • Keep the lid on your test strips closed tight — • Meters estimate blood sugar level, +/– 5-15%. they are sensitive to light and moisture. • Each meter has a toll free number listed on the • Keep strips and meter out of extreme back of the meter in case of questions. temperatures — learn the limits of your meter. • You can check the accuracy of your meter and test strips by using control solution.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 18 THE A1C BLOOD TEST

The A1C blood test gives you a picture of your blood sugar level over a period of three to four months. As red blood cells move through your blood, sugar sticks to them. Very simply, the A1C is a measure of how much sugar is sticking to your red blood cells.

Since each red blood cell lives for about three months, the A1C shows your average blood sugar for the past three months. Maintaining your A1C at ADA recommended targets can help keep you healthy. Discuss with your doctor what an appropriate A1C goal would be for you.

RELATIONSHIP BETWEEN YOUR A1C AND NORMAL A1C YOUR BLOOD SUGAR

ESTIMATED AVERAGE RED BLOOD CELL A1C% BLOOD SUGAR MG/DL GLUCOSE 6.0 126 6.5 140 7.0 154 7.5 169 8.0 183 8.5 197 9.0 212 HIGH A1C 9.5 226 10.0 240 10.5 255 11.0 269 11.5 283 12.0 298 12.5 312 13.0 327 13.5 341 The A1C blood test gives you a picture of your blood 14.0 356 sugar level over a period of three to four months.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 19 DIABETES ROUTINE

LANTUS & HUMALOG/NOVOLOG BEFORE MEALS FOLLOWKEY POINTS UP APPOINTMENTS  Get up – new day • Lantus Insulin needs to be given at the same time every day Check blood sugar  • Humalog/Novolog – 2–3 hours  Measure and inject insulin between doses (Humalog/Novolog ICR*) • Snacks – 2 hours between eating snacks and checking next routine blood sugar  Breakfast

 Snack (≤ ______grams carb)

 Check blood sugar  Measure and inject insulin (Humalog/Novolog ICR*)  Lunch

 Snack (≤ ______grams carb)

 Check blood sugar  Measure and inject insulin (Humalog/Novolog ICR*)  Supper

 Check blood sugar  Snack (≤ ______grams carb)

 Sleep

 Check blood sugar nightly for the next month and anytime: • your blood sugar was less than ______at bedtime • your Lantus dose was increased • you had extra physical activity during the day • when your child is sick

*ICR = INSULIN TO CARB RATIO

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 20 DIABETES ROUTINE

LANTUS & HUMALOG/NOVOLOG BEFORE MEALS FOLLOWKEY POINTS UP APPOINTMENTS  Get up – new day • Lantus Insulin needs to be given at the same time every day Check blood sugar  • Humalog/Novolog – 2–3 hours  Measure and inject insulin between doses (Humalog/Novolog ICR*) • Snacks – 2 hours between eating snacks and checking next routine blood sugar  Breakfast

 Snack (≤ ______grams carb)

 Check blood sugar  Measure and inject insulin (Humalog/Novolog ICR*)  Lunch

 Snack (≤ ______grams carb)

 Check blood sugar  Measure and inject insulin (Humalog/Novolog ICR*)  Supper

 Check blood sugar  Snack (≤ ______grams carb)

 Sleep

 Check blood sugar nightly for the next month and anytime: • your blood sugar was less than ______at bedtime • your Lantus dose was increased • you had extra physical activity during the day • when your child is sick

*ICR = INSULIN TO CARB RATIO

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 21 DIABETES CARE RECORD Year

Year Year Year Date (as needed) 10 years DM) 10 years Flu shot (annual) Flu Standards of Care Standards HbA1C (each visit) HbA1C (each Celiac screening test screening Celiac visit (annual) Blood , Injection sites (each visit) (each Injection sites DM and onset of puberty) Foot exam (each visit after (each exam Foot (each visit) (each Blood pressure Self-management (annual) Self-management Psychologist / Social worker / Social worker Psychologist Ht(cm) / Wt(Kg) (each visit) (each / Wt(Kg) Ht(cm) year DM and onset of puberty) year Severe hypo / DKA (each visit) / DKA (each hypo Severe (annually, after 5 (annually, Microalbuminuria Thyroid tests (onset, every____ years) every____ (onset, tests Thyroid Dilated eye exam (annually, after 5 year after 5 year (annually, exam eye Dilated Name ______Date Diagnosed ______Age at Diagnosis ______Diagnosed ______Age Date

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 22 INSULIN PRODUCTS

RAPID-ACTING INSULIN • Humalog®(lispro) Rapid-acting insulin–Humalog®(lispro); Novolog® (aspart); Apidra® (glulisine) • Novolog® (aspart) Basal long-acting insulin–Lantus® (glargine); Basaglar KwikPen® • Apidra® (glulisine) Basal long-acting insulin–Levemir® (determir) • Appearance: clear • Onset: 5 to 15 minutes • Peak: 1 hour

• Duration: 3 to 5 hours Insulin Eect Relative

• Take immediately before meal 0 2 4 6 8 10 12 14 16 18 20 22 Time (Hours)

BASAL LONG-ACTING INSULIN Rapid-acting insulin–Humalog®(lispro); Novolog® (aspart); Apidra® (glulisine) Basal long-acting insulin–Lantus® (glargine); Basaglar KwikPen® • Lantus® (glargine) Basal long-acting insulin–Levemir® (determir) • Basaglar KwikPen® (Only available in pen form) • Appearance: clear • Onset: 1 to 2 hours Relative Insulin Eect Relative • Peak: none • Duration: 22+ hours 0 2 4 6 8 10 12 14 16 18 20 22 • Do NOT mix with other Time (Hours)

Rapid-acting insulin–Humalog®(lispro); Novolog® (aspart); Apidra® (glulisine) BASAL LONG-ACTING INSULIN Basal long-acting insulin–Lantus® (glargine); Basaglar KwikPen® • Levemir® (determir) Basal long-acting insulin–Levemir® (determir) • Appearance: clear • Onset: 3 to 4 hours • Peak: blunted (6 to 8 hours)

• Duration: 22-24 hours Insulin Eect Relative

• Do NOT mix with other insulins 0 2 4 6 8 10 12 14 16 18 20 22 Time (Hours)

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 23 MORE ABOUT INSULIN

BUYING AND STORING INSULIN: APPROXIMATE ACTION TIMES OF INSULIN • You will need a prescription for your insulin. At LASTS TYPE OF STARTS MOST the pharmacy, ask for: IN THE INSULIN ACTING ACTIVE  Humalog or NovoLog BODY  Lantus or Basaglar KwikPen Rapid acting (clear) , BD Ultrafine ______ Humalog 5–15 1 hour 3–5 hours • Unopened vials of insulin should be refrigerated (lispro) minutes (36-46 degrees). They may be kept there until the Novolog 5–15 1 hour 3–5 hours expiration date on the vial. (aspart) minutes • Do not freeze. Apidra 5–15 1 hour 3–5 hours • Open vials may be stored at room temperature (glulisine) minutes (below 86 degrees) or in the refrigerator for one month only. Very long acting (clear) • Date vials once open. Lantus 22+ 1–2 hours None • Do not use insulin that has clumps or crystals on (glargine) hours the bottle. Basaglar 22+ 1–2 hours None KwikPen hours Detemir 22–24 3–4 hours 6–8 hours (levemir) hours

HOME NEEDLE DESTRUCTION DEVICES These destruction devices allow you to destroy needles at home by burning, melting or cutting off the needle, making them safe to throw in the garbage. Prices for devices vary by manufacturer. For more information, visit www.fda.gov/diabetes/lancing.html#5

If these options are not feasible, you may follow these instructions for disposal: • Place sharps in a hard or metal container with a screw-on tightly secured lid. Thick plastic bottles such as detergent bottles or bleach bottles work well. • Do not fill the container more than ¾ full to avoid getting a needle stick. • Before discarding the container, reinforce the lid with heavy-duty tape. • Do not put sharps in a glass container or in any container that you plan to recycle. • Keep all containers with sharps out of the reach of children or pets until you dispose of it in your regular trash.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 24 BASAL BOLUS REGIMEN

Humalog peak Humalog peak Humalog peak

Lantus (24 hours)

MEAL: B L D BT

TIME: LANTUS, HUMALOG ROUTINE *4 – 6 INJECTIONS PER DAY

BASAL INSULIN HIGH BLOOD SUGAR CORRECTION Basal means “base or background.” Basal insulin This is a dose of insulin used to lower high blood is used to control the sugar made by your liver sugar before a meal. This is in addition to the during the day and night. Basal insulin is needed mealtime carbohydrate bolus. throughout the day, even when you are not eating. Example: High blood sugar correction — 1 unit for every 50 above 150, written as: BOLUS MEALTIME INSULIN • 151-200 1 unit Bolus means “burst.” Bolus insulin is often called mealtime insulin and/or insulin used to correct • 201-250 2 units high blood sugars. Examples of bolus insulin’s • 251-300 3 units are Humalog (lispro), Novolog (aspart) and • 301-350 4 units Apidra (glulisine). MEALTIME DOSE CALCULATION At mealtimes, the goal is to “match” your bolus To calculate the dose, divide the grams of insulin to the amount of carbohydrate food you carbohydrate by the ratio, then add correction are eating. This should help to keep your blood if needed. Example: If eating 45 grams of sugar in target range 2-4 hours after eating. We carbohydrate and your blood sugar is 200, the use an “insulin to carb ratio” to calculate the dose dose would be: 45 divided by 15 = 3 units for of insulin. the carbohydrate divided by 1 unit for correction = Example: Insulin to Carb Ratio — 1 unit for every 15 4 units. grams of carbohydrate *Humalog/Novolog should be given just before a meal. If blood sugar is too low before a meal, treat as a low blood sugar first, then take your insulin and eat your meal.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 25 DIRECTIONS FOR DRAWING A SINGLE DOSE OF INSULIN

PREPARING YOUR INSULIN : 5. Turn bottle upside down and pull back on the 1. Gather insulin supplies and wash your hands. plunger to draw insulin into your syringe. 2. Wipe the top of the insulin bottle with alcohol. 3. Draw air into syringe equal to the dose of insulin that will be drawn out of the bottle.

4. Put needle through rubber stopper and push 6. Flush in and out three times to remove air air into bottle. bubbles, and then draw your insulin dose into the syringe. 7. Pull needle out of bottle.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 26 DIRECTIONS FOR GIVING INSULIN

SELECTING A SITE FOR YOUR SHOT: GIVING AN INSULIN SHOT: 1. Insulin can be injected into the abdomen, 3. Make sure injection area is clean. back of the arms, thighs and buttocks. 2. To prevent the buildup of scar tissue, make sure to rotate to a different site for each insulin injection.

4. Pinch skin. Insert needle straight into the skin and push plunger all the way down to inject the insulin.

5. Let go of the pinch and count slowly to 5. Pull the needle out. (Observe and document any leakback.)

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 27 LOW BLOOD SUGAR (HYPOGLYCEMIA)

FOLLOWCAUSES OF UP LOW APPOINTMENTS BLOOD SUGAR Having low blood sugar or hypoglycemia means • Not eating enough carbohydrates there is not enough sugar (glucose) in your bloodstream. Any blood sugar reading below • Delayed or skipped meal ___ mg/dL is low. Low blood sugar can come • More exercise than usual on very quickly and needs to be treated quickly. • Too much insulin Low blood sugar that is not treated may lead to a seizure or .

HOW YOU MAY FEEL WITH LOW BLOOD SUGAR

shaky hungry irritable

tired/weak crying sweaty

FEELING: SHOWING: • Nervous/anxious • Sweaty • Pounding • Fast heartbeat • Upset stomach/butterflies • Pale skin • Change in vision • Confusion/slow speech • Tingling/numbness of mouth • Glassy eyes • Trouble thinking • Mood change (irritable, sensitive, crying) • Weak • Sleepy • Shaky • Seizure or unconsciousness • Hungry

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 28 LOW BLOOD SUGAR (CONTINUED)

TREATMENT FOR LOW BLOOD SUGAR: (Hypoglycemia: Blood sugar below _____)

WHAT TO DO: STEP 1: If able, test blood sugar first. If not able to test, treat per below: STEP 2: If your blood sugar is BELOW ______, take one of the following* based on your weight:

If your weight is… up to 50 lbs 51 lbs or more Orange/apple 1/3 cup-½ cup (3-4 ounces) ¾ - 1 cup (6-8 ounces) Grape juice ¼ cup - 1/3-cup ½ - ¾ cup Soda pop (not ) 1/3 cup – ½ cup ¾ - 1 cup or table sugar 1 tablespoon 1 ½ tablespoons Round glucose tabs 2-4 tablets 4-5 tablets Smarties 2-3 rolls 3-4 rolls

STEP 3: Retest your blood sugar in 15 minutes. If still below ______, repeat same treatment.

STEP 4: When blood sugar is above ______, if it is more than one hour before the next planned meal or snack, eat a snack that contains ______carbohydrate and protein such as:

______Graham cracker squares divided by peanut butter ______Milk ______Squeezable yogurt

*Chocolate, bars and cookies should not be used to treat low blood sugar. These items contain fat, which slows the digestion of the sugar and does not raise the blood sugar as quickly.

FOR LOW BG TREATMENT: FOR FOLLOW-UP SNACK IDEAS: • Boxed juice • Graham crackers and peanut butter • Glucose tabs • Milk • Smarties – type • Squeezable yogurt

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 29 GLUCAGON INJECTION

WHAT IS GLUCAGON? Glucagon is an injected hormone that is administered if your child’s blood sugar is very low.

WHEN WOULD I GIVE GLUCAGON? You should give Glucagon if your child’s blood sugar is low enough that they become unconscious, are having a seizure, or are unable to take anything by mouth.

HOWFOLLOW DO UPI MIX APPOINTMENTS AND ADMINISTER GLUCAGON?

1. Remove the gray cap from the vial. 2. Inject all the water from the syringe into the vial. 3. Roll the vial for a few seconds until the pill is dissolved. 4. Using the same syringe, for children above 44 lbs take out 1 mg of the medication. For children below 44 lbs take out ½ mg of medication. 5. Give the injection into the top of the thigh muscle. 6. Turn your child onto his/her side in case of vomiting. 7. Call 911. 8. Call your diabetes doctor at 423-431-4946 once your child is awake or before the next scheduled insulin dose.

HOW DO YOU STORE GLUCAGON? Store your Glucagon kit at room temperature (68–77 degrees Fahrenheit). Do not mix the Glucagon until needed – the solution is only stable for 24 hours once mixed.

REMEMBER TO KEEP A CURRENT GLUCAGON KIT (NOT EXPIRED) AND REPLACE KIT IMMEDIATELY IF EVER USED.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 30 DIABETES IDENTIFICATION

N-Style ID Medicharms www.n-styleid.com www.missbrooke.com 1-877-445-0030 1-888-417-7591

American Medical Identifications Laurens Hope www.americanmedical-id.com www.laurenshope.com 1-800-363-5985 1-800-360-8680

MedicAlert® Fiddledee ID’s www..org www.fiddledeeids.com 1-800-432-5378 1-972-539-5346

Fifty50 Pharmacy Lifetag www.fifty50.com www.tag.com 1-800-746-7505 1-888-LIFETAG

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 31 HIGH BLOOD SUGAR (HYPERGLYCEMIA)

FOLLOWCAUSES OF UP HIGH APPOINTMENTS BLOOD SUGAR Having high blood sugar or hyperglycemia • Not taking enough insulin means there is too much sugar (glucose) in your bloodstream. Having high blood sugar can make • Eating too much carbohydrate you feel bad, or sometimes you can have high blood • Stress sugar and feel fine. High blood sugar over the years • Illness can lead to problems with your eyes, kidneys, feet • and other parts of your body. • Less exercise • that raise blood sugar

HOW YOU MAY FEEL WITH HIGH BLOOD SUGAR

very thirsty hungry

blurry vision moody fatigued weight loss

WHAT IT’S LIKE TO HAVE HIGH BLOOD SUGAR: WHY THIS HAPPENS

Without enough insulin the amount of sugar in the Frequent urination blood increases. The kidneys make more urine to get rid of extra sugar. Thirsty, dehydrated, dry mouth Water is lost because of frequent urination. Hungry Sugar cannot be used as fuel. The body breaks down stored sugar, muscle and fat to Weight loss be used for fuel. The of the eye swells. This will slowly get better as Blurry vision the blood sugar level decreases.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 32 KETONES/DKA (DIABETIC KETOACIDOSIS)

WHAT ARE KETONES AND KETOACIDOSIS? WHAT TO DO IF YOU HAVE KETONES: • Insulin causes sugar to move out of the blood IF KETONES ARE TRACE TO SMALL: and into the body’s cell so that it can be used • Drink calorie-free fluids (water, diet soda, etc). for energy. This will prevent dehydration. • When there is not enough insulin, the body • Take extra rapid-acting insulin as directed by burns fat for energy instead of sugar. your provider. • When fats are used, ketones — an acid — • Keep checking blood sugar until in your are produced. target range. • When the blood is acidic, the heart, brain and • Keep checking ketones until negative. other organs don’t work like they should. • Ketoacidosis can lead to coma and/or . IF KETONES ARE MODERATE TO LARGE: Seek help immediately. • Call your health care provider – this level of ketones could be dangerous. WHEN SHOULD I TEST FOR KETONES? • Take rapid acting insulin as directed by your • When your blood sugar is above 300 mg/dL health care provider. twice in a row • Drink calorie-free fluids. • When you are sick or have an infection (check • Keep checking blood sugar until in your ketones every 2-4 hours), or with each diaper target range. change for babies and toddlers • Keep checking ketones until negative. • If you vomit at any time (even if you don’t feel ill) — symptoms of ketoacidosis may seem like *Do not exercise until ketones are gone. Exercise can the flu make both blood sugars and ketones increase.

HOW DO I FIND OUT IF I HAVE KETONES? • Dip strip into fresh urine, or through urine stream. • Make sure the entire pad is covered with urine. • Tap off excess urine. • In exactly 15 seconds, compare the color on the strip to the guide.

FOLLOWSYMPTOMS UP OFAPPOINTMENTS KETOACIDOSIS

• Increased thirst/dry mouth • Increased urination • Blurred vision FOLLOWKETONES UP CAN APPOINTMENTS HAPPEN FROM: • Rapid/shallow breathing • Fruity/musty odor to breath • Missed insulin • Moodiness • Illness/infection/surgery • Nausea/vomiting • (not eating) • Body aches/weakness • Stress • Abdominal /stomach cramps • Newly diagnosed diabetes • Dizziness • Using old insulin

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 33 URINE KETONES

WHAT DO I DO IF MY CHILD HAS TRACE OR WHAT IF MY CHILD HAS VOMITED MORE SMALL URINE KETONES WHILE ON THE THAN ONCE? ? This obviously can occur with an illness such as Ketones are a normal by-product of fat breakdown the stomach flu, but you should check in with and can be detected in everyone’s blood or urine your diabetes doctor to see if there need to be during times when they have not eaten for several any changes in the plan. Make sure you have an hours or if they are sick. Small or trace ketones updated blood sugar and urine ketone check so are not an emergency, but for someone with Type they can help guide you with an insulin plan. 1 diabetes, they can be a sign that there is not enough insulin in the body and thus need close WHAT IF MY CHILD’S BLOOD SUGAR IS LOW monitoring. Oftentimes small or trace ketones clear AND I AM HAVING A HARD TIME BRINGING with a little extra fluid and standard doses IT UP? of insulin. Suspend the pump. This would be a good time to check in with your diabetes doctor and let the staff know this is an urgent message. Make sure your FOLLOWWHAT TO UP DO APPOINTMENTS glucagon kit is close by and get an updated blood sugar and urine ketone check. Continue with the • Troubleshoot the pump site (look for air low blood sugar protocol until your doctor can call or bubbles in the tubing and wetness or you back. a kinked catheter at the infusion site). Change the infusion set if you find anything WHAT IF MY CHILD’S KETONES DO NOT wrong. GO AWAY AFTER TWO CONSECUTIVE TREATMENTS? • Cover any carbohydrates with the usual If the urine ketones are still trace or small, give a carbohydrate ratio and give the usual correction dose by syringe or pen and then change correction factor through the pump. the infusion site with a new catheter set. Continue • Encourage your child to drink additional with hydration and consistent dosing every four carbohydrate-free fluids (good old- hours as described above. fashioned water is great for clearing small and trace ketones). If the urine ketones are now moderate or large and • Re-check blood sugar and ketones every your child still looks well, transition to the moderate four hours and follow the plan above until to large ketone protocol for pumps. they clear. If the ketones are now moderate or large and your child does not look well, call your diabetes doctor so they can help with the insulin plan or direct WHAT IF MY CHILD ISN’T EATING? you to the emergency room. Make sure you have • Give the usual correction dose at meal times an updated blood glucose and ketone check so (at least every four hours) and encourage they can help guide you. If you can’t get through carbohydrate-free fluids if the blood sugar is to your doctor within 30 minutes, go to your local greater than 200 or carbohydrate – containing emergency room. fluids if the blood sugar is less than 200. If your child has vomited, start with small quantities and increase throughout the day as tolerated. TO CONTACT YOUR DIABETES DOCTOR, • Recheck blood sugar and ketones every four CALL 423-431-4946 AND SAY THAT IT IS hours and follow the above plan until they clear. AN URGENT MESSAGE.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 34 URINE KETONES (CONTINUED)

WHAT DO I DO IF MY CHILD HAS MODERATE • Repeat the blood sugar and urine ketone check OR LARGE URINE KETONES WHILE ON THE in 2-3 hours. If your child’s ketones are still large INSULIN PUMP? or moderate, repeat the ketone correction. The presence of moderate or large ketones in your child’s urine may require a call to your doctor WHAT IF MY CHILD ISN’T EATING? to help guide you through the insulin dosing. • Change the infusion set as directed above and Please call us if you feel uncomfortable with the keep activity low. management of moderate or large ketones. Below • If your child’s blood sugar is less than 100, call are helpful steps that you can take at home to your diabetes doctor before giving the ketone clear moderate or large ketones when your child correction. looks well overall. If your child is breathing fast • If your child’s blood sugar is greater than 100, and or vomiting with large or moderate ketones, give the ketone correction by syringe or pen and please call us. We should be involved with the encourage carbohydrate-free fluids if the blood management of you insulin plan and will help sugar is greater than 200 or carbohydrates you decide whether your child needs to go to the containing fluids if the blood sugar is less than emergency room. 200. WHAT TO DO IF YOUR CHILD LOOKS WELL AND • Repeat the blood sugar and urine ketone check HAS MODERATE OR LARGE KETONES: in 2-3 hours. If your child’s ketones are still large or moderate, repeat the ketone correction by • Keep your child out of school and activities syringe or pen. and encourage them to drink additional carbohydrate-free fluids. WHAT IF MY CHILD’S KETONES ARE STILL • Change the infusion set and let the basal MODERATE OR LARGE AFTER TWO KETONE settings run at their programmed rate; all other CORRECTION DOSES? doses need to be given by syringe or pen until Call your diabetes doctor. Make sure you have an the ketones clear. updated blood sugar and urine ketone check so • Take your child’s current weight in pounds and they can help guide you with an insulin plan. divide it by 22. The result will give you the insulin dose of Humalog or Novolog that you will give. WHAT IF MY CHILD HAS STARTED TO VOMIT, This is called a ketone correction and you may BREATHE RAPIDLY OR LOOKS WORSE DESPITE need to give this dose more than once. A KETONE CORRECTION? Call your diabetes doctor. Make sure you have an Ketone correction = (child’s weight in pounds) updated blood sugar and urine ketone check so divided by (22) they can help guide you with an insulin plan and Example: (80 lbs.) divided by (22) = 3.6 direct you to the emergency room. If you can’t get of Humalog or Novolog through to your doctor within 30 minutes, go to your local emergency room. • Round the dose up to the nearest half if your child’s blood sugar is greater than 200 (so for TO CONTACT YOUR DIABETES DOCTOR, this example, 4 units) and round down if your CALL 423-431-4946, AND SAY THAT IT IS child’s blood sugar is less than 200 (3.5 units), AN URGENT MESSAGE. and give this by syringe or pen. • If your child wants to eat, you can add the usual carbohydrate coverage with the ketone correction. The ketone correction takes the place of a high blood sugar correction. Do not give both the ketone and high blood sugar correction.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 35 PEDIATRIC SICK DAY GUIDELINES

1. Continue to give insulin, even if your child cannot eat. Call your doctor to determine if WHEN TO CALL YOUR DIABETES any dosing changes are needed. FOLLOWCARE PROVIDERS UP APPOINTMENTS ON SICK DAYS: 2. Check and record blood sugars every 2-4 hours, depending on the severity of the illness. • If your child cannot keep down food or 3. Check and record ketones every time child fluids for 2-3 hours because of vomiting urinates or with each diaper change for or diarrhea. toddlers. • If urine ketones are moderate or large or 4. If blood sugar is below 200 drink sugary blood ketones are more than 1.0 mmol/L. liquids (clear juice, regular soda, Gatorade, • If your child has ketones, difficulty Pedialyte, popsicles). breathing, appears drowsy or is difficult 5. If blood sugar is above 200 drink sugar-free to arouse. fluids, up to one ounce per year of age per • If your child is having blood sugar problems. hour. 6. If able to keep food down but unable to follow usual meal plan, eat or drink the carbohydrate portion of meal plan as liquid or soft food in frequent, small feedings. PLEASE HAVE BLOOD SUGAR AND KETONE RECORDS READY WHEN YOU CALL. ASK FOR CARBOHYDRATE CONTENT OF LIQUIDS PEDIATRIC ENDOCRINOLOGIST ON-CALL. AND SOFT FOODS

GRAMS OF FOOD ITEM AMOUNT CARBOHYDRATE Regular soft drink ½ cup 15 Orange or ½ cup 15 apple juice Grape juice 1/3 cup 15 Milk 1 cup 15 Gatorade 1 cup 15 Ice cream, vanilla ½ cup 15 Cereal, cooked ½ cup 15 Gelatin, regular ½ cup 15 Popsicle 1 cup 15 Soup 1 cup 15 Saltines 6 each 15 Pudding, regular ½ cup 30 Pudding, sugar free ½ cup 15

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 36 SICK DAY GUIDELINES FOR OLDER CHILDREN

It is important to have a plan for sick days. It is likely that your parents helped with or managed your sick day for you when you were younger. You may have to talk to them or think back on how that went, and then make a plan to manage your sick days on your own.

SICKFOLLOW DAY UP GUIDELINES APPOINTMENTS

• If you are vomiting, eat bland food and administer insulin after you know it will stay down. • Have liquids with electrolytes nearby to help you stay hydrated. Many people can be dehydrated, which may be the cause of the symptoms. • Check your blood glucose every few hours to watch for lows. • If you absolutely cannot keep food down, consider using glucagon to help elevate your glucose levels. • Call you doctor to inform them of your symptoms and ask for advice. • Remember to test for ketones as they can develop quicker during a period of illness.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 37 WHAT ARE CARBOHYDRATES?

Carbohydrates, or carbs, are one of three components (called macronutrients) in the foods you eat that provides fuel. The other two macronutrients are protein and fat. Your body needs all three to grow and function at its best.

Many foods are a combination of carbs, protein and fat. Blood sugar, or blood glucose, is made from the carbs we eat and is used by the cells as a source of energy. We focus on carbs with diabetes because they directly affect our blood sugar levels.

Many foods with carbs are healthy, providing fuel for you to learn and play. The foods you eat do not have to change. You will just need to learn to count the amount of carbs that these foods contain to match your insulin. Carb content is counted in units called “grams”.

FOODSFOLLOW WITH UP APPOINTMENTS CARBOHYDRATE FOODSFOLLOW WITH UP APPOINTMENTS NO/LOW CARBOHYDRATE

The foods you will need to count fall into Some foods do not contain carbs, or have such these groups. a small amount we don’t typically count them. • Breads and cereals • Non-starchy vegetables • Fruit and juice • Cheese, nuts and seeds • Dairy and dairy alternatives • Meat, poultry, fish and eggs • Rice, grains and beans • Fats • Starchy vegetables • Sweets and snacks

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 38 REFERENCES

BOOKS & BOOKLETS WEBSITES • ADA Complete Guide to Carb Counting, 2nd • American Diabetes Association, Edition, Hope S. Warshaw www.diabetes.org • The CalorieKing: Calorie, Fat& Carbohydrate • American Diabetes Association MyFoodTracker, Counter, Allan Borushek http://tracker.diabetes.org/myfoodadvisor.html • The Ultimate Guide to Accurate Carb Counting, • Calorie King, www.calorieking.com Gary Scheiner • Ellen Satter’s Division of Responsibility, www.ellynsatter.com MOBILE PHONE APPLICATIONS • Harold Schnitzer Diabetes Center, • Carb Counting with Lenny www.ohsu.edu/xd/health/services/diabetes • My Net Diary: Diabetes Tracker • Lilly Diabetes, www.lillydiabetes.com • The Calorie King • Glu, http://myglu.org/

FEEDING YOUR FAMILY • Recipes (nutrition information provided for all recipes) • Food Hero, https://www.foodhero.org/ • American Diabetes Association, http://www.diabetes.org/mfa-recipes/recipes/

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 39 READING THE FOOD LABEL

On the Nutrition Facts label, pay attention to the serving size and carbohydrate (in grams) to help you count your carbohydrates.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 40 A HANDY GUIDE TO PORTION SIZES

You can also estimate the grams of carbohydrate in your foods by knowing the portion size.

Your palm, not including fingers and thumb, A fist is about1 cup. is about 3 ounces.

Your thumb is about 1 tablespoon. Your thumb tip is about 1 teaspoon.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 41 WHAT IF I DON’T HAVE A NUTRITION LABEL?

There may be times when nutrition facts are not available. It is important to know how to estimate carbohydrates in different foods so you can dose your insulin accordingly.

You might hear the term “carbohydrate exchange,” “serving” or “choice” used. For your reference, 1 Exchange/ Choice = 15 grams of carbs. As your insulin dose is dependent on the number of carbohydrates consumed, it is typically better to count your carbohydrates in grams in order to be more precise in your insulin dosing.

Combination and restaurant foods can be estimated although portion sizes and amount of carbohydrate per serving varies.

COMBINATIONFOLLOW UP APPOINTMENTS FOODS RESTAURANT FOODS

Casserole, noodle/bean, 1 cup...... 30g Breakfast sandwich...... 30g Lasagna, 3”x4”...... 30g Hamburger, regular size...... 30g Mac and cheese, 1 cup...... 45g Chicken nuggets, 6 pieces...... 15g Fish sticks, breaded, 3 pieces...... 15g Chicken sandwich, breaded...... 45g Coleslaw, ½ cup...... 15g Burrito, beef and beans, 8 oz...... 45g Pasta salad, 1cup...... 45g Pizza, thin crust,1/8 medium...... 15g Potato salad, ½ cup...... 30g Pizza, thick crust, 1/8 medium...... 30g Soup (cream, noodle, Sub sandwich, 6”...... 45g rice, vegetable), 1 cup...... 15g French fries, each...... 1-2g Ramen, 1 package...... 50g

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 42 THESE PORTION SIZES GENERALLY HAVE ABOUT 15 GRAMS OF CARBOHYDRATE.

BREADSFOLLOW & UP CEREALS APPOINTMENTS STARCHY VEGETABLES

Sandwich bread ...... 1 slice Corn...... 1/2 cup Bagel (large)...... 1/4 each Peas...... 1/2 cup Burger/hot bun ...... 1/2 each Potato...... 1/2 cup English muffin ...... 1/2 each Yam/sweet potato...... 1/2 cup Dinner roll (small)...... 1 each Squash...... 1 cup Pita bread, 6”...... 1/2 each Corn bread, 2x2”...... 1 each Biscuit, 2”...... 1 each Tortilla, 6” corn or flour...... 1 each SWEETS & SNACKS Pancake, 4”...... 1 each Toaster waffle ...... 1 each Animal crackers...... 8 each Croutons...... 1/2 cup Graham crackers...... 2 1/2” – 3 each Cereal, unsweetened...... 1/2 cup Popcorn...... 3 cups Oatmeal...... 1/2 cup Saltine crackers...... 6 each Granola...... 1/2 cup Teddy Grahams...... 15 each Brownie, 2” square...... 1 each Cake, frosted 2” square...... 1/2 each Pudding...... 1/2 cup GRAINSFOLLOW & UP BEANS APPOINTMENTS Pie, single crust...... 1/16th pie Syrup...... 1 Tbsp. Rice, cooked...... 1/3 cup Honey...... 1 Tbsp Pasta, cooked...... 1/3 cup Jelly/jam...... 1 Tbsp Beans, cooked...... 1/2 cup Baked beans...... 1/3 cup Refried beans...... 1/2 cup DAIRY & DAIRY ALTERNATIVES

These have about 12 grams of carbs FRUITFOLLOW & JUICE UP APPOINTMENTS Milk, skim...... 1 cup Milk, 1%...... 1 cup Apple (small)...... 1 each Milk,2%...... 1 cup Banana (small- 5 inches)...... 1 each Milk, whole...... 1 cup Blueberries...... 3/4 cup Chocolate milk...... 1/2 cup Strawberries, whole...... 1 1/4 cup Rice milk...... 1/2 cup Melon...... 1 cup Soymilk, sweetened...... 1 cup Grapes...... 15 grapes Yogurt, plain...... 1 cup Peach (small)...... 1 each Yogurt, fruited...... 1/2 cup Pear (small)...... 1 each Ice cream...... 1/2 cup Orange (small)...... 1 each Watermelon...... 1 1/4 cup Dried fruit...... 2 Tbsp Fruit juice...... 1/2 cup

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 43 FAVORITE FOODS REFERENCE GUIDE

You don’t need to know the carbohydrates in all foods, just the ones you eat. It might be helpful to make a list of the carbohydrates in some of the foods you eat most often. This will be a big help for when you go home and need a quick reference guide.

BREADS, CEREALS, GRAINS & BEANS

GRAMS IN FOOD/BEVERAGE GRAMS/SERVING HOW MUCH I EAT MY PORTION

FRUIT & JUICE

GRAMS IN FOOD/BEVERAGE GRAMS/SERVING HOW MUCH I EAT MY PORTION

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 44 FAVORITE FOODS REFERENCE GUIDE

STARCHY VEGETABLES

GRAMS IN FOOD/BEVERAGE GRAMS/SERVING HOW MUCH I EAT MY PORTION

DAIRY & DAIRY ALTERNATIVE

GRAMS IN FOOD/BEVERAGE GRAMS/SERVING HOW MUCH I EAT MY PORTION

SWEETS & SNACKS

GRAMS IN FOOD/BEVERAGE GRAMS/SERVING HOW MUCH I EAT MY PORTION

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 45 LET’S PLAN SOME MEALS!

BASED ON THE INSULIN TO CARBOHYDRATE RATIO:

______unit of insulin (Humalog/Novolog) for every______grams of carbohydrate

KEEP IN MIND: • Wait 2–3 hours between Humalog/Novolog doses • Wait 2 hours between eating snacks with carbs and checking next routine blood sugar

BREAKFAST BREAKFAST: Time: Grams of carbohydrates: Units of Insulin:

MORNING SNACK MORNING SNACK: Time: Grams of carbohydrates: Units of Insulin:

LUNCH LUNCH: Time: Grams of carbohydrates: Units of Insulin:

AFTERNOON SNACK AFTERNOON SNACK: Time: Grams of carbohydrates: Units of Insulin:

DINNER DINNER: Time: Grams of carbohydrates: Units of Insulin:

BEDTIME SNACK BEDTIME SNACK: Time: Grams of carbohydrates: Units of Insulin:

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 46 LET’S PLAN SOME MEALS!

BASED ON THE INSULIN TO CARBOHYDRATE RATIO:

______unit of insulin (Humalog/Novolog) for every______grams of carbohydrate

KEEP IN MIND: • Wait 2–3 hours between Humalog/Novolog doses • Wait 2 hours between eating snacks with carbs and checking next routine blood sugar

BREAKFAST BREAKFAST: Time: Grams of carbohydrates: Units of Insulin:

MORNING SNACK MORNING SNACK: Time: Grams of carbohydrates: Units of Insulin:

LUNCH LUNCH: Time: Grams of carbohydrates: Units of Insulin:

AFTERNOON SNACK AFTERNOON SNACK: Time: Grams of carbohydrates: Units of Insulin:

DINNER DINNER: Time: Grams of carbohydrates: Units of Insulin:

BEDTIME SNACK BEDTIME SNACK: Time: Grams of carbohydrates: Units of Insulin:

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 47 CARB COUNTING FOR RECIPES

RECIPE FOR: CHOCOLATE CHIP COOKIES

GRAMS OF CARBS INGREDIENTS

2 ¼ cup flour

1 teaspoon baking soda

1 teaspoon salt

2 sticks butter

¾ cup granulated sugar

¾ cup brown sugar

1 teaspoon vanilla

2 large eggs

2 cups chocolate chips

TOTAL GRAMS OF CARB PER RECIPE

One serving: 1 cookie

Total number of servings per recipe: 24 servings

_____ grams of carb ÷ _____ servings= ______grams of carb per serving

*carb= carbohydrates

Key: 1 cup flour= 95 g, 1 cup sugar= 200 g, 1 cup brown sugar= 214 g, 1 cup choc chips= 160 g

NOTE: You can save your recipes using the American Diabetes Association MyFoodTracker. http://tracker.diabetes.org/myfoodadvisor.html

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 48 CARB COUNTING FOR RECIPES

RECIPE FOR: ______

GRAMS OF CARBS INGREDIENTS

TOTAL GRAMS OF CARB PER RECIPE

One serving: ______

Total number of servings per recipe: ______

_____ grams of carb ÷ _____ servings= ______grams of carb per serving

*carb= carbohydrates

NOTE: You can save your recipes using the American Diabetes Association MyFoodTracker. http://tracker.diabetes.org/myfoodadvisor.html

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 49 I’M HUNGRY… BUT IT’S NOT MEAL OR SNACK TIME!

Having 2-3 of these snacks every day, in addition to meals and snacks, is fine. If consumed much more often, talk to your dietitian.

WHATFOLLOW ARE UP MY APPOINTMENTS OPTIONS? READ LABELS: Hard-boiled egg Sugar-free doesn’t mean carb-free. Beef jerky Cheese To prevent choking, do not give babies or young Deli meats children hot , chunks of meat or cheese, grapes, Dill pickle raw vegetables or fruit chunks, unless they’re cut up Celery and cream cheese into small pieces. Avoid other hard foods, such as Olives seeds, nuts, popcorn and hard candy that can’t be Avocado changed to make them safe options. Other high- Nuts (1/4 cup) risk foods include peanut butter, marshmallows and Peanut butter (1-2 Tbsp.) chewing gum. Sugar-free popsicle Sugar-free Jell-0 Carrots and ranch dip Salad greens with vinaigrette Mozzarella and tomato slices Sliced bell peppers Broccoli and cauliflower Sliced cucumber Edamame in pods Tuna and mayo Egg and cheese mini-omelet Miso soup Sunflower seeds in shells Crust-less veggie quiche Salsa and raw veggies

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 50 SNACK IDEAS

IDEAS FOR 10-GRAM CARB SNACKS WITH PROTEIN AND FAT

• 1 cup canned peaches (in light syrup) with • 6 dried apricot halves and 2 tablespoons cottage cheese of nuts • 5 Ritz-type crackers and cheese slices • 1 small banana and cottage cheese • 1 cup mandarin oranges and sugar- free Jell-O, • 2 graham cracker squares with peanut butter have with slices of cheese. on top • 1 rice cake topped with spaghetti sauce and grated • 1 rice cake with cream cheese and turkey on top cheese • 3 cup edamame in pods • 1 cup milk and 3 animal crackers • 1 cup blueberries and 2 tablespoons cool whip • 2 cups popcorn and a string cheese • 1 cup sugar-free pudding made with milk • 3 cup milk • 2 sugar free popsicles and 2 tablespoons • 1 cup dry cheerios and ¼ cup nuts of nuts • 10 grapes with a string cheese (try the • Sugar-free hot chocolate and 1 string cheese grapes frozen!) • 4 saltines topped with tuna salad • 1 cup yogurt and a few baby carrots • 1 large sliced apple and peanut butter • 1 cup miso soup and 1 cup oyster crackers • 10 baked tortilla chips, melted grated cheese on • Beef jerky and 1 cup strawberries or top with 1 cup salsa 1 cup blueberries

IDEAS FOR 15-GRAM CARB SNACKS WITH PROTEIN AND FAT

• 1 cup canned peaches (in light syrup) with • 8 dried apricot halves and 2 tablespoons cottage cheese of nuts • 6 Ritz-type crackers & cheese slices • Fruit cup and cottage cheese • 1 cup mandarin oranges and sugar-free Jell-O, • 3 graham cracker squares with peanut butter have with 1 cup milk on top • 1 whole wheat English muffin topped with • 6-inch flour tortilla rolled up with cream cheese spaghetti sauce and grated cheese and turkey • 1 cup milk and 4 animal crackers • 1 cup light yogurt • 3 cups popcorn and string cheese • 1 meat and cheese sandwich • 1 piece wheat toast and peanut butter • 1 slice of thin crust pizza • 1 cup of milk or ½ cup chocolate milk • 1 1 cup blueberries and ¾ cup light yogurt • 1 cup cheerios and 1 cup milk • 1 cup sugar-free pudding made with milk • Quesadilla (one 6-inch tortilla folded over with • 1 sugar-free popsicle and 1 cup milk melted cheese inside) • Sugar-free hot chocolate and 2 vanilla wafers • 15 grapes with a string cheese (try • 6 saltines topped with tuna salad grapes frozen!) • 1 small sliced apple and peanut butter • Squeezable yogurt and a few baby carrots • 15 baked tortilla chips, melted grated cheese on • 1 cup miso soup and 3 saltines top with 1 cup salsa • Beef jerky and small piece fruit

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 51 SNACK IDEAS

IDEAS FOR 30-GRAM CARB SNACKS WITH PROTEIN AND FAT

• 1 cup canned peaches (in light syrup), 1 small • 8 dried apricot halves, 2 tablespoons nuts and banana with cottage cheese 1 cup light yogurt • 6 Ritz-type crackers and cheese slices with • Fruit cup, cottage cheese, and 4 ounces calcium 15 grapes fortified orange juice • 3 cup mandarin oranges and sugar-free Jell-O, • 3 graham cracker squares with peanut butter have with 1 cup milk on top and 1 cup milk • 1 whole wheat English muffin topped with • 6-inch flour tortilla rolled up with cream cheese spaghetti sauce and grated cheese and turkey, have with a small orange • 1 cup milk and 8 animal crackers • 1 cup light yogurt and 1 cup granola • 3 cups popcorn, a string cheese and 1 small fruit • 1 meat and cheese sandwich made with whole • 2 pieces wheat toast and peanut butter wheat bread • 1 peanut butter and jelly sandwich (made with • 1 slice of thin crust pizza and ¾ cup fresh one slice bread and 1 tablespoon regular jelly) cut pineapple • Peanut butter and jelly sandwich (made with two • 1 ¼ cup edamame in pods and 1 cup apple juice slices of bread and 1 tablespoon sugar-free jelly) • 3 cup blueberries and 1 cup light yogurt • 3 cup cheerios and 1 cup milk • 1 cup sugar-free pudding made with milk, with • Quesadilla (two 6-inch tortillas with melted 8 animal crackers cheese in the middle) • Sugar-free hot chocolate and 7 vanilla wafers • 15 grapes with a string cheese (Try the grapes • 6 saltines topped with tuna salad and 1 cup frozen!) and 3 graham crackers soy milk • Squeezable yogurt, 1 1 cup strawberries and a • 1 large sliced apple and peanut butter few baby carrots • 15 baked tortilla chips, melted grated cheese on • 1 cup miso soup and 6 saltines top with 1 cup salsa and 1 cup refried beans • Beef jerky, small piece fruit, 1 cup milk

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 52 BREAKFAST IDEAS

45-GRAM CARB BREAKFAST IDEAS

WAFFLES ON THE RUN TOASTED PB & B • 2 frozen toaster waffles • 2 pieces whole wheat bread, toasted • 1 tablespoon peanut butter • 1 tablespoon peanut butter Toast waffles and spread with peanut butter. • 1 small banana Enjoy with 1 cup milk. Spread peanut butter on one toast, top with BREAKFAST SCRAMBLE sliced banana. • ½ cup liquid egg whites BREAKFAST PARFAIT • ¼ cup diced tomatoes • 1 container light yogurt (check label for • 2 tablespoons onion ~ 15 g carb) Sauté onions, add tomatoes. Scramble egg whites • 2 tablespoons low-fat granola type cereal and combine with vegetables. Sprinkle with cheese. • 1 cup fresh fruit Enjoy with a small piece of fruit and 1 piece whole Layer ingredients in a mug or bowl and enjoy wheat toast. with 1 cup milk. AND “SUGAR” TOAST PIZZA IN THE MORNING • 2 pieces whole wheat toast • 1 whole wheat English muffin, sliced in half Spread a small amount of butter and sprinkle with • 1 tablespoon spaghetti sauce cinnamon and sweetener such as Truvia* or Splenda*. • 1 ounce part-skim mozzarella Enjoy with 1 cup milk. • 4 pineapple chunks BREAKFAST BURRITO • ½ cup milk • 1 scrambled egg Top muffin halves with sauce, grated cheese, add • 2 tablespoons salsa pineapple. Toast until melted and enjoy with milk. • 1 tablespoon sour cream Put above ingredients in 1 six inch flour tortilla. Enjoy with 1 cup milk and a small fruit.

OTHER BREAKFAST COMBO IDEAS: 1 cup plain shredded wheat 1 large banana 1 cup milk ½ cup cottage cheese 1 piece whole wheat toast 2 rice cakes, 4 inches across 1 container light yogurt (check label for one 1 cup plain oatmeal with ~15g carb) (or 1 packet oatmeal, check label for one 1 small apple with ~ 30g carb) Mix in fruit of choice: ¾ cup blueberries ½ large grapefruit or 1 small sliced banana 2 pieces whole wheat toast or 2 tablespoons dried fruit spread with 1 tablespoon almond butter (or peanut butter) Whole grain breakfast bar (check label for one with ~ 30g carb) ½ large whole wheat bagel 1 cup milk 2 tablespoons reduced-fat cream cheese 1 small orange

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 53 BREAKFAST IDEAS

60-GRAM CARB BREAKFAST IDEAS

WAFFLES ON THE RUN TOASTED PB & B • 2 frozen whole grain toaster waffles • 2 pieces whole wheat bread, toasted • 1 tablespoon peanut butter • 1 tablespoon peanut butter Toast waffles and spread with peanut butter. Enjoy with 1 • 1 small banana cup milk and a small fruit. Spread peanut butter on one toast, top with BREAKFAST SCRAMBLE sliced banana. Enjoy with 1 cup milk. • ½ cup liquid egg whites BREAKFAST PARFAIT • ¼ cup diced tomatoes • 1 container light yogurt (check label for • 2 tablespoons onion ~ 15 g carb) Sauté onions, add tomatoes. Scramble egg whites • 2 tablespoons low-fat granola type cereal and combine with vegetables. Sprinkle with cheese. Enjoy • ½ cup fresh fruit with a small piece of fruit, 1 cup milk and 1 piece whole Layer ingredients in a mug or bowl and enjoy wheat toast. with 1 cup milk and 3 graham cracker squares. CINNAMON AND “SUGAR” TOAST PIZZA IN THE MORNING • 2 pieces whole wheat toast • 1 whole wheat English muffin, sliced in half Spread a small amount of butter and sprinkle • 1 tablespoon spaghetti sauce with cinnamon and sweetener such as Truvia* • 1 ounce part-skim mozzarella or Splenda*. Enjoy with 1 cup milk and 1 small orange. • 4 pineapple chunks BREAKFAST BURRITO • 12 ounces milk • 1 scrambled egg Top muffin halves with sauce, grated cheese, add • 2 tablespoons salsa pineapple. Toast until melted and enjoy with milk. • 1 tablespoon sour cream Put above ingredients in 1 six inch flour tortilla. Enjoy with 1 cup milk and large banana.

OTHER BREAKFAST COMBO IDEAS: 1 cup plain shredded wheat 1 cup milk 1 large banana ¾ cup blueberries ½ cup cottage cheese 2 pieces whole wheat toast 2 rice cakes, 4 inches across 4 ounces (1 cup) calcium fortified orange juice 1 container light yogurt (check label for one with ~15g carb) 1 cup plain oatmeal (or 1 packet oatmeal, check 1 large apple label for one with ~ 30g carb) Mix in fruit of choice: ¾ cup blueberries 1 large grapefruit or 1 small sliced banana or 2 tablespoons dried fruit 2 pieces whole wheat toast 1 cup reduced sugar hot chocolate (check label spread with 1 tablespoon almond butter (or peanut butter) for packet with ~ 15g carb) ½ large whole wheat bagel Whole grain breakfast bar (check label for one 2 tablespoons reduced-fat cream cheese with ~ 30g carb) 1 small orange 1 cup milk 1 cup milk 1 small piece of fruit

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 54 LUNCH & DINNER IDEAS

45-GRAM LUNCH AND DINNER IDEAS

SOUTHWEST SALAD TURKEY WRAP • 1 cup black beans • 3oz turkey lunchmeat • 1/3 cup brown rice • 2tbsp cranberry jelly • ½ cup corn • 1 ½ tbsp. cream cheese • Cheese • ½ cup romaine lettuce • ¼ cup diced tomatoes Combine in 1 six-inch whole wheat flour tortilla. Layer on a bed of romaine with salad dressing. *Add on Enjoy with 17 grapes. small orange to make a 60g carbohydrate meal. *Add ¾ cup low fat plain yogurt to make a 60g carbohydrate meal. BURRITO • ½ cup beans BAKED FISH AND CHIPS • 3oz lean meat • 3oz baked salmon with dill and lemon on top • Cheese • ~ 30 baked sweet potato fries • 2 tbsp salsa • ½ cup steamed green beans • ½ cup lettuce • 1 small whole grain dinner roll with butter/margarine Put above ingredients in 1 six-inch whole wheat flour tortilla. Enjoy with small orange. *Add 5 chocolate *Add 3 gingersnap cookies or ½ cup canned peaches “kisses” to make a 60g carbohydrate meal. to make a 60g carbohydrate meal. STIR FRY CHILI • ½ cup cooked broccoli • 1 cup chili • ½ cup cooked onion • Tossed salad with dressing • ½ cup cooked bell pepper • Cornbread - 1 ¾ - inch cube • 3oz chicken *Add 1 cup raspberries to make a 60g carbohydrate meal. • 3 tbsp stir fry sauce • 2/3 cup brown rice Sauté vegetables and chicken separately in sauce. Combine and serve over rice. *Add 1 cup milk to make 60g carbohydrate meal.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 55 LUNCH & DINNER IDEAS

60-GRAM LUNCH AND DINNER IDEAS

SOUP AND SANDWICH MEAL BREAKFAST FOR DINNER! • 1 cup vegetable soup • 1 slice toasted whole wheat bread with • 1 turkey sandwich (2 slices whole wheat bread, butter/ margarine turkey, cheese, mayonnaise, mustard) • Eggs or cottage cheese • 1 small apple • ½ cup oatmeal CHICKEN AND RICE MEAL • 1 cup skim milk • 4 ounces chicken breast • ½ medium banana • 2/3 cup cooked brown rice TURKEY BURGER • ½ cup cooked carrots • 1 whole wheat bun • 1 small whole grain dinner roll with • 3oz ground turkey meat patty butter/margarine • Cheese • Tossed salad with salad dressing • Tomato slices • 1 small piece of fruit • Romaine lettuce leaf SPAGHETTI AND MEATBALLS • Ketchup • 2/3 cup whole wheat spaghetti • Mustard • ½ cup marinara sauce • ~15 baked French fries • 4 - 1” turkey meatballs • Tossed salad with salad dressing • Tossed salad with salad dressing • ½ large fruit • ½ cup unsweetened applesauce or small pear

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 56 HAPPY HOLIDAYS

It can be tricky sticking to your meal plan around the holidays. Think about incorporating new activities for each holiday that take some of the focus off of food. When you do have some holiday treats, it just takes a little more planning to incorporate them into your meal plan. Here are some holiday favorites and the estimated carbohydrate content.

FUN-SIZEDFOLLOW UP HALLOWEEN APPOINTMENTS CANDY THANKSGIVINGFOLLOW UP APPOINTMENTS TREATS

CANDY GRAMS OF SERVING SIZE GRAMS OF (SERVING SIZE) CARBOHYDRATE CARBOHYDRATE 3 Musketeers (0.5oz.)...... 12g ½ cup sparkling cider...... 15g Airhead (0.55oz., 0.4oz.)...... 15g, 10g ½ cup fruit salad...... 15g Baby Ruth (0.7 oz.)...... ~15g ½ cup sweet potato and syrup/marshmallows...... ~9g Butterfinger (0.7oz.)...... 15g 1 slice of pumpkin pie (1/8pie)...... ~37g Candy Corn (~10pieces)...... ~15g ½ cup stuffing...... 20g Carmel Apple Pop (0.6oz.)...... 15g 2 tablespoons jellied cranberry sauce....13g Dum Dum Lollipops (one)...... ~5g ¼ cup green bean casserole...... 12g Hershey Kisses (6 kisses)...... 15g Hershey Miniatures (1 piece 0.3 oz.).....5g Hershey Snack Size (1 piece 0.6 oz.)...... 10g Kit Kat (2- piece bar)...... ~9g Milk duds (1 mini box 12g)...... ~9g Milky Way (0.6oz.)...... 13g M& Ms Original (1 pack)...... ~15g M & Ms Peanut (1 pack or ~ 8 Pieces)...... 11g CHRISTMASFOLLOW UP GOODIESAPPOINTMENTS Nerds (small box)...... 12g Runts (0.5oz., ~12 pieces)...... 14g SERVING SIZE GRAMS OF Skittles (15 pieces or ~ 1 fun size pack)...... ~15g CARBOHYDRATE Smarties (15 tablets or 0.2oz.)...... ~7g ½ cup eggnog...... 30g Snickers (0.7oz.)...... 12g Small candy cane...... 15g Starbursts (4 pieces)...... 15g 2 small gingerbread cookies (1oz.)...... 18g 1 (1.6oz.) sugar cookie...... 30g Tootsie Pop (1 sucker)...... 16g 3 Walkers brand shortbread cookies...... 30g

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 57 WHAT’S ON YOUR PLATE?

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 58 WHAT’S ON YOUR PLATE? (CONTINUED)

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 59 PHYSICAL ACTIVITY

Daily physical activity is important for everyone in the family. It reduces stress, increases social IMPORTANTFOLLOW UP APPOINTMENTS interaction and helps maintain healthy body weight. Children and teens are more likely to be Talk with your diabetes care team to figure out active if their parents are active. The American the best way to manage your blood sugar with Academy of Pediatrics recommends at least one exercise. Some people determine how much hour of activity a day for all children and teenagers. carbohydrate they have based on their blood You could do this with one activity that last one sugar. Some like to have snacks before, during hour or with several activities that add up to one and/or after the activity. Some people have their hour. Keep things enjoyable and interesting by insulin adjusted based on activity. Your team keeping your body active in different ways. can help you with all of this!

PEOPLE WITH DIABETES NEED TO BE PREPARED FOR EXERCISE.

THE FOLLOWING IS RECOMMENDED: • Do not exercise if ketones are present. • Do not exercise with low blood sugar. If blood sugar is low, treat it appropriately and recheck to make sure it is safe to exercise. • Always wear diabetes identification. This can be a wristband, necklace, dog tag or ID card. • Have access to your blood sugar monitor. • Have carbohydrates to treat low blood sugar. Glucose tabs, juice and Gatorade are good examples. • Have snacks ready to go (see carbohydrate replacement for activity). • Drink lots of water before, during and after exercise…especially if the weather is hot. • Make sure someone around you knows you have diabetes. They should know the signs of low blood sugar and they should know how to treat low blood sugar. • Monitor blood sugars before and after exercise. • Consult your diabetes provider to discuss insulin changes if prolonged exercise is planned.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 60 CARBOHYDRATE REPLACEMENT FOR ACTIVITY

When you are being more active than usual, you SNACKS/DRINKS WITH ~ 15 GRAMS are using more glucose as fuel. This is why physical OF CARBOHYDRATE activity can cause low blood sugar. You may need extra snacks when you exercise. The amount of 4 ounces (½ cup) 8 ounces (1 cup) carbohydrate you will need to eat depends on how of juice sports drink long you exercise, and how hard you exercise, as well as some other factors. Every person is a little 1 medium 1 small box different and every activity is a little different…so fresh fruit of raisins the following may be used as a guideline. You can determine what works best for you by checking ½ cup applesauce 1 fruit leather blood sugar and keeping good written records. OR a fruit cup

MILD TO MODERATE ACTIVITY: Small granola bar ½ sandwich Examples of mild to moderate activity might be (check label for 15g) , leisurely biking or shooting hoops. Mild feels “light” or “easy.” Moderate activity takes a bit 6 ounce light yogurt 3 graham crackers more effort and you may be slightly out of breath. (such as Yoplait Light)

EXTRA DURATION CARBOHYDRATE Listed above are examples of snacks/drinks which 15 minutes 0 grams contain 15 grams of carbohydrate and are easy to have on the go. If you need more than 15 grams for 30 minutes 0-15 grams your activity, have more of a single item on the list 45 minutes 15 grams or have a couple items. Just make sure all of the 60 minutes 15-30 grams carbohydrate you have adds up to your goal amount.

VIGOROUS ACTIVITY: Examples of vigorous activities might be running, jogging, swimming laps, soccer, basketball, tennis, biking, skiing and snowboarding. Vigorous activity is “hard” and requires a lot of effort.

EXTRA DURATION CARBOHYDRATE 15 minutes 0-15 grams 30 minutes 15 grams 45 minutes 15-30 grams 60 minutes 30-45 grams

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 61 TAKING DIABETES TO SCHOOL

It is the responsibility of parents to notify school WHO SHOULD BE NOTIFIED OF MY personnel of their child’s diagnosis of diabetes CHILD’S DIABETES? before returning to school and at the beginning of The principal, school nurse, office personnel, each school year. This will allow you and the school teachers, PE teacher and bus driver all should be to develop a plan to ensure aware your child has diabetes. The school nurse your child’s specific needs are being met. will be responsible for training the appropriate staff about your child’s specific diabetes plan, including daily schedule for blood sugar checks, insulin WHAT DIABETES SUPPLIES WILL MY injections, meal plan, low blood sugar treatment CHILD NEED AT SCHOOL? and high blood sugar management. If you do not have a school nurse, you can contact the ADA Safe At School Program to help with training staff at  www.diabetes.org and look for “Safe at School.” Lancing device  WHAT ARE SCHOOL ORDERS?  Test strips School orders, provided by your child’s diabetes care provider, outline specific guidelines regarding  Lancets your child’s diabetes. The orders will include blood Snacks sugar testing times, treatment of low blood sugar  and severe low blood sugar, treatment of high  Juice boxes or glucose tabs blood sugar, and current insulin doses. School orders are used by the nurse to help develop a  Glucagon kit diabetes management plan during the school day.  Sharps container It is the parent’s responsibility to obtain updated school orders each year and any time insulin doses  Insulin and syringes are changed during the school year.

Place all of the supplies in a durable container labeled with your child’s name. Plan to restock tote regularly — every couple of weeks.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 62 RESOURCES FOR PEOPLE WITH DIABETES

DIABETES RELATED ORGANIZATIONS

JUVENILE DIABETES RESEARCH FOUNDATION INSULIN DEPENDENCE EAST TENNESSEE CHAPTER Online community empowering individuals to 355 Trane Lane better manage their diabetes through Knoxville, TN 37919 www.insulindependence.org Phone: 865-544-0768 Fax: 865-544-4312 INTERNATIONAL ASSOCIATION FOR MEDICAL Email: [email protected] ASSISTANCE FOR TRAVELERS 716-754-4883 AMERICAN DIABETES ASSOCIATION, www.iamat.org KNOXVILLE, TENNESSEE 4660 Old Broadway CHRIS DUDLEY FOUNDATION Knoxville, TN 37918 (For ages 10-24 – online resources, information, Phone: 865-524-7868 support, sports clinics and camps) Fax: 865-688-3915 www.chrisdudley.org See more at: http://www.diabetes.org/ in-my-community/local-offices/knoxville- WWW.CHILDRENWITHDIABETES.COM tennessee/#sthash.jmXdsT60.dpuf Online resource for kids and families impacted by diabetes. GLU T1 Diabetes in-line networks provides support, www.studentswithdiabetes.com & research, news, on-line discussions www.collegediabetesnetwork.org www.myglu.org Resources for teens and young adults impacted by diabetes.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 63 PHARMACY LIST

PHARMACY LIST SUPPLIES OFFERED

MOUNTAIN STATES • Meters PHARMACY: • Accepts state medical cards • Test strips 400 N. State of Franklin Road • Will bill most insurance • Lancets (located in the lobby of JCMC), • Will bill secondary insurance • Syringes Johnson City, TN 37604 • Will mail order supplies • Pump supplies Phone: 423-431-2140

MOUNTAIN STATES • Meters • Accepts state medical cards PHARMACY: • Test strips • Will bill most insurance 523 State of Franklin Road, • Lancets • Will bill secondary insurance Johnson City, TN 37604 • Syringes • Will mail order supplies Phone: 423-926-6154 • Pump supplies

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 64 DIABETES AND DRIVING

People with diabetes need to be extra responsible WANT TO LEARN MORE ABOUT DRIVING AND when driving. A low blood sugar can slow reaction DIABETES IN TENNESSEE? time and impair judgment. Extremely low blood http://www.diabetes.org/living-with-diabetes/ sugar can result in unconsciousness. You can hurt know-your-rights/discrimination/drives- yourself and you can hurt someone else if you’re licenses/driver-license-laws-by-state-display. not prepared to drive safely. html?state=TN

BEFORE YOU GO: DOFOLLOW NOT DRIVE UP APPOINTMENTS IF BLOOD SUGAR IS LOW • Check blood sugar before driving. • Carry your meter with you. • Keep the car stocked with fast acting carbs to If you think you are having a low blood sugar, treat low blood sugars (4-5 glucose tabs, 6-8 pull over as soon as you safely can. ounces juice or regular soda, 5-7 LifeSavers.) If blood sugar is less than 80, treat with: • Wear medical ID. • 4 round glucose tabs • Carry snacks to prevent low blood sugars • 8 ounces juice or soda (granola bars, fruit, etc.) • Wear your seatbelt. Recheck blood sugar in 15 minutes. Once you • Passengers need to know the symptoms of low are above 80, have a 15g carbohydrate snack. blood sugar and how to help you if needed. Review with them so they understand.

HYPOGLYCEMIA SYMPTOMS

shaky hungry irritable

tired/weak crying sweaty

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 65 TRAVELING WITH DIABETES

Before traveling, plan ahead to make sure you have DIABETES-RELATED SUPPLIES AND everything needed for your vacation. Here are some MEDICATION ALLOWED THROUGH THE things to think about before you take your next trip. CHECKPOINT ONCE SCREENED: • Insulin and insulin dispensing products (pen, IMPORTANT INFORMATION: pump, syringes) • Contact your a few weeks in advance • Lancets, blood glucose meter, test strips, alcohol to get a travel letter. This states the need to swabs, control solution bring diabetes supplies on the plane. • Glucagon emergency kit • Wear diabetes ID. • Ketone test stripes • Pack extra supplies, medication and low blood • Sharps container sugar treatment items. It’s good to pack twice as much as you think you’ll need. • Label bag of medications and supplies and keep PACK ALL DIABETES SUPPLIES IN YOUR things in original packaging. CARRY-ON LUGGAGE! DON’T KEEP SUPPLIES • Carry contact information for your physician IN YOUR CHECKED BAGS IN CASE YOUR BAGS as well as other emergency contact phone ARE MISPLACED! numbers. Clinic: 423-431-4946 or Niswonger Children’s Hospital: toll-free (423) 431-6111. • Think about whether you’ll need insulin dose *Note: Even if an item is generally permitted, it may be adjustments (changing time zones, activities). subject to additional screening. The item may or may Discuss with your provider. not be allowed through the check point if it triggers an • Arrive at the airport 2-3 hours prior to alarm during the screening process, appears to have your flight. been tampered with or poses other security concerns. • Check TSA’s website for travel updates.

SCREENING PROCEDURES Notify the Transportation Security Officer that you have diabetes and are carrying your supplies. Have your medical supplies ready in a separate bag when you approach the Security Officer. The TSA offers the option of requesting a visual inspection of your medical supplies rather than putting them through the X-ray. This must be requested before the screening process begins.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 66 TIPS FOR FAMILY COPING

THINK AHEAD TAKE CARE OF YOURSELF • Plan meals and snacks. • If you are a single parent, enlist support from • Pay attention to schedules. extended family members, neighbors or friends. • Carry snack foods, treatment for low blood This is especially important when your child is sugar and supplies with you everywhere. newly diagnosed. • Take care of yourself and your health. TAKE AN ACTIVE ROLE IN HEALTH CARE • Discuss a plan for regular follow-ups with REVIEW THE BRIGHT SPOTS OF your provider. HAVING DIABETES • Keep your scheduled appointments. • A healthier life for all family members: You’ll have more opportunities to eat better, • Communicate with your provider between stay active, have more frequent medical appointments as recommended. follow ups and increased routines. This can • Be an advocate for your child in new ways. benefit everyone. • Discuss discrepancies in information or advice • A more successful life: As you manage diabetes, you receive from others with your you will become an expert in diabetes. You will diabetes team. also become a great problem solver. You may have a more balanced approach to life. Diabetes REVIEW DETAILS can lead you to discover new opportunities that • Post your diabetes routine and use you would not have otherwise discovered. your notebook. • A happier life: You will have met and accepted • Keep track of supplies in your kit or bag. Use what some people call adversity. You will have reminders to re-order supplies. discovered the many benefits of adapting • Bring your written blood sugar records, meter to challenges. and kit/bag to your appointments. • Use a watch or phone alarm to remember blood Although diabetes has been added, nothing about sugar checks and insulin injections. your wonderful child has been taken away. You • Date insulin and test strips when you open and your family will adjust to the new diagnosis them. Keep spares. and routines and will continue to experience lots of bright spots in all aspects of your lives. TEAM WORK • Work together with family members on a diabetes management system. • Depending on age, make sure those who are caring for your child have been trained in diabetes management. • Keep in contact with your child, spouse, school, sitters, etc. Establish routine check-ins. • Be available for emergencies or have emergency contacts available. • Parents need to share the load. Work together on drawing up insulin, reviewing data and discussing solutions.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 67 TOP TEN DIABETES SELF-MANAGEMENT STRATEGIES

SELF-MANAGEMENT STRATEGIES FOR PARENTS OF CHILDREN AND ADOLESCENTS WITH DIABETES

1. Remember that the daily grind of managing 6. Remember that it is normal for children/teens diabetes has few rewards and many failures to not think about how their behavior now will and disappointments. impact them in the future. If they could think differently, they would be adults. Scare tactics 2. Modeling is the most effective long-term about what could happen are useless. Instead, parenting strategy for behavior change in focus on what is in it for your child/teen in the children/teens (e.g., exercise, eat right, go to “here and now” to take care of themselves. the doctor, etc.). 7. Make sure that all family members understand 3. Focus on what your child/teen is doing your plan for supporting your child/teen to right and encourage more of it. A person’s improve his/her . weaknesses will always be their weaknesses and are hard things to change. Having said 8. Utilize other people in your child’s/teen’s life that, a person’s strengths will always be to support their adherence to the diabetes their strengths and can be built on much treatment regimen. This may include peers, more easily. coaches, teachers, clergy and other trusted adults in your child’s/teen’s life. 4. Focus on health behaviors and not health outcomes. By virtue of having diabetes, 9. The simple act of listening and understanding health outcomes like blood sugars and HbA1c without judgment about your feelings around values will be variable and often poor. Instead, their health can be incredibly helpful in support your child/teen in doing what is asked changing behavior or improving diabetes of them by doctors. Let the doctors worry self-management. about the health outcomes such as blood sugars and HbA1c values. 10. Don’t let your child/teen be defined by their medical condition. You must see your child/ 5. Reinforce and reward health behaviors and teen as something more than their diagnosis. avoid punishing poor adherence. Children/ For example, they are children/teens with teens are already feeling punished by having a diabetes, not diabetics. chronic health condition and more punishment for not taking care of themselves will do nothing to motivate them.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 68 DIABETES GLOSSARY

• A1C - a test that measures a person’s average • Carbohydrate – one of the main nutrients in blood glucose level over the past 2 to 3 months. food. Food that provide carbohydrates are Hemoglobin (HEE-mo-glo-bin) is the part of a starches, vegetables, fruits, dairy products red blood cell that carries oxygen to the cells and sugars. and sometimes joins with the glucose in the bloodstream. Also called hemoglobin A1C or • Carbohydrate counting – a method of meal glycosylated (gly-KOH-sih-lay-ted) hemoglobin, planning for people with diabetes based on the test shows the amount of glucose that sticks counting the number of grams of carbohydrate to the red blood cell, which is proportional to the in food. amount of glucose in the blood. • Certified diabetes educator (CDE) – a health • (uh-kan-THO-sis care professional with expertise in diabetes NIH-grih-kans) – a skin condition characterized education who has met eligibility requirements by darkened skin patches, common in people and successfully completed a certification exam. whose body is not responding correctly to the insulin that they make in their pancreas (insulin resistance). This skin condition is • Cholesterol (koh-LES-ter-all) – a type of fat also seen in people who have pre-diabetes or produced by the liver and found in the blood; it is Type 2 diabetes. also found in some foods. Cholesterol is used by the body to make and build cell walls.

• Alpha cell (AL-fa) – a type of cell in the pancreas. Alpha cells make and release a • Complications – harmful effects of diabetes hormone called glucagon. The body sends a such as damage to the eyes, heart, blood signal to the alpha cells to make glucagon when vessels, , teeth and gums, feet blood glucose falls too low. Then glucagon and skin or kidneys. Studies show that keeping reaches the liver where it tells it to release blood glucose, blood pressure and low-density glucose into the blood for energy. lipoprotein cholesterol levels close to normal can help prevent or delay these problems.

• Antibodies (AN-ti-bod-eez) – made by the body to protect itself from foreign • Dawn phenomenon (feh-Nah-meh-nun) – the substances such as bacteria or viruses. People early morning (4 a.m. to 8 a.m.) rise in blood get Type 1 diabetes when their bodies make glucose level. antibodies that destroy the body’s own insulin- making beta cells. • Diabetes Control and Complications Trial (DCCT) – a study by the National Institute of • Beta cell – a cell that makes insulin. Beta cells Diabetes and Digestive and Kidney are located in the islets of the pancreas. conducted from 1983 to 1993 in people with Type 1 diabetes. The study showed that intensive therapy compared to conventional therapy • Blood glucose – the main sugar found in the significantly helped prevent or delay diabetes blood and the body’s main source of energy. complications. Intensive therapy included Also called blood sugar. multiple daily insulin injections or the use of an insulin pump with multiple blood glucose • Blood glucose monitoring – checking blood readings each day. Complications followed in the glucose level on a regular basis in order to study included diabetic neuropathy manage diabetes. A blood glucose meter (or and nephropathy. blood trips that change color when touched by a blood sample) is needed for frequent blood glucose monitoring.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 69 DIABETES GLOSSARY (CONTINUED)

• Diabetes mellitus (MELL-ih-tus) – a condition • Exchange lists – one of several approaches for characterized by hyper-glycemia resulting diabetes meal planning. Foods are categorized from the body’s inability to use blood glucose into three groups based on their nutritional for energy. In Type 1 diabetes, the pancreas no content. Lists provide the serving sizes for longer makes insulin and therefore blood glucose carbohydrates, meat and meat alternatives cannot enter the cells to be used for energy. In and fats. These lists allow for substitution for Type 2 diabetes, either the pancreas does not different groups to keep the nutritional make enough insulin or the body is unable to use content fixed. insulin correctly. • Fasting blood glucose test – a check of a • Diabetic ketoacidosis (DKA) (KEY-toe-ass-ih- person’s blood glucose level after the person has DOH-sis) – an emergency condition in which not eaten for 8 to 12 hours (usually overnight). extremely high blood glucose levels, along with a severe lack of insulin, result in the breakdown • Gestational diabetes mellitus (GDM)(jes- of body fat for energy and an accumulation of Tay-shun-ul MELL-ih-tus) – a type of diabetes ketones in the blood and urine. Signs of DKA are mellitus that develops only during pregnancy nausea and vomiting, stomach pain, fruity breath and usually disappears upon delivery, but odor and rapid breathing. Untreated DKA can increases the risk that the mother will develop lead to coma and death. diabetes later. GDM is managed with meal planning, activity, and, in some cases, insulin. • Diabetologist (DY-uh-beh-TAH-luh-jist) – a doctor who specialized in treating people • Glucagon (GLOO-kah-gahn) – a hormone with diabetes. produced by the alpha cells in the pancreas. It raises blood glucose. An injectable form a glucagon, available by prescription, may be used • Dietitian (DY-eh-TIH-shun) – a health care to treat severe hypoglycemia. professional who advises people about meal planning, weight control and diabetes management. A registered dietitian (RD) has • Glucose – one of the simplest forms of sugar. more training than a nutritionist. • (GLY-koh-jen) – the form of glucose found in the liver and muscles. • Dilated eye exam (DY-lay-ted) – a test done by an eye care specialist in which the pupil (the • Honeymoon phase – some people with type black center) of the eye is temporarily enlarged 1 diabetes experience a brief remission called with eye drops to allow the specialist to see the the “honeymoon period.” During this time, inside of the eye more easily. the pancreas may still secrete some insulin. Over time, this secretion stops and as this happens, the child will require more insulin • Endocrinologist (EN-doh-krih-NAH-luh-jist) – from injections. The honeymoon period can last a doctor who treats people who have weeks, months, or even up to a year or more. endocrine (gland and hormone) problems such as diabetes. • Hyperglycemia (HY-per-gly-SEE-mee-uh) – is excessive blood glucose. Fasting hyperglycemia is blood glucose above a desirable level after a person has fasted for at least 8 hours. Postprandial hyperglycemia is blood glucose above a desirable level 1 to 2 hours after a person has eaten.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 70 DIABETES GLOSSARY (CONTINUED)

(HY-per-TEN-shun) – a condition • Insulin resistance – the body’s inability to present when blood flows through the blood respond to and use the insulin it produces. vessels with a force greater than normal. Also Insulin resistance may be linked to obesity, called high blood pressure. Hypertension can hypertension and high levels of fat in the blood. strain the heart, damage blood vessels, and increase the risk of heart attack, , kidney • Islet cell –(ICA) (EYE-let aw- problems and death. toe-An-ti-bod-eez) proteins found in the blood of people newly diagnosed with Type 1 diabetes. • Hypoglycemia (hy-po-gly-SEE-me-uh) – a They are also found in people who may be condition that occurs when one’s blood glucose developing Type 1 diabetes. The presence of ICA is lower than normal, usually less than 70 indicates that the body’s immune system has mg/dL. Signs include hunger, nervousness, been damaging beta cells in the pancreas. shakiness, , dizziness, light- headedness, sleepiness or confusion. If • Islets – groups of cells located in the pancreas left untreated, hypoglycemia may lead to that make hormones that help the body break unconsciousness. Consuming a carbohydrate- down and use food. For example, alpha cells rich food such as a glucose tablet or juice make glucagon and beta cells make insulin. Also treats hypoglycemia. It may also be treated called islets of Langerhans (LANG-er-hahns). with an injection of glucagon if the person is unconscious or unable to swallow. Also called an • Ketone – a chemical produced when there is a insulin reaction. shortage of insulin in the blood and the body breaks down body fat for energy. High levels of • Hypoglycemia unawareness (un-uh-WARE- ketones can lead to diabetic ketoacidosis and ness) – a state in which a person does not feel or coma. Sometimes referred to as . recognize the symptoms of hypoglycemia. • –(KOOS-mall) the rapid, • Insulin – a hormone that helps the body deep, and labored breathing of people who have use glucose for energy. The beta cells of the diabetic ketoacidosis. pancreas make insulin. When the body cannot make enough insulin, it is taken by injection or • Lipohypertrophy –(LIP-oh-hy-PER-troh-fee) through use of an insulin pump. buildup of fat below the surface of the skin, causing lumps. Lipohypertrophy may be • Insulin pen – a device for injecting insulin that caused by repeated injections of insulin in the looks like a fountain pen and holds replaceable same spot. cartridges of insulin. Also available in disposable form. • –(mack-roh-VASK-yoo- ler) disease of the large blood vessels, such as • Insulin pump – an insulin-delivering device those found in the heart. Lipids and blood clots about the size of a deck of cards that can be build up in the large blood vessels and can cause worn on a belt or kept in a pocket. An insulin , coronary heart disease, stroke pump connects to narrow, flexible plastic tubing and peripheral vascular disease. that ends with a needle inserted just under the skin. Users set the pump to give a steady • Maturity Onset Diabetes of the Young trickle or basal amount of insulin continuously (MODY) – a kind of Type 2 diabetes that throughout the day. Pumps release bolus doses accounts for 1 to 5 percent of people with of insulin (several units at a time) at meals and diabetes. Of the six forms identified, each is at times when blood glucose is too high, based caused by a defect in a single gene. on programming done by the user.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 71 DIABETES GLOSSARY (CONTINUED)

– the tendency of several • Microvascular disease –(MY-kro-VASK-yoo-ler) conditions to occur together, including obesity, disease of the smallest blood vessels, such as insulin resistance, diabetes or pre-diabetes, those found in the eyes, and kidneys. The hypertension and high lipids. walls of the vessels become abnormally thick but weak. Then they bleed, leak protein and slow • –(met-FOR-min) an oral medicine the flow of blood to the cells. used to treat Type 2 diabetes. It lowers blood glucose by reducing the amount of glucose • Nephropathy –(neh-FROP-uh-thee) disease of produced by the liver and helping the body the kidneys. Hyperglycemia and hypertension respond better to the insulin made in the can damage the kidney’s glomeruli. When the pancreas. Belongs to the class of kidneys are damaged, protein leaks out of the called . (Brand names: Glucophage, kidneys into the urine. Damaged kidneys can no Glucophage XR; an ingredient Glucovance) longer remove waste and extra fluids from the blood stream. • Mg/DL – milligrams (MILL-ih-grams) per deciliter (DESS-ih-lee-tur), a unit of measure • Neuropathy –(ne-ROP-uh-thee) disease of that shows the concentration of a substance in the nervous system. The three major forms in a specific amount of fluid. In the United States, people with diabetes are blood glucose test results are reported as mg/ , and mononeuropathy. dL. Medical journals and other countries use The most common form is peripheral millimoles per liter (mmol/L). To convert to mg/ neuropathy, which affects mainly the legs dL from mmol/L, multiply mmol/L times 18 = and feet. 180 mg/dL. • Ophthalmologist –(AHF-thal-MAH-luh-jist) a • Microalbuminuria –(MY-kro-al-BYOO- medical doctor who diagnoses and treats all eye min-your-EE-ah) the presence of small diseases and eye disorders. Ophthalmologists amounts of albumin, a protein, in the urine. can also prescribe glasses and contact lenses. Microalbuminuria is an early sign of kidney damage, or nephropathy, a common and serious • Pancreas –(PAN-kree-us) an organ that makes of diabetes. The ADA recommends insulin and enzymes for digestion. The pancreas that people diagnosed with Type 2 diabetes be is located behind the lower part of the stomach tested for microalbuminuria at the time they are and is about the size of a hand. diagnosed and every year thereafter; people with type 1 diabetes should be tested 5 years after • Postprandial blood glucose –(post-PRAN-dee- diagnosis and every year thereafter. Improving ul) the blood glucose level is taken 1 or 2 hours blood glucose control, reducing blood pressure after eating. and modifying the diet usually manages microalbuminuria. • Pre-diabetes – a condition in which blood glucose levels are higher than normal but are not high enough for a diagnosis of diabetes. People with pre-diabetes are at increased risk for developing Type 2 diabetes and for heart disease and stroke. Other names for pre-diabetes are impaired glucose tolerance and .

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 72 DIABETES GLOSSARY (CONTINUED)

• Retinopathy –(REH-tih-NOP-uh-thee) eye disease that is caused by damage to the small blood vessels in the . Loss of vision may result. Also known as .

• Somogyi effect, also called rebound hyperglycemia –(suh-MOH-jee) when the blood glucose level swings high-following hypoglycemia. The Somogyi effect may follow an untreated hypoglycemic episode during the night and is caused by the release of stress hormones.

• Type 1 diabetes – a condition characterized by high blood glucose levels caused by a lack of insulin. Occurs when the body’s immune system attacks the insulin-producing beta cells in the pancreas and destroys them. The pancreas then produces little or no insulin. Type 1 diabetes develops most often in young people but can appear in adults.

• Type 2 diabetes – a condition characterized by high blood glucose levels caused by either a lack of insulin or the body’s inability to use insulin efficiently. Type 2 diabetes develops most often in middle-aged and older adults but can appear in young people.

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 73 ALCOHOL AND DIABETES

WHAT HAPPENS IN YOUR BODY WHEN YOU DRINK ALCOHOL? TOP TEN WAYS TO DRINK SAFELY: • Your body considers it a toxin and wants to get rid of it. 1. Never drink on an empty stomach. • Your liver starts working to break down 2. Eat a carbohydrate meal or a snack the alcohol. while . • The liver stores sugar and can usually release 3. Don’t drink within two hours of exercise. some if your blood sugar is getting really low. 4. Drink in moderation. But when it’s too busy processing alcohol, you 5. Check blood sugar frequently. have a higher risk of having severe low blood sugar. 6. Do not take extra insulin to cover carbs in drinks…even sugary ones. • Your liver also will not respond to glucagon if you are low from alcohol, so carb-up while 7. Wear your medical ID and drink with drinking and tell your friends to call 911 if you are friends who know you have diabetes. non-responsive. 8. Check blood sugar before going to bed. • Risk of low blood sugars can continue for 24 Have a carb snack if you’re lower. Set an hours after drinking alcohol. alarm to wake up in the morning. Make sure your friends check on you if you have a WHAT’S YOUR RISK? lot to drink. You are at risk of severe lows if you are taking 9. Hung over? Throwing up? Not eating? You insulin or certain diabetes pills (such as glipzide, still need your insulin! glyburide, prandin…not metformin). 10. NEVER DRINK AND DRIVE!

WHAT’S CONSIDERED A DRINK? (It takes about two hours to break down one drink) • 5-ounces of • 12-ounce (light or regular) • 1.5-ounce of liquor (vodka, whiskey, gin, etc.)

PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 74 DRUG USE AND DIABETES

It’s well known that illegal drugs can damage our health and even cause DEATH. Using illegal drugs is not a good idea for anybody. It is especially risky for those with chronic health conditions like diabetes.

WHY? Drugs change the way you think and act. It’s hard enough to remember all the stuff you have to do to take care of diabetes on a normal day. Taking drugs is more dangerous for those with diabetes, yet it still happens, so we do not want to ignore the topic. (To be clear: we recommend no illegal drug use.)

WHAT YOU CAN DO TYPE OF DRUG HOW THEY AFFECT DIABETES TO BE SAFER • Always take your insulin. • Missed shots from altered • Don’t mix uppers with other perception or sleeping a lot drugs or alcohol. (days) while “coming down” • Have a meal first. • Risk of Diabetic Ketoacidosis Uppers (ecstasy, ice, crystal meth, (DKA) from missed shots • Always have fast-acting carbs cocaine, coke, speed, etc.) (juice or tabs) (you may not • Risk of severe low blood sugar know you’re low). due to decreased appetite and increased • While tripping/tweaking, have carb-containing fluids. • Not able to recognize lows • Check sugar before bed. • High blood sugar from eating • Always have fast-acting carbs, more than usual but realize you may not realize • Missed shots from Hallucinogens (marijuana, pot, you’re low. altered perception weed, mushrooms, LSD, acid • Try not to have too much extra • Risk of Diabetic Ketoacidosis solvents, glue, paint) food if you get the munchies. (DKA) from missed shots • Hallucinogens affect blood • Tiredness can disrupt sugar differently; check often. diabetes routine

• Altered coordination and • Always take your insulin. concentration makes it hard to know when high and low • Always have fast acting carbs, but realize you may not know • Missed shots from altered Opiates (heroin, morphine, you’re low. perception codeine, smack) • Eat regularly, even if you don’t • Risk of Diabetic Ketoacidosis feel like it. (DKA) from missed shots • Have people around who know • Altered eating habits make you have diabetes. blood sugar erratic

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PEDIATRIC DIABETES NOTEBOOK | Mountain States Medical Group-Pediatric Endocrinology | 423-431-4946 | 75 MOUNTAIN STATES MEDICAL GROUP-PEDIATRIC ENDOCRINOLOGY Pediatric Diabetes Notebook

MRG 16-0206 > REV 05/16/18