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Spring 2002 Silver Lining CDH Newsletter

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Spring 2002 Silver Lining CDH Newsletter CHERUBS The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support The Silver Lining Spring 2002 CHERUBS 1109 Williamsboro St Oxford, NC 27565 The Silver Lining Spring 2002 Dear Members, Our newsletter is back in printing after a 6-month hiatus due to lack of stories of our cherubs. We still need more stories to fill future newsletters, it’s far too expensive to print and mail newsletters with just a few stories. Please send your cherub’s story to us by e-mail (preferred) or by postal mail. Our 2002 International Conference was cancelled; please see the article for more details. We hope to raise enough funding to continue this annual event in 2003. As usual, we are busy, busy, busy here. Our 2001 CDH Survey Results will be published in our Summer newsletter; we are revamping our entire web site; many local get-togethers are planned; and we are actively trying to get grant funding and sponsorship for CHERUBS. We now have over 1150 members, including over 1000 families, in all 50 states and 35 countries. We have just gotten too large for my small house and only 1 full-time volunteer. Please see the article for more details. We are still in dire need of donations. Yes, the donation column is quite long this newsletter, but it lists donations made over 7 months. ANY amount will help. As we go, our printing costs and mailing costs increase, but donations have not. If you can afford to, please remember to make your annual $20.00 Family Membership Donation or $30.00 Professional Membership Donation. We also have a large amount of cookbooks and t-shirts still to sell, so please keep CHERUBS in mind for gift-giving ideas. My apology goes out to members and friends who purchased Valentine’s Day Tributes. To try to make it up to you, your tribute will be posted in both this issue and our Summer Issue. I hope everyone has a safe and healthy summer. Dawn M. Torrence, President and Founder . Madison, You will always be in Our precious miracle, Mommy and Daddy our hearts, Anastasia Drew Warner, we love you! love you and miss you! Love, Mommy and Daddy Happy Birthday Sweetie Mommy and Daddy Local Get-Togethers The following states are planning local get-togethers. For more information, please contact the State Representatives. State Representative Phone Number E-Mail Alicia O'Malley 256-389-8110 [email protected] A Alabama Tara Hall 614-275-0858 [email protected] i Ohio Shelly Evans 254-793-3039 [email protected] Monica Nedrow 817-329-2402 [email protected] Texas q Malini Rao 469-232-0245 [email protected] “Hope is faith holding out its hand in the dark” - George Iles Page 2 The Silver Lining Spring 2002 New Arrivals This Newsletter Is Dedicated (*siblings of Cherubs) To the Memories of: Kayla Marie Abaurrea* Elizabeth Joy Huffman Adriana Abel* Kennedy Elaine Keckler Tarquin Mikhail Adcock Faith Marie Atkins Lewis David Kelly Dale Linden Appleyard Chloe' Gabrielle Barbee Noah Edward Kelly Chloe' Gabrielle Barbee Meghan M. Baxter Andrew Christopher Kemmer Meghan M. Baxter Chloe Claire Belden Jason Thomas Kennemer Brodie McKibbin Bennett Brodie McKibbin Bennett Darrin Zach Laengerer Aaron Kyle Blank Sean Mitchell Benson Anna Christine Langan Josiah Stephen Blay Josiah Stephen Blay Victoria Destiny Lavallée-Khalil Hannah Kate Bowring Asa Carney Bookout Dakota Montgomery Linton Tracy Eric Chavis Jonathan Raymond Brewster Harrison Alan Lovell Amelia M. Coolbaugh Ariana Brown Anna Lee Marchesseault Kelsey Brooke Cunningham Laura Genevieve Browning* Sydney Olivia Matthews Sydney Elise Curlock Patrick Neil Bryant Joshua Edward Mercier-Fehr Cassidy Riley Currence Kirsten J. Burgess Debwewin Mitchell Vincent Steven D'Ulisse Kieran Andrew Card Amber Nicole Mitchell Jenna Rose Dayton Jonah Alexander Carrier Mary Elizabeth Motts Emily Elizabeth Templar Earl Miles Whalen Lloyd Chamberlain Owen W. J. Mulak – MacPhee Taylor Elizabeth Edmond Tracy Eric Chavis Hope Katherine Niebrugge* Emily Ann Ennis Jordon Michael Choyfoo Alyssa Noel Niedziela Robert Severance Halliday, II Sorcha Aine Clarke-Hagan Bryceton D. J. Nordin Sean E. Harkins Tyler James Clyde Aaron Josef Oakes Adam A. Herrera Santania W. Courtney Madysen Olczak* Megan Iona Hirst Cassidy Riley Currence Riley T Padgett James Patrick Howitt Abigail Faith Curtis Seannah Allissabeth Palamarczuk Elizabeth Joy Huffman Sarah Ann D'Ambrosi Isabella Pavlinac Austin Bradley Johnson Jenna Rose Dayton Anna K. Piasecki Maximillian Gerard Kastner Tristan Dean Darien Daishawn Pitts Kennedy Elaine Keckler Joshua Jeffrey Dill* Trevor Mathew Rademaker* Allison Ann Koetters Jesse James Drugmand Elizabeth M. Sanders Darrin Zach Laengerer Taylor Elizabeth Edmond Sidney A. Saunders Jeremy Ryan Lawrence Emily Ann Ennis Cherylynn Renee' Smith Owen Isaac Looney Janelle White Esler Beau C. Stelly Lamont Maurice Lusby, Jr Mason Earl Evans* Kathryn Nicole Stevenson* Sydney Olivia Matthews Jackson Gunner Griffin Alexander Joseph Terry Julian James Martinez Robert Severance Halliday, II Adam Joseph Vella Pietra Agnelli Martinelli Roisin Hartigan* Michael Reed Wallis Jacob Collin McDonald Kurtis Claude Heer Callum Philip Weber Joshua Edward Mercier-Fehr Adam A. Herrera Jarrod Allen Williams Debwewin Mitchell Aaron Jacob Hoewing Oscar Steven Wood Mary Elizabeth Motts James Patrick Howitt Julia Cora Zieger Ryan Matthew Mudderman Bryceton D. J. Nordin Aaron Josef Oakes Gage Richard Ollerenshaw Jak Thomas Parsons Isabella Pavlinac Anna K. Piasecki Darien Daishawn Pitts Olivia Plymale Colten "CJ" Regier Elizabeth M. Sanders Cherylynn Renee' Smith Damien Smith We Would Like To Thank The Following People Alexander Joseph Terry For Their Gracious Help: Callum Philip Weber Holly Jane White Jarrod Allen Williams Elizabeth Doyle Laura Lewis Oscar Steven Wood Roni Evans Daphne Parker Julia Cora Zieger Shelly Evans Christy Stevenson Ramona Gallegos Robin Sum Freedom Green Sophia Tucker Tara Hall Tommy Williams Patricia Jones All of our Wonderful Volunteers! “Know your limits... but never stop trying to exceed them” - Author Unknown Page 3 The Silver Lining Spring 2002 We Would Like To Welcome The Families Of The Following New Members: Tarquin Mikhail Adcock Sophia Gehrka Mary Elizabeth Motts Dale Linden Appleyard Keiley Jaye Gilliard Ryan Matthew Mudderman Sarina Lily Asher Gerard Taylor Goetz Gregory Allen Mueller Faith Marie Atkins Tristan Anthony Francis Goldstein Owen W. J. Mulak - MacPhee Baby Boy Avelino Alec James Golocevac Taylor Theresa Marie Murphy Katja Baeumler Jaylin Natasha Gonzalez Eddy Kaleigh Marie Myers Baby Girl Bagherian Jackson Gunner Griffin Alyssa Noel Niedziela Meghan M. Baxter Alfred Anthony Guarisco Bryceton D. J. Nordin Matthew Tyler Beach Abdullah Habib Jay Ashleigh Ogburn K. P. Beachnau Robert Severance Halliday, II Gage Richard Ollerenshaw Baby Girl Beard Blake Hanlon Samantha Olmstead Chloe Claire Belden Sean E. Harkins Riley T Padgett Sean Mitchell Benson Kurtis Claude Heer Alison Joanne Parker Aaron Kyle Blank Aidan Christopher Hepworth Payton Alan Parks Josiah Stephen Blay Carter Ray Herbolsheimer Jak Thomas Parsons Kailyn Brooke Bost Adam A. Herrera Isabella Pavlinac Victoria Maria Botero Caden Joseph Hickel Jessica Hope Peet Hannah Kate Bowring Taylor Lynn Hill Patrick M. Perala Jonathan Raymond Brewster Megan Iona Hirst Sheree Helen Beth Pettit Benjamin Joseph Broom Kathryn Ann Howard Anna K. Piasecki Ariana Brown James Patrick Howitt Darien Daishawn Pitts Patrick Neil Bryant Elizabeth Joy Huffman Olivia Plymale Kirsten J. Burgess Lillian Marie Hutchens Baby Boy Prince Ava Katherine Butler Austin Bradley Johnson Jessica A. Quillman Kieran Andrew Card Ximena Karaman Poppy E. Ramsay Jonah Alexander Carrier Maximillian Gerard Kastner Jac'Quan Damion Rawlinson Miles Whalen Lloyd Chamberlain Kennedy Elaine Keckler Colten "CJ" Regier Kevin S. Charrin Noah Edward Kelly Isaiah Luis Rivera Tracy Eric Chavis Lewis David Kelly Elizabeth M. Sanders Jordon Michael Choyfoo Andrew Christopher Kemmer Sidney A. Saunders Olivia Ann Christopher Jason Thomas Kennemer Baby Scheinkoenig Sorcha Aine Clarke-Hagan Baby Boy Kerns Baby Boy Schuler Tyler James Clyde Baby Kirby Cherylynn Renee' Smith Emalee Lillian Charity Coker Christopher S. Knowles Damien Smith Amelia M. Coolbaugh Allison Ann Koetters Austin Wayne Smith Santania W. Courtney William James Kowalski Beau C. Stelly Lisa M. Coy Darrin Zach Laengerer Jason M. Swiger Alan Mikeal Cross Victoria Destiny Lavallée-Khalil Alexander Joseph Terry Kelsey Brooke Cunningham Jeremy Ryan Lawrence Stephanie Ann Thompson Cassidy Riley Currence Dakota Montgomery Linton Carson David Trotzer Abigail Faith Curtis Owen Isaac Looney Crystal Rose Tweeten Sarah Ann D'Ambrosi Omar Dario Lopera Adam Joseph Vella Fiona Heather Suzanne Daniels-Brown Abraham Leo Lopez Lilliann Marie Walder Jenna Rose Dayton Harrison Alan Lovell Michael Reed Wallis David Jonathon Dayton Lamont Maurice Lusby, Jr Josh Alan Walsh-Dunne Tristan Dean Isabelle Marie Lyons Callum Philip Weber Anthony Jake DiCesare Cody A.J. Maerten Brooke E. Weiss Lily Marie Dover Baby Boy Manes Gavin A.N. Werner Jesse James Drugmand Julian James Martinez Christopher Wharton Emily Elizabeth Templar Earl Jacob Aaron Matulevich Keegan Douglas White Taylor Elizabeth Edmond Jacob Collin McDonald Adam V. Whitelock Baby Edwards Joshua Edward Mercier-Fehr Elliot Michael Wollaston Spencer Elting Alexander Drake Milam Oscar Steven Wood Emily Ann Ennis Kaylee M. Miller Carolyn Elaine Wylie Janelle White Esler Debwewin Mitchell Julia Cora Zieger Dante T. Frazier Amber Nicole Mitchell Hayden Zimmerman
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