Inspire 2013

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Inspire 2013 ISSUE FOUR 2013/14 CELEBRATING OUR TENTH YEAR contents “ I was close to pulling out of my first trip because I couldn’t face meeting new people. I’m unbelievably glad I didn’t.” ABI * Courtesy of Teenage Cancer Trust ** Courtesy of Cancer Research UK Maxine’s Four life- Coming back Round the How do we story changing days for more Island Race fund all this? 2 inspire issue 4 www.ellenmacarthurcancertrust.org welcome Wow, 10 YEARS. What an Our first incredible decade it’s been. 10 years in It seems like yesterday we stepped The mental and social fall-out from aboard our first Trust trip in 2003. cancer can be just as devastating as numbers... None of us could have prepared the physical illness. Everything we do ourselves for the difference a week on is about building confidence, self- the water could make. What I saw made esteem and having fun. me more convinced than I’d ever been We introduced different activities Every day SIX young people of the importance of the trips to the to give the young people the chance young people who experience them. to come back to sail, and see the friends * (13-24) and FOUR children What began 10 years ago as a step they made on their first trip. Some (0-14)** in the UK are told into the unknown has turned into incredible friendships are forged on they have cancer BUT more something extraordinary that has trips, and it’s wonderful we have young touched thousands of lives. people coming back to volunteer who children and young people It’s been an incredible decade, and have sailed with us before. Young people than EVER are surviving honestly I’ve met more inspirational with cancer very rarely meet adults who people on our trips than elsewhere had childhood cancer, so this brings a in life. I feel incredibly privileged to really strong element to our activities. have been a part of it. Every young person we’ve met has In 10 years the Trust team has grown inspired us in a different way. This Since 2003 we have taken and evolved. But those involved with the drives us to keep pushing to provide over 1,000 young people Trust and the trips are some of the most even more opportunities to even sailing – 15 in year one passionate and dedicated people I’ve more young people. met. Together we’ve laughed and cried, But we can only do this with compared to 348 in 2012! but are continually buoyed by the spirit, help from people like you. energy and inspirational young people. You can help a young person realise Initially we had a small Trustees team, there is life after cancer and give them one part-time employee, one boat and a future they never thought possible. You have helped us raise worked with one hospital. You can give a family the chance to over £3.8m to invest in Beyond everyone’s expectations see their child rise from the devastation we have grown into a national charity, of illness to dream, laugh, embrace activities for our young people working with every UK young person’s life and achieve again. primary cancer care unit. Between them Become a Friend of the Trust or take these deal with around 95% of young on a challenge to support our work. people being treated for cancer. Our first 10 years have been HUNDREDS of young We now run six boats during each unbelievable, we want the next people have been given summer trip, yet maintain that 10 to be even better! their dreams back incredible, magic atmosphere, which Thank you for your support. allows young people to see past their illness and leave us feeling they are able to get on with their lives. Trust in us Royal Going north Volunteer Make a Approval of the border17 Training difference 19 www.ellenmacarthurcancertrust.org issue 4 inspire 3 10th anniversary Maxine’s story 2013 may be a special Maxine underwent treatment for Ewing’s Sarcoma at Great Ormond Street year for the Trust but Hospital (2002-2003). Now 20, and enjoying life in London, she gained for Maxine this year is AS-Levels in Philosophy, Psychology and English and works at a top American clothing store and as a restaurant hostess at The Shard. even more momentous. Maxine is the young girl whose “Practically the first question everyone “The friendships you build are so close it’s photo famously accompanied asks each other is ‘What kind of cancer as if they are five years ahead of themselves. Ellen MacArthur on her record- have you had?’ It’s as normal as asking Once you’ve shared your experiences of breaking round-the-world sailing people their name. cancer there are no barriers. I have voyage in 2005. “For the first couple of days you talk friendships that will last a very long time. While Ellen’s voyage was about your cancer then it’s barely “I went on my first trip with zero gruelling, uncompromising, mentioned. How much hair you’ve got, how confidence. But on the first evening I had Maxine’s image was a constant you walk or if you need to sleep doesn’t more fun than I’d had for a very long time. reminder to Ellen she was lucky. matter. It’s almost funny how casually I was very shy, and people had to talk to She had chosen her path. Maxine everyone treats the subject. When all you’ve me initially, but once the activities started was a child winning a battle with been used to is the seriousness of hospital, everyone joined in. I was just a 10-year-old cancer. She hadn’t had a choice. to laugh and talk about what you’ve been girl again; playing games and eating crisps, To Ellen, Maxine represented through is beyond words. chocolate and fizzy drinks, doing things you every young person who had “I thought I’d never want to talk could never do in hospital. battled cancer, showing more about my cancer. But I remember the “For the first time you also see young courage than she was. Theirs overwhelming sense of relief when we people who have been through the same was real triumph over adversity. were settling down to go to sleep and things as you and come out the other side. 2013 marks Maxine’s 10th one of the other children asked me about it. “I didn’t even realise how much I was anniversary in remission. Having You go from being on the verge of sleep to enjoying myself until I got home and was been on our first ever trip, and talking for hours, feeling for the first time in crying that I wanted to go back. Mum was several more since, she remains forever like you’re not the only one. stunned! She said there was a massive an inspiration to every young person you help us support. 03 04 06 0 0 0 2 2 2 Meet Maxine’s “The treatment side effects made Maxine depressed, had no self-esteem and never mum, Sue withdraw. She lost her hair, her eyelashes, made eye contact. her nails; the treatment made her distraught. “When she had the chance to go on She was 10 years old. the first Trust trip I thought it could be “ The Trust gave Maxine “Maxine refused to see anyone outside good for us both. I didn’t think she would her soul back; it’s saved the immediate family apart from one be interested as she still wouldn’t leave friend. She adopted a cancer world and my side, but she said yes. both our lives.” a non-cancer world. She was extremely “Arriving at Southampton she 4 inspire issue 4 www.ellenmacarthurcancertrust.org 10th anniversary change in me but only now I look back and can see that myself. The trip definitely made me more confident again. “Going through what I did at a young age shaped my life. I’m very adventurous, am always trying new things and making the most of the good times. “Socialising is very important to me, I’m a massive movie geek and love swimming. I really want to travel too, with South East Asia at the top of my list. I really value my independence and wanted to go out to work as soon as I could. “To have been invited back so many times is incredible. I know how I felt meeting young people that had recovered. You can see a future; that things will get better. All I can do is try to encourage others to have fun. Just keep having fun. That’s what the Trust taught me.” 07 08 09 10 0 0 0 0 2 2 2 2 was adamant she didn’t want to go. walking tall again, the crutch had “Maxine never talked about her cancer I agonised I was a terrible mother gone and she was full of excitement. but the trips gave her that opportunity. making my daughter do something she The change in her was incredible. It was very reassuring knowing she was didn’t want to. But as painful as it was “It still took time for her to fully return talking to others who had been, or were I still felt it was the right thing for us. to normal socially and emotionally but going, through the same things and she “Before Maxine went on the trip she that trip was the foundation that put us wasn’t bottling things up.
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