FOUNDATION REPORT

2016.2017 SUPPORT EDUCATION RESEARCH ADVOCACY SUPPORT EDUCATION RESEARCH ADVOCACY

“It’s Only Rare…Until It’s You” LEADERSHIP

Board of Directors President’s Council Global Medical Advisory Board Jim Crone, President Jerry L. Jones Matthew LaRocco, Vice President Kim Koehlinger Kenneth C. Gorson, MD, Chairman Patricia H. Blomkwist-Markens, Philip H. Kinnicutt Bart C. Jacobs, MD, Vice Chairman Vice President of International Activities Ronald B. Kremnitzer, Esq. Jeffrey Allen, MD Susan Keast, Treasurer Ralph G. Neas Vera Bril, MD Russell Walter, Secretary Diana Castro, MD David R. Cornblath, MD David R. Cornblath, MD K. Robert Doehrman Honorary Board Peter D. Donofrio, MD Elizabeth Emerson John D. England, MD Kenneth C. Gorson, MD Arthur K. Asbury, MD Jonathan Katz, MD Gail Moore Sue Baier Carol Lee Koski, MD Joel S. Steinberg, MD Henry Freedman* Richard A. Lewis, MD Marilyn Tedesco Thelma Gifford Robert P. Lisak, MD Jim Yadlon Angelica Hahn, MD Eduardo Nobile-Orazio, MD, PhD, FAAN Dominick V. Spatafora Professor Richard A.C. Hughes Gareth J. Parry, MD Shane Sumlin C Walter Nichols, III David S. Saperstein, MD Glennys Sanders Kazim A. Sheikh, MD Executive Director Joel S. Steinberg, MD, PhD Lisa Butler Pieter A. Van Doorn, MD Professor Hugh J. Willison, MD, MBBS, Founder PhD, FRCP Estelle L. Benson Gil I. Wolfe, MD, FAAN

*Deceased

2 GSB|CIDP Foundation International MISSION AND Support VISION STATEMENT

About Us Education The GBS|CIDP Foundation International is the preeminent global non-profit organization supporting individuals and their families affected by Guillain-Barré syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), and related syndromes such as multifocal motor neuropathy (MMN) through a Research commitment to support, education, research, and advocacy.

Our Vision Advocacy

Every person affected by GBS, CIDP, or related syndromes such as MMN, will have access to early and accurate diagnosis, appropriate and affordable treatment, and knowledgeable support services.

Our Mission

To improve the quality of life for individuals and families affected by GBS, CIDP, or related syndromes such as MMN by: • Creating and nurturing a global network of volunteers, healthcare professionals, researchers and industry partners to provide those affected with GBS, CIDP, or related syndromes such as MMN with support and the most current available information; • Designing and implementing public, medical, and professional education programs to increase awareness and improve understanding; • Funding research through grants, establishing fellowships, and using other appropriate avenues to identify the causes of and discover treatments for GBS, CIDP, and related syndromes such as MMN; • Structuring partnerships to engage in advocacy at the federal, state, and grassroots levels to advance our vision and mission with legislators and government agencies.

Annual Report 2016.2017 3 Dear Friends,

Thank you…Gracias…Merci…Grazie…Danke Sehr…Arigato…Do Jeh… Daw-Dyeh to our GBS|CIDP family from all over the world. Mere words cannot express how grateful we are for enabling us to live the mission of this organization. This year your support has empowered us to: • Present three one-day regional conferences • Host seventy-five US Chapter support group meetings • Re-design our website • Invite 15,000 friends to join a Walk & Roll event • Advocate on Capitol Hill for patient protections on healthcare reform • Grow our Center of Excellence program to 39 Centers around the world • Fund research in Zika- related GBS • Fund our grant program to over $3,000,000 in funding for research • Develop a 17 member Global Medical Advisory Board As we recognize with the world’s top Neuro-muscular specialists Although the past year has kept us busy, we remain committed to our our supporters, mission to why this organization started- to help the patient.

be assured that The description of our logo really tells our story. It represents disorders your presence that for a period of time, paralyze an individual and devastate a family. The three (blue) squares represent the darkness, both physically and is your true gift socially that encompasses the patient’s world. The light (green) square represents hope and recovery and arrival back into light. We are that to us and we square! are grateful. On the pages that follow, we tell the story of the many activities and projects, which have defined our year that make the light of hope and recovery possible. Above all, you are the core of all we do. As we recognize our supporters, be assured that your presence is your true gift to us and we are grateful.

Together we have much to share and many to serve.

My best to all,

Lisa Lisa Butler Executive Director

4 GSB|CIDP Foundation International FINANCIALS

Endowment Summary GROWTH OF GBS/CIDP ENDOWMENT Since 1999, Doug Swope, CFP® has been assisting The Foundation in the prudent management of the endowment assets. Doug’s brother John was 2006 $250,000 diagnosed with GBS in 1998. During Doug’s 25 year career he has been with industry leaders Merrill Lynch & Smith Barney, and in 2009 he and his father 2007 $750,000 co-founded registered investment advisory firm, Stillwater Capital in Wayne, PA. The firm currently has 550 clients and manages over $700 million. 2008 $650,000 As the endowment has grown from $250,000 to over $7 million through generous contributions, bequests and portfolio performance, the Board’s 2009 $800,000 fiduciary focus has always been on managing risk within the portfolio while striving to fulfill the mission of support, education, advocacy and research. 2010 $2,800,000 In an effort to minimize costs, the endowment utilizes low cost exchange traded funds and individual, high quality bonds. The exchange traded funds 2011 $3,000,000 allow for the creation of a well-diversified portfolio and the individual bonds seek to provide stability and income required by the Board. 2012 $3,500,000 As fiduciaries, the Board seeks to limit spending to no more than 4% of the aggregate portfolio. The Investment Policy Statement provides guidance to 2013 $5,500,000 both current and future Board members, with preferred allocations of: 60% Domestic Equities, 10% International Equities and 30% Fixed Income. 2014 $6,000,000 The Domestic Equity allocations are spread across large, mid and small companies. The Fixed Income allocations focus on capital preservation, 2015 utilizing short term investments to protect from the adverse effects of rising $6,300,000 interest rates. The aggregate portfolio is managed to focus on Total Return, protecting principal while trying to achieve reasonable levels of growth. 2016 $7,200,000

GBS/CIDP GBS/CIDP GBS/CIDP REVENUE EXPENSE ENDOWMENT

■ Corporate 46.9% ■ Patient Education & Support 37.1% INVESTMENT POLICY ■ Symposium 23.7% ■ Research 26.2% PREFERRED ALLOCATIONS ■  ■ Contributions 17.2% Symposium 9.8% ■ Domestic Equities 60% ■  ■ Fundraisers 12.1% Programs 8.6% ■ Fixed Income 30% ■  Advocacy 7.9% ■ International Equities 10% ■ Management/General 5.8% ■ Fundraising 4.5%

Annual Report 2016.2017 5 Support

“Serving members and building a community”

Creating and nurturing a global network of volunteers, healthcare professionals, researchers and industry partners to provide those affected with GBS, CIDP, or related syndromes such as MMN with support and “Our chapter the most current available information; And here is how we are doing it: meetings are a place and time to let it all go and 72 Chapter Meetings projected in 2017, be embraced” an increase of 18% from 2016 “A chapter meeting 140 volunteers nationally and 200 worldwide is“ a time we come together to learn from one another” 20,000 members were invited to Chapter Meetings in 2017 “Being a liaison is 1,500 new members nationally and 400 internationally the most selfless, received services since January 1, 2017 compassionate call to duty that I can perform” 44,000 members in U.S., 6,000 members internationally “Being a volunteer 4,000 new patient inquiries answered annually is being a light of hope” 100,000 newsletters mailed annually

WE ARE AN INTERNATIONAL FOUNDATION AND HAVE MANY VOLUNTEERS THROUGHOUT THE WORLD

■ Volunteers

6 GSB|CIDP Foundation International Support

U.S. VOLUNTEERS “ ■ Volunteers

Centers of Excellence — 2017

AMSTERDAM, THE NETHERLANDS DETROIT, MI ORANGE, CA Academic Medical Center (AMC), Wayne State Univeristy Group/Detroit University of CA-Irvine University of Amsterdam Medical Center OSAKA, JAPAN, KINDAI SYDNEY, AUSTRALIA DUESSELDORF, GERMANY University Faculty of Medicine University of Sydney Heinrich-Heine University Department of PARIS, FRANCE BALTIMORE, MD Neurology Groupe Hospitalier Henri Mondor, The John Hopkins University School of HOUSTON, TX Universite’ Paris Est Medicine and The John Hopkins Hospital The University of Texas Health Science PHILADELPHIA, PA BARCELONA, SPAIN Center at Houston (UTHeath) Perleman School of Medicine at the Hospital De La Santa Creu I Sant Pau KANSAS CITY, KS University of Pennsylvania BELGRADE, SERBIA The University of Kansas Medical Center PHOENIX, AZ University of Belgrade Clinical Neurology LONDON, ENGLAND Barrow Neurological Institute Clinical Center of Serbia King’s College Hospital PHOENIX, AZ BIRMINGTON, UNITED KINGDOM LONDON, ENGLAND Phoenix Neurological Associatess University Hospitals of Birmingham MRC Center for Neuromuscular ROCHESTER, MN BUENO AIRES, ARGENTINA Disease, National Hospital for Mayo Clinic Neurology and Neurosurgery Argentina Hospital Britanico ROTTERDAM, THE NETHERLANDS BUFFALO, NY LOS ANGELES, CA Erasmus MC University Medical Centre Cedars-Sinai Medical Center The University at Buffalo School of SAN FRANCISCO, CA Medicine andBiomedical Sciences, State LOS ANGELES, CA California Pacific Medical Center University of NY The University of CA – Los Angeles SALT LAKE CITY, UT BURLINGTON, VT NEW ORLEANS, LA University of Utah University of Vermont Louisiana State University TAMPA, FL CHARLOTTESVILLE, VA MILAN, ITALY University of South Florida University of Virginia Milan University, Humanitas Clinical and Research Center TORONTO, ONTARIO, CANADA COLUMBUS, OH University of Toronto, Tornonto Ohio State University- Wexner Medical MINNEAPOLIS, MN General and Western Hospitals Center University of Minnesota Medical Center WARSAW, POLAND DALLAS, TX NASHVILLE, TN Medical University of Warsaw The University of Texas Southwestern Vanderbilt University Hospital Medical Center WELLESLEY, MA NEW YORK, NY Saint Elizabeth’s Medical Center Columbia University

Annual Report 2016.2017 7 Education

Symposium Regional Conferences We were honored to share a spectacular weekend in San Antonio last September with 500 patients, caregivers, and friends old and new from South Africa to North Pole, Alaska and everywhere in between. You asked and we listened! NEW IN 2017 – Regional Our Biennial Symposium is our hallmark event, with our first being held nearly Conferences! Brand new to 30 years ago in 1988. While the structure will never change, we did decide our Foundation! A little spirit to take a new, fresh approach on curriculum! Our focus was on “Life After of a chapter meeting and a Diagnosis” with sessions covering alternative therapies, mindfulness, and pain- taste of a symposium – these management just to name a few. We hoped that these would provide a whole one-day conferences brought approach for our patient base and complement our scientific sessions, led by together local physicians, our incredible Global Medical Advisory Board. members, caregivers and Also new this year were our Physician One on One’s – a private, fifteen loved ones. minute dialogue with one of our Global Medical Advisory Board physicians. Happening in the Symposia’s Members were able to sign up in advance for these meetings, and based on “Off Years,” we will host these the overwhelming response, we look forward to offering these sessions for our conferences in different next event. locations all over the country. We also hope that you had a little fun! Our themed receptions; a Texan In 2017 we traveled to Fort Style Hoedown to welcome you all and a Closing Fiesta with our big Lauderdale, Baltimore and announcement – the location of our 15th Biennial Symposium! Chicago, and the response was outstanding! Our speakers included our Global Medical Advisory Board as well as SAVE THE DATE local physicians and our sessions maintained our 15TH INTERNATIONAL “Life After Diagnosis” theme. The curriculum included SYMPOSIUM insurance, zika virus updates, Physical and Occupational The GBS|CIDP Foundation International invites you Therapy, and more! to join us for our 15th International Symposium on November 1st-3rd, 2018 at the Hilton San Diego, Thanks to the incredible turn Mission Bay in San Diego, California! out, it’s safe to say that these This Symposium will be an incredible opportunity to learn conferences will be here to about GBS, CIDP, and variants from leading medical stay. We look forward to experts in the field, to meet other patients and families, visiting new cities in 2019! and to have fun! Stay tuned for registration information.

8 GSB|CIDP Foundation International Research

Grant Awards given by the GBS|CIDP Foundation International

2016 2017

FILIP EFTIMOV, MD, PhD KEVIN O’CONNOR, MD, PhD RAFFAELLA LOMBARDI, MD THE NETHERLANDS UNITED STATES ITALY ICOS, predictors of treatment Defining the contribution of B Probing the role of skin biopsy in response (ICOS-PREDICT) cells to CIDP pathogenesis CIDP,nodo-paranodopathies

CRISTOFORO COMI, MD, PhD PROF. EDUARDO UMAPATHI ITALY NOBILE-ORAZIO THIRUGNANAM, MD Assistant Professor of Neurology ITALY SINGAPORE Department of University of An Italian Multicenter Network Sr. Consultant Neurologist Piemonte Orientale for the diagnosis and therapy of Flavivirus and arbovirus associated Development of a Tolerogenic chronic inflammatory demyelinating GBS in South,East Asia vaccination for Chronic polyradiculoneuropathy (CIDP) Inflammatory Demyelinating and of its variants Proponent Polyneuropathy (CIDP) GANG ZHANG, PhD UNITED STATES

JULIA WANSCHITZ, MD Enhance peripheral nerve repair by KATHRIN DOPPLER, MD AUSTRIA modulating macrophage subsets GERMANY Analysis of antibody responses Effect of Anti-Contactin-1 against nodal/paranodal antigens Antibodies on DRG Neuron in an Austrian cohort of patients with Guillain-Barré Syndrome HELMAR C. LEHMANN, MD GERMANY Department of Neurology $150,000 Foundation Fellowship in 2015, 2016, 2017. University Hospital of Cologne DR. RUTH HUIZINGA, Rotterdam, The Netherlands. High innate responsiveness to microbial triggers predisposing to GBS: identification of genetic causal variants Loss of Schwann cell plasticity in $ CIDP: A central role for GM-CSF GRANT AWARDS GIVEN BY THE GBS|CIDP FOUNDATION INTERNATIONAL FROM 2004-2017 $61,037 $112,599 $85,000 $135,000 $125,000 $160,000 $140,000 $170,000 $170,000 $180,000 $160,000 $195,000 $226,700 $225,000

‘04 ‘05 ‘06 ‘07 ‘08 ‘09 ‘10 ‘11 ‘12 ‘13 ‘14 ‘15 ‘16 ‘17

Annual Report 2016.2017 9 Advocacy

Foundation Hill Day 20 advocates participated in 26 legislative visits for 2017. 100 Foundation members of Grass-Roots Advocacy group.

DOD PRMRP • Guillain-Barré Syndrome is now listed as a condition eligible for study through the Department of Defense Peer-Reviewed Medical Research Program (PRMRP). Military service members, particularly those stationed abroad, are at a higher risk for infection. Two-thirds of GBS cases occur following an infection and most commonly these 4 pillars of Health infections include gastroenteritis or respiratory tract infections; two prevalent illnesses amongst those that frequently travel abroad. Care Reform

The Foundation focuses on The Foundation supported other related non- the following elements of profits by attending PSI, AANEM and PPTA Hill Days health care reform: • Patient Services, Inc. (PSI) Hill Days are about supporting patient’s Maintain basic patient access to premium assistance, giving Hill offices the patient protections in ACA reform/ perspective and advocating for the importance of these programs. repeal proposals. • We have worked with American Association of Neuromuscular & • Maintain pre-existing condition discrimination prohibition. Electrodiagnostic Medicine (AANEM) to assist in rooting out the fraud in the EDX testing field. These fraudulent factors have an • Allow young adults to stay on their parent’s insurance until age 26. adverse effect on patients and ultimately lead to misdiagnosis. • Limit lifetime and annual caps on • We advocated with Plasma Protein Therapeutics Association insurance coverage. (PPTA) giving the patient voice in discussions about the necessary • Limits on out-of-pocket costs for access to therapies and the need for cost effective therapies. patients.

GBS|CIDP Advocates PSI’s 3rd party premium bill including CIDP patient and • Some insurance plans are exploiting a loop hole to discriminate staff member Kelly McCoy against rare/costly conditions. Many legislators and patients are participated in a broad unaware this is happening (and surprised it can happen). community effort led by the Cancer Society visited Senate • Congress can fix the loop hole and Health and Human offices and explained to them Services (HHS) could simply clarify the rule. the harm that would have • A new bill by Rep. Kevin Cramer (R-ND) will be introduced occurred without basic patient in September which the Foundation supports. protections through the repeal and replace debate.

Report Language NIH Funding • National Institutes of Neurological Disorders and Stroke – The The Foundation continues to Committee supports progress of increased research in GBS and CIDP request increased funding for • National Institute of Allergy and Infectious Diseases (NIAID) is working on National Institutes of Health hosting a State of the Science conference for autoimmune neuropathies. FY2018 ask of $36 billon.

10 GSB|CIDP Foundation International Report of Donors 2016-2017

Mary Collins Kenneth Marx William Cooper Michael Mattia President’s 1980 Society Gloria Cote Anna May High Legacy Circle Edwin Cridland Charles Mayberry Circle In recognition of James Crompton Enrica McCann The Legacy Circle donors who have given James Crone James McCarthy recognizes individuals William Curry Thomas McCullum In recognition of more than twenty who have named cumulative gifts Donald Dahlin Lila McKay donations. Since its Myron Daniels Carol Mensching the Foundation as a reaching $10,000 or founding in 1980, the Joan Decker Tom Metzler beneficiary in their more. President’s Circle Foundation has relied Rochi Demo Ann Millar Estate plans and have R. Kenneth Doehrman Rose Mitchell members demonstrate on the generosity named the Foundation leadership in Abby Dolliver Virginia Molenaar of friends to grow Betty Donelson Caroline Morrison as a beneficiary in philanthropy. This into the outstanding James Drue Anneliese Nathan their will, charitable group of leadership organization that it Excell Duncan Ralph Neas gift annuity, charitable David Eckstein Beverly Neuenfeld donors make financial is today. The 1980 trust, or similar vehicle. commitments of John Elligers Donald Nevers Society donors are Ronald Ellis Josephine Nicolosi All individuals who gifts that enable the the most loyal donors Mark Ensminger Beatrice Nilsen have included the greatest impact for and play a significant Virginia H. Ertz Nancy Nurnberg Foundation in their Ralph Feick Susan O’Briant the Foundation. In role in the past, estate plans, and have appreciation for their Joann Fenlon Cynthia Newell Oliver present and future Barbara Fisher Milton Orenstein made their intentions gifts, President’s circle of the Foundation. In Evelyn Force Carolyn Palmer known are invited members receive appreciation for their Shirley Frederick Ronald Pawasarat into membership in Mary Ellen Friedlander Robert Peterson special recognition loyalty, 1980 Society the Legacy Circle. throughout the year. Susan Gabay-Laughnan Matthew Pinto members will receive Santo Garcia Debbie Plimmer special recognition Linda Gawthrop Richard Plimmer throughout the year. Thelma Gifford Robert Polis Louis Adams Arthur Asbury David Gill Robert Prestwich Estelle L. Bensen Sue Baier Linda Gindt Jane Priour Ellen Burr William Beam Linda Gingras Thomas Reiland K. Robert Doerhman Estelle Benson Sieglinde Abendroth Kathy Goldberg Vivian Rothschild Ruth Elster Garrett Bergman Anne Ackerman David Greer Marlyn Rothstein Carolyn Fairman Calvin Bright James Adair Frank Grim Helen Rummelsburg Jeffrey Fihn Ellen Burr Louis Adams Marcia & Stan Grubel Lorraine Rumore Gladys Fortune Edwin Cridland Jose Ameijide Eric Gustafson Ann Santarlasci Ernest Hayden K. Robert Doerhman Richard E. Anderson Mimi Haggerty Patricia Schardt Susan Huebschman Marjorie Downey Kathleen Antonucci R. Dean Hartwick John Schilke Douglas Johnston Debra Harvey Jorge Arroyave Stephen Haydock Shirley Schleimer Monice Joy Poirot Ernest Hayden Arthur Asbury Norman Herms Wernert J. Schuler, Jr Ronald Root Marilyn Horan Joan Athey Loretta Higgins L. E. Schultz Anne Travalia Susan Huebschman Gregory August James Hoffman Elizabeth Schultz Kassandra Ulrich Jerry Jones Sue Baier J. Michael Hofmann Betty Stafford Chris Zaal Joe Maas Nancy Bailey Margaret Holdredge Brian Stahl, PH.D. Louis T. Mazawey Verna Bain James Horstmann Robert Stanley Ralph Neas Charles Bauer D. Jean Hubbs Pamela Stein Cynthia Newell Oliver Harold Becker Sharon Jarrell Joel Steinberg, MD, PhD Helen Rummelsburg Estelle Benson Jerry Jones Bryan Storm Patricia Schardt Mitchell Benson Carolyn Jukich David Sullivan Lawrence Stern Carla Bernay Diane Kaczmarek Barbara Szitta Jack Swope David Beymer Doug Kaiser Marilyn Tedesco Davol Tedder Philamaine Biffle John Kantzer Jon Toumey Marilyn Tedesco Barbara Blankenship Stephen Kates Joseph Tremari Anne Travalia Hannah Blanton Ryan Keefer Kassandra Ulrich Paul Votze Maureen Bozicevich Robert Kern John Wagner Ann Brandt Susan Kiechel LaVon Wankum David Brooks Philip Kinnicutt Hans Wehl Bettie Brown Gail Klein Kenneth Wells Mark J. Brown, M.D. Kim Koehlinger W.H. Werling Audrey M. Brucker Juanita Krokos Walter Whelan Carol A. Brusseau Barbara Kuzmitski Patricia White Joyce Brykman Ellen Lacey Elizabeth Widdifield Gloria Burke Mimi Lakind Marjorie Wilchins Ellen Burr Sarah Lammonds Edna Wilken Barbara Butler Lu Lawrence William Willever Lisa Butler Barry Leitman Midge Winchegter Marcelle Callens Jay Lindauer Vincent Wyles Tonya Charleston Harriette Lion Jim Yadlon Edna Cicerelli Charlotte Litwin Rowland Yeo Frances Clark Barbara Luhrs Lois York Marilyn Clark Dorothy Mackles Helen Zasadny Luey Clough Judy Macor Mark Cole Kenneth Marshall

Annual Report 2016.2017 11 Report of Donors 2016-2017

Gail Anderson Donna Bankston Karen Bell Patricia Blomkwist-Markens Cecil Susan Anderson Eileen Bannon Leni Bell Pia Bloom Donors Barbara Anderson October Bansil Janet Belz Randy Bloom Timothy Anderson Ellen Baralo Fran And Dan Benbaruch Joyce Blosberg January 1, 2016– Richard E. Anderson Lorraine Baralo JoAnn Bencivengo Susan Blough August 1, 2017 Michelle Andreas Dianne & Jimmy Barberio Jane Bendell Stacey Blumberg Terri Andrew Quintin V. Barbieri John Benedetto Helene Blumenau Leslie Andrews Richard Barbour Peter Benevides Jay Blumenfeld Paul Angelino Ray Barbour Erin & Rob Benner George H. Blythe Thomas Abbage Victor Angry Mary Bard Becky Bennett Leah Blythe Dan Abbene G Angus Austin Barker Joanne Bennett Gia Boada James And Abby Jeffrey Antman Joseph S. Barker Joy Bennett de Cuervo Jonathan Bobb Josephine Abdo Kathleen Antonucci Diane Barlow Suzanne Benson Casimir Bobowski David Abel Lorne Appleton William Barnes Howard Benson Lisa Bodner Riki Abellano Steven Archey Chris Barnes Ann & David Benson Leanne Bohlender Carl Abend Yvonne Arellano Roy Barnes Estelle Benson Betty Bohn Sieglinde Abendroth Virginia Arlotta Robert Barnett Mona Benson Judith Boissicat Ken Ablard Laura Armbruster Carol Barney Mitchell Benson Krystle Boland Lynne M. Abraham Norbert Armin Stephen Barnum Leanna Benson-Weatherspoon Peggy Bolchoz Sy Abrahams Joan Armstrong Diana Baron Ricardo Bentin Harry Bold Barry Abrams Kerry Armstrong Luigi Barone Nancy Berberich Ryan Bolonesi Ira Abrams Susan Arndt Matt Barron Alison Berg Janette & Joby Bolton Sandra Abshire Richard Arndt Catherine Robinson Barron Garrett Bergman Robert Bommer Anne Ackerman Marcella Aronson Sandra Barry Spencer Bergner Evelyn Bond Charles Ackerson, Ph.D. Om Arora Rose Barsanti Rachell Berkowitz Beverly Bonitatibus Sara Acton Carolyn And Shawn Arshadnia Jane Barth William N. Berkowitz Robert Bookbinder Thomas Aczel Arthur Asbury Mary Bartlett & Gina Pagonis James D Booker James Adair Karen Ashkenazi William Bartlett Doug Berle Timothy Boone Lisa Adamich Kelly Ashworth Tom Bartlett Christian Bernaert Cameron Boone Terri Adams Howard Askelson Marlene Barton Brenda Bernard Martin Boone Brad Adams Joan Athey Philip Bartosiewicz Carla Bernay Jonathan Booten Dennis Adams Randy Atkins Stephanie Baseman Shirley Bernhard Edward Bopp Annette Adams Cabrina Attal Laura Basilico Caryn Bernstein Karen Borgeson Barbara Adams Marisa Aubin Stacie And Michael Bass Allan Bernstein Katie Boring Dolores Adams Edward Augustine Lori Bassano Monserrat Tammy Berrings Kerry Borst Louis Adams Andrew Ault Mary Bast Cassandra E. Berrum Michael L. Borsuk Gary Adams Tina Velantzas Austin Brooke Bastello Susie Berry George I. Borsuk Jeffrey Adams Susanne Auten Laurel Bateman Angelo Bertani Anthony Borzillo Debbie Adarve Mary Ann Autovino Caroline Bateman Kenneth Berthelot Dennis Bosch Elkin Adarve Surya Avantsa Dayna Bates Jim Bertrand Jocelyn Bosick Jane Addison Molly Aviles Barbara Anne Bauer Irv Betch Sharon Botach Debra Agrell Tehila Azaria Marie Bauer Mark Betch David Botelho Nancy Ahern Len Azzaro Barbara Baum Janet Bethel John Bouda Wasim Ahmad Bernadette Babcock Ilana Bauman June Bevens Gary Boughan Roger Ahntholz Annette & Bob Babrauckas Elissa Bayle Clark P. and Margaret J. Beverly Laura Bovard Concetta Aiello Diaz Fran Backofen Ronald Beabout Patricia Bevis Diana Bove Claudia Alba Karen Baczewski Kathy Beal Richard Beyer Tonya Bowen Gabrielle Aldrich Dawn Baddock Elizabeth Beall Dolores Bezenah Dorothy Bowen Maura & Herb Alexander Shahram Badrei Eileen Beaman Gunvantbhai Bhakta Zena Bower Sammy & CC, Jenny & Eric and, Jason E. Baer Donald Bean Jesse Bidanset Chelsea Bowers JP Alexander & Frederich Stephen & Nancy Baer Lillian Bearese Janice Bihler Bruce Bowers Daniel Alfonso Joshua Baer Aaron Beasley Teri Billington Linda Bowman Phil Alford Mary Baer Larry Beasley Brett Binkley Suzanne Bowman David Allard Lisa Bagley Blaire Beathard David Birken Jamie Box Nancy Allen Roxanne Baier Pamela Beaudet Jane Birkholz Gerald Boyd Michael Allen Nancy Bailey Timothy Beck R. Donald Biron Jane Boyd Ann Allen John Baird Lynn Beck Sandra E. Birzon Cristina Boyer Lynne Allen Beverly Baker Carol Becker Nicole Bishop Charles and Carolyn Boyer Gene Alley David Baker Marc Becker Craig Bishop Katherine Boylan Jon Almeras Deann Baker Noelle Becker Christy Bizzell Henry Boyter Nancy Almus Karen Baker Rose Becker Denise Blackford Maureen Bozicevich Mary Aloe Susan Baker Harold Becker Amy Blaha Brian P. Brackeen Sarah Altman Connie Bakker Robert Becker Sheila Blaine Crista Brackley Marjorie Altman Bershad Diane Balaga Allan Beckett Judy Blair Wendy Bradley Greg Alvarez Melissa Balbuena Francine Beckman Walter Blair Peter Brandeis Tom Alves William L. and Joan W. Ball Joanne H. Beckman Tove Blake Dorothy Brandstatter Elisângela Alves Robert Ball Julie Beckwith Geraldine Blake Doug Brandt Laura Alwir Katherine S. Ball Vicki Beebe Jack Blakley Jessamine Brandt Joyce Amber Holly Ballance Joel Beeghly Pat Blanchet William Brandt Jose Ameijide Anita Ballard Barbara Beers Laura Bland Ann Brandt Sara Amin Kim Ballard Liduvina Beesecker Barbara Blankenship Joel Branin Linda And Amos Amit Cheryl Balleto Jane Beesecker Cliff Blasberg Jennifer Brannen Karen Amit Michael Ballough Lynn Beesecker Margaret Blass James Brass Kathy Anderson Andrius Balukas Mary Beidler Frank Blatter Michael Brathwaite Laura Anderson Cielo Baluyot Margaretha Beirne Rochelle Blaustein Gail Brauer Brooke Anderson Steven Bang Jean Beisser Cheri Blauwet Priscilla Braun Cassie Anderson Sharon Banken Lizzie Bell Jamie Blecher Peter Bray Victoria Anderson Robert Banks Marissa Bell E. Frederick Bloemker Vern Bredehoft

12 GSB|CIDP Foundation International Report of Donors 2016-2017

Kristi Brehmer Nancy Burleigh Joseph Cashman Robert Breneman William Burleson William Cassady Stuart Breslin Beverly Burleson Frank Cassano Donna Bresser Grayson Burlingame Joseph Cassara Duane Brezinski Scott Burlison Kathy Cassella Dottie Reeder and Lori Burns Jill Castellano Brian Kuemmer, Melissa Burns Renee Castelluzzo Lynn Bridgman Tom Burns Carly Caster Elaine Brief Deborah Burns Diana Castro Danielle Brierley Rodney Burnsedr Julie Castro Marie Brill Ellen Burr Paul Cataldo Robert Brimer Lori Burroughs Denise Catone David Brinkman Matthew Burton Valerie Caudill Cristina Reche and Inigo Bro Murray Burum Daniel Cavallo Lindsay L Brockell Dale Busacker Tarena Cernuto Jeanne Brody Robin Busch Ryan Ceroky Geraldine Brogan Robert Buscher Theresa Cerullo Lansdown Brokers Heather Bush Gail Cerutti CRYSTAL Missy R. Brong Kenneth Bush Teresa Cerutti Sadie Brookman Cynthie Bush Joanne Cesiro Joann Brooks Ann Bushek Jennifer R. Cessna “It didn’t occur to me that there was anything Audrey L Brooks Hannah Buslee Rezkallah and Mirva Chahrestan Rayford Brooks Glinda Bustamante Shailendra Chandwani major going on until it effected my hands and David Brooks Charles Butkus William Chaney feet constantly. When I was finally diagnosed, I William F. Brothers, Jr. John Butler Mary & Herberto Chapa know this sounds weird, but I was relieved. I was David Brotherton Dorothy Butler Carol Chaplin actually more worried that he wasn’t going to Stanley Broudy Barbara Butler Gloria & Ken Chapman Catherine Brougham Lisa Butler Elizabeth Chappell find anything. Even when he did diagnose me, Lawrence Brown William Butterfield Allison Charest I didn’t have the full picture. He said ‘Well it’s Lisa Brown Shelly Byers Donna Charron CIDP and I’ll see you in a few weeks when you Missy Brown Darrell W. Byrne Jennie Lee Chastain Tiffany Brown Felix Cabreja Nancy Chattin start IVIG’ and I had to go home and look it up Jainey Brown Lisa Cain Shailesh Chavan myself. I knew my life had changed. I knew going Yvette Brown Dolores & Jose Cajigal Regina Chavis forward it wasn’t going to be the same. Nancy Brown Jeffrey S. Caldwell Gail Checkett Beatrice L. Brown Charlene Caldwell Dorothy Chester With treatment, it hasn’t gotten me to where Susan Brown Debra Calhoun Rossitza Chichkova Patricia Brown Rachel Calhoun David Chickering I want to be, but I’m better than I was. Some Eugene Brown Geraldine M. Cameron Lisa Childers things get better and some things will get worse Katherine Brown Michael M. Cammarata John Childres with CIDP – it’s fluid. It’s constantly changing. It’s Annabelle Brown Cindy Camilari Fran Childress Phyllis Brown Booster Campaigns Joseph Chirieleison the randomness, it’s the not knowing. Robert Brown Billy Campbell Trisha Choate Kelly Brown Carole Campbell Libby Choi-Ryu My hope is a cure #1. If not, my hope is to be Mark J. Brown, M.D. Valarie Campbell Kathy Chorba the best Crystal I can be with this. Do you know Peggy Browne Mary Jo Campbell Harshita Chowdhary Rose-Marie Browning Jean Campbell Diana Christian Monty Python and the Holy Grail? The scene Joyce Bruce Barbara C. Campbell Theresa Christie with the Dark Knight? “Come over here I’ll kick Audrey M. Brucker Lisa Canellas Thomas A. Christo you with my good leg! I’ll fight you with my good Mike Bruckner Barbara Cannon Mary Christopher Butlin arm!’ That’s going to be me! I’m the Dark Knight, Nerissa Brueckbauer Holly Cannon George Ciampolillo Sherri Brueggemann Gloria Cano Antonella Ciancio and no matter what this disease does to me I’m Jon Brundage Phyllis Canon Jack Ciattarelli going to work through it and try to help people.” William Brunelle Emmett H. Cantwell Barbara Ciccone Clayton Bruner Anthony Caporrino Maxine Cieri Carol A. Brusseau Thomas J. Cappello Alex Cifelli Richard Bryan Laura Carbonaro Wendy Citta Ellen Coakes Anna Columbus Delila Bryer Bruce Carder Joseph Clarici Lindsay Anne Cobb Connie Comitor Joyce Brykman James Carey Ann Clark Rosemary Cochran Blt Communications Joy Bryson Lisa Carey Joanne Clark Mrs. Reeves Cochran Susan Comrie Theresa Buchanan Jill Carman Suzanne Clark Suzanne Cody Tricia Comstock Roy Buck Ronald Carmichael Robert and Gail Clark Gianna Coffman Joanne Conahan Tifanie Buckley Brenda Carmichael Ronald Clark Jerome Cohen Pamela Condit Marsha Buckmaster Debbi Carnes Rick Clark Mimi Cohen Melissa Conger Leonard Budd Nancy Carney Frances Clark Hannah Cohen Linda Conley Christian Buettner Ned Z Carp M. D. and Darla Clark Ethan Cohen Sharon Connolly Diana Buhrfeind Kate G. Carp Chris Claunch Denise Cohen Gary Conrad Rex Bullinger Caitlin Carpenter Ken And Karen Cleaver Carol Cohen Dakota Consulting, Inc Chris And Terri Bunton Mauricio Carrion Nicole Clem Jack Colantonio Doreen Conway Gail Burch Savannah Carrizales Emily Clements Audrey M. Colavolpe Edwin Cook Paula Burcham Mary Carroll Kimberly Clerkin Carryl Cole Marjorie Cook Sylvia Burcham Tom Carroll Cindy Clifford Morgan Cole Mary Cooksey Russell Burden Lucille Carwile Becky Cline Mark Cole Mary Alice Cooler Juanita Burgess Domenick Casale Ernest Clough Doreen Colella Laura Cooley Margaret Burke Michael D. Casey Luey Clough Betty Coleman Pamela Cooley Casey Burke Thomas Casey Eric Clouser Elizabeth Coleman Margaret A. Cooley Michael Burke Judy Cash Neil Clouser Msgt Lonnie and Doris L. Collins Kathryn Coon David Burkhart Bettie Cashion Kristen Clouser Frank Collins Kathy Cooper

Annual Report 2016.2017 13 Report of Donors 2016-2017

Anne Cooper Philip Daccord Peggy Dettwiler Stacia Durbin Joanie Esparza Jeffrey Cooper Mary Daghir Jerry Deutsch Frances Durbin Roni Espen, RN William Cooper Matthew D’Agostino Ruthann Devine John Durda Ronni Essrog Nelson Copeland Donald Dahlin Frank Devito Sovannara Dy Richard Etherton Katie Copp Paul D’Alessandro Jim Devoy Carmon Dye Ellen C. Etzkin Dave And Erica Corbet Michelle Daley Joe DeWeese Gerald Dyess Nicole & Jan Eule Arthur Cordisco Joline Dalton Debra Deweese Warren Eachus Scott Evans David Cornblath Sharon Daly Shaffina Dhume Lynn Eagleson Robert Ewbank Leslie Cornell Kirstin D’amico Ronald Dias Amy Early Reginald Exton Neil Cornell, MD Irvin Dana Gerald Diaz Clare Easley Mashburn Nancy Eytcheson Linda Cornell, RN Gerald Daniel Claudine Dickson Tom and Sally East Gustavo Ezcurra Maureen Nevin Corrigan Joseph A. and Allison B. Daniels Bonnie DiCostanzo Paul Easton Raymond Fabian Jeanne Corwin David Daniels Donna DiDionna Barbara Eastwood Dessie Fafoutis Nicky Coscas Michelle Daray Marilyn Dielmann Wallace Eberhard Grace Fahlstedt Patricia Cosgrove Robert Dare Patti Dieterle Mary Eberlyn Elizabeth Fairbrother Gloria Cote Tom Dautel Sandra Digiovanni Jerry Eberlyn Anne Falk James Cottrell Louise Davidson Christine Digiovanni Christopher Ebner Jack Fallat Garald B. Cottrell Gregg Davies Clara Diguardi Ken Ecker Morrison Family Laura Couchman Patricia Davies Michael Dillon David Eckstein The Harper Family Ruby Coutermarsh June Davis Jan Dillon Aglae Economides Molina Family Joanne Cowan John Davis Julie Dillon Julie Economus Vince Farace Charlene Cowell Richard Davis Misty Dimick Bruce and Eileen Edelson Harriette Farber Jessica Cox Martin Davis Mark Dinello Lynne Edens August Farfalla Kayleigh Cox Jenny Davis Darlene Dinerstein Darwin R. Edens Chris Farmer Don Cox Gail Davis Nicholas Dinunzio Diane Edgar Deb And Charlie Farrell Frank Cox Ronald Davis Linda J. DiPietro Albert Edney Catherine Farrell Jody Cox Sarah Davis Kim Dismuke Anna Edwards Maryanne Farrell Lydia R. Cox Brian Davis Sandy Ditullio William Edwards Lisa Fasnacht-Hill Daniel Cox Teresa Davis Emily G. Dixon Laura Edwards Francis Faulkner Elishia Cox Wiggins Sara Davis Pam Dobos Kathy Efthimiades Gabriele Faust-becker Kimberly Coye Karyn Davis Mary Lou Dobrydnia Barbara Ehrgott Ronald Faye Leslie Coyne Nancy Davis Marie Doherty Amy Ehrlichman Stanley Fazekas Jan Crabb Julie Davison Joan Doi Robert Eicher Robert Fazen Brenda Crafton Beatriz Day Roger Dombrowski Laura & Karl Eichler Alan Fazzari Tom Craig Jean de Elorza Debbie Donahue Nancy And Jim Eichman Amy Fedele Catherine Craig Ma Rowena De Leon Ellen Donald Marilynn Eiklor Todd Federle Linda Crandall Marilyn Deak Kath Donaldson Kathryn Eisendrath Rogers Vincent Feehan Jeff Crane Allison Dean Betty Donelson Mark Eisert Daniel Feggestad Gene Cravens Ray Dean Ellen Donnarumma Thomas Eisert Kathleen Feigenbaum Maureen Crawford Judith Dean Mark Donnelly Erin El Issa Jean Feighnar Kristin Crawford David Dean Emily Donoughe Linda Elam Amy Feinberg Julia Crawford Regina Dearden Martin Donow Melissa Eldredge Karen Feldberg Don Crawford Joni Deardorff Joan Dooley Vania A. Elizondo Martinez John Felps Karen Crawford Betsy Dearing H. Kathleen Dooley Marcia Elkins James Fels Ignition Creative Esther C. DeBra Elvira Dorcas John Elligers Joann Fenlon Carolyn Cresent Joan Decker Maria Dospil Jennifer Ellis Joanna Feret Edwin Cridland Janice DeDora Jeanette Doss Craig Ellis Sarah Ferguson Susan Crocco Susan Deering John Dougherty Jody Ellis Edward Ferguson Jim Crone Diane DeFilippo Marla Doughty Ronald Ellis Elizabeth Feria Michael Crone Mary Lou DeFillippo Merriel D. Douglas Sharon Ellis Joseph Fernandes Ginger Crooks Paul Defiore Donald Douglas Virna Elly Chris Ferrans Robert A. Crossley Beth Degen Wayne Downer Theresa Elrod Samuel Ferrar Martha Crotts Karl Dehmel Marjorie Downey Ruth Elster Alexandra Ferreira Sara Crowe Jutty Delaney Joanna Doyle William Embree David Ferrel Peter Crowe Juan Deleija James S. and Evon Draeger Carlene Embree Theresa Fetter Robert Crowley Delilah Deleon James Drakos Elizabeth Emerson Sharon Filips Jonathan Crumbley Maria L. Delgado Shayla Draper Larry Emery Emily Fillmore La’Verne Crumpton Dorita Delijani- Sabety Meg Drew James Emison Laurel Fillmore Sandra Cruz Lucille Dellegrazie John Driscoll Wendy Endelman Laurie Findeisen Sonia Csencsits Lisa Del’Re Robert Drozd David Endelman Susan Findley Kenneth Cuculich Joseph T. DeLuca Nicole Druga Amelia Endo Elizabeth Findley Brian Cuddy Amy Demacena Cruz Drummond Holiday Eng Nancy Fink Jeremy Cugle Stacey Dematos Larry Drummond Elaine Engelhart Julie Finn Mildred Cunningham John Dembeck Jolanta Dryden Shane English Stephen Finocchio Chris Cunningham Rochi Demo Noreen Dubay Shirley Entwistle Sara Fisch Stephen Curet David DeMonte Donna Dublo Charles Entwistle Barbara Fisher Kenneth Curitore Lisa DeNardi Susan Dudley Margaret Eppelett Charli Fisher Alexandra Currey John Denby Michael Duffy Margaret Epplett David Fisher Terry Curry Barbara Denicola Ron Duncan Scott Epstein Wendy Fisher Eleanor Curry Carl DeNisco Sally Duncan Thomas Erchick Saul Fisher William Curry Dacia Denison Chris Duncan Claudio Ercolano Ralph Fishman Elizabeth Curtin Bea Dennis Kara Dunford Jennifer Erickson Bill Fitzpatrick Yolanda Cusaac Angela Dennison Brad Dunlap Katie Erickson Jen Flanagan Lisa Cutcliffe Tina Depaulis Cara Dunlop Nicole Ertel Bill and Carrie Fleoa Howard Cutler Frank DePrizio Ronald Dunn Virginia H. Ertz Archibald Fletcher Nanette Cutler Peggy Dervitz Ralph Dunn David Ervin Diana Flores Tammy Czoka Nikesh Desai Tinamaria Dunn Gary Erwin Alex Flores Dean Dablow Andrew Desmann Laurie Dunson Jennifer Eshelman Adrian Flores

14 GSB|CIDP Foundation International Report of Donors 2016-2017

Kaila Yolanda Lopez Flores F W “bill” Fussell Susan Gionfriddo David Greenberg Joanne Hamill Pedro Flores Frances Gabay Gabrielle Gionfriddo Morrison Sara Greene Bridget Hamilton Salvador Flores Susan Gabay-Laughnan Arthur Gionta Penina Greenfield Mary Ann Hamilton Christine Floyd Meredith Gadbois Virginia Giritlian Lesley Greenspan Joy Hamilton Paul Flynn Lawrence Gadsden Scott Gitlin Ronnee Greenstein Tammy Hammonds Dawn Flynn Peter Gaewski Robert Glaser David Greer Trisha Hamzeh Marie Fogarie Chris Gagne Chelsea Glasmann Kay Gregg Peter Hand Amy Fojtik Sylvia Gagnon Adele & Jerome Glassmith Tim Gregorek Nelly Handscombe Carole Foldenauer Kathleen Gaillard Darlene Glaus Rex & Annetta Gregory Nikisha Handy Phyllis Foodim Ricardo Galinato Carol Gleicher Daniel Gregory Joan & David Hanisco Evelyn Force Colleen Gallagher David Glover Chris Gregory Helen Hanna Kenneth Force Eleanor Gallagher Theresa Glynn Charles Greiner Harvey Hanna Jeanie Ford Margie Gallt Stephen Gobel Ruth Grening David Hansen Shirley Fornek Nick Galt Janice Godbold Beth Griesser Paul Hanson Rick Forney Mike and Nicole Gambale Megan Goethals Shawn Griffin Karen Hanson Sandra Forsyth Edith Laverne Gambles Mary Ann Goetz Ed Griffin John Harchar Chris Fortney Kathy Gannaway Aron Golberg James Griffin Eleanor Harder Michael Fortwengler Wendy Ganza Nataly Gold Kevin Griffith Dawn Hardiman Richard Foster Sheryl Garber Marjorie Gold William Griffith Suzanne Harding Jeff Foster Michelle Garcia Susan Goldberg Steven Griffiths Ryan Hargraves Gary Foster Danielle Garcia Kathy Goldberg Melvin Grim Cinde Hark Hannah R. Foster Santo Garcia Ilene Golden Frank Grim Kara Harlan Mary Ann Foures-Needham Tim Garcia Michael Goldenfeld Caroline Grimes Shelba Harlan Bonnie Fowkes Karrie Garcia Sue Goldman Greg & Ardie Grimes Ted Harmeyer Marie Fox Stacie Gardner Joan Goldman Allyson Grinstead Anthony Harris Diane Foxman Bruce Gardner Leonard J. Goldner Bobby Grinstead Olga Harris James Fracassa Betty Garelick Dennis Goldsberry Joseph Griskowitz Jann Harris David and Barbara Francis Sonya Garfinkle Elaine Goldstein Susan Grogg Louvon Harris Linda Francischetti Christian Garner Steven Goldstein David Gross Jason W. and Angela S. Harris Scott Francischetti Toni Garnhart Norman Goldstein Kathleen Grove Les Harris Michael Francischetti Marybeth Garraty Linda Goldware Conchita Grsham John Harris Wayne Francischetti Mollie Garre Michael Goliver Timothy Grube Steven Harris Patrick Frank Mike Garrett Ken & Sue Goliver Marcia & Stan Grubel Catherine Harrison Suzy Frank Dana Garrett Gayle Gonthier Bell Fred Gruber Clint Harrison Sara Frank Ronald Garrett Dan Gonzales Jade Gruner Kennny Harrison Bill And Karen Franklin Don Garrison Jessica Gonzalez Sabine Gudas Deborah W. Harrison Churchill C.Frankliln, M.D. Diane Gaston Marco Gonzalez Karen Guerrero Dave Hartenbenger and Mary Franklin Michelle Gauder Jasmine Gonzalez Karra Guess Pamela Hartmann Joseph Franzoni Bill Gausch Courtney Goodfellow Alfredo Guevara R. Dean Hartwick Shirley Frederick Dennis Gauthier Sara Gookin Kristin Guinter Evelyn Harvitz Sheryl Frederick Brian Gaverth Michael Gooseman Cheryl Gulish Mark Harwell David Frederick Taine Gavin Marilyn Gordon Sharda Gupta Ashar Hasan Charles Freed Linda Gawthrop Lynda Gordon Pia Gustafson Corky Hastings Andy Freedman Julie Gazinski Dennis Andrew Gordon Ross Gustafson James Hathaway Patricia Freeman Kari Geiger Nancy Gordon-Michaels Eric Gustafson Arthur Hattler William and Louise French Gilad Gelfond Elizabeth Gorelik Trip and Lisa Guthrie Robert W. and Karen L. Haueisen Miles Frey Deborah Gelinas Joyce Gorka Jesse Gutierrez Sharyl Haugen Janice Frey Debra Genc Kenneth Gorson Muriel Guttenplan Roni Hausch Jenkins Mary Ellen Friedlander Eugene Gentile Sharon Gosney Herman Haase Danelle Hauser Tena Friedman Melissa Gentry Jennifer Gould Linda Habelt Wes Hawkins Laura Friedman Susie Genualdi Francis Gould, Jr. Andre Hadjioannou Larry Hawkins Christine Friedman Amalie George Ruth Grace Susan Haedicke Ernest Hayden J. Elaine and Mark Friedman Carl & Judy Gerhardt Susan Gradwohl Patti & Michael Hafley Stephen Haydock Sachi Friedman Jeffrey Gerland Donna Graessle Adam Hafley Hilda Haygood Jack Friedman Fred Gervasoni Bridget Graham Blake Hafley Jack Hays Kenneth Friedman Kathryn Giambri Jimmy R. Graham Leslie Hagan Janice Hazelcorn Kristin Frierson Marta Giammarino R.Ph Jessie Radford Graham Mimi Haggerty Lyda Hazzard Beverly Frink Michelle Gianotti Betty Graham Grethe Hahn Janice Head Linda Fritz Tim Gibbons Sandra Grant Gretchen Haight Brian Hecht Brandy Fritzen Melanie Gibson John Gratton Maxim Hajek Amy Hecht Timothy Frohlick Thelma Gifford Liza Graves Emily Hakim James V. Heck Patricia Frost Geraldine Giglio Garland Gray Marvin Halbert Christine Heckert Dani Fry Michael Giglio, Ph.D., Guy Gray David Haley Thomas Hedge, M.D. Lisa Fulks CDT, CCA Spencer Gray Gay Hall David and Terri Hedman Michael Fullam Raymond Gilbarte Debby Gray Bruce Hall Christine Heer Becca Fuller Kim Gilbert Brian Graybow Pat & Ray Hall Dean Heffelfinger Patsy Fuller Douglas M. and Helen Gilbert Edward Graybow John Hall Kay Heflin Leora Fuller Lois Gilbert Marilyn Grech Joan Hall Barbara Heft Patricia Fullerton Lillian Gilbert Diana Greco Chris Hall Natasha Heidlage Kimberly Funk Janet Gilkeson Jennifer (Steinberg) Green Teresa Hall Veronica Heidler Ellen Funk Jeffrey Gill Robert & Gerry K. Green Mae A. Hall Henry Heilbrunn June Funkhouser Mike And Sarah Gill Eileen Green Bronwen Halliwell Mary Lou Heim Sandra Furino Joyce Gillespie Michael Green Peter Halverson John Heindel Martha Furniss Monica Gilroy Shannon Green Marion Halverson William R. Heinrich Bob Furniss Rosalie Gilroy Rebecca Green Rick Halvorson Dan Heismann Julie Furst Linda Gingras Kevin Green Miles Hamada Kelly Heitkamp Francine Furtado Amanda Gino William Green Terry Hambel John Heldman Larry and Ursula Fury Vito Gioia Janice Greenberg Mark Hamel Melanie Helfrich

Annual Report 2016.2017 15 Report of Donors 2016-2017

Patti Helling Shannon Holleman Jeremy Impson Volker Hellwich Mark Hollern John Indyk Karin Hellwich Paul Hollinger Verona Ingle Frank Helm Evelyn Holmes Linda And Bob Ingram Janet Helms Robert Holmes John Irwin Helen M. Helms Sally Holmes Rachel Isaacs Essam Helmy Samantha Holvey Jeannette Ivey Gary Hendershott Josie & Lillie Holzach Kristal A Izydorczyk, DMD Janet Henley Amanda Hood Joseph and Faye Izzo John Hennessey Cindy Hooks Patricia M. Jackson Wes Henrikson Dwayne Hooks, Phd Tyra Jackson Larry A. & Barbara Hensler Lorna Hoopes-Hardt Stephen Jackson Jane Henson Erin Hopkins Gregory Jacob Bart Henson Dennis Hopper Jeannine Jacobi William Henstock Patricia Hora Robert S. Jacobsen Nancy Herlin Mildred Horne Barbara J. Jacobson Wendy Herman James Horstmann Lisa Jacobson-Katz Amy Herman Robert Horwitz Frank Jaeger RAY Gerry Herman Amanda Hostetler Sasha Jagadich Anthony Hermans Nova Hou Albert & Sheryl Jamail Norman Herms Gary Hough Matt James “I developed a stomach virus and gradually Lucila Hernandez Paula Howard Steve & Cheryl Jamison became weak. I knew that something was Lucas Hernandez Karen Howard Hannah Janal Javier Hernandez Alita Howard Martha Jandrisevits wrong. I drove to the nearest hospital where Micaela Hernandez John Howard John Janes they evaluated me and I was told to go home Gregory Hernandez Elizabeth Howard Edward Janicki and take liquids and bedrest. The next day I Jackie Heron Dianna Howard Kathy Janing just plopped on the floor. I went to another Ketha Heron Lois Howard Laura Janitz Christopher Herrman Leslie Howard Jerry Janos hospital where I was given a spinal tap and I was Paul Hersch Shirley J. Hruby Claudia & Dave Januchowski diagnosed with Guillain-Barré Syndrome. Karen & David Hershberg Steve Hu Sid Jarnagin Joey Herzer Bess Hubbard Sally Jarve I felt so alone because I didn’t know anyone else Nava Herzog Susan Hubbell Edward P. and Frances B. Jarvis Susan Heyman Diane Hubbling Natalia Jasinski who had GBS. Wesley Hicks Jeanne Huber Keith Jaworski Candace Higginbotham Thomas Huber Brenda Jay I received an invitation from my local volunteer Lisa Higgs Dan Huberty Peggy Jeanlouis and he invited me to one of his meetings. I Stacey Hilburn Kelly Huckaby Gregory Jeckovich Victoria Hildner Alicia Hughes Eloise Jergeson went there and was able to see the support the Daniel Hilgart Dorothy Hughes Sue A. Jester Foundation provides.” Charles Hilger George Hughes Virginia Jevack Suzanne Hill Ryan Hughes Felix Jimenez Kevin Hill Melissa And Dan Hughes Alexis Joachim Greg Hill Deidra Hughes Kasia Johansen Maria Jordan Louise Kass Nancy Hill Angela Hui Sue-Ellen Johnson Alma Jorgenson Stephen Kates Wayne Hill Norm Huie Joann Johnson Audrey Rose Joseph Jeanne Kathrein Julie Hill Mary Margaret Huizinga Pat Johnson Leon Josephs Barbara Kato Carrol Hillis Marilyn Humbert Jo Ann Johnson Amanda Joy Stuart Katz Barbara Hillmer Tammy Humphries Zaina Johnson Paul Judge Jonathan Katz Colleen Hill-Stramsak Joyce Hunger Lorraine Johnson Carolyn Jukich Nicol & Amit Katzir Tom Hils Donald Hunt Robert Johnson Audrey Jung Ute Kaucnik Kelly And Karen Hindman Holly Hunt Al and Vickie Johnson Romas Juodvalkis Rachel Kaufman Ashley Hinton Angela Hunt Terrance Johnson Karen Juodvalkis Laura Kaufmann Molly Hintz Rachel Hunt Stephanie Johnson Darryl Jurkiewicz Peter Kaurup Robert Hintz Susan Hunt Steven F. and Joan R. Johnson Joyce Justice Sean Kaurup Brian Hlavin Trish Hunter David L. and Margaret Diane Kaczmarek Gregory Kayata Mark Ho Lawrence Hunter S. Johnson Lewis Kagan Linda Kayata Edwin Hobbs Pierce Hunter Deborah Johnson Doug Kaiser Gerard Kayata Fletcher Hodges III Russel Huntington Jolene Johnson Anastasia T. Kakis Erin Kayata Harold R. Hoehn Richard Huppert Jane Johnson Kori & Jonathan Kalafer Mary Kayata Crystal Hoernlein Linda Hurd Linda Johnson Rachel Kalafer George N. Kayata Robert Hoesly James Hurt Bernadette Johnson Flavors Kapil Kalokhe Howard L. Kaye Patricia Hoffman Walter & Marie Hussey William H Johnson Jr Athena D. Kalyvas Katrina Keane James Hoffman Kay Hutchens Alfred D. Johnson, Jr. Sardar Adam Kamal K. Kearney Adele Hoffman Phillip Hutchinson Rosie Johnsson Phyllis Kamasinski Susan Keast Paula Hoffman Miles Hutchinson Douglas Johnston The Kaminsteins Julie Keefer Karen Hoffman Tara Hutschenreuter Jody Johnston Dolores Kampert Linda Keen Karl Hoffman Seth Hutson Douglas Johnston Dalia Kamrava Michael Kehoe Beth Hoffman Sue Hutson Kelley Johnston David Kane Carmel Keilty Todd & Beth Hoffman George Hyde Houston and Debbie Johnston Michael Kane Allan Keirstead Kurt Hoffmeyer Happy Hyers Jan Joncas Dorothy Kanosky Marilyn Keller Mary Hoffschwelle Sandra Iames Karen Jones John Kantzer Robert Kelley J. Michael Hofmann Kelly Ibeling John Jones Walter Kapalka Richard Kelley Lois Hoger Stefanie Ibertis Debra Jones Spencer Kaplan Kenneth G. Kelley William Hogle Ellen Illuzzi Stephen R. and Barbara W. Jones Jeremy Kaplan Katherine Kelley Joy Hojnacki Joyce Imboden Jerry Jones Laurie Kapsalis Tom Kelley Maureen Hoke Mary M. Immenhausen Doris Jones Julie Kasner Judy P. Kelley Christopher Holbrook Alice Immler Joan Jones David Kasper Linda Kelley Eick Donna Holden Ronnie Marie Importico Jenna Jordan Ronald Kass James Kelly

16 GSB|CIDP Foundation International Report of Donors 2016-2017

Timothy Kelly Carla Koller Sarah Lang Harvey Levine Duane Luallin Mary Kelly George Kollinzas Sanford Langbart Dani Levinson Michael Lucas Debra Kelly Leroy Konecky Roy And Betty Langley Joan And Bernie Levit John Lucenti John Kelly Barbara Konieczka Dale Lanier Paula Lewinski Geraldine Ludwig Raymond Kelly Eric And Julia Konovalov Bob Lannon Patrice Lewis Sandra Luedtke Kelsey Kemp James Kopper Marla Lantz Melinda Lewis Carmelite Luikart Sheri Kempf Jim Korn John Lantz Betty May Lewis Melinda Luke Carolyn Kenausis Carol Lee Koski, MD PhD Taylor Laoretti Bill Lewis William Lundin Steve Kendall Barbara Koslov Roger LaPorte Bernice Lewis Eleanor Lundy Gail Kennedy Donna Kostel Stephan Lapp Harry Lewis Paulette and John Luneborg Nathelyne Kennedy O. Peter Kotarides Patricia Lappert Richard Lewis, M.D. Joanne Lunzer James R. and Roswsitha Kennedy Julia G. Koths Brent Lapsley Gena Liacopulos Carolyn Lupe Tracey Kennedy Allison Kotsonis Carol Lardo Lois Libien Julie Lupo Delbert Kennedy Kay Kotzelnick Bridget Lardo Eric Licatovich Stephanie Luster Jim Kenney Nick And Jane Kourtis Michael Lardo Margaret Lichtenstein Deborah Lutterbeck Jason Kent Linda F. Koury Nicholas Larghi Carl Liebeck Susan R. Luttrell Graeg Keogh Michael Koutnik Debra LaRocca Deborah Lieberman Effie Luzaitis Elaine Keohane Madeline Kowal Matt LaRocco Diana Liller Anne Lycan Robert Kern Karen Kramer Jeanine C. and Thomas R. Larson Gavin Lindberg Patricia Lyman Michael Kessler Dick & Jackie Kraus Denton Larson Ellen Lindeen Carol Lynch Liz And BJ Keyes Amy Krause Dawn Lashley Bert Lindell Kevin Lynch Leila Khelfaoui Robert Kravetz David Lasky Theresa Lindley Kiera Lynch Tami Kick Willa Kravitz Maya Lasry Stephen Lineman John Lynch Shannon Kievman Georgene Krayenhagen Zshoan Lathan Nicolaas Lingen Meiring Erin Lynch Erica Kilcoyne Barbara Kreindler Loretta Lauretig John Linn Patty Lyons Penny Kiliany Neil Kreinik Brian Lauretig Kathy Linnell Paul MacGillivray Nikki Kim Alfed and Janice Kresslein Rose-Marie Yolette Laurore Shelly Lipinski Tommy & Erika Mack Mary Kimball Julie Kreun Appolos Laurore Valerie Lipowski Laurie Mackenzie Rose Anne Kimbell Lisa & Alan Kristynik Ann Lavezo Morton Lippman Jennifer Mackey David & Sandy Kimbrell Nancy Kritzman Margie Law Robert Lisak Marie Mackrell Ann Kimes Greg Kroemer James Lawler Kenneth Lit Clyde Maclellan Janet Kincheloe Yevgeniy Krol Kate Lawler Kathy Little Judy Macor Marci Kindlesparger Judith Krongold Sandra Lawler Lori Little Joe Macurak Ronald King Herbert Krueger Marian Lawless Sarah Livingston Richard Pl Macurak Kevin King Mark Kruppa Claire Lawrence Kay Livingston Shirley Madden Susie & Leroy King John Kruppa Lu Lawrence Scott Llewellyn James Maddison Bailey King Pamela Krupski Glenda Lawson Christina Lloyd Appasaheb Madiwale Monica King Myron Kuchark Beth Ann Leach Jennifer Lloyd Thomas Maffeo Max King David Kuhlman James P. Leach Jr. Jeff Lloyd Marilyn Maggioncalda Carole King Deborah Kuhn Rhonda Leahy Orville Lloyd, Jr. Mary Ellen Magner John M. Kinnare Kelsey Kujawa Wally Leavitt Robert Locander Priscilla Magnusen Philip Kinnicutt Patricia Kularski Katie Leb Mike Locke Amy Mahrenholz Becky Kirby Rory Kunkle Blair Lebovitz Irma B. Loderick Julie Mai John Kirch Alison Kuperberg Kuanhui Lee Kevin Logan Janeene Mainor Margaret Kirch Jane Kuriki Lucy Lee Keith D. Logsdon Mistie Maisch David Kirik Eileen Kurowski Anna Lee Robert D. and Beverly M. Loken Nicole Majka Kelsay Kirk Phyllis Kurtz Melanie Lee Dominick Lombardi Evi Makovsky Susan Kirk Theodore Kvasnik Susan Lee Tom Lombardi Katie Malatesta Lisa Kirk Paul Kwan Richard Lee James LoMonaco Jacob Malatesta Kim Kirkevold John L. Frank Lee Maida Long Nick Malatesta Lauren Kirkman Joan Labbe HoKun Lee Matthew Long Gilbert Malerk Robin Kirkpatrick Paul S. Labiner Thomas J. and Nora P. Lee Larry S. and Stephanie N. Long Debby And Bill Malone Shirley Kirsop Patricia H. Labrecque Joan A. Lee Jean Longin Mona Malone Sarah Kirtcheff Ellen Lacey Stacey Lee-Miller Yolanda Lonsford Tracey Malovich Joy Kisby Jennifer LaCorte Matthew Leeper Chad Lonsford Amy Maltzman Emily Klaparda Barbara Ladd Lisa Lehberger Dennis Lonstine Stephanie Malveaux Mary Klatt Jerry Ladd Leigh Lehman Robbin Loonan Oxford Property Management Gail Klein Kathy Laffin Karen Lehman Scott Loonan Ira Mandell H. Surri Klein L. L. Lafitte John Mcdavid Lehman Elizabeth Loonan Kerry Manfredi Judy Klekar Gary LaFleur Carolyn Lehman Gail Loonan Barbara Mangrum Tim Kleva Clayton LaFleur Derek Leif Jeff Loonan Monique Mani Abady James Klinger Gregory Lagios Barry Leitman Sandra Lopez June Maniaci Alberta Klopp John Lai Paul Lemaire Luis Carlos Ochoa Lopez Previn Mankodi Peter Klukis John Lake Thomas Lembrich Carlos Lopez Peter Mann Gayle Kmetovicz Dennis Lakin Albert Len Joaquin Lopez Howard R. Mann Earl W. Knight Mimi Lakind Erinn Lennon Raymond Lopez Mary Mann William Knight Jillian Lalonde Michelle Leon Jon Lopresti Ellen Manney Harold Knight Renee Lamb Lynda Leonard Betty LoRusso Kathy Manning Caroline Knight Charles Lambert Michael Leonardo Barbara Lotman Dieter Manning Alex Knopp Jill Lamer Harry Leslie Faye Loughridge Mary Manthey Deb Knox Sarah Lammonds Tami Lessner Richard Lourie Michael And Maggie Robert Koch Joseph Landi Roberta Lessner Howard & Sharon Love Marcantonio David Koch Joseph Landi Adam Lessner Shielda Love Whims Robert Marcy Harry Koenig Steven Landman Matthew Lettrich Linda Loveridge Claire Marione Lindsey Koepke Lavonne Landsverk Cheree & Jerry Leugers Debbie Lovetro Nathan Mark Laurie Koerner Earle Lane Justine Levan Peter Lowry Gary Marks David Kofoed Betty Lane Dena Levie Jacob Lowry Claire Marlin Audrey Kohn Joseph Lang Stuart Levin Davonna Lowry Mary Marrow Aurelia Kolar Julie Lang Rachel Levin Robert Loza Sheila Marshall

Annual Report 2016.2017 17 Report of Donors 2016-2017

Kenneth Marshall Lila McKay Aaron Michaelson Jay Morris Beverly Neuenfeld Ernest Martin Jessica Mckenna Robbyn Michalka Barbara Morrison James Neuman Sandra Martin Matthew McKenna Jennifer Mickus Caroline Morrison James Neumeister Linda Martin Jean Mckenzie Lorens Midtgaard Dennis Morrison Donald Nevers Charles M. Martin Merry McKeon Glenn Miglicco Kate Morton Leroy Neville Jerry W. Martin Marilyn McKim Mark Milford Shauna Moses Megan New John and Linda Martin Terry Mckown Ellen Milgrim Sally Moss Alma Newchok Doug Martin Sherry Mclaughlin Ann Millar Mel Moss Stephen Newchok Burla B. Martin Raymond J. McLaughlin Guy Millard Sommer Mostafavi Olga Newkirk Mary Martin Jamie and Michael McLaughlin Glenn Miller Betty Mousel William Newman Sue Martin Linda McLaughlin Faye Miller Nate Moyer Betsy & Avery Newton Johnny Martinez Doreen McLee Rod & Lisa Miller L. Taylor Mudge Joseph Nichols Maria Martinez Mary E. McLoughlin Carolyne Miller Helga Mueller Keri Nichols Anthony Martinez Scott McMahon Harry Miller Ruth M. Mueller C. Walter Nichols, III Harold Marting Lynnette McMahon Ann Miller Angela Mugnolo Gail Niglio Eric Marx Dennis McManamon Zeb Miller Marc Muirhead Beatrice Nilsen Marvin Masengale Annette Mcmanus Joseph R. Macurak Joyce Mullen Suzanne Nimaroff Eric and Janice Masi Debbie McMath and Jill K. Miller Aurelia Muller Guy Nirenberg John Masi Judy McMillan Ralph & Kathy Miller Peter Mulliken Alan Nishioka Robert Maslansky M.D. Michael McMillan Gregory Miller Jenelle Mulvaney Perry Nissler Freda Mason Jacen Mcmillen Denise Miller Michael Mulville Judy Nix Fredrick Mason Gail McMorrow Jeff Miller David Mundt George Nixon Chad Mason Joseph McMorrow Melvin and Mary Miller Laura & Phil Mundy Tara Nixon Joy Masterson Jean McNamara Hannah Miller Libby Munson Lance Nixon Lisa and Steve Mastrandrea Diane McNamara Barbara Miller Joni L. Munson Andrew Nixon John And Martha Mathis Gerard McNamee, Jr. E & J Mills Margarita Muratore Peter Nizwantowski Kathleen Matonich Brian McNeely Peter Mills Richard L. Murgatroyd Sheila Noake Michael Mattia Laurel And Delano Mcravin Jill Mills Kara Murphy Howard and Carolyn Noble Lois Mauermann Ellin Mcsweeney J. Rebecca Mills Claire-Marie Murphy Stephen Noel Meredith Mauger Patricia McSweeney Mariaelena Millsaps Maureen Murphy Sandra Nogosek Willy Mautner Marsha Mctigue Joanne Mineo Karen Murphy Jeanine Nolan Nikki Mavrikos Cronin J. and Catherine Carol Minker Alicia Murphy Debbie & Rick Nolte Connie Maxfield M. McTigue Allen Minton Shawn Murphy Megan Norman Leone Maxwell LaRue Mead Frank Mione Michael Murphy Edwin Norman Barbara May Fred Means Linda Mirabello Deborah Murphy Michael Normington Lily Mayas Belen Medina William and M. Frances Bruce and Carrie Murphy Roy Norris Charles Mayberry Elizabeth Meek Misenheimer Mentor Murphy Kathleen Northrop Sharon Mayer Robert Meek Richard Mishaan Tim Murphy John Noval David Mayer Evie Meeker Claudia Misner Anita J. Murphy Bryan Nowlin Carol Mayer Sandra Meeks Schooley Gary Mitchell Patricia Murray Louis Nuechterlein Mary Lou Mayernik Eric A. Meindl Dona Mitchell April Murray Chad Nunamaker Krista Mayo Jurajda Roberta Meissner Karen Mitchell Patrick Murray Lisa Nunes Louis T. Mazawey Cristina Mejía David Mitchell Jack Murry Sr. Jasen Nunes Kristen Mazzone Gary Melchor Mary Mitchell Ruth Musgrave Nancy Nurnberg Stephanie McArdle Daria Melder Gregg Mitchell Katrina Muti Gerald Nyari Sara Mccabe Barbara P. Melenik Patricia A Mitchell Anna Muti Eva Nyari Leslie McCabe Ginger Melia-hunter Scott Mitchell Kristen Myers Norman Nye Enrica McCann Dana Melisi Sharon Mitola Rob Myers Adam Nystrom Ashli McCarter Jamie Melisi Ritch and Luanne Mjelde Melissa Myers Jolynne O’Banion Marie McCarthy Alicina Memar Michael Mocek Debbie Myers Greta Obereiner Theresa A. McClain Michele Memoli William Modahl Jamie Myers Julian Oberman Marsha McClellan Joe Mendels Katy Mogg Lindsay Mykietka Susan O’Briant Katrina McClure Karen Mendelsohn Danny Mogg Alexandra Myssura Jack O’Brien Tim McCool Lucinda Mendoza Diane Mogg Jeanann Nagy Maria O’Brien Betsy McCormack Catherine Menichini Haji Mohammad Mary Amaryllis Naifeh Richard O’Brien Carl McCormick Carol Mensching Cathy & Paula Mohan Laine Nakfoor Mike & Briana O’Brien Rita McCray Charles Menzie Susanna Mok Showri Nandagiri William O’Brien Nancy Mcculloch Stanley Merdinger Joe Molhoek Carol Anne Nappi Robert O’Brien Thomas McCullum Lynn Merel Felix Molina Carol and Tom Nardone Eleanor O’Brien Kevin And Angela Mccune David Merkel Patricia Mondragon Anneliese Nathan Tara Ocello Mildred McDermott Judith Merriman Dante Mongiardo Ruth Ann Naun Rosa Ochoa Louise McDermott Karen Merritt Susan Montesani Skyler & Hunter Navarrete Todd Ochsner Nellie McDiffett Judith Mersereau Allen Monti Ana Navarro Arlene O’Connell James McDonald Bernard Merten Shirley Montoya Michelle Naylor Edward O’Connell Stephen J Mceachern James Mertz Charlotte Moody Jason Nayman Karin O’Connell Maureen McElwain Patricia Mesa Christine Moody Laverne Nealy Timothy O’Connell Aimee And Eric Mcfarland Nessa Meshkaty Larry Moody Ralph Neas John O’Connell Daniel McFarland Thomas Mesich Rebecca Moon Betty Ann Needham C. Jackson Grayson Jr., PHD Jody & Susie Mcfayden Tom Metzler Gail Moore Paul G. and Judith A. Neeve and Carla O’Dell, PHD Bruce McGathey Brenda Meuse Michael Moore Doug Neil Alec O’Doherty Thomas McGee Franklin Meyer Beeje Moorhead Norman Neiwert Denise O’Donnell Judith McGee Tina Meyer Richard Moothart, M.D. Barbara Nelson Maureen O’Driscoll Susan Mcghee Shirlee Meyer Jennie Morales R.H. Nelson Mildred Oglesby Lori McGinnis Robert Meyer Nandini Moran Loretta Nelson Vincent & Monica O’Grady Katherine McGlynn Lois Meyers Mark Moreno Kristi Nelson Ada Ojeda Matt Mcgrath Nancy Meyers Kristen Morgan Audrey Nelson Sheena Ojeda Naomi McGuire John Meyjes Ann Morgan Jeffrey Nelson Mary Frances O’Kane John Mcguirk Kelly MGann Muriel Morisey Jen Nemeth Ruth O’Keefe Lynn McGuirk Lisa Miano John Morley Janet Nesbitt Mary Olden Gerald McIntyre Kimberly Michaelis Jennifer Morog Daniel Nestel Arline Olim

18 GSB|CIDP Foundation International Report of Donors 2016-2017

Sue Paul Roslyn & Bob Pittsford George A. Rafuse David Paulissen Michael Platt Reginald Ragland Wendy Paulo Andrea Plesnarski Anne Raker Carol Paulsen Thomas Plewes Maryann Rakowski Michael Pavan Elizabeth Plewes Padma Ramanathan Howard Pavane Daphne Plummer Sharon Ramberg Ronald Pawasarat Kathy Plummer Marc Ramby William Pawlak Kathleen Plunkett Emma Ramirez Todd Pawlowicz Jo Poe Virginia Ramm Angela Pawlowicz Ronald Poedtke Jessie Rampa Martha Payne Stephanie Poett Heather Ramsey Donald Payne Monice Joy Poirot Richard Randall Raymond Payne Roberta Polanco Brian Randall Linda Payne Rosaria Polizzi James Randolph Sharon Pazak Richard Polster Marie Raney Daniel Peacey Movane Polzin Janice Rankin Christina Peacey Robert Pomeranz Amy and Ken Rastelli CORBIN Donna Peacher-Hall Kathie Pomykala Lydia Ratcliffe Allie Peacock Kathleen Popchak Brenda Rau Melanie Pearce Adam Popchak Daniel Ravinski “I had this tingling in my feet. That morphed Jetty Heron and Laura Pearce Jean Poplin Gerald Ray Margaret Pearce Patricia Porter Robert Ray into numbness in my legs. I just thought I was Karen Pearson Roy Porter Nancy Ray stressed and tired and busy. Then I realized I was Cynthua Peecher Ted Portillos Jacqueline Raynor weak, I was struggling to take a carton of milk Todd Peeples Jodi Pospeschil Randolph A. Re out of the refrigerator. I had numerous tests and Lynn Pelland Mary Postler-Adelhelm Leah Rea Wayne Pelletier Paul Pothier John Ready was told I had this odd thing called CIDP. Miranda Pellett William Potter Bob Reagle Linda Pelliccioni Ruth Potter Diane Rebecchi The last thing you think of, is a chronic illness. Vicki Pendergast John Potter Jeremy Rechtshaid Until one day, you sit down with the doctor and Ed Penniman James W. Potts Hestella Redic Lorraine Pennington Dawn Potts Stephen Redmon they say ‘I have bad news’ and it’s a shock. I know Mark and Cindy Pennington Nancy Powell Peter Redshaw that surely, I’m not being knocked down by some John Pennucci Nancy Carole Powell Bonnie Reed ‘alphabet disease’ I’ve never heard of! So yes, Rachel Pensabene David Power Thomas Rees it’s only rare until it happens to you, and then it’s Mary Pepper June E. Prance Phyllis C. Reese Samira Perez Dora Prato Joyce Regina very real.” Nancy Perlow Cilla Prato David & Patrice Rehm John Perotta Wesley Prato Kenneth Reid Yves Perrier Maria Prato Jane Reid Bryan Perry Nicole Prato Thomas Reiland Greg Olin Stephen Paar Mary Perry Lynn Pratt Victoria Reilly Beth Oliva Charles Pace Michele Perry John Prell Mr. & Mrs. Herman Reimer Ralph And Kat Oliva Gloria Pacini Don Pessin Frances Prenzler James Reinarz Vinny Oliva Patty& Thom Paddack Kathaleen Petelle Theresa Preskar Helen Reineking Willow Olivares Louise Paden Johny Peter Richard Preskill Ruth Reinermann Cynthia Newell Oliver Corina Page Virginia Peters Aviva Pressman Rivka Reinman John Olivera Dennis Pageler Lori Peters Brian Pressman David Reisig Heather Olivo Donna Palaganas Jessica Petersen Elisabeth Preston Paul Reitman Joseph Olney Tom Palaia Thomas Petersen Robert Prestwich Zoe Rem Roy Olsen Susan Palladino Robert Peterson Doris Preziosi Richard Rennel Nancy Olszewski Bridget Palmer Pete and Kay Peterson Timothy Price Lesha Renner Maribel Omlor Carolyn Palmer Cathy Petriw David Price Doug Renner Becky & Steve Omlor Jean Palmeri Shawn Peyton Gabriella Priest Kim Rentner Michael O’Neil Agnes Palumbo Darla Pfeffer Virginia Priest Theresa Resch Donna O’Neil Juan Paniagua Maryann Pfenning Donna Prince Sandra Restino Dan & Lauren O’Neill Bill Pannier Thomas Pfenning Jennifer Prince-Moughan Laura Retzlaff Benjamin Onyango Mary Panzarino Maryann Phelps Jane Priour Margot Reubens Gail Opel Linda Paolano Charlotte Phillips Wendy Proctor Jeremy Reus Gary Oradat Janice Papalia Lorraine Philson Ann Proctor Jesse Revicki Teresa Orandello Carlo M. Pappania Dolores Piccirilli Karla Proksch Beth Reynolds Daniel Orcutt Karyn Pappert Rose Pickens Elias Psarros Mary Reynolds Milton Orenstein Dorothy Paquin Lisa and Mark Piecha Harold Ptacek Pat Rhoades Trish Organ Helen Paris Patti Pieja Anthony Pucci Casey Rhoades Robby Organ George Parker John Pielemeier Ronald Pugliese Karen Rhoades Carol Orr Harriet Parker Darin Pierce Marion Pullara Pat A Rhoades Jolynn Orth Kristine Parker Lloyd Pierce Madhukar Purohit Richele Ricci Marilyn Orthouse Samantha Parker Dorothy Pierce Robert O. Putman Patricia Rice Don Osborne Rebecca Parsons Susan Piervin Diane Pynaker Chris Rice Judy O’Shea Jeffrey Paskar Daniel Piett Paul Quale Charles Rice Raymond O’Shea Nancy Pastre Thomas Pike Arlene Quamme Shari Rice Jan Osier Ilene Patasnik James Pinder Jeannine Quear Samuel Rich Erik Ostbye Tom Pate Kathy Pinkston Steve Quick Ruth Rich Webster Otis Chirag Patel Juliette Pinkston Thana Quinn Ellis Robert Rich Jessica Overbee Shannon Patelczyk Robert Pinney Stacy Quirino Danny Richard Karen Overhoff Nancy Patella Robert Piorkowski Esther Rabenstein Thomas Richards Linda Overstreet Frank Patille Ragga Pischieri Barbara Rabinowitz Josey Richards Suzanne Owens Anna Patsel-Powell Evelyn Pisegna-Cook Gary Race A. J. Richardson Nicole Owens Bryan Patterson Nancy Pitcherella Omer Racine Rebecca Richardson Marla Owings Linda Paul Mary Pittarelli Kathryn Rademacher Gayle Richmond

Annual Report 2016.2017 19 Report of Donors 2016-2017

Cassie Richmond Dorothy Rosato Susan Salzmann Andrew Schultz Julie and Samuel Siebenberg Julie Richmond Elliot Roseman Justa Sampson Dale Schultz Bonnie Siegal Tracey Riegert Hal Rosen Michelle San Miguel Elizabeth Schultz Seymour Siegel Judi Riehl Rhoda Rosen Jennifer Sanchez L. E. Schultz Phyllis Siegel Carolyn Rifkin Paul Rosenberger Peter and Marie Sanchez Roger Schurig Sharon Sielaff Nina Rifkind Anne Rosensky Theresa Sanchez Joseph Schuster Baum Sigman Matt & Kelly Riggio David Rosner Ino Sánchez Megan Schwartz Joseph Signore Michael R. and Anna C. Riggs Bonita Rosner Patricia Sand Jonathan Schwartz Jeffrey Silver Hazel Riggs Caryn Rosoff Evilia Sandall Loren Schwartz Dwight Silverman Nancy Riker Mark Rosolowsky Phyllis Sander Lauren Schwartze Aubrey Simmons Patrick Riley T. Ross Lynn Sanders Steve and Lana Schwartzman Susan D. Simmons Doris Riley Heidi Ross Robyn Sandham-Berry Steve and Sarah Scire Andra Simmons Mike Riley Mack Ross Debra Sandt Kathy And Joe Scocchera Wendy Simon Ruth B. Rimmer Timothy Ross John Sangobowale Gary Scoggin Jackie Simpson Rick Rinehart Susan Ross Gary J. and Sharon C. Santaspirit Bill Scorah Bruce Simpson Virginia Rinella William Ross Jose Santiago Linda Scott Dale and Mary Jo Simpson Ruth Rios Stewart Ross Frances Santore Karen Seales Rachel Sims Alex Risser William Rossi Alanna Saponaro John & Mary Jo Secretan Jerald B. Sirbu Samantha Rivera Markus Rossmeisl Lori Saponaro Arnaldo Sedayao Valerie Sitko-Ancell Janet Robb Amy and Rodney Rosswurm Mandy Sapp Patricia Seebergh Kristen Skiles Allison Roberman Patty Roszko George Sarandos Harvey Segal Ingrid Skora Edward And Patricia Roberts David Roth Susan Saric Carol Segal Barbara Skorija Rick & Karen Roberts Roland Roth Theresa Sasak Marian Sekeres Ronald Slate Kenneth F. Roberts Teresa Rothausen Donnie Saulters Katie Selden Jack Slater Donald Roberts Vivian Rothschild Linda Savage Carol (cappy) Selig Mary Slater Paul Roberts Marlyn Rothstein Edward Sawyer Blair Sell Larry Slaughter Constance Roberts David Roush Rande Saxe Paul Sembrat Jill Slaymaker Dale Robertson Liz Rowland Christine Sayed Patricia Semmes Bernie Slayton Sue Robinson Bonnie Rowland Paul Schafer Jack Sena David Sleeth Steve Robinson Gerald Rowland Nancy Schafer Ronald C. Senatore Matt Small Marcia J. Robinson Terry Rowson Faith And Mayer Schames Gary Sengelmann Richard Smallwood James E. Robinson Barbara Rubin Amy Schandler Carl Sereda Ruth E. Smith Irene Robinson George Ruccio Jon B. Schandler Joanne Serino Wilfrid Smith George Robinson Janice Ruder Phaon Schappell Mary Ellen Seuch Tiersa Smith Mark Robinson Heyward Ruff Patricia Schardt Rebecca Sevigny Jane Smith Scott Robinson Judy Ruffino Natalie Scharf Marcia Sexton Megan Smith Chad & Iveth Robska Clifford L. Ruland Joachim Scharf James Shade Catherine Smith Cinthya Rocha Helen Rummelsburg Loretta Schaudel Scott Shadle Dennis Smith Anthony Rocha Lorraine Rumore Nancy Schauer Ken Shaffer William Smith Brandon Roche Jerry Rundell Ellen Schecter Mary Shaffer Jacqueline Smith Robert Rocheleau Diana Rusch Ellen Schecter Jan Shalom Stu Smith Carol Rochelle Glenn Russell Rich Scheideman Leslie Shalom Kevin Smith Edward Rockey Ruth Ann Russell Alysyn Schenk Eric Shamus Joseph S. Smith, Jr. S. Kay Rodgers James Russell Frederick J. Schenk, Jr. Robin Shanks Kelly Smyth Patricia Rodick Gary Russell Joanne L. Scherber Lara Shanley Donald Snader Steven Rodrigues Maryann Russo Dorothy Scheuring Vicki Shannon Amy Snader Dave O’Connor / Rodriguez Joseph Russo Jennifer Schiefert Juanita Shannon Nancy Snedeker Rio Rodriguez William C. and Susan M. Ruth John Schilke Joanne Shanske Clifford Snitgen Rodrigo Rodriguez Byron H. Ruth Mary Schlag Craig Shanske Brad Snyder Francisco Javier Rodriguez Roland Ruth Nathan and Barbara Schlecht Lynda Sharrett-Field Renee Snyder Jos Roebroek Michael Rutledge Arlene Schlegel John Shaw Lisa Sobhani Carmen L. Roeder Courteney Rutter Jane Schleimer Robert Shedden Cheryl Soister Michael Roeder Ruth Ruvoli Shirley Schleimer Kazim Sheikh Aman Sokhi Marcos Roel Valerie Ryan Fred Schlobohm Theresa Sheldon Christopher Soleberry Sharon Roesler Doris Ryan Mary J. Schmidt Julie/Jaclyn Shelley Rachel Solis Dian Rogers Valerie Ryan Kathy Schmidt Thelma Shelton Gabriella Solomon Samantha Rogers Thomas Ryan Kim Schmidt Deborah Shelton Transport Somavrac Norma Rogers Ann Ryba Charles Schmidt Catherine Shemonic Candace Somers Thompson H. and Lorrie Rybaczyk Linda Schmidtbauer Lois Shepherd Mary Linda Sontowski Jane D. Rogers Deb Ryder Dawnmarie Schneider Jenna Sheridan Annaliese Soros Evelyn C. Rogers Charlene Saberito Eileen Schneider Theresa Sherman Cecilia Sorrentino Ruth Rohde Brian M. Sabine David Schneiderman William E. and Cheryl Theresa Sorrentino David Rohn Julianna Sabra Sharon Schoenauer A. Sherman George Sosna Natalie Rohn Dustin Sachs Carolina Schoenbeck DanaWyn Sherman Amy Spagnoli David Rohrback Herbert Sachs Lisa Schoenberger Victor Sheronas Hilary Spain Reilly Loretta Rolison Christie Sackett Kristen Schoenberger Namrata Shetty Dominick Spatafora Maricsa Roman Jennifer Sacolick Lukas And Levi Schoeneberger Kimberly Shields Peter Spaunhorst Gabriel Roman Mike Sailor Janice Schoeneberger Jan Shimshock Dorothea Speaks David Roman Judy Sailor Doug and Mary Kay Schoepf Frederick Shinn Dianne Spears James Roman Terry Sain Mike Schoephoerster William Shirey Eugene Spector Nelson Roman Angie Sajdyk Terry Schooley Shirley Shirey Joanne Spector Jaime Roman David Salazar Treesa L. & William H. Schools Karen Shmihluk Norman And Joyce Spector Allie, Mario And Via Rometo Michael Salica Ronald Schorn Charlotte Sholes Samuel Spekman Alan Rompala Rachel, Nicole and Jalen Salter Albert Schraepfer Basil Shorb Gerrie Spencer Judith Ron Salzmann-Walter Family Gerald Schraepfer Nancy Shore Bret Spencer Janice Ronan Charitable Fund Bill Schrage Shawn Shorkey Kendall Spencer Michelle Roos Gretel S. Salzmann Sandra L Schreiber & Family Ms. Gloria Shovlin Anne Spensieri Ronald Root Matt & Lorena Salzmann Judy Schroder Avishai Shraga Deb & Scott Sperling Teresa Rosales William Salzmann Carol Schroeder Midge Shultz Caroline Sperry

20 GSB|CIDP Foundation International Report of Donors 2016-2017

Susan Spiers Brian Sullivan Nora Tijerina Pauline Van Sickle Jeanna Walters Tronnes Brittany Spiller Richard Sumlin Charlotte Tilley Lauren Van Sise Elizabeth Wang Karen Spriegel Kristy Sumlin Kristen Tilton Julie Van Zandt LaVon Wankum Carmella Spring Shane Sumlin Andrew Tina Becky Vander Upwich Delores Wantlin Bertram John Springstead Peter & Brenda Surowiec Barbara H. Tindall James Vandeventer Paula Ward Michael Sprintz Phyllis J. Raynor Surrett Suzanne Tinsley Dolores Arce VanHorn Beata Ward Eunice Spurgat William Sutton Kate Tocatjian Jeff Vanhorn Julius T. Ward David Stack Laura Swahn Brenda Todd Jennifer Vanwagner Carol Wardaski Joyce Staff Victoria Swann Denise Todd Theodora Vaporis Amanda Wardlaw Alison Stahl Rebecca Sweeney Skip Tolle Lorraine and Hector Varela Janette Warner Brian Stahl, PH.D. Patti, Mike, And Molly Sweeney Susan Tomasini Jacque Vargas Rosamond Warnquist Stephanie Stamatelos Beverly Sweeney Marie Torrence Marion Vargas Ron Warrick Dottie Stamm Sally Swendsen Jaeger Jo-anne Torres Felicia Varlese Mary Ann Washington Tina Stanfield Connie Swift Lexy Torzilli Tamara Vaschon Ann Wasserman Martha Stangl Douglas Swope Emily Touloukian Patrick Vaudo Ellen Edwards Wasserman Leslie Stanley John Szewczyk Julian Toumey Richard Vaughn Kim Waterman Robert Stanley Barbara Szitta Richard Toumey Betsy Vaughn Julie Waterstone Max Staples Erik Szpilka Dave Toumey Florence R. Vaught Jeffrey J. Watson Ryan Starr Harry John Takis Amy Tourville Jessica Vazquez Milande Watson Christy Starr Greta Talbot Terra Towne Awilda Vega Kathy Watson Dina And John Stasik John Talley Megan Townsend James A. Velantzas Maria L. Watson J. Elwood Statler Clifford Tamm Paul Toy Brenda Velantzas Barbara Watts Michelle Stauffer Judith L. Tammi Sarah Toybes Elizabeth Verges Jody Weaver Jennifer A. Stavish Ken Tanaka Joanne Traina Andrea Vernosky Nancy Weaver Robert Steele Karen Tankle Cynthia Trainor Robin Verret Janes Webb John Steelman Joseph Tannuzzo Molly Trammell Erica Villada Gwendolyn Webb Diane Steenrod Patricia Tarpey Anne Travalia Diana Villarreal Susan Wedgwood Anthony C. Stefanese David Tasner Joseph Tremari Curtis Vincent Hans Wehl Bob & Lyn Stefans Arthur Tatge Donna Tribelhorn Stephanie Virag Ruth Wehmeier Sheri And Loyd Stegent Kathleen Tatman Gary Triebold Larry Visk Michael B. Wehner Pamela Stein Kirk Tatnall Daniel Trimper William Vladuchick Elizabeth Wehunt Rebecca Stein Melissa Hamby Tatum Catherine Trincone Michelle Vogel Walter Weichel Joel Steinberg, MD, PhD Jesse Tauber Patricia Trincone Amy Voiland Richard Weiland Marilyn Steiner Richard Taylor Jennifer Trinin Karen Volis Lorainne Weiland Robert Steingut Tom Taylor Olive Trinka Lorene Vollmar Herbert Weinkauff Susan Steinhauser Reva Taylor William Tripodo Lisa Volpo Lori Weinstein Diane Stephenson Merlaine Taylor Louis P. Troisi Robert Volynsky Ron Weinstein Patricia Sterritt Durran Taylor Thomas Trouton John Vontran Rachel Weintraub Cindy & Darrell Stevens Melinda Taylor & Family Hyla Troxell Paige Vossler Steve Weisbrod Scott Stevens Marilyn Tedesco Robert Tubbs Kevin Vossler Robert Weise Beverly Stevenson Stephanie Tedone Henry Tuck Paul Votze Stuart Weiselberg Lori D. Stevenson Adam Tee Caitlin Tucker Carol Vullo Elliot Weiselberg Patricia Tate Stewart Fritzie Teehan Lauren & Colleen Tucker Paul Waas Carl Weiselberg Christina Stickel Aklilu Tefera Kwame Tuffuor Waccamaw Community Joshua Weiselberg Kim Stickney Thomas Tegtmeyer Carl Tufts Foundation Kelly Weiss Sara & Kenny Stills Perry Teitelbaum Deborah Tulak Susan Waddle Margaret Weiss Michael Stillwagon Ronit And Rinieh Temchin Carla Turbin Kay Wages Janelle Welchel Justin Stockbridge Bill Tempelaar-Lietz Tonya Turczyn Sheila Waguespack Bonnie Welles Robert Stockdale John Templer Adam Turner Laura Waite Becky Wells Susan Stockton Lawrence Terenzi Lisa Turner Ron Waite Kenneth Wells Frances Stoeckle Lawrence Terkel Barbara Turton Lisle Waits Marsha Wells Elizabeth Stone Ronkisha Terrazas Karen Tusack Donna Walden Stacie Welsh Laurence L. Stone Stacy Terry Patricia Tweed-Kent Jeff Walden Debra Wentz Andrew Stone Sarah Terry Debra Tyler Julianne Waldo Edward Wentz Lori Stone Michael Thaler David Uckoter Melissa Waldron Pam Wenzel Teresa Stone Stephen Thaman Hajime Ueda Arlette Walfield W.H. Werling Bryan Storm Latesha The Coleman’s Caity Ugel Ron Waliczek Tim Werner Nikki Stournaras Darlene Theodore Ryan Uhazie Barbara Walker Donald Wertheimer Michael Stovall Konstantinos Theodorou Kassandra Ulrich Jamie Walker David J. Werwie Helen Stover Candy Thiel Sally Underhill David Walker Megan Wessels Bill Strand De-Lores Thomas Edward Upton Debbi Walker Debora West Diane C. Strandberg Gaye Thomas Alison Upton-Dunmore Betty Walker Sherm West Judy Straub Laura Thompson Susan Urbani Mark Walker Steven West Ada Strausberg John F. Thompson Lettie/ Vasiia Utog Robert Walko Jo Ann Wettlaufer Richard Streit Lindsay Thompson John And George Utog Vince Wall Patricia Wheatley Katie Strickland Albert Thompson Terisa Vaillancourt Milan Wall Boyd & Christine Wheeler Susan Strickland Llyod and Alberta Thompson Oscar Valencia Amy Walla Bonnie Wheeler Christian Strohmenger Johanna Thompson Leslie Valentine Donna Wallace Clayton Wheeler Patricia Strong Williams Linda Thompson Lia Valentine Wendy Wallace Randy Wheeler Wulf J. Stronzik W. Charles Thor Jr. Sharon Valiante Erica Wallace Linda Wheeler Mary Stubbe J. H. Thornton Norma Valley Jamie Wallace Rhonda Whethers Peter A. and Julie A. Stumpf Christina Thornton Jessica Valvo Kevin Wallen Jerry Whetstone Janice Sturkie Jack Thropp Mary Ann Van Blarcom Boni Wallen Beth Whipple Theresa Stylianou William Tiano Arie And Jacqueline Van Duijn Steven Wallerstein Laurie Ann Whitcomb Sonia Suckno John Tibbetts Perkie Van Dusen Roger Walls Elizabeth White Gary Suits Gerald Tiemens Richard Van Gelder Charles Walsh Nancy White George and Janice E. Sukeena Debbie Tierney Linda Van Grinsven Ryan Walstrom Lacey White Lisa Sulfaro Christopher Tierney Chris Van Matre Yvonne C. Walter Jodi White Larry Sullivan Bernadette Tierney Angie Van Matre Russell Walter Katherine White Robert Sullivan Tom Tierney Russ Van Moppes Sandy Walters Douglas White

Annual Report 2016.2017 21 Report of Donors 2016-2017

Wayne Wishart Diane Zerilli Joan Armstrong Dawn Withstandley Judy Zhang Cheryl Auterio Robert Witt Jenna Zichittella Beverly Baker Leslie Wittenborn Hazel Ziebell Glen Barbour Edna Wittwer Joel Ziev Robert Bard Peggy Wojtowicz Herbert Zimmerman Richard Beukema Elaine Wolbrom Carol Zimmerman Sheila Blaine Liam Wolf Kelly Zimmerman Dennis Bosch William Wolf Alan Zirkle Gail Buckingham Joanne Wolf Diana Zirkle Robert Burton Sheila Wolfe John R. Zitko Tonya Charleston Jennifer Wolter Sasha Zivkovic Aaron Clarke Linda Wong Mariana Zlatinski Luey Clough Laureen Wood John Zolper Christopher Davis Kathy Wood Bep Zonneveld Bill Dendy Donald Wood Joan Zorn Sibylle DeRosa Paul Woodard Anna Zoumberakis Michael Engenlauf BRENDA Lori Woodbury Jeffrey Zyjeski Windy Figueroa Kennard Woods Jennifer Flary Heather Woodward Rick Forney “I thought it was a pinched nerve in my back. Zorina Woodward Bob Furniss My left foot would go numb when I wore high James Woodward Rose Gallegos Patricia A. Work Ambassadors Arthur Gause heels. When I went to the neurologist, they did Sandra Work Dee Gause the nerve conduction study and other tests. I Rodney Wray These Special donors Joyce Gillespie didn’t fit any box neatly. So that is when I went to Shawn Wright Lee Ann Gooseman Leslie Wright give the gift of time Linda Greco Johns Hopkins. He said that everything pointed Linda Wright and leadership. Brenda Hale to ALS. I have two sons that were in high school Mary Ann Wyand Ambassadors are Bridget Hamilton and all I could think about was ‘Will I be around Casie Wyatt individuals who Mindy Hester Joseph Wylen Donna Holden to see them graduate and have kids?” and I got Vincent Wyles have engaged the Doreen Jackomin angry. The last thing to try was IVIG; if IVIG Karen Wynne community in Jeff Jackomin worked then I did not have ALS and thankfully, Jola Xhunga the name of the Christina Jackomin it was working. I was then diagnosed with Multi Jim Yadlon Foundation. This Judi Jetson Janet Yamron Anita Joy Focal Motor Neuropathy. Rick Yanchuleff includes, but is Megan Kaump Alling Yancy not limited to the Valerie Keller It makes a big difference to have a place to Suzanne Yang following: facilitating Joyce Kennedy go where people understand. I find myself Cynthia Yankowski a chapter meeting Susan Kettel Jack Yantis Sharon Klaschka continually telling people about the Foundation Caroline, Phyllis & chairing a Walk Matthew LaRocco website so they can know about the Centers of John Jr. Yastrzab & Roll, Chairing a Jeanette Lawson Excellence and all of the other help they provide. Robert & Candace Yates specific fundraiser Lisa Lochinski Stacy Yates and conducting Raymond Lopez Kevin Yates Merrilyn Macurak I’m in a place now where I have a new normal. Bonnie Yeomans an Advocacy David Mayer I’m lucky because I have a treatment option, Larry Yepez event by making a Margee McKenna many don’t. It’s important to fund research to Leslie Yerger Congressional visit. Tim McKenna give us a chance.” Ray Yetvin In recognition of Sheila Mota Cheryl Yetz Sister Eleanor O’Brien David Yocum their dedication Patsy Organ Marlene Yoder to the Foundation, Kristina Orlandi Terri White William Willever Vicky York Ambassadors will Michael Ring Earl White Chris Williams Courtney York receive special Bill Robbins Angela White Arlene Williams Lois York Amy Rollason Bernadette White Melissa Williams Jane Young recognition for Jon Schandler Jerry Whitehead Jimmie Williams Lisa Young their leadership. Patricia Schardt B. White-Spunner Howard Williams Tatum Young Jack Sena Valerie Whitfield Tom Williams Timothy Young Gina Sharpley Carol Whitley Charles & Ivette Williams Helaine Young DanaWyn Sherman Chanon Whitman Todd Williams Wallace Young Renee Richmond Victor Sheronas Roger Whitney Judith Williams Warren Young Chris Davis Ed Sward Angela Whitt Glenda Williams Donald Young Bob Burton Marilyn Tedesco Gladys Whittenberg Maureen Williams Somerset County Young Jane Rosen Bruce Throckmorton Corbin Whittington Bobby Williamson Republicans Ariel Lasry Jon Toumey Brandon Whittington Steve Wills Blake Zaal Sue Salzmann Russ Walter Regis Whittington Cindy Wills Chase Zaal Merrilyn Macurak Jo Ann Wettlaufer Daya Whittington Karen Wilson John And Christian Zaal Kristen Weaver Pamela Wrobel Lyndell Whyte Gary Wilson Ron Zaal Crystal Sada Jim Yadlon James E. Wickert Amanda Wilson Robert C. Zaccaro Jennifer Flary Elizabeth Widdifield David Wilson Kirsten Zajaczkowski Brenda Velantzas Ralph Wiechert Diane Wingert Robert Zambito Tonya Charleston Raymond Wieczorek Robert Wingert Paul Zanotto Susan Martin-Gibbons Douglas Wigton Ashley Winnett Dawn Marie Zarlingo Megan McCulloch Lois Wilding Tammy Wintermote Carol Zaun Kristy Vaughn Please note list may not be Bob Wiley Eugene R. Winters Ashley Zehler Lee Ann Gooseman conclusive and we apologize Martha Wilke Christa Wirtz John Zeiger Dani Sticka if we have omitted a name. Patty Wilkerson Johanna Wiseman Jeraldine Zellers Matt LaRocco Harriet Will Nedda Wiseman Dorothy Zellner Nadell D William Ansley

22 GSB|CIDP Foundation International WALKS FROM JANUARY 2016 TO AUGUST 17, 2017

“The 1st Seattle Walk & Roll was the first time I got to meet anyone else who had suffered from GBS. It was extremely moving to 20 hear the stories and CITIES experiences“ of many others. As those who were with me at the time can attest to, mine was a scary and challenging experience. But the fact is, for me, it ended. For others the fight continues on.”

Walk and Roll Participant 1,281 FUNDRAISERS 188 TEAMS 30 WALKS

… & COUNTING!

Annual Report 2016.2017 23 HONOR YOUR HERO

May is GBS|CIDP Foundation Awareness month! To celebrate, we asked our members to share their GBS & CIDP Heroes with us. Thank you to all who donated in honor of their hero this year. Look for the next opportunity to make a donation and honor your Hero during awareness month next May.

Anna Hamilton My hero is my 10 year old daughter. She was diagnosed with Guillain-Barre right before her 3rd birthday (celebrated it in the hospital). She woke up one morning (a few days after having a high fever and flu symptoms) and said her legs felt funny. After a couple hours, she was walking funny. Took her to urgent care. They said she must have pulled a muscle, sent us home. Couple of hours later, she couldn’t walk any more. Took her back to urgent care; doc said he had no clue what was happening. Sent us to Seattle Children’s Hospital. After days of tests; cancer, spinal taps, etc. they finally diagnosed her with Guillain Barre. After plasma transfusions for 4-5 days she was sent home. She was supposed to start PT in a week and we were warned that she would be in excrutiating pain while her nerves healed. Within a couple of days at home, she was determined to roller skate again and she re-taught herself how to walk. Never complained about the pain... just slowly started pulling herself/walking around the house while holding on to things. The physical therapists were quite impressed with her and she never ended up needing PT. She is the strongest person I have ever known. She has absolutely no side effects. We were truly blessed with her recovery and survival.

Jim Yadlon My GBS HERO is my caregiver and wife, Rachel. November 17 is a day that will be remembered in our lives forever. 43 years (1973) ago on this date,my wife, Rachel, and I went to the Englewood Hospital ER and for the next five weeks, I lay in the ICU, totally paralyzed. I want to attempt to tell our story through what I believe would be my wife’s eyes. I can never truly understand how Rachel felt and thought during these weeks and months, but I will give it a try. I went down with Guillain Barre Syndrome. I was totally paralyzed including my diaphragm, unable to talk or communicate anything to anyone in any way. Rachel, my bride of three months and only 19 years old took over my life. The hospital that I was in did a pretty good job of keeping me alive. There was no IVIG or plasmapheresis in those days so keeping me alive was the only thing that could be done to make sure that I recovered. There were many decisions to be made during those days and Rachel made all the difficult decisions that affected my life. The visiting hours in Englewood Hospital were brutal on a loved one. Rachel was only allowed in for five minutes every two hours. Rachel was also holding down a full time job. Rachel would come before work and visit and then again at lunchtime and then after work she would stay until midnight. This went on for five weeks. Her job was near the hospital, which was a small blessing. She worked for a Neanderthal of a man who had no empathy for our situation. He made crude comments to her and humorless jokes about my being ill. To make matters worse, while visiting me, she had to sit in a very small room and wait for the clock to hit that 55 minute before the hour mark. Rachel, I can never thank you enough for staying by my side and being my caregiver during those horrible days. We made it.

24 GSB|CIDP Foundation International Jacy Roach My hero is my son Grayson. Three years ago this month I was pregnant with him and starting having weird symptoms; falling down, dropping things, not able to walk and carry things. By July I was in a wheel chair and still had no diagnosis. Finally, in August, Dr. Maria Philip another hero and fellow mom, figured out that I either hadGBS or CIDP. We decided that it would be best for the baby to hold off on treatment until after he came. We were all hopeful that after Grayson arrived I would be better and we could then decide what treatment was best. His birth was easy but 10 days later my symptoms got even worse and I could not walk, stand, or feed myself. I spent 6 days in the hospital and received 4 treatments. I came home and faced months of physical therapy to learn how to walk again. If I had not had my precious baby to take care of I think I might have given up. He made me realize the importance in fighting for normalcy and moving on.

Megan Bartlett Brien My hero is my dad who rallied to walk me down the aisle on my wedding day. The week before my wedding, CIDP took over and he was unable to walk. He did a week straight of PLEX and physical therapy in hopes of walking me down the aisle. Moments before the doors opened for us to walk out, my dad said, “I don’t think I can do this. If I fall, don’t stop”. Yet, he did it and walked me all the way down just as we had always dreamed of. A few weeks later, the disease took over and he was completely paralyzed and in ICU for months. Today, he has made a miraculous recovery, and he has really shown me that you cannot take anything for granted.

Rachel Macera My hero is my 6 1/2 year old son. He was diagnosed with CIDP when he was 3. He has been getting IVIG infusion 2 days a month since. He is doing amazing, RAN a race this past weekend and came in 3rd out of 50+ kids who were his age or older. Before he was diagnosed he could no longer walk or hold anything in his hands.... this is a miracle and he is my HERO.

Rachel Gallery My hero is my nephew Charlie who is too young to understand why. Like most people who are diagnosed with CIDP, I treated all of my initial symptoms as no big deal. During my first visit to a doctor, when my symptoms were tingling hands and feet, I was asked whether my job was stressful. I said yes. Things got worse but I was in denial. Why can’t I run as fast or as far as I could last week? I guess I’m just getting older. Since when has it been so hard to turn the key in the ignition? Our car must be getting old. Why am I making so many typos? I must be overtired. And then it was undeniable. Why can’t I ride a bike, open the drawers in my kitchen, lift my arms over my head, move my left hand, walk, stand up? As I was losing the ability to move and digest my food I became convinced that there was no way I was coming back from this. I didn’t want to form words around that fear because I didn’t want to scare my husband or my family and friends. My nephew Charlie was 11 weeks old the day I was admitted to the hospital. We had spent the last week together doing more or less the same thing - lying around, being fed, and sometimes crying. With Charlie, I could say everything I was afraid to tell anyone else and he listened so intently, just sitting on my lap and looking at me with his beautiful blue eyes.

Annual Report 2016.2017 25 CONNECT WITH US! @GBSCIDP 11,000 subscribed

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26 GSB|CIDP Foundation International THANK YOU

Thank you for your support; let us be your light of hope and recovery.

IN THE YEAR AHEAD, WE INVITE YOU TO BE PRESENT WITH US. HOW? ■✓ Attend a chapter meeting ■✓ Write to your congressperson or senator ■✓ Walk or support a Walk & Roll near you ■✓ Create your own Fundraiser ■✓ Share your story ■✓ Ask if your employer matches donations ■✓ Let us know of your special talents and skills ■✓  JOIN US IN 2018 FOR THE 15TH BIENNIAL SYMPOSIUM IN SAN DIEGO ■✓ Volunteer to visit and encourage patients ■✓ Join the Card Alert group and send messages of hope ■✓ Watch new videos and read about new research on our website ■✓ Join our Forum conversations or Facebook page ■✓ Recognize a person of influence with our “Honor your Hero” campaign ■✓ Continue your generosity by making a donation

At any of these events, you will have the opportunity to meet people just like you who have similar experiences. You can walk away with new knowledge and empowered to take action in your new situation. When you are present with us, you belong to a community. Whether you are a volunteer, a patient, a care-giver, physician or supporter, you will always belong!

Annual Report 2016.2017 27 GBS CIDP Foundation International International Office 375 East Elm Street Suite 101 Conshohocken, PA 19428

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OUR SPONSORS Please join us in thanking our industry partners for their continued commitment to the Patient Community.

Zimmerman Family Foundation