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Development of EMIS-2017 Questionnaire EMIS-2017 plan for data analysis, including a manual with descriptions of parameters and coding values (D4.1) Contract 2015 71 01 A behavioural survey for HIV/AIDS and associated infections and a survey and tailored training for community based health workers to facilitate access and improve the quality of prevention, diagnosis of HIV/AIDS, STI and viral hepatitis and health care services for men who have sex with men (MSM). Prepared by: Sigma Research, London School of Hygiene & Tropical Medicine, UK 28th August 2018 Public Health EUROPEAN COMMISSION Consumers, Health, Agriculture and Food Executive Agency Unit: Health Unit - B Contact: Chafea E-mail: [email protected] European Commission L-2920 Luxembourg 2 EMIS-2017 plan for data analysis, including a manual with descriptions of parameters and coding values (D4.1) Consumers, Health, Agriculture and Food Executive Agency Health Programme 2014-2020, 2015 AWP priority 4.1.3. August 2018 Europe Direct is a service to help you find answers to your questions about the European Union. Freephone number (*): 00 800 6 7 8 9 10 11 (*) The information given is free, as are most calls (though some operators, phone boxes or hotels may charge you). This report was produced under the Third EU Health Programme (2014-2020) in the frame of the service contract 20157101 - behavioural survey for HIV/AIDS and associated infections and a survey and tailored training for community based health workers to facilitate access and improve the quality of prevention, diagnosis of HIV/AIDS, STI and viral hepatitis and health care services for men who have sex with men (MSM) with the Consumers, Health, Agriculture and Food Executive Agency (Chafea), acting under the mandate from the European Commission. The content of this report represents the views of the authors and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission and/or Chafea or any other body of the European Union. The European Commission and/or Chafea do not guarantee the accuracy of the data included in this report, nor do they accept responsibility for any use made by third parties thereof. Print ISBN ISSN doi:10.2838/ DS-AU-15-001-EN-C PDF ISBN ISSN doi:10.2838/ DS-AU-15-001-EN-N More information on the European Union is available on the Internet (http://europa.eu). Luxembourg: Publications Office of the European Union, 2019 © European Union, 2019 3 About this report This report was prepared as part of the ESTICOM (European Surveys and Training to Improve MSM Community Health) tender, which is a three-year tender from 27 August 2016 to 26 August 2019 funded by the Consumers, Health, Agriculture and Food Executive Agency (CHAFEA) of the European Commission. The ESTICOM tender involves 9 European organisations in a consortium led by the Robert Koch Institute (RKI) in Berlin. The purpose of the ESTICOM tender is to strengthen the community response and raise awareness about the persisting legal, structural, political and social barriers hindering a more effective response to the syndemics of HIV, hepatitis viruses B and C, and other sexually transmitted infections (STI) among gay, bisexual and other men that have sex with men (MSM). To achieve this purpose, the consortium will deliver on three inter-linked objectives during the term of the contract: • Objective 1: A European online survey of gay, bisexual and other MSM (EMIS 2017); • Objective 2: A European online survey of community health workers (CHW) who provide sexual health support in a community setting directly to gay, bisexual and other MSM (ECHOES); • Objective 3: Development and piloting of a training programme for MSM- focused CHW to be adaptable for all EU countries. This report falls under Objective 1 which is built on four Work Packages (WP): a review of MSM knowledge, attitudes and practices relating to the sexual health of gay, bisexual and other MSM, including existing surveys and training materials (WP1); a pan-European MSM survey design (WP2); promotion and execution of the survey (WP3) and; an analysis and survey report (WP4). The tender specification for this report (Work Package 4) was outlined as follows: “The overarching task of WP4 is to move from a complete uncleaned MSM dataset to a Final European MSM Survey Report, that is wholly acceptable to the contracting authority, that effectively describes the knowledge, attitudes and practices of gay men, bisexual men and other men that have sex with men (MSM) across the European Union.“ This deliverable concerns the first key task of Work Package 4 in which: • We will merge all language versions of the survey and sort and clean the whole dataset as soon as the MSM survey is closed and produce and deliver a robust and exhaustive plan for data analysis, including a variable manual with descriptions of parameters and coding values (D4.1). This deliverable was written and prepared by members of Objective 1, Work Package 4: • Peter Weatherburn, Ford Hickson, Axel J. Schmidt, David Reid (Sigma Reseach, London School of Hygiene & Tropical Medicine, UK). • Ulrich Marcus (Robert Koch-Institute, Department for Infectious Disease Epidemiology, Berlin, Germany) 4 5 Table of Contents About this report ............................................................................................... 4 Table of Contents .............................................................................................. 6 1. Introduction .................................................................................................. 7 2. EMIS 2017 fieldwork (work package 3) ............................................................. 8 3. Next steps .................................................................................................... 9 3.1 Preparation of a draft European MSM Survey report (D4.3) .......................11 3.1.1 Agreement on country inclusion in the report narrative .......................12 3.1.2 Agreement on inclusion and ordering in the country data tables ...........12 3.2 Proposed Final Report Structure .............................................................13 3.3 Meeting the primary goals of the contract ................................................17 3.4 Other outputs planned ..........................................................................19 3.4.1 Maps of the key variables by country ................................................19 3.4.2 National reports .............................................................................19 3.4.3 EMIS Community Reports ................................................................20 3.4.4 Academic journal articles.................................................................20 Appendix 1: The EMIS 2017 Variable Manual .......................................................21 1. Introduction ............................................................................................22 2. Cases Submitted and Non-Qualifiers ..........................................................23 3. Questionnaire Content: Conceptual Overview ..............................................27 4. Corrections, Question Denominators & Missing Data ....................................33 5. Inconsistent Data ....................................................................................35 6.St andard & Modified Response Sets ...........................................................37 7. Case Variables ........................................................................................40 8. The Questionnaire ...................................................................................45 9. Dublin Declaration and Global AIDS Monitoring ...........................................94 10. Country Response Set ..............................................................................97 11. Region Response Sets ............................................................................ 101 12. Acknowledgments ................................................................................. 132 6 1. Introduction This report is Deliverable 4.1 of ESTICOM (European Surveys and Trainings to Improve MSM Community Health) funded as part of the European Commission Health Programme 2014-2020 to deliver evidence about the sexual health of gay men, bisexual men and other MSM across Europe. It was first submitted on 30th May 2018. Based on feedback received since, it has been updated to 27th August and is re- submitted here to form part of the ESTICOM Year 2 Progress Report. Alongside the Robert Koch-Institute (RKI) in Berlin, Sigma Research at the London School of Hygiene & Tropical Medicine (LSHTM) will lead on the Objective 1, an online survey similar to the European MSM Internet Survey (EMIS) that occurred in 2010. Objective 1 contains the first four Work Packages (WP 1-4) of ESTICOM and will be known as EMIS 2017. EMIS 2017 is coordinated by Sigma Research at the London School of Hygiene and Tropical Medicine (LSHTM) in association with the Robert Koch-Institute (RKI) in Berlin. Between them, these two organisations will deliver all work packages associated with Objective 1 (EMIS 2017). The overall aim of the MSM survey is to generate data useful for the planning of HIV and STI prevention and care programmes and the monitoring of national progress in this area 1) by comparing with the results of previous surveys, 2) by describing the level and distribution of HIV transmission risk and precautionary behaviours, related HIV prevention needs, and 3) by assessing self-reported STI testing behaviours, testing
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