Completion Report Japan-ASEAN Integration Fund Project “Capacity Development in Disability and Development for CLMV Government Officers” 2007-2010
Foundation for Advanced Studies on International Development (FASID) Completion Report Japan-ASEAN Integration Fund Project
“Capacity Development in Disability and Development for CLMV Government Officers” 2007-2010
Foundation for Advanced Studies on International Development (FASID) Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
Preface
This is a completion report of the project ‘Capacity Development in Disability and Development for CLMV Government Offi cers’ supported by the Japan-ASEAN Integration Fund and implemented by the Foundation for Advanced Studies on International Development. The project was composed of a series of training courses and work- shops over three years from July 2007 to June 2010 with the objective of enhancing the capacities of government offi cers engaged in disability issues to analyze, formulate and implement policies and programs in Cambodia, Lao PDR, Myanmar and Vietnam (CLMV countries).
In the ASEAN region, persons with disabilities have been largely left out of the development process. They are often caught in the vicious cycle of disability and poverty. Institutional, physical, informational and attitudinal barriers have made them invisible, leaving them unable to contribute to society and realize their full potential. The issue of “disability and development” has commonality and signifi cance for all ASEAN countries albeit in different degrees. As this project is intended to contribute to narrowing the development gap among ASEAN countries, it focused on CLMV countries.
Regional and international instruments adopted in recent years refl ect increasing attention to disability issues, and a rights-based approach to disability has gained recognition and visibility in disability discourses. At the international level, the United Nations Convention on the Rights of Persons with Disabilities, which entered into force on 3 May 2008, marks the inception of a new era in which a rights-based approach would be pursued within a legislative framework. At the regional level, the Biwako Millennium Framework for Action towards an Inclusive, Barrier-Free and Rights-based Society for Persons with Disabilities in Asia and the Pacifi c and its supplement, Biwako plus Five, bring together the Convention on the Rights of Persons with Disabilities and the Millennium Development Goals.
Thus, the project has been designed to develop government offi cers’ capacities in disability and development, which will allow them to formulate policies related to persons with disabilities in each CLMV country, thereby enacting and promoting the rights of persons with disabilities. The following is the completion report for the project reviews and summarizes our activities and achievements.
i Preface
We would like to extend our sincere gratitude to Ms. Yukiko Nakanishi, Mr. Osamu Nagase, Mr. Soya Mori, Mr. Shintaro Nakamura, Ms. Junko Utsumi, Ms. Chisato Esaki, Dr. Kenji Kuno, and all the experts, resource persons, groups and organizations who support this project. We are also grateful to the Japanese Ministry of Foreign Affairs for their guidance and for providing a good bridge to the ASEAN Secretariat. Finally, we would like to express our special gratitude to the ASEAN Secretariat for understanding the value of the project and for having extended their continuous support throughout the project’s duration.
June 2010
Foundation for Advanced Studies on International Development
ii Table of Contents
1 Introduction 1.1 Background ...... 2 1.2 Benefi ciaries ...... 2 1.3 Objectives and Activities ...... 3 1.4 Activities ...... 4 1.5 Management Structure of the Project ...... 6 1.6 The Main Feature of the Project ...... 7
2 Basic Concept of the Project 2.1 Disability and Development ...... 12 2.2 The Twin-Track Approach: Not “Disability” and “Development” but “Disability and Development” ...... 17 2.3 Convention on the Rights of Persons with Disabilities (CRPD) -Towards Inclusive Community and World ...... 26 2.4 Importance of Disabled Person-centered Approach ...... 32
3 Implementation of the Project 3.1 Preliminary Survey ...... 44 3.2 First Training ...... 62 3.3 Third Country Workshop ...... 72 3.4 In-Country Workshop ...... 77 3.5 Wrap-Up Seminar ...... 89
4 Impact of the Project 4.1 Cambodia ...... 94 4.2 Lao PDR ...... 97 4.3 Myanmar ...... 100 4.4 Vietnam ...... 103
5 Summary and Lessons Learned from the Project Experience 5.1 Summary from Each Country ...... 108 5.2 Learning from the Action Plan Implementations ...... 109 5.3 Nothing About Us Without Us - the Importance of Mainstreaming Persons with Disabilities ...... 110 5.4 Proposals ...... 111 Appendix A-1: [First training] List of the Participants (Cambodia) ...... 114 Appendix A-2: [First training ] List of the Participants (Lao PDR) ...... 115 Appendix A-3: [First training] List of the Participants (Myanmar) ...... 116 Appendix A-4: [Firtst training] List of the Participants (Vietnam) ...... 117 Appendix B-1: [First training] Evaluation by Participants (Cambodia) ...... 118 Appendix B-2: [First training] Evaluation by Participants (Lao PDR) ...... 120 Appendix B-3: [First training] Evaluation by Participants (Myanmar) ...... 125 Appendix B-4: [First training] Evaluation by Participants (Vietnam) ...... 133 Appendix C-1: [Third Country Workshop] List of the Participants ...... 136 Appendix C-2: [Third Country Workshop] Evaluation by Participants ...... 137 Appendix D-1: [In-Country Workshop] List of the Participants (Cambodia) ...... 140 Appendix D-2: [In-Country Workshop] List of the Participants (Lao PDR) ...... 141 Appendix D-3: [In-Country Workshop] List of the Participants (Myanmar) ...... 142 Appendix D-4: [In-Country Workshop] List of the Participants (Vietnam) ...... 143 Appendix E-1: [In-Country Workshop] Evaluation by Participants (Cambodia) ...... 144 Appendix E-2: [In-Country Workshop] Evaluation by Participants (Lao PDR) ...... 147 Appendix E-3: [In-Country Workshop] Evaluation by Participants (Vietnam) ...... 152 Appendix F-1: [In-Country Workshop] Action Plans (Cambodia) ...... 154 Appendix F-2: [In-Country Workshop] Action Plans (Lao PDR) ...... 167 Appendix F-3: [In-Country Workshop] Action Plans (Myanmar) ...... 172 Appendix F-4: [In-Country Workshop] Action Plans (Vietnam) ...... 183 Appendix G-1: [In-Country Workshop] Action Plan Implementation Report (Lao PDR)... 191 Appendix G-2: [In-Country Workshop] Action Plan Implementation Report (Vietnam) .... 199 Appendix H-1: [Wrap-Up Seminar] List of the Participants ...... 213 Appendix H-2: [Wrap-Up Seminar] Discussion Minutes ...... 218 1 Introduction Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
1.1 Background
ASEAN and Japan have a well established mutually signifi cant partnership in promoting regional peace and stability. Now the people in these countries are facing new challenges and opportunities in the rapidly changing global economy.
Various measures have been taken for poverty reduction based on the national development plans and Poverty Reduction Strategy Papers (PRSP) in the Kingdom of Cambodia, the Lao People’s Democratic Republic, the Union of Myanmar and the Socialist Republic of Viet Nam (hereinafter referred to as CLMV) in order to bring them into line with other ASEAN countries. As a result, macro-level indicators such as GDP growth rate and poverty incidence rate show that economic growth has been fostered in CLMV countries.
Nevertheless, the government fi nancial defi cit is still a common problem among CLMV countries, and as a result, vulnerable groups have been left behind the development process. In CLMV countries, persons with disabilities are a major vulnerable group. In this regard FASID has launched a three year capacity development project, for the government offi cers engaged in working for the rights of persons with disabilities, sponsored by the Japan-ASEAN Integration Fund since July 2007.
1.2 Benefi ciaries
(1) Target Benefi ciaries The target benefi ciaries of the project were public offi cers of the ministries and institutions related to “disability and development” programs in CLMV countries. Cambodia: Ministry of Social Affairs; Veterans and Youth Rehabilitation; Ministry of Education Lao PDR: Ministry of Labour and Social Welfare; Ministry of Health; Ministry of Education. Myanmar: Ministry of Social Welfare Relief and Resettlement; Ministry of Health; Ministry of Education Vietnam: Ministry of Labor, Invalids and Social Affairs; Ministry of Health; Ministry of Education and Training; Ministry of Transportation; National Coordinating Committee on Disability Offi ce The number of participants in the training courses and workshops were 20-30 in each country. This fi gure depended on the needs and request of each CLMV country.
(2) Ultimate Benefi ciaries This project ultimately aims to promote and enact the rights of persons with disabilities such as access to education, health, employment, transportation and others in CLMV countries.
2 Chapter 1 - Introduction
1.3 Objectives and Activities
By implementing the project activities, it is expected to achieve: ‘The enhancement of the capacity of personnel from CLMV countries engaged in disability issues to analyze, formulate and implement policies and programs.’
Provided the above project objective is achieved and some external conditions are met such as the actual implementation of the policies and programs suggested within the project, the overall goal is that the ‘rights of persons with disabilities are promoted and enacted in each CLMV country.’ The following fi gure shows the functional and causal relationships between project activities, the project object, assumptions (external factors) and the overall goal.
Rights of persons with Long-term disabilities are promoted Overall goal and enacted
Programs are actually implemented Assumptions to achieve Overall Goal Policies are actually Necessary budget is reformulated allocated
Project Personnel enhance capacity for analyzing, Objective formulating and implementing policies and programs.
Preparatory Training Field visit to In-country Wrap-up/ survey course Malaysia workshop Follow up Situation analysis Basic under- Survey on Situation Sharing of and stading of “dis- actual efforts analysis and experience and Formulation of ability and on “disability trial policy information project activities development.” and planning (curriculum de- development.” velopment)
Project Activities
3 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
1.4 Activities
The project activities were divided into the following 5 stages.
(1) 1st Stage: Preparatory Survey Mission In the fi rst stage of the project, preparatory surveys in respective countries were conducted to analyze the local situations and develop a curriculum for the fi rst training course in each CLMV country: in Vietnam in December 2007, in Lao PDR from February end to March 2008, in Cambodia from April end to May 2008, and in Myanmar in September 2008.
(2) 2nd Stage: Training course In the second stage of the project, the fi rst training courses were conducted in their respective countries. They focused on developing a basic understanding of ‘Disability and Development’; the participants understood that disability is a cross-cutting issue and each participant worked as a member of the team, exchanged their views and grasped the situations of persons with disabilities in the respective CLMV countries. The fi rst training course program included many discussions and group work sessions. Persons with disabilities were invited as resource people and played an important role in activating the course.
The fi rst training courses were conducted in: Vietnam from 5 to 8 August, 2008, in Lao PDR from 25 to 29 August, 2008, in Cambodia from 13 to 16 October, 2008 and in Myanmar from 25 to 28 November, 2008.
(3) 3rd Stage: Field visit In the third stage of the project, the third country workshop in Malaysia was conducted as a fi eld visit activity. It was held from 12 to 16 January, 2009. This workshop was originally planned in Thailand, however due to the unstable public security situation in Bangkok in November 2008, the location was switched to Kuala Lumpur, Malaysia which was also a leading country in ASEAN region in the promotion of equal opportunities for persons with disabilities. Three government offi cers from each CLMV country were invited to participate in the workshop.
The main focus of the workshop was to understand the government’s role in supporting persons with disabilities in terms of policy making and in collaboration with disabled people’s organizations.
(4) 4th Stage: In-country workshop The main activity in the fourth stage of the project was to conduct the in-country workshop in CLMV. The focus of the workshop was to analyze the present situation
4 Chapter 1 - Introduction
of persons with disabilities and formulate an action plan for each respective CLMV country. The in-country workshops were conducted in Vietnam from 11 to 14 August, 2009, in Lao PDR, from 1 to 4 September, 2009, in Cambodia from 13 to 17 July, 2009 and in Myanmar from 26 to 30 May, 2009.
(5) 5th Stage: Wrap-up and Follow up The fi nal stage of the project comprised follow-up activities and the conduction of a wrap-up seminar. Follow-up activities in each country were implemented as follows: Cambodia: monitoring mission 2 – 8 December, 2009 Lao PDR: Implementation of the Action Plan, ‘Workshop on promoting employment opportunities for PWDs in Lao PDR’ on 12 March, 2010 Myanmar: Follow up mission 8 – 24 September, 2009 Vietnam: Implementation of the Action Plan, ‘Raise awareness of the community in supporting women with disabilities; Creating opportunities for women with disabilities to participate in community activities in a self confi dent manner’ by the Vietnam Women’s Union in January to March 2010.
The wrap-up seminar was held from 22 to 25 March 2010 in Kuala Lumpur, Malaysia. The focus of the seminar was to discuss the future scope of network among CLMV as well as ASEAN states in supporting persons with disabilities in terms of policy making, collabora- tion with disabled people’s organizations and the private sector. This seminar was held in cooperation with the Ministry of Women, Family and Community Development, Malaysia. Three government offi cers from each participating country were invited to contribute to this seminar and one representative was invited from other ASEAN member countries in order to share best practice. In fact, nine government offi cers participated from CLV countries, and representatives from Indonesia, Philippines and Thailand also joined and shared their experiences.
5 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
1.5 Management Structure of the Project
As shown below, the Project Management Unit (PMU) is based at FASID in Tokyo, Japan worked in close coordination with a Focal Point Offi cer and a National Consultant in each CLMV country and the Committee of Social Development of the ASEAN Secretariat. In Myanmar, the National Coordinator played a role of coordinator for the PMU, the Focal Point Offi cer and the National Consultant.
FASID also set up a supporting committee whose members are all technical advisers with expertise in disability and development in developing countries, primarily in Asia, and also offi cers from FASID. The committee meetings were held between project stages.
Project Management Structure in Cambodia, Lao PDR and Vietnam
ASEAN Secretariat
Reporting Japan-based In CLV Countries
Project Management Unit MOSVY (Cambodia) MOLISA (Lao PDR) Project NCCD (Vietnam) Manager (Target Benefi ciaries)
Project Focal Point Coordinators Offi cer
Technical Coordination Coordination Technical support support
Technical National Advisors Consultant
6 Chapter 1 - Introduction
Project Management Structure in Myanmar
ASEAN Secretariat
Reporting Japan-based In Myanmar
Project Management Unit Ministry of Social Welfare, Relief and Resettlement Project Manager (Target Benefi ciaries)
Project Focal Point Coordinators Offi cer
Technical Coordination support National Coordinator Technical Advisors
National Consultants Technical support
1.6 The Main Feature of the Project
(1) Regional Cooperation for ASEAN Integration Experience in the fi eld has already accumulated in the region, through institutions such as the United Nations Economic and Social Commission for Asia and Pacifi c (ESCAP) and the Asia-Pacifi c Development Center on Disability (APCD) located in
7 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
Thailand. And also, through technical cooperation done by JICA, Malaysia has also endeavored to work on these issues for a long time and accumulated experience and know-how that is valuable in improving the lives and livelihoods of persons with disabilities, thereby realizing a greater level of social participation of persons with disabilities in their communities. This project took advantage of the human resources and information available at such institutions and advanced experience mentioned above, and would therefore not only narrow the gap amongst ASEAN countries but also promote regional integration, which is also one of the objectives of the Initiative for ASEAN Integration (IAI).
In this regard, the project targets were CLMV countries, however, other ASEAN member countries’ delegates were also invited to the training courses and workshops in CLMW countries to act as a knowledge resource or as lecturers, they also participated in the follow-up activities and the wrap-up seminar.
(2) Participation of the Persons with Disabilities Participation of Persons with Disabilities (PWDs) was stressed all through the project implementation process. As mentioned, FASID set up a supporting committee to discuss the project activity in each stage. There were eight members and three of them had disabilities in either hearing or mobility. National Consultants/ Coordinators were those with extensive knowledge of disability issues in respective countries and who worked closely with FPOs to facilitate communication between the FPO and FASID. Three of them had disabilities in either mobility or visual domains.
Also, in addition to the public offi cers of the relevant ministries and institutions in ‘disability and development’ programs in CLMV countries, stake holders such as persons with disabilities and disabled people’s organizations (DPOs), family organizations and NGOs participated in training and other activities as lecturers, resource persons and observers.
Project Management Unit
Technical Advisor: Ms. Yukiko Nakanishi, Mr. Osamu Nagase, Mr. Soya Mori, Mr. Shintaro Nakamura, Ms. Junko Utsumi, Ms. Chisato Esaki, Mr. Yoshito Dobashi (October 2007 – September 2008), Ms. Chie Yoshimura (October 2007 – October 2008) Project Manager: Ms. Keiko Asato (August 2009 – June 2010) Mr. Akira Nagamachi (April – July 2009) Ms. Mayumi Hamada (July 2007 – March 2009) Project Coordinator: Ms. Junko Watanabe (February 2008 – June 2010) Ms. Yasuko Hayashi (July 2007 – January 2008) Ms. Takako Wayama
8 Chapter 1 - Introduction
National Consultant: Mr. Yi Veasna (Cambodia) Ms. Misouda Heuangsoukkhoun (Lao PDR) Mr. Tha Uke (Myanmar) Ms. Nguyen Hong Ha (Vietnam) National Coordinator: Mr. Aung Ko Myint (Myanmar)
Contributors
This project was supported by the people listed below
Cambodia Mr. Ngin Saorath, Ms. Uch Vantha, Mr. Klann Mab, Mr. Noun Sambo, Ms. Mak Monika, Mr. Heng Sokha, Mr. Reach Vuthorn, Mr. Kong Vichetra, Mr. Ean Nil, Ms. Phum Leakhena, Ms. Song Sokleap, Ms. Chhoeurn Somaly, Mr. Ouch Nimol, Mr. Mao Sokchea
Lao PDR Mr. Thanomvong Khamvongsa, Mr. Khampeang Volachachdavy, Mr. Pe Kenkeosisuphan, Mr. Samniang Thammavong, Mr. Soulidet Indatave, Ms. Phanita Mayphone, Ms. Phoutsady Laoly, Ms. Inpeang Vilayhong, Mr.Nuanta Latsavongsay, Mr. Nuaneta Latsavongsay, Ms. Seevanh Xaikia
Myanmar Dr. Zaw Moe Aung, Mr.Nay Lin Soe, Mr. Zin Min Htet, Ms. Nge Nge Aye Maung, Ms. Yu Ya Thu, Ms. May Khant Chit Khin, Mr. Ko Ko Lwin
Vietnam Mr. Dan Rocovits, Mr. Nguyen Duc Minh, Mr. Nguyen Trung, Ms. Nguyen Le Thuy, Ms. Duong Minh Chi, Ms. Duong Thi Van, Ms. Nguyen Bich Hang, Pham Kieu Dung, Mr. Nguyen Van Hai, Ms. Nguyen Thi Thanh Thuy, Ms. Ngo Kim Oanh, Mr. Van Duc Hoa
Indonesia Ms. Aria Indrawati
Thailand Mr. Teerawat Sripathomsawad, Mr. Suporntum Mongkolsawadi, Ms. Saowalak Thongkuay, DPI-AP, APCD
Philippines Mr. Mateo A. Lee Jr.
9 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
Malaysia Ministry of Women, Family and Community Development, Ms. Yeo Swee Lan, Mr. James Lim Ming Koon, Mr. Johari Jamali, Ms. Ms. Teoh Hooi Ting, Mr. Lee Soon Kup, Mr. Nesan A/L Kandiah, Mr. Lee Lih Shyan, Ms. Sia Siew Chin, Mr. Anthony Arokia, Air Asia, Beautiful Gate Foundation for the Disabled, Daily Farm, Malaysian Federation of the Deaf, United Voice, BEAT
Japan Mr. Kenji Kuno, Ms. Emi Aizawa, Mr. Yoshinori Ikezumi, Ms. Miho Yoshida, Mr. Minoru Teramoto, Ms. Yuko Yokotobi, Ms. Mitsuko Ogawa, JICA
10 2 Basic Concept of the Project Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
2.1 Disability and Development
Soya Mori Senior Research Fellow Institute of Developing Economies- JETRO
(1) Introduction The World Health Organisation (WHO) estimates that Persons with Disabilities (PWDs) make up 10% of any population (WHO 1999, Nangendo 2002), irrespective of the level of development. Clearly, for developing countries the situation for PWDs is worse in rural areas because there are less social resources such as medical institutions, government assistance programs and disabled people’s organizations to support them.
For a long time, the most prevalent approach to these issues around PWDs had been the individual-medical approach, which focused on PWDs’ dysfunctions and medical rehabilitations. The approach was based on the illness-analogy of disabilities. Very often PWDs had been considered as medical patients and their disabilities thought to be caused mostly by illness. The disability was seen as a direct result of their impairment. The strong causality between impairment and disability had been taken for granted until recently.
In the 1970s, professionals in rehabilitation “recognized the need to move away from the highly reductive conceptions of functional limitations of focusing on defi nition defi cits in limbs and organs, which had traditionally characterized physical medicine and physical therapy. This paradigm was enshrined in official reports, with the promulgation of broader defi nitions of rehabilitation as the restoration of patients to their fullest physical, mental, and social capability” (Tunbridge 1972). After the International Year of Disabled Persons in 1981, an increasingly broader defi nition of disability and health status began to gain ground. More focus on daily activities such as whether a person could wear clothes or take a bath by themselves began to gain momentum for defi nitions of disability.
(2) Emergence of the Social Model of Disability More recently disability studies in UK propose the newer idea of disability as Social Model of Disability (Oliver 1998). Various social movements in UK and US began to have a strong infl uence on the defi nition of disability. In the US, the key movements are Independent Living and Disability Rights and it is possible that these movements could contribute to the implementation of a new Rehabilitation Act there. In the UK, the Union of the Physically Impaired against Segregation’s (UPIS) defi nition of disability become the basic concept of the social model. The social model defi nes Disability as
12 Chapter 2 - Basic Concept of the Project
follows (Stone 1999).
1. Impairment is the term used for an individual’s condition (physical, sensory, intellectual, behavioral). 2. Disability, in complete contrast, can be defi ned as social disadvantage and discrimination.
The concept of disability focuses its attention on social structure and the relations between individuals and society and the change required of the society from the viewpoint of disabled people’s civil rights is the main proposed agenda for the model. Due to the infl uence of this newer concept on their policy, WHO also modifi ed its classifi cation principles for disability. They adopted ICF, the International Classifi cation of Functioning, Disability and Health in 2001 as their newer classifi cation standards of disability instead of the older ICIDH, the International Classifi cation of Impairments, Disabilities and Handicaps. With the ICIDH, domains are classified from body, individual and societal perspectives by means of two lists: a list of body functions and structure, and a list of domains of activity and participation. ICF takes into account the social aspects of disability and does not see disability only as a ‘medical’ or ‘biological’ dysfunction. Through these changes, now we can deal with disability in the context of development. The social model of disability and ICF are more concerned with society and social situations than in the functional classifi cation of disability as defi ned within the ICIDH. As we know, development processes have great impacts on disability. The same impairment would result in very different problems in different stages of development. Social resources such as sign language interpreter services for the deaf and guides for the blind, and disabled people’s organizations have very important impacts on enhancing the daily lives of PWDs.
(3) Disability Inclusive Development Now we turn our discussion to development itself. International development and international cooperation around PWDs in developing countries have been conducted within the frame- work of the individual-medical model for a long time. However, enhanced recognition of the social resource constraints in developing countries and of the necessity of a multi-dimensional approach to poverty alleviation gives us a new understanding of disability issues in the context of development. Existing institutional-based rehabilitation policies are expensive for both developing countries and developed donor countries. The pro-poor approach for poverty alleviation found the situation most serious for the poorest among the poor, including disabled people in rural areas. Unfortunately, the Millennium Development Goals (MDGs) initially neglected to include disability as a key item in its agenda in 2000. However, the international community tried to redeem the situation by formulating the UN Convention on Rights of People with Disabilities in 2006 as a powerful poverty reduction tool for PWDs in developing countries. The MDGs could fi ll the missing disability gap with UNCRPD. The strong message for the
13 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
UNCRPD is embodied by the ‘rights-based approach to disability’ and the idea of ‘nothing about us, without us’. These messages should bring Disability Inclusive Development (DID) into the international development and international cooperation. In every development process, PWDs would be expected to be mainstream players and should have the equal opportunities and rights to non-disabled people.
(4) Twin-track approach of Empowerment and Mainstreaming To realize the DID, the most important keys are Empowerment and Mainstreaming (DFID 2000, Kuno and Seddon 2003, Thomas 2004, 2005). Empowerment means ‘having a belief in our own intrinsic worth and the self-confi dence and self-esteem the fl ow from that’ (Coleridge 1999). To remove barriers preventing people with disability from being included and thereby achieving equality, Mainstreaming would be a very important tool (Commission for Social Development 2008:5; Albert et al 2005). The mainstreaming would be defi ned as follows:
. . . mainstreaming is the process of assessing the implications for people with disability of any planned action, including legislation, policies or programs, in any area and at all levels. It is a strategy for making the concerns and experiences of people with disability an integral part of the design, implementation, monitoring and evaluation of policies and programs in all political, economic and societal spheres, so that people with disability benefi t equally and inequality is not perpetuated (cited in Albert et al 2005:6).
The Empowerment would mainly target the PWDs and the Mainstreaming concept should work throughout society. PWDs would be given the power to become full players within the development process through the empowerment process and the fi eld for their activities would be manifested through the mainstreaming process. A good example is the Indian 2009 election for Congress. For the election, with very active movement of DPOs in India, the central Election commission asked each voting booth to have accessibility facilities such as wheel-chair accessible ramps and Braille-taped voting machines for the blind. This is an example of how empowerment efforts for accessibility and mainstreaming were able to enhance PWDs’ participation in politics through exercising their voting rights. However, in some train stations in some countries, they have specially designed bathrooms or elevators exclusively for PWDs. Although these initiatives may be viewed as a kind of empowerment, they are against the mainstreaming concept because they marginalize PWDs into using specialist facilities. In other countries, some government offi ces do not possess the necessary facilities and services to support employees who are PWDs, such as sign language interpreters for the deaf and screen-readers for the blind. Furthermore, their offi ces are very often located in the locations that are diffi cult to access, resulting in a scenario within which mainstreaming would be diffi cult to achieve. We should always evaluate DID policy against how it measures up to the criteria of empowerment and mainstreaming.
14 Chapter 2 - Basic Concept of the Project
(5) Disability Laws Within the ethos of empowerment and mainstreaming, institutional arrangements and frameworks are also very important for the successful implementation of DID. Following UNCRPD, each country should have its own legislative measures such as disability laws and/or anti(non)-discrimination laws, and appropriate administrative measures to enforce the legislation (Byrnes 2009). The legislative measures would give the standards for DID and prepare society for its adoption. Administrative institutions are also necessary for the implementation of the laws and for coordination among other governmental institutions. Though many countries ratifi ed UNCRPD, some countries do not have the required legal and institutional arrangements in place. To better build a non-disabled society we should establish these conditions as soon as possible in all countries.
(6) Conclusion So far we have discussed the main issues in disability and development. They are the transition of the concept of disability from the individual-medical model to the social model. The ‘Copernican Revolution’ in our understanding of disability gives us new perspectives on disability in development. Traditional disability has been regarded as the domain of charity and social-welfare. However, with the new perspective, disability issues have become development issues and we should tackle disability issues with more broadly based human resources, not only from social-welfare domain, but also from other specialisms such as economics, sociology, political science and public administration.
Disability Inclusive Development can be accomplished with a twin-track approach. The key concepts for this twin-track approach are mainstreaming and empowerment. To successfully implement Disability Inclusive Development both concepts need to be applied in a balanced and coordinated way. There are now a few years remaining until 2015, which is the deadline set to achieve the MDGs. MDGs for all should include PWDs and the MDGs cannot be achieved if PWDs are not included in the policies and processes leading to the attainment of targets enshrined in the MDGs. Very often PWDs constitute the poorest of the poor in each country. Each country should employ legislative and administrative measures tailored to the twin track approach of empowerment and mainstreaming to address disability issues in its development process. In this context UNCRPD would also be a useful tool in assisting DID. Although we still have many challenges in disability and development, we should recognize that we now have many useful tools that will enable us to overcome them.
15 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
References
Abberley, Paul. “The Concept of Oppression and the Development of a Social Theory of Disability” 2.1 (1987). 17 May. 2010 Albert, B, AK Dube and TC Riis-Hansen 2005, Has Disability Been Mainstreamed into Development Cooperation? Disability Knowledge and Research Program, United Kingdom. Byrnes, A. (2009 Disability Discrimination Law and the Asia Pacifi c Region: Progress and Challenges in the Light of the United Nations Convention on the Rights of Persons with Disabilities, paper presented for Expert Group Meeting on the Harmonization of National Legislations with the Convention on the Rights of Persons with Disabilities in Asia and the Pacifi c, UNESCAP Coleridge, P. (1999) Development, Cultural Values and Disability: The Example of Afganistan, Stone, E. ed. Disability and Development: Learning from action and research on disability in the majority world, Leeds: The Disability Press. Commission for Social Development (2008), ‘Mainstreaming Disability in the Development Agenda. Note by the Secretariat’, Commission for Social Development, Forty-sixth session, 6-15 February, 2008. DFID (2000) Disability, Poverty and Development, DFID Kuno, K. and Seddon, D. (2003), ‘A Study on Twin-Track Approach in Disability and Development: Disability Analysis of Development and Community Based Rehabilitation-Potentials and Challenges in Practice,’ JICA Nangendo, F. (2002) Awareness of reproductive Rights, HIV Prevention and Sexual Exploitation Among Women With Disabilities. A Research Report Submitted to the Community Based Rehabilitation Alliance (COMBRA), Kampala, Uganda. Oliver, M. (1998). Disabled People and Social Policy: From Exclusion to Inclusion. London: Longman. Stone, E. (1999) Disability and development in the majority world, Stone, E. ed. Disability and Development: Learning from action and research on disability in the majority world, Leeds: The Disability Press. Thomas, P.(2004) DFID and Disability: A Mapping of the Department for International Development and Disability Issues, Cornell University ILR School ————— (2005) Disability, Poverty and the Millennium Development Goals: Relevance, Challenges and Opportunities for DFID, Cornell University ILR School Tunbridge, R. (1972). Rehabilitation: Report of a Sub-Committee of the Standing Medical Advisory Committee. London: Her Majesty’s Stationery Offi ce. UPIS (1976). Fundamental Principles of disability. London:Author. WHO. (1999). Press release WHO/68, 12/3/99 International Day of Disabled Persons.
16 Chapter 2 - Basic Concept of the Project
2.2 The Twin-Track Approach: Not “Disability” and “Development” but “Disability and Development” Kenji Kuno, PhD. Senior Advisor (Social Welfare) Japan International Cooperation Agency
(1)Why are We “Troubled”(困): Freedom, Possibilities and Susbtantive Opportunities Before we start, let us think about why the Japanese character for “troubled” is “困”. It is a tree (木) trapped in a frame (口); therefore it cannot grow, which is trouble. How do we resolve the situation and help the 木 to grow?
One approach is for the tree to develop power to break out of the frame (or for someone to support the tree develop the power.) Another approach is for someone else to remove the frame. The former is Empowerment, the latter Enablement. With both of these wheels in place, the tree can fi nally grow out of the box and develop. The Twin-Track Approach is a way to pursue both empowerment and enablement, towards the freedoms of the tree (= everyone with disabilities), in another word, possibilities and substantive opportunities.
Amartya Sen distinguished “well-being” as “opportunities available to an individual” or “how much true freedom one possesses, in choosing the kind of life s/he thinks is worth living,” and proposed the spectrum of this freedom as “Capability” (Box1, fi gure 1). Sen argued that poverty is a state where one is deprived of life or welfare in this context, in other words, when choices and substantive opportunities are limited. Sen also stated that “development” means resolution of this meaning of poverty, an attempt to guarantee and broaden opportunities and freedoms for all individuals (Sen, 1999).
Environmental
Commodities choice Functionings
CAPABILITY
Personal Social Means Freedom Achievement
Agency Figure 1: Capability Approach Source: Developed by author
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Box 1: Capability Approach The Capability Approach is a broad normative framework for the analysis of individuals’ quality of life or well-being, which measures people’s well-being by the range of “capabilities” to “functionings”. Capabilities is substantive opportunities to undertake the actions and activities that they want to engage in, and be who they want to be. Based on the idea that every individual is different, the Capability Approach tries to defi ne equality, not of means like income, results like effi cacy or formal opportunities like system, but of different individuals’ lives, freedoms and substantive opportunities, turning components that affect one’s life such as each individual’s characteristics, society and environment into an integrated concept of “capabilities.” In the Capability Approach, a perspective of “agency,”-- each individual’s autonomous action-- is considered as important as well-being. The Capability Approach has been a predominant paradigm for policymaking in human development, leading to the creation of the UN Development Programme’s Human Development Index and has become an important concept / framework of development.
(2) “Disability and Development”, Not “Disability” and “Development” 80% of the world’s disabled people live in rural areas of developing countries, and the number continues to rise due to the rapid expansion of HIV/AIDS, civil wars and famine. In fact, one in six impoverished people are thought to have medium to severe disabilities. This implies that disability cannot be resolved without involving developing countries, and that work on disability is synonym to resolution of poverty.
This does not just mean international efforts to support persons with disabilities in developing countries. Just like in developed countries, persons with disabilities in developing countries are facing a number of problems including poverty, discrimination and inequality. The common thread in many developing countries is the multiple poverty-caused social problems and the lack of social policies. People with disabilities in developing countries are facing poverty, health issues, discrimination due to gender or tribal origin and geographic alienation just like any other non-disabled people in developing countries, so attempts to eliminate disability alone do not resolve other problems they have.
Conventionally, disability and poverty had been treated separately; disability was handled in the fi eld of disability, and poverty as poverty, even though these two entities often co-existed for the same person. However, be it disability or poverty, a problem cannot be handled independently of surrounding issues. In other words, it is important to understand a variety of issues within a more comprehensive context such as life or society. “Disability and development” does not mean a strategy for effective means to provide medical or healthcare services. It means understanding a variety of issues like poverty and disability within life and community as interrelated issues in a larger frame-
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work, and changing the process of development and the nature of intervention. For example, if “building a school in the village” were a concept targeted only at children without disabilities, children with disabilities would naturally be excluded from the school. “Disability and Development” means changing such conventional thinking (not recognizing persons with disabilities as equal participants of society or organizations) or attempts of development. The conceptual framework of this integration is the aforementioned Capability Approach, and also participation, as explained below. The framework of action based on the concept of “Disability and Development” is the Twin-Track Approach.
Participation as a Concept Connecting Disability and Development In recent years, participation has been debated as an important concept and viewpoint in the fi elds of disability and development. The continuous theme of disability since the International Year of Disabled Persons is “full participation and equal opportunities” for persons with disabilities. In the revised version of international classification of disability, i.e., International Classifi cation of Functionings (ICF), WHO explained “(restriction of) participation” as a social issue of disability. Disability is synonym to issues of participation. The concepts and practice of “participatory development” and “community participation” are gaining more ground as a replacement for top-down approach of development, making participation the foundation for both disability and development, and also a link between the two.
Figure 2 shows a general model of conceptual transition of disability and development. Disability and Development, which had conventionally been understood as two separate entities, can be seen to converge towards participation as their concepts change.
Disability Development
Care Recovery Participation Poverty Economic (Rehab) Growth of the nation
Individual Social Individual Nation
Social Religious Natural Economics Science Science
Figure 2: Conceptual Transition of Disability and Development Souce: by author
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Disability used to be an issue of protecting the weak, conventionally understood within religious contexts. Then with the development of natural science, especially of medicine, “returning to the society by recovering functionality” became a mainstream approach. After that, the concept of social participation gained importance, with the rise of Social Model of Disability where disability was no longer defi ned only as an individual’s functional limitations--shifting disability’s framework from natural science to social science.
What about development? Conventionally, development had meant economic growth of a nation. After that, individuals’ poverty got recognized as a development issue but it only referred to fi nancial poverty. However since the 90’s, diversity and sustainability of livings and cultures, social resources, social exclusion and participatory development have become new conceptual frameworks. The importance of grasping issues as one whole picture in relation to society has been recognized, taking concepts like livelihood and capabilities into account, rather than focusing on each individual’s fi nancial poverty.
Under these circumstances, “participation” has become a common conceptual framework for both disability and development. Participation in “disability and development” is defi ned by the United Nations in relation to the Decade for Persons with Disabilities.
Participation is defi ned as “the right of persons with disabilities to take part fully in the life and development of their societies, enjoy living conditions equal to those of other citizens, and have an equal share in improved conditions resulting from socio-economic development” by the International Year of Disabled Persons (United Nations, 2000).
This defi nition is an accurate refl ection of the fact that participation is a right, participation is to happen for the process and the result, and that “empowerment (changing the society)” and “inclusion (equal participation in the society)”are two important pillars. Conversely, the defi nition implies that disability issues cannot be resolved in the scope of participation unless these two elements are considered.
(3) The Twin-Track Approach for “Disability and Development” The perspectives and frameworks of capabilities, participation, empowerment and inclusion are put into practice by the Twin-Track Approach (Figure 3.). It is an approach where “mainstreaming” and “empowerment” are concurrently pursued within one framework of development assistance, and is employed as the basic strategic framework by a number of international development agencies including Japan International Cooperation Agency (JICA), UK Department for International Development (DFID), United States Agency for International Development (USAID) and Swedish International Development Agency (SIDA). Mainstreaming and Empowerment are explained below; note the distinction between their targets. As
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mentioned in the introduction of this report, empowerment is targeted at persons with disabilities, while mainstreaming is targeted at society.
Goal: Full Participation & Equal Opportunities
Mainstreaming Empowerment (society) (persons with disabilities) Abilities Inclusion Decision Making Enablement Conscientization
Figure 3: The Twin-Track Approach Source: by author
Empowerment Empowerment for persons with disabilities is an attempt to attain problem-solving skills, confi dence, conscientization and solidarity, where recovery of bodily / mental functionalities is a mere component. Empowerment in practical terms includes establishment of organizations and development of persons with disabilities, leadership training for persons with disabilities, and independent living movement such as peer counselling. The literal translation of empowerment is “to attain power,” but its defi nition varies depending on the defi nition of power itself, which can be categorised primarily into three groups, the most important being conscientization (critical consciousness)—a power that can change society. Let’s look at these three types of empowerment (Lukes 1993, Freire 1993.)
Empowerment as Ability:suppose a skill like “being able to write” is considered as “power.” Empowerment will mean improvement of the individual’s ability. Mr. “A” will be able to write by his own effort, and it will not deprive the power of Mr. “B”. Namely, power is not a zero-sum game. But it is something can be increased continuously, although the power’s relative “social value” is determined by competition with others.
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Empowerment as Decision Making: in this context, power is the ability to make a decision exactly as one desires in a decision-making process (and confl icts) of a group such as a nation or a local community. Empowerment, therefore, is a victory in such a decision-making process, or support towards the victory. Take a village for example. If requests by persons with disabilities in the village were turned down, it means the persons did not have power. In this context, empowerment means processes with which the persons with disabilities can have their requests adopted at the village committee—for example, support for the establishment of an organization of the persons with disabilities.
Empowerment as Conscientization (Critical Consciousness): this is a concept whose logical framework was defi ned by Paulo Freire as conscientization (critical consciousness). People are to: see society and reality with a critical eye; recognize discriminatory situations; acknowledge the fact that society can be changed and that one has the power to do so; and recognize that taking action for this change is indeed power. An example: instead of accepting life in an institution as something that cannot be changed, persons with disabilities can know that even with disabilities they can have life in the community and recognize that they have the power to take action to change society or government policies. Therefore, empowerment in this context means building critical consciousness towards society, and building support or cooperation to bring the consciousness into practice.
As mentioned, empowerment has multiple defi nitions. Often, in the disability fi eld, an emphasis is put only on empowerment for human development or decision-making. However empowerment as conscientization is crucial for someone in becoming an agency to change society. Social Model of Disability have to be adopted as one’s own values and this process in practical terms involves developoing organizations of persons with disabilities or independent living movement such as peer counselling.
Mainstreaming: Inclusion and Enablement Mainstreaming means elimination of discrimination, inequality and exclusion of persons with disabilities from all areas of development assistance. With mainstreaming, instead of making disability an issue within limited frameworks such as medicine and education, disability is understood as a cross-cutting issue for all areas of development. Practical approaches include legislation of more comprehensive disability policies and plans; analysis of exclusion in development assistance to devise a solution; Disability Equality Training (DET) to recognize disability as an issue of discrimination or inequality; and examination of effective tools and interventions of participatory development. Mainstreaming can be rephrased as an inclusion or enablement, which is discussed in more detail below, to examine mainstreaming and its practical approaches.
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Inclusion As shown by the Social Models of Disability, since exclusive social structures and systems themselves are the true disabilities for people with disabilities, the concept of inclusion becomes the best perspective with which to analyse disabilities posed by social exclusion. The concept of inclusion shifts the focus from each disabled person and their functionalities to the relationship between the persons with disabilities and the society, clarifying the exclusive structure and system of the society. Social exclusion can be defi ned as a social or systemic process, with which a particular set of people are excluded from society’s social, economic, cultural or political participation. Just like disability, there are many discussions on social exclusion but the important thing is not to mix up integration and inclusion. Let’s take fi gure 4 for example, to consider the difference. “I need to put this star-shaped (★) object in the box, but the hole in the box is too small for the ★. How can I put it in the box?”—as shown in fi gure 4, there are at least two ways. One: slice off parts of the ★ so it becomes smaller and rounder, and fi ts the hole. Two: expand the hole. Either way, the object can be put in the box, but isn’t there any difference in the results— as one urges the object to change, while the other does not. This is the difference between integration and inclusion.
Individual Models of Disability Social Models of Disability Integration Inclusion Rehabilitation (narrow sense) Social Development
Figure 4: Integration and Inclusion Source: by author
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Integration: with integration, the minority (the star-shaped object) are urged to follow/synchronize with the ideas or lifestyles of the society (majority: the round balls)—they have to be integrated into society. In terms of disability, it would be integrating people with disabilities into society by making them “normal people” through rehabilitation programs. Such conventional rehabilitation approaches, such as urging a Deaf people to learn to speak, can be rephrased as an integration-based approach (note: “normal people” is a discriminatory expression and should correctly be “people without disabilities;” here the expression is deliberately used however, to clarify the formation process of such discriminatory thinking.)
Inclusion: inclusion is a concept employed in a society that puts an emphasis on rights and equality. Social exclusion is a resultant discriminatory situation that happens when society cannot protect people’s rights or equality. In such society, people with disabilities are excluded because the society has failed to protect the rights and equality of people with disabilities. The solution to this kind of exclusion is to change systems and structures to have a society that can protect everyone’s rights and equality—a process of inclusion, where diverse people can have an equal living irrespective of differences. As for disability, this would include legislations against discrimination to eliminate disability-caused inequality, enforcement of the law, changing discriminatory systems and structures, approaches to change people’s attitudes and views, and creation of necessary support and services that cater to different needs such as rational support.
There is a difference between “integration”—an approach to divide people into majority and minority, and try and integrate the minority into the society of the majority-- and “inclusion”—an approach to change society so that everyone can live on equal terms, based on the understanding that everyone is different. Obviously people with disabilities wish for the latter approach, but there are still many cases where “integration” is taken as an approach to eliminate social exclusion.
Enablement Let’s look at fi gure 5. What does it mean, to remove the “口”from the word “troubled ( 困る ) ? Say a society where everyone has equal rights and can participate with or without disability is called a barrier-free society, or a “fl at” society. What can we do to make this possible? Flattening means breaking the obstructive wall (obstruction to participation), and fi ll in the gap (lack of services for participation) or building a bridge. Meaning, removing various obstacles to participation (discriminatory and exclusive social structures including rules, physical structures, information and attitudinal barriers) and creating services that make participation possible, including reasonable accommodation such as personal assistants or sign language interpreters.
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Breaking the Barrier Strategy: law, policy, system, universal design, inclusive education, disability equality training (DET), self-advocacy
Filling the Gap Strategy: reasonable accommodation, participation support (eg. IL center, personal assistants, supported employment, sign language interpreters, Braille)
Figure 5: Realizing an Inclusive Society—Break & Build Source: by author
(4) Conclusion Disability is neither just a functional issue of an individual nor a medical or educational issue. It is a cross-cutting issue of life and development. Resolution is not just about offering support to persons with disabilities. It has to be an approach that changes society, and changes development itself to something more equal and comprehensive. The Twin-Track Approach is the system in which actions are taken in accordance with this concept.
References
Freire, P. (1993) Pedagogy of the Oppressed, Middlesex, Penguin Books. Lukes, S (1993) Power: A Radical Review, London, The Macmillan Press. United Nations (2000). The United Nations and Disabled Persons: The First 50 Years. (http://www.un.org/esa/socdev/enable/dis50y01.htm., accessed on June 1, 2008f) Sen, Amartya (1999): Inequality Reexamined: Potentials and Freedom, Iwanami Books, Tokyo Kenji Kuno, Yukiko Nakanishi (2004): Rehabilitation Kokusai Kyoryoku Nyumon (Intro- duction to International Cooperation on Rehabilitation), Miwa-Shoten, Tokyo.
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2.3 Convention on the Rights of Persons with Disabilities (CRPD) –Towards Inclusive Community and World
Nagase Osamu Associate Professor, Graduate School of Economics, University of Tokyo Council Member, Inclusion International
(1) Introduction The adoption of the Convention on the Rights of Persons (CRPD, hereinafter) and its Optional Protocol by the General Assembly of the United Nations in December 2006 was a major landmark for the promotion of the rights of persons with disabilities around the world. Since the fi rst international proposal for the human rights convention in the fi eld of disabilities was made in 1987, two decades had passed. Now the challenge of ratifying and putting the CRPD and its Optional Protocol into practice lies with both the government and the civil society.
Let us take a look at the current status of the CRPD and its Optional Protocol. The following information is based on the information available from the U.N. as of this writing, 20 May 20101.
Cambodia signed the CRPD and its Optional Protocol on 1 January 2007 but has not ratifi ed either of them as of this writing. Lao PDR signed on 15 January 2008 and ratifi ed the CRPD on 25 September 2009. Myanmar has not signed nor ratifi ed the CRPD or its Optional Protocol. Vietnam signed the CRPD on 22 October 2007.
As for other Member States of ASEAN, the Philippines and Thailand have ratifi ed the CRPD while Brunei Darussalam, Indonesia and Malaysia have signed the CRPD. For that matter Japan has signed but has not ratifi ed the CRPD. Globally, 88 countries have ratifi ed the CRPD and 53 have ratifi ed its Optional Protocol.
(2) Background of the CRPD The success of the International Year of Disabled Persons in 1981, proclaimed by the U.N., led to the declaration of the U.N. Decade of Disabled Persons from 1983 to 1992. In 1987 and 1989, at the U.N. General Assembly, the initial proposals for the elimination against persons with disabilities and rights of persons with disabilities were made. They did not get a consensus but resulted in the elaboration of the Standard
1U.N. ENABLE http://www.un.org/disabilities/, last visited 18 May 2010
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Rules on the Equalization of Persons with Disabilities, adopted by the U.N. General Assembly in 1993.
In 2001, another proposal for the human rights convention on the rights of persons with disabilities was made by the government of Mexico. Finally a general consensus emerged on the elaboration on the CRPD. From 2002 to 2006, eight sessions of the Ad Hoc Committee on the Rights of Persons with Disabilities were held. The negotiation proceeded well and in December 2006, the U.N. General Assembly adopted the CRPD and its Optional Protocol.
The disability community in the Asia Pacifi c played signifi cant roles through the Bangkok Draft of ESCAP, which formed the basis of the Chair’s Draft text for the Work- ing Group of the U.N. Ad Hoc Committee in January 2004. After the end of the U.N. Decade of Persons with Disabilities in 1992, the disability community in Asia and the Pacifi c, cooperating with the governments of China and Japan primarily, successfully lobbied for the ESCAP declaration of the Asian and the Pacifi c Decade of Disabled Persons 1993-2002, followed by the second Decade from 2003-2012. This provided the disability community in the region with essential experiences and knowledge useful for the elaboration of the CRPD. With this the disability community in the Asia and the Pacifi c region made important contributions to the CRPD negotiation process.
(3) Nothing About Us Without Us – Participation of Persons with Disabilities One of the major characteristics of the CRPD negotiation process was the unprecedented level of participation of stakeholders, namely, persons with disabilities. Throughout the negotiation, this spirit was expressed by the words, “nothing about us without us”. As persons with disabilities are diverse, their representatives, as NGO representatives and government delegations, included people with physical disabilities, such as wheelchair users, people who were blind or had low vision, people who were hard of hearing, people who had intellectual or psychosocial disabilities, and Deaf people who spoke sign languages.
(4) Major Elements of the CRPD (4.1) Social Model of Disability and Diversity The article1 refers to the concept of disability and includes “long-term physical, mental, intellectual or sensory impairments”. The social model of disability is also expressed in articled 1 by the following, “impairments which in interaction with various barriers may hinder” the participation of persons with disabilities.
(4.2) Essential Participation of Persons with Disabilities As general obligations, States Parties, in developing and implementing legislation and policies to implement the CRPD and in other decision-making processes related to persons with disabilities, are to “consult with and actively involve persons with
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disabilities” (Article 4. 3). Article 33 on national implementation and monitoring also refers to the involvement and participation of persons with disabilities and their representative organizations in the monitoring process. The whole process of the CRPD, its negotiation as mentioned above, as well as its implementation and monitoring, needs to be done with persons with disabilities and their representative organizations.
(4.3) Prohibition of Discrimination and Reasonable Accommodation The article 5 explicitly prohibits all discrimination on the basis of disability. In this convention, denial of “reasonable accommodation” is defi ned as a form of discrimination. Reasonable accommodation, for instance, includes ramps and accessible toilets for wheelchair users, Braille materials and reading services for blind people, sign language interpretation for Deaf people, captioning for hard of hearing people, easy to understand information for people with intellectual/learning disabilities, and guides/ interpreters for deafblind persons. Reasonable accommodation is an individualized concept and is decided based on the particular needs of the individual with disabilities, in interaction with the providers of reasonable accommodation.
(4.4) Living in the Community Article 19 emphasizes the community living and states that “persons with disabilities have the opportunity to choose their place of residence and where and with whom they live on an equal basis with others and are not obliged to live in a particular living arrangement”. Here, “particular living arrangement” means, among others, residential institutions.
In this context, it also promotes provision of supports in the community and states that “persons with disabilities have access to a range of in-home, residential and other community support services, including personal assistance necessary to support living and inclusion in the community and to prevent isolation or segregation from the community”. As mentioned above, too often many persons with disabilities are left in the hands of the family members and they lead a life of isolation and segregation unfortunately. Thus it is vital that support in the community is provided so that individual autonomy and independence of persons are respected, as mentioned in the Article 3 on General Principles.
(4.5) Inclusive Education Education for all, including children with disabilities, is essential for inclusion and inclusive community. Article 24 is on education and States Parties are supposed to ensure “an inclusive education system at all levels”. It states that “persons with disabilities are not excluded from the general education system on the basis of disability” and this means that one single ministry of education is responsible for the education of all children, including children with disabilities. Inclusive education, as stipulated in the CRPD, is very hard to implement if the education of children with
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disabilities is the responsibility of other ministries such as the ministry of social affairs. It is critical that one single ministry deals with the education of all children, including children with disabilities.
(4.6) Deaf, Blind and Deafblind Education In the past, sign languages were considered as an inferior means of communica- tion for those who cannot hear. But linguistics has proved that sign languages are independent languages. For instance, American Sign Language is not a signed version of spoken English. Similarly, Japanese Sign Language is independent of Japanese Language. Article 2 of the CRPD defi nes sign languages as languages.
Education of the people who are deaf, blind or deafblind, provided for in article 24 on education, need to be provided “in environments which maximize academic and social development”, which can be schools for the deaf or schools for the blind. In order to ensure this, the same article also stipulates that States Parties are to employ deaf teachers who are fl uent in sign language and blind teachers who are qualifi ed in Braille.
(4.7) Work and Employment Work and employment in “the labour market and work environment that is open, inclusive and accessible” is encouraged by the CRPD, as stated in article 27. Provision of reasonable accommodation in the work place is required. Affi rmative action programmes, such as a quota system, are also encouraged as a means to promote the employment of persons with disabilities.
Work is not only an important means for persons with disabilities to earn their living but also a way to interact with the society. Many persons with disabilities, just like persons without disabilities, gain skills and experiences through work. Prohibition of discrimination on the basis of disability in recruitment, hiring and employment, as provided for in article 27, thus, is signifi cant for the realization of an inclusive community.
(4.8) Respect for the family Personal areas such as marriage, family, parenthood and relationships are often invisible areas where discrimination persists. In Japan, for instance, it was only in 1996 when the Eugenics Protection Law of 1948, which allowed the forced sterilization of persons with disabilities, was fi nally abolished. Victims of this misguided policy suffer even today. Involuntary sterilizations of persons with disabilities were also reported in the course of the CRPD negotiation. This has led to article 23 which states that persons with disabilities, including children, retain fertility on an equal basis with others.
(4.9) International Cooperation The CRPD is the fi rst human rights convention which has an independent article on international cooperation (article 32). Though there were some initial resistances from some members such as European Union (EU) against inclusion of this article, it was
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recognized that States Parties need to ensure that “international cooperation, including international development programmes, is inclusive of and accessible to persons with disabilities”. On the other hand, it is important to note that international cooperation is recognized to be “in support of national efforts”. Partnership with civil society, including organizations of persons with disabilities, is also recognized.
It is very encouraging, in this context, to note that persons with disabilities are now recognized as experts in the fi eld of international cooperation as well. For instance, Japan International Cooperation Agency (JICA) sends experts and volunteers with physical disabilities and intellectual disabilities to developing countries.
(5) Conclusion The CRPD has provided the world with a common language and a common goal in the fi eld of disability around the world. The international community now shares the vision of an inclusive community and the world.
For too long, persons with disabilities have been left out of the development process and the community. In every society, there are barriers that hinder the participation of persons with disabilities. There have been many laws that prevent persons with disabilities from fully participating in the society and fully realizing their potential.
For those of us in the Asia and the Pacifi c region, our efforts through the fi rst and second Asian and Pacifi c Decade of Disabled Persons of ESCAP have enabled us to contribute to the negotiations of the CRPD, which clearly shows us the future direction of our disability policy in our region and countries.
The challenge of ratifi cation and implementation of the CRPD is by no means small. But as we try to make progress and create a community which does not exclude persons with disabilities or anyone else, we need a vision of such a community and a country. The CRPD certainly provides us the vision and direction. The road to the inclusive community and society is very long. But we have to step forward in the correct direction. The CRPD, once again, helps us not to lose our way.
As the phrase “nothing about us without us” tells us, persons with disabilities are important guides to let us reach the goal of an inclusive community. For this we need the political participation of persons with disabilities. One example is Japan, which has many national issues to be solved before the ratifi cation of the CRPD. The new government, elected into power in August 2009, has established a new disability policy planning body, whose majority is persons with disabilities and their family members. This body, Council for Disability Policy Reform of the Cabinet Offi ce, is headed by the Prime Minister, established in January 2010, is now reviewing major disability policy of Japan so that Japan makes major policy changes before the ratifi cation of the CRPD.
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The government offi cers have much to contribute to the process of creating the inclusive community, working with persons with disabilities to put the CRPD into practice. Like any other international conventions, the CRPD can be just another paper. Whether it makes any difference in the life of persons with disabilities in each country and each community, it is up to each one of us.
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2.4 Importance of Disabled Person-centered Approach
Yukiko Nakanishi President Asia Disability Institute
There are still a number of people, not only in developing countries but also in developed countries, who have a negative image of disability. This can be prevented if there are persons with disabilities close by, participating in communities as role models with disabilities. There are many things that can only be done by persons with disabilities. “Nothing about us without us”, the statement that persons with disabilities are the best experts for persons with disabilities, is only now beginning to gain ground.
(1) Background of Disabled Person-centered Approach The idea of Disabled Person-centered Approach began to get attention in 1975 when Declaration of the Rights of Disabled Persons was adopted. Persons with disabilities who were until then seen as mere benefi ciaries of services became recognized as individuals. However, the Declaration did not go beyond the notion that persons with disabilities were entitled to the rights stated in the Declaration, including medical and psychological rehabilitation, education, vocational training, training and rehabilitation, support, counseling and placement services.
Ownership of persons with disabilities became an important issue for the fi rst time in the process towards the declaration of International Year of Disabled Persons in 1981. Originally Libya proposed that the year be named as “Year for Disabled Persons,” but it was changed to “Year OF”, to stress persons with disabilities as center of activities. Even though it was only for one year, it drew attention from around the world as persons with disabilities got the leading role for the fi rst time. The impact on developing countries was particularly signifi cant and many people still cite the year as the beginning of their nation’s history of disability activities.
The UN then adopted the Decade of Disabled Persons (1983-1992) to stress equaliza- tion of opportunities of persons with disabilities. The Decade was expected to strengthen tendency to center on persons with disabilities, as triggered by the International Year of Disabled Persons. In 1997, for the fi rst time for the UN expert meeting, more than half of the experts attending the mid-Decade review meeting in Sweden were persons with disabilities. It was one of steps forward for the Decade, but there were still few practical results. International organizations of disabled persons, especially from developed countries, claimed that the Decade was not successful and proposed a new movement to establish a human rights convention, which led to the adoption of the Standard Rules on Equalization of Opportunities for Persons with Disabilities.
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The Asia-Pacifi c region insisted on the extension of the Decade, and with Economic and Social Commission for Asia and the Pacifi c (ESCAP) as the main implementer declared their own Asian and Pacifi c Decade of Disabled Persons (1993-2002) Other regions were inspired, and started African Decade of Disabled Persons (2000-2009) and Arab Decade of Disabled Persons (2003-2012) respectively.
The Agenda for Action, action plan for Asian and Pacifi c Decade of Disabled Persons, was promoted in 12 areas, i.e. national coordination; legislation; information; public awareness; accessibility and communication; education; training and employment; prevention of causes of disability; rehabilitation services; assistive devices; self-help organizations; and regional cooperation. At this stage, ownership of persons with disabilities stayed within self-help organizations and participation in national coordination bodies. Disabled Person-centered Approach itself was not given much emphasis.
In the second Decade (2003-2012), self-help organizations of persons with disabilities were positioned at the core of 7 priority areas in the action plan, Biwako Millennium Framework (BMF: fi gure 1).
Training and employment, including self-employment
Early detection,early intervention and education Access to built environments and Self-help organiza- public transport tions of persons with disabilities and related family and parental associations
Women with Poverty alleviation disabilities through capacity- Access to information building, and communications, social security and including information, sustainable livelihood communication and programmes assistive technologies
Figure 1 : Priority areas of BMF
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Self-help organizations are provided information to value their initiatives. In order for this to happen, ESCAP obliges governments to consider fi nancial support to the self-help organizations and legislate NGO policies by 2004, and governments and societies to have persons with disabilities participate in policy making processes by 2005. However the monitoring is dysfunctional and few results are seen despite the emphasis on the ownership of persons with disabilities.
Meanwhile, concurrently with the second Decade, the UN furthered discussion on the Convention on the Rights of Persons with Disabilities, involving persons with disabilities as a member of the government delegations of Korea, Thailand, Japan, etc., and many representatives with disabilities of NGOs. Adopted in 2006, the Convention has a signifi cant impact as a convention on the human rights of persons with disabilities. BMF is understood to complement the Convention.
(2) The Proper Approach to Prioritize Persons with Disabilities The problems of persons with disabilities are caused by discriminatory social structures and systems as well as public attitudes. Solution of the problems is not achieved by individual efforts of persons with disabilities, but by change in society to provide services necessary for the living of persons with disabilities and to remove barriers for accessible and barrier-free environment. It is society’s responsibility to offer persons with disabilities services necessary to live in community. At the same time, it is disabled persons’ rights to manage their life by themselves as the consumer of the services Persons with disabilities are the driving force of social change, and they have the power to change society.
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The Convention on the Rights of Persons with Disabilities includes articles to promote Disabled Person-centered Approach, as shown in the chart below.
Items Articles within the Convention Awareness Raising Article 5: Equality and non-discrimination Article 8: Awareness-raising Participation in policies mak- Article 29: Participation in political and public life ing and planning for persons Article 33: National implementation and monitoring(d) with disabilities Article 34: Committee on the Rights of Persons with Disabilities Rights to live in the commu- Article 19: Living independently and being included in nity the community Article 23: respect for home and the family Article 28: Adequate standard of living and social protection (d) Inclusive education Article 24: Education Accessibility in information Article 21: Freedom of expression and opinion, and access to information Article 30: Participation in cultural life, recreation, leisure and sport Accessibility Article 9: Accessibility Article 20: Personal mobility Article 30: Participation in cultural life, recreation, leisure and sport Work Article 27: Work and employment Article 16: Freedom from exploitation, violence and abuse Article 28: Adequate standard of living and social protection (c) Chart 1: Articles in the Convention relative to Disabled Person-centered Approach
As seen in Asian examples, advocacy activities through self-help groups are essential for persons with disabilities who have been a mere target of charity to speak out and claim their rights. In the early 80’s, there were only organizations categorized according to each type of disability such as organizations of physical and visual disabilities. But the establishment of Disabled Peoples’ International (DPI) in 1981 helped those organizations realize the need of cross-disability activities as well as establish national coalitions of self-help organizations one after another. In some countries deaf persons do not yet organize themselves. Some coalitions do not yet cover persons with disabilities in rural areas. However, the presence of national federation of organizations of persons with disabilities in general shows steady development by emphasizing ownership of persons with disabilities.
35 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
Rehabilitation of Disabled Persons Act (1991) of Thailand, Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act (1995) of India and Disability Welfare Act (2001) of Bangladesh are all results of demonstrations organized by disabled persons` organizations protesting against delayed submissions to or debates in the Diet. It is the organizations of persons with disabilities that turned government’s attention to accessibility. In Japan, rejection of persons with disabilities to use taxis or buses as well as structural and physical barriers became topics of discussion from the early 80’s when users of powered wheelchair started going out. In 1988, DPI-Japan started an annual campaign to improve accessibility of trains and buses, eventually resulting in Japan’s accessibility claimed to be the best among developed countries. In Thailand, construction of the Sky Train (mono-rail) started in 1995. But it had no consideration towards persons with disabilities. This led to a demonstration in 1995 by 450 demonstrators including Thai DPI members including visual, hearing and physical disabilities and their peers. More than 500 policemen were dispatched to control the demonstration, but DPI eventually won a guarantee of accessibility. In Malaysia, wheelchair users were denied access to the elevated railway completed in 1994, and told that they would pose a potential danger to other passengers or be an obstacle when other passengers had to run in cases of emergency. More than 200 persons with disabilities protested in the street, eventually leading to the implementation of an accessible elevated railway service. In Korea wheelchair-friendly infrastructure across all of Korea’s metro service can be ensured. This is a result of the hunger strike in 2002 by Solidarity of the Disabled to Obtain the Mobility Right, instigated by the accident where a wheelchair user fell from a lift in a metro station and died.
A large-scale improvement of accessibility cannot happen unless persons with severe disabilities, whose needs are most acute, challenge inconvenient transport systems or buildings. Activities by persons with disabilities, as shown in the demonstration by DPI-Japan, are the only tool to pave the way for a truly accessible environment.
(3) Disabled Person-centered Approach in International Cooperation The solution of poverty issues of persons with disabilities has a signifi cant role in the Millennium Development Goals to reduce the number of poor people by half by 2015. While the circumstances surrounding global communities are not easy, the role of development assistance has gained more signifi cance. The broad spectrum of issues in developing countries is often the cause of instability, danger, crisis and civil wars. Though they may not be instantaneously remediable, international cooperation carried out by persons with disabilities has signifi cant impact on these direct and indirect threats to the lives of persons with disabilities.
Conventionally, international cooperation in the fi eld of disability has been implemened in both hard and soft fi elds. The former includes the construction of large-scale rehabilitation centers, and the latter technical cooperation, such as training of
36 Chapter 2 - Basic Concept of the Project
government offi cials, welfare experts and medical and rehabilitation professionals responsible for services for persons with disabilities provided based on medical model. In developing countries, groups of persons with disabilities face a number of problems that hinders them even from living in communities. The problems are shortage of budget, resources and skills, physical barriers to mobility due to extreme weather or hilly and mountainous geography, and limited understanding of disability. What they need is not an advanced rehabilitation technology. They need appropriate technology proposed by UN that is technically important, economically feasible, culturally permissible, and environmentally friendly. Persons with disabilities have developed it within their own daily activities.
Of many human rights conventions, Convention of the Rights of Persons with Disabilities was the fi rst to talk about international cooperation1, with special close that is the promotion of international cooperation by the nation in collaboration with organizations of persons with disabilities. The activities by persons with disabilities who exercised their grass-root voices helped form a system applicable to developing countries. For example, the database of knowledge by self-help groups of persons with disabilities in Japan, especially of independent living based on the rights of persons with disabilities, is well accepted in developing countries.
The basic notion of the rights of persons with disabilities is that the persons are able to live independently in community where they grew up. No rehabilitation centers in the community, too far special school and jobs available only in remote sheltered workshops are used to plead that many persons with disabilities are forced to leave their communities and live in institutions are that there are. Most development aid organizations who offer technical assistance focus on activities in urban areas, because of more effi cient activities with adequate infrastructure or high population density, and of the lower risks of failure. But in present circumstances where 70 to 80% of persons with disabilities in developing counties live in rural areas, this assistance
1Article 32: International Cooperation 1. States Parties recognize the importance of international cooperation and its promotion, in support of national efforts for the realization of the purpose and objectives of the present Convention, and will undertake appropriate and effective measures in this regard, between and among States and, as appropriate, in partnership with relevant international and regional organizations and civil society, in particular organizations of persons with disabilities. Such measures could include, inter alia: a. Ensuring that international cooperation, including international development programmes, is inclusive of and accessible to persons with disabilities; b. Facilitating and supporting capacity-building, including through the exchange and sharing of information, experiences, training programmes and best practices; c. Facilitating cooperation in research and access to scientifi c and technical knowledge; d. Providing, as appropriate, technical and economic assistance, including by facilitating access to and sharing of accessible and assistive technologies, and through the transfer of technologies.
37 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
practice is ignoring the rights of the persons to live in community.
The most important thing to remember when promotion of disability programs for persons with disabilities in community requires especially the attitude not insisting on the model of one’s country, but instead listening to the local persons with disabilities to grasp their true needs. It is also important to listen to the most disadvantaged persons with disabilities including women and those with invisible disabilities such as hearing impairment, internal disorder and psychiatric and intellectual disabilities.
Unsatisfi ed with the conventional rehabilitation approach, persons with disabilities have managed to convince UN that rehabilitation is just one of the many approaches towards equalization of opportunities. In the World Programme of Action Concerning Disabled Persons, 10-year action plan of UN Decade of Disabled Persons, provided the basis of the Convention. It defi nes rehabilitation as a goal-oriented and time-limited process aimed at enabling an impaired person to reach an optimum mental, physical or social functional level, thus providing her or him with the tools to change her or his own life. Medical, educational , vocational, and social rehabilitation is outdated catego- rizations. Persons with disabilities began to provide by themselves numerous services that were once specialists’ job.
Until now, the means of empowerment has been included in the area of rehabilitation, i.e. social rehabilitation, creating a number of obstacles in international cooperation efforts towards disability issues. For example, techniques and knowledge brought from overseas for community based rehabilitation (CBR), an approach used in a number of developing counties, was shared only amongst experts, because of the word “rehabilitation” in its name. 25 years have been passed since its inception. WHO is attempting to announce a new CBR guideline, but the issue has not yet been resolved. If leadership training for persons with disabilities is defi ned as part of rehabilitation, leaders with disabilities have diffi culty to share their experiences with overseas persons with disabilities.
(4) Means to Strengthen Ownership of Persons with Disabilities Among prerequisites for people with disabilities to exercise strong leadership, independent living (IL) movement and inclusive education are explained below.
① Independent living movement In 1980s, developing countries started to employ CBR in their national policies due to the lack of resources, as they were unable to provide services to everyone with disabilities by the conventional specialist-led medical models. Many governments of the developing countries now adopt CBR in national policy.
CBR is a community development strategy for all persons with disabilities, for them to enjoy rehabilitation, equalization of opportunities and social integration. It is put into
38 Chapter 2 - Basic Concept of the Project
practice by collaborative movement amongst persons with disabilities, their families and their local communities, with appropriate medical, educational, vocational and social services. The core concepts are encouragement of persons with disabilities to equally participate in the decision-making process, by guaranteeing the rights to receive CBR service concerning their daily living and then to promote their participation; activation of village; and change of awareness in the village towards enlivenment of village. These are activities occurred in the process of deinstitutionalization. CBR, however, does not completely deny services at institutions by rehabilitation professionals, but regards the services as one of the activities to strengthen CBR. Most of CBR projects nowadays are specialist-oriented and persons with disabilities are only considered as mere participants in its decision making.
The so-called community rehabilitation in Japan is not CBR in the original sense. Rather, it is visiting rehabilitation scheme, in other word outreach activity, by district nurses, physiotherapists and occupational therapists. Medical specialists take leading role after all. It is a top-down approach, nothing different from hospital-based medical rehabilitation provided to each person with disability. Unfortunately, common CBR in developing countries can be also defi ned as outreach.
IL movement started in 1972, when graduates with severe disabilities from Berkeley College, University of California, established an IL center in Berkeley, following a residential program at the college, under the strong infl uence of the civil rights movement of the 60’s. They defi ned philosophy of IL as follows2.
① Persons with disabilities are to live in the “community”, not in an “institution”. ② Persons with disabilities are not persons who need medical treatment; nor children to be protected; nor Gods to be worshipped. ③ Persons with disabilities are managers of support. ④ Persons with disabilities are victims not of disabilities but of social prejudice.
The personal assistance service provided by IL centers takes persons with severe disabilities out of their homes and institutions, and the persons can then become the core of independent living movement. Through activities, they can speak out about the need of accessibility of transport, organize a number of persons with disabilities living independently, with IL centers at the core, and mobilize the society towards better accessibility3, recognizing that disability is created by society and environment. It meets with citizen’s approval, and raises their awareness. Mothers pushing their prams, who have not yet spoken out the need in spite of feeling inconvenient, use elevators at train
2Shoji Nakanishi, “Jiritsu Seikatsu Undo No Rekishiteki Keika To Genjo” (History and Current Circumstances of Independent Living Movement ), Sogo Rehabilitation (Comprehansive Rehabilitation ) Vol 1:4 January 1996 pp. 39-44, , Igaku Shoin, in Japanese
39 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
stations, and crowded into shopping malls and events.
CBR and independent living movement shared common concepts, by employing an opposite approach to institution-based rehabilitation, promoting service provision by persons with disabilities, development of self-help groups. Because of this, both has been seen as an approach that is at the other end of the scale from medical models4. The Asia-Pacifi c leadership training conducted by DPI had also included these two approaches for the last fi ve to six years, as ideal approaches to disability issues.
Under the present situation that CBR has developed into a specialist-led outreach program, many persons with disabilities now feel negatively towards CBR. Some organizations of persons with disabilities have even stated that they did not want CBR. Governments who cannot fi nd any other means than CBR for persons with disabilities in rural areas are now trying to introduce the concept of independent living into CBR but this approach cannot lead to empowerment of persons with disabilities5.
② Inclusive education In the latter half of 20th century, there was development in special education in line with the emergence of large rehabilitation centers and other disability institutions in developed countries across the world. In developing countries, there are schools for hearing, visual and intellectual disabilities around metropolitan areas, although the number of the schools is inadequate. 70-80% of people live in rural areas in developing countries, so that the number of children with disabilities who can receive special education is limited.
In order to change the situation, inclusive education is promoted to give classes within regular schools for children with disabilities, In 1990, UNESCO organized World Conference on Education for ALL, in collaboration with UNICEF, UNDP and the World Bank. UNESCO took the conference’s outcome further and organized World Conference on Special Needs Education in June 1994, in Salamanca, Spain. The principles of inclusive education is explained in the Salamanca Statement and
3Barriers that hinders access include not only physical barriers of building and transportation; attitudinal barriers in people’s prejudice and understanding; communication barrier that can be reduced by sign language; and institutional barriers such as laws that discriminate against persons with disabilities 4Mendis, Padmani. The Relationship between Independent Living (IL) and Community-based Rehabilitation (CBR). Paper presented at the Leadership Training Seminar organized by DPI Asia-pacifi c Region at Hanoi, Vietnam in May, 2000 5Biwako Millennium Framework, action plan of the 2nd Asian and Pacifi c Decade of Disabled Persons interrelates Article 55 “It is essential that persons with disabilities exercise choice and control over initiatives for community-based rehabilitation” and strategy 10 “Community based rehabilitation (CBR) perspectives should refl ect a human rights approach and be modelled on the independent living concept, which includes peer counseling”
40 Chapter 2 - Basic Concept of the Project
Framework for Action, adopted at the Conference.
Even though some developed countries with solid special education systems were lagging behind6, inclusive education has been paving its way through the provision of resource rooms7 and resource teachers. In developing countries, inclusive education is often employed as an major CBR activity. However inclusive education is often taken too easily and some children with disabilities often have to go through extra stress due to the lack of required educational techniques or equipment.
Education is the basis of empowerment. Inclusive education is an important opportunity for children with disabilities to acquire social experiences at an early stage.
(5) Persons with Disabilities Who Can Change Society At a large train station on holidays, many young couples with prams and travelers with large suitcases queuing in front of elevators are observed. They outnumber wheel- chair users or elderly people. This environment convenient for the general public is the outcome of campaign for accessible transportation organized by persons with disabilities. There was once a time when in the United States persons with disabilities called those without disabilities “temporarily able-bodied,” conversely positioning themselves as pioneers for the forthcoming elderly society to build infrastructure.
Even though organizing themselves, persons with disabilities at grassroots cannot always infl uence society. They have to go beyond being a mere advocacy organization, and create their own environment and services not only for themselves but also for other vulnerable people of the society in general. Only this process can ignite a big change.
Society’s view towards persons with disabilities is quickly changing. They meet persons with disabilities everyday in town and irresistibly act with them. There are also plenty of TV dramas with protagonists with disabilities are shown almost every day. Nowadays elderly persons can enjoy shopping in wheelchairs. No one turns curious eyes to wheelchair users any more. Countries that establish gentle societies with persons with disabilities enjoying equal status in community will not go and invade other countries in the name of justice. It is because there are people who can understand the sufferings of people in other countries. Societies made by people with disabilities are aiming at a world where people can live actively no matter how severe their disabilities are.
6Only Government of Japan are still against inclusive education, and sticks to segregated education. 7Resource room means extra lesson room and information room. Children with disabilities are registered in regular class of primary and secondary schools, and most of teaching is done with non- disabled children, while at resource room they receive lessons that need special teaching skills. The room, therefore, has various teaching equipments and materials as well as specialized teachers.
41 3 Implementation of the Project Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
3.1 Preliminary Survey
The survey was conducted between December 2007 and September 2008 prior to the training course in four CLMV countries: Cambodia; Lao PDR; Myanmar; and Vietnam. The survey aimed to gather information and implement debates about the best possible means to conduct the training, primarily focusing on curriculum and text material development. The period of preliminary survey in each country was approximately two weeks. The survey involved technical advisors and national consultants from each country, as well as offi cers from FASID.
Cambodia
(1) Overview of Persons with Disabilities (1.1) Defi nition The Draft Cambodian Disability Act, drafted in 2002, states that “persons with disabilities are citizens with certificates from the Ministry of Health, who have differences from people with no disabilities, such as missing or paralyzed limbs and hearing, visual or intellectual disabilities, whose lives or activities are signifi cantly compromised due to physical or intellectual impairments.” This draft is yet to be debated in the Diet. The relative ministries and departments have employed the following eight categories to defi ne disability, as described in the draft: visual impairment; hearing impairment; speech impairment; mobility impairment; sensory impairment; psychological impairment; learning impairment; and epileptic impairment. However there are arguments that these eight categories are based on medical conditions and that these are not capturing the true circumstances of persons with disabilities.
(1.2) Statistics and Infrastructure In 1997, Cambodia researched the number of Cambodian persons with disabilities in cooperation with the Ministry of Planning, the World Bank, UNDP and Swedish International Development Cooperation Agency. It was reported that 22% of the population had one disability or another, caused by illness, disabilities from birth, accidents or effects of wars, landmines and duds1. In 1998 a Population Census was conducted for the fi rst time in 36 years. Organizations of persons with disabilities requested that the Census include questions about disabilities, but it was rejected because at the time there were no concrete defi nitions of disability, so the Census was not able to capture the population of persons with disabilities. However a preliminary
1Ministry of Planning “Cambodia Socio-economic Survey” 1997
44 Chapter 3 - Implementation of the Project
hearing conducted in 1997 had reported that there were 24% persons with disabilities2. The most recent Census was conducted in March 2008 for the fi rst time in 10 years. The Japanese Ministry of Internal Affairs and Communications sent in Mr Fumihiko Nishi, specialist of Project on Improving Offi cial Statistics in Cambodia, through JICA for the preparation of the Census3. Unfortunately this Census did not include any questions to verify the number of persons with disabilities and it is expected that the accurate number of persons with disabilities4 will remain unknown even after the interim announcement in August 2008 and the fi nal announcement in 2010. However a few organizations have reported estimates of the number of persons with disabilities: 9.8% by ADB5; or 3.9% by UNESCAP cited from the World Bank6. Also NGOs active in Cambodia have developed their own databases, based on their own research, one of them being Veteran’s International (visited during this survey) estimating that 12% are persons with disabilities. This fi gure however cannot be applied to the whole population of persons with disabilities in Cambodia, as it references the number of wheelchair and prosthetic leg users at the rehabilitation centers managed by Veteran’s International. One of the characteristics of persons with disabilities in Cambodia is that many are landmine victims. The number of new landmine victims is declining due to the successful attempts to remove landmines and educate people about how to avoid landmines. The recent survey by ICBL shows that the number of casualties and deaths by landmines and duds in 2006 was 450, half that of 2005. Of the landmine victims, there are 43,316 survivors with disabilities7 (total population is 14,351,000) but this only accounts for people clearly known to be landmine victims. The actual number of victims is thought to be twice or three times higher, as there are presumably many other cases where people were left to die on explosion sites, or where accidents remained unreported.
(2) Government’s Disability-Related Departments (2.1) Central Government In Cambodia the government sector responsible for disability issues is the Ministry of Social Affairs, Veterans and Youth Rehabilitation (MoSVY,)or to be more precise, Rehabilitation Department. The Department’s role includes offering rehabilitation opportunities for persons with disabilities, correspondence with disability NGOs, promoting work opportunities for persons with disabilities, and cooperation with DAC to promote disability activities, though unfortunately these responsibilities seem unexercised. The offi cer from the Department cited several reasons: 1) lack of personnel (there are 30 workers registered at the Rehabilitation Department but
2DAC “Country report to UNESCAP/APCD” 2005 3http://www.jica.go.jp/cambodia/tpl/topics.html 4http://www.stat.go.jp/info/meetings/cambodia/pdf/enumera2.pdf 5ADB “study on Skill Training as a National Strategy for poverty reduction in Cambodia” 2002 6UNESCAP “Disability at a Glance”, p.24 7http://www.icbl.org/lm/2007/cambodia.html
45 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
only six or seven are active); 2) lack of budget (not enough budget allocated to rehabilitation activities); which are true. Something that can be said about the whole Cambodian government is that civil servants’ salary is signifi cantly lower than private sectors in Phnom Penh, or even NGOs in most cases, making it impossible for civil servants to sustain a living, making civil service none too attractive as a work choice. It is widely known that because of this, few excellent or motivated individuals choose civil service for profession and unless this can be changed, the circumstances surrounding disability issues cannot be improved any further. Nevertheless, given the current situation, the government offi cers have to deal with disability issues and their skill improvement is critical. The head of the Department claimed that there are many training opportunities organized by NGOs and national organizations. The Department did not appear to be managing all these opportunities well however, and seemed to be taking everything as they came along.
(2.2) Related Laws The 74th article of the Constitution of Cambodia states that the nation will support persons with disabilities and their families victimized by wars for the nation, and veterans who became disabled by accidents during military missions are to receive pensions depending on the veteran’s rank at the time of the accident. As mentioned, Disability Law was drafted in 2002 and is now waiting for debate at the Diet, but was not included in the current debate for the lack of time, and as the next debate is planned after the national election on July 27 2008, there is still little forecast for its legislation. JICA had sent in specialists for the drafting of the law. Cambodia has signed but not ratifi ed UN’s Convention on the Rights of Persons with Disabilities adopted in December 2006. Except for veterans of war, there is no legal development for persons with disabilities towards social security or services like pension.
(2.3) Overview of Related Policies In September 2008, the 4th Hun Sen government has launched and presented ‘Rectangular Strategy phase 2’ as national development strategy. Based on this strategy, the Ministry of Social Affairs, Veterans and Youth Rehabilitation set following 6 priority areas for 2008 to 2013.
(Priority 1) Strengthen and expand social welfare services for the vulnerable poor (Priority 2) Strengthen and expand child welfare and youth rehabilitation services (Priority 3) Strengthen and expand welfare and rehabilitation services for people with disabilities (Priority 4) Strengthen and expand the social security system and welfare services for the elderly, civil servants and people in general (Priority 5) Strengthen and expand the social security system and welfare services for the veterans (Priority 6) Strengthen and expand institutional capacity, partnerships, and fund-raising capacity to increase the effectiveness of social services
46 Chapter 3 - Implementation of the Project
Priority 3 is Disability related policy and the detailed plan is mentioned as follows8. • Continue the implementation of policies for people with disabilities; promote and protect the rights of people with disabilities; and promote the implementation of the international convention on the rights of people with disabilities • Continue to sustain rehabilitation services for disabled people • Continue to expand Braille and sign language training services for people with disabilities and promote these services through IT system • Promote vocational training, provide jobs and community services as well as encourage a movement of self- help for people with disabilities • Continue to strengthen and expand the disabled persons sports movement, and organize sports and international events for people with disabilities • Continue promoting advocacy for the inclusion of the needs of people with disabilities into development plans an all levels • Strengthen the Disability Action Council • Push for the passage of the law on the protection and promotion of the rights of people with disabilities • Push for the ratifi cation of the United Nations Convention of the Rights of People with Disabilities and Convention No. 159 of the International Labor Organization (ILO)
(3) Overview of Disability Activities (3.1) Organizations by Persons with Disabilities According to Cooperation Committee of Cambodia (CCC), provider of NGO information in Cambodia, there are 38 NGOs in disability related fi elds9. Most of them are international NGOs with headquarters located outside of Cambodia with activities primarily focusing on rehabilitation, including provision of physical and prosthetic aid and physiotherapy programs. These international NGOs manage the activities of eleven national rehabilitation centers across Cambodia.
As for home-based NGOs, Cambodian Disabled Peoples Organization (CDPO) established in 1995, and National Center of Disabled Persons (NCDP) established in 1997 are organizations by persons with disabilities. There are many other disability organizations under these two NGOs, such as self-help groups promoting activities towards independent living or advocacy.
Since the fi rst national election after the civil war took place in 1993 under the supervision of UN, many NGOs have been active in Cambodia in a number of fi elds including disability. The NGOs have been managing activities that should really have been the government’s responsibilities, resulting in the NGOs relatively having more people, skills and budget than the government sectors (Ministry of Social Affairs, in case of
8Work Platform of the Ministry of Social Affairs Veterans and Youth Rehabilitation for 2008-2013 page 6 9http://www.ccc-cambodia.org/
47 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
disability issues). In recent years, the future handover of these responsibilities from the NGOs to the government has become an important issue. This year the government suddenly announced that the management of national rehabilitation centers is to be handed over to the government, causing a great deal of confusion to the NGOs and related organizations, as they were urged to come up with a quick shift to the new structure.
(4) Micellaneous (4.1) Text Materials In the workshop, participants can learn much from persons with disabilities, if persons with disabilities are present as lecturers or facilitators. It will help deepen the understanding if the persons with disabilities’ daily life can be videoed or photographed and presented as visual materials during the workshop. This idea has already been shared with Mr. Veasna and NCDP has agreed to help realize this idea. A further research is underway for other learning materials, as appropriate materials have not been found during this survey.
(5) Summary Getting to know persons with disabilities is the most effective way for understanding disability issues. It is strongly advised that persons with disability participate in all programs so that there is plenty of time for participants to learn from them. National Consultant Mr. Veasna is the foremost PWD leader in Cambodia and also the representative of a disability organization NCDP and his experience, knowledge and expertise would be greatly utilized in the training. It would also be advisable for the curriculum to focus on the capabilities of persons with disabilities and how best to utilize them, instead of how inconvenient disabilities can be.
Lao PDR
(1) Overview of Persons with Disabilities (1.1) Defi nition There is no statutory defi nition for PWDs in Laos. Since there is no defi nition of disability, the population of PWDs also remains unclear, even though each region has their own defi nitions which seem to have played a part in the reported national population of PWDs. There were some cases researched during this survey that included loss of vision of one eye, or low-level hearing impairment that did not cause too much inconveniences in the day to day living of the person, which in Japan might have not been recognized as cases of disability. There are workshops planned to formulate the offi cial defi nition of disability, involving LDPA and the Ministry of Labour and Social Welfare. In the near future there will be a more solid national defi nition of “who is a person with disability.”
48 Chapter 3 - Implementation of the Project
(1.2) Statistics and Infrastructure According to the National Population Census in 2005, there are 79,093 PWDs in Lao PRD, equal to 1.4% of the population10. However WHO has reported that 10%11 of the world population has disability of some kind, while UNESCAP has reported that the percentage of PWDs in Lao PDR is 8%12, relatively lower than that of other nations. The former Executive Secretary of NCDP Mr. Sisawath has commented that this fi gure seems to be lower than in reality, as shown in several cases reported during this preliminary survey where the people researched only had loss of vision of one eye or low-level hearing impairment, where they themselves were not feeling signifi cantly inconvenienced by their disability—and in Japan some of these persons may not be recognized as cases of disability. This suggests that by the current defi nition of disability in Lao PDR, the proportion of PWDs would be higher than that of Japan and that the 1.4% implies that there are a lot more “unrecognized” PWDs. At the time this report was written, it was expected that the UN would send over a social survey specialist for the implementation of a more thorough survey.
(2) Government Sectors Responsible for Disability Issues (2.1) Central Government According to FPO, there are 145 active employees at the Ministry of Labour and Social Affairs in Lao PDR, of which approximately 15 work for Department of Pension, Elderly and People with disability, the department most responsible for disability issues across three sections. The Disability Department is merged with the Department of Elderly and has only fi ve employees including Head of the section (and Deputy Director). The department is only 15 years old, has little routine work and its operation is mostly project-based. National Committee on Disabled Persons (NCDP) established in August 1995 to deal with disability issues in a cross-ministry manner, has its administrative offi ce within Department of Pension, Elderly and Disabled People. Since the former Executive Secretary was transferred in 2008 the offi ce has been practically inactive though is temporarily represented by assistant staff. However at the time of the survey, it was said that NCDP was to be expanded towards legislation. There are requests to the government that going forward, the committee be comprised not only of offi cers from the Ministry of Labour and Social Affairs, but also from other departments including the Ministry of Education and Health. At the same time employment of more offi cers to take on the committee’s practical operations is being considered; it is expected that the committee would work as a national system towards the implementation of disability legislations.
10page 15, “Labour and Social Welfare Master Plan2007-2020”, Ministry of Labour and Social Affairs, 2006 11http://www.who.int/disabilities/en/ 12UNESCAP “Disability at a Glance” p.28
49 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
(2.2) Related Legislations The government of Lao PDR signed Convention on the Rights of Persons with Disabilities, adopted in December 2006 at the United Nations Headquarters. Subsequently there was a need for Lao PDR to synchronize domestic laws with the UN Convention. Between June and November 2007, with the aid from the Australian government, Drafting Committee and Lao Disabled People’s Association (LDPA) held six conferences, a seminar each for five provinces and four seminars for central government offi cers to legislate Decree on the Rights of Persons with Disabilities. As a result Decree on the Rights of Persons with Disabilities was drafted and is currently waiting for debate in the Diet. The draft states its objective as “elimination of all kinds of discriminations towards persons with disabilities and promotion of their complete participation in society.” The draft enlists education, rehabilitation and employment based on the rights of people with disabilities, as well as equal opportunities, under- stood as a refl ection of the UN Convention on the Rights of Persons with Disabilities. If this passes the Diet, it will be the fi rst comprehensive legislation in Lao PDR that protects the rights of persons with disabilities.
(2.3) Overview of Related Policies The benefi ciaries of the current policies are primarily divided into three groups; victims of (civil) wars including military servicemen, social security benefi ciaries, and other people with disabilities. For Lao PDR, social welfare of disabled military servicemen who fought through the Indochina war and liberation army war for socialism is an important issue, so benefi ciaries of each policy are specifi cally categorized into groups including injured / disabled military servicemen and landmine / Indochina war victims and their families. They are entitled not only to pension but also tax benefi ts and residential and educational subsidies. The benefi ciaries of social security system are ex-employees with disabilities (disabled people with an experience of working in formal sectors). If a company with 10 employees are registered with the social security system and an employee becomes disabled while working for the company, the employee is entitled to 4.5% of his salary for a long time as part of the income security, even after he / she is unable to continue working. As of 2005 there are 24,097 employees registered with this social security system. But even benefi ciaries in this category are not entitled to any benefi ts apart from the income security. Furthermore no policies have been put into practice for the third group: “other people with disabilities.” Currently the Lao government is debating the enactment of a law to urge a group of companies and organizations to employ a certain percentage of disabled people, similar to the statutory employment rate in Japan. This could pave the way for PWD’s social participation, even though this will need to involve a more solid defi nition of PWDs than mentioned above, and so speedy legislation may be diffi cult. Apart from all this, there is also a system where government employees and their families are entitled to free medical treatment. This suggests that a PWD’s situation or rights to resources can vary, depending on the PWD’s or their families’ current / former
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profession or social status prior to being disabled.
(3) Overview of Disability Activities (3.1) Organizations by Persons with Disabilities Lao Disabled Persons Association (LDPA) was established in July 2001. It is an organization with branches across the country, approved by the government as an organization by PWDs for PWDs. They are not actual policy executors but are involved in master plans. LDPA also hosts a number of disability-related training programs and projects, and often undertakes projects and awareness programs in cooperation with NCDP and the Ministry of Labour and Social Affairs. They are also the only national PWD organization that does not focus on any specifi c disability. LDPA cited collaboration with intellectually and hearing impaired groups as one of the examples of their cross-disability activities, but Lao Association of the Blind claimed that collaboration with LDPA was not a success, because, according to the Association, there was not adequate information-sharing or care towards blind people. It is actually true to say that sometimes communication or needed social resources can be dissimilar for different disabilities, and resolving all issues across all disabilities can be diffi cult. However government offi cers must always take into account the different needs of various disabilities, as well as what can be shared across all types of disabilities. They must always have a “cross-disability” perspective where they do not listen to just one organization as the representative of all disability organizations, but instead see more persons with disabilities and collect information from multiple organizations, so that they have an understanding of the nature and needs of various disabilities. Currently LDPA is supporting a few groups (deaf people, intellectual disabilities, and women with disabilities among others) and is focusing on the establishment of a deaf group. The deaf group (a deaf group from Thailand has presented them with books of Thai sign language) are currently using the Thai sign language but are in the process of developing their own Lao sign language, with a Lao sign language book being in process of publication. As there are no deaf schools in Lao PDR, there is no integrated language for the deaf apart from some body languages limited to each deaf individual’s local community, leaving many deaf people unable to communicate with others. LADP’s deaf group has so far hosted sign language lectures at 11 provinces, teaching sign language to deaf people and their families as a tool of communication.
(3.2) INGO LDPA has undertaken a number of projects in collaboration with international development bodies and NGOs, including twenty main organizations including JICA, the government of Australia, SHIA, the United Nations, ILO and Power. AUSAID from Australia has been assigning volunteer staff to LDPA for a long time.
(4) Micellaneous (4.1) Text Materials The training would be much more effective with visual presentations, more so than
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paper materials or lectures. LDPA has created two videos with their own scenarios introducing problems PWDs face daily, one focusing on accessibility issues and another on the diffi culty of PWD’s social participation and the importance of advocacy of rights. The video about the advocacy of rights is especially compact, in terms of time and contents. It would seem best to utilize such existing materials, instead of creating new materials from scratch, and to turn a listening ear to people with disabilities.
(5) Summary As the project attaches a great signifi cance to PWD’s social participation, it would be ideal to request PWDs to assume specifi c roles within this training curriculum. That way, participants can understand the capacity and potential of PWDs and the training will also offer an opportunity of sharing with PWDs. There are many reports about the danger of legislation without PWD’s own perspective. The presence of PWDs will also urge participants to be aware of a number of issues that would otherwise remain invisible, and the benefi ts of PWD presence have been documented in a number of reports. So far Lao’s government offi cers have attended perhaps too many lectures or seminars by aid organizations. It is suggested that the program be based on fi eld visits, access mapping and recreational hours, so that the offi cers can truly experience PWD situations hands-on and in person.
Myanmar
(1) Overview of Persons with Disabilities (1.1) Defi nition In Myanmar there was no offi cial defi nition of disability-related terms until today. Most disability related reports in the country reference the ‘World Health Organization (WHO)’ defi nition made in 1981, which is totally based on medical, individual model of disability.
During the fi rst offi cial celebration of the ‘International Day of Disabled Persons’ on 3rd December 1994, the ‘Department of Social Welfare (DSW)’ changed the term ‘ma than ma swan’, which means ‘no strength and no ability’ to ‘ma than swan’, which means ‘no strength but have ability’. It is the only terminology on disability to be made offi cial by the DSW so far. Even though some terms on disability remained unchanged some terminology has been modifi ed and adopted in offi cial documents, for example: ‘sunt ah nar ma kyar’, which means ‘deaf and dumb’ to ‘nar ma kyar’, which means ‘deaf’; ‘a kan’, which means ‘blind’ to ‘myat ma myin’ which means ‘visually impaired’; ‘ah yuu’ which means ‘mental retarded’ to ‘nyan ye neint/ ma mhe’ which means ‘intellectually impaired’.
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According to the preliminary survey conducted in 2008 by a local survey company, which, following discussions with the DSW was sponsored fi nancially by ‘The Leprosy Mission International (TLMI)’, disabled people in Myanmar are classifi ed into four types: visually impaired; hearing impaired; intellectually impaired and physically impaired. This is the same classifi cation which was previously recognized by the DSW.
(1.2) Statistics and Infrastructure There is no history of data collection about disabled people in Myanmar. During British colonial rule from 1911 until independence in 1948 a census was taken every ten years, but it did not include any information about disabled people. During this period leprosy and infi rmity were the only offi cially used terms for disabled persons, other types of disability were not listed. Since independence the Myanmar government has only conducted three censuses, the last being in 1983. No fi gures for disabled persons were given in any of these censuses.
In 1983 the Ministry of Health conducted a sample survey of a few townships in order to collect data on physically disabled persons and according to that survey about 2% of Myanmar’s population is physically disabled. To date it is the only offi cial data to be generated in Myanmar which mentions disabled people.
There is also currently no specifi c law or policy on disability but Child Rights legislation is widely used for the protection and welfare of disabled children in Myanmar.
Since 2008 the DSW has been conducting a nationwide disabled survey via the fi nancial sponsorship of TLMI and collaborating with the local organization YDRC and it is hoped that in mid 2009 national data on disability will be available. The survey was conducted by “Myanmar Marketing Research Development (MMRD)”, a local social research company from Yangon.
(1.3) Current Situation of Persons with Disabilities The ministry in Myanmar which focuses on the disability issue is the ‘Ministry of Social Welfare, Relief and Resettlement’ and there are numerous domestic voluntary sector disabled-related organizations, which maintain over 25 centers around the country. (the lists mentioned separately)
There is also a track record of many international NGOs working in disability related fi elds in Myanmar, including: ‘World Vision’, active in the early 1980s; ‘Association for Aids and Relief (Japan)’ in 2000; ‘The New Humanity FOSCIV’ in around 2003; ‘The Leprosy Mission International (TLMI)’ in late 2006; ‘Handicap International (France)’; ‘Handicap International (Belgium)’ and ‘Triangle’ from France, initiated after the cyclone Nargis disaster.
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There was no specifi c program or project run by United Nations agencies in the disability fi eld in Myanmar except a pilot project on CBR by ILO in 1983.
In general, it was estimated that about less than 1% of disabled people are receiving the necessary services while the rest never receive any support, rehabilitation or other services whatsoever.
(2) Government Sectors Responsible for Disability Issues (2.1) Central Government In Myanmar the Ministry of Social Welfare, Relief and Resettlement is the focal point for disability affairs but for rehabilitation the Ministry of Health is also greatly involved. In every hospital around the country disabled people can receive the same required rehabilitation services as other citizens. There is one specialist hospital for disabled people in Yangon, the ‘National Rehabilitation Hospital (NRH)’ and it is the only Hospital for the whole country. The Military possesses a separate rehabilitation hospital in Yangon and in other cities of the country. The Ministry of Defense has its own policy and system to treat disabled army personnel and we were unable to obtain information about their disability policy.
(2.2) Related Legislations The Job Replacement Law for Disabled people has been in existence in Myanmar since 1958 but because there was never approval for implementation and it never became enforceable in the country. There have been attempts since 2000 at formulating ‘The Disabled Law’ but this is proving diffi cult to process and to obtain offi cial approval: today we still have no law on disability in Myanmar but we hope we can have a law on disability soon.
Following the cyclone Nargis disaster the DSW planned to implement a “Post Nargis Action Plan for Disabled Persons”, which involved collaborating with some INGOs and NGOs which work on disability issues in Myanmar and this is the fi nal state of approval and implementation.
(2.3) Overview of Related Policies Rehabilitation of disabled people is one of the main activities of the Ministry of Social Welfare, Relief and Resettlement which is one of eight focal points of this ministry.
To date there are only six centers for disabled people under the DSW in the whole country: two schools for the visual impaired; one school for the hearing impaired; one school for the intellectual impaired; one vocational training center for adult disabled persons and one care center for disabled children. Amongst those six centers four are situated in Yangon, one in Sagaing and the other in Mandalay. The capacity of those six centers is about 800 persons. Four of them were taken over from the private sector in 1962 by the government. Now they are under the DSW and the other two, the
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‘School for Disabled Children (SDC)’ and the ‘Disabled Care Centre’ were established by the DSW in 1974 and 2004 respectively.
The Inclusive Education (IE) program was initiated in 2005 by the DSW and the Ministry of Education (MOE) and there is no other clear and specifi c policy or program for disabled people in Myanmar.
(2. 4) Programs with International Agencies and Organization for Persons with Disabilitirs in Myanmar [UN agencies, JICA, World Vision (Myanmar), The Leprosy Mission International] There is currently no specifi c program on disability issue by UN agencies except the fi rst pilot project on CBR by ILO.
World Vision (Myanmar) has a quite long history in developing programs on disability issues since the 1980s. Although World Vision (Myanmar) is less active than before, they still have some programs under Area Development Program (ADP) in various parts of the country. Through that program many disabled people are receiving services, training, support and other assistance by other disabled people at the locations where the programs are held.
Since 2007 and though the collaboration of the DSW, JICA has been working on a program for hearing impaired persons to create a common Myanmar sign language. JICA is also involved in a new project for disabled people in collaboration with the Ministry of Health to build a barrier free environment at the National Rehabilitation Hospital (NRH).
‘The Leprosy Mission International (TLMI)’ from the United Kingdom has a 100 year history of working in the leprosy fi eld and supports the Leprosy Hospital at Mawlamyaing. Since 2006 TLMI has extended their service to general disability and now they have many projects, in eight different locations around the country, making TLMI a leading organization in disability fi eld in Myanmar. TLMI is providing fi nancial support for the fi rst ‘Disability Survey’, which will be conducted nationwide to obtain national data on disability and has had a formal collaborative agreement with the DSW since 2008. After the Nargis cyclone TLMI opened three ‘Disabled Resource Centers’ in the affected areas: Bogalay, Pathein and Hlaing Tharyar. Now TLMI is helping the DSW to formulate a ‘Post nargis Action Plan for Disabled Persons’ and is in the fi nal stage prior to implementation.
‘New Humanity FOSCIV’, an INGO from Italy has also a program in the disability fi eld. They are working closely with the DSW to strengthen existing disabled centers under the DSW and also under other NGOs. They have also had their own Community Based Rehabilitation (CBR) program at Taung Gyi Township, Shan State since 2004. Handicapped International (HI) from France and Belgium are starting their work in
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the disability fi eld after the cyclone Nargis disaster, initially at two places in Irrawady Province. Triangle, an organization from France, is also planning to work for disabled people across a range of fronts.
(3) Overview of Disability Activities (3.1) Organizations by Persons with Disabilities The fi rst private disabled related center was established in 1914 by Christian missionaries at Yangon and was aimed at helping visually impaired persons. Services and centers for other disabilities, such as hearing, physical and intellectual impairment, were later established by Christian missionaries. Before the end of the 20th century there were only 20 organizations for disabled people around the country. However, since 2000 many of the new centers and organizations have witnessed rapid growth.
The ‘Myanmar Disabled People’s Organization (MDPO)’ was formed in 2002 by the DSW after organizing a national conference through the sponsorship of the regional ‘Disabled People’s International (DPI)’ from Bangkok. Although this MDPO was formed under the guidance of the DSW it functions like a single grass roots organization rather than as a national level umbrella organization.
In Myanmar there was no systematic channel or structure for disabled related organizations at the secondary and tertiary levels, every organization being run separately with little or no alliances between them.
Additionally, during the last decade two centers for intellectually disabled children, especially focusing on autism and hyperactive children, were privately established. These two centers are run as a business and cannot therefore be classifi ed as charities. Nevertheless, their existence is a sign of progress in disability fi eld in Myanmar.
(3.2) INGO A. The lists of INGO those who have program on disability fi eld are as follow:
Year of Sr. Name of Organization Country start Focus area 1. World Vision (Myanmar) USA 1980s All types of disability 2. The Leprosy Mission International (TLMI) UK 2006 In leprosy fi eld since 1800s 3. Association for Aids and Relief (Japan) Japan 2000 Adult physically disabled 4. New Humanity FOSCIV Italy 2002 All types of disability 5. Handicap International (France) France 2008 All types of disability 6. Handicap International (Belgium) Belgium 2008 All types of disability 7. Triangle France 2008 All types of disability
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B. The lists of local disabled related non-government organizations are as follow: Sr. Name of Organization Year of Est. Location Focus area Remark 1. Mary Chapman Deaf School 1920 Yangon Deaf 2. Myanmar Christian Fellow- 1983 Yangon Blind Org. of PWDs ship of the Blind 3. Myanmar Blind Association Yangon Blind Org. of PWDs 4. Yangon Blind School Yangon Blind 5. Blind School (Myitgyina) Before 2000 Kachin Blind State 6. Blind School (Meithila) Before 2000 Mandalay Blind 7. Blind School (Pyinoolwin) Before 2000 Shan State Blind 8. Blind School (Pakokku) Before 2000 Magwe Blind 9. Blind School (Kalay Myo) 2003 Kalay Myo Blind 10. Eden Centre for Disabled 2000 Yangon Physical & Org. for PWDs Children (ECDC) Intellectual 11. Myanmar Disabled People 2002 Yangon All types Org. of PWDs Organization (MDPO) 12. Myanmar Physically Handi- Yangon Physical Org. of PWDs capped Association (MPHA) 13. Raise up PWD Group 2003 Yangon Physical SHG - Org. of PWDs (RPDG) 14. Yangon Deaf Club / Association Yangon Deaf Org. of PWDs 15. Mandalay Deaf Association Mandalay Deaf Org. of PWDs 16. Emmanuel Deaf Fellowship 2003 Yangon Deaf Org. for PWDs 17. Emmanuel Deaf School 2006 Kalay Myo Deaf Org. for PWDs (Kalay) 18. Smile World 2007 Yangon All types SHG - Org. of PWDs 19. St. Mary Blind Workshop Before 2000 Yangon Blind Org. of PWDs 20. Parent Association (For 2007 Yangon Intellectual Org. for PWDs intellectual disabled children) 21. Aye Mitta garden 2007 Yangon All types Org. for PWDs 22. Suhpawng Arman group Before 2000 Yangon Blind SHG - Org. of PWDs 23. Payaphyu Centre Before 2000 Taunggyi All types Org. for PWDs 24. Charity Handicap Centre 2000 Kalay Myo Physical Org. for PWDs 25. Lift Up Handicap Service 1998 Kalay Myo All types Org. of PWDs 26. Khunaatit (Magwe) 2008 Magwe All types SHG - Org. of PWDs 27. Alintit (Shwepyithar) 2008 Yangon All types SHG - Org. of PWDs 28. Armantit (Myaungdaka) 2008 Yangon All types SHG - Org. of PWDs Note: there is no directory of disability-related organizations in Myanmar currently available. This list was compiled by the author13 in 2008.
13 Mr. Tha Uke, Managing Director, Eden Centre for Disabled Children.
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(4) Micellaneous In Myanmar disability is still thought of in the traditional way. The individual model of disability is still strongly dominant in the whole of Myanmar society. The new perspective ‘Social Model of Disability’ is not known in the country yet. Resources such as disabled related literature, media materials, devices and aids are still very scarce in Myanmar.
There are no learning centers and institutions on disabled related subjects, such as special education, professions or skills. Qualifi ed personnel on that subject are also very rare, none are widely available except for physiotherapy professionals.
There is no barrier free environment in the whole country. The authorities do not appear to be aware of barrier free and universal design principles. Although there are some forward thinking policies in place, such as Community Based Rehabilitation which is based on the social model of disability. Inclusive Education, Self Help Groups and Independent Living are still very unpopular in all levels of society in Myanmar. There are very few residential centers for disabled people in the country and Myanmar has a poor record of developing institutions to support disabled people.
In Myanmar support and infrastructure for military and civilian disabled people are completely separated. For example the disabled sports federation was formed a few decades ago but appears to be almost entirely restricted to those of a military background. Myanmar has actively participated in regional disabled sports competitions for several decades and has also been successful in winning prizes for the country.
Special Olympic and Paralympics sports were also initiated a few years ago but are not very popular yet due to a lack of awareness and support from the authorities, a scarcity of professional experts and insuffi cient fi nancial support.
Vietnam
(1) Overview of Persons with Disabilities (1.1) Defi nition Disability is defi ned by Ordinance on Disabled Persons adopted in 1998 as: “Disabled persons by defi nition of this ordinance, irrespective of the causes of the disability, are defective of one or many parts of the body or functions which are shown in different forms of disability, and which reduce the capability of activity and causes many diffi culties to work, life and studies.” However disability has many defi nitions. According to the National Action Plan to Support People with Disabilities (2006-2010), disability by MOLISA’s original report was defi ned in 2005 as the next six categories: mobility (29.41%), mentality (16.82%),
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visually impaired (13.84%), hearing impaired (9.33%), brain (6.52%), and others (17%).
(1.2) Surveys, Statistics and Infrastructure of Disability According to MOLISA’s 1999 report, the number of PWDs in Vietnam was approximately 5.3 million, approximately 6% of the population. According to General Statistics Offi ce, statistics of persons with disabilities were conducted independently by multiple ministries by their own methods so the fi gures were not consistent. MOLISA decided to put questions in the decennial census to grasp the number of PWDs and announced that training programs were underway for the Census staff, including three experimental surveys in some cities, to prepare for the Census in 2009. Defi nition of disability is diffi cult and MOLISA concluded that Washington Group’s method was the best, but not all of the questions in the Washington style survey were applicable to Vietnam—it was reported that the questions were therefore altered to fi t the needs of Vietnam.
(2) Disability-Related Government Sectors (2.1) Central Government While one-third of Vietnam’s government ministries have disability budgets, the central sector is the Ministry of Labour, Invalids and Social Affairs (MOLISA), of which Social Protection Bureau is responsible for policy-making for social security issues including that of people with disabilities, orphans, child labour, homelessness and poverty.
Meanwhile, National Coordinating Committee on Disability (NCCD) is communicating with the ministries for the enactment of disability policies and action plans, and is currently monitoring progress. The Committee is chaired by MOLISA’s deputy minister and was established in January 2001, in accordance with the criteria governing the establishment of domestic coordination committees, one of UNESCAP’s action plans for Asian and Pacifi c Decade of Disabled Persons (1993-2002). There are 28 committee members from related ministries, their departments and disability organiza- tions, having a regular tri-monthly meeting. Eight are board members. One of NCCD’s important roles is coordination with disability related government sectors and disability organizations. This helps collaboration among ministries, and between the government and disability organizations, while in most cases in Vietnam the government ministries tend to stay within their own framework.
(2.2) Related Legislations Ordinance on Disabled Persons was enacted in 1998 as the fi rst comprehensive law regarding disability. Drafting committee for National Law on Disability was established and is currently working on the legislation of Ordinance on Disabled Persons. The Drafting Committee is represented by MOLISA’s Deputy Minister and involves deputy ministers of the Ministry of Transport, Ministry of Health, Ministry of Construction, Ministry of Finance, Ministry of Culture, Sports and Tourism and Ministry of Labour, Invalids and Social Affairs as policymakers. The draft will be developed by 16 people
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including advisors. According to MOLISA’s International Cooperation Department, ratifi cation for ILO C 159 “Convention concerning Vocational Rehabilitation and Employment (Disabled Persons)” and United Nations’ “Rights and Dignity of Persons with Disabilities” is underway.
(2.3) Overview of Related Policies Disability-related government sectors and government affi liate organizations are working on the goals adopted in National Action Plan to Supporting People with Disabilities in 2006. The fi ve-year plan is in line with the action plan of Biwako Millennium Framework and encompasses seven foremost issues: 1) self-help groups of PWDs and organizations for their families / parents, 2) women with disabilities, 3) early identifi cation, treatment and education, 4) occupational training and employment including self-employment, 5) access to buildings and public transport, 6) information access, including telecommunication and supporting technology, 7) alleviation of poverty by skill building, social welfare and sustainable living programs, and also, as Vietnam’s own issue, awareness on disability. Survey shows that the ministries and government affi liate organizations have many activities underway albeit not so smoothly—an example being the Ministry of Information and Communication using mass media to broadcast programs to enlighten the general public about PWDs. They also get support from public sectors including IT companies, holding an annual contest “ICT—put a candle to the believing mind” biennially since 2006 on April 18, Vietnam’s Day for Persons with Disabilities. The contest urges participants to create and send in PC software that are easy to use for PWDs, so that citizens will become more aware of PWDs and information technology, and more easy-to-use software for PWDs will also be developed. On the other hand, the Ministry of Transport has provided a trial low-fl oor bus service for wheelchair users, and the Ministry of Health and the Red Cross—who has a long history of activities in the country—collaborate on an activity for early identifi cation of disabilities and understanding of PWDs. The survey cites that the operations are not so smooth because the goals are often set too high, or because the organizations are understaffed or short of budget.
Monitoring for the implementation of the fi ve-year plan is to be undertaken every quarter from 2008 onwards, with one offi cer per ministry responsible for the monitoring activity. The plans and monitoring activities focus on the areas heavily supported by the United Nation’s Asian and Pacifi c Decade of Disabled Persons. Three workshops have already been held for basic understanding of the monitoring activities, involving NCCD member (government) organizations and organizations by PWDs.
(3) Overview of Disability Activities (3.1) Organizations of Persons with Disabilities In Vietnam, there are organizations of all sizes of persons with disabilities, from large organizations with branches across the country to small groups with only 10 members. The only nationally active organization is Vietnam Blind Association (VBA) established
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in 1969, with branches in 43 provinces across the country—equal to 70% of the nation. Their activities are mostly subsidized by the government including the salaries of the 32 employees, making their management policies and goals different from those of other disability organizations.
Disability organizations get approvals from different government sectors, depending on their size, ranging from the central government to provincial governments and citizens’ committees. The number of organizations is increasing; in 2003 there were 19 organizations registered with NGO “Disability Forum,” a forum that focuses on information provision and collaboration for PWDs. By 2006 the number rose to 79. NCCD members who represent PWDs (organizations by and for PWDs) are: Hanoi Club for the Deaf; Vietnam Blind Association; Association for the Support of Vietnamese Handicapped and Orphans; and Hanoi Association of Disabled Persons, of which three are organizations by PWDs. However two are based only in Hanoi and its suburb, so they do not have adequate information on persons with disabilities and related issues in other areas. Since 2007, NCCD has been working towards the establishment of an organization for parents of intellectually disabled children (and persons), and a national organization by PWDs irrespective of disability types.
(4) Miscellaneous (4.1) Text Materials It is suggested that existing written, visual or audio materials be utilized as text materials, rather than creating materials from scratch. A good example is the Vietnamese version of UN’s Convention on the Rights of Persons with disabilities, created by NCCD. It would be ideal to engage speakers and participants in interactions with the aid of visual and audio materials to help participants think about future actions and practical solutions. Interactivity includes but is not limited to use of text materials; it should also include active engagement of human resources such as a meeting with resource persons with disabilities, where their needs can be summarized and presented in the workshop.
(5) Summary Historically Vietnam has had a certain framework of support towards people with disabilities. Government offi cers in Vietnam have already participated in a number of training courses and seminars on the “theoretical” side of disability, including three training courses by MDF Indochina to create a monitoring chart for National Action Plan to Supporting People with Disabilities (2006-2010). However the actual projects undertaken to support PWDs are not necessarily catering to the true needs of PWDs. It would be ideal for training programs to include themes with which government offi cers can understand the suffering and trouble of PWDs’ life so that policies can be developed upon that understanding. It is suggested that the fi rst in-country workshop be based on case studies and fi eld works to listen to the voices of PWDs, so that it would lead to policies and projects that truly support PWDs.
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3.2 First Training
The fi rst training courses were conducted between August and November 2008 in four CLMV countries: Cambodia; Lao PDR; Myanmar; and Vietnam.
Cambodia
(1) Period: October 13-16, 2008
(2) Location: National Institution of Public Health, Phnom Penh, Cambodia
(3) Lecturers: Dr. Kenji Kuno (Senior Advisor, JICA) Mr. Yi Veasna (Executive Director, NCCD, National Consultant) Mr. Ham Hak (Partnership & Communication Manager, Disability Action Council) Mr. Ngin Saorath (Executive Director, Cambodian Disabled People’s Organization)
(4) Participants: 29 people (see the attached list for detail) 24 Provincial offi cers from the Department of Social Affairs Veterans and Youth Rahabilitation 4 offi cers from the Ministry of Social Affairs, Veterans and Youth Rehabilitation (from the central government) 1offi cer from the Ministry of Education
(5) Objectives 1) Understanding the social model of disability 2) Understanding the relationship between disability and development, and disability and poverty 3) Understanding the basic concept of the Twin-Track Approach 4) Knowing the circumstances surrounding persons with disabilities in one’s country, to better understand causes and solutions
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(6) Curriculum
Themes Details Understanding the social model/defi nition of AM What is disability? 13 Oct. disability (Mon) Field visit & access Understanding the life of persons with PM mapping disabilities (PWDs) Defi nition of Development/UN Convention on Disability and the Rights of PWDs / understanding barriers/ Development Empowerment & Enablement (E&E)/ breaking AM the barrier & building a bridge (B&B) Twin-Track Understanding disability as a cross-cutting 14 Oct. Approach issue/mainstreaming & empowerment (Tue.) Introduction to Review of B & B through a video analysis of independent living the independent living movement in Japan PM What can we do using the Twin-Track Group discussion Approach? (activities of mainstreaming & em- powerment) Legislation process History and current legislations in Cambodia AM Situation of PWDs Role of PWD organizations/ present situations 15 Oct. and their rights of PWDs in Cambodia (Wed) Situation analysis/barriers and cause analysis PM Group discussion /possible activities for empowerment & mainstreaming Presentation, Evaluation of the training 16 Oct. AM evaluation & wrap- (Thu) up session
(7) Overview
• It was the fi rst attempt to invite government offi cers from all 24 provinces for such training, and the training received good overall evaluations. • The evaluations show that more than 90% of the participants were satisfi ed with the training’s curriculum / contents and that they were able to understand the lectures. • At the beginning of the training, as the basic concept of the training, it was suggested that: the ultimate goal of the workshop was to make friends with PWDs and; that the lecturer was not to teach the participants what to do, rather the lecturer’s job was to present issues for the participants to think about—that they were to spend time to think about these issues and fi nd their own solutions. The idea of participating
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in a workshop, and coming up with their own ideas and presenting them before a group, was new to many participants and it seems as if it took them some time to get used to it. • Comments from the NGO staff who aided the group work as resource persons included: “the participants seemed bewildered as they were not used to workshops,” “there were many good ideas,” and “the participants seemed to wake up to the idea that they had to be actively involved.” • As mentioned, 90% of the participants responded that they understood the contents of the lectures. However the sharing session after the home visits stayed within disabilities or tragic circumstances surrounding PWDs, and did not reach the issue of disability being a social problem. • The group discussion on the Twin-Track Approach illustrated that the idea of Main- streaming was not fully understood; there was not enough understanding of the fact that the society had to change. • The government offi cers and representatives were absent so the training had to take place without them. • The Ministry of Social Affairs did not seem to have a strong sense of responsibility as the project’s counterpart. Management of the project was left almost entirely to FASID and local consultants. • While the large majority of the participants showed a keen interest in the lectures, two of the participants displayed unprofessional behaviors and attitudes, as described in the evaluation report by the participants. Their behaviors included going out of the lecture room for smoking or for the bathroom and not returning for 20 minutes, and talking on the mobile phone during the lectures.
Attachments 1. List of the Participants (Appendix A-1) 2. Evaluation by Participants (Appendix B-1)
Lao PDR
(1) Period: August 26-29, 2008
(2) Location: Napakuang Resort, Thalath, Lao PDR
(3) Lecturers: Mr. Phetsavang Sounnalath (Focal Point Offi cer, Deputy Director of Cabinet, Ministry of Labour and Social Welfare) Mr. Teerawat Sripathomsawad (Director, Nakongpaton Independent Living Center) Mr. Thanomvonh Khamvongsa (Consultant, Management and Devel
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opment Consultants Co.,Ltd) (4) Participants: 21 (see the attached list for detail) 13 offi cers from the Ministry of Labour, Invalids and Social Affairs 5 offi cers from Vientiane Capital 1 offi cer from Vientiane Province 1 offi cer from the Ministry Education, Ministry of Foreign Affairs
(5) Objectives 1) Understanding the social model of disability 2) Understanding the relationship between disability and develop- ment, and disability and poverty 3) Understanding the basic concept of the Twin-Track Approach 4) Understanding current circumstances surrounding persons with disabilities in one’s own country, and being able to think analytically about causes and solutions (6) Curriculum
themes detail UN Convention on the Rights of Persons Legislation of Disabil- AM with Disabilities/Decree on Disability in Lao 26 Aug. ity Law PDR (Tue) Field visit & access Understanding life of persons with disabilities PM mapping (PWDs) Understanding disability as a cross-cutting AM Twin-Track Approach 27 Aug. issue/Mainstreaming & Empowerment (Wed) Activities by/for per- Independent living activities by persons with PM sons with disabilities disabilities 28 Aug. SWOT analysis Learning simple analysis methods AM (Thu) Stakeholder analysis Simple analysis by using a case study of two persons with disabilities/group discussion PM Situation analysis and group work 29 Aug. Presentation, evalua- (Fri) AM tion & wrap-up ses- Evaluation of the course sion
(7) Overview • All of the participants completed the training except for one offi cer who had to go back to work mid-course as the training took place away from work, at a location with an accommodation facility. • The evaluation session showed that all of the participants were satisfi ed with the
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training, saying that they generally understood the contents of the training. • Many of the participants who had not had a chance to get in touch directly with persons with disabilities commented that through fi eld visits and case studies, they have a better understanding of the circumstances surrounding persons with disabilities. This has helped them understand the signifi cance of listening to persons with disabilities in person / visiting their sites. • The lecturer from Thailand Mr.Teerawat is the representative of an independent living center operated by persons with disabilities. Despite severe disabilities, Mr.Teerawat has demonstrated a strong leadership, actively involved in promotion of persons with disabilities’ social participation. Mr.Teerawat seems to have left a strong impression on Lao PDR as a role model of someone with severe disabilities participating in society as a service provider. • Visual materials were highly effective in communicating messages to the audience. The participants commented that the materials helped them understand the context better, or that they were easy to understand, or that distribution of copies would be highly appreciated. • As the curriculum covered many themes within the short period of three and a half days, less than half of the participants responded that they fully understood the Twin-Track Approach; the pillar concept of the training. • Even though the training was originally targeted at offi cers from the central government, one-third of the participants were offi cers from provincial governments. • The Napakuang Resort helped to make their facilities accessible. This included the installation of simple slopes for wheelchair users.
Attachments 1. List of the Participants (Appendix A-2) 2. Evaluation by Participants (Appendix B-2)
Myanmar
(1) Period: November 25-28, 2008
(2) Location: Sedona Hotel, Yangon, Myanmar
(3) Lecturers: Dr. Kenji Kuno (Senior Advisor, JICA) Mr. Aung Tun Khaing (Deputy Director General, Department of Social Welfare, Ministry of Social Welfare, Relief and Resettlement)
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(4) Participants: 30 (see the attached list for detail) 14 offi cers from the Ministry of Social Welfare, Relief and Resettlement 7 offi cers from the Ministry of Education 4 offi cers from the Ministry of Health 2 offi cers from the Ministry of Labour 2 offi cers from the Ministry of Homeaffairs 1 offi cer from Progress of Border Area and National Races and Development Affairs
(5) Objectives 1) Understanding the social model of disability 2) Understanding the relationship between disability and devel opment, and disability and poverty 3) Understanding the basic concept of Twin-Track Approach 4) Knowing circumstances surrounding persons with disabilities one’s own country and being able to think analytically about causes and solutions (6) Curriculum
Themes Detail AM What is disability? Understanding the social model/defi nition of 25 Nov. disability (Tue) Field visit & access Understanding life of persons with disabilities PM mapping (PWDs) Defi nition of Development/UN Convention on Disability and the Rights of PWDs / Understanding barriers/ Development Empowerment & Enablement (E&E)/ breaking AM the barrier & building a bridge (B&B) Twin-Track Understanding disability as a cross-cutting 26 Nov. Approach issue/Mainstreaming & empowerment (Wed) Introduction to Review of B & B through a video analysis of independent living the independent living movement in Japan PM What can we do using the Twin-Track Group discussion Approach? (activities for mainstreaming & empowerment) Situation analysis/barriers and cause analysis / AM Group discussion possible activities for empowerment & 27 Nov. mainstreaming (Thu) Current situation of PM and future plans for Actual situation of PWDs in Myanmar / future PWDs in Myanmar plans related to PWDs Presentation, 28 Nov. AM evaluation & wrap- Evaluation of the course (Fri) up session
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(7) Overview • The participants included four observers and four resource persons with disabilities and they had active discussions. The training course in a workshop format was a new attempt proposing new perspectives of disability, with offi cers invited from multiple government ministries. • The local consultant Mr. Tha Uke commented as follows: - It is a very unique and successful training workshop in the history of the country on disability To raise awareness and organize a training workshop for these focus groups and audiences is something that had never taken place. It is the right time to organize this training workshop in the country because Myanmar is still very low in awareness on disability issues not only in government sectors but also in private sectors compared to neighboring countries. As the CRPD was approved by the United Nations in late 2006 it is very important to promote awareness on disability fi eld on all primary, secondary and tertiary levels. -In this training workshop government offi cers from six different departments at tended and it makes the training more successful because it is impossible for local organizations to organize this kind of training workshop. • The participants do not share the same level of understanding or awareness towards disability. The participants from the Ministry of Social Welfare, Relief and Resettlement, the Ministry of Health, and the Ministry of Education seemed to have a higher level of understanding and awareness than the rest of the participants. • To most of the participants, “what is disability,” a question posed in social models of disability, was new and received with a look of surprise. • After the training, the offi cers from the Ministry of Home Affair, Boarder Areas Development Department seemed to understand that disability was not an issue limited only to the Ministry of Social Welfare, Relief and Resettlement. Some of the participants also commented that the prejudice in Myanmar towards persons with disabilities by religious (Buddhist) beliefs should be rectifi ed. • The evaluation session showed that the participants were highly interested in, and showed a good understanding of, “What is disability,” “Twin-Track Approach (TTA),” “Empowerment” and “Enablement.” The individual reports also showed many participants were aware that disability was not just an issue limited to the disabled person or their family, but an issue everyone in society was responsible for, to be resolved so that persons with disabilities can participate in the society. • The home visits and access mapping seemed to leave a strong impression on the participants. Many commented that they: “talked to a disabled person for the fi rst time,” “saw the life of a disabled person for the fi rst time,” “saw a disabled person at work for the first time,” or “understood that the idea of disability they had was actually far from reality.” These comments were refl ections of the fact that government offi cers had few opportunities to be in touch with disabled people—the training has helped broaden their perspectives. • Many participants commented in the individual reports that they wanted to utilize the training’s knowledge at their workplace. This demonstrates that the experience
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was fresh and meaningful to each participant, meaningful also for their workplaces and colleagues. • The leadership and coordination by the Department of Social Welfare, as a focal point, led to the training’s success. • Mr. Aung Tun Khaing, Focal Point Offi cer of this project and Deputy Director General of Social Welfare Department, gave a lecture about the DSW’s policy on PWDs. He mentioned that the DSW is working closely with the Ministry of Education to realize “Inclusive Education.” Mr. Aung Tun Khaing also mentioned that there are not adequate legislations or policies in place for PWDs under the infl uence of natural disasters including the recent attack of Cyclone Nargis, but the aid towards PWDs after the cyclone is going quite well. International NGOs started to support PWDs after the cyclone, while the DSW is about to complete the drafting process of the “Post Nargis Action Plan for Disabled People” as there had been no action plans in place before. Mr. Aung Tun Khaing left a strong impression on the participants when he called for their cooperation, saying the most important thing to remember is that disability is not an issue limited to the Department of Social Welfare, that other ministries and departments should also work on it and NGOs and all citizens should be involved to improve the life of persons with disabilities.
Attachments 1. List of the Participants (Appendix A-3) 2. Evaluation by Participants (Appendix B-3)
Vietnam
(1) Period: August 5-8, 2008
(2) Location: Sunway Hotel, Hanoi, Vietnam
(3) Lecturers: Dr. Kenji Kuno (Senior Advisor, JICA) Mr. Nguyen Ngoc Toan (Chief of Division, Social Protection Bureau, Ministry of Labour, Invalids and Social Affairs) Mr. Dan Rocovits (Founder, World Village Foundation)
(4) Participants: 17(20 applicants; see the attached list for detail) 7 offi cers from the Ministry of Labour, Invalids and Social Affairs 1 offi cer each from the Ministry of Culture, Sports and Tourism, Ministry of Construction, Ministry of Home Affairs, Ministry of Information and Communication, Ministry of Transport, Ministry of Justice, Ministry of Health, Vietnam Women’s Union,
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National Assembly Offi ce, and General Statistic Offi ce (5) Objectives 1) Understanding the social model of disability 2) Understanding the relationship between disability and development, and disability and poverty 3) Understanding the basic concept of the Twin-Track Approach 4) Knowing the current circumstances surrounding PWDs of one’s own country and being able to think analytically about causes and solutions
(6) Curriculum
Themes Detail Disability and Understanding the social model / defi nition of Development disability and development AM World trends on Dis- MDF/Biwako Millenium Framework / UN 5 Aug. ability Convention of the Rights of PWDs (Tue) Legislation of Dis- Movement toward enactment of Disability Law ability Law in Vietnam Field visit & access Understanding life of persons with disabilities PM mapping (PWDs) Understanding disability as a cross cutting AM Twin-Track issue/Mainstreaming & empowerment / 6 Aug. Approach Independent living movement by persons with (Wed) disabilities Consensus Discussing the needs of persons with PM workshop disabilities Situation analysis of Situation analysis of persons with disabilities AM case studies in Vietnam 7 Aug. The role of the government and individual role (Thu) as an offi cer, what./how to start action to PM Group discussion support persons with disabilities / collaboration with line Ministries on disability Presentation, 8 Aug. AM evaluation & Evaluation of the course (Fri) wrap- up session
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(7) Overview • This was the fi rst time a training course was put into place for more than two days for government offi cers from line ministries. Despite the fact that there were no per diem or transport fee allocations, more than half of the invited government offi cers attended. • The evaluation showed that all of the participants were satisfi ed with the training and said that they understood the lectures. • Many participants commented that they were able to hear true voices of persons with disabilities and learn about the circumstances surrounding persons with disabilities through fi eld visits and case studies. One practical example was an offi cer’s visit to the home of a person with severe disabilities. Stunned that the person’s life was deeply compromised because the government policy was not targeted at this kind of person, the offi cer revised the prerequisites for this policy towards PWDs by which the person would be able to receive the policy’s benefi ts. • The Twin-Track Approach is a very important concept in dealing with disability and development. The lectures on this theme were new and seemed to evoke a high level of interest amongst the participants. However the time allocated to these lectures was too short that it seemed that the participants did not come to a complete understanding of the concept.
The National Consultant Ms. Hong Ha commented as follows: (The training) • Created a good friendly and cooperative atmosphere between the participants and disabled persons who were resource and case study persons • It was the fi rst time that the government offi cials learned, in reality, not in books or from newspapers, that PWDs, when being given opportunities and favorable conditions, can demonstrate their abilities, just like non-disabled persons
(Others) • The training was organized in a hotel, which was originally not accessible, but the Manager and the hotel staff followed recommendations to make modifi cations to make it accessible enough for wheelchair persons. After the training, the Manager asked the national consultant to be a consultant and resource person for training on accessibility and services for disabled people that he would organize for his staff. • During the course, some of the participants received calls from their bosses and had to go back to work. More support is required for them to complete the training.
Attachments 1. List of the Participants (Appendix A-4) 2. Evaluation by Participants (Appendix B-4)
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3.3 Third Country Workshop
The third country workshop was conducted in Kuala Lumpur, Malaysia in January 2009. Each 3 government offi cers were invited from CLMV countries to participate in the workshop. The Workshop report is outlined as shown below.
(1) Period: January 12-16, 2010
(2) Location: Hotel Legend, Kuala Lumpur, Malaysia
(3) Lecturers: Ms. Jayalatchumy A/P Cumaraswamy (Director, Division for the Development of People with Disabilities, Department of Social Welfare, Ministry of Women, Family and Community Development, Malaysia) Ms. Yeo Swee Lan (Coordinator, United Voice) Mr. James Lim Ming Koon (Assistant Administrator, United Voice) Mr. Nesan A/L Kandiah (Senior Manager, Human Capital Development, Dairy Farm) Ms. Christine Lee (Coordinator, BEAT) Mr. Lee Lih Shyan (Assistant Director, Development Planning Depart ment, Petaling Jaya) Ms. Sia Siew Chin (Executive Director, Beautiful Gate Foundation) Mr. Bo Lingam (Air Asia) Mr. Anthony Arokia (President, Mobility) Workshop Facilitator: Ms. Chisato Esaki (Technical Advisor/Vietnam) Ms. Junko Utsumi (Technical Advisor/Cambodia) Mr. Yi Veasna (National Consultant/Cambodia) Ms. Nguyen Hong Ha (National Consultant/ Vietnam)
(4) Participants: 12 (see the attached list for detail. 3 participants from each country)
(5) Objectives 1) Using the activities by the Malaysian government as a foundation, examine the roles of the government, as well as the policies and legislations involving organizations of / by persons with disabilities 2) Information sharing amongst CLMV countries towards networking
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(6) Curriculum
themes detail The United Nations Convention on the Rights of Persons with Disabilities The role of the government (CRPD) and revisions of disability- (Malaysia) related law PWD act and policy on AM PWDs) / the role of the government 12Jan Current situation of disability-related Country Presentation and (Mon) law / Sharing issues amongst CLMV Sharing countries Understanding diversity of disabilities / review Empowerment & Enablement PM Preparation for next day (E&E) Breaking the barrier & Building a bridge (B&B) Understanding learning disability / self Promotion of PWD advocacy, self-help organization for organizations and self-help learning disability / government support AM groups system to promote PWD organizations 13Jan and self-help group activities (Tue) Collaboration with private Employment and job coaching / sharing sectors experience in hypermarket Giant Accessibility to public Importance of consultation / Sharing PM transport and environment experiences of Barrier- free Environment building and Accessible Transport (BEAT) Outline of activities related to barrier- free environment and the role of local governments / outline of the activities Field visit to Petaling Jaya by Beautiful Gate Foundation (NGO), 14Jan City, working together, PWD the role of IL Centre and collaboration (Wed) organization, community and with local governments and resident’s local government associations / access mapping in Petaling Jaya City/ Empowerment & Enablement (E&E) Field visit to Air Asia Observation of the Disability Equality 15Jan Academy Training Centre / Training / Sharing experiences by Air (Thu) Disability Equality Training in Asia and BEAT Air Asia Presentation about the role of the 16Jan AM Wrap-up session government for social inclusion and (Fri) participation of PWDs by each country
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(7) Overview • The third-country workshop was originally planned for Thailand, however due to the political unrest and declining public security in Bangkok in November 2008, the location was switched to Kuala Lumpur, Malaysia. • The training was successfully put into place as planned for fi ve days between January 12 and 16, with full support by the Ministry of Women, Family and Community Development, Division for the Development of People with Disabilities and the Department of Social Welfare. • As to Malaysia’s efforts in the disability issues, the session included the enactment of PWDs Act in 2008, in which disability was given a formal defi nition using the concept of the social model of disability. The lecture also included the roles of the government and their collaborative effort with disability organizations, followed by many questions from the participants—many of them practical questions about the source of budget for supporting PWD’s independent living, pension for PWDs who are unable to work due to severe disabilities, and CBR center’s subsidy. The questions refl ected the audience’s enthusiasm to learn from Malaysia’s example, one of the leading countries within the region. • The training helped deepen the participant’s understanding of intellectual disabilities, a subject that had not been raised in the fi rst in-country workshop. The participants became aware of the importance to acknowledge the diversity of disabilities, not just physical disabilities. • Ms. Yeo Swee Lan’s lecture, Mr. James Lim Ming Koon’s self-advocacy session and Mr Nesan A/L Kandia gave a presentation about employment examples of PWDs. It helped deepen the participant’s understanding of intellectual disabilities. Notably, the statement by the head of the hypermarket Giant’s personnel department “it is people without disabilities who are the source of trouble. People with disabilities are great workers.” helped to change the audience’s perspective towards PWDs. • The presentations’ impact on the participant was evident in the evaluation. The participants from Cambodia and Myanmar commented that the presentations helped deepen their understanding towards persons with intellectual disabilities and changed their ideas and prejudices towards them. The comments included: - Employment of PWD (Cambodia) - Persons with disabilities can get a job and enjoy work (Myanmar) - In Malaysia, persons with disabilities have equal job opportunities in some areas (Myanmar) • The visit to the city of Petaling Jaya comprised an observation of Petaling Jaya’s attempt to create an accessible environment with PWDs, and of the cooperation amongst the municipal government, neighborhood association and Beautiful Gate Foundation, the operator of independent living centers. The participants’ questions included “how do they collect information about companies interested in employing PWDs,” “what is the cost of this information retrieval,” and “how many members are there in the association’s committee.” During the access mapping session, some participants demonstrated voluntary actions such as pushing a wheelchair.
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• At Air Asia, the participants had an opportunity to observe their Disability Equality Training. Air Asia also told inspiring stories including how they came to conduct the Disability Equality Training with the cooperation by BEAT. • The training reports from each country are as follows, submitted on the last day of the workshop.
[Cambodia] • We acquired the knowledge about disability and what support is needed for persons with disabilities. • We would like to formulate the following future plans: 1) Establish a networking offi ce for ASEAN 2) Make efforts to enact disability law by the end of the year 3) Conduct training programs for government offi cers and NGOs about disability and development 4) Raise awareness towards accessible environment 5) Amend statistics about persons with disabilities 6) Establish IL centers
[Lao PDR] • We understood how to organize workshops and seminars. The training provided methods and knowledge that can be applied usefully back home. All four coutries are in the same situation regarding accessibility so further networking is desired. It was also an excellent opportunity for cultural exchange of the four countries. • We would like to formulate the following future plans: 1) Enact a disability law by the end of 2009(Propose to the government to approve decree of PWDs by 2009) 2) Further discussions about details of national disability policies (create National Action Plan of PWDs)
[Myanmar] • We understood the importance of PWDs’ participation in the society. We understood that persons with disabilities are important people and human resources for a better future of the society. • We would like to formulate the following future plans: 1) Conducting a 3-day training course to raise awareness towards persons with disabilities 2) Implementing a pilot project for accessible environment 3) Conducting occupational training for persons with (intellectual) disabilities 4) Promoting CBRs (Community Based Rehabilitation), SHGs (Self Help Group) and SHOs (Self Help Organization)
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[Vietnam] -We learned from the workshop: the diffi culties surrounding PWDs; PWD’s capabilities; how to approach PWD rights; defi nition and categorization of PWDs; promotion of disability law and policies; needs for social services including education and medical treatment as well as employment opportunities; and how to organize training for government offi cers. -We would like to formulate the following future plans: 1) promoting drafting of disability law 2) promoting accessibility in public transport systems 3) raising awareness of central and provincial government offi cers towards disability
• Each country’s report included contents from their fi rst training and the third-country workshops, illustrating the fact that they understood the government’s role to offer services for persons with disabilities and that they had deeper understanding of disability than before. However some reports included future plans that were too far-fetched, impossible to put into action. The technical advisors also pointed out that each country still lacks a thorough analysis of the current situation. Future in-country workshops will need to include training to examine why problems exist, and how ideas can be brought into action. • The training was a good interactive opportunity for all four countries. By the end of the training many participants were actively exchanging ideas; however in some instances they were also unable to further discussions due to differences in their political systems. • The participants had some understanding, but also differences in the level of understanding, of Empowerment & Enablement (E & E) and Brake Barrier & Build Bridge (B & B)--the Project’s crucial focus since the fi rst workshops. Further efforts to revise workshops’ contents are required for these concepts to be brought into policies. • In Malaysia as well as CLMV countries, there are huge gaps between the urban and rural areas. The training covered examples only of the metropolitan areas around Kuala Lumpur. As suggested in the participants’ comments, the training would have been far more comprehensive if it had included rural examples of support towards PWDs. • After returning home, the participants from each country had a reporting session on the Third Country Workshop in Malaysia. The participants of the fi rst workshop attended in all four countries’ reporting sessions to share information about the training in Malaysia.
Attachments 1. List of the Participants (Appendix C-1) 2. Evaluation by Participants (Appendix C-2)
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3.4 In-Country Workshop
The Second training, which is In-Country Workshops were conducted between May and September 2009 in four CLMV countries: Cambodia; Lao PDR; Myanmar; and Vietnam.
Cambodia
(1) Period: July 13-17, 2009
(2) Location: Sunway Hotel, Phnom Penh, Cambodia
(3) Lecturers: Ms. Yeo Swee Lan (Coordinator, United Voice) Ms. Teoh Hooi Ting (Vice President, United Voice) Ms. Song Sokleap (Resource person) Workshop Facilitator: Mr. Dan Rocovits (Founder, World Village Foundation)
(4) Participants: 30 (see the attached list for detail) 24 Provincial offi cers from the Department of Social Affairs Veterans and Youth Rahabilitation 5 offi cers from the Ministry of Social Affairs, Veterans and Youth Rehabilitation (from the central government) 1 offi cer from the Ministry of Education
(5) Objectives 1) Understanding the diverse nature of disabilities and that disability is an issue that requires active involvement. 2) Formulating a detailed action plan as a government offi cer, to improve circumstances surrounding persons with disabilities of one’s own country.
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(6) Curriculum
themes detail Understanding learning disability / self-help AM Diversity of disability 13 July group and self advocacy (Mon) Introduction to the PM Understanding the process of plan-making action plan Information sharing by MoSVY/ National Ministry action plan Action Plan Understanding the life of women with AM disabilities / case analysis / review of 14 July Women and disabilities Empowerment & Enablement, breaking the (Tue.) barrier & building a bridge Consensus for PWD’s full participation / PM Group discussion information sharing by participants (assignment check) 15July AM Group discussion Selection of activities (Wed) PM Group discussion Selection of activities AM Group discussion A model action plan planning by the group 16July Preparation for action (Thu) PM Action plan planning by each participant plan presentation Presentation of the AM Presentation by selected participants 17 July action plan (Fri) Wrap-up & closing PM Guidance for follow-up activities session
(7) Overview • As shown in the curriculum, the fi rst day included, with cooperation by Malaysia and United Voice, a lecture on learning disability and a self-advocacy session by Ms. Hooi Ting, herself a person with a learning disability. Most of the participants attended the lecture with a keen interest and asked many questions in the Q&A session about the Malaysian government’s support towards PWDs. The participants’ high level of interest was also shown in the evaluation, with 26 out of the 30 people (87%) citing learning disability as what they learned during the workshop, and 8 citing Ms Hooi Ting’s self-advocacy session. • The life history of PWDs leaves a strong impression on the participants, as shown in the fact that 14 people cited Ms Sokleap’s story as the thing they learned from the workshop. Some commented that they were brought to tears while listening to Ms Sokleap’s story. • The participants spent four days learning about formulation of an action plan. After
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creating an action plan as a whole team, each individual formulated their own action plan. The participants were generally satisfi ed with the contents of the training; 25 of the 30 participants (83%) commented that the best part of the training was the formulation of the action plans, and 29 (97%) cited “how to make an action plan” as what they had learned from the training. • The model topic chosen for exercise was “Promoting the Rights of Persons with Disabilities towards participation,” and an action plan was formulated on the action “set up a signboard to raise awareness towards elimination of all forms of discrimination against PWDs.” • This topic and action were chosen at later dates by 19 participants in other provinces for the formulation of their own action plans. • Six people presented action plans on “Spreading out the Law on the Protection and Promotion of the Rights of PWDs among government offi cers in the Department of Rehabilitation of MoSVY” and two people on “The International Day for Persons with Disabilities.” • Even though the participants in Cambodia learned the method and procedure of creating an action plan and how to document the plan, it seemed hard for them to formulate an action plan that would serve as a pillar of the social model aimed by the Project. They are yet to understand how to involve persons with disabilities in the implementation of action processes.
(8) Follow-up activities As there was no request from Cambodia, no follow-up activities were scheduled. Only a monitoring activity was implemented in early December 2009.
Attachments 1. List of the Participants (Appendix D-1) 2. Evaluation by Participants (Appendix E-1) 3. Action Plans (Appendix F-1)
Lao PDR
(1) Period: September 1-4, 2009
(2) Location: Napakuang Resort, Thalath, Lao PDR
(3) Lecturers: Dr. Kenji Kuno (Senior Advisor, JICA) Ms. Junko Watanabe (Program Offi cer, FASID)
(4) Participants: 20 (see the attached list for detail)
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13 offi cers from the Ministry of Labour, Invalids and Social Affairs 2 offi cers from the Ministry of Education 1 offi cer each from the Ministry of Justice, Ministry of Public Works and Transport, and Ministry of Health, Vientiane Province, Vientiane Capital (5) Objectives 1) Understanding the social model of disability 2) Understanding the relationship between disability and development 3) Understanding the basic concept of Twin-Track Approach 4) Formulating practical and detailed action plans as a government officer to improve the circumstances surrounding persons with disabilities in one’s country
(6) Curriculum
themes detail Understanding the social model/defi nition of AM What is disability? disability 1 Sep. Defi nition of Development/UN Convention on (Tue) Disability and the Rights of PWDs / Understanding barriers/ PM Development Empowerment & Enablement (E&E)/ breaking barriers & building a bridge (B&B) Understanding disability as cross-cutting issue/ AM Twin-Track Approach Mainstreaming & Empowerment 2 Sep. What can we do using the Twin-Track (Wed) PM Group discussion Approach? (activities for Mainstreaming & Empowerment)
AM Sample exercise: formulation of action plan 3 Sep. Formulation of action (Thu) plans Formulation of an action plan by each PM participant/Ministry 4 Sep. Presentation, evaluation Presentation of action plans, evaluation of the AM (Fri) & wrap-up session course
(7) Overview • Nine of the participants had participated in the fi rst in-country workshop in 2008. All but one of the 20 participants except one completed the whole course of the workshop. • The evaluation showed that all of the participants were satisfi ed with the workshop. They responded that they managed to follow the lectures. It seems that they have also become aware of the importance to make changes from within their close
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vicinities including their workplace, towards social participation of persons with disabilities. • For many participants the formulation of the action plan was not the goal; they expressed a will to work on the implementation of the plan beyond the workshop, at their workplace or by talking to donors. • The workshop involved young resource persons with disabilities (one each of persons with hearing, visual and physical disabilities, an observer, an interpreter’s assistant, and a note-taker.) The participants commented that they had a lot to learn from these resource persons; that they learned from these persons that there is no difference in skill levels with or without disabilities. • Since the workshop involved accommodation, there was adequate time outside of the workshop between the resource persons and participants to interact and deepen the participants’ understanding of persons with disabilities, and recognize the need of cooperation amongst the ministries and related departments. • FPO had held an orientation program for the workshop’s participants a month before the workshop. The orientation included an introduction to the workshop’s objectives and as the participants had been instructed in advance to discuss feasible action plans with their supervisors, the action-plan session progressed smoothly.
(8) Action plan The participants’ action plans are shown below. Since the action plan by the Department of Skill Development and Empowerment, Ministry of Labour and Social Welfare, involved persons with disabilities in its implementation and since it was the fi rst such attempt in Lao PDR, FPO and FASID concluded to support their action plan on job fair for persons with disabilities.
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Attachments 1. List of the Participants (Appendix D-2) 2. Evaluation by Participants (Appendix E-2) 3. Action Plans (Appendix F-2) 4. Action Plan Implementation Reports (G-1)
Myanmar
(1) Period: May 26-30, 2009
(2) Location: Traders Hotel, Yangon, Myanmar
(3) Lecturers: Ms. Yeo Swee Lan (Coordinator, United Voice) Mr. Johari Jamali (President, United Voice) Mr. Osamu Nagase (Associate Professor, Graduate School of Economics, The University of Tokyo) Dr. Zaw Moe Aung (Country Operation Manager, The Leprosy Mission International) Mr. Ko Ko Lwin (Social Insight MMRD Resarch Service) Mr. Nay Lin Soe (Resource person/ Project Manager of CBR project, AAR) Ms. Miho Yoshida (CBR Expert) Mr. Akira Nagamachi (Director, Offi ce of International Cooperation Projects, FASID)
(4) Participants: 30 (see the attached list for detail; most are the same participants from the fi rst workshop) 14 offi cers from Ministry of Social Welfare, Relief and Resettlement 7 offi cers from Ministry of Education 4 offi cers from Ministry of Health 2 offi cers from Ministry of Labour
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2 offi cers from Ministry of Home affairs 1 offi cer from Progress of Border Area and National Races and Development Affairs
(5) Objectives 1) Deepening the understanding about the diverse nature of disabilities and that disability is an issue that requires active involvement. 2) Formulating a practical, detailed action plan as an executive government offi cer to improve the circumstances surrounding persons with disabilities in one’s country.
(6) Curriculum
themes detail Diversity of Understanding Learning disability / Self-help AM Disability group and self -advocacy 26May Challenges of Understanding regional international policy (Tue) inclusion / pesons framework (Asia Pacifi c Decade of Disabled PM with intellectual Persons, Convention on the Rights of Persons disabilities with Disabilities) Introduction of Introductions to action plan formulation, review of the community- the CBR Congress in Bangkok based approach AM 27May Background Understanding poverty, PWDs and urban (Wed) information for community case analysis Case presentation by participants / understand- PM Group discussion ing each case, fi nding resources and problems Group discussion 28May AM Case analysis/activity of, for, by PWDs and presentation (Thu) PM Group discussion Case analysis 29May AM Group discussion Stakeholders analysis, problems analysis (Fri) PM Group discussion Objectives analysis 30May Action plan Selection of the Project, formulation of the matrix AM (Sat) Formulation & presentation by selected participants
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(7) Overview • Most of the participants were from the previous workshop. Just like before the workshop included four resource persons with disabilities. All participants demonstrated a keen interest and there were active discussions. • The fi rst day consisted of: lectures about learning disability, as well as self-advocacy by Mr. Johari Jamali, a person with disability himself in the a.m.; and lectures in the afternoon about Convention on the Rights of Persons with Disabilities and challenge of inclusion. The participants demonstrated a keen interest in inclusive education, a subject that had been consistent since the fi rst workshop. The concepts of learning disability and self advocacy were new in Myanmar—most participants had never heard of them and the sessions highly impacted them. Their comments included: “the lecture made it easy to understand the characteristics of learning disabilities. I would like to learn more,” “the self advocacy by Mr. Johari Jamali changed the idea I had towards people with learning or intellectual disabilities.” The level of interest and impact on the participants was evident in the afternoon as there were many questions to Mr Nagase’s lecture about inclusion of people with intellectual disabilities. • A group work on action plan formulation started on the second day and continued for three and a half days. Before the workshop, the Department of Social Welfare (Focal Point) had requested the workshop to be an opportunity to prepare for a pilot project for Community Inclusive Development; the Department visited four townships near Yangon, of Shwe Pyi Tha, Htantabin,Hlaing Thayar and Dalla, in advance and chose Shwe Pyi Tha Township for a case analysis. • Preceding the workshop, seven participants visited four homes of people with disabilties in Shwe Pyi Tha Township to create case study materials, which were presented during the workshop. • The workshop had an additional lecture by Mr. Ko Ko Lwin on disability, poverty and characteristic of urban poverty. The participants’ comments included “I understood the relationship between disability and poverty, and the circumstances surrounding Shwe Pyi Tha Township. I have a better understanding of the whole picture.” • The fourth and fi fth day comprised an action plan formulation workshop using a project cycle management method. All of the participants maintained a high level of concentration and formulated three plans.
(8) Follow-up • The Focal Point sent in a request for support towards the planning of a pilot project, based on the three plans created during the second in-country workshop. After the meetings and workshops between September 8 and 23, the DSW chose Group 3’s action plan as it was most comprehensive of all three, to make modifi cations for the pilot project. • After two more workshops, an action plan was formulated for a pilot project in Shwe Pyi Tha Township. • Department of Social Welfare is proposing a partnership with Disabled People
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Organization (DPDO) for the implementation of the pilot project, including analysis of the community and the needs of persons with disabilities, based on home visits in the target area.
Attachments 1. List of the Participants (Appendix D-3) 2. Action Plans (group 1-3) (Appendix (F-3.1) 3. Amended Action Plan (the DSW’s action plan) (Appendix F-3.2)
Vietnam
(1) Period: August 11-14, 2009
(2) Location: Movenpick Hotel, Hanoi, Vietnam
(3) Lecturers: Mr. Soya Mori (Project Advisor, Senior Research Fellow / Deputy Director & Professor, Institute of Developing Economics, JETRO Inter-disciplinary Studies Center, Poverty Alleviation and Social Development Studies Group – Japan) Mr. Yoshinori Ikezumi (Professor, Rikkyo University - Japan) Ms. Junko Watanabe (Program Offi cer, FASID)
(4) Participants: 20 (22 applicants: see the attached list for detail) 8 offi cers from the Ministry of Labour, Invalids and Social Affairs 2 offi cers from the Ministry of Education and Training, Vietnam Women’s Union, University of Social Affairs 1 offi cer each from the Ministry of Culture, Sports and Tourism, Ministry of Construction, Ministry of Home Affairs, Ministry of Information and Telecommunication, Ministry of Transport, Ministry of Justice, Ministry of Finance, Ministry of Home Affairs and Ministry of Health, National Assembly Offi ce
(5) Objectives 1) Understanding the social model of disability 2) Understanding the relationship between disability and development, and disability and poverty 3) Understanding the role of a facilitator 4) Formulating action plans
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(6) Curriculum
themes detail The vicious cycle among absolute poverty, relative poverty and disability / differences in the percentage AM Disability and Poverty 11 Aug. of PWDs in the world (per country) and its cause / (Tue) defi nition of disability in each country Disability and The global notion of disability / individual and social PM Development models of disability Facilitator’s skill Workshop to deepen the understanding of the social AM training I model of disability 12 Aug. What is the role of a facilitator? Consider the (Wed) Facilitator’s skill PM facilitator’s role as the central government’s training II executive offi cer AM Sample exercise of action plan formulation 13 Aug. Formulation of action Formulation of an action plan by each participant / (Thu) PM plan Ministry / organization Presentation, 14 Aug. Presentation of action plan, Evaluation of the work- AM evaluation & wrap-up (Fri) shop session
(7) Overview • Eight of the fi rst in-country workshop’s participants had applied to the second work- shop, of which only one, from Vietnam Women’s Union, completed the whole curriculum. • The evaluation showed that all of the participants were satisfi ed with the workshop contents, and responded that they understood the lectures. • For many of the participants this was their first in-country workshop. As the participants who had also attended the fi rst in-country workshop had no full understanding of the lecture themes, the lecture contents had to be revised; the Twin-Track Approach had already been introduced in the fi rst workshop and its revision was planned for the afternoon of the fi rst day, but had to be rescheduled and the basic concepts of the Approach” Disability and Development” and “What is disability” were covered well into the afternoon to ascertain the understanding of this important subject. • There were many comments to Mr. Mori’s sign-language lecture, including: “it was an amazingly wonderful lecture, given that Mr. Mori had a hearing disability,” “it was the fi rst lecture in sign language I had ever attended,” “it was unimaginable that sign language can express such diverse contents,” and “the translation by the sign language interpreters was superb.” • The facilitator workshop by Mr. Ikezumi was presented with diagrams and pictures, was easy to follow and involved interactions and exercise sessions with the
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participants. Comments from the participants included “the workshop is useful for daily work procedures, not just limited to particular fi elds of expertise.” • Despite the FPO’s and counterpart organizations’ structural changes, there was not adequate handover for the Project—there were cases where little correspondence or moderation took place between the participants and their supervisors until just before the workshop-- and this signifi cantly affected the attendance. Some of the government offi cers had not attended the fi rst workshop, or had to drop out mid- workshop due to the delay / lack in correspondence and the resultant lack of approval from their workplace. This urged the curriculum modifi cation as the work- shop had originally been designed for participants who had also attended the fi rst workshop.
(8) Action Plans The action plans were formulated as follows. FPO and FASID decided to support the implementation of the action plan by Vietnam Women’s Union as it was the only one that involved PWDs.
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• Objective: fi nding employment for approximately 50 boat people with disabilities • Activities: research the number and needs of boat people with disabilities, put occupational training in place towards employment.
Attachments 1. List of the Participants (Appendix D-4) 2. Evaluation by Participants (Appendix E-3) 3. Action Plans (Appendix F-4) 4. Action Plan Implementation Report (Appendix G-2)
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3.5 Wrap-Up Seminar
The Wrap- Up Seminar was conducted in March 2010 in Kuala Lumpur, Malaysia. This seminar was held in cooperation with the Ministry of Women, Family and Community Development, Malaysia. Nine government offi cers participated from CLV countries, and representatives from Indonesia, Philippines and Thailand shared their experiences.
(1) Period: March 22-25, 2010
(2) Location: Boulevard Hotel, Kuala Lumpur, Malaysia
(3) Lecturers: Dr. Donald Tambunan (Head of Social Welfare, Women, Labour & Mi-grant Workers Division, Socio-Cultural Cooperation Directorate, ASEAN Secretariat) Mr. Soya Mori (Deputy Director, Senior Research Fellow, Poverty Alleviation and Social Development Studies Group, Inter-disciplinary Studies Center, Institute of Developing Economies/ Technical Advisor of the project ) Ms. Norani BT Mohd Hashim (Director, Department for Development of PWDs, Ministry of Women, Family and Community Develop ment, Malaysia) Facilitators: Mr. Osamu Nagase (Associate Professor, Graduate School of Economics, The University of Tokyo/Technical Advisor of the Project ) Mr. Yi Veasna (Executive Director, National Centre of Disabled Per- sons, Royal Government Advisor/National Consultant of the Project/ Cambodia) Ms. Yukiko Nakanishi (President, Asia Disability Institute, Chief Advisor of the Technical Advisory Committee of the Project) Ms. Keiko Asato (Deputy Director, Offi ce of International Coopera- tion Projects, FASID)
(4) Participants: 40 (see the attached list for detail) Three CLMV government offi cers had been invited, but the offi cer from Myanmar was unable to attend.
(5) Objectives 1) Reaching a consensus on how to shape the framework to pro- mote mainstreaming of PWDs in CLMV countries continuously after the project. 2) Shaping a network to share information on disability issues in CLMV countries for a continuous cooperative effort in ASEAN
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(6) Seminars
themes detail Country Progress of the Action Plan implementation and AM presentation CLMV countries’ fi ndings from the training 22Mar. Current situation in Current situations in ASEAN region / ASEAN (Mon) ASEAN region secretariat policy on disability issues PM Country Sharing of the best practices by Indonesia, presentation Philippines and Thailand Poverty and PWDs in developing countries / What is AM Social model of disability / Relationship between mainstreaming? 23Mar. disability and development (Tue) Malaysian Federation of the Deaf, Penguin Bakery PM Field visit and Western Food / Beautiful Gate Foundation & Petaling Jaya City / Hypermarket ‘Giant’ How can we promote “mainstreaming of PWDs”? 24Mar. Group discussion / Post- project activities in each country / (Wed) common topics 25Mar. Wrap up & Closing Recommendation to ASEAN Secretariat / (Thu) Session Minutes of discussion
(7) Overview
• Each country reported the progress of their action plans and the training’s outcome. Lao PDR hosted workshop on employment of persons with disabilities, while in Vietnam, a disabled women’s group was established and a competition held as part of their promotional activities—one of the project’s achievements, as these were based on the action plans formulated during the training. • Dr. Donald Tambunan from Asian Secretariat reported on the current support towards persons with disabilities and future issues in ASEAN countries. Ms. Aria Indrawati from Mitra Netra Foundation, Indonesia, Mr. Mateo A. Lee Jr. from National Council on Disability Affairs, Philippines and Mr. Suporntum Mongkolsawadi from The Redemptorist Foundation for People with Disailities, Thailand gave a speech about the best possible collaborative effort between their government and PWD organizations. • Mr. Soya Mori (Deputy Director, Senior Research Fellow, Poverty Alleviation and Social Development Studies Group, Inter-disciplinary Studies Center, Institute of Developing Economies/ Technical Advisor of the project) gave a lecture about
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mainstreaming of PWDs. Mr. Mori is deaf himself and the lecture was conducted through a sign language interpreter. Mr. Mori mentioned his fi eld work in India and Philippines, where he had employed PWDs as research assistants. Mr. Mori’s lecture left a strong impression on the audience. • Following the Third Country Workshop in Malaysia in January 2009, the Malaysian government and organizations of PWDs offered tremendous support for the wrap- up seminar. Ms. Norani BT Mohd Hashim, Director, Department for Development of Welfare, Ministry of Women, Family and Community Development, gave a presentation about plans of the Department to work on disability issues, in collaboration with related ministries, departments, PWD organizations and private sectors. During the fi eld visit, the participants split into three groups and visited: Malaysian Federation for the Deaf, organized by PWDs; Penguin Bakery and Western Food, run by deaf persons; Beautiful Gate Foundation for the Disabled—an NGO run by PWDs; Petaling Jaya City; and hypermarket Giant, who undertakes job coaching and actively employs disabled people. • The third day was mostly spent on discussions about mainstreaming of PWDs, and CLMV countries’ collaborative approach towards their common issues. Promotion of the following activities was agreed: 1) Capacity development for government offi cers, PWDs and PWD-related organizations including DPOs and NGOs; 2) Information sharing and networking; 3) Activities for advocacy and awareness-promoting the rights of PWDs (see the attachment for detail) • Through these discussions the participants from each CLMV country recognized the need to shift from charity-based approach to the approach that considers PWDs’ rights, and had a certain degree of understanding towards mainstreaming of PWDs. As mentioned, a network was formed by the four CLMV countries towards mainstreaming of PWDs through discussions about means of collaboration and cooperation. Even though future activities of this network depend on each country’s action and enthusiasm, the project was a success in that it contributed to pave the way for the their collaboration and networking.
Attachments 1. List of the Participants (Appendix H-1) 2. Discussion Minutes (Appendix H-2)
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4.1 Cambodia
(1) “Refresh My Commitment to Persons with Disabilities” “We have just built a hut for mushroom cultivation,” says Ms. Mao Sophea, 26, pointing to the new hut proudly. She is the leader of a self-help group for persons with disabilities (PWDs) in the villages of Svay Rieng Province, Cambodia. The group was started in 2007 and has now numbers 10 members. Ms. Sophea, who suffers from polio, could not fi nd work after fi nishing school in 2001. She had trained as a saw operator, but could not fi nd work. “I did not do anything before we started this group,” she said.
The group has various activities to improve livelihoods, with support from the government and Veterans International, an NGO. These include saving money, a rice bank, raising ducks and mushroom cultivation. Each member can borrow money from the group if they need to. “We were isolated in the village and didn’t know each other well before we started this group,” she said. Now, they can help with each other and many of the members said that they were now more confi dent than before. “What is more important for me is that the other villagers now know my name,” she added. Before, she was referred to as “the disabled.”
Svay Rieng Province is said to be one of the poorest in the country. But the Department of Social Affairs, Veterans, and Youth Rehabilitations (DSVY) have been forming such
TheThe SelfSelf-helphelp groupgroup in SvaySvay Rieng.Rieng Ms.Ms SopheaSophea is inin thethe centercenter withwith greengreen shirt.shirt
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self-help groups one by one in the villages. Now they have four groups and two more will be formed soon. Mr. Va Saren, Director of DSVY of Svay Rieng Province, has been in this fi eld since 1985. He participated in the FASID program and found it “refreshed my strong commitment to PWDs.” “As the activities of self-help groups in the province show, PWDs are only physically disabled, they still have the ability to work. The FASID program reaffi rms that point and now I want the PWDs themselves to know more about it,” Mr. Saren said.
Mr. Saren’s offi ce has one PWD offi cer. Mr. Sek Samoeun, 45, is the head of rehabilitation department of DSVY in the province. He lost his right leg in 1981 by stepping on a landmine when he was farming. “I have never met other PWDs offi cers in other provinces,” he said. He goes around the villages to help PWDs’ activities and raise awareness of the public. His words as a PWD are convincing to “non-disabled” villagers and encouraging for other PWDs. Mr. Saren, Director, said that he would like to hire more PWDs. “Of course it depends on the capacity of the PWDs, but I believe that with proper education and training, they are able to work in society. I want them to have more confi dence and reduce the prejudice against them in society,” Mr. Saren said.
(2) From NGO to Government Cambodia suffered from a long period of armed confl ict until the end of 1990s. Because of the war and the landmines buried during the confl icts, there are many PWDs in this country. Battambang Province, on the border with Thailand, was one of the strongholds of the former Khmer Rouge and has a lot of war victims. Therefore, many international NGOs and organizations have established facilities to support PWDs in this area since the middle of 1990s. Nearly 15 years on, those facilities have been handed over to the Cambodian authorities one by one.
“Therefore, the offi cials in the government in charge of the PWDs issue, really need skills to identify the problems by themselves and prepare proper action plans. We learned how to do that in the FASID program,” Mr. Kong Vutha, Deputy Director of Department of Social Affairs, Veterans and Youth Rehabilitation of Battambang Province, said. He participated in the FASID workshops twice.
One of the facilities handed over to the local authorities was the Spinal Cord Rehabilitation Center in Battambang. It was set up by Handicap International in 1993 and handed over in 2009. Another facility to be handed over is the Regional Physical Rehabilitation Center, in Battambang, which was opened by the International Committee of the Red Cross (ICRC) in 1991. The center has received more than 17,500 patients and produced more than 24,000 prostheses. According to the center, ICRC has handed over the management step by step starting in 2007.
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TheTh RRegional i l RRehabilitation h bilit ti CCenter t iin BBattambang tt b
”Through the FASID program, I learned the importance of public awareness. Though we have many PWDs, people still do not know much about them,” Mr. Vutha said. “Only medical treatment has been considered as support for PWDs. So people tend to think that PWDs always need to be taken care of and are even useless to society. We have to change that mindset.” After the FASID program, he went to the district offi ce to discuss the idea of setting up a billboard to raise awareness on the rights of PWDs. It was not successful because of lack of fi nancial resources, “but we will continue to fi nd ways to promote the rights of PWDs,” he said.
“In the last ten years, supporting PWDs had consisted mainly of charity. The government has just provided food or money. But in the last few years, their approach has changed,” Mr. Kong Vichetra, Executive Director of Komar Pikar Foundation, an NGO for handicapped children, said. He was one of the resource persons for the FASID program and spoke of his experience with disabled children in Phnom Penh. According to him, they, including government, NGOs and PWDs themselves, started to discuss independent living for PWDs. “It will take some time to change the concept from ‘charity’ to ‘PWDs’ rights, leading to independent living’, especially in rural areas, but I expect there will be a change,” he said.
It may be true that the levels of knowledge and experience of the participants in the FASID program were varied and some participants were not fully satisfi ed, but the workshops were held when the PWDs issue in this country was at a turning point.
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4.2 Lao PDR
(1) Removing Psychological Barriers “Mr. Pe Kenkeosisuphan 20, has been lying on his “wheel bed” for seven years now. He lives in Nayang Village, Phonehong District, Vientiane Province, which is located about 80km from the capital. He was injured seven years ago when a toy rocket exploded at the annual rocket festival. After the accident, he could not walk anymore and quitted school.
Mr. Kenkeosisuphan participated in the FASID program as an observer and the other participants came to visit his house to see the life of persons with disabilities (PWDs). “I wanted to know if there is anything I can do other than just staying at home. I wanted to know my abilities and the opportunities they presented,” he said. In his daily life, he can make bamboo chairs lying on a wheel bed and go to a small fi eld in front of his house to raise vegetables. But there is no vocational training center in the village and it is still impossible for him to gain the vocaltional skills he wants to learn.
“Lack of accessibility to opportunities is especially serious in rural areas,” Mr. Nhomsone Khammasy, Deputy Director of Ministry of Labor and Social Welfare in Vientiane Province, said. He participated in the FASID program. He is in charge of issues surrounding PWDs and other “marginalized people” in the province. According to him, there is only one national vocational training center for PWDS and four rehabilitation centers in Laos. It is quite diffi cult for PWDs who live in rural areas to get training at those centers.
In order to improve the life of rural PWDs, he has been engaged in programs supporting PWDs across the province, including establishing networking groups in some districts, providing wheel chairs and financial assistance mainly based on donations from foreign NGOs. “There are so many physical barriers for PWDs in our society. So, I thought my duty was to remove those barriers”, he said. “But after the FASID program, I learned that there are not only physical barriers, but also psychological barriers, within society. Before, I had never thought in that way.” By “psychological barriers,” he refers to both; barriers in the minds of the public and barriers in the mind of PWDs themselves. He now realizes that removing both physical and psychological barriers are equally important.
Mr. Kenkeosisuphan, on his wheel bed, is also struggling to overcome psychological barriers after he met many other PWDs at the workshop. He is now searching for a way to gain the skills required to repair electronic equipments and fi x computers. “I want to live by myself. I want to rely on myself. Knowing other PWDs in Laos and other country, I realized that I have possibilities,” he said. “After the FASID workshop, my son has changed a lot. He now speaks more and has a stronger will to be independent,” his
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mother smiled.
(2) Inspired by PWD Speakers On a Sunday afternoon, the small traditional massage shop in Vientiane is full of customers. More than ten people lie on mats receiving massages. Ms. Inpeang Vilayhong, a blind woman, works here every day after she fi nishes teaching at the National Rehabilitation Center. She is the fi rst blind student in Laos who went to a mainstream school. She talked of her experience to the participants of the FASID program, explaining how diffi cult it is for the blind to be educated and how many dreams they have to give up because of their disability. ”I still want to go to university but there is no school that the blind can go to. I am now teaching at the special school for the blind but the salary is not enough and I have to work here every day,” she said. “The massage clinic is the only place that we can fi nd a job,” she said.
After the FASID workshop, she was invited to a consultation meeting on the strategic plan on the education of PWDs. There were groups of both blind and deaf people. Around 30 people were asked to put forward their opinions of the draft decree. Not only that, she was also invited to other meetings by the government and asked for her perspective as a PWD. “It seems that those in charge of the PWD issue pay more attention to us and try to hear from us for policy making. I am pleased very much.”
The FASID program, including Ms. Vilayhong’s presentation, had another positive impact. Mr. Vilaphong Phommasy, a participant from the Ministry of Education, decided to study “inclusive education” for PWDs in a Japanese university as a result of the FASID program. He said that he was in the workshop because he belongs to the ASEAN division within the Ministry. “I have never attended this kind of workshop but as I listened to the presentations, I realized that PWDs have abilities and I wanted to know more about that,” he said. “I saw PWDs before but I have never talked with them. It was my fi rst chance to discuss the issues with them. I learned a lot from them.”
(3) Connection to the Business Society The main message from the participants in the FASID program was a need to create opportunities for education and employment for PWDs. Responding to this, the Ministry of Labour and Social Welfare held a workshop on promoting employment opportunities for PWDs on March 12, 2010. It was one of the action plans discussed in the FASID workshop and supported by FASID.
At fi rst, they planned to have three-day job fair for PWDs inviting over 100 business units. But “only a few companies showed interest in joining,” according to the ministry. “It might be too early to have job fair because it would be the fi rst one in this country,” they said. So, they changed the program to a workshop to raising awareness of PWDs’ rights in equal employment opportunities. A total of 80 participants joined the workshop, including 25 government agencies, 19 companies and 4 business associations. Mr. Nesan A/L
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Kandiah, a Malaysian businessman who is engaged in PWDs employment, and Ms. Nguyen Thi Lan Anh, a project coordinator of a Vietnamese NGO for PWDs, were invited to the workshop. They shared their experiences of promoting PWDs employment. The participants were especially impressed with the Malaysian expert’s experience.
There are still lots of things to do before they are able to hold the fi rst job fair for PWDs. They have to raise the funds, and they need more information about PWDs and employers for job placement. But the workshop held in March connected PWDs and the business society in this country for the fi rst time. In fact, the Lao Women’s Business Association showed their willingness to accept PWDs into the job placement system within their organization.
Mr. Pe Kenkeosisuphan on his wheel bed and his mother beside
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4.3 Myanmar
(1) United for the “Unity” On April 17, fi fteen persons with intellectual disabilities formed the self-help group “Unity” in Yangon, Myanmar. This is the fi rst self-help group for persons with intellectual disabilities in Myanmar. The youngest member is 18 years old and the oldest 32 years old. Although they are already adults, lack of education and vocational training means that they do not have an opportunity to live independently. The leader of the group is Mr. Min Swe Htet, 19. “We would like to have various kinds of activities, including fi eld trips to pagodas all over the country and fund raising, as well as vocational training for ourselves,” he said proudly.
The members of the Unity with their parents in Yangon
“We were inspired by the Malaysian group for children with intellectual disabilities,” Ms. Yi Mar Tin, who supports Unity, said. As the principal of the country’s only school for disabled children under the Department of Social Welfare, she strongly recognized the need for the social inclusion of persons with disabilities. But she was not sure how to do it. When she participated in the FASID workshops, she learned that one of the ways to realize social inclusion was setting up a self-help group. There has been a group for parents of children with intellectual disabilities, but no group for persons with intellectual disabilities themselves.
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Mr. Myint Swe, the father of Mr. Min Swe Htet, also joined in at a FASID workshop as an observer. “I was so pleased to see that the government offi cers listened to our stories. We talked with them about how we raise our children with disabilities. They had not known the reality of persons with disabilities (PWDs),” he said. In addition, he learned for the fi rst time that there were international organizations for supporting persons with intellectual disabilities in the workplace. “When my son was small, people around us did not want to play with him or talk to him because he was intellectually disabled. But what is important is not to keep him out of sight for protection. As his parent, I want to show his ability to others. I want to let him go outside more,” he said. Mr. Min Swe Htet said that he wanted to be a professional singer in the future. His father smiled and said “I will let him try. I also want him to try to be a fashion model!”
(2) First Training for the Government Offi cials The government of Myanmar has a policy of inclusive education. Based on this policy, all children with disabilities are supposed to go to mainstream schools throughout the country. But the reality is different. “Some schools do not accept children with disabilities and we often have to persuade them to accept those children,” one of the members of the Disabled People’s Development Organization (DPDO) said. DPDO is a local NGO run by persons with disabilities themselves. It was established in 2003. Participants of the FASID workshops visited Mr. Zin Minh Htet, chairman of the DPDO, in order to gain a better understanding of PWDs.
“In this country, PWDs are believed to have done something very bad in their previous life,” Mr. Zin Minh Htet said. He started this group with only 6 people. Now the group has 216 members and is conducting community based rehabilitation for PWDs with funds from international organizations. They have just opened a barber shop in down- town Yangon for income generation and to raising awareness of PWDs. “We, PWDs, are also part of society. We have the same values as others. I am very pleased to be able to tell this to the government offi cials because the FASID workshop was the fi rst of this kind of training for the government offi cials,” he said.
“There are lots of things we have to do in terms of changing society, but at least, the government offi cials who participated in the FASID workshops now realize that the issue of PWDs also rests with them,” Mr. Nay Lin Soe, who is a PWD project manager of DPDO and one of the speakers at the FASID workshop, said. When he was 6 years old, he was told by his teacher at primary school, “You don’t have to come to study because anyway you cannot work in the future” and “you bother other students.” “We hope to raise more awareness in society including public officers, especially teachers.”
101 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
(3) The Issue Belongs to Everyone Around 30 government offi cials from the Department of Social Welfare from all over the country gathered Yangon. “How many people in this room wear orange clothe?” A deaf teacher asked them with sign language. “There is only one.” The offi cers answered with sign language that they had just learned. It was part of a seminar aimed at the offi cers to raise awareness and acceptance of sign language, supported by Japan International Cooperation Agency (JICA). They are in charge of awareness- raising campaigns for sign language in each province.
“I could clearly explain to them what a disability is, and how we should face the issue because I learned a lot in FASID workshops,” Ms. Yu Yu Swe, one of the active participants and the organizer of the seminar, said. She also said that the FASID work- shops were also useful for making new networks with other departments. “We have never had this kind of workshop with offi cials from other departments. After the work- shop, we can contact each other with more familiarity,” she said.
Mr. Tha Uke, managing director of the Eden Center for Disabled Children, a local NGO, also considers that having offi cials from various departments at the seminar was one of the achievements of the FASID workshops. He was a local consultant for the FASID workshops. “We will not able to see the changes immediately, but I observed that many offi cials gained knowledge about disabilities and more importantly, they realized that the PWDs issues were not only for the Department of Social Welfares, but belong to everyone,” he said.
MembersMembers of DPDO.DPDO Mr.Mr ZZinin MMinhinh HtHtetet iiss in tthehe ccenterenter of tthehe ffrontront llineine
102 Chapter 4 - Impact of the Project
4.4 Vietnam
(1) Self-Help Club On January 30, 2010, around 40 women gathered in a hall in Vinh Bao district, Hai Phong city, Vietnam. The district is about 4 hours from Hanoi. Hai Phong is a big city, but the district is a poor area and many persons with disabilities (PWDs) do not have the opportunity to participate in social activities. Among the participants, 40 were women with disabilities (WWD) and 40 were members of the Women’s Union. They were there to start up a “self-help club” in the district. It was the last day of a three-day capacity building seminar funded by FASID. The project was one of the outcomes of the second training workshop supported by the Japan-ASEAN Integration Fund project.
A workshop k h held h ld by b Women’s W ’ Union U i in i Vinh Vi h Bao B district. di t i t They Th invited i it d PWDs PWD as resource persons
One of the sessions on that day focused on “the right to be happy” for WWDs. The facilitators were WWDs themselves. At the end of the session, a WWD seated in the corner of the room started to speak with a very soft voice. “Many people advised me not to have a baby when I was pregnant,” a 42-year-old single mother from a poor family said. The baby’s father did not have any intention of marrying her. She had almost given up but her 90-year-old father encouraged her. “Do not listen to the others. I will take care of your daughter.” Her father did not eat for a few weeks to show his will to support her. As she spoke, she started crying. Before he passed away four years ago, he told her “I gave confi dence and courage to you. Next, you should pass them to your daughter.” It was her fi rst time participating in such a seminar. “I have never spoken to others about my life. But when I attended the seminar and learned about the
103 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
rights of PWDs, I wanted to tell everyone how my father had given me confi dence and how much I am proud of him,” she said.
“I observed a big change,” Ms. Phan Quynh Nhu, a member of Women’s Union and a participant of the FASID program, said after the seminar in Vinh Bao district. She was one of the organizers of this seminar. “At fi rst, those women were lacking confi dence and very quiet. But on the last day, they started to speak up!”
Ms. Nhu herself had not had the chance to work with PWDs before. She is a specialist at the Department of Family and Society but the issues of PWDs were not mainstreamed in the organization. They did not have the chance to fi nd out about the reality of PWDs. But after participation in the FASID program, Ms. Nhu said that she realized that there were many PWDs who needed support and many things that she could do with PWDs. A WWD talked her story with tears in “I learned that once they know their rights and gain self- the workshop confi dence, they can be independent and happy,” she said.
(2) Change of Approach Many of the participants in the FASID program shared the same outcome from the workshops: a change of approach to PWDs. “Before, we considered the issue of PWDs as a humanitarian issue or one of charity, but after the workshops, I realized that it is an issue of human rights,” Mr. Nguyen Ngoc Toan, Chief of Social Policies Division, Social Protection Bureau of Ministry of Labor, Invalids and Social Affairs, said. Another participant, Ms. Thai Thi Thanh Nga, specialist at the Department for Social Affairs in the National Assembly Offi ce, also said that the FASID workshop changed her approach to PWDs. “When I thought about policy for PWDs, I was thinking about how to provide fi nancial or material support. But the workshop gave me the idea of creating a system aiming for independent living, instead of just giving money,” she said.
Such a change of approach to PWDs may seem to be a small step. But in Vietnamese society, equal rights and independent living for PWDs are still new ideas. “Especially in the provinces, PWDs are sometimes considered as animals,” one of the participants said. Therefore, inviting PWDs as advisers for offi cial programs, which they did in the FASID program, was an eye-opening experience for many of the Vietnamese offi cials.
“But it is still diffi cult to share the idea with my colleagues because I am just one offi cial. My infl uence over the offi ce is still very limited,” one of the offi cials who participated said. What she said was a common reaction amongst participants. “I think that the
104 Chapter 4 - Impact of the Project
leaders of the government have to understand fi rst,” another participant said.
In fact, it was diffi cult to invite high-ranking offi cials to workshops or training seminars in this country. They consider that they do not need any “training” because they are already in high positions. The highest position amongst the participants of the FASID workshops was a chief of department and most of the participants were young. Though it was meaningful to change the attitude of those young offi cials toward PWDs through the workshops in a long term, lack of senior participants who have infl uential power in the government might spoil any chance of immediate effect for the program. “The people who need training are the high-ranking offi cers rather than young offi cials, because they never meet PWDs and don’t know about PWD’s lives,” one PWD who participated in the FASID program said.
(3) Disability Law Although the immediate impact on policy making could be limited, the two FASID workshops may have a long term impact on the Vietnamese policy towards PWDs. The workshops coincided with government talks on the fi rst disability law in this country would have implemented. According to Mr. Nguyen Xuan Lap, Deputy Director of NCCD in Social Protection Bureau of Ministry of Labor, Invalids and Social Affairs, this has now been submitted to the National Assembly.
Mr. Lap is the focal point offi cer of this project. He also admitted that many participants in the workshops changed their approach to PWDs. He said that in the course of discussions over the law, his ministry invited PWDs to give their opinions. Through the workshop, he reaffi rmed the importance and necessity of getting them involved in policy making. “They are not only getting support based on the idea of charity, but they have rights,” he said.
One of the issues discussed over the draft of the disability law is employment policy in terms of PWDs. The draft law requires companies to employ PWDs at a ratio of 2% of all employees. This idea is based on supporting the independent living of PWDs, but many companies oppose this regulation and have requested a revision. In Vietnam, it is said that only 58% of PWDs are able to get jobs and only 2.4% of PWDs have ever received vocational trainings.
During the FASID workshop, Mr. Nguyen Van Hai, a blind man, said “We need jobs rather than money.” He was invited to the workshop as a speaker. He does not have a stable job now, but before he was a guitar player and Mr. Nyuyen Van Hai and his wife taught music at his house. But after new music schools
105 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
opened in town, he lost his job and held more than ten jobs in the period following. “In the workshop, I told my story because I really wanted the offi cials to know the reality of PWDs and what we need now,” he said.
His story clearly shows why the new disability law needs employment policy aimed at independent living. “The gap between existing policy and the reality of PWDs was the most impressive part of the workshop,” one of the participants said. Although the work- shops may not have a direct impact on the new law, they sowed seeds in the hearts of the young offi cials who will implement the law. (Report by Aya Kimura / Journalist)
106 5 Summary and Lessons Learned from the Project Experience Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
5.1 Summary from Each Country
The overview of the Project between July 2007 and June 2010 is described in former chapters.
Chapter 2 describes “the Social Model of Disability” in detail. It describes the concept of the Twin-Track Approach, introduced by the Project as a practical method to bring the social model into action, mainstream persons with disabilities, and transition from charity-based to rights-based approach.
As shown in Chapter 3, a total of 92 government offi cers attended the fi rst, and 100 the second, in-country workshops. In Lao PDR and Vietnam, the action plans formulated during the in-country workshops were put into practice (see the next section). As to the results of the Project, each country gave a summary as follows in the Wrap-Up Seminar held in March 2010.
[Cambodia] (The Project) raised the awareness of offi cers in the central and provincial governments; they understood disability as a rights-based issue instead of a charity-based issue. The Project experience contributed to the formulation of the law on the Protection and Promotion of the Rights of Persons with Disability.
[Lao PDR] Through the workshop’s follow up activity on promoting employment of PWDs, the participants found that many business associations were interested in PWD employment. Also, more activities are expected in the future, such as job fairs, bazaars and campaigns for the rights of PWDs in employment, as well as education and training to promote employment for PWDs.
[Myanmar] Government offi cers from line Ministries such as the Ministry of Health, Ministry of Education and the Ministry of Foreign Affairs learned about disability issues through the Project. They learned new fi ndings on disability issues such as the Twin-Track Approach.
[Vietnam] After the follow-up activity on “Raising awareness and capacity for women with disabilities (WWDs) and offi cers of Vietnam Women’s Union on equality of PWDs,” the members of Vietnam Women’s Union evaluated their achievements and disadvantages. The activity was strongly supported by local authorities and mass organizations. Women’s Union offi cers, WWDs and the local people actively participated in the activity. With these supports and their active participation, the
108 Chapter 5 - Summary and Lessons Learned from the Project Experience
benefi ciaries (WWDs) had improved self-esteem after the training course and group activities. They found themselves more confi dent, encouraged and cheerful than before. There were also some challenges in the implementation process, such as the limited awareness of local authorities and local Women’s Union on the rights of PWDs, the WWDs’ hesitation to integrate themselves into the community and the lack of knowledge and skills of local Women’s Union offi cers.
5.2 Learning from the Action Plan Implementations
Lao PDR and Vietnam put the in-country workshops’ action plans into practice. The concept of the workshops, i.e.) involving persons with disabilities in the planning and implementation stages of the project, was put into action— a notable achievement. For the government offi cers from Lao PDR and Vietnam it was the fi rst such attempt to organize a project with persons with disabilities, evidently a learning experience for both parties.
As shown in Ms. Inpeng Vilayhong’s interview in the previous chapter, “listening to persons with disabilities” has started to gain ground in Lao PDR’s policymaking processes since the workshop. Unarguably this is an example of the workshop experience put into action, something of a credit.
Of all of the action plans formulated during the workshop, Lao PDR’s action plan—a job fair for persons with disabilities—was the most desired by the resource persons with disabilities. Its implementation involved close correspondence with disability organizations. However, the initial plan of a 3-day job fair had to be changed to a one- day workshop, because Lao’s Ministry of Labor and Social Affairs had not adequately briefed stakeholders (including private sectors), and this resulted in little cooperation from the private sectors. This experience has taught the participants the need to share adequate information and communicate thoroughly with parties involved.
Disability policies can only be implemented by cross-ministry efforts, not a single- handed attempt solely by directly responsible parties such as the Ministry of Social Affairs. As mentioned, it is of foremost importance to utilize the voice of persons with disabilities in a project’s planning stage, and then communicate the details of the plan thoroughly with related parties; the leadership of directly responsible ministries and smooth coordination with related parties are absolutely essential for a successful implementation.
Collaboration by private sectors was essential for Lao PDR’s job fair. Likewise, coordination with NCCD and MOLISA, and approval by the local government of the Hai Phong city, were essential for the implementation of Vietnam Women’s Union’s action plan.
109 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
Approval and understanding by related parties are pivotal for Mainstreaming Persons with Disabilities, a new concept described in Chapter 2. Further leadership and coordination by Focal Point Ministry is expected in each country.
The workshop had a marked achievement if it was a trigger for a cross-ministry network, as seen in the comment by Ms. Yu Yu Swe from Myanmar.
5.3 Nothing About Us Without Us – the Importance of Mainstreaming Persons with Disabilities
The Project has consistently put a strong emphasis on the importance of mainstreaming persons with disabilities. As shown in Section 4, Chapter 2, persons with disabilities are the best experts of disability issues.
The mainstreaming was put into practice by actions including: 1) involving persons with disabilities offi cially as advisors for the project in Japan and abroad, 2) inviting local persons with disabilities to the workshops as resource persons and involving them in discussions, and 3) having persons with disabilities introduce their experiences and daily living, through home visits and presentations.
As mentioned in the previous chapter, the effect of this workshop is evident in Vietnam. The participants commented on the change of their perspective, saying that their thinking shifted from the charity-based approach to the rights-based approach when formulating disability policies. This transition of awareness was the very objective of the Project; it has a lot to do with persons with disabilities being actively involved in the planning and implementation of the Project, and with the fact that as advisors and resource persons, they had opportunities to interact directly with the participants.
Ms. Phan Quynh Nhu, organizer of Vietnam’s action plan implementation, commented: “I learned that once they (persons with disabilities) knew their rights and gain self- confi dence, they were able to be independent and happy”—empowerment of persons with disabilities is the key for disability policies. The action plan by Vietnam’s Women’s Union involved empowerment of women with disabilities and awareness activities for their local communities—a plan that utilized the Twin-Track Approach, a result of the learning and experience from the two workshops.
In the fi rst in-country workshop in Lao PDR, the presentation by a resource person from Thailand about the management of independent living centers left a strong impression on the audience. The cooperation of NGOs and organizations by persons with disabilities was absolutely essential for the implementation of the two workshops in the CLMV countries, the third-country workshop and the Wrap-Up Seminar. The
110 Chapter 5 - Summary and Lessons Learned from the Project Experience
feedback from the organizations by persons with disabilities was especially useful for the short-term workshops.
5.4 Proposals
Given the experience of the two workshops in the CLMV countries, it is proposed that future disability programs and projects involve collaboration with persons with disabilities from the planning stage.
If for example the CLMV countries undertake training programs “what is disability?” for government offi cers, similar to the Project, efforts to involve persons with disabilities as resource persons and lecturers should concurrently take place. This involves, as well as actual training programs for persons with disabilities to work as resources persons and lecturers, activities to empower persons with disabilities and their organizations, such as reinforcement of self-advocacy and leadership training. There should also be a system where persons with disabilities can be offi cially involved in the planning, implementation and evaluation stage of the project—for example, appointing them as members of the project organization committee.
Given the Project experience, it is stated in Section 2 that listening to the true voice of persons with disabilities was the fi rst step of involving them in policymaking and enforcement processes. It is also stated that for the realization of the new concept --mainstreaming of persons with disabilities--, understanding of related parties is essential, as well as leaderships and coordination abilities of line ministries. It is stated in Section 3 that the input by the resource persons with disabilities was a driving force in shifting the participants’ perspectives.
As mentioned in the previous chapter, a self-help group of persons with intellectual disabilities was established in Myanmar. Part of the credit goes to the synergistic effect of the introduction of United Voice’s self advocacy in Malaysia and the Asia- Pacifi c Development Center on Disability (APCD) training.
The Project’s secondary infl uence includes: the reinforcement of organizations by persons with disabilities and the establishment of an organization by persons with intellectual disabilities, in Myanmar; and the establishment of a self-help group of women with disabilities in the Vinh Bao District, Vietnam, which was a result of the action plan by Vietnam Women’s Union.
The fi rst step of mainstreaming persons with disabilities would be collaboration of persons with disabilities and government offi cers on a project, e.g) the case of Self Help Club in the Vinh Bao District, Vietnam by Women’s Union as a part of their action plan activities; or, the preparation process for the pilot project in Myanmar.
111 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
In the Wrap-Up Seminar, the participants addressed a need to continue the Project, notably capacity development for government offi cers, persons with disabilities, their organizations, DPOs and NGOs. Human resource and capacity development requires a long-term commitment and perspective. The offi cers who attended the workshops were still young and few, but it is hoped that the change in their awareness will be eventually utilized in disability related policies of each country.
112 Appendix Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
A-1. [First Training] List of the Participants (Cambodia) Japan-ASEAN Project Capacity Development in Disability and Development for CLMV Government Offi cers (13-16 October, 2008)
No Name English Sex Position Section/Department 1 Kong Somoeurn M Deputy PoSVY Banteay Mean Chey 2 Ek Pisey M Director PoSVY Kampong Cham 3 Cho Vanna M Director PoSVY Kampong Chnang 4 Uy Lang M Deputy PoSVY Kampong Speu 5 Kour Lyhout M Head of Reh. PoSVY Kampong Thom 6 Tep Chhem M Head of Dept PoSVY Kampot 7 Pok Pich M Deputy PoSVY Kandal 8 Ul Phirun F Deputy PoSVY Kep 9 Kong Reoung M Deputy PoSVY Koh Kong 10 Srey Tith M Director PoSVY Kratie 11 Deab Sunty M Deputy PoSVY Mondol Kiri 12 Sok Honn M Deputy PoSVY Oudor Meanchey 13 Ith Pen M Deputy PoSVY Pailin 14 Khin Trin M Deputy MoSVY Phnom Penh 15 Kho Huoth M Deputy MoSVY Phnom Penh 16 Yim Chansrey F Dir Child Edu Min Edu. 17 Lu ChanRithy M Deputy MoSVY Phnom Penh 18 Sok Salan F Deputy MoSVY Phnom Penh 19 Ouch Ornath F CBR admin MoSVY Dep. Reh PP 20 Teng Soth M Deputy MoSVY Ratanakiri 21 Ros Sipha M Deputy MoSVY Preas Vihea 22 Mao Sokhom M Deputy PoSVY Posat 23 Mong Sophal M Deputy PoSVY Prey Veng 24 Sok Serey M Director PoSVY Shihaknuk Ville 25 Nguon Rattana M Deputy PoSVY Siem Reap 26 Suth Vanna M Head of Dept PoSVY Stung Treng 27 Va Saren M Director PoSVY Svey Reang 28 Kong Vutha M Deputy PoSVY Battam Bang 29 Sen Sokea M Director PoSVY Takeo Province
114 Appendix
ASEAN Department (Ministry of Foreign Affairs) Affairs) ASEAN Department (Ministry of Foreign Department of Labour Management ASEAN-SEMEO Division (Ministry of Education) Department Capital of Labour and Social Welfare Vientiane Department Province of Labour and Social Welfare Vientiane Department Transport Capital of Public works and Vientiane Capital of Justice Department Vientiane Department of Pension, invalid and People with Disability Department (Ministry) Department of Pension, invalid and People with Disability Department of Pension, invalid and People with Disability Department of Pension, invalid and People with Disability Division of International Cooperation Department of Social Welfare Department of Social Security Department of Skill Development and Employment Vientiane Capital of interior ( Ministry Interior ) Vientiane Department of Pension, invalid and People with Disability Department of Personnel Department of Inspector Vientiane Capital of Health Department (Ministry Health) Vientiane cer Head of Division Senior Of fi Technical Technical Technical Head of Section Director Technical Position Deputy director of department Head of division Department of Pension, invalid and People with Disability Technical Technical Technical Technical Deputy head of division Technical Technical Technical Deputy Section Technical Technical A-2. [First Training] List of the Participants (Lao PRD) A-2. [First Training] Training on capacity development in disability and Training August 2008, At Napakuang Resort, Thalath district,Vientiane Province, Lao PDR Thalath district,Vientiane At Napakuang Resort, August 2008, 26-29 1 Phetsamone PHENGSAVANH Mr. 2 Bounneuang SIDAVONG Mr. 3 Ms. Souphatda DUANGMANY 4 Soulyvong LANORSAVANH Mr. 5 Mrs. Chanthasone PHOMMAVONGSY6 Saykeo CHORCHALERNPHON Mr. 7 CHANTHAVONG Vannaleth Mr. 8 Technical Ms. Khankham SENGPATHUMMA 9 KEOBOUTHANTH Ms. Vilaykhone 11 Phengsy Xayaphet Mr. 13 PHOMMASY Vilayphong Mr. 14THIRASAK Pany Mr. 15 Nhomsone KHAMMASY Mr. 16 Mrs. Phonekeo SAKDAVONG 10 Chandy CHANTHAVONG Mr. 12 Ms. Bouavanh PANYAVONG 17 Sengphachan PHIENPHOMMALINE Dr. 18 Soudachanh SOUVANNASANE Mr. 19 Khammouath SOMCHITVONGSA Mr. 20 Technical Chantamith INTAVONG Mr. 21 Bounphamith SOMVICHIT Mr. Technical No Name
115 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers” Ministry Education Education Education Education Education Education Labour Labour Social Welfare, Relief and Resettlement Social Welfare, Relief and Resettlement Social Welfare, Education Social Welfare, Relief and Resettlement Social Welfare, Relief and Resettlement Social Welfare, Social Welfare, Relief and Resettlement Social Welfare, Relief and Resettlement Social Welfare, Social Welfare, Relief and Resettlement Social Welfare, Department Basid Education No.2 Basid Education No.2 Basid Education No.3 Dept; of Labour Dept; of Labour High School No.5(KMD) General Administration Dept;General Administration Dept;General Homeaffairs Homeaffairs Dept; of Social Welfare Dept; of Social Welfare Dept; of Social Welfare Boy Training School( KW)Training Boy Relief and Resettlement Social Welfare, School for the Blind (KMD)School for the Blind (SG) Relief and Resettlement Social Welfare, Relief and Resettlement Social Welfare, School for the Disabled Child Relief and Resettlement Social Welfare, Boy Training School( KW)Training Boy Relief and Resettlement Social Welfare, A-3. [First Training] List of the Participants (Myanmar) A-3. [First Training] cer cer cer cer cer cer cer cer cer cer cer fi Position Assistant director Basid Education No.3 Assistant director Dept; of Social Welfare Staff Of fi Staff Principal 1Thein Myint Daw Khin 2 Deputy DirectorYi Daw Nyunt 3 Ohn Tin Daw Tin Assistant director Basid Education No.1 Staff Of fi Basid Education No.1 4 Daw San Nu Of fi Staff 5 U Sein Win 6 Daw Kyu Shwe Of fi Staff 7 Daw Than Yi8Aye Daw Sandar Head Mistress Of fi Staff 9Aung Ko Oo U Of Staff 11 Daw Nilar Nyunt Of fi Staff 19 Daw Khin Pyone20 SweYu Assistant directorYu Daw 21 Daw Nandar New Han Of fi Staff Dept; of Social Welfare Assistant director Dept; of Social Welfare 12 Daw Moe Win13 Myinr KyiAye Daw 14 Assistant Consultant MarAye Aye Daw 15 Assistant ConsultantThein Daw New Ni National Rehab; Hostipital16Aung Assistant Consultant U Zaw Myo National Rehab; Hostipital17 PhysiotherapistAung Kyaw Moe U National Rehab; Hostipital Health Assistant Director Deputy Director Health National Rehab; Hostipital Health Affairs Dept; of Development Dept; of Social Welfare Affairs Area and National Races Development Health Progress of Border 10 Min MyatYe U Of fi Staff 18Tun Thar U 22AyeThuzar Daw Khin Of fi Staff 23 U Ki Ling 30Tin Mar Yi Daw Principal 24 U Sali David Phai25Thandar Htwe Daw 26 U Lwin Oo Assistant Lecturer27 Assistant Lecturer Daw Maw Oo 28 U Kyaw Linn Htin SchoolTraining 29 Social Welfare Principal SchoolTraining Social Welfare Daw Mya Marlar Soe Relief and Resettlement Social Welfare, Relief and Resettlement Social Welfare, Of fi Staff Principal No. Name
116 Appendix ce fi ce MOLISA Ministry of Culture, Sports and Tourism Ministry of Construction Affairs Ministry of Home Ministry of Information and Com- munication MOLISA MOLISA MOLISA General Statistic Of fi Ministry of Health MOLISA Ministry of Culture, Sports and Tourism National Assembly Of National
ce Section/Department Ministry cer of Information and communi- NCCD of fi Teaching Committee, Vocational Committee, Vocational Teaching Bureau General Training Civil Sports Department Department Technology Science and Transport Ministry of Technology Construction Science, and Environment Department Family and Society CommitteeNon-governmental organization Department Union Women's Vietnam Of fi cation technology (ICT) application Bureau Social policies division, protec- tion Bureau Social policy division, protec- tion Bureau Environmental and social statistic Department Health checking and treatment man- agement Bureau "Planning - Administrative Division, "Planning - Child Protection and Care Bureau" Department Social affair Human Resource Department, Na- tional Administration of Tourism cer cer fi Position cer cer Legislation Department Employment Bureau MOLISA MOLISA cer cer cer cer cer cer cer cer cer cer cer fi fi fi fi fi fi fi fi fi fi iet Nam, 05 - 08 August 2008 iet Nam, 05 - 08 Ha Noi, V FemaleMale Of Senior Of fi MaleMale Chief of division chief of division Vice Male Of FemaleFemale Of Of fi Male Of Female Senior Of Male Of Male Of A-4. [First Training] List of the Participants (Vietnam) A-4. [First Training] Training on Capacity Development in Disability and Development, 2008 Training Name Gender Ministry / Organizations TOI VAN HIEN THI THU Female Of QUANG VAN ANHTHU LAN THI HANG THUY NGA THI THANH Female Of fi Family name First name Middle name(s) 1 PHAN2 TRAN3 BUI MINH HANH THANH HONG Female Of 4 LE 5 NGUYEN6 CHAU7 HANG BUI 8 THI THU MA HA9 PHAM THINH Female THI THU VAN Of Female Of 11 NGUYEN HIEU CONG 10 NGUYEN TOAN12 VU 13 NGOC NGUYEN NGA THI VIET Female Of fi 14 DO 16 TRAN17 PHAM NGHI CHUC NGOC CONG 15 THAI No.
117 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
B-1. [First Training] Evaluation by Participants (Cambodia)
2. Duration of training course (3.5 days) (79%) Appropriate ( ) Too long (21%) Too short →How many days are appropriate? 1 week (3 persons), and 4 weeks (1 person)
4. Training lecturer/workshop 4-1. World Trend on Disability (by Mr. Kenji Kuno)/ 13 Oct 08 (58%) Well understood (42%) Fairly understood ( ) Hardly understood 4-2. Field Work (Home Visit)/ 13 Oct 08 (88%) Well understood (9%) Fairly understood (3%) Hardly understood 4-3. Twin Track Approach (by Mr. Kenji Kuno)/ 14 Oct 08 (30%) Well understood (64%) Fairly understood (6%) Hardly understood 4-4. Law Related to Social Changes (by Mr. Ham Hak, DAC) 15 Oct 08 (15%) Well understood (76%) Fairly understood (9%) Hardly understood 4-5. Situation Analysis (by Mr. Ngin Saorath, DAC)/ 15 Oct 08 (27%) Well understood (70%) Fairly understood (3%) Hardly understood 4-6. Consensus Workshop (by Mr. Kenji Kuno)/ 15 Oct 08 (38%) Well understood (62%) Fairly understood ( ) Hardly understood
5. What did you learn from the training course? Know clearly about disability, what is condition, what is problem, what is the need of PWDs. They want to live independently, give them opportunity and ability. Push, encourage and fi nd out what is a problem, solve problem using B&B, E&E, TTA methods (Law protect & promote the Rights of PWDs). Know clearly about TTA, fi nd out what is the obstacle in order to analyze and solve disability and development. Individual model and social model, video analysis, have new friends from each province, meet good teacher, advocacy, individual willing and social willing, UN
118 Appendix
Convention on the Rights of PWDs, problem analysis and making plan, acknowledge about disability E&E, showing about the process of preparing law, law related to the chang- ing society. Know the situation of PWDs through the fi eld visit and teaching method.
6. What did you like the most? Twin-Track Approach, the way of analysis PWDs situation, process of doing plan, the way of preparing and doing in advance to help PWDs, the draft of law to protect & promote the rights of PWDs, method of Dr. Kuno, which compromise participants to do action and speak out idea, easy to remember and fast acceptance. Good training place, good participated from the compromiser. Inclusive approach make easy to analysis related to the solving. Be able to take information, reason, and explanation about the disability to the PoSVY staffs who will know clearly about the disability issue in Cambodia. It will show the main issue which will be the strategic base to implement about disability heat to the point. To show how the collaboration between PWDs and community is. Important meaning about the disability, solving method is the mirror to show the way and basic method to solve reality problem Implement in the community, real information service for analyzer and implementer. Methodology is taken to do program plan in order to help PWDs in individual and society development. I like good trainer and good interpreter. I like short training so it will not bored the participant. I like every lecture.
7. What did you least like? Because there is not a big deal, it’s just respected the internal regulation. If you go to the toilet, no need to ask permission from the workshop controller. Do not understand the question, many participants are chatting. It’s so noisy, and it affects to the study, diffi cult to catch up the lesson. Deeply respect the internal regulation. Showing the law to protect & promote the rights of PWDs and enforcing to implement, do not understand clearly because the lecture is fast. Playing game, participants are high level, most of them are old age, playing game so often are useless time. The Video’s sounds in English not in Khmer, it’s just have sub-title in Khmer and it’s run fast, diffi cult to analyze the story. I am not happy with controlling the time for going out to toilet. Playing game is useless time because game is not related to the course, and participants are tired. The trainer raise only problem and strategic however he does not raise the solution, it’s meaningful but no solution.
8. What can be done make the training better? Explains clearly and fi x to the time. Orientations should not raise only issue but fi nding solution, strategic and request. Should provide more exercises to the group discussion. In the course should has more picture such as blind, polio…There should have participant who has rehabilitation center give more experiences in management but not just result. There should have long time. Participant who have rehabilitation center should have broadcasting strategy and continue raising awareness in community but asking support from the NGOs such as material and fund. Request for certifi cate
119 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
for this course. Participants should be selected from the movement sector, NGO sector and community people. This type of training should invite one person from each ministry to participate and the course should be paralleled to the ministry which is now doing on disability. Video analysis should translate into Khmer sound instead of sub title because it’s diffi cult to catch up the story and diffi cult to analyze. Requesting more document related to the lecture and reach to the goal. Make more plans for fi eld visit. Need more training course. There should be coordinator make a brief conclusion. After training course, they much put in practice. Training should explain slowly and clearly with giving example.
B-2. [First Training] Evaluation by Participants (Lao PDR)
According to the tabulation of evaluation responses, the overall value of the work- shop for the participants was gratifying. Generally speaking, the comments were very positive. The following are results of the evaluation on assessments of content, documentation, facilitation and expectations:
1. Time management A majority of participants assessed that time have been well managing. About 25% of participants said that time management can be better though they did not provide comments how to make it better.
Time managment
Can be Better Not Good 0% 25% Good Fair Fair Can be Better 10% Good Not Good 65%
2. Duration of training Two third of participants said that duration of training (3, 5 days) are appropriated, other 25% said that it is too short, with some suggestion for ideal duration which vary from 4 – 5 days
120 Appendix
Duration of training
Too Short 25% Appropriate Too Long Too Short Too Long Appropriate 5% 70%
3. Expectation of the training The numbers of participants who are very satisfi ed and satisfi ed with the training are equal (9-9). The reasons why they pleased with the trainings are better understand of PWD situation, lesson from the workshops are useful and be able to exchange ideas with other participants. Two participants satisfi ed with only some section; they mentioned that lunch break should be longer and some of presentation still not related to each other.
Expectation of Training
99 9 8 7 6 5 4 Very Satisfied 3 Satisfied 2 2 Satisfied with some section and some not 1 0 Not Satisfied 0
4. Training lecturer/workshop Generally participants are able to understand content of each section of the training. The range of understanding is fairly to well understand with almost similar rate. Field visit has a highest score of understanding (95% of participants answered well understand and 5% answered fairly understand). There are two areas where participants still hardly understand the contents namely twin-track approach and situation analysis; though this rate is still comparative low (see table 4.3 and 4.6)
121 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
4-1. World Trend on Disability, Decree on Disability in Lao PDR / Aug. 26
World trend on disability/Decree on Disability in Lao P
0%
45% Well Understand Fairly Understand 55% Hardly Understand
4-2. Field Work / Aug. 26
Field Work
5% 0%
Well Understand Fairly Understand Hardly Understand
95%
4-3. Twin Track Approach (by Ms. Emi Aizawa) / Aug. 27
Twin-Track approach
5%
45% Well Understand Fairly Understand 50% Hardly Understand
122 Appendix
4-4. Activities of/for people with disabilities/ Aug. 27
Activities of/for PW
0% 35%
Well Understand Fairly Understand 65% Hardly Understand
4-5. SWOT Analysis/ Aug. 27
SWOT Analysis
0% 35%
Well Understand Fairly Understand 65% Hardly Understand
4-6. Situation Analysis/ Aug. 28
Situation Analysis
5%
Well Understand 50% Fairly Understand 45% Hardly Understand
123 Completion Report “Capacity Development in Disability and Development for CLMV Governmert offi cers”
In addition to evaluation questions which rated participants’ assessments of logistic and training program, participants were invited to answer four open-ended questions. Their responses were as follows: