DOCSLIB.ORG

Thesis Draft Final.Pdf

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Thesis Draft Final.Pdf CHARACTERIZING PLAY SKILLS AND IDENTIFYING THEIR ASSOCIATION WITH EXPRESSIVE AND RECEPTIVE LANGUAGE SKILLS IN YOUNG BOYS WITH FRAGILE X SYNDROME A Thesis Presented to the faculty of the Department of Speech Pathology and Audiology California State University, Sacramento Submitted in partial satisfaction of the requirements for the degree of MASTER OF SCIENCE in Speech Pathology and Audiology by Alex Stewart FALL 2013 CHARACTERIZING PLAY SKILLS AND IDENTIFYING THEIR ASSOCIATION WITH EXPRESSIVE AND RECEPTIVE LANGUAGE SKILLS IN YOUNG BOYS WITH FRAGILE X SYNDROME A Thesis by Alex Stewart Approved by: __________________________________, Committee Chair Robert A. Pieretti, Ph.D. __________________________________, Second Reader Ann Blanton, Ph.D. ____________________________ Date ii Student: Alex Stewart I certify that this student has met the requirements for format contained in the University format manual, and that this thesis is suitable for shelving in the Library and credit is to be awarded for the thesis. _______________________________ ___________________ Ann Blanton, Ph.D. Date Department of Speech Pathology and Audiology iii Abstract of CHARACTERIZING PLAY SKILLS AND IDENTIFYING THEIR ASSOCIATION WITH EXPRESSIVE AND RECEPTIVE LANGUAGE SKILLS IN YOUNG BOYS WITH FRAGILE X SYNDROME by Alex Stewart Little is known about the play skills of children with FXS and the relationship of play and language acquisition in this population. There are no published studies examining play skills in young males with FXS, even though play skills have been shown to be directly related to the development of receptive and expressive language. Research that attempts to identify more efficient and naturalistic language intervention approaches for children with FXS is needed. This study aimed to provide a descriptive characterization of play for 11 boys with FXS between the ages of 27 and 51 months. This study was designed to answer the following research questions: (1) What are the concurrent correlations between play skills, receptive and expressive language, and cognitive abilities of young males affected by fragile X syndrome? (2) How can the play of young males affected by fragile X syndrome be described and characterized? A series of one-tailed Spearman rank-order correlation (rho) was performed to provide quantitative data to answer the research questions. A significant correlation was iv found between the Mullen Visual Reception raw scores and frequency of Discriminative Play Actions (r = .667, p = .025, one-tailed) and a marginally significant correlation was found between the Mullen Visual Reception raw scores and frequency of Total Play Actions (r= .588, p= .057). The correlations with the Mullen Receptive Language raw scores were hovering for Object Interest (r= .529, p= .094), frequency of Discriminative Play Actions (r= .557, p= .075), and frequency of Total Play Actions (r= .538, p= .088). There was also a hovering negative correlation between the ADOS Autism Severity Score and Diversity of Play (r= -.559, p= .093). It should also be noted that no correlations were found between duration of the play sample and any of the play variables. Using item analysis of the PLS-5 and level of mastery results from the DPA, a language and play development chart (see Table 4-1) was created to describe and characterize the play of young boys with FXS ages 1-5. The information from this study will provide clinicians with information specific to the developmental trajectory of young boys with FXS, which may also provide insight into both assessment and therapy standards. This should improve the overall service delivery to these clients. ____________________________, Committee Chair Robert A. Pieretti, Ph.D. ____________________________ Date v ACKNOWLEDGEMENTS The research included in this thesis could not have been performed if not for the assistance, patience, and support of many individuals. I would like to extend my gratitude first and foremost to my thesis advisor, Dr. Robert Pieretti, for mentoring me over the course of my graduate studies. His insight led to a more refined and descriptive research objectives. His perspective has helped me to thoroughly express my results and observations to allow for better understanding for my readers. I sincerely thank him for his confidence in me and his help over the course of the analysis and the writing of this thesis. I would additionally like to thank Dr. Ann Blanton for the support she has provided me throughout my undergraduate and graduate studies. Her background in research has only benefitted me, especially throughout the revision stages of this paper. I cannot thank her enough for the example she has set for me as both a clinician and a researcher. This study would not have been possible without the help, guidance, and support of Dr. Leonard Abbeduto, Dr. Andrea McDuffie, Dr. Angela John Thurman, and Ashley Oakes. To Dr. Abbeduto and Dr. Andrea McDuffie, I cannot thank you enough for providing me with the wonderful opportunity to participate in such an innovative research study. Your wisdom and guidance helped me throughout the course of this study, as well as during the writing process. Dr. Angela John Thurman, I want to thank you for your constant support and insight into the research field, including your assistance during the data analysis and interpretation process. To Ashley Oakes, you led by example and taught vi me to not be afraid of the research process, but rather enjoy the ride that it takes you on. And to my all my coworkers at the UC Davis M.I.N.D. Institute, it was a pleasure collaborating with you all throughout the course of this study. I am forever grateful for this experience. This research would not have been possible without the cooperation and participation of the children and families involved in this study. I cannot express how much I appreciate the knowledge you have given me and the help you have provided for my research. The larger study, in which this pilot study was associated with, was supported by funding from the National Fragile X Foundation. I would like to thank this wonderful association for the support they provide to the families of those affected by fragile X syndrome and their involvement in innovative research that will further support these families. Finally I would like to extend my deepest gratitude to my parents, Teri and David Hinz, and my husband, Scott Stewart, without whose love, support and understanding I could never have completed this master’s degree. To my mom and dad, you have constantly shown me that hard work and dedication pay off. To my loving husband, you have given me confidence when I needed it, help when I asked for it, and stability though I never requested it. I could not have made it through this process without you all. vii TABLE OF CONTENTS Page Acknowledgements ..................................................................................................... vi List of Tables ................................................................................................................ x Chapter 1. REVIEW OF THE LITERATURE ....................................................................... 1 Introduction ....................................................................................................... 1 Causes of Fragile X Syndrome ............................................................. 1 Prevalence of FXS ................................................................................ 2 Cognitive and Developmental Characteristics of Individuals with FXS ................................................................................................3 Physical Characteristics of Individuals with FXS ................................ 4 Language Development in Individuals with FXS ................................. 5 The Relationship Between Play and Language Development .............. 8 Play and Typically-Developing Children ............................................. 9 Play and Children with Developmental Delays .................................. 15 Statement of the Problem ................................................................................ 16 2. METHODOLOGY ............................................................................................... 18 Design. ............................................................................................................ 18 Participants ...................................................................................................... 18 Evaluation Measures ....................................................................................... 20 Variables Analyzed ......................................................................................... 26 viii 3. RESULTS ............................................................................................................. 28 Individual Characteristics: Developmental Play Assessment ......................... 28 Individual Characteristics: Measures of Language, Cognition, and Autism Symptom Severity ........................................................................................... 31 Concurrent Correlational Analysis ................................................................. 37 4. DISCUSSION ....................................................................................................... 41 5. IMPLICATIONS, LIMITATIONS, AND FUTURE DIRECTIONS .................. 49 Implications....................................................................................................
Load more

Recommended publications
  • Leonard Abbeduto, Ph.D
    Leonard Abbeduto, Ph.D. Research/Academic Interests Dr. Abbeduto’s research is focused broadly on the development of language across the lifespan in individuals with intellectual and developmental disabilities and on the family context for language development. Dr. Abbeduto has published more than 200 articles, chapters, reviews, and books on fragile X syndrome, autism, Down syndrome, and child development. His program of research has been funded nearly continuously by NIH since 1985. His current research is focused on understanding variation in language outcomes in various conditions associated with intellectual disability, the measurement of treatment effects in clinical trials, and the use of distance technology to deliver behavioral treatment. He serves as Principal Investigator and Director of the NIH-funded MIND Institute Intellectual and Developmental Disabilities Research Center (IDDRC), which provides core support to more than 80 projects and 40 scientists at the UC Davis MIND Institute. He also co-directs the UC Davis Redwood SEED Scholars program, which is a 4-year, residential, inclusive college program for individuals with intellectual disabilities. Title Professor, Department of Psychiatry and Behavioral Sciences Director, UC Davis MIND Institute Specialty Autism, Neurodevelopmental Disorders, Psychology Department Psychiatry and Behavioral Sciences Division Psychiatry Center/Program Affiliation UC Davis MIND Institute Address/Phone UC Davis MIND Institute, 2825 50th St. Sacramento, CA 95817 Additional Phone Phone: 916-703-0234
    [Show full text]
  • A Phenotypic Comparison of Communication-Relevant Domains Between Youth with Down Syndrome and Fragile X Syndrome
    ORIGINAL RESEARCH published: 01 October 2018 doi: 10.3389/fgene.2018.00424 Specificity: A Phenotypic Comparison of Communication-Relevant Domains Between Youth With Down Syndrome and Fragile X Syndrome Laura del Hoyo Soriano 1,2*, Angela John Thurman 1,2 and Leonard Abbeduto 1,2 1 MIND Institute, University of California, Davis, Sacramento, CA, United States, 2 Department of Psychiatry and Behavioral Sciences, University of California, Davis, Sacramento, CA, United States Despite the shared presence of an intellectual disability (ID), there is a growing literature documenting important phenotypic differences between Down syndrome (DS) and fragile X syndrome (FXS). These conclusions, however, are based on a synthesis across studies, each of which typically includes only measures of a limited number of constructs, and with differing participant characteristics. Firmer conclusions regarding specific Edited by: phenotypes require a single comprehensive multi-domain assessment of participants Manuel Mattheisen, with the syndrome groups being well matched on chronological age (CA) and cognitive Universitätsklinikum Würzburg, Germany functioning. The current study was designed to fill this gap by assessing several Reviewed by: important cognitive and behavioral domains relevant to communication, such as: Juko Ando, structural language skills, false belief understanding, as well as pragmatics and behavioral Keio University, Japan difficulties, in 30 adolescents of both sexes with DS and 39 males with FXS, matched on Baptiste Couvy-Duchesne, University of Queensland, Australia CA and nonverbal (NV) cognition. After statistically controlling for NV cognition, we did *Correspondence: not find significant syndrome differences in expressive and receptive structural language Laura del Hoyo Soriano or false belief understanding. In contrast, participants with DS displayed less stereotyped [email protected] language and fewer behavioral difficulties compared to males with FXS.
    [Show full text]
  • The Fragile X Syndrome–Autism Comorbidity: What Do We Really Know?
    REVIEW ARTICLE published: 16 October 2014 doi: 10.3389/fgene.2014.00355 The fragile X syndrome–autism comorbidity: what do we really know? Leonard Abbeduto 1,2*, Andrea McDuffie 1,2 and Angela John Thurman 1,2 1 MIND Institute, University of California, Davis, Sacramento, CA, USA 2 Department of Psychiatry and Behavioral Sciences, University of California, Davis, Sacramento, CA, USA Edited by: Autism spectrum disorder (ASD) is a common comorbid condition in people with fragile Anne C. Wheeler, Carolina Institute X syndrome (FXS). It has been assumed that ASD symptoms reflect the same underlying for Developmental Disabilities; University of North Carolina at psychological and neurobiological impairments in both FXS and non-syndromic ASD, which Chapel Hill, USA has led to the claim that targeted pharmaceutical treatments that are efficacious for core Reviewed by: symptoms of FXS are likely to be beneficial for non-syndromic ASD as well. In contrast, we Molly Losh, Northwestern present evidence from a variety of sources suggesting that there are important differences University, USA in ASD symptoms, behavioral and psychiatric correlates, and developmental trajectories Dejan Budimirovic, Kennedy Krieger Institute/The Johns Hopkins between individuals with comorbid FXS and ASD and those with non-syndromic ASD. We University, USA also present evidence suggesting that social impairments may not distinguish individuals *Correspondence: with FXS with and without ASD. Finally, we present data that demonstrate that the Leonard Abbeduto, MIND Institute, neurobiological substrates of the behavioral impairments, including those reflecting core University of California, Davis, 2825 ASD symptoms, are different in FXS and non-syndromic ASD. Together, these data suggest 50th Street, Sacramento, CA 95817, USA that there are clinically important differences between FXS and non-syndromic ASD e-mail: leonard.abbeduto@ucdmc.
    [Show full text]
  • Psychological Well-Being and Coping in Mothers of Youths with Autism, Down Syndrome, Or Fragile X Syndrome
    VOLUME 109, NUMBER 3: 237±254 z MAY 2004 AMERICAN JOURNAL ON MENTAL RETARDATION Psychological Well-Being and Coping in Mothers of Youths With Autism, Down Syndrome, or Fragile X Syndrome Leonard Abbeduto, Marsha Mailick Seltzer, and Paul Shattuck University of Wisconsin-Madison Marty Wyngaarden Krauss Brandeis University Gael Orsmond Boston University Melissa M. Murphy University of Wisconsin-Madison Abstract The psychological well-being of mothers raising a child with a developmental disability varies with the nature of the disability. Most research, however, has been focused on Down syndrome and autism. We added mothers whose adolescent or young adult son or daughter has fragile X syndrome. The sample was comprised of mothers of a child with fragile X syndrome (n 5 22), Down syndrome (n 5 39), or autism (n 5 174). Mothers of individuals with fragile X syndrome displayed lower levels of well-being than those of individuals with Down syndrome, but higher levels than mothers of individuals with autism, although group differences varied somewhat across different dimensions of well-being. The most consistent predictor of maternal outcomes was the adolescent or young adult's behavioral symptoms. Parents raising a child with a developmental group has seldom been studied from the perspec- disability face challenges that are not shared by tive of parental psychological well-being, and its parents of typically developing children (Stone- inclusion yields additional insights about the im- man, 1997). There is, however, substantial evi- pact of developmental disabilities on parents. We dence that the challenges parents face and the examined group differences in parental psycho- ways in which they deal with these challenges vary logical well-being and coping, their association with the nature of the child's disability (Dunst, with characteristics of the family and characteris- Trivette, & Cross, 1986; Gallagher, Beckman, & tics and behavior of the son or daughter, and the Cross, 1983; Walker, Van Slyke, & Newbrough, potential buffering effects of coping.
    [Show full text]
  • Psychological Wellbeing in Fathers of Adolescents and Young Adults With
    SIGAN L. HARTLEY AND MARSHA MAILICK SELTZER University of Wisconsin-Madison LARA HEAD Gundersen Lutheran Medical Hospital* LEONARD ABBEDUTO University of Wisconsin-Madison** Psychological Well-being in Fathers of Adolescents and Young Adults With Down Syndrome, Fragile X Syndrome, and Autism The psychological well-being of fathers of chil- and design services for fathers during the later dren with developmental disabilities remains parenting years. poorly understood. The present study examined depressive symptoms, pessimism, and coping in Approximately 1% to 2% of children in the fathers of adolescents and young adults with United States have a developmental disability, Down syndrome (DS; n = 59), autism spectrum defined as a severe condition due to a mental disorders (ASDs; n = 135), and Fragile X syn- or physical impairment that manifests prior to drome (n = 46). Fathers of sons or daughters age 22 years that is likely to continue indef- with ASDs reported a higher level of depres- initely and markedly impairs everyday func- sive symptoms than the other groups of fathers. tioning (National Center on Birth Defects and Fathers of sons or daughters with DS reported Developmental Disabilities, 2006). Parenting a a lower level of pessimism than the other groups child with a developmental disability presents of fathers. There were no group differences extraordinary challenges; parents often must in paternal coping style. Group differences in assist their son or daughter with everyday living paternal depressive symptoms and pessimism skills and manage their symptoms and comor- were, in part, related to differences in pater- bid behavior problems and navigate the complex nal age, the child’s behavior problems, risk of disability service system (Hodapp & Ly, 2005).
    [Show full text]
  • Intellectual and Developmental Disabilities Research Centers: Fifty Years of Scientific Accomplishments
    REVIEW Intellectual and Developmental Disabilities Research Centers: Fifty Years of Scientific Accomplishments Steven U. Walkley, DVM, PhD,1 Leonard Abbeduto, PhD,2 Mark L. Batshaw, MD,3 Anita Bhattacharyya, PhD,4 Susan Y. Bookheimer, PhD,5 Bradley T. Christian, PhD,6 John N. Constantino, MD,7 Jean de Vellis, PhD,5 Daniel A. Doherty, MD, PhD,8 David L. Nelson, PhD,9 Joseph Piven, MD,10 Annapurna Poduri, MD,11 Scott L. Pomeroy, MD, PhD ,11 Rodney C. Samaco, PhD,9 Huda Y. Zoghbi, MD,9 and Michael J. Guralnick, PhD,12 for the Intellectual and Developmental Disabilities Research Centers Directors Committee Progress in addressing the origins of intellectual and developmental disabilities accelerated with the establishment 50 years ago of the Eunice Kennedy Shriver National Institute of Child Health and Human Development of the National Institutes of Health and associated Intellectual and Developmental Disabilities Research Centers. Investigators at these Centers have made seminal contributions to understanding human brain and behavioral development and defining mechanisms and treatments of disorders of the developing brain. ANN NEUROL 2019;86:332–343 Introduction: History and Overview Intellectual and Developmental Disabilities Research Centers In this review, we reflect upon the major transformations (IDDRCs) on the occasion of their 50th anniversary. During that have occurred in the past 50 years in the lives of individ- this period, these centers have established a national network uals with intellectual and developmental disabilities (IDDs). of scientists and collaborated with faculty involved in related We do so primarily through the lens of scientificadvances networks consisting of professional training and clinical emphasizing contributions of the Eunice Kennedy Shriver centers as well as advocacy organizations.
    [Show full text]
  • Read the Excerpt
    FOR MORE: bit.ly/AllAboutLanguage ina ina aord ry aord ry tr tr x x E E The The BRAIN BRAIN series series All About Language (Неделя языка: наука, теория, практика) Excerpted from: All About Language Edited by: Elena L. Grigorenko, Peggy McCardle Ph.D., MPH, Yuri Shtyrov 00--FM--i-xxxii.indd 1 7/28/19 11:50 AM FOR MORE: bit.ly/AllAboutLanguage ina ina aord ry aord ry tr tr x x E E The The BRAIN BRAIN series series All About Language Science, Theory, and Practice (Неделя языка: наука, теория, практика) edited by Elena L. Grigorenko, Ph.D. University of Houston and Baylor College of Medicine, Houston, Texas St. Petersburg State University, St. Petersburg, Russia Moscow State University of Psychology and Education, Moscow, Russia Yury Shtyrov, Ph.D. Aarhus University, Denmark St. Petersburg State University, St. Petersburg, Russia Higher School of Economics, Moscow, Russia and Peggy McCardle, Ph.D., M.P.H. Peggy McCardle Consulting, LLC, Tarpon Springs, Florida Haskins Laboratories, New Haven, Connecticut with invited contributors Excerpted from: All About Language Edited by: Elena L. Grigorenko, Peggy McCardle Ph.D., MPH, Yuri Shtyrov 00--FM--i-xxxii.indd 3 7/28/19 11:50 AM FOR MORE: bit.ly/AllAboutLanguage Paul H. Brookes Publishing Co. Post Office Box 10624 Baltimore, Maryland 21285-0624 USA www.brookespublishing.com Copyright © 2020 by Paul H. Brookes Publishing Co., Inc. All rights reserved. “Paul H. Brookes Publishing Co.” is a registered trademark of Paul H. Brookes Publishing Co., Inc. Typeset by BMWW, Baltimore, Maryland. Manufactured in the United States of America by Sheridan Books, Inc., Chelsea, Michigan.
    [Show full text]
  • Pragmatic Language Features of Mothers with the FMR1 Premutation
    University of South Carolina Scholar Commons Faculty Publications Psychology, Department of 2-2016 Pragmatic Language Features of Mothers with the FMR1 Premutation are Associated with the Language Outcomes of Adolescents and Young Adults with Fragile X Syndrome Jessica Klusek University of South Carolina - Columbia, [email protected] S E. McGrath L Abbeduto J E. Roberts Follow this and additional works at: https://scholarcommons.sc.edu/psyc_facpub Part of the Psychology Commons Publication Info Preprint version Journal of Speech, Language, and Hearing Research, Volume 59, Issue 1, 2016, pages 49-61. © Journal of Speech, Language, and Hearing Research, 2016, National Center for Biotechnology Information Klusek J, McGrath S. E, Abbeduto L, Roberts J. E.(2016). Pragmatic Language Features of Mothers with the FMR1 Premutation are Associated with the Language Outcomes of Adolescents and Young Adults with Fragile X Syndrome. Journal of Speech, Language, and Hearing Research, 59(1), 49-61. http://dx.doi.org/10.1044/2015_JSLHR-L-15-0102 This Article is brought to you by the Psychology, Department of at Scholar Commons. It has been accepted for inclusion in Faculty Publications by an authorized administrator of Scholar Commons. For more information, please contact [email protected]. Running Head: MATERNAL PRAGMATICS AND LANGUAGE OUTCOMES IN FXS Pragmatic Language Features of Mothers with the FMR1 Premutation are Associated with the Language Outcomes of Adolescents and Young Adults with Fragile X Syndrome Jessica Klusek University of South Carolina Sara E. McGrath University of South Carolina Leonard Abbeduto University of California, Davis Jane E. Roberts University of South Carolina Author Note Jessica Klusek, Sara E.
    [Show full text]
  • Psychology in Intellectual and Developmental Disabilities Official Publication of Division 33
    PSYCHOLOGY IN INTELLECTUAL AND DEVELOPMENTAL DISABILITIES OFFICIAL PUBLICATION OF DIVISION 33 AMERICAN PSYCHOLOGICAL ASSOCIATION Volume 37, Number 1 Summer 2011 2011 APA Convention Overview John R. Lutzker Anna Esbensen, Julie Jabaley, Division 33 President-Elect and Jamie McPartland Laura Lee McIntyre, Janeece Warfield Program Chair Program Co-Chair Program Committee Division 33 will host a very exciting Edgar A. Doll Award, will address lessons Janeece Warfield (Wright State program for the 2011 Convention of the learned from his work of 30 years in University). This session covers children American Psychological Association, pharmacological research. The student and adults and a variety of timely topics. August 4-7 in Washington, DC. Profound awards will be presented and papers Finally, the Division 33 Business Meeting, gratitude is expressed to the Program delivered in one session on Thursday open to all, follows the Presidential Committee for all their help in putting by Tessa Hesse (DePaul University) Address on Friday. The closed executive together this event and to Len Abbeduto on sibling adjustment and ASD, and by committee meeting is Thursday from 5-7. and Greg Olley for their incredibly helpful Vivian Piazza (Georgia State University) If you want to experience the secret rituals advice. on aging parents who have children with of this group from the inner sanctum, you The Division 33 program gets off to a developmental disabilities. need to get involved and become an office provocative start with a 9:00 AM Thursday The presidential address will follow holder, or student representative of the 2-hour invited symposium on the death the Jacobson and Doll Award sessions.
    [Show full text]
  • Psychological Well-Being in Fathers of Adolescents and Young Adults with Down Syndrome, Fragile X Syndrome, and Autism
    SIGAN L. HARTLEY AND MARSHA MAILICK SELTZER University of Wisconsin-Madison LARA HEAD Gundersen Lutheran Medical Hospital* LEONARD ABBEDUTO University of Wisconsin-Madison** Psychological Well-being in Fathers of Adolescents and Young Adults With Down Syndrome, Fragile X Syndrome, and Autism The psychological well-being of fathers of chil- and design services for fathers during the later dren with developmental disabilities remains parenting years. poorly understood. The present study examined depressive symptoms, pessimism, and coping in Approximately 1% to 2% of children in the fathers of adolescents and young adults with United States have a developmental disability, Down syndrome (DS; n = 59), autism spectrum defined as a severe condition due to a mental disorders (ASDs; n = 135), and Fragile X syn- or physical impairment that manifests prior to drome (n = 46). Fathers of sons or daughters age 22 years that is likely to continue indef- with ASDs reported a higher level of depres- initely and markedly impairs everyday func- sive symptoms than the other groups of fathers. tioning (National Center on Birth Defects and Fathers of sons or daughters with DS reported Developmental Disabilities, 2006). Parenting a a lower level of pessimism than the other groups child with a developmental disability presents of fathers. There were no group differences extraordinary challenges; parents often must in paternal coping style. Group differences in assist their son or daughter with everyday living paternal depressive symptoms and pessimism skills and manage their symptoms and comor- were, in part, related to differences in pater- bid behavior problems and navigate the complex nal age, the child’s behavior problems, risk of disability service system (Hodapp & Ly, 2005).
    [Show full text]
  • Monday - April 5, 2021
    Monday - April 5, 2021 12:00- Science Communications and the Importance of Talking to Non-Scientists Zoom 1:15 PM CDT Maggie Koerth Link will be sent sent separately 1:15- 2:00 PM CDT BREAK 2:00- Effective Data Visualization Zoom 3:15 PM CDT Neda Sedeghi, PhD Link will be sent sent separately Hosted by Co-hosted by Thank you to our IDDRC Sponsors Tuesday - April 6, 2021 8:30 AM CDT General Q&A Help Center Stage Opening Remarks 9:00- Opening Remarks Stage 9:30 AM CDT John Colombo, PhD, Conference Chair Rodney Samaco, PhD, and Eric Storch, PhD, Co-Chairs 9:30- Plenary Speaker 1 10:30 AM Successes and Challenges in Treating Severe Communication Disorders Plenary Talks Stage CDT Nancy Brady, PhD 10:30- 10:40 AM BREAK CDT Vanderbilt Kennedy Center Stage Waisman Center Stage UC Davis MIND Institute Stage Symposium 1: Co-Occurring Psychiatric Conditions in Symposium 2: Meaningful Differences in the Symposium 3: Masks, Mandates, and Mourning: People with Autism, Intellectual Disability, or Down Everyday Experience of Young Autistic Children Individuals with Neurodevelopmental and Genetic Syndrome: Prevalence Rates and Service Use Across Disorders and Their Families During the Time of the • Lee Mason, Cook Children’s Health Care System the Lifespan COVID-19 Global Pandemic (Chair) 10:40- • Brenna Maddox, University of North Carolina at • Alonzo Andrews, The University of Texas at San • Jessica Goldblum, The University of North Carolina 11:40 AM Chapel Hill (Chair) Antonio (Discussant) at Chapel Hill (Chair) CDT • Lauren Brookman-Frazee, University
    [Show full text]
  • Leonard Abbeduto, Ph.D
    Leonard Abbeduto, Ph.D. Abbeduto, Leonard, Ph.D. Director, UC Davis MIND Institute and Tsakopoulos-Vismara Endowed Chair, Department of Psychiatry and Behavioral Sciences, School of Medicine Biography Dr. Abbeduto’s research at the UC Davis MIND Institute focuses on the development of language across the lifespan in individuals with neurodevelopmental disorders. His current projects focus on the factors accounting for variation in the course of language in children, adolescents, and young adults with fragile X syndrome, autism, or Down syndrome. These projects seek to identify the behavioral, biological, and environmental influences that shape language in these conditions. Other projects focus on the development of methods to optimize language development through parent-mediated interventions and the role of telehealth technology in the delivery of these interventions. Dr. Abbeduto’s research has been funded virtually continuously by the National Institutes of Health since 1984. He is the editor of the American Journal on Intellectual and Developmental Disabilities, which is the flagship journal of the American Association on Intellectual and Developmental Disabilities. Dr. Abbeduto is also Director of the NIH-funded Interdisciplinary Training Conference on Developmental Disabilities, which is designed to foster an interdisciplinary approach to research on neurodevelopmental disorders in the next generation of scientists. Current Publications Journal Articles Oster-Granite, M.L., Parisi, M.A., Abbeduto, L., Berlin, D.S., Bodine, C., Bynum, D. et al. (2011) Conference proceedings: "Down syndrome: National conference on patient registries, research databases, and biobanks." Molecular Genetics and Metabolism, 104, 13-22. Pierpont, E.I., Richmond, E.K., Abbeduto, L., Kover, S.T., & Brown, W.T.
    [Show full text]